scholarly journals Is this the ‘new normal’? A mixed method investigation of young person, parent and clinician experience of online eating disorder treatment during the COVID-19 pandemic

2021 ◽  
Vol 9 (1) ◽  
Author(s):  
Catherine Stewart ◽  
Anna Konstantellou ◽  
Fatema Kassamali ◽  
Natalie McLaughlin ◽  
Darren Cutinha ◽  
...  

Abstract Introduction Prior to the COVID-19 pandemic, research in virtual care for young people with eating disorders was preliminary and implementation rare. This study explored the experience of young people, parents and clinicians when therapy was transitioned to virtual provision as a result of the UK lockdown in March 2020. Methods A mixed-method approach was used in this study. Online questionnaires that included a mixture of rating (Likert scale) and free-text response questions were completed by 53 young people with any eating disorder, 75 parents and 23 clinicians. Questions focused on the experience of online treatment as well as the impact on engagement, perceived treatment efficacy and preferences around treatment mode in the future. Likert scale questions were analysed using a summary approach. Free-text responses were analysed qualitatively using reflexive thematic analysis. Results Responses to rating scale questions indicate satisfaction with treatment, good engagement and ability to manage technology. Young people who had transitioned care, rather than started care virtually in lockdown, rated therapy as less effective. However, individual accounts of experience were more varied. Reflexive thematic analysis of free-text responses identified key themes of 1) Making it work, 2) Home as a therapeutic space, and 3) Disrupted connection and 4) Into the future. Conclusions These results have implications for ongoing care during the pandemic and for future implementation of virtual care in the treatment of young people with eating disorders. Particular issues arising are the trade-off between accessibility and therapeutic engagement and depth and need for consideration of equal access to treatment in socially unequal societies.

Author(s):  
Jet D. Termorshuizen ◽  
Hunna J. Watson ◽  
Laura M. Thornton ◽  
Stina Borg ◽  
Rachael E. Flatt ◽  
...  

ABSTRACTWe received rapid ethical permission to evaluate the early impact of COVID-19 on people with eating disorders. Participants in the United States (US, N=511) and the Netherlands (NL, N=510), recruited through ongoing studies and social media, completed an online baseline survey that included both quantitative measures and free-text responses assessing the impact of COVID-19 on situational circumstances, eating disorder symptoms, eating disorder treatment, and general well-being. Results revealed strong and wide-ranging effects on eating disorder concerns and illness behaviors that were consistent with diagnoses. Participants with anorexia nervosa (US 62% of sample; NL 69%) reported increased restriction and fears about being able to find foods consistent with their meal plan. Individuals with bulimia nervosa and binge-eating disorder (US 30% of sample; NL 15%) reported increases in their binge-eating episodes and urges to binge. Respondents noted marked increases in anxiety since 2019 and reported greater concerns about the impact of COVID-19 on their mental health than physical health. Although many participants acknowledged and appreciated the transition to telehealth, limitations of this treatment modality for this population were raised. Individuals with past histories of eating disorders noted concerns about relapse related to COVID-19 circumstances. Encouragingly, respondents also noted positive effects including greater connection with family, more time for self-care, and motivation to recover.


2021 ◽  
Vol 9 (1) ◽  
Author(s):  
Jennifer Couturier ◽  
Danielle Pellegrini ◽  
Catherine Miller ◽  
Neera Bhatnagar ◽  
Ahmed Boachie ◽  
...  

Abstract Objective The COVID-19 pandemic has had detrimental effects on mental health. Literature on the impact on individuals with eating disorders is slowly emerging. While outpatient eating disorder services in Canada have attempted to transition to virtual care, guidelines related to optimal virtual care in this field are lacking. As such, the objective of our Canadian Consensus Panel was to develop clinical practice guidelines related to the provision of virtual care for children, adolescents, and emerging adults living with an eating disorder, as well as their caregivers, during the COVID-19 pandemic and beyond. Methods Using scoping review methodology (with literature in databases from 2000 to 2020 and grey literature from 2010 to 2020), the Grading of Recommendations, Assessment, Development, and Evaluation system, the Appraisal of Guidelines, Research and Evaluation tool, and a panel of diverse stakeholders from across Canada, we developed high quality treatment guidelines that are focused on virtual interventions for children, adolescents, and emerging adults with eating disorders, and their caregivers. Results Strong recommendations were supported specifically in favour of in-person medical evaluation when necessary for children, adolescents, and emerging adults, and that equity-seeking groups and marginalized youth should be provided equal access to treatment. For children and adolescents, weak recommendations were supported for telehealth family-based treatment (FBT) and online guided parental self-help FBT. For emerging adults, internet cognitive-behavioural therapy (CBT)-based guided self-help was strongly recommended. Weak recommendations for emerging adults included CBT-based group internet interventions as treatment adjuncts, internet-based relapse prevention Maudsley Model of Anorexia Nervosa Treatment for Adults (MANTRA) guided self-help, telehealth relapse prevention using MANTRA, and guided CBT-based smartphone apps as treatment adjuncts. For caregivers of children and adolescents, weak recommendations were supported for virtual parent meal support training, and moderated online caregiver forums and support groups. For caregivers of emerging adults, guided parental self-help CBT was strongly recommended, and unguided caregiver psychoeducation self-help was weakly recommended. Conclusions Several gaps for future work were identified including the impact of sex, gender, race, and socioeconomic status on virtual care among children, adolescents, and emerging adults with eating disorders, as well as research on more intensive services, such as virtual day hospitals.


Author(s):  
Sean Peckover ◽  
Aldo Raineri ◽  
Aaron T Scanlan

This study aimed to examine the views of runners regarding their experiences with congestion during running events, including its prevalence, its impact on their safety and satisfaction, and their preferred controls to mitigate congestion. Runners (n = 222) with varied experience participating in running events (1-5+ years, 5-km races to Ultramarathons, and a mixture of road, trail, and cross-country events) completed an electronic survey. The survey was developed to assess the characteristics of respondents, whether they have experienced congestion during running events, the impact of congestion they have experienced during running events on their safety and satisfaction, and their preferred controls for congestion during running events. Survey data indicated runners had experienced some form of congestion prior to the race in the start corrals (93% of respondents), as the race started (97% of respondents), and during the race while running (88% of respondents). In turn, 73% of respondents indicated their experiences with congestion somewhat to extremely (i.e., rating of at least 3 on a 5-point Likert scale) negatively impacted their satisfaction with an event, while 43% of respondents indicated congestion somewhat to extremely negatively impacted their safety during an event. Regarding the impact of congestion on runner safety, 38% of respondents indicated they had slipped, while 27% of respondents indicated they had fallen during running events due to congestion. Further, congestion was attributed to injuries sustained (9%) and not finishing a race due to sustaining an injury (5%) during running events in some respondents. Respondents identified seeding runners based on previous run times (91%), use of wave starts (91%), and designing courses with limited pinch points, U-turns, and narrow paths (89%) as their most preferred controls to mitigate congestion during running events. Respondents resoundingly indicated self-seeding is not an effective method of managing congestion during running events. This study provides novel evidence that congestion is an issue for runners during running events, subsequently diminishing their satisfaction with events and posing safety concerns. In this way, race directors should involve runners in their decision-making processes when implementing appropriate controls to combat congestion for minimising injury risk to runners and ensuring a viable participant base remains attracted to their events in the future.


2021 ◽  
Author(s):  
Andreas Birgegård ◽  
Afrouz Abbaspour ◽  
Stina Borg ◽  
David Clinton ◽  
Emma Forsén Mantilla ◽  
...  

AbstractObjectiveTo document the impact of the COVI-19 pandemic on the health and well-being of individuals with past and current eating disorders in Sweden.MethodWe re-contacted participants from two previous Swedish studies who had a known lifetime history of an eating disorder. Participants completed an online questionnaire about their health and functioning at baseline early in the pandemic (Wave 1; N=982) and six months later (Wave 2); N=646).ResultsThree important patterns emerged: 1) higher current eating disorder symptom levels were associated with greater anxiety, worry, and pandemic-related eating disorder symptom increase; 2) patterns were fairly stable across time, although a concerning number who reported being symptom-free at Wave 1 reported re-emergence of symptoms at Wave 2; and only a minority of participants with current eating disorders were in treatment, and of those who were in treatment, many reported fewer treatment sessions than pre-pandemic and decreased quality of care.ConclusionsThe COVID-19 pandemic is posing serious health challenges for individuals with eating disorders, whether currently symptomatic or in remission. We encourage health service providers and patient advocates to be alert to the needs of individuals with eating disorders and to take active measures to ensure access to appropriate evidence-based care both during and following the pandemic.Significant Outcomes and LimitationsIndividuals with eating disorders symptoms or current active disorder report higher adverse impact of COVID-19 on their mental healthEven individuals who were symptom-free early in the pandemic reported a resurgence of eating disorder symptomsA large proportion of symptomatic individuals were not in treatment for their eating disorder, services should be aware and access to evidence-based care should be ensured across SwedenLimitations included the use of a convenience sample with atypical diagnostic distribution, and a low initial response rate, possibly introducing bias and limiting generalisability.Data Availability StatementFully anonymized data are available from the corresponding author upon request.


2016 ◽  
Vol 27 (2) ◽  
pp. 215-225 ◽  
Author(s):  
Nicholas D. Hughes ◽  
Louise Locock ◽  
Sue Simkin ◽  
Anne Stewart ◽  
Anne E. Ferrey ◽  
...  

Self-harm is common in young people, and can have profound effects on parents and other family members. We conducted narrative interviews with 41 parents and other family members of 38 young people, aged up to 25, who had self-harmed. Most of the participants were parents but included one sibling and one spouse. This article reports experiences of the parent participants. A cross-case thematic analysis showed that most participants were bewildered by self-harm. The disruption to their worldview brought about by self-harm prompted many to undergo a process of “sense-making”—by ruminative introspection, looking for information, and building a new way of seeing—to understand and come to terms with self-harm. Most participants appeared to have been successful in making sense of self-harm, though not without considerable effort and emotional struggle. Our findings provide grounds for a deeper socio-cultural understanding of the impact of self-harm on parents.


Nutrients ◽  
2020 ◽  
Vol 12 (10) ◽  
pp. 2969 ◽  
Author(s):  
Rami Bou Khalil ◽  
Ghassan Sleilaty ◽  
Sami Richa ◽  
Maude Seneque ◽  
Sylvain Iceta ◽  
...  

Background: The current study aimed to test whether food addiction (FA) might mediate the relationship between the presence of a history of childhood maltreatment and eating disorder (ED) symptom severity. Methods: Participants were 231 patients with ED presenting between May 2017 and January 2020 to a daycare treatment facility for assessment and management with mainly the Eating Disorder Inventory-2 (EDI-2), the Child Trauma Questionnaire (CTQ), and the Yale Food Addiction Scale (YFAS 2.0). Results: Participants had a median age of 24 (interquartile range (IQR) 20–33) years and manifested anorexia nervosa (61.47%), bulimia nervosa (16.88%), binge-eating disorders (9.09%), and other types of ED (12.55%). They were grouped into those likely presenting FA (N = 154) and those without FA (N = 77). The group with FA reported higher scores on all five CTQ subscales, as well as the total score of the EDI-2 (p < 0.001). Using mediation analysis; significant indirect pathways between all CTQ subscales and the EDI-2 total score emerged via FA, with the largest indirect effect emerging for physical neglect (standardized effect = 0.208; 95% confidence interval (CI) 0.127–0.29) followed by emotional abuse (standardized effect = 0.183; 95% CI 0.109–0.262). Conclusion: These results are compatible with a model in which certain types of childhood maltreatment, especially physical neglect, may induce, maintain, and/or exacerbate ED symptoms via FA which may guide future treatments.


1997 ◽  
Vol 31 (10) ◽  
pp. 1253-1256
Author(s):  
Martha M Rumore

With the recognition that smoking begins in youth and that tobacco products are readily available to those under 18 years of age, new Food and Drug Administration (FDA) regulations restrict the sale, distribution, promotion, and advertising of cigarettes to minors. The objective is to decrease the use of tobacco by young people and consequently reduce the future morbidity and mortality from tobacco. Pharmacists currently have three choices with regard to the sale of tobacco in pharmacies: display and sell tobacco products, refuse to sell tobacco products, or make tobacco products available but counsel on smoking cessation. Each choice, as well as the impact of the new FDA regulations on pharmacy, is discussed.


Africa ◽  
1998 ◽  
Vol 68 (2) ◽  
pp. 211-237 ◽  
Author(s):  
Johan de Smedt

The Rwandan refugee camps in Tanzania witnessed the marriages of very young adolescents: girls as young as 13–14 married boys of 14–15 years, boys they often did not even know. These marriages usually did not last very long; after a few months many girls were forced to leave—sent away by their husband. People of both sexes and all ages, when asked about the problems in the camp, would always mention these child marriages as one of the biggest problems. They were worried not only about the loss of respect for Rwandan culture and traditional values but also about the future of the marriages and what would become of the children. This article is not based on extensive research into child marriages, but the author was able to interview a number of young people who had got married in the camps, and to collect information and the opinions of other people on these and other cases. Rather than describing marriage customs and wedding ceremonies in Rwanda, and comparing them with what took place in the refugee camps, the article aims to show the impact of (civil) war, the consequent poverty and the destruction of social structures on a community, in order to show how in these circumstances behaviour can change radically. Refugees have to build up a new life in a camp, and the new ‘society’ is likely to be different from the one they came from, with different rules and changed values. Among various examples of deviant behaviour child marriages were the most remarkable.


2020 ◽  
Vol 18 (1) ◽  
pp. 113-117
Author(s):  
Ricardo Brandt ◽  
Alberto Saturno Madureira ◽  
Edilson Hobold

INTRODUÇÃO: O processo ensino-aprendizagem extrapola a sala de aula, sendo que a extensão universitária contribui de forma significativa nesse processo, melhorando a condição do egresso na atuação do profissional da Educação Física. OBJETIVO: Este trabalho teve por objetivo apresentar o impacto na vida dos acadêmicos que além de participarem das aulas normais propostas na matriz curricular também se envolvem em projetos de extensão e o quanto estas atividades podem contribuir além de suas formações, mas com a melhora dos seus currículos. MÉTODOS: Este estudo e um relato de experiência que envolve três projetos de extensão que são desenvolvidos no campus da Unioeste de Marechal Cândido Rondon, do curso de Educação Física – Bacharelado. RESULTADOS: Três projetos que atualmente existem no curso de Educação Física – Bacharelado na Universidade Estadual do Oeste do Paraná, se destacam entre tantos outros, por impactar de forma positiva na formação dos discentes além de proporcionar a comunidade exercícios de forma gratuita, para populações de diferentes idades, sendo eles o projeto Coração de Ouro, com prática de exercício físico para idosos, o projeto Unioeste Runners que oferece treinamento de corrida de rua para jovens, adultos e idosos e o Projeto Futuro do Judô, que oportuniza esta prática esportiva para crianças, adolescentes e jovens de instituições públicas do município de Marechal Cândido Rondon. CONCLUSÃO: Evidencia-se neste trabalho a importância da participação em projetos de extensão no processo de formação universitária, proporcionando vivencias diferenciadas na vida profissional do egresso. ABSTRACT. Extension projects making a difference in the formation of physical education profissionals at Unioeste. BACKGROUND: Teaching-learning process goes beyond the classroom, and university extension contributes significantly this process, improving the condition of graduates in the performance of Physical Education professionals. OBJECTIVE: The aim of this study is to present the impact in lives of academics who, in addition to participating in the normal classes proposed in the curricular matrix, are also involved in extension projects and how much these activities can contribute beyond their training, but with the improvement of their resumes. METHODS: This study is experience report that involves three extension projects that are developed on the Unioeste campus of Marechal Cândido Rondon, the Bacharelado Physical Education course. RESULTS: Three projects that currently exist in the Bachelor’s Degree in Physical Education at the State University of Western Paraná, stand out among many others, for having a positive impact on the training of students, in addition to providing the community with free exercise, for populations of different ages, being the Heart of Gold project, with physical exercise for the elderly, the Unioeste Runners project, which offers running training for young people, adults and the elderly, and the Future of Judo Project, which provides this sports practice for children , adolescents and young people from public institutions in the municipality of Marechal Cândido Rondon. CONCLUSION: This paper highlights the importance of participate in extension projects on university education process, providing differentiated experiences for the egress of great relevance for the future professional.


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