scholarly journals Childhood Cancer: Meanings Attributed to the Disease by Parent Caregivers

2013 ◽  
Vol 23 (55) ◽  
pp. 253-261 ◽  
Author(s):  
Alberto Manuel Quintana ◽  
Shana Hastenpflug Wottrich ◽  
Valeri Pereira Camargo ◽  
Evandro de Quadros Cherer

This study aimed to comprehend the meanings that parents/caregivers of children and adolescents diagnosed with cancer attribute to their child’s disease. It is a qualitative, exploratory/descriptive study. Data were collected through group discussions and individual interviews with the parents/caregivers of children/adolescents and categorized using content analysis. The impressions of the researchers were recorded in a field diary, contributing to the data analysis. The results indicate that the disease and treatment involve periods of psychological suffering that affect the family structure. Cancer was reported as a real enemy to be fought through coping or avoidance, which generates expectations about the future and causes feelings of fear, as well as hope. It was concluded that the childhood cancer causes repercussions in the family relationships, the recognition of which can contribute to both the preparation of professional teams who work with this population, as well as the public health policies developed.

2021 ◽  
pp. 29-64
Author(s):  
Sultan Salah Uddin ◽  
Alison Dundon ◽  
Most Aeysha Sultana

The empowerment of women has been a primary goal of microcredit programs in Bangladesh: but what empowerment is, or „should be‟, is contested terrain, as are causal relationships drawn between the implementation of microfinance and the empowerment of women. This paper explores the connection between microcredit and empowerment through analyzing data of a qualitative study. In this study data were collected from 98 adults (male=30; female=68) with age ranged from 18 to 56 years, through individual interviews, focus group discussions and participant observation for six months period of field work in three villages in Bogura, Bangladesh. The study elicited understandings of empowerment from women engaged in microcredit programs, as well as other members of their households. In the paper, we argue that exploring local contexts for, and meanings of, empowerment is crucial for assessing the criteria on which the success (or failure) of microcredit or empowerment is determined. We suggest that more sustained engagement with the local-level experience of empowerment may challenge assumptions about aims and objectives of empowering processes in development, and stand as a corrective to models of the empowered woman that may not acknowledge the extent to which empowerment is framed in, and by, social and relational dynamics and goals. Philosophy and Progress, Vol#63-64-; No#1-2; Jan-Dec 2018 P 29-64


Author(s):  
Idasugiarti ◽  
Arief Tarmansyah Iman ◽  
Fadil Ahmad Junaedi

Management of medical records and health information is one of the elements in the assessment of Public Health Center accreditation. Medical records play an important role in collecting accurate and comprehensive data for targeted health policies. The most appropriate management of medical records at the Public Health Center is the regional storage system or often referred to as the family folder system. Community service activities at the Cibeureum Health Center are carried out using consultation, training, and mentoring methods. Compiled 10 quality documents and the implementation of the e-family folder in stages. Furthermore, continuous data migration was carried out assisted by RMIK students. Activities carried out well.


2019 ◽  
Vol 23 (2) ◽  
Author(s):  
Flávia Maria Derhun ◽  
Giovana Aparecida de Souza Scolari ◽  
Vivian Carla de Castro ◽  
Maria Aparecida Salci ◽  
Vanessa Denardi Antoniassi Baldissera ◽  
...  

ABSTRACT Objective: To know the perception of relatives of elderly people about the coexistence center and its importance in supporting the Health Care Network. Methodology: A qualitative study carried out with 14 relatives of elderly people participating in a coexistence center. Data collection took place in January 2016 through individual interviews, which were recorded, transcribed and submitted to content analysis. The results were discussed in the light of the theoretical referential of health promotion. Results: The elderly's participation in the coexistence center was an alternative to support care and institutionalization, provided time for self-care and to maintain or engage in the formal labor market and positively influenced the family relationships. Conclusion: The coexistence center was set up as a health promotion institution, being jointly responsible for the care of the elderly with the Health Care Network and the families.


2020 ◽  
Vol 16 (4) ◽  
pp. 356-368
Author(s):  
Nadaraj Govender ◽  
Godfrey Mutendera

Indigenous Knowledge is largely neglected in the primary school curriculum, yet it espouses the history, art, nature, and traditions of the community from which students come. This study explores the views of six custodians and six teachers on the integration of Indigenous Knowledge in the primary school curriculum in Zimbabwe. Indigenous standpoint theory and participatory research methodology framed the study. Data were generated through focus group discussions with Indigenous Knowledge custodians through individual interviews with teachers. The custodians’ views confirmed that Indigenous Knowledge was significant to their identities, but they were concerned with the loss of their culture due to modernization. Most teachers acknowledged the wisdom of Indigenous Knowledge custodians, welcomed their contributions, but some teachers were sceptical about custodians teaching formally in the classrooms. Several dilemmas arose from the views of participants, which have implication for the integration of Indigenous Knowledge in primary schools.


2009 ◽  
Vol 3 (2) ◽  
pp. 317
Author(s):  
Alessandra Conceição Leite Funchal Camacho ◽  
Maria José Coelho

ABSTRACTObjective: to examine the public health policies of the elderly in the references of the main databases from 2004 to 2008. Method: study of systematic review of literature conducted on databases of the Library of Health, in September 2008. For information analysis was organized the content found on the year, publication type and methods/techniques, content and essence of the production of knowledge, database, the authors' recommendations. Results: the references that were analyzed 26 and 10 in the database SCIELO, one in the BDENF and 15 in the LILACS. Conclusion: we observed an increase in publications dealing with professionals in health operationalized the public health policies of the elderly as the main recommendations bringing the development of public policies that take into account the specifics of the elderly, facilitating their access and that could reduce inequality. Mention the importance of visibility of the aging process and adequacy of public policies aimed at expansion of the strategies that have the caregiver as the leading subject. Descriptors: health public policy; aged; nursing.RESUMOObjetivo: analisar as políticas públicas de saúde do idoso nas referências das principais bases de dados de 2004 a 2008. Método: estudo de revisão de literatura sistemática realizada nas bases de dados da Biblioteca Virtual da Saúde, em setembro de 2008. Para análise das informações foi realizada a organização do conteúdo encontrado quanto ao ano, tipo de publicação e métodos/técnicas, essência do conteúdo e produção do conhecimento, base de dados, recomendações dos autores. Resultados: as referências analisadas foram 26 sendo 10 na base de dados SCIELO, uma na BDENF e 15 na LILACS. Conclusão: Verificamos um aumento de publicações que tratam de profissionais na área da saúde operacionalizando as políticas públicas de saúde do idoso trazendo como principais recomendações o desenvolvimento de políticas públicas que levem em conta as especificidades do idoso, facilitando o seu acesso e que possam reduzir desigualdades. Referem a relevância da visibilidade do processo de envelhecimento e adequação das políticas públicas visando à ampliação de estratégias que tenham o cuidador como sujeito principal. Descritores: políticas públicas de saúde; idoso; enfermagem.RESUMENObjetivo: analizar las políticas de salud pública a los ancianos en las referencias de las principales bases de datos de 2004 a 2008. Método: estudio de revisión sistemática de literatura sobre las bases de datos de la Biblioteca de la Salud, en setiembre de 2008. Resultados: las referencias que se analizaron fueron 26, tenendo 10 en la base de datos SCIELO, 01 referencia en la BDENF y 15 en el LILACS. Conclusión: se observó un aumento de publicaciones relacionadas a los profesionales de la salud en la práctica las políticas de salud pública de los ancianos con principales recomendaciones sobre el desarrollo de políticas públicas que tengan en cuenta las características específicas de los ancianos, facilitando su acceso y que podrían reducir la desigualdad. Mencionan la importancia de la visibilidad del proceso de envejecimiento y la adecuación de las políticas públicas con la ampliación de estrategias que tienen el cuidador como principal sujeto. Descriptores: políticas públicas de salud; ancianos; enfermería.


2018 ◽  
Vol 76 (1) ◽  
pp. 13-21 ◽  
Author(s):  
Vivian Dias Baptista Gagliardi ◽  
Marcel Simis ◽  
Hideraldo Luiz Souza Cabeça ◽  
Rubens José Gagliardi

ABSTRACT Stroke is currently the second leading cause of death in Brazil. Neurologists’ reports on the absence of adequate resources for stroke care are frequent; however, there are no objective data on this perception. Objective To assess the perception of neurologists of stroke care conditions in Brazil. Methods Neurologists from all over Brazil were surveyed by means of an anonymous questionnaire about the main shortcomings in stroke care, focusing particularly on physical structure and infrastructure (diagnostic methods, patient transport, availability of beds, multi-professional team). Results The main shortcomings are indicated: the worst conditions, among all items surveyed, were found in the public sector. In the private sector, conditions were better. Conclusions Care conditions are worse in the public sector with regard to both infrastructure and human resources. Future public health policies for the prevention and treatment of stroke should be formulated, taking into consideration neurologists’ perceptions.


2020 ◽  
Vol 13 (5) ◽  
pp. 219-252
Author(s):  
A. Zhebit

The article is focused on the problem of human rights (HRs), limited or derogated from, due to the Covid-19 pandemic. While addressing some HRs limitations, derogations and even abuses, and their consequent problems, the aim is to try to analyze policy, social, moral and personal dilemmas of HRs restrictions as well as motivations behind the types of public and social behavior, in the course of the pandemic, in response to the public measures of sanitation, social distancing and confinement, travel restrictions and social assistance, recommended by the WHO and selectively followed by governments. Learning from some old experience and deriving new lessons from the pandemic, as well as from public and social actions and reactions, the purpose of the present article is to assess whether or not public health policies in this context, implemented nationally or internationally, can promote change in the HRs paradigm in the face of the existing dilemmas and dichotomies in HRs, aggravated by the pandemic. The conclusion is that the extant HRs paradigm should be redefined to address better the political, social, economic, environmental and, especially, existential exigencies of “rainy times”, thus leading to the creation of a new universal HRs code or to harmonizing the existing one.


2016 ◽  
Vol 5 (1) ◽  
Author(s):  
Lieketseng Ned ◽  
Theresa Lorenzo

Background: The capacity of service providers in the public sector to deliver inclusive services is essential to implement strategies that will allow the full participation of disabled youth in development opportunities in the rural context. Objective: The article sets to describe the capacity of service providers in facilitating participation of disabled youth in economic development opportunities. Method: An instrumental, embedded single case study informed the research design. The sample consisted of five disabled youth, four family members as well as six service providers. Data was gathered through in-depth individual interviews and focus group discussions. Data analysis was done inductively and thematically. In the discussion, the interpretation used organisational capacity elements as a framework. Findings: The theme on service providers indicates their understanding of disability as still a multifaceted and a challenging issue with different orientations to service delivery based on understanding of impairment and disability. There is a dominant focus on impairment and negative attitudes. Discussion: An asset building approach could facilitate awareness of capacities of disabled youth and thus shift negative attitudes to an enabling attitude. The vague strategies for youth and women that are described as inclusive are a misrepresentation of the reality of experiences of disabled youth. Conclusion: An appreciative process of facilitating a holistic understanding of the needs of disabled people is needed to assist service providers to reconceptualise disability within an expansive framework.


2014 ◽  
Vol 48 (3) ◽  
pp. 394-400 ◽  
Author(s):  
Leila Luiza Conceição Gonçalves ◽  
Gabriela Lima Travassos ◽  
Ana Maria de Almeida ◽  
Alzira Maria D’Ávila Nery Guimarães ◽  
Cristiane Franca Lisboa Gois

Identifying the barriers in the access to health care to breast cancer perceived by women undergoing chemotherapy.Method: An exploratory descriptive study. The sample consisted of 58 women with breast cancer receiving chemotherapy and registered in the public oncology ambulatory of Aracaju-Sergipe. Data collection was carried out between October 2011 and March 2012 by semistructured interviews, and data were processed using the SPSS, version 17.Results: Among the interviewed women, 37 (63.8%) reported at least a barrier in the trajectory of care for breast cancer. The organizational and health services barriers were the most reported in the periods of investigation and treatment of breast cancer.Conclusion: In face of these findings, the barriers should be considered in public health policies and programs for the control of breast cancer in Sergipe.




2008 ◽  
Vol 16 (5) ◽  
pp. 871-876 ◽  
Author(s):  
Rosana dos Santos Costa ◽  
Lidya Tolstenko Nogueira

Hypertension is related to the incidence of cardiovascular diseases. Family support is essential for the patient to control the disease. This study aimed to analyze whether the family positively contributes to the patient's control of the disease. The research was carried out in 2005 in Teresina, PI, Brazil and involved people who were enrolled in the Hypertension Program of an Integrated Health Center. Data were collected through individual interviews, using the Critical Incident Technique. After the content analysis, the element Consequence was identified in 146 references, 58 positive and 88 negative, composing four categories: Family, Financial, Health and Emotional Aspects. Difficulties in family relationships, patients' concern with their descendants, and the families' little involvement in the patients' care were identified through the reports.


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