scholarly journals A Survey of People With Parkinson’s and Their Carers: The Management of Pain in Parkinson’s

2021 ◽  
pp. 089198872110235
Author(s):  
Jenni Naisby ◽  
Anneesa Amjad ◽  
Natasha Ratcliffe ◽  
Alison J. Yarnall ◽  
Lynn Rochester ◽  
...  
Keyword(s):  
Pain Management ◽  
Healthcare Professionals ◽  
Daily Life ◽  
Management Strategies ◽  
Management Interventions ◽  
Open Questions ◽  
The Individual ◽  
Open Question ◽  
The Impact

Background: Pain in Parkinson’s is problematic but under treated in clinical practice. Healthcare professionals must understand the impact of pain in Parkinson’s and patient preferences for management. Objective: To understand the impact of pain in Parkinson’s and to understand current management and preferences for pain management. Methods: We conducted a national survey with 115 people with Parkinson’s (PwP) and 10 carers. Both closed and open questions were used. The questions focused on how pain affected the individual, healthcare professional involvement in supporting pain management, current pain management strategies and views on future pain management interventions. We used descriptive statistics to summarize closed responses and thematic analysis to summarize open question responses. Results: 70% of participants reported pain impacted their daily life. Pain had a multifactorial impact on participants, affecting movement, mood and quality of life. Improved pain management was viewed to have the potential to address each of these challenges. Pain affected a number of different sites, with low back pain and multiple sites being most frequently reported. Exercise was the most frequently noted strategy (38%) recommended by healthcare professionals for pain management. PwP would value involvement from healthcare professionals for future pain management, but also would like to self-manage the condition. Medication was not suggested as a first line strategy. Conclusions: Despite reporting engagement in some strategies to manage pain, pain still has a wide-ranging impact on the daily life of PwP. Results from this survey highlight the need to better support PwP to manage the impact of pain.

Impact of a Parent-Directed Pamphlet About Pain Management During Infant Vaccinations on Maternal Knowledge and Behavior

2014 ◽  
Vol 33 (2) ◽  
pp. 74-82 ◽  
Author(s):  
Anna Taddio ◽  
Noni E. MacDonald ◽  
Sarah Smart ◽  
Chaitya Parikh ◽  
Victoria Allen ◽  
...  
Keyword(s):  
Pain Management ◽  
Management Strategies ◽  
Maternal Knowledge ◽  
Intervention Site ◽  
Management Interventions ◽  
Before And After ◽  
And Behavior ◽  
The Impact ◽  
Routine Infant ◽  
Before And After Study

Purpose: To evaluate the impact of a parent-directed instructional pamphlet about managing pain during infant vaccinations.Design and Sample: New mothers hospitalized following birth of an infant at two hospitals participated in a “before-and-after” study. In the “after” phase, the pamphlet was passively inserted in discharge packages at the intervention hospital.Main Outcomes: Maternal knowledge and self-reported use of pain-management interventions during routine infant two-month vaccinations.Results: Altogether, 354 mothers participated. A two-way (site, phase) ANOVA revealed no interaction (site × phase) in knowledge or use of pain-management strategies after routine two-month infant vaccinations; hence, there was no evidence of a benefit provided by the pamphlet. However, within the intervention site, only 21 percent of mothers read the pamphlet. Reading the pamphlet was associated with higher knowledge. This suggests some possible benefits of the pamphlet, provided that mothers read it.

The Collegiate Irish Dancer’s Experience of Injury: A Qualitative Study

2020 ◽  
Vol 35 (1) ◽  
pp. 1-9
Author(s):  
Owen Higginbotham ◽  
Roisin Cahalan
Keyword(s):  
Injury Risk ◽  
Healthcare Professionals ◽  
Management Strategies ◽  
Social Supports ◽  
Professional Relationships ◽  
Successful Management ◽  
High Incidence ◽  
Psychosocial Challenges ◽  
The Impact

OBJECTIVES: A high incidence of injury is reported amongst student and professional dancers, impacting negatively upon the quality of life and biopsychological health of dancers. Research examining the impact of injury on Irish dancing (ID) students is lacking. There is a need to understand dancer’s emotional and cognitive reaction to injury, to inform management strategies for same. METHODS: Fifteen fulltime university students of ID participated in two semi-structured focus groups interviews. Transcribed interviews were analysed using a bottom-up inductive approach. RESULTS: Thematic analysis of the data collected produced three themes and a number of associated subthemes: Theme 1: cognitive, emotional and behavioural responses, with three subthemes (questioning, feelings and emotions, dancer identity and subculture of risk); Theme 2: management strategies, with two subthemes (resilience, evaluating injury risk); and Theme 3: social supports, with two subthemes (personal relationships, professional relationships). CONCLUSIONS: Students of ID experience significant psychosocial challenges when they are injured, many of which are negative. The importance of dancer identity combined with a subculture of injury concealment and perseverance may compromise the optimal management of dancer injury. Social supports are critical in facilitating successful management of injury. A disconnect exists between dancers and healthcare professionals when seeking medical treatment.

scholarly journals The impact of symptoms on daily life as perceived by patients with Charcot-Marie-Tooth type 1A disease

2021 ◽  
Author(s):  
Stefano Tozza ◽  
Dario Bruzzese ◽  
Daniele Severi ◽  
Emanuele Spina ◽  
Rosa Iodice ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Daily Life ◽  
Short Form ◽  
Lower Limbs ◽  
Charcot Marie Tooth ◽  
Rank Analysis ◽  
Sf 36 ◽  
Tooth Type ◽  
The Impact

Abstract Introduction In Charcot-Marie-Tooth type 1A (CMT1A) patients, daily life is mainly influenced by mobility and ambulation dysfunctions. The aim of our work was to evaluate the perception of disturbances that mostly impact on daily life in CMT1A patients and its difference on the basis of age, gender, disability, and quality of life. Methods Forty-one CMT1A patients underwent neurological assessment focused on establishing clinical disability through the Charcot-Marie-Tooth Neuropathy Score (CMTNS) and quality of life through the Short Form-36 (SF-36) questionnaire. We identified from CMT disturbances 5 categories [weakness in lower limbs (WLL), weakness in upper limbs (WUL), skeletal deformities (SD), sensory symptoms (SS), balance (B)] and patients classified the categories from the highest to the lowest impact on daily life (1: highest; 5: lowest). Ranking of the 5 categories, in the overall sample and in the different subgroups (dividing by gender, median of age and disease duration, CMTNS, domains of SF-36), was obtained and differences among subgroups were assessed using a bootstrap approach. Results Rank analysis showed that WLL was the most important disturbance on daily life whereas WUL had the lowest impact. In the older CMT1A group, the most important disturbance on daily life was B that was also the most relevant disturbance in patients with a greater disability. SD influenced daily life in younger patients. SS had less impact on daily life, with the exception of patients with a milder disability. Discussion Our findings demonstrated that the perception of disturbances that mostly impact on CMT1A patients’ daily life changes over the lifetime and with degree of disability.

VP37 Patient Involvement In EUnetHTA Assessments (Non-Pharma Technologies)

2019 ◽  
Vol 35 (S1) ◽  
pp. 85-85
Author(s):  
Sabine Ettinger ◽  
Judit Erdos ◽  
Cecilia De Villiers
Keyword(s):  
Quality Of Life ◽  
Patient Involvement ◽  
Health Related Quality ◽  
Patient Organizations ◽  
Open Questions ◽  
Related Quality ◽  
Patient Representatives ◽  
Health Related ◽  
The Impact

IntroductionPatients can provide valuable experience on living with diseases, health-related quality of life, various therapies and relevant outcomes. Their input and perspectives can be helpful in complementing health technology assessment (HTA) processes. The European Network for HTA (EUnetHTA), funded by the European Commission, aims to further advance and standardise patient involvement processes in order to add to the quality and applicability of HTAs and to allow capability building.MethodsDifferent methods for patient involvement in HTAs on non-pharmaceutical technologies were tested: Patient input templates (open questions sent to relevant patient organizations, or published on EUnetHTA website); scoping meeting with patients/patient representatives; one-on-one conversation and group conversation. Applied methods depended on the scope of the HTA and other factors like timelines of HTAs and burden of disease for patients.ResultsPatients were included in eight of sixteen HTAs on non-pharmaceutical technologies. Applied methods were: group conversation (n = 2), scoping meeting (n = 1), patient input templates (n = 4), one-on-one conversation (n = 2,) and other approach (i.e. written feedback on scope n= 2). In some HTAs more than one method was used. Main reasons for not including patients were inability to identify suitable patients or tight timelines. Patients' feedback on health-related quality of life and outcome measures proved most useful in the scoping phase.ConclusionsThe different approaches were useful for complementing HTA processes. Those need to be further tested and evaluated in order to formulate deeper understanding about the impact of patient involvement on HTA. Additionally, feedback from patients that were actively involved in the HTAs should be collected to further improve the involvement methods that should serve as basis for future recommendations post 2020.

The impact on quality of life of patient-related barriers to pain management

1998 ◽  
Vol 21 (5) ◽  
pp. 405-413 ◽  
Author(s):  
Sandra E. Ward ◽  
Kirstin Carlson-Dakes ◽  
Susan H. Hughes ◽  
Kristine L. Kwekkeboom ◽  
Heidi S. Donovan
Keyword(s):  
Quality Of Life ◽  
Pain Management ◽  
The Impact

scholarly journals Knowledge sharing in open source software communities: motivations and management

2015 ◽  
Vol 19 (4) ◽  
pp. 791-813 ◽  
Author(s):  
Zilia Iskoujina ◽  
Joanne Roberts
Keyword(s):  
Knowledge Sharing ◽  
Open Source ◽  
Open Source Software ◽  
Online Communities ◽  
Descriptive Analysis ◽  
Online Questionnaire ◽  
Content Type ◽  
The Individual ◽  
The Impact

Purpose – This paper aims to add to the understanding of knowledge sharing in online communities through an investigation of the relationship between individual participant’s motivations and management in open source software (OSS) communities. Drawing on a review of literature concerning knowledge sharing in organisations, the factors that motivate participants to share their knowledge in OSS communities, and the management of such communities, it is hypothesised that the quality of management influences the extent to which the motivations of members actually result in knowledge sharing. Design/methodology/approach – To test the hypothesis, quantitative data were collected through an online questionnaire survey of OSS web developers with the aim of gathering respondents’ opinions concerning knowledge sharing, motivations to share knowledge and satisfaction with the management of OSS projects. Factor analysis, descriptive analysis, correlation analysis and regression analysis were used to explore the survey data. Findings – The analysis of the data reveals that the individual participant’s satisfaction with the management of an OSS project is an important factor influencing the extent of their personal contribution to a community. Originality/value – Little attention has been devoted to understanding the impact of management in OSS communities. Focused on OSS developers specialising in web development, the findings of this paper offer an important original contribution to understanding the connections between individual members’ satisfaction with management and their motivations to contribute to an OSS project. The findings reveal that motivations to share knowledge in online communities are influenced by the quality of management. Consequently, the findings suggest that appropriate management can enhance knowledge sharing in OSS projects and online communities, and organisations more generally.

An Analysis on Human Resource Development Culture and Climate of Chemical Based Public Sector Enterprises in Kerala, India

2021 ◽  
Vol 2021 (6) ◽  
pp. 132-135
Author(s):  
Balakrishnan A ◽  
Dr. KVM Varambally
Keyword(s):  
Public Sector ◽  
Human Resource Development ◽  
Human Resource ◽  
Deep Structure ◽  
Positive Culture ◽  
Resource Development ◽  
The Individual ◽  
The Impact ◽  
Culture And Climate

The impact of Globalization creates a competitive horizon with new markets, new products, new mindsets, new competencies, and new ways of thinking about business. As an outcome of this, the market places become more complex, uncertain, competitive, and transformational. In this era, the major challenge faced by any organization is to maintain a peaceful as well positive culture and climate inside the organization. The human resource development climate of an organization plays a significant role in ensuring the competency, motivation, and development of its employees. Here the term climate denotes the quality of the internal environment. It influences morale and the attitudes of the individual toward his work and his environment. Culture refers to the deep structure of organizations, which is rooted in the values, beliefs, and assumptions held by organizational members. The study was aimed to analyze the Human Resource Development culture and climate of chemical-based public sector enterprises in Kerala. The results indicated that the Human Resource Development climate in an organization is average and the perception of employees regarding Human Resource Development culture and climate does not differs significantly based on age, job approval status, and qualification. But it differs significantly based on gender and experiences.

scholarly journals The Impact of the Quality Assessment of Optimal Assignment for Data Association in a Multitarget Tracking Context

2015 ◽  
Vol 15 (7) ◽  
pp. 88-98
Author(s):  
J. Dezert ◽  
A. Tchamova ◽  
P. Konstantinova
Keyword(s):  
Quality Assessment ◽  
Data Association ◽  
New Method ◽  
Multitarget Tracking ◽  
Belief Functions ◽  
Tracking Systems ◽  
Optimal Assignment ◽  
The Individual ◽  
The Impact

Abstract The main purpose of this paper is to apply and to test the performance of a new method, based on belief functions, proposed by Dezert et al. in order to evaluate the quality of the individual association pairings provided in the optimal data association solution for improving the performances of multisensor-multitarget tracking systems. The advantages of its implementation in an illustrative realistic surveillance context, when some of the association decisions are unreliable and doubtful and lead to potentially critical mistake, are discussed. A comparison with the results obtained on the base of Generalized Data Association is made.

scholarly journals Innovative approaches to manage entomophages production

2020 ◽  
pp. 207-213
Author(s):  
V. P. Lysenko ◽  
I. S. Chernova
Keyword(s):  
Real Time ◽  
Information Technologies ◽  
Management Strategies ◽  
It Management ◽  
Production Parameters ◽  
Stepwise Development ◽  
Intelligent Information ◽  
The Impact ◽  
Innovative Approaches

Annotation Purpose. Improving the efficiency of entomophages production by developing innovative approaches for it management. Methods. System approach, intelligent information technologies. Results. Innovative approaches for it management of entomophages production have been developed, which consist of: determining and ranking the factors that have the greatest impact on the quality of entomological products, and factors that lead to substandard products; the creation of structural and parametric complexes for assessing product quality; real-time assessment of the intensity of entomocultures development processes; automation of management abiotic parameters stepwise development of insects (temperature and relative humidity of the box for growing of insects) in real time; determining the quality of entomological products in conditions of incomplete information, taking into account the impact of a combination of abiotic and biotic production parameters; calculation of optimal values of production parameters in conditions of uncertainty; systematization of knowledge about the interaction of heterogeneous parameters in the production of entomophages. Conclusions. The proposed innovative approaches to manage the production of entomophages can increase its efficiency by forming optimal management strategies, using the technological experience of specialists and modern intelligent information technologies in particular, SCADA-systems, fuzzy logic theory and cognitive analysis. Keywords: innovative approaches, production of entomophages, intelligent information technologies.

scholarly journals ADAPTASI MODEL DELONE DAN MCLEAN YANG DIMODIFIKASI GUNA MENGUJI KEBERHASILAN IMPLEMENTASI APLIKASI OPERASIONAL BAITUL MAAL WAT TAMWIL (BMT) BAGI INDIVIDU PENGGUNA (Studi Empiris Pada BMT di Kota Semarang)

2016 ◽  
Vol 4 (2) ◽  
pp. 123
Author(s):  
Novita Anugrah Listiyana ◽  
Dedi Rusdi
Keyword(s):  
Path Analysis ◽  
User Satisfaction ◽  
Sampling Technique ◽  
Individual Performance ◽  
Quality System ◽  
Quality Of Information ◽  
Positive Direction ◽  
The Individual ◽  
The Impact

This study analyzed the relationship between humans as users of the system and application software as object an inseparable relationship. The purpose of this study was to analyze the effect of variable quality system to the perception of the quality system, the effect of perceived quality system and quality of information on the intensity of use and user satisfaction, and the influence of the intensity of use and user satisfaction of the impact of individual performance. This research is an empirical study using purposive sampling technique in data collection. Data were collected through  questionnaires to 39 BMT’s operational employees. Then, performed an analysis of the data obtained used path analysis. This included: testing hypotheses through path analysis. The results of tests performed using path analysis to get the results that each variable in the model of equation 4 had a coefficient with a positive direction. This means that the improvement of the quality of the system will be able to improve the quality of information for the individual impact of the use and satisfaction of employees through the use of the system.

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