scholarly journals Can we normalise developmentally appropriate health care for young people in UK hospital settings? An ethnographic study

BMJ Open ◽  
2019 ◽  
Vol 9 (9) ◽  
pp. e029107 ◽  
Author(s):  
Tim Rapley ◽  
Albert Farre ◽  
Jeremy R Parr ◽  
Victoria J Wood ◽  
Debbie Reape ◽  
...  

ObjectiveThe WHO has argued that adolescent-responsive health systems are required. Developmentally appropriate healthcare (DAH) for young people is one approach that could underpin this move. The aim of this study was to explore the potential for DAH to become normalised, to become a routine, taken-for-granted, element of clinical practice.DesignQualitative ethnographic study. Analyses were based on procedures from first-generation grounded theory and theoretically informed by normalisation process theory.SettingTwo tertiary and one secondary care hospital in England.Participants192 participants, health professionals (n=121) and managers (n=71) were recruited between June 2013 and January 2015. Approximately 1600 hours of non-participant observations in clinics, wards and meeting rooms were conducted, alongside 65 formal qualitative interviews.ResultsWe observed diverse values and commitments towards the care of young people and provision of DAH, including a distributed network of young person-orientated practitioners. Informal networks of trust existed, where specific people, teams or wards were understood to have the right skill-mix, or mindset, or access to resources, to work effectively with young people. As young people move through an organisation, the preference is to direct them to other young person-orientated practitioners, so inequities in skills and experience can be self-sustaining. At two sites, initiatives around adolescent and young adult training remained mostly within these informal networks of trust. At another, through support by wider management, we observed a programme that sought to make the young people’s healthcare visible across the organisation, and to get people to reappraise values and commitment.ConclusionTo move towards normalisation of DAH within an organisation, we cannot solely rely on informal networks and cultures of young person-orientated training, practice and mutual referral and support. Organisation-wide strategies and training are needed, to enable better integration and consistency of health services for all young people.

Author(s):  
Janet E. McDonagh ◽  
Helena Gleeson

Young people are distinctly different from children and adults and as such require developmentally appropriate, youth-friendly rheumatology services to meet their medical and psychosocial needs. Adolescent development continues into the third decade of life and both influences and is affected by, health and illness (including) during this time. Effective transitional care in rheumatology is underpinned by the core principles of adolescent medicine, self-management of long-term conditions, and a developmentally appropriate, youth-friendly rheumatology service including staff trained in adolescent and young adult (AYA) health.


PEDIATRICS ◽  
1974 ◽  
Vol 54 (4) ◽  
pp. 481-485
Author(s):  
Sprague W. Hazard ◽  
Victor Eisner ◽  
Dale C. Garell ◽  
Felix P. Heald ◽  
Adele D. Hofmann ◽  
...  

The increasing emergence of legislation providing for minors' consent for health care furnishes a range of basic medical, legal, and social issues which require the thoughtful consideration of physicians caring for youth. The legislative provisions referred to account for a variety of consent situations ranging from the care of a specific illness or disorder to the dramatic lowering of the age for which consent for health care can be given. The ultimate conflict in the matter of minor's consent is between the basic rights and responsibilities of parents concerning their children and the emergence of the concept that youths have the right to make decisions relating to their bodies and their care. When the preservation of privacy and confidentiality affects the utilization of health care by youth, the conflict must be resolved. Not only have state legislatures provided varying opportunities to resolve some of these issues, but also two major health organizations concerned with the health of youth have provided model acts which would serve as a basis for enabling young people to consent for confidential, comprehensive health care. In recent years society has demonstrated a tendency to permit young people to determine a variety of aspects of their own affairs well before the traditional age of majority. In regard to health decisions, a number of situations have emerged in which the rights of youths deserve consideration. These include circumstances in which the person might avoid health care if the parents have to be informed, when a communication breakdown between the young person and the parents has taken place, if a need for emergency care occurs when parents cannot be reached, or when young people are living away from home in an adult life style. Legislative responses to the sociohealth concerns affecting youth do not take a moral or judgmental position, nor do they infer a lessening of the importance of family integrity. They do respond to a number of reality health matters with high incidence which have emerged, particularly in the past decade. These laws do not require physicians to treat young people on their own consent, nor do they forbid physicians from informing parents if this is considered in the best interest of the patient. Furthermore, it is important for the physician to persuade youths to involve their parents and gain their support and understanding. Minors' consent can serve to restore interrupted communication between young people and their families. The appearance and evolution of the "emancipated minor" and the "mature minor" concepts is recognition of the capacity of the adolescent to determine his own affairs and give an informed consent. The age at which human beings reach maturity is variable, and competent decision making is not assured by arrival at a certain chronological age.


2021 ◽  
pp. 609-626
Author(s):  
Helena Gleeson

This chapter covers endocrine concerns in the age group 10-24 years. It starts with an overview of transitional endocrinology and biopsychosocial development, aspects of developmentally appropriate healthcare, and how to perform a consultation for adolescents and young adults. It covers common clinical endocrine presentations of young people during adolescence, and how to approach a young person with an endocrine condition undergoing transition into adult care. The management of young people with hypopituitarism and growth hormone deficiency is outlined.


Author(s):  
Alexander Khlon

The study of the role of fundamental values in the formation of sense of justice is an important and relevant topic. The purpose of the study is to comprehensively consider the problems of values in youth, to determine how they affect to the formation of the sense of justice of the younger generation, and to study its role in the process of such formation. Values acquire value forms based on the psychological presentation of a person about the value of things or other objects of the material or intangible world. Values can be understood as a complex conception of human or group human about phenomena, rules, norms, processes, results, objects or other creation that are important to such a person or group of people and in one way or another to influence to this person or group of people. The process of forming the values of a young person begins with the emergence of needs. The needs determine desire, motivation, aspiration, which in the future leads to a subjective conception of value. Values that are related to the ideals of society will be called spiritual values. The modern young generation will persevere attention in focusing on the ideals of spiritual enrichment. At the same time, such a process is not possible without clear guarantees of satisfaction for young people in the first place basic needs. Sense of justice as a means of preventive persuasion, which will contribute to the prevention of crimes only because of the possibility and inevitability of punishment for them, will not fully fulfill its function. The inner conviction is important, as it acts as the reliable guarantor of the sense of justice behavior, which in the future will result in a positive attitude toward the right standards in the young man, and therefore very relevant is the orientation towards the harmonious combination of the young man's aspirations to the formation of values as spiritual as well as others. A clear and well-considered policy aimed at creating and maintaining right values will contribute to the successful formation of sense of justice among young people, which in turn will lead to the prosperity of our country.


2019 ◽  
Vol 79 (4) ◽  
pp. 377-389
Author(s):  
Maxime Morsa ◽  
Rémi Gagnayre ◽  
Marie-Pascale Pomey ◽  
Carole Deccache ◽  
Pierre Lombrail

Introduction: Patient education is recommended to improve the transition from paediatric to adult care for young people with chronic conditions. But a consensus has not been reached regarding a particular model. This study aimed to understand how to prepare for the implementation of a Developmentally Appropriate Patient Education during Transition (DAPET), which would revolve around the young person’s psychosocial development. Method: Three focus groups were organised with healthcare providers and two focus groups took place with the parents of young people with chronic conditions. We used activity theory to explore practices and to identify obstacles to the implementation of DAPET, as well as to recognise which resources might be available to implement DAPET. Results: Healthcare providers agreed on the need to engage in an educational approach centred on the psychosocial development of young people during transition. However, study findings highlight the following obstacles to doing so: a lack of competencies in adolescent and young adult medicine and a lack of available resources to meet these goals. Furthermore, parents wanted to redefine their role in the transition process and to allow their children to develop self-management skills. Conclusion: Healthcare providers and parents considered the implementation of DAPET to be acceptable and even advisable. However, the programme’s feasibility was questioned due to perceived shortfalls in the hospital system as it currently stands and the ways in which an educational approach would be applied. An environment that facilitates healthcare providers’ educational initiatives and encourages the participation of parents is required.


2017 ◽  
Vol 24 (1) ◽  
Author(s):  
Hans Ek ◽  
Joakim Isaksson ◽  
Rikard Eriksson

Professions, power and collaboration between authorities: Social Services, schools, and Child and Adolescent Psychiatry Services working with adolescents who do not go to school School non-attendance is often a sign of a complex combination of dierent kinds of problems, which means that these children and young people are often in need of composite help from several dierent types of professions within various authorities. e purpose of the study was to examine how school authorities, the Social Services and Child and Adolescent Psychiatry (BUP) collaborate in their work with young people who do not go to school. e study comprised a thematic analysis of qualitative interviews with managerial representatives of the respective autho- rities. e empirical material consisted of 12 qualitative interviews with heads of units at BUP (5 individuals), section managers from Social Services (3 individuals) and principals from compul- sory schools (4 individuals) in three municipalities in western Sweden. According to the results, it seems problematic to manage the positions of power that may arise in collaboration between the parties. A position of power thus implies the right to make a decision as a profession as well as acti- vities that are related to each other. e right to make a decision means the mandate to determine which measures should be put in place for the young people and their families. is study also shows that the parties should develop a common knowledge base that is a combination of educa- tional, social and psychological perspectives. e common knowledge base can reduce the risk of power imbalance between the parties. 


2020 ◽  
Vol 106 (1) ◽  
pp. 9-13
Author(s):  
Emma Rigby ◽  
Ann Hagell ◽  
Marion Davis ◽  
Helena Gleeson ◽  
Gabrielle Mathews ◽  
...  

The 2019 NHS England Long Term Plan set out the ambition to work across the 0–25 age range to support children and young people as they make the transition to early adulthood. Within this broad age bracket, how do we ensure we get health services right for 16–25 year-olds including the transfer to adult services? In this paper, we explore the evidence supporting youth-friendly and developmentally appropriate healthcare approaches and what these mean in practice for young people and healthcare professionals. Examples from primary and secondary care, as well as the perspectives of a young person, illustrate the challenges and solutions.


2017 ◽  
Vol 62 (1) ◽  
pp. 185-197 ◽  
Author(s):  
Robyn Munford ◽  
Jackie Sanders

Drawing on data from a longitudinal study of young people’s transitions to adulthood, this article explores the experiences of young people who face high levels of adversity. These young people had experienced challenging circumstances from an early age (exposure to harm and to impoverished social and material conditions). This article draws on the qualitative phase of the study. Young people and a trusted other, nominated by the young person, participated in three annual qualitative interviews. The article explores experiences in two domains: education and employment. It concludes with a discussion of the implications for practice with young people who face adversity.


2019 ◽  
Vol 7 (1) ◽  
pp. 9-20
Author(s):  
Inna Yeung

Choice of profession is a social phenomenon that every person has to face in life. Numerous studies convince us that not only the well-being of a person depends on the chosen work, but also his attitude to himself and life in general, therefore, the right and timely professional choice is very important. Research about factors of career self-determination of students of higher education institutions in Ukraine shows that self-determination is an important factor in the socialization of young person, and the factors that determine students' career choices become an actual problem of nowadays. The present study involved full-time and part-time students of Institute of Philology and Mass Communications of Open International University of Human Development "Ukraine" in order to examine the factors of career self-determination of students of higher education institutions (N=189). Diagnostic factors of career self-determination of students studying in the third and fourth year were carried out using the author's questionnaire. Processing of obtained data was carried out using the Excel 2010 program; factorial and comparative analysis were applied. Results of the study showed that initial stage of career self-determination falls down on the third and fourth studying year at the university, when an image of future career and career orientations begin to form. At the same time, the content of career self-determination in this period is contradictory and uncertain, therefore, the implementation of pedagogical support of this process among students is effective.


Sign in / Sign up

Export Citation Format

Share Document