Relationships between illness representations, treatment beliefs and the performance of self-care in heart failure: a cross-sectional survey

2013 ◽  
Vol 12 (6) ◽  
pp. 536-543 ◽  
Author(s):  
Julie MacInnes
Keyword(s):  
Heart Failure ◽  
Self Care ◽  
Illness Representations ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Treatment Beliefs

scholarly journals Smartphone Ownership and Interest in Mobile Health Technologies for Self-care Among Patients With Chronic Heart Failure: Cross-sectional Survey Study (Preprint)

2021 ◽  
Author(s):  
Jonathan W Leigh ◽  
Ben S Gerber ◽  
Christopher P Gans ◽  
Mayank M Kansal ◽  
Spyros Kitsiou
Keyword(s):  
Heart Failure ◽  
African American ◽  
Mobile Health ◽  
Self Care ◽  
Minority Population ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Self Monitoring ◽  
Health Technologies ◽  
Mhealth Apps

BACKGROUND Heart failure (HF) is a highly prevalent chronic condition that places a substantial burden on patients, families, and health care systems worldwide. Recent advances in mobile health (mHealth) technologies offer great opportunities for supporting many aspects of HF self-care. There is a need to better understand patients’ adoption of and interest in using mHealth for self-monitoring and management of HF symptoms. OBJECTIVE The purpose of this study is to assess smartphone ownership and patient attitudes toward using mHealth technologies for HF self-care in a predominantly minority population in an urban clinical setting. METHODS We conducted a cross-sectional survey of adult outpatients (aged ≥18 years) at an academic outpatient HF clinic in the Midwest. The survey comprised 34 questions assessing patient demographics, ownership of smartphones and other mHealth devices, frequently used smartphone features, use of mHealth apps, and interest in using mHealth technologies for vital sign and HF symptom self-monitoring and management. RESULTS A total of 144 patients were approached, of which 100 (69.4%) participated in the study (63/100, 63% women). The participants had a mean age of 61.3 (SD 12.25) years and were predominantly Black or African American (61/100, 61%) and Hispanic or Latino (18/100, 18%). Almost all participants (93/100, 93%) owned a cell phone. The share of patients who owned a smartphone was 68% (68/100). Racial and ethnic minorities that identified as Black or African American or Hispanic or Latino reported higher smartphone ownership rates compared with White patients with HF (45/61, 74% Black or African American and 11/18, 61% Hispanic or Latino vs 9/17, 53% White). There was a moderate and statistically significant association between smartphone ownership and age (Cramér <i>V</i> [Φ<sub>C</sub>]=0.35; <i>P</i>&lt;.001), education (Φ<sub>C</sub>=0.29; <i>P</i>=.001), and employment status (Φ<sub>C</sub>=0.3; <i>P</i>=.01). The most common smartphone features used by the participants were SMS text messaging (51/68, 75%), internet browsing (43/68, 63%), and mobile apps (41/68, 60%). The use of mHealth apps and wearable activity trackers (eg, Fitbits) for self-monitoring of HF-related parameters was low (15/68, 22% and 15/100, 15%, respectively). The most popular HF-related self-care measures participants would like to monitor using mHealth technologies were physical activity (46/68, 68%), blood pressure (44/68, 65%), and medication use (40/68, 59%). CONCLUSIONS Most patients with HF have smartphones and are interested in using commercial mHealth apps and connected health devices to self-monitor their condition. Thus, there is a great opportunity to capitalize on the high smartphone ownership among racial and ethnic minority patients to increase reach and enhance HF self-management through mHealth interventions.

scholarly journals Family influences on self-management among functionally independent adults with diabetes or heart failure: do family members hinder as much as they help?

2010 ◽  
Vol 6 (1) ◽  
pp. 22-33 ◽  
Author(s):  
Ann-Marie Rosland ◽  
Michele Heisler ◽  
Hwa-Jung Choi ◽  
Maria J. Silveira ◽  
John D. Piette
Keyword(s):  
Heart Failure ◽  
Family Support ◽  
Family Members ◽  
Self Care ◽  
Female Gender ◽  
Self Management ◽  
Depression Symptoms ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Patients With Diabetes

Objectives: Among functionally independent patients with diabetes or heart failure, we examined family member support and family-related barriers to self-care. We then identified patient characteristics associated with family support and family barriers and how each was associated with self-management adherence. Methods: Cross-sectional survey of 439 patients with diabetes or heart failure (74% response rate). Results: 75% of respondents reported supportive family involvement in self-care; however, 25% reported frequent family-related barriers to self-care. Women reported family support less often (64% v. 77%) and family barriers to self-care more often (30% v. 21%) than men. 78% of respondents reported involved family members nagged or criticized them about illness care. In multivariate models, low health literacy, partnered status and higher family function were associated with higher family support levels, while female gender, older age, higher education, and more depression symptoms were associated with family barriers to self-care. Family barriers were associated with lower disease care self-efficacy (p<0.01), and both barriers and family support were associated with patients’ self-management adherence (both p<0.05). Discussion: Family members are highly involved in the self-care of these higher functioning patients. Interventions should help patients with chronic illness overcome family barriers to self-care and help families use positive and effective support techniques.

scholarly journals Knowledge about self-care and associated factors among heart-failure patients in Ayder Referral Hospital, Ethiopia, 2018: A cross-sectional study

2020 ◽  
pp. 201010582096214
Author(s):  
Tsegu Hailu Gebru ◽  
Haftea Hagos Mekonen ◽  
Kbrom Gemechu Kiros
Keyword(s):  
Heart Failure ◽  
New York ◽  
Logistic Regression ◽  
Self Care ◽  
Heart Association ◽  
Cross Sectional Study ◽  
Referral Hospital ◽  
Sectional Study ◽  
Cross Sectional ◽  
Knowledge Age

Background: Good knowledge of self-care related to heart failure (HF) is key to improve patient outcomes. However, information regarding how much patients know about self-care is lacking in developing countries, particularly in the study setting. Objective: The objectives of this study were to assess HF patients’ knowledge about self-care and to explore predictors among HF patients in Ayder comprehensive specialised referral hospital, Tigray, Ethiopia. Methods: This hospital-based cross-sectional study design was undertaken in Ayder comprehensive specialised referral hospital, Tigray, Ethiopia. A total of 408 HF patients participated, and the study was done between February and April 2018. An interviewer-assisted structured questionnaire was used to collect data. Bivariate logistic regression and multivariable logistic regression were conducted to identify the predictors associated with knowledge about self-care. Results: The mean age of the participants was 45.4 years (standard deviation=19 years). Around 255 (62.5%) of the participants had poor self-care knowledge. Age, New York Heart Association classes, duration of the disease and previous hospitalisation were the factors associated with knowledge about self-care. Conclusion: More than half of all participants had poor knowledge about self-care. Improving existing prevention strategies and strengthening patients’ knowledge are recommended to address this knowledge deficit.

Abstract 17275: Evaluating the Convergent and Discriminant Validity of Four Frailty Instruments in Adults With Heart Failure: Results From the Frame-HF Study

Circulation ◽  
2018 ◽  
Vol 138 (Suppl_1) ◽  
Author(s):  
Julee McDonagh ◽  
Yenna Salamonson ◽  
Roslyn Prichard ◽  
Sunita R Jha ◽  
Caleb Ferguson ◽  
...  
Keyword(s):  
Heart Failure ◽  
Discriminant Validity ◽  
Survey Design ◽  
Karnofsky Performance Scale ◽  
Cross Sectional Survey ◽  
Frailty Phenotype ◽  
Cross Sectional ◽  
Frailty Status ◽  
Convergent And Discriminant Validity ◽  
Nyha Classification

Introduction: Frailty assessment has become increasingly common in those with heart failure. The most frequently used frailty instrument is the Frailty Phenotype (FP). The validity of this instrument in those with heart failure is yet to be determined. Aim: To examine the convergent and discriminant validity of four frailty instruments: i) the FP ii) a Questionnaire-only version of FP [q-FP]; iii) St. Vincent’s Frailty [SVF]; and iv) the Frailty Instrument for Primary Care of the Survey of Health, Ageing and Retirement in Europe [SHARE-FI] for assessing the frailty status of adults with heart failure. Methods: Using a cross-sectional survey design, individuals aged ≥ 18 years, diagnosed with heart failure were recruited from the inpatient cardiology ward and outpatient heart failure clinic of a metropolitan academic hospital. In addition to assessing all items of the frailty instruments, other data collected included: a) NYHA classification; b) quality of life and health status using the EQ-5D-5L; c) physical status using the Australian-modified Karnofsky Performance Scale (AKPS); and d) 10-item Depression in Medically Ill (DMI) measure. Results: A total of 131 participants were recruited and included in the analyses, there were wide variations in frailty status across the four frailty instruments (Figure 1). Inter-correlations were highest between SVF and SHARE-FI instruments ( r = 0.62). The NYHA classification were correlated with SVF ( r = 0.46) and SHARE-FI ( r = 0.42). Similarly, all EQ-5D-5L dimensions were correlated with both SVF and SHARE-FI but not with FP or q-FP. The SVF differentiated between high and low AKPS scores (χ 2 = 11.70, df : 2, p = 0.003) and DMI scores (χ 2 = 7.28, df : 2, p = 0.026). Similarly, the SHARE-FI also had good discriminant validity using AKPS scores (χ 2 = 9.25, df : 2, p = 0.010) and DMI scores (χ 2 = 14.32, df : 2, p = 0.001). Conclusions: The SVF and SHARE-FI demonstrated good convergent and discriminant validity. Both instruments provide a valid alternative to the FP for the assessment of frailty in those with heart failure. Figure 1: Classification of frailty categories: FP, Questionnaire-only FP, SVF and SHARE-FI

scholarly journals Paradox of self-care gender differences among Italian patients with chronic heart failure: findings from a real-world cross-sectional study

BMJ Open ◽  
2018 ◽  
Vol 8 (9) ◽  
pp. e021966 ◽  
Author(s):  
Federica Dellafiore ◽  
Cristina Arrigoni ◽  
Francesco Pittella ◽  
Gianluca Conte ◽  
Arianna Magon ◽  
...  
Keyword(s):  
Heart Failure ◽  
Gender Differences ◽  
Chronic Heart Failure ◽  
Real World ◽  
Self Care ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
Caregiver Relationship

AimThe aim of this study was to critically analyse and describe gender differences related to self-care among patients with chronic heart failure (HF).Methods and resultsA monocentric real-world cohort of 346 patients with chronic HF in follow-up was used for this cross-sectional study. We report data related to the cohort’s demographic and clinical characteristics. Self-care was assessed using the Self-Care of Heart Failure Index before patients’ discharge. After bivariate analysis, logistical regression models were used to describe the relationship between gender, self-care behaviours and self-care confidence. While men were found to have more than quadruple the risk of poor self-care than women (OR 4.596; 95% CI 1.075 to 19.650), men were also found to be approximately 60% more likely to have adequate self-care confidence than women (OR 0.412; 95% CI 0.104 to 0.962). Considering that self-care confidence is described as a positive predictor of behaviours, our results suggest a paradox. It is possible that the patient–caregiver relationship mediates the effect of confidence on behaviours. Overall, adequate levels of self-care behaviours are a current issue, ranging 7.6%–18.0%.ConclusionThis study sets the stage for future research where elements of the patient–caregiver relationship ought to be considered to inform the planning of appropriate educational interventions. We recommend routinely measuring patients’ self-care behaviours to guide their follow-up and as a basis for any changes in their daily life behaviours.

scholarly journals Perawatan Diri Pada Pasien Gagal Jantung

2018 ◽  
Vol 4 (2) ◽  
Author(s):  
Dwi Prihatiningsih ◽  
Tiwi Sudyasih
Keyword(s):  
Heart Failure ◽  
Care Management ◽  
Financial Burden ◽  
Self Care ◽  
Chi Square ◽  
Cross Sectional ◽  
Low Frequencies ◽  
Heart Failure Patients ◽  
Failure Index ◽  
Care Behavior

ABSTRAKGagal jantung merupakan salah satu penyakit kardiovaskuler yang paling sering terjadi di seluruh dunia yang mengakibatkan tingginya angka mortalitas, morbiditas dan juga berdampak secara finansial terutama bagi lanjut usia. Rehospitalisasi merupakan masalah umum yang sering terjadi pada pasien gagal jantung yang sebagain besar disebabkan oleh keterlambatan dalam pengenalan gejala, pengobatan dan ketidakpatuhan diet serta kurangnya pengetahuan dan keterampilan dalam melakukan perawatan diri. Panduan penanganan gagal jantung menekankan pentingnya perilaku perawatan diri untuk menurunkan kekambuhan dan rehospitalisasi pada pasien gagal jantung. Penelitian ini bertujuan untuk menggambarkan perilaku perawatan diri pada pasien gagal jantung yang mengunjungi poliklinik jantung di RSUD Panembahan Senopati Bantul. Penelitian ini merupakan penelitian deskriptif quantitatif dengan menggunakan pendekatan cross sectional. Sampel berjumlah 74 responden yang merupakan pasien rawat jalan di poliklinik jantung pada bulan Juni hingga Juli 2018. Alat ukur yang digunakan adalah Self-Care of Heart Failure Index (SCHFI), (skor ≥70 poin=adekuat). Uji statistik chi-square digunakan untuk mengetahui hubungan antara factor sosiodemografi dengan perilaku perawatan diri pada pasien gagal jantung. Hasil penelitian ini menunjukkan bahwa perilaku perawatan diri pada sebagian besar responden masih belum adekuat dengan frekuensi perilaku perawatan diri adekuat yang masih rendah (pemeliharaan: 45±13.1 (7.7%), pengelolaan: 46±20.4 (13.0%) dan kepercayaan: 69±16.5 (38.5%)). Hanya satu faktor yaitu penyakit penyerta yang berhubungan dengan perilaku perawatan diri pada pasien gagal jantung pada dimensi kepercayaan diri. Hasil penelitian ini menunjukkan bahwa sebagian besar responden memiliki perilaku perawatan diri yang tidak adekuat seperti juga pada negara-negara lainnya sehingga diperlukan upaya untuk meningkatkan perilaku perawatan diri pada pasien gagal jantung. ABSTRACTHeart failure (HF) is one of the most prevalent cardiovascular diseases in the world which associated with significant mortality, morbidity, and huge financial burden, particularly among aging population. Rehospitalization remain a concern in the care of the heart failure patient which largerly associated with delay in symptoms recognition, treatment, diet non-compliance and also lack of knowledge and skills in heart failure self-care. Guideline on HF emphasize the important of self care in preventing symptoms and hospital readmission. This study aims to describe self-care behavior in a sample of heart failure patients. This is a descriptive cross-sectional study with non-probabilistic sample of 74 in an out-patient heart clinic from June-July 2018. Self-care was measured using the Self-Care of Heart Failure Index (SCHFI), (scores ≥70 points=adequate self-care). Chi-square test was conducted to test whether participant’s characteristics associated with self-care behavior among heart failure patients in three scales. The result shows that self-care was inadequate in most scales (self-care maintenance: 43.4±11.8, self-care management: 49.4±18.5 and self-care confidence: 68,6±14.5. Low frequencies of participants with adequate self-care also observed in the study (self-care maintenance: 5.4%, self-care management: 15.4%) and self-care confidence: 36.5%)). In self-care confidence subscale, higher scores of the SCHFI were associated with no comorbid conditions (p=0.01). None of the sociodemographic and clinical characteristics of the sample were associated with increased self-care in other 2 sub-scales. In conclusion, study shows that self-care in HF is inadequate, interventions aimed at improving self-care espescially in self-care maintenance sub-scale are greatly needed. Additional studies are needed to determine the best approach for this. 

scholarly journals Psychosocial determinants of self-care behavior in outpatients with heart failure: A test of Penderʼs health promotion model

2020 ◽  
Keyword(s):  
Heart Failure ◽  
Health Promotion ◽  
Conceptual Model ◽  
Self Care ◽  
Perceived Benefits ◽  
Cross Sectional ◽  
Health Promotion Model ◽  
Psychosocial Determinants ◽  
Patients With Heart Failure ◽  
Care Behavior

Background: Patients with heart failure need to be engaged in adequate cardiac self-care behaviors helping to prevent the development of the disease and ameliorate their health status. However, the conceptual model of the present study has not been tested in previous studies among patients with heart failure. Objectives: The present study aimed to investigate the psychosocial determinants based on Pender’s health promotion model (HPM) affecting self-care behavior among outpatients suffering from heart failure. Methods: In this cross-sectional study, a total of 200 patients suffering from heart failure were selected from the outpatient clinics of Tabriz, Iran, using convenience sampling and assessed for self-self-care behaviors and major concepts of HPM via self-administered questionnaires. Path analysis was used in order to analyze the conceptual model Results: The present hypothetical model showed a good fit. Perceived benefits and activity-related effects directly affected self-care behaviors. Bootstrapping mediation analyses indicated that perceived self-efficacy, perceived barriers, perceived benefits, and activity-related effects indirectly affected self-care behaviors through commitment to action. Conclusions: The commitment to action can help to promote self-care behaviors among the subjects suffering from heart failure. The interventions should take the role of predictive variables of this study and commitment to action into account in these patients.

The Most and the Least Performed Self-Care Behaviors Among Patients With Heart Failure in Jordan

2018 ◽  
Vol 29 (2) ◽  
pp. 108-116 ◽  
Author(s):  
Loai Issa Tawalbeh ◽  
Ahmed Mohammad Al-Smadi ◽  
Mohammed AlBashtawy ◽  
Maen AlJezawi ◽  
Mohamad Jarrah ◽  
...  
Keyword(s):  
Heart Failure ◽  
Low Income ◽  
Self Care ◽  
Cross Sectional ◽  
Convenience Sample ◽  
Traditional Treatment ◽  
Patients With Heart Failure ◽  
Low Salt ◽  
Cross Sectional Design ◽  
The Relationship

Assessing self-care is important aspects among patients with heart failure. However, few studies were conducted to assess self-care among patients with heart failure in Jordan. Therefore, this study aimed to assess the most and the least performed maintenance self-care behaviors and to examine the relationship between maintenance self-care behaviors and selected sociodemographics. A cross-sectional design utilizing a convenience sample of 226 patients with heart failure was used. The maintenance self-care mean was 53.89 and considered below the clinical target level (≥70). Asking for low salt item and performing physical exercises were the most performed self-care behaviors, while “trying to avoid getting sick” and “checking ankles for swelling” were the least performed self-care behaviors. Limited self-care behaviors indicated the need to implement cardiac education that may improve self-care behaviors. Cardiac education should target mainly patients with low income, low educational level, elderly, living alone, unemployed, and who are using traditional treatment.

Caregiver burden of patients with heart failure with a left-ventricular ejection fraction (LVEF) less than or equal to 60%: a cross-sectional survey in the EU

2020 ◽  
Vol 41 (Supplement_2) ◽  
Author(s):  
R Lahoz ◽  
S Corda ◽  
C Proudfoot ◽  
A.F Fonseca ◽  
S Cotton ◽  
...  
Keyword(s):  
Heart Failure ◽  
Caregiver Burden ◽  
Nyha Class ◽  
Left Ventricular ◽  
Left Ventricular Ejection ◽  
Funding Source ◽  
Cross Sectional Survey ◽  
Private Company ◽  
Cross Sectional ◽  
Patients With Heart Failure

Abstract Background and purpose The majority of patients with heart failure (HF) have difficulties in independently carrying out activities of daily living and hence, require support from caregivers (CGs). This study assessed the quality of life (QoL) of CGs of HF patients with sub-normal LVEF (≤60%). Methods A cross-sectional survey of HF patients and their CGs was conducted in France, Germany, Italy, Spain and the UK. Cardiologists and primary care physicians completed patient record forms (PRF) between June and November 2019. Caregivers of the same patients were invited to complete a caregiver self-completion survey, which included the Family Caregiver QoL Scale (FAMQOL) and EQ-5D. Patient demographics were derived from PRFs. Results 361 CGs (73.1% female, mean age: 58.8 yrs) and HF patients (39.9% female, mean age: 71.2 yrs) were included. 58.2% of the CGs were spouses, 23.4% a child of the patient. On average, CGs devoted 20 hrs/week in the care of HF patients; this CG time increased from 12 to 26 hrs/week with NYHA class I to III/IV of the HF patient. Further, anxiety/stress was experienced overall by 29/31% of CGs which increased from 27/17% for NYHA I to 40/41% for NYHA III/IV of the HF patient (Table 1). Conclusions Caregivers of patients with HF and LVEF ≤60% spend a significant amount of time to provide daily support to HF patients. Patients with progressive disease were older, more polymorbid and had a higher disease duration. These factors likely contributed towards increased caregiver burden of HF patients with increased NYHA class. Funding Acknowledgement Type of funding source: Private company. Main funding source(s): Novartis Pharma AG

Sign in / Sign up

Export Citation Format

Share Document