scholarly journals What Does it Mean to Live with Thalassemia? An Interpretative Phenomenological Inquiry

2020 ◽  
Vol 7 (1) ◽  
pp. 61
Author(s):  
Veeresh Pavate ◽  
Richard Hovey
Keyword(s):  
Lived Experience ◽  
Healthy Lifestyle ◽  
Clinical Care ◽  
Signs And Symptoms ◽  
Medical Personnel ◽  
Chronic Fatigue ◽  
The Body ◽  
Patient Centered ◽  
Phenomenological Inquiry ◽  
Social Challenges

Living with Thalassemia, means that the body is unable to produce normal levels of hemoglobin to carry oxygen throughout the body. Without sufficient levels of hemoglobin (due to inefficiency of bone-marrow to produce normal red blood cells), one can experience signs and symptoms, such as severe anemia, chronic fatigue and other serious health concerns. My interest in this topic is because, I live with this condition, but, also interested in the lived experience of the Thalassemia community. My research is a phenomenological exploration through interpretation of research participants’ narratives. The overarching goal of the proposed research is to investigate the contribution to the medical personnel who may use the findings from the study to improve the clinical care from not only from patient centered, but also from a whole person care perspective. There are various clinical and psycho-social challenges such as, academics, career, and family / friend relationship issues. Families address the treatment issues of Thalassemia on a continuum Extreme Drive - No Drive to improve their lives. Thalassemia was seen as a “fatal condition,” today it is a “manageable condition,” therefore, we need to learn, how best to thrive to lead a healthy lifestyle? Through this research I am hoping to share my story and with others to inspire people living with Thalassemia, to go beyond managing towards thriving.

scholarly journals The influence of fitness-aerobics classes on the indicators of psychomotor abilities of female students of pedagogical higher educational institutions

2020 ◽  
pp. 71-74
Author(s):  
I. Zenina ◽  
N. Kuzmenko ◽  
N. Gavrilova
Keyword(s):  
Physical Education ◽  
Healthy Lifestyle ◽  
Modern Society ◽  
Chronic Fatigue ◽  
Female Students ◽  
The Body ◽  
Educational Institutions ◽  
Physical Culture ◽  
Higher Educational Institutions ◽  
Higher Educational

The article reveals the influence of fitness aerobics classes on the indicators of psychomotor abilities of female students of pedagogical higher educational institutions. Reasonably positive aspects of the influence of aerobics on the body. Taking into account that sport today has entered the life of society and has a massive character, it is urgent to study and analyze its impact on a person. Socio-economic living conditions of modern society are characterized by a significant increase in health requirements for future professionals, their preparedness for future professional activities and a high pace of life. Along with this, high information and emotional loads and at the same time a low level of culture of a healthy lifestyle - the inability to effectively organize their work and leisure, independent physical education and sports, many hours in front of computer screens and - cause syndromes "early and chronic fatigue "and reduce the motor potential of students. Attempts to solve the problem of improving the physical education of student youth have been made by many scientists, specialists and teachers. Scientists emphasize the need to change the practice of physical education of student youth by creating conditions for students to freely choose the content of physical education classes. One of the essential features of the subject "Physical Culture" in comparison with other disciplines: physics, mathematics, biology, and others. is that learners can achieve the ultimate goal of its study: a high level of physical culture.

scholarly journals PATIENT-CENTERED COMPREHENSIVE APPROACH IN COMBINED PATHOLOGY MANAGEMENT: ASTHMA / COPD CROSS

2021 ◽  
Vol 21 (1) ◽  
pp. 49-55
Author(s):  
M.M. Potyazhenko ◽  
T.V. Nastroga ◽  
N.L. Sokolyuk ◽  
O.E. Kitura ◽  
I.M. Horodnytska
Keyword(s):  
Healthy Lifestyle ◽  
Well Being ◽  
The Body ◽  
Chronic Obstructive ◽  
Physical Endurance ◽  
External Respiration ◽  
Patient Centered ◽  
Asthma Control Questionnaire ◽  
Obstructive Pulmonary Disease ◽  
Long Acting

Introduction. Bronchial asthma and chronic obstructive pulmonary disease are serious social, epidemiological and medical health problems worldwide. The purpose of the study is to determine the main risk factors of asthma / COPD cross exacerbations in order to develop patient-centred management. Materials and methods. The study included 35 patients with asthma / COPD cross, and 35 healthy individuals. To quantify their well-being, the patients were asked to complete questionnaires: Asthma Control Questionnaire, Modified Medical Research Council Breathing Scale; to determine the level of reactive and personal anxiety, we used the questionnaire of Ch. D. Spielberger – Yu.M. Hanin. The analysis of integral indicators of the function of external respiration, including the test with bronchodilators was carried out. Medical lifestyle assessment of each patient with asthma / COPD cross was conducted by using the questionnaire of A. Nosov "Formation of components of a healthy lifestyle." Bioimpedance analysis of body composition was carried out as well. On the basis of the disturbances revealed in the behaviour of patients with asthma / COPD cross, and on the observance of lifestyle modes, we elaborated improved patient-centred approach to select the most appropriate algorithm of actions and personal behaviour to each patient. Conclusions. The integrated therapeutic measures developed for the patients with asthma / COPD and burden medical history should include in addition to the standard therapy (inhaled glucocorticosteroids, long-acting β2-agonists and / or long-acting muscarinic receptor antagonists) customized rehabilitation methods (therapeutic gymnastics according to Buteyko, hardening of the body, dietary modifications, mandatory smoking cessation) that promotes the stabilization and regression of symptoms, the increase in lung functioning, physical endurance, and improves patient’s quality of life.

MEDICAL SAVINGS ACCOUNTS AS A TOOL FOR INCREASING DOCTORS ' SALARIES AND MOTIVATING RUSSIAN CITIZENS TO HIGH-PERFORMANCE WORK AND A HEALTHY LIFESTYLE

2020 ◽  
Vol 2 (7) ◽  
pp. 24-31
Author(s):  
E. V. SOKOLOV ◽  
◽  
E. V. KOSTYRIN ◽  
Keyword(s):  
Labor Productivity ◽  
Russian Federation ◽  
High Performance ◽  
Healthy Lifestyle ◽  
Medical Personnel ◽  
Increase Labor Productivity ◽  
Healthcare Financing ◽  
Savings Accounts ◽  
Medical Savings Accounts ◽  
The Russian Federation

The article proves that it is impossible to achieve a significant increase in the salary of medical personnel within the existing system of healthcare financing of the Russian Federation, namely, in accordance with the “may” Decrees of 2012 by V. V. Putin, to bring the salary of doctors to a level twice higher than the average for the region by 2018. It is proved that to achieve the necessary results in terms of increasing doctors’ salaries and motivating citizens to increase labor productivity and a healthy lifestyle, it is necessary to transfer the system of healthcare financing within the framework of obligatory medical insurance to medical savings accounts.

Patient-Centered Care and Autonomy: Shared Decision-Making in Practice and a Suggestion for Practical Application in the Critically Ill

2019 ◽  
Vol 35 (11) ◽  
pp. 1352-1355
Author(s):  
Marianna V. Mapes ◽  
Peter A. DePergola ◽  
William T. McGee
Keyword(s):  
Decision Making ◽  
Palliative Care ◽  
Critically Ill ◽  
Care Service ◽  
Clinical Care ◽  
Patient Centered Care ◽  
Practical Application ◽  
Patient Centeredness ◽  
Patient Centered ◽  
Centered Care

Decision-making for the hospitalized dying and critically ill is often characterized by an understanding of autonomy that leads to clinical care and outcomes that are antithetical to patients’ preferences around suffering and quality of life. A better understanding of autonomy will facilitate the ultimate goal of a patient-centered approach and ensure compassionate, high-quality care that respects our patients’ values. We reviewed the medical literature and our experiences through the ethics service, palliative care service, and critical care service of a large community teaching hospital. The cumulative experience of a senior intensivist was filtered through the lens of a medical ethicist and the palliative care team. The practical application of patient-centered care was discerned from these interactions. We determined that a clearer understanding of patient-centeredness would improve the experience and outcomes of care for our patients as well as our adherence to ethical practice. The practical applications of autonomy and patient-centered care were evaluated by the authors through clinical interactions on the wards to ascertain problems in understanding their meaning. Clarification of autonomy and patient-centeredness is provided using specific examples to enhance understanding and application of these principles in patient-centered care.

scholarly journals Innovative Strategies to Facilitate Patient-Centered Research in Multiple Chronic Conditions

2021 ◽  
Vol 10 (10) ◽  
pp. 2112
Author(s):  
Tullika Garg ◽  
Courtney A. Polenick ◽  
Nancy Schoenborn ◽  
Jane Jih ◽  
Alexandra Hajduk ◽  
...  
Keyword(s):  
Chronic Conditions ◽  
Clinical Care ◽  
Intervention Development ◽  
Healthcare Services ◽  
Multiple Chronic Conditions ◽  
Patient Centered ◽  
Older Americans ◽  
Innovative Strategies ◽  
Department Of Health ◽  
Innovative Methods

Multiple chronic conditions (MCC) are one of today’s most pressing healthcare concerns, affecting 25% of all Americans and 75% of older Americans. Clinical care for individuals with MCC is often complex, condition-centric, and poorly coordinated across multiple specialties and healthcare services. There is an urgent need for innovative patient-centered research and intervention development to address the unique needs of the growing population of individuals with MCC. In this commentary, we describe innovative methods and strategies to conduct patient-centered MCC research guided by the goals and objectives in the Department of Health and Human Services MCC Strategic Framework. We describe methods to (1) increase the external validity of trials for individuals with MCC; (2) study MCC epidemiology; (3) engage clinicians, communities, and patients into MCC research; and (4) address health equity to eliminate disparities.

Suicide Loss Survivors: Navigating Social Stigma and Threats to Social Bonds

2021 ◽  
pp. 003022282110265
Author(s):  
Dorothy M. Goulah-Pabst
Keyword(s):  
Social Stigma ◽  
Qualitative Interviews ◽  
Healing Process ◽  
Personal Narratives ◽  
The Body ◽  
Social Solidarity ◽  
Sociological Study ◽  
Social Challenges ◽  
The Social ◽  
The Impact

The complicated grief experienced by suicide loss survivors leads to feelings of abandonment, rejection, intense self-blame, and depression. Stigma surrounding suicide further burdens survivors who can experience rejection by their community and social networks. Research in the field of psychology has delved into the grieving process of suicide loss survivors, however the effects of suicide require more sociological study to fully understand and support the impact of the suicidal bereavement process on the social interactions and relationships of those left behind after death. This study aims to contribute to the body of research exploring the social challenges faced after the suicide of a loved one. Based on the analysis of powerful personal narratives through qualitative interviews shared by 14 suicide loss survivors this study explores the social construction of the grieving and healing process for suicide loss survivors. Recognizing that the most reliable relief is in commiseration with like experienced people, this research points to the support group as a builder of social solidarity. The alienation caused by the shame and stigma of suicide loss can be reversed by the feelings of attachment to the group that listens, understands and accepts. Groups created by and for suicide loss survivors should be considered a necessary tool to be used toward healing those who suffer from loss by suicide.

scholarly journals Psychosis Without Meaning: Creating Modern Clinical Psychiatry, 1950 to 1980

2021 ◽  
Author(s):  
Joel T. Braslow
Keyword(s):  
Clinical Psychiatry ◽  
Life Histories ◽  
Psychotic Disorders ◽  
Clinical Care ◽  
Signs And Symptoms ◽  
Primary Treatment ◽  
Social Contexts ◽  
Clinical Practices ◽  
State Hospitals ◽  
1960S And 1970S

AbstractOver the last fifty years, American psychiatrists have embraced psychotropic drugs as their primary treatment intervention. This has especially been the case in their treatment of patients suffering from psychotic disorders such as schizophrenia. This focus has led to an increasing disregard for patients’ subjective lived-experiences, life histories, and social contexts. This transformation of American psychiatry occurred abruptly beginning in the late 1960s and 1970s. My essay looks the ways these major transformations played themselves out in everyday clinical practices of state hospital psychiatrists from 1950 to 1980. Using clinical case records from California state hospitals, I chronicle the ways institutional and ideological forces shaped the clinical care of patients with psychotic disorders. I show there was an abrupt rupture in the late 1960s, where psychiatrists’ concerns about the subjective and social were replaced by a clinical vision focused on a narrow set of drug-responsive signs and symptoms. Major political, economic, and ideological shifts occurred in American life and social policy that provided the context for this increasingly pharmacocentric clinical psychiatry, a clinical perspective that has largely blinded psychiatrists to their patients’ social and psychological suffering.

scholarly journals The role of a clinician amid the rise of mobile health technology

2019 ◽  
Vol 26 (11) ◽  
pp. 1385-1388 ◽  
Author(s):  
William E Yang ◽  
Lochan M Shah ◽  
Erin M Spaulding ◽  
Jane Wang ◽  
Helen Xun ◽  
...  
Keyword(s):  
Mobile Health ◽  
Healthy Lifestyle ◽  
Clinical Care ◽  
Critical Role ◽  
Lifestyle Changes ◽  
Mhealth Intervention ◽  
Early Results ◽  
Modification Technique ◽  
Behavior Modification Technique

Abstract Mobile health (mHealth) interventions have demonstrated promise in improving outcomes by motivating patients to adopt and maintain healthy lifestyle changes as well as improve adherence to guideline-directed medical therapy. Early results combining behavioral economic strategies with mHealth delivery have demonstrated mixed results. In reviewing these studies, we propose that the success of a mHealth intervention links more strongly with how well it connects patients back to routine clinical care, rather than its behavior modification technique in isolation. This underscores the critical role of clinician-patient partnerships in the design and delivery of such interventions, while also raising important questions regarding long-term sustainability and scalability. Further exploration of our hypothesis may increase opportunities for multidisciplinary clinical teams to connect with and engage patients using mHealth technologies in unprecedented ways.

TAMI-01. BRAIN METASTASES: CURRENT LITERATURE REVIEW

2021 ◽  
Vol 23 (Supplement_6) ◽  
pp. vi198-vi198
Author(s):  
Ruchi Raval ◽  
Aadi Pandya ◽  
Jaspreet Behl ◽  
Sumul Raval
Keyword(s):  
Literature Review ◽  
Brain Metastases ◽  
Current Literature ◽  
Anticoagulation Therapy ◽  
Signs And Symptoms ◽  
The Body ◽  
Definitive Treatment ◽  
Cognitive Changes ◽  
Cancer Breast ◽  
The Brain

Abstract PURPOSE As more information is gathered about brain metastases, it still remains that the current prognosis of brain metastases is very poor. Due to this, it is imperative that physicians are aware of the most important components regarding brain metastases. This literature review will encompass the most current literature in order to highlight the most crucial information. METHODS All mentioned studies and literature reviews cited in the paper were obtained through various sites, and were published between 1996 and 2017. The main components that were required from the papers reviewed included where in the body the brain metastases originated from, where in the brain they tended to spread to, what the signs and symptoms typical of patients with brain metastases are, and what the options are in terms of treatment. RESULTS Using the results from a variety of studies performed within the past three decades, it is apparent that brain metastases most commonly originate from, in order of increasing frequency, lung cancer, breast cancer, melanoma, and colorectal cancer. In addition, it is reaffirmed that the magnetic resonance imaging (MRI) is the best diagnostic tool to be used when dealing with brain metastases. The most frequent signs and symptoms of a brain metastases include cognitive changes, headaches, weakness, and seizures. Finally, supportive treatment includes use of corticosteroids, antiepileptic drugs (AEDs), and anticoagulation therapy. Definitive treatment for brain metastases varies based on size, location, and prevalence in the brain, but the most effective options include chemotherapy, radiation therapy, and surgery. CONCLUSIONS The study’s results confirm the need for more research to be done regarding brain metastases, and better options to increase the survival of patients.

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