scholarly journals Caregiver’s perspectives on facilitators and barriers of active participation in cerebral palsy rehabilitation in North West Nigeria: a qualitative study

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Auwal Abdullahi ◽  
Auwal Isah

Abstract Background Cerebral Palsy (CP) refers to the permanent disorders involving postural and movement control as a result of injury to the developing brain. As a result of impairment in postural and movement control, children with CP usually have problems in carrying out activities of daily living (ADL). This makes them dependent on help from their caregivers. Thus, for effective rehabilitation of children with CP, active participation of their caregivers is important. This study seeks to explore the facilitators and barriers of active participation of caregivers in the rehabilitation of children with CP in Kano, Nigeria. Methods The study design used was qualitative in-depth interview. The participants were caregivers of children with CP at Hasiya Bayero Paediatric Specialists Hospital, Kano. The caregivers were interviewed face-to-face, and their responses were audio-recorded with a tape recorder, supplemented with note taking. The data generated was analyzed using constant comparative analysis. Results Forty young caregivers (mean age, 27.17 ± 4.46 years) participated in the study. They expressed encouragement from the therapist managing the child, family support, empathy, improvement in the conditions of other children with CP, cooperation of the child during home programs family support and improvement in the child’s condition as factors that facilitate their active participation in the rehabilitation of the children. However, they mentioned occupation, financial resources and the number of children the caregiver has are the barriers to their active participation in the rehabilitation of the children. Conclusions Both the facilitators and barriers of active participation of caregivers in the rehabilitation of children with CP need to be recognized in order to help caregivers reinforce or overcome them respectively. In addition, economically sustainable and accessible rehabilitation services are needed for all children with CP. Similarly, sharing caregiving rehabilitation tasks amongst family members could facilitate caregiver active participation.

2020 ◽  
Author(s):  
Auwal Isah ◽  
Auwal Abdullahi

Abstract Background: Cerebral Palsy (CP) is a group of permanent disorders of movement and posture, attributed to non-progressive disturbance that occurred in the developing fetal or infant brain. The condition results in long-term disability in carrying out activities of daily living (ADL). Thus, active participation of caregivers in the rehabilitation of their children with CP is required. Objective: The aim of this study is to explore the facilitators and barriers of active participation of caregivers in the rehabilitation of children with CP in Kano, Nigeria. Materials and Methods: The study design used was qualitative in-depth interview. The participants consisted of caregivers of children with CP attending Hasiya Bayero Paediatric Specialists Hospital, Kano. The caregivers were sampled and interviewed by one of the researchers until theoretical saturation was attained. Responses of the participants were audio-recorded with a tape recorder, supplemented with note taking. The data generated from the interview was then transcribed, coded and analyzed using matrix analysis, using constant comparative analysis. Results: Forty caregivers with mean age, 27.17±4.46 years participated in the study. The results of the study showed factors that facilitate active participation of caregivers of children with CP in the rehabilitation of their children are improvement in the child’s condition, family support, improvement in the conditions of other children with CP, encouragement from the therapist managing the child, empathy, and cooperation of the child during home programs. The barriers identified are number of children the caregiver has, caregiver’s occupation and financial resources. Conclusion: Therapists need to help reinforce these facilitators, and devise strategies to help caregivers overcome barriers during rehabilitation of children with CP. Economically sustainable and accessible rehabilitation services are needed for all children with CP. Similarly, sharing caregiving rehabilitation tasks amongst family members could facilitate caregiver active participation.


2019 ◽  
Author(s):  
Auwal Isah ◽  
Auwal Abdullahi

Abstract Background : Cerebral Palsy (CP) is a group of permanent disorders of movement and posture, attributed to non-progressive disturbance that occurred in the developing fetal or infant brain. The condition results in long term disability in carrying out activities of daily living (ADL). Thus, it most times required active participation of the caregivers of the children affected in their rehabilitation. Objective: The aim of the study was to explore the facilitators and barriers of active participation of caregivers in the rehabilitation of these children. Materials and Methods: The study design used was qualitative indepth interview. The participants consisted of caregivers of children with CP attending Hasiya Bayero Paediatric Specialists Hospital, Kano. The caregivers were sampled and interviewed by one of the researchers until theoretical saturation was attained. A note taker wrote down and recorded responses of the participants using a tape recorder. The data generated from the interview was then transcribed, coded and analyzed using matrix analysis using constant comparative analysis. Results: Forty caregivers with mean age, 27.17±4.46 years participated in the study. The results of the study showed that, the factors that facilitate active participation of caregivers of children with CP in the rehabilitation of their children are improvement in the child’s condition, family support, improvement in the conditions of other children with CP, encouragement from the therapist managing the child, empathy, and cooperation of the child during home programs. The barriers are number of children the caregiver has, caregiver’s occupation and financial resources. Conclusion: Therapists need to help reinforce these facilitators, and devise strategies to help caregivers overcome barriers during rehabilitation of children with CP. For example, since lack of finance is one of the barriers to the caregivers’ active participation in the rehabilitation of their children, there should be a policy on CP rehabilitation that will make rehabilitation services accessible to all children with CP. Similarly, since family support is a facilitator, sharing caregiving rehabilitation tasks among member of the family could help facilitate caregiver activation participation in the rehabilitation of their children with CP.


2019 ◽  
Author(s):  
Auwal Abdullahi ◽  
Auwal Isah

Abstract Background Cerebral Palsy (CP) is a group of permanent disorders of movement and posture, attributed to non-progressive disturbance that occurred in the developing fetal or infant brain. The condition results in long term disability in carrying out activities of daily living (ADL). Thus, it most times required active participation of the caregivers of the children affected in their rehabilitation. The aim of the study is to explore the facilitators and barriers of active participation of caregivers in the rehabilitation of these children. Materials and Methods The study design used was qualitative interview. The participants consisted of caregivers of children with CP attending Hasiya Bayero Paediatric Specialists Hospital, Kano. The caregivers were sampled and interviewed by one of the researchers until theoretical saturation was attained. A note taker wrote down and recorded responses of the participants using a tape recorder. The data generated from the interview was then transcribed, coded and analyzed using matrix analysis using constant comparative analysis. Results Forty caregivers with mean age, 27 years participated in the study. The results of the study showed that, the facilitators are improvement in the child’s condition, family support, improvement in the conditions of other children with CP, encouragement from the therapist managing the child, empathy, and cooperation of the child during home programs. The barriers are number of children the caregiver has, caregiver’s occupation and financial resources. Conclusion Therapists need to help reinforce these facilitators, and devise strategies to help caregivers overcome barriers during rehabilitation of children with CP.


2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Julian Hirt ◽  
Melanie Karrer ◽  
Laura Adlbrecht ◽  
Susi Saxer ◽  
Adelheid Zeller

Abstract Background To support the implementation of nurse-led interventions in long-term dementia care, in-depth knowledge of specific supporting factors and barriers is required. Conditions and structures of caring for people with dementia differ widely, depending on the country and the care context. Our study aimed to describe the experiences and opinions of nursing experts and managers with regard to facilitators and barriers to the implementation of nurse-led interventions in long-term dementia care. Methods We conducted a qualitative descriptive study using individual interviews based on qualitative vignettes as a useful stimulus to generate narrations allowing to study peoples’ perceptions and beliefs. The study took place in nursing homes in the German-speaking part of Switzerland and in the Principality of Liechtenstein using purposive sampling. We intended to conduct the interviews face-to-face in a quiet room according to the participant’s choice. However, due to the lockdown of nursing homes during the COVID-19 pandemic in spring 2020, we performed interviews face-to-face and by video. We analysed data thematically following Braun and Clarke to achieve a detailed, nuanced description. To verify our interpretation and to ensure congruence with participants’ perspectives, we conducted member checks. The Standards for Reporting Qualitative Research (SRQR) served to structure our manuscript. Results Six dyads of nursing home managers and nursing experts from six nursing homes took part in our study (n = 12). Our thematic analysis yielded seven themes reflecting facilitators and barriers to implementing nurse-led interventions in long-term dementia care: «A common attitude and cohesion within the organization», «Commitment on several levels», «A needs-oriented implementation», «The effect and the public perception of the intervention», «A structured and guided implementation process», «Supporting knowledge and competencies», as well as «Resources for implementing the intervention». Conclusions To support the implementation of nurse-led interventions in long-term dementia care, active commitment-building seems essential. It is necessary that the value of the intervention is perceptible.Commitment-building is the precondition to reach the persons involved, such as nursing home managers, nursing staff, residents and relatives. Furthermore, nurses should precisely inform about the intervention. It is necessary that the value of the intervention is perceptible. In addition, nurses should adjust the interventions to the situational needs of people with dementia, thus. Therefore, it is important to support dementia-specific competencies in long-term care. Findings indicate that the barrier is determined by the intervention and its implementation – and not by the behaviour of the person with dementia.


Author(s):  
Antony Duttine ◽  
Tracey Smythe ◽  
Míriam Ribiero Calheiro de Sá ◽  
Silvia Ferrite ◽  
Maria Zuurmond ◽  
...  

The Zika outbreak in Brazil caused congenital impairments and developmental delays, or Congenital Zika Syndrome (CZS). We sought to ascertain whether a family support programme was needed and, if so, could be adapted from the Getting to Know Cerebral Palsy programme (GTKCP) designed for children with cerebral palsy (CP). We conducted a systematic review of the needs of families of children with CZS or CP in low- and middle-income countries and reviewed the findings of the Social and Economic Impact of Zika study. We undertook a scoping visit to three facilities offering services to children with CZS in Brazil to understand potential utility and adaptability of GTKCP. The literature review showed that caregivers of children with CZS experience challenges in mental health, healthcare access, and quality of life, consistent with the CP literature. The scoping visits demonstrated that most support provided to families was medically orientated and while informal support networks were established, these lacked structure. Caregivers and practitioners expressed an eagerness for more structure community-based family support programmes. A support programme for families of children with CZS in Brazil appeared relevant and needed, and may fill an important gap in the Zika response.


2018 ◽  
Vol 48 (8) ◽  
Author(s):  
Ali Berk

ABSTRACT: This study has focused on the factor affecting the exit from farming of young farmers, since it is an important issue in many provinces of Turkey. Data obtained through face-to-face interview method with 85 selected young farmers (aged 15-40 years) engaged in agricultural activity in the Niğde province in 2017. Logistic regression model based upon the dependent variable decision to exit from farming was used to determine relevant factors. According to results, number of children, the presence of house in the city center and the monthly income level has effects to exit from farming. Young farmers have priorities to reach a better life conditions for their children such as better education and health care services. Rural investment support should be increased; entrepreneurship and innovation trainings should be expanded by encouraging training on agriculture. It would be beneficial to develop different applications such as distance learning modules and digital agriculture.


Sports ◽  
2019 ◽  
Vol 7 (4) ◽  
pp. 83
Author(s):  
Caleb Marsters ◽  
Jemaima Tiatia-Seath

Recent studies and increased media reporting across Australasia have linked young Pacific maleelite athletes to depression, suicide, and other adverse mental health-related events. Despite these accounts,little is known about the way this group experience emotions and mental wellbeing. The aim of this studywas to explore young Pacific male athletes’ perceptions and experiences of emotions and mental wellbeing.This qualitative study involved 20 face-to-face interviews with young Pacific males (16–24 years) engaged inelite rugby union and rugby league programmes in Auckland, New Zealand. The results identified thatathletes defined mental wellbeing in a holistic and relational manner and perceived and mental wellbeing asthe culmination of several interconnected factors, including: Family support, reciprocating family support,living a ‘well-balanced’ life, athletic performance, and personal development away from sports. Themaintenance of a well-balanced athletic identity and positive social relations were deemed central tosustaining mental wellbeing for these young men.


2014 ◽  
Vol 3 (4) ◽  
pp. 200-208 ◽  
Author(s):  
Charity Bryan

The proliferation of online courses and programs has impacted kinesiology programs across the country. The process of providing online instruction, while popular with students, is often daunting to the kinesiology programs that must navigate this process. Recommendations for transitioning courses and programs from face-to-face to online are offered from both the faculty and administrative perspective. Maintaining academic rigor in online kinesiology courses and program is also essential to the dialogue and for ensuring success. Many kinesiology courses and programs are well suited for online delivery and demand for these programs is high. Kinesiology faculty and administrators should understand both the facilitators and barriers to online implementation.


2017 ◽  
Vol 25 (3) ◽  
pp. 416-425 ◽  
Author(s):  
Yongli Wang ◽  
Zhaoming Huang ◽  
Feng Kong

In this study, we investigated the mediating effect of social support on the relationship between parenting stress and life satisfaction in Chinese mothers of children with cerebral palsy ( N = 369). The results showed that family support and friend support, but not significant-other support, had mediating effects on the relationship between parenting stress and life satisfaction. Moreover, the mediating effect of friend support was equal to family support. These results suggest that the focus should be on reducing parenting stress and increasing support from family and friends to help improve life satisfaction in mothers of children with cerebral palsy.


2021 ◽  
Vol 2 (2) ◽  
pp. 62-66
Author(s):  
Yuni Handayani

Immunization has proven to be one of the most important public health efforts. Immunization programs shown remarkable success funds are a very cost-effective effort in preventing infectious diseases. Immunization is influenced by several factors, including knowledge level, mother’s age, education level, occupation, number of children and family support. This aims to analyze the Relationship of Family Support with the completeness of Basic Immunization Balita in Village Mumbulsari of Sub-districts Mumbulsari - Jember. In 2015, East Java accounted for the largest diphtheria cases (63%) and has not met the target of SPM (Minimum Service Standards). According to the health profile of jember district 2014 Of 49 health centers, there are 4 other health centers that have not reached the target of UCI are Kalisat health center (92%), Pakusari (86%), Bangsalsari (86%) and Mumbulsari (75%). This research design use correctional with Cross Sectional approach.Population 90 mothers who have children under the age of two years.After slovin formula obtained 73 respondents as sample by using simple random sampling technique. The result showed Basic Immunization of complete 53 (73%) and Basic Immunization of  incomplete 20(27%), good family support 58(79,5%),  less family support 15 (20,5%). Data analysis test using Spearman Rank with p-value 0,000 <α 0,05 which means there is a Family Support Relationship with Basic Immunization Equipment Balita. It is recommended that the next community who have a child under two years give family good support to basic immunization for granting mothers complete.


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