scholarly journals Social stigma in leprosy

2015 ◽  
Vol 5 (2) ◽  
pp. 6-10 ◽  
Author(s):  
S Marahatta ◽  
A Ghimire ◽  
N Jha ◽  
S M Pokhrel ◽  
S Rayamajhi ◽  
...  
Keyword(s):  
Community Education ◽  
Social Stigma ◽  
Family Members ◽  
Control Program ◽  
Well Being ◽  
Structured Interview ◽  
The Social ◽  
The Family ◽  
Male Patients ◽  
Leprosy Control

Leprosy, an infectious disease, is a highly stigmatized disease. It directly affects patients’ physical, psychological, social and economical well-being. To know the stigma faced by the patients in the family and community. The study was carried out at Netherlands Leprosy Relief, Biratnagar, Nepal. Verbal consent was taken from each patient. A total number of 34 patients who were diagnosed to have leprosy were interviewed. Data were collected using structured interview schedule that included questions seeking information about all aspects of objective. Although both men and women faced the social stigma of the disease, women suffered more rejection by the family members (50%), neighborhood (75%) and work places (62.5%) in comparison to male patients, who are affected maximum at work places (39%) and minimum in family (7.69%). Illiterate were avoided by family members (25%) and co-workers (75%) whereas literate were not. All unemployed patients were neglected in community whereas only 21.42% of employed were neglected. Leprosy is a highly stigmatized disease. Patients are neglected by their family and society. Therefore community education component of Leprosy Control Program needs to be strengthened.

scholarly journals Experiences of families involving a parent with progressive deafblindness

2022 ◽  
pp. 026461962110597
Author(s):  
Saskia Damen ◽  
Ilse van Zadelhoff ◽  
Corrie Tijsseling
Keyword(s):  
Peer Support ◽  
Usher Syndrome ◽  
Family Members ◽  
Well Being ◽  
Structured Interview ◽  
Photo Elicitation ◽  
Psychological Consequences ◽  
Entire Family ◽  
The Family ◽  
Open Coding

Usher syndrome is a progressive form of deafblindness, which can have significant psychological consequences. This study aimed to get insight in the perceived impact of Usher syndrome type 2 (USH2) on families with a parent affected by this syndrome, and in the experiences of these families with social, professional, and peer support. Participants were 10 parents with USH2 living in the Netherlands, 10 of their co-parents, and 10 of their children. The parents filled in questionnaires and participated in a semi-structured interview. A photo-elicitation interview and a semi-structured interview were administered to the children. Interviews were transcribed and systematically coded, using thematic and open coding. Parents rated the family’s quality of life in general as satisfactory. Both negative and positive consequences were described of USH2 for the family. Parents without USH2 and their children stated to provide support to the parent with USH2, which was often described as self-evident. Some parents without USH2, however, described their family tasks as a burden. Some parents also reported that psychological problems of the parent with USH2 affected the well-being of other family members. Several parents and some children expressed that the syndrome was hardly discussed within the family. Unfulfilled family support needs were mentioned, a lack of involvement of family members in the professional support, as well as a lack of professional and peer support for children and partners. This study revealed that USH2 in a parent has impact on the entire family. Family-centred approaches are recommended for professionals who support parents with Usher syndrome.

Can Happiness be Created in Rituals?

Paragrana ◽  
2013 ◽  
Vol 22 (1) ◽  
pp. 28-48 ◽  
Author(s):  
Ingrid Kellermann
Keyword(s):  
Family Members ◽  
Well Being ◽  
Cross Cultural ◽  
Cultural Impact ◽  
New Family ◽  
Cultural Research ◽  
Family Constellation ◽  
The Social ◽  
The Family ◽  
Cross Cultural Research

Abstract This article refers to an ethnographical study within the framework of a cross-cultural research project in Germany and Japan. It focuses on the ritual staging and performing of family happiness within two countries: Christmas in Germany and oshogatsu, the turn of the year, in Japan. Happiness is hereby conceived as a particular form of well-being that is (intended) to be evoked during the yearly reunion of the family. Through ritual practice, the family members (re)confirm their family bonds and create their specific idea of family happiness. In the German family outlined below, Christmas Day in Germany happens to be the first Christmas Celebration in the new family constellation for everyone, and the family members are about to perform their future life plan. In Japan, oshogatsu relies on experiences and memories within the particular family constellation which allow an emotional proximity between four generations. The analytical approach reveals the social cultural impact on emotions and their performative and amplifying potential in rituals

Perceived social support and burden of care of male and female caregivers of patient with schizophrenia

2017 ◽  
Vol 8 (1) ◽  
pp. 10
Author(s):  
Narendra Kumar Singh ◽  
Nishant Goyal
Keyword(s):  
Social Support ◽  
Perceived Social Support ◽  
Family Members ◽  
Well Being ◽  
Cross Sectional Study ◽  
Burden Of Care ◽  
Cross Sectional ◽  
Male And Female ◽  
The Social ◽  
The Difference

Background: Schizophrenia is associated with a high familial, social and economic burden. Schizophrenia is also associated with a high level of disability which may create impediments on the social and economic areas of the patients as well as on their respective family networks. Families with schizophrenia may encounter problems such as impairment of health and well being of other family members, restriction of social activities of the family members and shrinking of support from the social network. Aims: The present study examined the difference in perceived social support and burden of care between the male and female caregivers of patients with schizophrenia. Methods: This was a cross-sectional study examining the difference in perceived social support and burden of care between the male and female caregivers of patients with schizophrenia. The sample consisted of 60 (30 male and 30 female) caregivers of the patients with the diagnosis of schizophrenia as per ICD-10-DCR. Results and Conclusion: This study revealed that male caregivers perceived more social support and less burden of care as compared to female caregivers. Key words: Gender, social support, burden

Entanglements between Agency and Vulnerability in the Phenomenon of Birth. Reflections on Children’s Expressions about ‘Being Born’

2020 ◽  
Vol 15 (2-2020) ◽  
pp. 135-146
Author(s):  
Catrin Heite ◽  
Veronika Magyar-Haas
Keyword(s):  
Social Studies ◽  
Social Construction ◽  
Well Being ◽  
Social Contexts ◽  
Living Environment ◽  
Social Actors ◽  
The Social ◽  
The Family ◽  
Cultural Embeddedness

Analogously to the works in the field of new social studies of childhood, this contribution deals with the concept of childhood as a social construction, in which children are considered as social actors in their own living environment, engaged in interpretive reproduction of the social. In this perspective the concept of agency is strongly stressed, and the vulnerability of children is not sufficiently taken into account. But in combining vulnerability and agency lies the possibility to consider the perspective of the subjects in the context of their social, political and cultural embeddedness. In this paper we show that what children say, what is important to them in general and for their well-being, is shaped by the care experiences within the family and by their social contexts. The argumentation for the intertwining of vulnerability and agency is exemplified by the expressions of an interviewed girl about her birth and by reference to philosophical concepts about birth and natality.

Betwixt and Between

2018 ◽  
Author(s):  
Shenique S. Thomas ◽  
Johnna Christian
Keyword(s):  
Sense Of Belonging ◽  
Minority Groups ◽  
Family Members ◽  
Social Processes ◽  
Ethnic Minority Groups ◽  
The Social ◽  
The Family ◽  
Incarcerated Men ◽  
Challenges And Opportunities ◽  
Racial And Ethnic Minority

This chapter draws from a qualitative study of incarcerated men to investigate the social processes and interactions between both correctional authorities and family members that inform their sense of belonging and legitimacy. It reveals that prison visitation rooms present a complex environment in which incarcerated men have access to discreet periods of visibility and relevance to their family members and the broader community. There are, however, several precarious aspects to these processes. The family members who are central to enhancing men’s visibility and legitimacy are primarily women from economically disadvantaged, racial, and ethnic minority groups, resulting in their own marginalization, which is compounded within prison spaces. By illuminating both the challenges and opportunities of familial connections, this chapter informs a social justice framework for understanding the experiences of both incarcerated men and their family members.

Families Living with Mental Illness

2016 ◽  
Vol 4 (1) ◽  
Author(s):  
Aditi Rana
Keyword(s):  
Mental Illness ◽  
Mental Health Professionals ◽  
Mentally Ill ◽  
Family Members ◽  
Primary Caregivers ◽  
Well Being ◽  
Structured Interviews ◽  
Indian Context ◽  
The Family ◽  
Partner Research

Mental illness is a growing reality of our times. Usually in a typical Indian family, the parents act as the primary caregivers for the child suffering from mental disorder. For adult sufferers, it can also be siblings or offspring, and  at times even spouse or partner. Research on the experiences of families of mentally ill people has been minimal in the Indian context. This study aims to shift the focus from the mentally ill patients to the suffering of the caregivers and families of the patient keeping in mind the interconnected well being of the family in a collectivist culture. Following a qualitative approach, narratives have been taken from the family members of mentally ill (narratives of 8 families with mentally ill person) and also the mental health professionals (two) through semi structured interviews. The findings suggest that the family members suffer from a significant amount of stress accompanied by burden. Also, they feel secluded from the society and experience a lack of assistance to deal with the mentally ill member of the family.

The Moderation Role of Being Valued by Teachers Over the Association Between School Children Motivation and Need for Competition

SAGE Open ◽  
2021 ◽  
Vol 11 (3) ◽  
pp. 215824402110441
Author(s):  
Cristina Maria Bostan ◽  
Tudor Stanciu ◽  
Răzvan-Lucian Andronic
Keyword(s):  
School Children ◽  
Social Constructivism ◽  
Social Economic ◽  
Economic Status ◽  
Well Being ◽  
Social Economic Status ◽  
Motivation For Learning ◽  
The Social ◽  
The Family

Concordant with classical theoretical guidelines (i.e., social facilitation, social constructivism theory, and the Pygmalion effect) we tested the need for competition and perception of being valued by teachers to be better motivated for learning in school. We extend knowledge by testing these associations mediated by the social economic status given by the well-being of the family (i.e., controlling for gender and socio-economic status). A total of 214 Romanian students (45.3% boys) with ages between 13 and 17 years were administered the PEER questionnaire (i.e., perception of being valued by teachers, school-children motivation, and the need for competition). Results show a positive relation between the need for competition and motivation for learning. We also found positive relations between the perception of being valued by the teacher and motivation for learning and the need for competition. We conclude that motivation is higher when the need for competition is higher and the perception of being valued by teachers is higher.

scholarly journals A Study of the Understated Violence Within Social Contexts Against Adolescent Girls

2017 ◽  
Vol 8 (2) ◽  
pp. 29-41
Author(s):  
Shivangi Nigam ◽  
Niranjana Soperna
Keyword(s):  
Adolescent Girls ◽  
Rural Areas ◽  
Urban Areas ◽  
Social Issues ◽  
Well Being ◽  
Structured Interview ◽  
Social Contexts ◽  
The Social ◽  
The Difference ◽  
The Individual

Violence against women is linked to their disadvantaged position in the society. It is rooted in unequal power relationships between men and women in society and is a global problem which is not limited to a specific group of women in society. An adolescent girl’s life is often accustomed to the likelihood of violence, and acts of violence exert additional power over girls because the stigma of violence often attaches more to a girl than to the  perpetrator. The experience of violence is distressing at the individual emotional and physical level. The field of research and programmes for adolescent girls has traditionally focused on sexuality, reproductive health, and behaviour, neglecting the broader social issues that underpin adolescent girls’ human rights, overall development, health, and well-being. This paper is an endeavour to address the understated or disguised form of violence which the adolescent girls experience within the social contexts. The parameters exposed under this research had been ignored to a large extent when it comes to studying the dimension of violence under the social domain. Hence, the researchers attempted to explore this camouflaged form of violence and discovered some specific parameters such as: Diminished Self Worth and Esteem, Verbal Abuse, Menstruation Taboo and Social Rigidity, Negligence of Medical and Health Facilities and Complexion- A Prime Parameter for Judging Beauty. The study was conducted in the districts of Haryana (India) where personal interviews were taken from both urban and rural adolescent girls (aged 13 to 19 years) based on  a structured interview schedule. The results revealed that the adolescent girls, both in urban as well as rural areas were quite affected with the above mentioned issues. In urban areas, however, due to the higher literacy rate, which resulted in more rational thinking, the magnitude was comparatively smaller, but the difference was still negligible.  

scholarly journals THE DEVELOPMENT OF SOCIAL BELONGING AND CHANGES IN LIFESTYLE FOR WOMEN IN FITNESS: CASE STUDY

2017 ◽  
Vol 3 ◽  
pp. 334
Author(s):  
Aleksandra Čuprika ◽  
Andra Fernāte ◽  
Leonīds Čupriks
Keyword(s):  
Structural Component ◽  
Healthy Lifestyle ◽  
Well Being ◽  
Structured Interview ◽  
Daily Basis ◽  
Structural Components ◽  
Promotion Programme ◽  
The Social ◽  
Social Belonging

Fitness as a healthy lifestyle implementation helps to improve the social, mental and physical well-being components. Several scientists have indicated that there is a connection between social belonging and physical activity (PA) as the structural component of a healthy lifestyle (Walseth, 2006; Walseth & Fasting, 2004; Antonsich, 2010; Yuval-Davis, 2006; Anthias, 2006; Pinquart & Sorensen, 2001; Everard et. al., 2000). That is why the goal of the research is to develop and apply a social belonging promotion programme for women in fitness programme and to determine the changes in the lifestyle structural component health promoting PA. 10 women involved in fitness classes in small groups (2-4 people) participated in the case study, where in addition to PA social belonging promotion events were organized for all women together. In order to evaluate the structural components of social belonging and PA level and type, questionnaires adapted in Latvia and a semi-structured interview was used. Applying the social belonging promotion programme for women in fitness creates statistically significant changes in such structural components as sense of commitment (p<0.01), perception of interpersonal relations (p<0.01). By additionally promoting social belonging in fitness, women perceive the group better, are willing to spend more time with it; that, in turn, positively affects the willingness to be physically and socially active on a daily basis.

scholarly journals The function of the social networks of families of hospitalized children

2019 ◽  
Vol 23 (4) ◽  
Author(s):  
Rita de Cássia Melão de Morais ◽  
Tania Vignuda de Souza ◽  
Isabel Cristina dos Santos Oliveira ◽  
Juliana Rezende Montenegro Medeiros de Moraes ◽  
Elena Araújo Martinez ◽  
...  
Keyword(s):  
Social Networks ◽  
Social Network ◽  
Family Members ◽  
Main Role ◽  
Hospitalized Children ◽  
Pediatric Hospitalization ◽  
The Social ◽  
The Family ◽  
Main Components

ABSTRACT Objective: To analyze the role of the social network configured by the family/companion and their implications for their stay during the hospitalization of the child in the pediatric hospitalization unit. Method: Qualitative study with ten family members/companions of hospitalized children. Data collection was done through the technique of individual interview, which occurred in the period from February to December 2015. The analysis was thematic, in light of the theoretical reference of "Social Networks" described by Lia Sanicola. Results and discussion: The main role of the social network was emotional and material support, and the main components of this network were: companion, mother, aunt and daughter, as well as nursing team, physician and other family members/companions. Final considerations and implications for the practice: It was verified that the totality of the interviewees was female, however, the husband was the most important member of the social network for the family members involved, since they perform the material/financial and emotional function. In addition, the participants consider that they are responsible for all care to the family and, in the condition in that they are, they understand it as a favor provided by the other members of the network. Identifying the composition of the social networks of family members/companions provides a better targeting of care in order to strengthen the social support received.

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