A sense of support felt by families raising children with disabilities

2020 ◽  
Vol 35 (5) ◽  
pp. 175-188
Author(s):  
Monika Czerw ◽  
Agnieszka Muchacka-Cymerman

Families raising children with disabilities face many everyday problems. They are or accepted, or sometimes rejected by the society or the society is indifferent to them. The presented research attempts to identify how families raising children with various disabilities cope in everyday life and how they perceive their problems and how their children are treated by other people. Research results indicate that apart from psychological and emotional support for the surveyed families, material support is important because maintaining the family at additional costs related to rehabilitation, specialist medical care, buying medicines and appropriate medical equipment hinders their daily existence.

2021 ◽  
pp. 239-244
Author(s):  
Tetiana Shapovalova ◽  
Daryna Shuminska

Introduction. At present, the priority of social policy in Ukraine is to ensure a fair standard of living for all categories of the population who find themselves in difficult life circumstances, including families raising children with disabilities. Over the past 5 years, the number of Ukrainian families raising children with disabilities has increased by 20% according to the State Statistics Service of Ukraine. This is due to various environmental, social, economic, and other factors that harm the general health of the population. In the research circle, scholars consider the family as a center for the upbringing and development of a child with a disability, because for this child, the family is primarily the main environment for rehabilitation. However, the family cannot be considered solely from the point of view of rehabilitation, because the family is a social group that carries out its activities based on a common economic, domestic, moral, and psychological way of life. Families with children with disabilities face many difficulties and problems, from medical to social, but the most pressing and common problems of such families are financial. Given the economic situation in Ukraine and the economic opportunities of Ukrainian families, it is safe to say that the social security system in Ukraine is not able to fully help families raising children with disabilities financially, as benefits are insignificant and the variability of such benefits is negligible. This actualizes the study of social protection of families with children with disabilities, in particular the study of international innovative methods of social welfare provision to this category of the population. The aim of the article is a theoretical analysis of global innovation mechanisms and approaches to social welfare provision to families raising children with disabilities for their further implementation in Ukraine. Methodology. The theoretical foundation of this article is based on world socio-economic theories, scientific approaches to solving problems of social welfare, and the social work theories. General scientific research methods were used, in particular, structural-functional to reveal the types of social assistance and existing technologies and methods of calculating social benefits for families raising children with disabilities in Ukraine; comparison – to study the world's innovative social welfare technologies. Results. It has been confirmed that the social welfare provision to families raising children with disabilities is one of the priority tasks of social policy both in Ukraine and in the world. An analysis of international innovative mechanisms and approaches of social welfare provision to families, who raise children with disabilities has been carried out. Improvement of the Ukrainian social welfare system has been suggested by introducing world tendencies of social protection of families raising children with disabilities.


Author(s):  
E. Indenbaum ◽  
Y. Lifanteva ◽  
A. Gostar

The article is dedicated to the assessment of the personal position of parents raising children with disabilities. Studying them becomes especially important if the family chooses inclusive education for their children. The article presents a comparative analysis of the personal positions of parents whose schoolchildren have mild or severe forms of developmental disorders. To obtain reliable data, a social portrait of the families participating in the study was compiled (the education of the parents, their occupation, the socioeconomic status of the family, etc.) was assessed. The value-semantic orientation of the parents, being one of the components of the personal position, was characterized. Their assessment was carried out according to such criteria as adequacy and balance (harmony). The following value-semantic orientation of the parents was revealed: adequate balanced, insufficiently adequate, unbalanced, inadequate. Depending on the identified orientation, recommendations were made for accompanying families raising children with disabilities in general educational organizations. 


2018 ◽  
Vol LXXIX (2) ◽  
pp. 114-123
Author(s):  
Iwona Myśliwczyk

Parents of disabled children not only deal with raising a child but also with their disability. The whole family experiences various implications as their lives are strongly affected by the disability. Undeniably, the whole life depends on a disability, which forces parents to redefine the family life and give it a new meaning. The conducted research was located in the stream of constructivist and interpretative research. The attempt of meeting and understanding the world the parents preserve in their memories allowed togain ‘genuine’ knowledge about a family with a chronically ill child. Told narrations present difficult parenthood and everyday problems that a family must deal with. Parents’ biographies concern not only weaknesses which they have to face fighting for normal life for their children but also show determination in their constant struggle in everyday life. Everyday life is very complex for them. Thus, the reality that the separents create is full of both negative and positive emotions, moments of happiness, love and mutual respect.


2019 ◽  
pp. 14-16
Author(s):  
Viktoriya Viktorovna Serenej

The article describes the main difficulties of child-parent relations in families where children with disabilities are raised, the content of psychological and pedagogical support of families raising children with disabilities is revealed. The purpose and main tasks of psychological and pedagogical support of families with children with disabilities are formulated. Stages of psychological and pedagogical support of the family raising children with disabilities, and also the main directions of work with a family within the Centers of early help and support are designated.


Author(s):  
Ellyn Byrns

In this paper, the author argues that caregiver coping in raising children with disabilities extends to include not only the parents but the rest of the family system as well. Adjustment, social and emotional support, resiliency and adaptability, and flexibility are examined by the author as specific factors contributing to successful coping of parents, siblings, and grandparents in raising children with disabilities. A critical literature review by the author discusses the current state of knowledge in this area and explores themes of research in each of the categories described. The author discusses conflicting interpretations of prominent caregiver coping research by Mattingly and Ingstad, and concludes with a discussion of global perspectives on this issue and recommendations of further research to contribute to understandings of coping in family systems raising children with disabilities. Implications of this research relate to improving clinical practice, service provision, and public policy development on this topic.


2020 ◽  
Vol 210 ◽  
pp. 18133
Author(s):  
Elena Tkach ◽  
Elisa Nazareth Mendoza Ortega

The presence of a child with disabilities is a powerful stressor for his parents, leading to a serious adjustment disorder. Based on a theoretical analysis of the main approaches to the phenomenon of psychological personality resilience, the resilience of parents raising children with disabilities is considered as a subject resource that provides positive adaptation and full-fledged life activity in spite of adverse living conditions. Resilience is characterized by a combination of social and intrapsychic processes that allow a person to be healthy and live a full life in an unfavorable environment. The ability of parents raising children with disabilities to cope with an adverse life situation is influenced by many factors: state policy in relation to this category of people, the media, public moods, school, social institutions, and interactions with people, family dynamics and resilience resources, stress factors, socio-economic characteristics of the family. The main characteristics of the resilience of parents raising children with disabilities are: the possibility of self-expression, general involvement, openness, awareness, a harmonious relationship between caring for the child and the need for attention of other family members. Despite difficult life circumstances, parents raising children with disabilities can find resources to adapt positively to the stress they experience. There are recommendations for certain actions, psychological intervention programs for the development of resilience in such families. In psychological practice, in a situation where a family has a child with disabilities, all attention and care is given to him.


Author(s):  
Tatiana Makeeva ◽  
◽  
Polina Kokoshnikova ◽  

The article is devoted to the peculiarities of organizing a parent club for families raising children with disabilities. Based on practical experience, the authors identify the conditions necessary for the effective functioning of the parent club. Based on the results of the study of the social potential, psychological characteristics and relevance of this form of work for parents, a program of classes was compiled and the main directions of the club's work were determined.


Author(s):  
Yuliya V. Kim ◽  

The article presents two letters from V.A. Musin-Pushkin which he wrote to his bride shortly before the wedding in 1828 (the letters are kept in the Russian State Archive of Ancient Acts). The text of the letters reflects the context of the time and everyday life, the system of views and the peculiarities of the worldview of a young aristocrat, the specific features of intra-family interaction in the field of feelings, marriage, human relations which inevitably turn out to be associated with the concepts of the family honor, family duty, the need to preserve the status of a noble family. The author traces how the power hierarchy is manifested at the level of relations within a close circle of relatives, as well as how traditional patterns are combined with new elements. Vladimir Alekseevich Musin-Pushkin, the youngest son of the archaeographer Count A.I. Musin-Pushkin, was arrested in connection with the case of the Decembrists, transferred from the Guards to the army and exiled to serve in Finland, where he met his future wife, Emilia Karlovna Shernval von Wallen. The article provides details of the family life of this married couple, as well as private facts from the biography of some other members of the Musin-Pushkin family.


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