Co-research with people living with dementia for change

2018 ◽  
Vol 17 (4) ◽  
pp. 573-590 ◽  
Author(s):  
Jim Mann ◽  
Lillian Hung
Keyword(s):  
Action Research ◽  
Acute Care ◽  
Appreciative Inquiry ◽  
Lived Experiences ◽  
The Core ◽  
Shared Experiences ◽  
People With Dementia ◽  
Inquiry Approach ◽  
Conducting Research ◽  
Person With Dementia

Research about patients with dementia in the context of acute care has been traditionally designed and carried out by researchers with little or no involvement of people with dementia. Moving away from the traditional way of conducting research on people with dementia, this study involved people with dementia as experts of lived experiences to co-develop knowledge for change. The paper presents our shared experiences (a person with dementia and a researcher) gained from an action research, titled Co-creating Person-Centred Care in Acute Care. We highlight our successes and possibilities for making real impacts on hospital care for patients with dementia by using an appreciative inquiry approach. The project was informed by the core principles of appreciative inquiry. The research involved seven patients with dementia together with a team of 50 interdisciplinary staff to inquire and take actions for improving dementia care in a medical unit. This article draws attention to a range of ethical responsibilities and challenges, which go beyond the traditional principles in University Research Ethics. The strengths and challenges of conducting action research with people living with dementia are discussed. We conclude by offering our learnings and practical tips to encourage more collaboration between researchers and people with dementia in undertaking action research to make social change.

An Appreciative Inquiry Approach to the Core Competencies: Taking it From Theory to Practice

2020 ◽  
Vol 77 (2) ◽  
pp. 380-389
Author(s):  
Emily C. Sturm ◽  
John D. Mellinger ◽  
Jeanne L. Koehler ◽  
Jarrod C.H. Wall
Keyword(s):  
Appreciative Inquiry ◽  
Core Competencies ◽  
The Core ◽  
Theory To Practice ◽  
Inquiry Approach

Ethical aspects of researching subjective experiences in early-stage dementia

2011 ◽  
Vol 18 (5) ◽  
pp. 651-661 ◽  
Author(s):  
Hanna-Mari Pesonen ◽  
Anne M Remes ◽  
Arja Isola
Keyword(s):  
Early Stage ◽  
Family Members ◽  
Subjective Experiences ◽  
Ethical Aspects ◽  
People With Dementia ◽  
The Family ◽  
Research Interviews ◽  
Conducting Research ◽  
Person With Dementia

This article is based on a qualitative longitudinal study that followed the subjective experiences of both people living with dementia and their family members during the early stages of the illness. The purpose of this article is to describe and reflect on the ethical and methodological issues that occurred during data collection. The article focuses on the situation of the person with dementia and the family member and the role of the researcher when conducting the research interviews. Based on the results of this study, conducting research interviews with people with dementia and their family members poses several ethical and methodological challenges that must be addressed. In doing so, ethically sound dementia-specific research methods will be actively developed enhancing our understanding of living with dementia and providing new insights into the care of people with dementia and their family members.

scholarly journals “I Know Who I Am; the Real Me, and That Will Come Back”

2017 ◽  
Vol 28 (2) ◽  
pp. 119-140 ◽  
Author(s):  
Tamsin MacBride ◽  
Emma Miller ◽  
Belinda Dewar
Keyword(s):  
Quality Of Life ◽  
Qualitative Interviews ◽  
Family Members ◽  
The Real ◽  
Core Theme ◽  
The Core ◽  
People With Dementia ◽  
Care Systems ◽  
Person With Dementia

Effective support to carers of people with dementia can be critical to maintain quality of life for people with dementia and their families and to sustain the future of health and care systems. Qualitative interviews were undertaken with 14 carers of people with dementia across Scotland, and the data were analysed to identify the outcomes important to the carers. The importance of relationships emerged as the core theme, including relationship with the person with dementia, family members, other carers, and professionals. Although not evident in the literature, the authors noted that the concept of self-relationship was important to carers in the context of changing relationships with others. A multilayered approach to understanding relationships, and an approach to engagement that enables carers to define and express their priorities, is necessary to fit with the relational nature of care.

scholarly journals PEMANFAATAN ASET KOMUNITAS MELALUI PENDEKATAN APPRECIATIVE INQUIRY DALAM PENANGGULANGAN KEMISKINAN DI KABUPATEN BANDUNG BARAT

2017 ◽  
Vol 15 (2) ◽  
Author(s):  
Jaeni Dahlan
Keyword(s):  
Action Research ◽  
Appreciative Inquiry ◽  
Poverty Reduction ◽  
Group Discussion ◽  
Model Development ◽  
Natural Material ◽  
Community Assets ◽  
Self Confidence ◽  
Inquiry Approach ◽  
Stage Process

Abstract This research aims to describe the community asset utilizing throught using Appreciative Inquiry Approach, describing reflection of the first model, describing implementation of the first model development throught Appreciative Inquiry and formulating the final model of community asset utilizing throught Appreciative Inquiry Approach in poverty reduction in Cihampelas Village West Bandung Subdistrict. The community assets consists of natural, material, social, financial, human and politic. Appreciative Inquiry Approach implemented in the four-stage process consisting of 4d Discovery, Dream, Design and Destiny. This research used qualitative approach with action research method. The collection of data was obtained using the technique of participation observation, in-depth interviews, focus group discussion (FGD), the documentation studies. This research show the result of an increase in self confidence and capacity and the increased capacity of KUBE formed in developing their bussines. The implications of the research is to increase the income and expenditure reduction of the poor, The research also yields practical implications in the form of community asset utilization design theoretically, this also confirm some of the basic assumption of Green and Haines (2009) namely the important role of human resources (human assets and social assets) in developing other assets. Key words: community assets, Appreciative Inquiry, poverty reduction Abstrak Penelitian ini bertujuan untuk memberikan gambaran mengenai pemanfaatan aset komunitas melalui teknik Appreciative Inquiry, menggambarkan refleksi desain awal, memberikan pengembangan desain awal dan tersusunnya desain akhir pemanfaatan aset komunitas melalui teknik Appreciative Inquiry di Desa Cihampelas.  Aset komunitas yang dimaksud meliputi aset alam, aset material, aset sosial, aset finansial, aset manusia dan aset politik. Pendekatan  Appreciative Inquiry dilaksanakan dalam 4 tahap proses 4D yang terdiri dari Discovery, Dream, Design dan Destiny.  Penelitian ini menggunakan pendekatan kualitatif dengan metode penelitian action research. Penggumpulan data diperoleh menggunakan teknik observasi berperan serta, wawancara mendalam, Diskusi Kelompok Terfokus (FGD), studi dokumentasi. Penelitian ini menunjukkan hasil adanya peningkatan kepercayaan diri  dan kapasitas masyarakat serta peningkatan kemampuan KUBE yang dibentuk dalam mengembangkan usahanya. Implikasi dari penelitian adalah peningkatan pendapatan dan pengurangan pengeluaran masyarakat miskin. Penelitian ini juga menghasilkan implikasi praktis berupa Desain Pemanfaatan Aset Komunitas secara teoritik, penelitian ini juga mengkonfirmasi beberapa asumsi dasar dari Green dan Haines (2009) yaitu peran penting sumber daya manusia (aset manusia dan aset sosial) dalam mengembangkan aset lain. Kata kunci: aset komunitas, pendekatan Appreciative Inquiry, penanggulangan kemiskinan

Appreciative Inquiry: An alternative to behaviour management

Dementia ◽  
2016 ◽  
Vol 16 (2) ◽  
pp. 249-253 ◽  
Author(s):  
Bernard McCarthy
Keyword(s):  
Appreciative Inquiry ◽  
Psychological Symptoms ◽  
Organisational Change ◽  
Behaviour Management ◽  
The Past ◽  
People With Dementia ◽  
Inquiry Approach ◽  
Staff Group ◽  
Care Situation ◽  
The Individual

Appreciative Inquiry is an approach to organisational change that has been effective and popular around the world for the past two decades. What could it have to offer us as an alternative to traditional ‘behaviour management’? Traditionally, in modern dementia care, we take a psychiatric approach to the range of actions that people engage in when stressed or traumatised by the cognitive, social and psychological losses associated with dementia. We call them symptoms of an illness – Behavioural and Psychological Symptoms of Dementia. Then, we medicate them away because if they are symptoms then medical solutions are called for. We may obtain a better outcome from a different direction. Appreciative Inquiry focuses on an organization as a ‘solution designed in its own time to meet a challenge or satisfy a need of society’. This approach focuses on what is working well and is effective in organisations rather than seeing the organisation as a problem to be solved. In this way, we may approach the individual person as a solution designed in its own time to meet a challenge or satisfy a need. Using the 4Ds of the Appreciative Inquiry approach, this article examines the process of Discovery, Dream, Design and Destiny, as it is applied to a case example of a care situation that usually ends with disruption and distress. By formulating affirmative topic choices, the staff group and individual carers may resolve issues with what people with dementia do or say in a way that is humane and hopeful.

scholarly journals Generating insights into what matters to emergency nurses and family members when caring for older people with dementia: how to use generativity as a principle of appreciative inquiry

2020 ◽  
Vol 10 (2) ◽  
pp. 1-16
Author(s):  
Sarah Watkins ◽  
◽  
Belinda Dewar ◽  
Margaret Graham ◽  
Fiona Murphy ◽  
...  
Keyword(s):  
Family Member ◽  
Appreciative Inquiry ◽  
Emergency Nurses ◽  
People With Dementia ◽  
The Status ◽  
Clinical Environments ◽  
Collaborative Sensemaking ◽  
Person With Dementia ◽  
Practice Development ◽  
What Matters

Background: Participatory research approaches aim to hear the voices of those who give and receive services in order to co-create insights into future improvements in care experiences. Appreciative inquiry is one such participatory approach. Its purpose is generativity, which is defined as helping people to see old things in new ways. Generativity shows much potential but there is little research describing the ‘how to’ of doing this in practice. This article describes the how to of generativity in the dream phase of an appreciative inquiry study. Aim: The aim was to share and co-analyse, with emergency nurses, family member experiences of being in an emergency department with an older person with dementia. Methods: Three critical methods were used to generate data – storytelling, appreciative framing and dialogue, and collaborative sensemaking. The principles of appreciative inquiry provided a framework for data analysis. Findings: In using appreciative inquiry methodology, emergency nurses were able to envision a preferred future based on what people value and what matters in approaches to care. Generativity enabled them to visualise what it would take to bring this new way of nursing to reality. Conclusion: Creative methods, when maximised, can be powerful tools in reframing narratives and helping practitioners to transcend the rut that perpetuates the status quo and obscures hope of future improvement. Generation of new insights and perspectives is critical to identifying and developing strategies for practice enhancement. Implications for practice: Generativity is an underexplored concept yet it has the potential to help practitioners to see things with new eyes Patient and/or family member stories play an important part in practice development, to determine what matters and is valued in enhancing experiences of care Finding ways to integrate the relational aspects of care provides a mechanism for nurses to articulate their skills and contribution in highly technical and task-orientated clinical environments

scholarly journals An Appreciative Inquiry Approach to the Core Competencies: Taking It from Theory to Practice

2017 ◽  
Vol 225 (4) ◽  
pp. S170-S171
Author(s):  
Emily Sturm ◽  
John D. Mellinger ◽  
Jeanne L. Koehler ◽  
Jarrod C. Wall
Keyword(s):  
Appreciative Inquiry ◽  
Core Competencies ◽  
The Core ◽  
Theory To Practice ◽  
Inquiry Approach

Socialization Model of Tacit-Tacit Transfer Knowledge through Appreciative Inquiry Approach

2017 ◽  
Vol 1 (1) ◽  
pp. 7-14
Author(s):  
Ani Wahyu Rachmawati
Keyword(s):  
Appreciative Inquiry ◽  
Management Theory ◽  
Transfer Of Knowledge ◽  
Mutual Trust ◽  
Seci Model ◽  
Inquiry Approach ◽  
Positive Sense ◽  
Knowledge Management Theory ◽  
Conceptual Paper ◽  
Conceptual Research

The aims of study is to describe combination of two big theory between Socialization model of tacit-tacit transfer knowledge and appreciative inquiry approach conceptually. This research idea comes to find better ways in tacit-tacit transfer of knowledge in knowledge management theory. This research is conceptual research and the limitation is about empirical study itself. The result of conceptual paper combine the process of tacit-tacit tansfer knowledge and appreciate inquiry in mental model, creative dialogue and develop mutual trust. Appreciative inquiry as a method to increase positive sense in tranfer knowlegde can be applied in tacit-tacit transfer knowledge phase in SECI Model.

scholarly journals ‘Getting back to normality seems as big of a step as going into lockdown’: the impact of the COVID-19 pandemic on people with early to middle stage dementia

2021 ◽  
Author(s):  
Catherine V Talbot ◽  
Pam Briggs
Keyword(s):  
Well Being ◽  
Cognitive Stimulation ◽  
Social Worlds ◽  
Middle Stage ◽  
People With Dementia ◽  
The Social ◽  
Function Loss ◽  
The Government ◽  
Person With Dementia ◽  
The Impact

Abstract People with dementia can experience shrinkage of their social worlds, leading to a loss of independence, control and reduced well-being. We used ‘the shrinking world’ theory to examine how the COVID 19 pandemic has impacted the lives of people with early to middle stage dementia and what longer-term impacts may result. Interviews were conducted with 19 people with dementia and a thematic analysis generated five themes: the forgotten person with dementia, confusion over government guidance, deterioration of cognitive function, loss of meaning and social isolation, safety of the lockdown bubble. The findings suggest that the pandemic has accelerated the ‘shrinking world’ effect and created tension in how people with dementia perceive the outside world. Participants felt safe and secure in lockdown but also missed the social interaction, cognitive stimulation and meaningful activities that took place outdoors. As time in lockdown continued, these individuals experienced a loss of confidence and were anxious about their ability to re-engage in the everyday practises that allow them to participate in society. We recommend ways in which the government, communities and organisations might counteract some of the harms posed by this shrinking world.

scholarly journals Non-Pharmacologic Interventions for Caregivers of People With Dementia in Latin America: A Review

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 275-276
Author(s):  
Jose Aravena ◽  
Jean Gajardo ◽  
Laura Gitlin
Keyword(s):  
Quality Of Life ◽  
Latin America ◽  
Depressive Symptoms ◽  
Latin American ◽  
Randomized Clinical Trials ◽  
Social Inequalities ◽  
Neuropsychiatric Symptoms ◽  
People With Dementia ◽  
Person With Dementia

Abstract In a scenario of increasing longevity and social inequalities, Latin-America is an important contributor to the worldwide dementia burden. Caregivers’ health is fundamental to maintain the person with dementia quality of life. However, caregiving is a culturally sensible role that requires tailored solutions. The aim is to synthesize the evidence about non-pharmacologic interventions targeted to caregivers of people with dementia in Latin-American contexts. A comprehensive review of interventions in caregivers and persons with dementia in Latin-American countries was conducted using MEDLINE, Embase, PsycINFO, and Scopus with studies published until January 27th, 2020. Randomized clinical trials of non-pharmacologic interventions targeted to caregivers of people with dementia or dyads where included. Qualitative synthesis of the evidence was presented and analyzed. Overall, 9 pilot RCT were included for the final analysis (6 Brazil, 1 Colombia, 1 Mexico, 1 Perú). The biggest study recruited 69 caregivers and the smallest 13 dyads, with follow-up range of 3-6 months. 5 control groups received at least some other non-standard care type of intervention. 8 were targeted exclusively to caregivers (4 group intervention, 3 individual, and 1 combined) and 1 multicomponent intervention. Most frequent measured outcomes were caregiver’s burden, anxiety, depressive symptoms, and quality of life, and person with dementia neuropsychiatric symptoms. Individual interventions report better results in caregiver parameters such as burden and depressive symptoms and person with dementia neuropsychiatric symptoms. Group interventions presented mixed results. Nevertheless, the quality of evidence was low. There is a critical need to study interventions for caregivers in Latin-American contexts.

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