scholarly journals Titles: Facilitators and Barriers of Active Participation of caregivers of Children with Cerebral Palsy in their Rehabilitation: An Exploratory Study

2019 ◽  
Author(s):  
Auwal Isah ◽  
Auwal Abdullahi

Abstract Background : Cerebral Palsy (CP) is a group of permanent disorders of movement and posture, attributed to non-progressive disturbance that occurred in the developing fetal or infant brain. The condition results in long term disability in carrying out activities of daily living (ADL). Thus, it most times required active participation of the caregivers of the children affected in their rehabilitation. Objective: The aim of the study was to explore the facilitators and barriers of active participation of caregivers in the rehabilitation of these children. Materials and Methods: The study design used was qualitative indepth interview. The participants consisted of caregivers of children with CP attending Hasiya Bayero Paediatric Specialists Hospital, Kano. The caregivers were sampled and interviewed by one of the researchers until theoretical saturation was attained. A note taker wrote down and recorded responses of the participants using a tape recorder. The data generated from the interview was then transcribed, coded and analyzed using matrix analysis using constant comparative analysis. Results: Forty caregivers with mean age, 27.17±4.46 years participated in the study. The results of the study showed that, the factors that facilitate active participation of caregivers of children with CP in the rehabilitation of their children are improvement in the child’s condition, family support, improvement in the conditions of other children with CP, encouragement from the therapist managing the child, empathy, and cooperation of the child during home programs. The barriers are number of children the caregiver has, caregiver’s occupation and financial resources. Conclusion: Therapists need to help reinforce these facilitators, and devise strategies to help caregivers overcome barriers during rehabilitation of children with CP. For example, since lack of finance is one of the barriers to the caregivers’ active participation in the rehabilitation of their children, there should be a policy on CP rehabilitation that will make rehabilitation services accessible to all children with CP. Similarly, since family support is a facilitator, sharing caregiving rehabilitation tasks among member of the family could help facilitate caregiver activation participation in the rehabilitation of their children with CP.

2020 ◽  
Author(s):  
Auwal Isah ◽  
Auwal Abdullahi

Abstract Background: Cerebral Palsy (CP) is a group of permanent disorders of movement and posture, attributed to non-progressive disturbance that occurred in the developing fetal or infant brain. The condition results in long-term disability in carrying out activities of daily living (ADL). Thus, active participation of caregivers in the rehabilitation of their children with CP is required. Objective: The aim of this study is to explore the facilitators and barriers of active participation of caregivers in the rehabilitation of children with CP in Kano, Nigeria. Materials and Methods: The study design used was qualitative in-depth interview. The participants consisted of caregivers of children with CP attending Hasiya Bayero Paediatric Specialists Hospital, Kano. The caregivers were sampled and interviewed by one of the researchers until theoretical saturation was attained. Responses of the participants were audio-recorded with a tape recorder, supplemented with note taking. The data generated from the interview was then transcribed, coded and analyzed using matrix analysis, using constant comparative analysis. Results: Forty caregivers with mean age, 27.17±4.46 years participated in the study. The results of the study showed factors that facilitate active participation of caregivers of children with CP in the rehabilitation of their children are improvement in the child’s condition, family support, improvement in the conditions of other children with CP, encouragement from the therapist managing the child, empathy, and cooperation of the child during home programs. The barriers identified are number of children the caregiver has, caregiver’s occupation and financial resources. Conclusion: Therapists need to help reinforce these facilitators, and devise strategies to help caregivers overcome barriers during rehabilitation of children with CP. Economically sustainable and accessible rehabilitation services are needed for all children with CP. Similarly, sharing caregiving rehabilitation tasks amongst family members could facilitate caregiver active participation.


2019 ◽  
Author(s):  
Auwal Abdullahi ◽  
Auwal Isah

Abstract Background Cerebral Palsy (CP) is a group of permanent disorders of movement and posture, attributed to non-progressive disturbance that occurred in the developing fetal or infant brain. The condition results in long term disability in carrying out activities of daily living (ADL). Thus, it most times required active participation of the caregivers of the children affected in their rehabilitation. The aim of the study is to explore the facilitators and barriers of active participation of caregivers in the rehabilitation of these children. Materials and Methods The study design used was qualitative interview. The participants consisted of caregivers of children with CP attending Hasiya Bayero Paediatric Specialists Hospital, Kano. The caregivers were sampled and interviewed by one of the researchers until theoretical saturation was attained. A note taker wrote down and recorded responses of the participants using a tape recorder. The data generated from the interview was then transcribed, coded and analyzed using matrix analysis using constant comparative analysis. Results Forty caregivers with mean age, 27 years participated in the study. The results of the study showed that, the facilitators are improvement in the child’s condition, family support, improvement in the conditions of other children with CP, encouragement from the therapist managing the child, empathy, and cooperation of the child during home programs. The barriers are number of children the caregiver has, caregiver’s occupation and financial resources. Conclusion Therapists need to help reinforce these facilitators, and devise strategies to help caregivers overcome barriers during rehabilitation of children with CP.


2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Auwal Abdullahi ◽  
Auwal Isah

Abstract Background Cerebral Palsy (CP) refers to the permanent disorders involving postural and movement control as a result of injury to the developing brain. As a result of impairment in postural and movement control, children with CP usually have problems in carrying out activities of daily living (ADL). This makes them dependent on help from their caregivers. Thus, for effective rehabilitation of children with CP, active participation of their caregivers is important. This study seeks to explore the facilitators and barriers of active participation of caregivers in the rehabilitation of children with CP in Kano, Nigeria. Methods The study design used was qualitative in-depth interview. The participants were caregivers of children with CP at Hasiya Bayero Paediatric Specialists Hospital, Kano. The caregivers were interviewed face-to-face, and their responses were audio-recorded with a tape recorder, supplemented with note taking. The data generated was analyzed using constant comparative analysis. Results Forty young caregivers (mean age, 27.17 ± 4.46 years) participated in the study. They expressed encouragement from the therapist managing the child, family support, empathy, improvement in the conditions of other children with CP, cooperation of the child during home programs family support and improvement in the child’s condition as factors that facilitate their active participation in the rehabilitation of the children. However, they mentioned occupation, financial resources and the number of children the caregiver has are the barriers to their active participation in the rehabilitation of the children. Conclusions Both the facilitators and barriers of active participation of caregivers in the rehabilitation of children with CP need to be recognized in order to help caregivers reinforce or overcome them respectively. In addition, economically sustainable and accessible rehabilitation services are needed for all children with CP. Similarly, sharing caregiving rehabilitation tasks amongst family members could facilitate caregiver active participation.


10.12737/5904 ◽  
2014 ◽  
Vol 21 (3) ◽  
pp. 76-82
Author(s):  
Бабина ◽  
L. Babina ◽  
Кривобоков ◽  
Vladislav Krivobokov

The problem of infantile cerebral palsy one of the urgent problems of child neuropathology and orthopedics. 60% of children with disabilities have associated disturbances of abilities to move, to make precise movements, i.e., to control their own actions. Movement disorders cause abnormal muscle synergies, resulting in relatively quickly formed fixed contractures, which prevent the movement. As a result, these children need for surgical correction and long-term rehabilitative treatment in the postoperative pe-riod. However, natural curative factors become more important. These factors in adequate dosages increase functional reserve capacities of the child´s body systems and contribute to the improvement of adaptive responses. Most physiological and adequate method in the rehabilitation of children with cerebral palsy is a spa-treatment. The authors’ purpose of this study is to develop and scientifically justify a system of restorative treatment of children operated on cerebral palsy, in the conditions of the balneologic resort. In the children´s psycho-neurological department of the Pyatigorsk clinic five randomized groups of children after surgical treatment for cerebral palsy were observed. Detailed clinical psycho-neurological examination, electromyography, electroencephalography, rheoencephalography, rheovasography were performed in all patients. The studies in the immediate and long-term follow allow to recommending the medical technologies for complex therapy of children after surgery for cerebral palsy. Continued improvement in a small number of children with cerebral palsy is the criterion of having to re-resort treatment.


2017 ◽  
Vol 5 (1) ◽  
pp. 27
Author(s):  
Sumartini Sumartini ◽  
Diah Indriani

One of the most eff ective eff ort in the family planning program was to control fertilitas and press the population growth rate was used contraception. In the area of Puskesmas Pacar Keling Surabaya interest of acceptor which used short term contraceptive method still high than long term contraceptive method. This research used analytical observational study with case control methods. The population is all woman reproductive age couples aged 15-49 years old in the area of Puskesmas Pacar Keling Surabaya. Sampling technique used two stage random sampling and got 90 respondent. The variables were age, knowledge, side eff ects, desire to have a child again, husband and family support. Data were analyzed with multiple logistic regression with al level of signifi cance value α= 0,05. The result of logistic regression analysis signifi cant variables were age (p= 0,002), side eff ects (p= 0,005), desire to have a child again (p= 0,028), husband and family support (p= 0,008). Conclusion of research is that age, side effects, desire to have more children, husband and family support infl uencing reproductive age couples using long term contraceptive methods. This research suggest health workers provide Counselling and information about Family Planning to reproductive age couples specially they were 20-30 years old about explanation of the use of long term contraception method.


2015 ◽  
Vol 3 (3) ◽  
pp. 10-14 ◽  
Author(s):  
Anton Vladimirovich Govorov ◽  
Vladimir Ivanovich Zavarukhin

Purpose of the study. Clinical analysis of the surgical treatment of stenotic ligamentitis of fingers in children. Materials and methods. A retrospective analysis of data examining 140 children and surgical treatment of 105 children with the diagnosis of "constrictive ligamentitis of fingers" was performed in the G. I. Turner Research Institute for Children’s Orthopedics in the period from 2011 to 2013. We considered gender and age of patients, the symptoms of the disease and patient complaints, and nature of the preferential affection of one or both hands and fingers as well as the family history. Results. Regarding gender, the patients were evenly distributed: 54 girls (51%) and 51 boys (49%). The largest number of children in need of surgical treatment (89) belonged to the age group of 1-4 years (85%). The prevalence of pre-emptive affection of fingers of one of the limbs has not been noted. The disease was mostly diagnosed on the first finger (131 cases). Recurrence of deformity in the long term was not noted. Conclusion. Conservative treatment may contribute to the progression of deformity. The applied surgical treatments permitted the maximum functional and cosmetic result.


2020 ◽  
Vol 8 (2) ◽  
pp. 163
Author(s):  
Sindi Eka Putri ◽  
Sri Widati

Background: One of the efforts made by the government to reduce the rate of population growth was through the Family Planning program. Many contraceptive methods are used by Fertile Age Couples (FAC), including the Long-Term Contraception Method (MKJP) and the non-Long-Term Contraception Method (non-MKJP). Low interest in fertile-couples for long-term use of contraception cannot be separated from family support to use these contraceptives. There is a need for an understanding of MKJP for FAC. Family support was defined as the attitude, actions, and acceptance of the family of its members. Family members see that those who are supportive are always ready to provide help and assistance. With family support, FAC can easily decide which contraception will be used. Objective: The purpose of this study was to analyze the relationship of family social support to the interest of FAC in using the long-term contraception method in RW 5, Sidotopo Village. Methods: This research was an observational analytic study using a cross-sectional research design. The sample of this research consists of 48 participants, taken randomly using multistage random sampling. The research instrument was in the form of a questionnaire. Then, the data were analyzed using the Chi-square test. Results: The characteristics of family planning acceptors in RW 5 of the Sidotopo sub-district starting from the dominating age are 21-35 years old with high school as the highest level of education. The income level in the area is middle to the upper level from 2 million to 5 million rupiahs per month. Based on the results of statistical tests, there is a correlation between family instrumental social support with the interest of Fertile Age Couples to use MKJP. Conclusion: Based on the results of the bivariate test using Chi-Square, it was found that between the four support variables, only one of them has a relationship that is instrumental support. The results of this study can be used as a rationale for policymaking in order to increase the number of long-term family planning acceptors.


1980 ◽  
Vol 5 (4) ◽  
pp. 12-17 ◽  
Author(s):  
Libby Lloyd

Preterm birth is a crisis for both baby and family. The long term outcome for both will be greatly influenced by the families’ ability to move from the grief and impotence associated with the loss of expected full-term parenthood through to active involvement as a preterm parent and eventual acceptance of parenthood.The families' experience of the crisis is described for both normal and special situations. The implications for staff and family of more active participation of the family are discussed and some methods of involving the family are described.


2020 ◽  
Author(s):  
Mariko Makino ◽  
Mitsuo Yasushi ◽  
Masahiro Hashizume

This study was aimed to identify eating disorder (ED) relapse, childbirth, postnatal depression,and the family support. Of the ED patients during treatment from 1994 to 2004,55 were pregnant and had ED recovery. Of them, 25 (21 Bulimia Nervosa (BN)and 4 Anorexia Nervosa (AN)) agreed to take part in this study. We interviewed them every 2 wk. both during the pregnancy and after childbirth. We also interviewed family members each month. The Eating Attitudes Test-26 (EAT-26) and Edinburgh Postnatal Depression Scale (EPDS) were helpful for diagnosing the EDs and postnatal depression. As the statistical analysis, We conducted t-test.67%relapsed ED while pregnant and 50%relapsed postnatal. In the non-relapse group, all the subjects had vaginal delivery and their infants were male. 50% of the subjects had postnatal depression. Non-Postnatal depression group had average body- weight infants. With regard to family support, there was no relationship between ED relapse and postnatal depression. We found that the rate of ED relapse and that of suffering from postnatal depression were remarkable in this group, suggesting the necessity for long-term follow-up for the EDs.


2017 ◽  
Vol 1 (1) ◽  
pp. 16
Author(s):  
Aditiya Rahayu ◽  
Sholihatul Maghfirah ◽  
Sulistyo Andarmoyo

AbstractCurrently, it is widely known that the family supports for the elderly give significant influence to the presence of elderly for 1 year in posyandu lansia (Elderly Health Center, hereafter – information center and health care support for the elderly). This is due to the elderly active participation in this health care center can improve their healthy optimally. The objective of the study was to explain positive family support in relation to liveliness of elderly to follow posyandu elderlyCenter in Krajan, Grogol Village, SawooSubdistrict, Ponorogo.This is a correlation study in which the subject of the research is purposively chosen by using purposive sampling. The data are collected by using questionnaire, and then the data are analyzed by using T-score counting of 1 year and <6 months of inactivity. Finally, Fisher Exact statistic test is applied as the tabulation.From the result, it is known that among all 62 respondents, there are 8 respondents or approximately 12.9% respondents got good family support and have active participation, and there are 2 respondents or approximately 3.2% respondents got poor family support but have active participation. Whereas, there are 15 respondents or approximately 24.2% respondents got good family support but have passive participation, and there are 37 respondents or approximately 59.7% respondents got poor family support and have passive participation. The results showed that family support was positively associated with elderly leprosy in following posyandu elderly p = 0,004 with <α = 0,05.Finally, of this research support positive relation with elderly activeness participate in posyandu elderly expected elderlyIt is expected that the elderly can regularly participate and for the family members, it is expected that they can always give supports for the elderly in order to help them control their health. The weaknesses of this study are the range of responses to support provided by the family during folloe-up posyandu lansia(Elderly health Center) for 1 year because of the different respinden’s memory can trigger the data inaccuracy. Keywords: family support, activity, Elderly Health CenteAbstrakFenomena yang ada dukungan keluarga bagi para lansia mempengaruhi kehadiran lansia selama 1 tahun di posyandu lansia. Sebagaiaman keaktifan lansia dalam posyandu lansia sangat bermanfaat untuk meningkatkan kesehatan secara optimal. Tujuan penelitian adalah untuk menjelaskan dukungan keluarga berhubungan positif dengan keaktifan lansia dalam mengikuti posyandu lansia di dukuh krajan, desa grogol, kecamatan sawoo, Kabupaten ponorogo.Desain penelitian menggunakan korelasional dengan mengunakan teknik purposive sampling. Pengumpulan data mengunakan instrument kuisioner dengan pengolahan data  mengunakan skor-T dan keaktifan posyandu dengan penghitungan selama 1 tahun <6 kali dalam 1 tahun tidak aktif dan pengolahan data  mengunakan uji statistik Fisher ExactHasil penelitian didapatkan dari 62  responden. 8 responden (12,9%) dengan dukungan keluarga baik dengan keaktifan aktif, terdapat 2 responden (3,2%) dengan dukungan keluarga buruk dengan keaktifan aktif. Sedangkan 15 responden (24,2%) dengan dukungan keluarga baik dengan keaktifan tidak aktif, dan terdapat 37 responden (59,7%) dengan dukungan keluarga buruk dengan keaktifan tidak aktif. Hasil menunjukan adanya dukungan keluarga berhubungan positif dengan keaktifan lansia dalam mengikuti posyandu lansia p=0,004 dengan < α=0,05.Kesimpulan dari penelitian ini dukungan keluarga berhubungan positif dengan keaktifan lansia dalam mengikuti posyandu lansia diharapkan lansia dapat memanfaatkan posyandu lansia dengan rutin, untuk keluarga lansia diharapkan keluarga lebih memberikan dukungan pada lansia agar kesehatan lansia terpantau dengan baik. Kelemahan penelitian ini adalah rentan terhadap kesalahan informasi dari respon terhadap dukungan yang diberikan keluarga selama mengikuti posyandu lansia selama 1 tahun karena daya ingat responden berbeda-beda  ini dapat memicu ketidak akuratan informasiKata Kunci: Dukungan Keluarga, Keaktifan, Posyandu lansia


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