scholarly journals Quality of life assessment of children with thalassemia

2011 ◽  
Vol 51 (3) ◽  
pp. 163 ◽  
Author(s):  
Masyitah Sri Wahyuni ◽  
Muhammad Ali ◽  
Nelly Rosdiana ◽  
Bidasari Lubis
Keyword(s):  
Quality Of Life ◽  
Cross Sectional Study ◽  
Life Assessment ◽  
Control Group ◽  
Case Group ◽  
Cross Sectional ◽  
Major Health Problem ◽  
The North ◽  
School Function

Background Thalassemia is a chronic disease that is becoming a major health problem in the world, including the Mediterranean, as well as Malaysia, Thailand and Indonesia. This condition clearly affects the patient's quality of life, because of the condition itself andthe effects of treatment. Assessment is needed to detennine actions to be taken to improve the quality of life in thalassemic children.Objective To assess the differences in quality of life of thalassemic children compared to their normal siblings.Methods We perfonned a cross􀁌sectional study from May 2010 until June 2010 in H. Adam Malik Hospital, Medan and the home of a member of the North Sumatra Chapter of the Association of Parents of Thalassemia Sufferers (perhimpunan Orangtua PenderitaTalasemia Indonesia, POPTI). Thalassemic children aged 5-18 years and their age and gender􀁌adjusted siblings were divided into two groups: case group and control group. Parents and children were asked to fill the PedsQL (Pediatric Quality of life Inventory)version 4.0 questionnaire to assess their quality of life.Results There were 59 children in each group. The assessments of four quality of life domains in the thalassemic group vs the control group showed the folloMng: physical function 53.1 vs 71.5 (95% CI -21.41 to -15.26, P􀁍O.OOOI), emotional function 50.9 vs 62.9 (95% CI -16.82 to -7 .41, P􀁍O.OOO 1), social function 62.5 vs 72.8 (95% CI-13.50 to -7.01, P􀁍O.OOOI) and school function 36.2 vs 56.0 (95% CI -22.95 to -16.71, P􀁍O.OOOI). Total scores were 50.9 vs 66.1 (95% CI -18.20to -13.12, P􀁍O.OOOI). School function was the most affected parameter studied, with thalassemic children scoring lower than the control group.Conclusion There were significant decreases in the quality of life parameters in the thalassemic group compared to the control group. Thalassemic children have poorer quality oflife compared to their nonnal siblings, Mth school function being the mostaffected domain. 

Dry Eye Syndrome-Related Quality of Life in Glaucoma Patients

2009 ◽  
Vol 19 (4) ◽  
pp. 572-579 ◽  
Author(s):  
Gemma Caterina Maria Rossi ◽  
Carmine Tinelli ◽  
Gian Maria Pasinetti ◽  
Giovanni Milano ◽  
Paolo Emilio Bianchi
Keyword(s):  
Quality Of Life ◽  
Dry Eye ◽  
Ocular Surface ◽  
Cross Sectional Study ◽  
Dry Eye Syndrome ◽  
Control Group ◽  
Ocular Surface Disease Index ◽  
Symptom Scale ◽  
Cross Sectional

Purpose To verify the presence of dry eye syndrome (DES) in treated patients with glaucoma and to analyze DES's impact on the patients' quality of life (QOL) versus the control group. Methods In this observational cross-sectional study, 61 patients were enrolled at a clinical practice. Patients were divided into three groups by number of glaucoma drops instilled per day (G1=1 drop/day, G2=2 drops/day, G3=3 drops/day). A control group of 20 subjects was also selected (G0). All subjects were submitted to a complete ocular examination (including tear function and ocular surface status) and completed the 25-item National Eye Institute Visual Function Questionnaire (NEI-VFQ), Glaucoma Symptom Scale (GSS) questionnaire, and Ocular Surface Disease Index (OSDI). DES was defined as presence of punctate keratitis and decreased break-up time. Statistical analysis was performed applying the Kruskal-Wallis analysis of variance and Mann-Whitney U tests (to compare median values between groups) as well as the χ2 and Fisher test (to verify significant differences). Results A total of 40% of G3 and 39% of G2 patients presented DES versus 11% of G1 and 5% of G0 (p=0.01). QOL was significantly influenced and altered (NEI-VFQ 25 total mean and GSS total mean and symptoms average: p=0.0085, p=0.006, and p=0.03, respectively). OSDI pointed out differences by group: 26% of G2 and 15% of G3 presented moderate OSDI and 15% of G3 and 8.7% of G2 severe OSDI (p>0.05). Conclusions Patients with topically treated glaucoma present DES more often than a similar control group (p=0.01). The presence of DES negatively influences the patient's QOL. The patients with glaucoma's ocular surface status should be evaluated regularly to ensure the timely detection and treatment of pathologic signs on the ocular surface.

scholarly journals Quality of life in children with cancer and their normal siblings

2015 ◽  
Vol 55 (5) ◽  
pp. 243
Author(s):  
Hilda Hilda ◽  
Bidasari Lubis ◽  
Hakimi Hakimi ◽  
Olga Rasiyanti Siregar
Keyword(s):  
Quality Of Life ◽  
Hematologic Malignancy ◽  
Control Group ◽  
Case Group ◽  
Solid Cancer ◽  
Children With Cancer ◽  
Significant Difference ◽  
Pedsql 4.0 ◽  
School Function

Background Cancer treatment in children influences the quality of life of patients and their families. The Pediatric Quality of Life (PedsQL) inventory is a questionnaire to assess quality of life of the healthy and ill children. Objective To compare quality of life in children with cancer and their normal siblings, and to compare quality of life in those with hematologic malignancies to those with solid tumors. Methods A cross-sectional study was conducted among 5-to-18- year-olds at the Hematology-Oncology Division at Haji Adam Malik Hospital, Medan, North Sumatera, from May to July 2012. The case group (subjects with cancer) filled the PedsQL 3.0 and 4.0 questionnaires, while the control group (normal siblings) filled only the PedsQL 4.0 questionnaire. Independent T-test was used to compare the quality of life between children with cancer and their normal siblings. Results There were 46 children in each group. The PedsQL 4.0 results in children with cancer and their normal siblings, and PedsQL 3.0 between hematology malignant and solid cancer were as follows: physical function 36.9 vs. 80.7, respectively (95%CI of differences -52.639 to -34.990; P= 0.0001), emotional function 40.4 vs. 69.3, respectively (95%CI of differences -35.912 to -21.914; P=0.0001), social function 71.5 vs. 93.9, respectively (95%CI of differences - 29.238 to -15.587; P=0.0001), school function 20.7 vs. 74.2, respectively (95%CI of differences - 62.124 to -44.832; P=0.0001), and total score 42.1 vs. 79.3, respectively (95%CI of differences - 43.066 to -31.344; P=0.0001). School function was the most affected parameter in children with cancer compared to their normal siblings. Conclusion There is a significant difference in quality of life between children with cancer and their normal siblings, for all four parameters examined by the PedsQL inventory. However, there are no significant differences in quality of life between children with hematologic malignancy and those with solid cancer.

scholarly journals Quality of Life and Patient Satisfaction after Endodontic Treatment Performed in Three Hospitals in Jeddah, kingdom of Saudi Arabia

2021 ◽  
pp. 84-96
Author(s):  
Ragab Eid Saif Hassan ◽  
Abdulrahman waseem hamid Alhamid ◽  
Abdullah Abdlilwahid Abdullah Alshuaybi ◽  
Abdulaziz Osama Asaad Hamadallah
Keyword(s):  
Quality Of Life ◽  
Saudi Arabia ◽  
Cross Sectional Study ◽  
Endodontic Treatment ◽  
Life Assessment ◽  
Total Degree ◽  
Cross Sectional ◽  
Related Quality ◽  
High Level

Aims: To evaluate the quality of life of patients after endodontic treatment, and their satisfaction toward the endodontic treatment in Jeddah, Saudi Arabia. Methodology: A cross sectional study, was conducted on 300 patients who underwent endodontic treatment from 6 months to a week ago. The study was performed using a self-administered questionnaire. The collected data were analyzed using statistical analysis software SPSS v.26. Results: In the OHRQoL items, the total degree of the oral health-related quality of life assessment was medium with (M = 2.72 out of 5, RII = 54.4%, SD = 0.67), the most affected was "Feeling an excruciating pain in the mouth" with (M = 3.37 out of 5, RII = 67.4%, SD = 0.77), while the least was  " Feeling irritable with others because of the teeth or mouth" with (M = 2.32 out of 5, RII = 46.4%, SD = 1.35). The total degree of the personal satisfaction assessment was high with (M = 3.78 out of 5, RII = 75.6%, SD = 0.67). "Postoperative Pleasantness" was the most satisfied part with (M = 3.86 out of 5, RII = 77.3%, SD = 0.87). Conclusion: This study showed a moderate level of OHRQoL among patients after the endodontic treatment, and a high level of satisfaction among patients toward the endodontic treatment.

scholarly journals Fibromyalgia Is Common and Adversely Affects Pain and Fatigue Perception in North Indian Patients with Rheumatoid Arthritis

2009 ◽  
Vol 36 (11) ◽  
pp. 2443-2448 ◽  
Author(s):  
VARUN DHIR ◽  
ABLE LAWRENCE ◽  
AMITA AGGARWAL ◽  
RAMNATH MISRA
Keyword(s):  
Quality Of Life ◽  
Rheumatoid Arthritis ◽  
Disease Activity ◽  
Functional Disability ◽  
Health Assessment ◽  
Cross Sectional Study ◽  
Cross Sectional ◽  
The North ◽  
Indian Patients

Objectives.Fibromyalgia (FM) has been shown to be common in patients with rheumatoid arthritis (RA), but studies on Asian patients are lacking. It remains unclear whether FM has an adverse influence on pain, fatigue, quality of life, and mood in these patients, and what its relationship is with disease activity. We studied prevalence and effects of FM in North Indian patients with RA and associations of RA with disease activity.Methods.This cross-sectional study included 200 RA patients and an equal number of controls. Presence of FM was defined using the American College of Rheumatology 1990 criteria. Pain and fatigue scores were assessed using a 10 cm visual analog scale. Quality of life and presence of depression/anxiety were determined using validated questionnaires. Disease activity and functional disability in RA patients was assessed using the Disease Activity Score 28-3 and Health Assessment Questionnaire, respectively.Results.FM was present in 15% of patients with RA compared to 2.5% of controls in the North Indian population. RA patients with FM did not differ from those without FM in terms of age, gender, current disease-modifying agents, or steroid use. RA patients with FM had higher disease activity and worse functional disability. The number of tender and swollen joints was higher in patients with FM, but correlated poorly with each other. RA patients with FM had higher pain and fatigue scores but were not different in the quality of life or mood.Conclusion.FM is more common in North Indian patients with RA compared to controls. It adversely affects the pain and fatigue felt by RA patients. Disease activity and FM influence each other.

Quality of life assessment in retinoblastoma: A cross-sectional study of 122 survivors.

2015 ◽  
Vol 33 (15_suppl) ◽  
pp. 10068-10068
Author(s):  
Atul Batra ◽  
Mamta Kumari ◽  
Reeja Paul ◽  
Deepa Dhawan ◽  
Sameer Bakhshi
Keyword(s):  
Quality Of Life ◽  
Cross Sectional Study ◽  
Life Assessment ◽  
Sectional Study ◽  
Quality Of Life Assessment ◽  
Cross Sectional

scholarly journals Stigma and quality of life for patients with facial dystonia: a cross-sectional study

2022 ◽  
Author(s):  
MING YI ◽  
Jing LI ◽  
Gang LIU ◽  
Weixi ZHANG ◽  
Ying WANG ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Short Form ◽  
Cross Sectional Study ◽  
Control Group ◽  
Hamilton Depression Scale ◽  
Sectional Study ◽  
Cross Sectional ◽  
Facial Dystonia

Abstract Background Facial appearance and expressions influence social interaction. However, few studies have reported on the stigma associated with spasms from facial dystonia. This study investigated the stigma and quality of life for these patients. Methods This cross-sectional study included 90 patients with facial dystonia (hemifacial spasm [HFS], blepharospasm [BSP], and blepharospasm-oromandibular dystonia [BOD]; 30 patients per group) and 30 individuals without dystonia (control group) from October 2019 to November 2020. All participants underwent stigma, quality of life, and mental health evaluations using seven questions related to stigma, the 36-item Short Form Health Survey, the 14-item version of the Hamilton Anxiety Scale (HAMA), and the 24-item version of the Hamilton Depression Scale. Results Nineteen patients (21.11%) felt stigmatized. Patients with BPS and HFS had more difficulty finding a job and were more susceptible to discrimination than healthy individuals. The role-physical and social function scores were significantly lower in the dystonia groups than in the control group. The vitality score of the BPS group and the mental health scores in the BPS and BOD groups were significantly less than those of the control group. The HAMA scores in the BPS and BOD groups were significantly higher than in the control group. Regression analysis demonstrated that the disease course influenced depression. Conclusion Enacted stigma from a negative public attitude may be the main factor triggering stigma in patients with facial dystonia, with detrimental effects on psychosocial outcomes, including social rights, quality of life, and mood.

scholarly journals Pain and quality of life of adolescents with primary dysmenorrhea in Tbilisi, Georgia, 2008. Cross sectional study

2013 ◽  
Vol 64 (2) ◽  
pp. 100-106
Author(s):  
Tinatin Gagua ◽  
Tkeshelashvili Besarion ◽  
David Gagua
Keyword(s):  
Quality Of Life ◽  
Psychosocial Health ◽  
Cross Sectional Study ◽  
Control Group ◽  
Primary Dysmenorrhea ◽  
Sectional Study ◽  
Cross Sectional ◽  
Health Related Qol ◽  
Health Related

Objective: The study aimed to measure the effect of primary dysmenorrhea on the quality of life of female adolescents living in Tbilisi, Georgia, and to compare Quality of Life (QoL) with healthy controls.Materials and methods: Cross-sectional study of 424 women aged 14-20, living in Tbilisi, Georgia, coming from academic and research institutions. The women were divided into those suffering dysmenorrhea (exposure group) and those without pain (control group). Reproductive history, demographic features, menstrual pattern, severity of dysmenorrhea and quality of life using the generic instrument EQ-5D, were measured. The Independent T student test was used for group comparison.Results: The group with dysmenorrhea (276) showed a lower Quality of Life score of 0.69 ± 0.20 vs. 0.94 ± 0.10 in the control group (p = 0.000); the Quality of Life VAS was also lower at 74.38 ± 17.83 vs. 87.02 ± 12.03 (p = 0.000). Of the subjetcs with primary dismenorrhea, 56.6% reported school absenteeism due to pain.Conclusion: Primary dysmenorrhea is a common problem in the adolescent population of Tbilisi, Georgia. The results of this study demonstrate that adolescents with primary dysmenorrhea in Georgia experience significantly lower physical and psychosocial health-related QoL than their healthy peers.

P.07.26 QUALITY OF LIFE ASSESSMENT IN ULCERATIVE COLITIS OUTPATIENTS: A CROSS SECTIONAL STUDY

2018 ◽  
Vol 50 (2) ◽  
pp. e204
Author(s):  
C. Marinelli ◽  
F. Zingone ◽  
M. Inferrera ◽  
G. Lorenzon ◽  
A. Rigo ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Ulcerative Colitis ◽  
Cross Sectional Study ◽  
Life Assessment ◽  
Sectional Study ◽  
Quality Of Life Assessment ◽  
Cross Sectional
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