scholarly journals Vital Service Captivity: Coping Strategies and Identity Negotiation

2021 ◽  
pp. 109467052110448
Author(s):  
Samuel Guillemot ◽  
Margot Dyen ◽  
Annick Tamaro
Keyword(s):  
Nursing Homes ◽  
Coping Strategies ◽  
Cognitive Skills ◽  
Sense Of Self ◽  
Identity Negotiation ◽  
Well Being ◽  
Unintended Consequences ◽  
Structured Interviews ◽  
Living Situation ◽  
Care Services

Nursing homes are the quintessential example of vital service captivity. Consumers need vital services when they can no longer fulfil their basic needs on their own and their only choice is to delegate them to the market (e.g. care services for long-term and chronic illnesses, eating assistance at mealtimes). The service is referred to as ‘captive’ because older people are generally unwilling to use it, and when they have to, their options are limited. For elderly consumers, there is ‘no exit possible’, and as such they must integrate the service into their sense of self. The paper aims to (1) identify strategies for coping with vital service captivity and (2) present the identity negotiation mechanisms that lead people to choose one strategy over another. The study was conducted over a 6-month period in three nursing homes. Data collection includes semi-structured interviews, focus groups, participant observations, and micro-interviews with consumers – elderly residents and their families – and nursing home staff. Its main contribution is to highlight that coping with vital service captivity is a differential process. Consumers implement multiple coping strategies simultaneously, and these strategies are linked to three areas: routinization, socialization, and assimilation of a new social status. Moreover, implementing coping strategies means striking a balance between ‘disengagement’ and ‘engagement’ that not only takes into account former life trajectory, future prospects, and social comparisons, but also any changes in physical or cognitive skills and family support. Understanding these coping strategies and identity negotiation mechanisms highlights some unintended consequences on residents’ well-being, such as the importance of standardizing how the service is organized because it provides a stable framework, or the importance given to the well-being of all stakeholders (other consumers, staff) as a result of the community living situation.

scholarly journals Women’s lives in times of Zika: mosquito-controlled lives?

2018 ◽  
Vol 34 (5) ◽  
Author(s):  
Ana Rosa Linde ◽  
Carlos Eduardo Siqueira
Keyword(s):  
Coping Strategies ◽  
Sampling Technique ◽  
Well Being ◽  
Snowball Sampling ◽  
Structured Interviews ◽  
International Agencies ◽  
The Us ◽  
Women's Lives ◽  
Heavy Burden ◽  
The Impact

Zika virus infection during pregnancy is a cause of congenital brain abnormalities. Its consequences to pregnancies has made governments, national and international agencies issue advices and recommendations to women. There is a clear need to investigate how the Zika outbreak affects the decisions that women take concerning their lives and the life of their families, as well as how women are psychologically and emotionally dealing with the outbreak. We conducted a qualitative study to address the impact of the Zika epidemic on the family life of women living in Brazil, Puerto Rico, and the US, who were affected by it to shed light on the social repercussions of Zika. Women were recruited through the snowball sampling technique and data was collected through semi-structured interviews. We describe the effects in mental health and the coping strategies that women use to deal with the Zika epidemic. Zika is taking a heavy toll on women’s emotional well-being. They are coping with feelings of fear, helplessness, and uncertainty by taking drastic precautions to avoid infection that affect all areas of their lives. Coping strategies pose obstacles in professional life, lead to social isolation, including from family and partner, and threaten the emotional and physical well-being of women. Our findings suggest that the impacts of the Zika epidemic on women may be universal and global. Zika infection is a silent and heavy burden on women’s shoulders.

scholarly journals Mothers’ Perceived Barriers to and Recommendations for Health Care Appointment Keeping for Children Who Have Cerebral Palsy

2019 ◽  
Vol 6 ◽  
pp. 233339361986897 ◽  
Author(s):  
Marilyn Ballantyne ◽  
Laurie Liscumb ◽  
Erin Brandon ◽  
Janice Jaffar ◽  
Andrea Macdonald ◽  
...  
Keyword(s):  
Health Care ◽  
Cerebral Palsy ◽  
Well Being ◽  
Rehabilitation Services ◽  
Structured Interviews ◽  
Care Needs ◽  
Care Services ◽  
Care Appointment ◽  
Appointment Keeping ◽  
Competing Priorities

Children with cerebral palsy (CP) require ongoing rehabilitation services to address complex health care needs. Attendance at appointments ensures continuity of care and improves health and well-being. The study’s aim was to gain insight into mothers’ perspectives of the factors associated with nonattendance. A qualitative descriptive design was conducted to identify barriers and recommendations for appointment keeping. Semi-structured interviews were conducted with 15 mothers of children with CP. Data underwent inductive qualitative analysis. Mothers provided rich context regarding barriers confronted for appointment keeping—transportation and travel, competing priorities for the child and family, and health services. Mothers’ recommendations for improving the experience of attending appointments included virtual care services, transportation support, multimethod scheduling and appointment reminders, extended service hours, and increased awareness among staff of family barriers to attendance. The results inform services/policy strategies to facilitate appointment keeping, thereby promoting access to ongoing rehabilitation services for children with CP.

How Can We Enhance the Sense of Self-Efficacy in Epilepsy Individual Responses from 2 Qualitative Case Reports

2017 ◽  
Vol 24 (4) ◽  
pp. 215-224 ◽  
Author(s):  
Rosa Michaelis ◽  
Christina Niedermann ◽  
Bettina Berger
Keyword(s):  
Self Efficacy ◽  
Focal Epilepsy ◽  
Single Case ◽  
Case Reports ◽  
Sense Of Self ◽  
Well Being ◽  
Self Awareness ◽  
Structured Interviews ◽  
Post Intervention ◽  
Psychotherapeutic Interventions

Background: Epilepsy is a serious, common and chronic neurological condition characterized by an increased disposition to suffer occasional seizures. Psychological interventions may enhance the well-being of individuals with epilepsy. So far, no qualitative study has investigated the complex effects of psychotherapeutic interventions in epilepsy. Methods: This study examined the questions as to if and how the participation in a patient-centered 6-month resource-oriented mindfulness-based intervention would enhance an individual's well-being and sense of self-efficacy. Pre- and post-intervention semi-structured interviews were conducted with a total of 9 participants. Qualitative data analysis (Mayring) in an inter-professional group was combined with the evaluation of the Quality of Life in Epilepsy Inventory-31. The case reports follow the CAse REport Guidelines for Anthroposophic Art Therapies (CARE-AAT). To show the diverse nature of individual intervention objectives, we chose the single case study format, contrasting 2 participants with diagnosed focal epilepsy. Results: Pre-intervention deductive and inductive outcome categories revealed high levels of stress regarding personal seizure experience and loss of autonomy, for both participants. Post-intervention interviews consist of increased seizure-related self-efficacy and self-awareness: while minimizing the debilitating impact of the seizures on her life was relevant to Iris, Carl developed a personalized aura interruption technique. Conclusions: These qualitative case analyses suggest that enhanced psychological well-being and even positive medical results may be achieved when epilepsy care focuses on the wishes that are most meaningful to the individual. The possibility of improving the quantitative evaluation of the effects of psychotherapeutic interventions needs to be explored.

Reconsidering Change and Continuity in Later Life: Toward an Innovation Theory of Successful Aging

2007 ◽  
Vol 65 (1) ◽  
pp. 1-22 ◽  
Author(s):  
Galit Nimrod ◽  
Douglas A. Kleiber
Keyword(s):  
Activity Theory ◽  
Successful Aging ◽  
Aging Process ◽  
Sense Of Self ◽  
Later Life ◽  
Well Being ◽  
Perceived Benefits ◽  
Structured Interviews ◽  
Male And Female ◽  
Purposive Sample

This article examines the patterns and meanings of innovation in the activities of a group of retirees with an eye toward understanding the place and value of innovation in the aging process. Starting with a consideration of continuity theory, as a perspective that simply describes typical patterns of activity, and activity theory that prescribes expansion of activities as a key to well-being, this article highlights the characteristics, meanings and perceived benefits of a wide variety of innovative activities. The study utilized in-depth semi-structured interviews with a purposive sample of 20 male and female retirees involved in a “Learning and Retirement” program. Innovations that both preserve a sense of self (internal continuity) as well as those that allow one to strike out in entirely new direction are described, and, using a process of constant comparison, their motivational dynamics are explored. Given previous arguments that activity can be indiscriminate and disintegrative in some circumstances, we nevertheless suggest that innovation can be growth producing and liberating, even in later life, while at the same time generally protecting a sense of internal continuity.

scholarly journals Preparing student paramedics for the mental health challenges of the profession by using the wisdom of the experienced

2020 ◽  
Vol 3 (2) ◽  
Author(s):  
Lisa Holmes ◽  
Natalie Ciccone ◽  
Lynne Cohen ◽  
Richard Brightwell
Keyword(s):  
Mental Health ◽  
New Zealand ◽  
Coping Strategies ◽  
Lived Experiences ◽  
Mental Health Policy ◽  
Well Being ◽  
Undergraduate Curriculum ◽  
Positive Mental Health ◽  
Structured Interviews ◽  
Mental Health Challenges

Given the significant mental health issues affecting our paramedics, there exists an urgent need to promote positive mental health and well-being among future cohorts of student paramedics.  This study investigated the preparedness of student paramedics for the mental health challenges of the profession and explored the coping strategies used by experienced paramedics.The study was conducted in two parts. Part A comprised of two surveys which were developed and administered to 16 course coordinators and 302 students of the 16 accredited undergraduate paramedicine courses across Australia and New Zealand. The survey aimed to identify the perceived need for preparation within the curriculum.  In addition, the anticipations, confidence and fears of student paramedics, Course Coordinators and paramedics were also collected as a means to explore the preparedness through self-evaluation, reflection and discussion.Part B included twenty semi-structured interviews with experienced paramedics, from Australia and New Zealand. The interviews were conducted to gain an understanding of their experiences and the mental health coping strategies they employed, as well as capture the advice they would give to student paramedics. Results from the interviews were validated by three focus groups comprised of six paramedics each, representative of the geographic spread.Results suggest there is widespread recognition for the need to include preparation for the mental health challenges of the profession, within accredited undergraduate paramedic courses, with 100% of course coordinators and 97% of students recognising this need.The interviews with paramedics provided valuable insights into the experiences and strategies used to aid the survival of the paramedics throughout their careers.  Within the interviews, 70% of participants expressed a sincere love for the paramedic role, and 70% identified black humour as the coping strategy most used by themselves and colleagues.  In addition, extensive advice was given to students based upon the paramedics’ lived experiences.  This advice comprised of three themes; support, health and the profession.   These findings were mapped against the aims of Australia’s current Mental Health Policy to provide evidence-based and policy-informed guidelines for the integration of positive mental health strategies into undergraduate paramedicine curricula.Preparing student paramedics for the mental health challenges of the profession could be advantageous.  One way to achieve this is through the inclusion of key content within the undergraduate curriculum by utilising the relatable data collected on anticipation, confidence, fears and the advice offered by the veteran paramedics can be integrated. These lived experiences are highly credible and an opportunity for veterans to contribute positively to the future of paramedicine.

scholarly journals “Normalizing” Everyday Life in the State of Emergency: Experiences, Well-Being and Coping Strategies of Emerging Adults in Serbia during the First Wave of the COVID-19 Pandemic

2021 ◽  
pp. 216769682110295
Author(s):  
Teodora Vuletić ◽  
Natalija Ignjatović ◽  
Biljana Stanković ◽  
Ana Ivanov
Keyword(s):  
Coping Strategies ◽  
Everyday Life ◽  
Emerging Adults ◽  
Well Being ◽  
The State ◽  
Local Context ◽  
Structured Interviews ◽  
Future Expectations ◽  
State Of Emergency ◽  
Health Crisis

Although emerging adults are generally more physically resilient to the severe effects of COVID-19, they might be vulnerable to the psychological stressors brought about by the crisis. Using semi-structured interviews, this qualitative research aimed to explore the experiences, well-being, coping strategies and future expectations of 15 emerging adults in Serbia during the state of emergency caused by the global pandemic. As a result of thematic analysis, six main themes emerged, focusing on: 1) disruptions in everyday life and functioning; 2) the pandemic as a health crisis; 3) public reaction to the pandemic as a source of tension and frustration; 4) crisis as an opportunity; 5) coping strategies; 6) imagining the post-pandemic future. The present study points to the resilience and resourcefulness of emerging adults in the local context and emphasizes the heterogeneity of this age group and the vulnerability sources of those who might need additional support.

scholarly journals Living Alone with Mild-To-Moderate Dementia: Findings from the IDEAL Cohort

2020 ◽  
Vol 78 (3) ◽  
pp. 1207-1216
Author(s):  
Linda Clare ◽  
Anthony Martyr ◽  
Catherine Henderson ◽  
Laura Gamble ◽  
Fiona E. Matthews ◽  
...  
Keyword(s):  
Home Care ◽  
Significant Proportion ◽  
Well Being ◽  
Living Alone ◽  
Living Situation ◽  
Care Services ◽  
People With Dementia ◽  
Moderate Dementia ◽  
Health And Social Care ◽  
The Ideal

Background: A significant proportion of people with dementia live alone, but little is known about their specific needs. Objective: To understand the profile of people living alone with mild-to-moderate dementia in the UK and identify any systematic differences associated with living situation. Methods: We analyzed cross-sectional data from 1,541 people with mild-to-moderate dementia and 1,277 caregivers participating in the IDEAL cohort at the first wave of assessment. Results: There were 1,256 (81.5%) people with dementia living with others and 285 (18.5%) living alone, of whom 51 (3% of whole sample) reported little or no informal support. There were relatively few differences associated with living situation and odds ratios were generally small. People living alone were older on average, and more likely to be female, than those living with others. Those living alone were more likely to have higher cognitive ability and self-reported functional ability, and more social contact with those from other households. They were also lonelier, expressed less satisfaction with life, and used home care services and equipment more. There were no differences in symptoms, mood, quality of life, or well-being. Conclusion: The findings support the view that it is possible to ‘live well’ with mild-to-moderate dementia while living alone, given appropriate support, including home care and equipment. Nevertheless, it is important to consider how those living alone may be supported to have a more satisfactory experience, and how health and social care services can best respond to their needs.

scholarly journals “A prison with extra flavours”: experiences of immigrants in Swedish immigration detention centres

2015 ◽  
Vol 11 (2) ◽  
pp. 73-85 ◽  
Author(s):  
Soorej Jose Puthoopparambil ◽  
Beth Maina Ahlberg ◽  
Magdalena Bjerneld
Keyword(s):  
Health Care ◽  
Health Care Professionals ◽  
Health Care Services ◽  
Well Being ◽  
Structured Interviews ◽  
Immigration Detention ◽  
Content Type ◽  
Care Services ◽  
Lack Of Control ◽  
Health And Well Being

Purpose – The immigration detention environment largely influences the health and well-being of detainees by either aggravating medical conditions or contributing to new illness. There is limited research on how detainees experience and try to cope with this environment. The purpose of this paper is to describe experiences of detainees in Swedish immigration detention centres. Design/methodology/approach – Semi-structured interviews were conducted in three detention centres with a total of 21 detainees who had been detained for at least two weeks. Interview transcripts were analysed using thematic analysis. Findings – The detainees likened immigration detention to imprisonment. They experienced lack of control over their life situation mainly through arbitrary restrictions and lack of proper response from authorities making it appear futile to seek help. This perceived lack of control forced them into passivity. Differences in amenities provided in the centres were observed and some of these were reported to assist in making detention more bearable. Research limitations/implications – This study provides only one stakeholder perspective. The perspectives of other stakeholders, such as detention staff, health care professionals and volunteers must be explored to improve understanding and mitigate the effects of detention. Originality/value – Irrespective of the better standards of detention in Sweden, the detainees considered detention as imprisonment affecting their health and well-being. If states deem detention to be necessary, improved staff-detainee interaction should be ensured through proper staff training, arbitrary restrictions within detention should be avoided and health care services should be improved.

‘Normal’ and ‘failing’ mothers: Women’s constructions of maternal subjectivity while living with multiple sclerosis

2017 ◽  
Vol 23 (5) ◽  
pp. 516-532 ◽  
Author(s):  
Chloe Parton ◽  
Terri Katz ◽  
Jane M Ussher
Keyword(s):  
Multiple Sclerosis ◽  
Cultural Context ◽  
Sense Of Self ◽  
Well Being ◽  
Structured Interviews ◽  
Cultural Discourses ◽  
Biographical Disruption ◽  
Maternal Subjectivity ◽  
Subject Positions ◽  
The Impact

Multiple sclerosis causes physical and cognitive impairment that can impact women’s experiences of motherhood. This study examined how women construct their maternal subjectivities, or sense of self as a mother, drawing on a framework of biographical disruption. A total of 20 mothers with a multiple sclerosis diagnosis took part in semi-structured interviews. Transcripts were analysed using thematic decomposition to identify subject positions that women adopted in relation to cultural discourses of gender, motherhood and illness. Three main subject positions were identified: ‘The Failing Mother’, ‘Fear of Judgement and Burdening Others’ and ‘The Normal Mother’. Women’s sense of self as the ‘Failing Mother’ was attributed to the impact of multiple sclerosis, contributing to biographical disruption and reinforced through ‘Fear of Judgement and Burdening Others’ within social interactions. In accounts of the ‘Normal Mother’, maternal subjectivity was renegotiated by adopting strategies to manage the limitations of multiple sclerosis on mothering practice. This allowed women to self-position as ‘good’ mothers. Health professionals can assist women by acknowledging the embodied impact of multiple sclerosis on maternal subjectivities, coping strategies that women employ to address potential biographical disruption, and the cultural context of mothering, which contributes to women’s experience of subjectivity and well-being when living with multiple sclerosis.

scholarly journals What Does it Mean to be a Targeted Parent? Parents’ Experiences in the Context of Parental Alienation

2021 ◽  
Vol 30 (5) ◽  
pp. 1370-1380
Author(s):  
Ana Tavares ◽  
Carla Crespo ◽  
Maria Teresa Ribeiro
Keyword(s):  
Coping Strategies ◽  
Family Relationships ◽  
Well Being ◽  
Negative Influence ◽  
Social Contexts ◽  
Support Network ◽  
Structured Interviews ◽  
Parental Alienation ◽  
Personal Impact ◽  
Parents Experiences

AbstractThe term parental alienation refers to the negative influence of one parent over a child’s perception of the other parent (targeted parent). The aim of this research was to gain further understanding of targeted parents’ experience of parental alienation from their own perspectives. For this qualitative study, a thematic analysis of semi-structured interviews with eight participants aged between 33 and 51 years was conducted. The data from individual semi-structured interviews enabled the identification of four main themes: perception of personal impact, coping strategies, family relationships and support network. Parents identified a serious impairment of their physical and emotional well-being and mainly identified emotion-focused coping strategies to deal with this adverse ongoing situation. Furthermore, they reported changes in key relationships, with emphasis on difficulties in family and social contexts. The contribution of the findings to research and interventions with parents and families experiencing parental alienation are discussed.

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