STUDI FENOMENOLOGI : PENGALAMAN KELUARGA DALAM MERAWAT ANGGOTA KELUARGA YANG MENGALAMI GANGGUAN JIWA

2018 ◽  
Vol 4 (2) ◽  
Author(s):  
Lilik Setiawan
Keyword(s):  
Mental Disorders ◽  
Family Members ◽  
Family Care ◽  
Structured Interview ◽  
Negative Attitudes ◽  
Interview Method ◽  
Client Care ◽  
Work Area ◽  
Depth Interview ◽  
The Family

Current mental disorders have become a global health problem. People with mental disorders may not be able to overcome their own psychological problems. People with mental disorders need support from other people, especially families as people who care for people with mental disorders or also called caregivers. Every family in caring for people with mental disorders will face a different experience between one family and another. Experience will greatly affect how a person perceives something that is felt, the perception that is not only determined by the objective stimulus, but also influenced by the circumstances of the perceptor. The purpose of this study was to find the family experience in caring for family members who experience mental disorders in the Puhjarak Health Center Work Area District of Plemahan, Kediri Regency. The research design was used qualitative research with a phenomenological descriptive approach. Data collection was used in-depth interview method using semi-structured interview guides involving five participants, then analyzed using Colaizzi model data analysis techniques. This study produced seven themes including: Feeling not too important to be treated, Feeling desperate in caring for clients , Performing client care according to ability, Utilizing health facilities, Feeling having heavy responsibilities, Unfavorable economic situation, and Negative attitudes from other family members. In this study, the family has carried out family tasks in the health care even though limited to their ability. During family care, they feel that they have heavy responsibilities and feeling despair because of the very complex problems that family face when taking care. Keywords: Experience, Family, Mental Disorder

scholarly journals Life Experiences of Women (Housewives) Diagnosed Hiv – Aids in Serang

2019 ◽  
Author(s):  
Eka Ernawati ◽  
Siti Yuyun Rahayu ◽  
Titis Kurniawan
Keyword(s):  
Care Service ◽  
Health Care Service ◽  
Family Members ◽  
Hiv Status ◽  
Hiv Diagnosis ◽  
Unique Problem ◽  
Interview Method ◽  
Depth Interview ◽  
The Family ◽  
Experiences Of Women

Background: HIV transmitted to the housewives who are not in sexual high risk behavior affects to the complicated and unique problem. It does not only trigger psychological, physical, social and spirituality problems but also the problem of responsibility to take care of their children and family. Objective: To explore the experiences of housewives infected with HIV in order find the new insights. The findings are expected to be the references in either educational or health care service of HIV patients. Methods: The research is qualitative-and the study design is phenomenological. The data were collected by using in-depth interview method upon 7 HIV-infected women in coastal area of Serang and Rangkasbitung. The data analysis used Colaizzi. Results: The results of the study showed 3 themes, including the unknowing of HIV information, losing a partner and the desire to get married, self-stigmatized and child-discrimination concern, telling the family members regarding the patients’ HIV status and the treatment, and preparing for death. Several experiences of HIV-infected women covered physics, socio-psychology and spirituality. The new themes were discovered, including heredity, unknowing of HIV information before HIV-diagnosis, telling the family members regarding the patients’ HIV status and the treatment, and preparing for death. Conclusion: Therefore, it is important for counselors to provide holistic and complete care in order to develop aprogramorexploringadiscussiontopicofHIV-infected women in counseling program.    

scholarly journals Overview of Family Care Giver Burden in Treating Schizophrenia with Family Members In the Work Area Health District Sutojayan Blitar

2016 ◽  
Vol 3 (2) ◽  
pp. 127-130
Author(s):  
Nawang Wulandari
Keyword(s):  
Caregiver Burden ◽  
Family Members ◽  
Family Care ◽  
Total Sample ◽  
Daily Activities ◽  
Care Giver ◽  
Work Area ◽  
The Family ◽  
Family Caregiver Burden ◽  
Area Health

When someone is diagnosed with positive schizophrenia, there will be changes toward theirlife. Patients who previously have the ability to perform daily activities, in this conditions will alwaysneed help and assistance in fulfilling their life, especially the family members who are in charge in thecaring. Various changes will certainly have impact on the patients themselves and for those aroundthem, especially their family care giver. Care giver are expected to use most of their time to care and toprovide social support for the sake of better conditions. This research aimed to describe the family caregiver burden in the caring of their family members with schizophrenia in Puskesmaas Sutojayan Blitar.The research design used descriptive approah with purposive sampling. The total sample was 24 respondents.The data collectionused questionnaires. The results showed that 10 people (41.7%) of theFamily Care giver experiencing hard burden and average burden in the care of family members withschizophrenia. People should have good understanding and concern so that there would be negativestigma in people with schizophrenia so that the burden of the care giver is not increase because of thesocial burden obtained. When this kind of things were done, it would reduce the risk of relapse in peoplewith scizofrenia

Barriers and Supports in Empowering Parents Care for Children with Cancer

2021 ◽  
Vol 8 (2) ◽  
pp. 145-152
Author(s):  
Dina Rasmita
Keyword(s):  
Parental Attitudes ◽  
Sampling Technique ◽  
Phenomenological Approach ◽  
Structured Interview ◽  
Parent Empowerment ◽  
Children With Cancer ◽  
Interview Method ◽  
Qualitative Research Design ◽  
Parental Characteristics ◽  
Depth Interview

Cancer that occurs in children does not only affect children, but also parents. Parents experience anxiety, stress, fear of losing their children, and helplessness in caring for their children, so that parents are less than optimal in caring for their children. Parent empowerment can increase parents' knowledge, confidence, and ability to care for their children. Previous research found several obstacles to parent empowerment carried out by nurses so that parent empowerment was not optimal in its implementation. Knowing barriers and supports in implementation of parent empowerment in caring for children with cancer can support implementation of parent empowerment to be more optimal. The purpose of this study was to explore barriers and supports in parent empowerment in caring for children with cancer based on the nurse's perception. The design of this study was qualitative research design with a phenomenological approach. The data was collected by in-depth interview method using semi-structured interview guidelines on six nurses who were selected by purposive sampling technique. The data analysis was carried out by thematic analysis with the analysis stage according to Colaizzi. The results of this study were resulted in four themes, namely parental attitudes, parental characteristics, attitudes of nurses, availability of nurses and facilities. This study concluded that implementation of empowering parents to care for children with cancer became more optimal by knowing the barrier and supports in empowering parents care for children with cancer and nurses could make more effective planning in caring for children with cancer.

The influence of individualistic and collectivistic morality on dementia care choices

2018 ◽  
Vol 26 (7-8) ◽  
pp. 2047-2057 ◽  
Author(s):  
Ingrid Hanssen ◽  
Phuong Thai Minh Tran
Keyword(s):  
Research Question ◽  
Family Members ◽  
Family Care ◽  
Dementia Care ◽  
Family Carers ◽  
Severe Dementia ◽  
Professional Help ◽  
The Balkans ◽  
The Family ◽  
Ethical Approval

Background: If collectivistic-oriented family carers choose professional care for dependents with dementia, they risk being stigmatised as failing their obligation. This may influence dementia care choices. Research question: How may individualistic and collectivistic values influence choices in dementia care? Method: Qualitative design with in-depth interviews with a total of 29 nurses, 13 family members in Norway and the Balkans and 3 Norwegian dementia care coordinators. A hermeneutic content-focused analysis was used. Ethical considerations: Ethical approval was obtained from the Regional Ethics Committee for Research, South-Eastern Norway, and the nursing homes’ leadership. Findings: Family domain reasons why institutionalisation of dependents with dementia was seen as a last resort: obligation towards family members, particularly parents; worry about other family members’ reactions and inability to cope with the care for the person with dementia. Social domain reasons: feelings of shame and stigma regarding dementia, particularly in connection with institutionalisation of family members. Discussion: Children’s obligation towards their parents is an important aspect of the morality of collectivistic societies. Institutionalising parents with dementia may cause feelings of guilt and shame and worry about being stigmatised and ostracised. To avoid blame and rejection, caregiver(s) try to keep the fact that family members have dementia ‘in the family’. The decision to accept professional healthcare for dependents with severe dementia or have them admitted to a geriatric institution was postponed as long as possible. Conclusion: Family care morality may constitute a significant barrier against seeking professional help for persons with dementia, a barrier based on the expectation that the family will care for their old, even when suffering from severe dementia. Hence, stigma and shame may significantly affect the provision of care. Culturally tailored information may encourage family carers to seek professional help before the disruptive influence of the disease makes institutionalisation the only feasible option.

Care Plans for Families Affected by Parental Mental Illness

2008 ◽  
Vol 89 (1) ◽  
pp. 39-43 ◽  
Author(s):  
Andrea E. Reupert ◽  
Kirsten T. Green ◽  
Darryl J. Maybery
Keyword(s):  
Mental Illness ◽  
Family Members ◽  
Family Care ◽  
Social Supports ◽  
Parental Mental Illness ◽  
Crisis Plans ◽  
Care Plans ◽  
The Family ◽  
Original Objective

The process of establishing care plans for families affected by parental mental illness is outlined in this article. Based on the feedback of families involved, the original objective of developing crisis plans was broadened to incorporate “care” components. Accordingly, family care plans included planning for possible future crises, such as a parent's hospitalization, as well as long-term goals, for example, education plans for the children. It was found that identifying both crisis and care components enhanced existing social supports within the family and involved pre-negotiating and coordinating agency supports for family members. The general principles and basic components of family care plans are outlined, and the implications for workers' roles conclude the article.

scholarly journals Migrant Caregivers of Older People in Spain: Qualitative Insights into Relatives’ Experiences

2020 ◽  
Vol 17 (8) ◽  
pp. 2953
Author(s):  
María José Morales-Gázquez ◽  
Epifanía Natalia Medina-Artiles ◽  
Remedios López-Liria ◽  
José Manuel Aguilar-Parra ◽  
Rubén Trigueros-Ramos ◽  
...  
Keyword(s):  
Older People ◽  
Family Member ◽  
Culture Shock ◽  
Family Members ◽  
Family Care ◽  
Traditional Structure ◽  
Gradual Process ◽  
The Family ◽  
Phenomenological Design ◽  
Depth Interviews

The traditional structure of families is undergoing profound changes, causing the so-called “crisis of family care.” This study describes the experiences and emotions of the family member who hires migrant caregivers for the older people. This is a qualitative study using a phenomenological design with nine women participants between 53 and 72 years of age. The data collection was carried out through two in-depth interviews and a focus group. There were three major topics: (1) the women in this study recognized that they were not able to take care of the family member directly, due to their responsibilities as female workers and mothers. The fact that migrant caregivers were chosen was conjunctural, where economic reasons were more important. (2) The family members supported the caregivers by teaching them about care and also resolving conflicts produced by culture shock. (3) Trusting the caregiver was a gradual process; the family members felt a complex set of emotions (insecurity, gratitude for the help, moral obligation). In conclusion, they wanted a caregiver who would provide the elder dependent with the love and compassion that they, as daughters, would provide if they had time to do so. The family became the caregiver’s managers and assumed the responsibility of training and helping them.

Life after the Storm: Voices of Women Survivors of Domestic Violence

2015 ◽  
Vol 13 (1) ◽  
Author(s):  
Victoria P. Padilla
Keyword(s):  
Domestic Violence ◽  
Qualitative Study ◽  
Women Survivors ◽  
Violence Against Women ◽  
Interview Method ◽  
Depth Interview ◽  
The Family ◽  
Women And Children ◽  
Happy Family ◽  
Keywords Domestic Violence

Life is certainly not a fairytale and in this kind of situation, “happily ever after” is not very common. These are the stories of five women-survivors of domestic violence who dreamed of having a happy family, but in the end, their dreams contradicted reality. This interpretivist qualitative study was designed to look into a deeper understanding of collective accounts of women-survivors of domestic violence. The narrative inquiry was employed using the in-depth interview method. The study revealed that these women experienced various forms of domestic violence and were caused by men’s bad habits, problems arising from the family, and jealousy of a man or a woman. Several strategies were employed by these women to improve their lives. This tough decision to free themselves from the abuse made them better individuals, developed a stronger bond with their children, and increased faith in God.   Keywords - Domestic Violence, Violence against Women, and Children, Survivors

scholarly journals Family caregivers’ expectations and needs in Critical Care Units

2021 ◽  
Vol 4 (2) ◽  
pp. 87-94
Author(s):  
Asma Khalil ◽  
Raisa Begum Gul
Keyword(s):  
Critical Care ◽  
Life Experience ◽  
Tertiary Care ◽  
Family Members ◽  
Structured Interview ◽  
Critical Care Units ◽  
Content Analysis Method ◽  
The Family ◽  
Need For Support ◽  
The Cost

Introduction: Patient admission into the critical care unit is usually an unpleasant and unexpected life experience for the family members, and unusual for family members to cope with stress and anxiety during their hospital stay.  Purpose: This study aimed to explore the expectations and needs of family members of the patients in critical care units at two tertiary care hospitals in Islamabad. Methodology: An exploratory descriptive design was used to address the study questions. Using purposive sampling, 14 family members were individually interviewed through a semi- structured interview guide. A conventional content analysis method was used to analyze the data through which categories and sub-categories were identified. Findings: The data analysis revealed three roles of the family members, which included assistance in physical care, facilitator in the provision of treatment and the decision maker. The participants expressed that their needs for information and assurance were being met to some extent; however, their need for support and comfort were not. Although the physical facilities for meeting the comfort were available in private hospital, it did not match the family members’ expectations. Conclusion: This study revealed that despite some similarities in the role and needs, the expectations and satisfaction of the family members is linked to their awareness of the healthcare system as well as the cost of the obtained services. The suggestions of the family members are implementable to improve their experiences and satisfaction in critical care units, which can enable them to perform their roles better. 

scholarly journals Vivências dos Familiares Frente à Criança com Fibrose Cística

2017 ◽  
Vol 19 (2) ◽  
pp. 89 ◽  
Author(s):  
Sueli Maria dos Reis Santos ◽  
Thaís Rothier Duarte ◽  
Mayara Dias Barroso ◽  
Maria Cristina Pinto de Jesus
Keyword(s):  
Cystic Fibrosis ◽  
Pancreatic Insufficiency ◽  
Family Members ◽  
Structured Interview ◽  
Treatment Center ◽  
College Hospital ◽  
White Ethnicity ◽  
Unified Health System ◽  
The Family ◽  
Health System Data

A Fibrose Cística, também conhecida como mucoviscidose, é uma doença genética grave e sem cura. Afeta, especialmente, pessoas de etnia branca e tem como manifestação clínica a disfunção gastrointestinal, insuficiência pancreática e alterações respiratórias. O objetivo do estudo foi descrever as vivências dos familiares frente à criança e ao adolescente com Fibrose Cística. Trata-se de um estudo descritivo e analítico com abordagem qualitativa, que busca compreender os sujeitos, na sua realidade, acerca do objeto estudado. Realizado no período de fevereiro a julho 2016, com 14 famílias de crianças e adolescentes cadastrados no Centro de Tratamento em Fibrose Cística de um hospital de ensino, vinculado ao Sistema Único de Saúde. A coleta dos dados ocorreu por meio de entrevista semiestruturada, gravada em áudio, tendo como critério a amostragem intencional, contemplando o rigor da pesquisa qualitativa. Os resultados mostraram que a vivência dos familiares frente à Fibrose Cística na criança ou no adolescente inclui o impacto do diagnóstico, as alterações na rotina de vida, o que interfere na dinâmica familiar. Apresentaram as dificuldades de adesão ao tratamento e expressaram sentimentos relacionados à convivência com a Fibrose Cística. Os familiares participantes do presente estudo, principalmente as mães, que vivenciam plenamente a doença do filho, são potencialmente os melhores indicadores para o planejamento de intervenções que a equipe multiprofissional pode seguir.Palavras-chave: Fibrose Cística. Saúde da Criança. Doença Crônica.AbstractThe Cystic Fibrosis, also known as mucoviscidosis, is a severe cureless genetic disease. It affects mostly people of white ethnicity and has as clinical manifestation gastrointestinal dysfunction, pancreatic insufficiency and respiratory changes. The aim of the study was to describe the child and teenager’s family’ experiences with Cystic Fibrosis. This is a descriptive and analytical study with a qualitative approach, able to understand the subjects in their reality about the studied object. It was held in the period from February to July 2016 with 14 families of children and adolescents registered in the Treatment Center for Cystic Fibrosis, from a College hospital, associated to the Unified Health System. Data collection occurred through semi-structured interview, recorded in audio having as criterion the intentional sampling, contemplating strictly qualitative research. The results showed that the family members’ experience before the Cystic Fibrosis intheir children includes the diagnosis impact changes in the life routine, which interferes with the family dynamics. They presented the difficulties of adherence to the treatment and expressed feelings related to living with Cystic Fibrosis. The family members participating in the present study, especially mothers, who fully experience the child’s illness, are potentially the best indicators for the planning of interventions that the multi-professional team can follow.Keywords: Cystic Fibrosis. Child Health. Chronic Disease.

scholarly journals PENGARUH KONSELING TERHADAP BEBAN KELUARGA DALAM MERAWAT ORANG DENGAN GANGGUAN JIWA

2020 ◽  
Vol 4 (1) ◽  
pp. 203
Author(s):  
Ilma Widiya Sari
Keyword(s):  
Mental Disorders ◽  
Random Sampling ◽  
Family Members ◽  
Simple Random Sampling ◽  
T Test ◽  
Group Design ◽  
The Family ◽  
Post Test ◽  
Paired T Test

Mental disorders become a serious problem. The prevalence of mental disorders has increased every year. The family as the closest unit to people with mental disorders and be the main care giver for sufferers. Families as a big role in determining the care needed by sufferers at home. When one family member experiences a mental disorder, all family members also feel the negative effects. The additional role of the family in caring for family members with mental disorders causes the emergence of pressure or burden in the family that can affect physical, psychological, social and economic conditions. Family counseling is needed for media to help families overcome various problems in life as a whole. The role of counseling is the family can answer all questions that disturb the mind and behavior so that the family is able to solve the problem. This research aims to determine the effect of counseling on family burdens in caring for people with mental disorders. This study uses a quasi-experimental method with a post-test and pre-test one group design. The sample taken in this study is a family that has 76 people with mental disorders. Sampling technique using simple random sampling. Bivariate analysis using paired t-test. Bivariate test showed yhe differences in the average value of the family burden before and after the intervention, where the p value is smaller than the alpha (0.00<0.05). It can be concluded that there is an effect of counseling on family burdens in caring for people with mental disorders. Keywords: counseling; family burdens; mental disorders ABSTRAKGangguan jiwa menjadi permasalahan serius dan terus mengkhawatirkan. Prevalensi kasus gangguan jiwa mengalami peningkatan setiap tahunnya. Keluarga sebagai unit paling dekat dengan orang dengan gangguan jiwa dan menjadi penyedia perawatan utama bagi penderita. Keluarga beperan besar dalam menentukan cara atau perawatan yang diperlukan penderita di rumah. Ketika satu anggota keluarga mengalami gangguan jiwa, maka seluruh anggota keluarga turut merasakan dampak negatif. Adanya tambahan peran keluarga dalam merawat anggota keluarga dengan gangguan jiwa menyebabkan munculnya tekanan atau beban dalam keluarga yang dapat mempengaruhi kondisi fisik, psikologis, sosial dan ekonomi. Konseling untuk keluarga dibutuhkan sebagai media perantara guna membantu keluarga mengatasi berbagai permasalahan dalam kehidupan. Konseling bagi keluarga dapat menjawab berbagai pertanyaan yang menganggu pikiran serta tingkah lakunya. Penelitian bertujuan menguji pengaruh konseling terhadap beban keluarga dalam merawat orang dengan gangguan jiwa. Penelitian ini menggunakan metode quasi eksperimen dengan rancangan post-test and pre-test one group design. Sampel penelitian ini adalah 52 responden dari keluarga yang mempunyai orang dengan gangguan jiwa. Pengambilan sampel dilakukan dengan teknik simple random sampling. Analisis data bivariat untuk menguji pengaruh secara statistik menggunakan paired t-test. Hasil uji bivariat secara statistik menunjukkan perbedaan nilai rata-rata beban keluarga sebelum dan setelah intervensi, nilai p lebih kecil daripada nilai alpha (0,00<0,05). Dengan demikian dapat disimpulkan bahwa ada pengaruh konseling terhadap beban keluarga dalam merawat orang dengan gangguan jiwa.

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