scholarly journals Prioritizing social identities: Patients’ perspective on living with multimorbidity

2021 ◽  
Vol 11 ◽  
pp. 263355652110093
Author(s):  
Camilla Drivsholm Sand ◽  
Keren Rahbek ◽  
Tora G Willadsen ◽  
Alexandra R Jønsson
Keyword(s):  
Everyday Life ◽  
Social Relations ◽  
Sense Of Self ◽  
Social Identities ◽  
Structured Interviews ◽  
Daily Lives ◽  
Medical Encounter ◽  
Physical Limitations ◽  
Emerging Themes ◽  
Patients Perspective

Objective: This article explores experiences of people with multimorbidity, and attempts to advance understandings of the complexity of living with multimorbidity outside the medical encounter in a social identity theoretical framework. Method: This is a qualitative study using individual semi-structured interviews among nine persons living with multimorbidity. The interviews are analysed inductively according to thematic content analysis. Results: The emerging themes are: 1) Impact on daily life, 2) Professional life and 3) Capacity for handling multimorbidity. People with multimorbidity experience physical limitations and psychological distress, which limits their ability to maintain social relations and affiliation to the labour market. Accordingly, they are challenged in their ability to retain a sense of normal everyday life, which is mediated by their capacity for handling multimorbidity. Discussion: Multimorbidity may compromise various social identities. The complexity of living with multimorbidity is increased by an aspiration to maintain valued social identities in order to preserve a coherent sense of self and a normal everyday life. This study suggests an increased focus on individual priorities and values outside the medical encounter, and argues in favour of recognizing the conflicts that people experience as they try to balance multimorbidity with other important aspects of their daily lives.

scholarly journals What Does It Mean to Age in Place as an Older Homeless Woman? Facing an Altered Sense of Place, Belonging, and Identity

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 52-53
Author(s):  
Judith Gonyea ◽  
Kelly Melekis
Keyword(s):  
Social Relations ◽  
Sense Of Place ◽  
Sense Of Self ◽  
Aging In Place ◽  
Personal Control ◽  
Phenomenological Approach ◽  
Place Identity ◽  
Homeless Women ◽  
Structured Interviews ◽  
Age In Place

Abstract The emergence of “aging in place” as social policy in the U.S and globally reflects a deepening understanding that a home is more than a physical domicile, it also represents a source of personal and social identity and offers one a sense of place and belonging. In this qualitative study we explore the question, What does “aging in place” mean to older homeless women navigating the shelter system and streets? Using a phenomenological approach, we conducted semi-structured interviews with fifteen chronically homeless women in their fifties using the shelter system. Our analysis process was inductive and iterative with the culminating phases being the generation and interpretation of themes. Our analysis revealed the links between place, sense of belonging, and identity. To be displaced from a physical home can present challenges to defining one’s very existence. Specific themes emerging from the women’s narratives included the ways in which shelter and street life impacted their sense of personal control, privacy, security, health, and comfort as well as underscored that shelters are dehumanizing places that further diminish one’s sense of self and self-worth. The interviewed women sought to construct a positive sense of self through speaking about their past, present, and future roles as well as identities gained through social relations and place identity connections. Based on the findings, we suggest strategies by which shelters might better respond to unique needs of older women, including adopting ways that do not further disempower or stigmatize them but rather promote pathways out of homelessness.

scholarly journals Navigating uncertainty: an examination of how people with haemophilia understand and cope with uncertainty in protection in an ethnographic study

2020 ◽  
Vol 7 (1) ◽  
pp. 158-164
Author(s):  
Thomas Hughes ◽  
Mikkel Brok-Kristensen ◽  
Yosha Gargeya ◽  
Anne Mette Worsøe Lottrup ◽  
Ask Bo Larsen ◽  
...  
Keyword(s):  
Everyday Life ◽  
Mental Models ◽  
Health Care Professionals ◽  
Large Scale ◽  
Participant Observation ◽  
Field Research ◽  
Ethnographic Study ◽  
Theory Approach ◽  
Structured Interviews ◽  
Daily Lives

AbstractBackgroundWith the major advances in treatment of haemophilia in recent decades, people with haemophilia (PwH) are more protected in their daily lives than ever before. However, recent studies point to persisting or increasing patient experience of uncertainty.AimsThe aim of this article is to further investigate findings related to how PwH understand and cope with uncertainty around their protection in their everyday life, one of the main themes identified in a large-scale ethnographic study of the everyday life of PwH, including beliefs and experiences related to their condition, their treatment, and their personal ways of managing the condition.MethodsThe study used ethnographic research methods. Five haemophilia experts provided historical and disease area context prior to the initiation of field research. During field research, study researchers collected data through 8–12 hours of participant observation, semi-structured interviews, written exercises, facilitated group dialogues, and on-site observations of the interactions of PwH with friends, family, and health care professionals (HCPs). Study researchers also conducted on-site observation at haemophilia treatment centres (HTCs) and interviewed HCPs. The study employed a multi-tiered grounded theory approach and combined data were analysed using techniques such as inductive and deductive analysis, cross-case analysis, challenge mapping, and clustering exercises. This article explores findings related to uncertainty and thus focuses on a subset of the data from the study.ResultsFifty-one PwH in Italy, Germany, Spain, UK, and Ireland were interviewed and followed in their daily lives, and 18 HCPs were interviewed. Fifty-two per cent (n=26/50) of PwH in the study experience difficulties translating clinical understanding of protection into specific activities in everyday life. Many have developed their own mental models and care adaptations to navigate treatment uncertainy: these seldom match the medical community's view. These mental models of protection among PwH can cause distress and influence behaviour in a way that can limit possibilities, and/or increase risk. There is also a prevalent tension in the strategies PwH have for managing their protection in terms of day-to-day vs. long-term ambitions.ConclusionsThese findings on PwH's experience of treatment uncertainty suggest a need to develop tools and communication materials to help PwH better understand the protection provided by their treatment regimen and what that means practically for everyday life.

scholarly journals Hardships of Scarcity: Microsociology on Poor People’s Survival Strategies in Everyday Life

2015 ◽  
Author(s):  
Antonio Rosales
Keyword(s):  
Everyday Life ◽  
Social Relations ◽  
Data Gathering ◽  
Survival Strategies ◽  
Poor People ◽  
Structured Interviews ◽  
Men And Women ◽  
Life Data ◽  
The Poor ◽  
The World

Basic human rights are not met in many parts of the world. Hunger, ill-health, and poor education are often part of the lives of the poor. The purpose of this study is to understand poor people's sources of strength, social relations, sources of income, and perspectives as strategies to cope with poverty in everyday life. Data gathering was done through field observations and semi-structured interviews with poor and non-poor people in the Philippine town, Hagonoy. All data was codified according to recurrent and salient issues and analyzed using chiefly symbolic interactionism as the theoretical framework. The results of this study reveal that poor people suffer from stigmas. Poor people carry out various survival strategies: some strategies are creative, spiritual, and norm-breaking; social relations are important to cope with poverty. There are differences in the way poverty affects men and women due to culturally defined gender roles. The poor people in this study were marginalized into less desirable areas; because of their lack of resources they live in shanties where they have little protection. Calamities affect both the non-poor and the poor people but the latter are in a less fortunate position.

Social Identities, Class Identity and Political Perspectives

1992 ◽  
Vol 40 (2) ◽  
pp. 229-252 ◽  
Author(s):  
Fiona Devine
Keyword(s):  
Social Identity ◽  
Social Identities ◽  
Frame Of Reference ◽  
Important Influence ◽  
Class Identity ◽  
Structured Interviews ◽  
Daily Lives ◽  
People’S Daily ◽  
Considerable Controversy ◽  
People's Daily

There has been considerable controversy over the extent to which class is a salient social identity, and the importance of other social identities. Marshall and his colleagues (1988) argue that class identity remains a salient frame of reference in people's daily lives while Saunders (1989; 1990) and Emmison and Western (1990) argue that class identity is not as strong as they claim, and the importance of other social identities cannot be denied. However, proponents and opponents in the debate are agreed that the salience of social identities depends upon the context in which they are found which cannot be fully explored in highly-structured interviews. Drawing on data from a ‘qualitative re-study’ of the Affluent Worker series, it will be argued that people have many different identities, including a strong class identity, which co-exist at the same time. That said, their class identity is the most important influence on the formation of political perspectives. This finding concurs with the Essex team and Saunders even though he has sought to distance himself from this conclusion.

scholarly journals Influence of Trust on Social Commercial Behavior – Taking WeChat as an Example

2021 ◽  
Vol 4 (4) ◽  
pp. 208-212
Author(s):  
Shuo Liu
Keyword(s):  
Social Media ◽  
Digital Media ◽  
Social Relations ◽  
Social Enterprises ◽  
Social Business ◽  
Structured Interviews ◽  
Daily Lives ◽  
Media Platform ◽  
Questionnaire Surveys ◽  
Use Of Social Media

The development of science and technology as well as the internet have brought changes to our daily lives. In addition, with the widespread use of social media, more and more people are using social platforms to connect with colleagues and serve business activities. This study takes WeChat, a specific social media platform in China, as an example to study how personal social relations influence personal consumption behaviour in the digital media era through WeChat users’ daily use experience. This study adopts a mixed method. First, it tests users’ perception based on cognitive and emotional factors through 122 questionnaire surveys. Then, the users’ experiences from their participation in social enterprises are gathered through 10 semi-structured interviews, and subsequently, the relationship between personal relations and social enterprises are analyzed. Finally, after data collation and analysis, it can be concluded that trust is the core relationship quality and also the basis for promoting the development of social business activities. At the same time, since social business activities rely on social relations, the development of swift guanxi is conducive to the realization of repurchase behaviours in social business relations.

scholarly journals Creating by me, and for me: investigating the use of information creation in everyday life

2021 ◽  
Vol 26 (1) ◽  
Author(s):  
Lo Lee ◽  
◽  
Melissa Ocepek ◽  
Stephann Makri ◽  
◽  
...  
Keyword(s):  
Everyday Life ◽  
Arts And Crafts ◽  
Grocery Stores ◽  
Grocery Shopping ◽  
Structured Interviews ◽  
Daily Lives ◽  
Depth Analysis ◽  
The Everyday ◽  
Affective Value ◽  
Field Notes

Introduction. We investigate the use of information creation in everyday life, where individuals carry out various commonplace work. While there have been an increasing number of studies on information creation, little research exists on discussing its function and relationship to navigating life activities. Method. To identify the ways information creation facilitates information tasks in the everyday world, we conducted two qualitative studies, each reflecting a particular aspect of our daily lives. We held semi-structured interviews and think-aloud observation in physical grocery stores and on the Pinterest website. A total of twenty-eight participants (eighteen grocery shoppers and ten arts and crafts hobbyists) were recruited for the two studies. Analysis. Transcribed interview data and field notes were analysed inductively. We assigned and refined a series of codes iteratively to identify themes. Results. Findings highlight a variety of circumstances in which participants made use of information creation as an end product to support their ordinary actions (in this case, grocery shopping and idea collecting, respectively). Conclusions. This study gives an in-depth analysis of information creation, underlining its potential functions in efficiently and engagingly aiding the accomplishment of routine activities. We demonstrate the practical and affective value associated with information creation, expanding this concept in information behaviour research.

scholarly journals Feminist geographies of religion: Christianity in everyday life of young women

Geografie ◽  
2016 ◽  
Vol 121 (4) ◽  
pp. 612-631 ◽  
Author(s):  
Kamila Klingorová
Keyword(s):  
Everyday Life ◽  
Young Women ◽  
Social Relations ◽  
Religious Affiliation ◽  
Spatial Behavior ◽  
Structured Interviews ◽  
Religious Women ◽  
Christian Culture ◽  
Secular Society ◽  
And Gender

Religion influences people’s everyday life, including the way they structure their families, and relationships between men and women in general. Religious adherents tend to hold more traditional and even gender-stereotypical values. The association between religion and gender relations in space lends itself well to an analysis through feminist geographies of religion. Nevertheless, social relations in Czech secular society continue to be formed by Christian culture, which makes research in feminist geographies of religion important in this context. This contribution is based on a qualitative research using semi-structured interviews with young women living in Prague. Interviewed women are Catholic, Protestant, or without religious affiliation. The aim of the research was to verify the influence of Christianity on respondents’ everyday life. The biggest difference between religious and non-religious women is in their view of traditional family. In addition, Christianity shapes such a spatial behavior of religious respondents which differs from non-religious respondents mostly in their leisure time.

scholarly journals Urban Mountain Waterscapes: The Transformation of Hydro-Social Relations in the Trans-Himalayan Town Leh, Ladakh, India

Water ◽  
2020 ◽  
Vol 12 (6) ◽  
pp. 1698
Author(s):  
Judith Müller ◽  
Juliane Dame ◽  
Marcus Nüsser
Keyword(s):  
Everyday Life ◽  
Social Relations ◽  
Water Governance ◽  
Small Towns ◽  
Regulation System ◽  
Structured Interviews ◽  
Urban Restructuring ◽  
Tourism Sector ◽  
The Everyday ◽  
Change Impact

Socio-economic processes and climate change impact the socio-hydrology of many small towns in the Hindu Kush Himalaya (HKH), such as Leh in Ladakh. The rapidly urbanising town experienced a shift from agricultural livelihoods towards incomes mainly relying on the tourism sector. As results of this research show, the limited water resources essential to the everyday life of urban citizens have become increasingly important for the tourism sector and the urbanisation process. This study aims to understand the transformation of the urban mountain waterscape and the role of different actors involved. The waterscape approach frames hydro-social relations in a specific spatial context and additionally captures diverging hydromentalities within local actor constellations. Related discourses are materialised as water governance impacting the everyday life of urban citizens. A combination of quantitative, qualitative and participatory methods allows for a differentiated picture of current developments. Based on 312 household questionnaires, 96 semi-structured interviews, and a participatory photography workshop, this study provides evidence that urban restructuring induced by development imaginaries produces uneven water citizenships in Leh. Along with socio-economic shifts, the community-managed water regulation system is replaced by a technocratic scheme, centralising water supply and sanitation. While some of Leh’s citizens benefit from urban restructurings, others are confronted with environmental and social costs, such as a deteriorating water quality and a further reduction in quantity.

Kronisk sygdom som biografisk hændelse - et studie af bypassopererede kronisk hjertesyge menneskers biografiske arbejde

1970 ◽  
Vol 12 (3) ◽  
pp. 85-98
Author(s):  
Rasmus Antoft
Keyword(s):  
Heart Disease ◽  
Everyday Life ◽  
Social Relations ◽  
Social Action ◽  
Chronically Ill ◽  
Role Playing ◽  
Self Presentation ◽  
Self Identity ◽  
Chronic Heart Disease ◽  
Ability To Act

Chronic illness as biographical occurrence – a study on bypass operated individuals and their biographical work. The primary focus of this article is on bypass operated chronically ill peoples attempt to re-establish their biographical work, their everyday life. The everyday life experiences based on routines and obviousness are subjugated by the chronicle illness influence on the life narrative, its future character and the way in which it affects the shaping of identity, the biographical work. Two different themes are central in individual’s narratives about their everyday life with a chronic heart disease. These themes concern their self-presentation in inter-action with others and their anxiety directed at the future life with the illness, with the anxiety of death. This study shows that every bypass operated and chronically ill participant have experienced difficulties in reshaping their normal biographical work. Their ability to regain social action as part of the biographical work and their shaping of self-identity, has been altered significantly. In various situations this leads to potential stigmatisation, but also to a lack of acceptance in the role-playing of a chronic ill, be that in interaction with strangers or intimate social relations. This causes identity dilemmas, paradoxes in self-presentation and, as a consequence, self-deception in everyday life. The existential problem of anxiety and its subjugating character in the lifeplaning and biographical work is to be explained by the risk of reoccurrence of the heart disease, and by the latency of the possible terminal nature of the disease. The nature of the illness ruptures routines and the predictability of everyday life, thus manifesting itself in key situations of everyday life. In addition to this, the anxiety generates a lack of ability to act actively, that is, the individuals ability actively shape its lifeplaning and its biographical work.

Patients’ Perspective on the Psychological Impact of Multiple Sclerosis on Their Life

2021 ◽  
pp. 105413732110068
Author(s):  
Chrysoula Baka ◽  
Kalliopi Chatira ◽  
Evangelos C. Karademas ◽  
Konstantinos G. Kafetsios
Keyword(s):  
Multiple Sclerosis ◽  
Grounded Theory ◽  
Psychological Impact ◽  
Autoimmune Disorder ◽  
Positive Outcomes ◽  
Structured Interviews ◽  
Psychosocial Wellbeing ◽  
Positive Meaning ◽  
Patients Perspective ◽  
The Way

Multiple sclerosis is a chronic autoimmune disorder that greatly impacts on patients’ physical and psychosocial wellbeing. The purpose of this study is to investigate the experiences of people diagnosed with multiple sclerosis in Greece (N = 30), with regard to the way they coped with the diagnosis and the symptoms, the psychological implications of the disorder and the meaning they attributed to it. Data were collected through semi-structured interviews and they were analyzed using grounded theory. The findings showed that despite the negative implications of the disorder and the difficulty in managing the diagnosis and the symptoms, half of the patients attributed positive meaning to the disorder. Taking care of oneself, re-evaluation of life and a sense of liberation were described as the positive outcomes of experiencing multiple sclerosis.

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