scholarly journals “It Takes a Village”: Factors Related to Coping in Families Raising Children with Disabilities

2021 ◽  
Vol 7 (1) ◽  
Author(s):  
Ellyn Byrns
Keyword(s):  
Policy Development ◽  
Children With Disabilities ◽  
Family System ◽  
Raising Children ◽  
Global Perspectives ◽  
Social And Emotional ◽  
Current State ◽  
The Family ◽  
Specific Factors ◽  
Caregiver Coping

In this paper, the author argues that caregiver coping in raising children with disabilities extends to include not only the parents but the rest of the family system as well. Adjustment, social and emotional support, resiliency and adaptability, and flexibility are examined by the author as specific factors contributing to successful coping of parents, siblings, and grandparents in raising children with disabilities. A critical literature review by the author discusses the current state of knowledge in this area and explores themes of research in each of the categories described. The author discusses conflicting interpretations of prominent caregiver coping research by Mattingly and Ingstad, and concludes with a discussion of global perspectives on this issue and recommendations of further research to contribute to understandings of coping in family systems raising children with disabilities. Implications of this research relate to improving clinical practice, service provision, and public policy development on this topic.

scholarly journals INTERNATIONAL EXPERIENCE OF SOCIAL PROTECTION OF FAMILIES RAISING CHILDREN WITH DISABILITIES

2021 ◽  
pp. 239-244
Author(s):  
Tetiana Shapovalova ◽  
Daryna Shuminska
Keyword(s):  
Social Policy ◽  
Social Welfare ◽  
Children With Disabilities ◽  
Social Protection ◽  
Point Of View ◽  
Welfare Provision ◽  
Raising Children ◽  
The Social ◽  
The Family ◽  
Families With Children

Introduction. At present, the priority of social policy in Ukraine is to ensure a fair standard of living for all categories of the population who find themselves in difficult life circumstances, including families raising children with disabilities. Over the past 5 years, the number of Ukrainian families raising children with disabilities has increased by 20% according to the State Statistics Service of Ukraine. This is due to various environmental, social, economic, and other factors that harm the general health of the population. In the research circle, scholars consider the family as a center for the upbringing and development of a child with a disability, because for this child, the family is primarily the main environment for rehabilitation. However, the family cannot be considered solely from the point of view of rehabilitation, because the family is a social group that carries out its activities based on a common economic, domestic, moral, and psychological way of life. Families with children with disabilities face many difficulties and problems, from medical to social, but the most pressing and common problems of such families are financial. Given the economic situation in Ukraine and the economic opportunities of Ukrainian families, it is safe to say that the social security system in Ukraine is not able to fully help families raising children with disabilities financially, as benefits are insignificant and the variability of such benefits is negligible. This actualizes the study of social protection of families with children with disabilities, in particular the study of international innovative methods of social welfare provision to this category of the population. The aim of the article is a theoretical analysis of global innovation mechanisms and approaches to social welfare provision to families raising children with disabilities for their further implementation in Ukraine. Methodology. The theoretical foundation of this article is based on world socio-economic theories, scientific approaches to solving problems of social welfare, and the social work theories. General scientific research methods were used, in particular, structural-functional to reveal the types of social assistance and existing technologies and methods of calculating social benefits for families raising children with disabilities in Ukraine; comparison – to study the world's innovative social welfare technologies. Results. It has been confirmed that the social welfare provision to families raising children with disabilities is one of the priority tasks of social policy both in Ukraine and in the world. An analysis of international innovative mechanisms and approaches of social welfare provision to families, who raise children with disabilities has been carried out. Improvement of the Ukrainian social welfare system has been suggested by introducing world tendencies of social protection of families raising children with disabilities.

scholarly journals VALUE-SEMANTIC ORIENTATIONS OF PARENTS RAISING CHILDREN WITH DISABILITIES WHEN CHOOSING AN INCLUSIVE FORM OF EDUCATION

2021 ◽  
pp. 30-35
Author(s):  
E. Indenbaum ◽  
Y. Lifanteva ◽  
A. Gostar
Keyword(s):  
Socioeconomic Status ◽  
Inclusive Education ◽  
Developmental Disorders ◽  
Children With Disabilities ◽  
Reliable Data ◽  
Educational Organizations ◽  
Raising Children ◽  
The Family ◽  
Semantic Orientation ◽  
Inclusive Form

The article is dedicated to the assessment of the personal position of parents raising children with disabilities. Studying them becomes especially important if the family chooses inclusive education for their children. The article presents a comparative analysis of the personal positions of parents whose schoolchildren have mild or severe forms of developmental disorders. To obtain reliable data, a social portrait of the families participating in the study was compiled (the education of the parents, their occupation, the socioeconomic status of the family, etc.) was assessed. The value-semantic orientation of the parents, being one of the components of the personal position, was characterized. Their assessment was carried out according to such criteria as adequacy and balance (harmony). The following value-semantic orientation of the parents was revealed: adequate balanced, insufficiently adequate, unbalanced, inadequate. Depending on the identified orientation, recommendations were made for accompanying families raising children with disabilities in general educational organizations. 

scholarly journals Psychological and pedagogical support of families raising children with disabilities

2019 ◽  
pp. 14-16
Author(s):  
Viktoriya Viktorovna Serenej
Keyword(s):  
Children With Disabilities ◽  
Raising Children ◽  
The Family ◽  
Families With Children

The article describes the main difficulties of child-parent relations in families where children with disabilities are raised, the content of psychological and pedagogical support of families raising children with disabilities is revealed. The purpose and main tasks of psychological and pedagogical support of families with children with disabilities are formulated. Stages of psychological and pedagogical support of the family raising children with disabilities, and also the main directions of work with a family within the Centers of early help and support are designated.

THE PSYCHOSOCIAL EFFECT OF THERAPEUTIC ACTIVITIES WITH DOLPHINS FOR CHILDREN WITH DISABILITIES

2019 ◽  
Vol 3 ◽  
pp. 94
Author(s):  
Brigita Kreiviniene ◽  
Daiva Mockevičienė ◽  
Žilvinas Kleiva ◽  
Vaida Vaišvilaitė
Keyword(s):  
Down Syndrome ◽  
Children With Disabilities ◽  
Family System ◽  
Research Results ◽  
Raising Children ◽  
Diagnostic Characteristics ◽  
Psychosocial Effect ◽  
Therapy Center ◽  
Therapeutic Activities ◽  
The Impact

The aim of this study was to compare the results of the psychosocial effect of therapeutic activities with dolphins for children with cerebral palsy, Down syndrome and autism. Research was carried out in the Dolphin Assisted Therapy Center. Ten families raising children with disabilities took part in this research. Methods: Chandler’s Psychosocial Session Form, interviews before, two weeks and one month after therapeutic activities with dolphins. The research results brought to the light statistically significant changes in the psychoemotional and behavioral patterns for children with qualitative differences depending on child’s diagnostic characteristics. The greater positive results were noted by parents, as well as statistically significant measured in autism, but the least in Down syndrome case. The research results revealed that parents shaped their expectations on the impact of therapeutic activities basing on the normalization perspective. Narrative results revealed that all parents raising children with disabilities had needs of re-establishing the inner sense of coherence of the whole family system. 

A sense of support felt by families raising children with disabilities

2020 ◽  
Vol 35 (5) ◽  
pp. 175-188
Author(s):  
Monika Czerw ◽  
Agnieszka Muchacka-Cymerman
Keyword(s):  
Medical Care ◽  
Everyday Life ◽  
Emotional Support ◽  
Medical Equipment ◽  
Children With Disabilities ◽  
Material Support ◽  
Raising Children ◽  
The Family ◽  
Additional Costs ◽  
Everyday Problems

Families raising children with disabilities face many everyday problems. They are or accepted, or sometimes rejected by the society or the society is indifferent to them. The presented research attempts to identify how families raising children with various disabilities cope in everyday life and how they perceive their problems and how their children are treated by other people. Research results indicate that apart from psychological and emotional support for the surveyed families, material support is important because maintaining the family at additional costs related to rehabilitation, specialist medical care, buying medicines and appropriate medical equipment hinders their daily existence.

scholarly journals Social and psychological counseling for parents of children with disabilities

2020 ◽  
Vol 80 (4) ◽  
pp. 24-28
Author(s):  
E. Supatayeva ◽  
◽  
N. Ramazanova ◽  
K. Butenova ◽  
◽  
...  
Keyword(s):  
Children With Disabilities ◽  
Family System ◽  
Therapeutic Process ◽  
Integrated Approach ◽  
Family Counseling ◽  
Social Adaptation ◽  
Main Task ◽  
Psychological Counseling ◽  
The Family ◽  
The Individual

The main task of specialists in their interaction with the family of a child with disabilities is not only to issue recommendations for the treatment and upbringing of the child, but also to create conditions that would maximally stimulate family members to actively solve emerging problems. Family, counseling, psychotherapy and psychocorrection work are stages of a single psychoconsultative and therapeutic process aimed at restoring and strengthening the mental health of the individual through the normalization of relations in the family. For a family raising a "special" child, such functions as correctional and developmental, compensating and rehabilitative are important, the purpose of which is to restore the child's psychophysical and social status, achieve their material independence and social adaptation. Understanding the family as a system leads, in turn, to understand the need for an integrated approach to the organization of clinical psycho-pedagogical correction of deviations in development of children, physiological system of the mother-child, the family system as a whole. Purpose is to help specialists in the field of special (correctional) psychology, defectology and pedagogy to master the knowledge and skills necessary to work with the family. Specialists have a unique opportunity to rely in their work on the most interested people in its success-parents who become their partners. Parents, in turn, master the tools necessary to effectively help their own children. Methods: observation, interviews, questionnaires, testing, and projective methods. In the course of the study, the goals and objectives of working with families raising children with disabilities were determined, and the most effective forms of organizing the psychotherapeutic and correctional-pedagogical process of cooperation between specialists and parents were considered. Forms of individual work with parents of children with disabilities are proposed. Psychotherapy and psychocorrection, used in the consulting practice of working with children with disabilities, includes various methods. Keywords: children with disabilities, social and psychological counseling, methods of psychotherapy and psychocorrection, forms of interaction with the family.

scholarly journals Theoretical aspects of the study of parental resilience, raising children with disabilities

2020 ◽  
Vol 210 ◽  
pp. 18133
Author(s):  
Elena Tkach ◽  
Elisa Nazareth Mendoza Ortega
Keyword(s):  
Children With Disabilities ◽  
Psychological Intervention ◽  
Social Institutions ◽  
Adjustment Disorder ◽  
Stress Factors ◽  
Psychological Practice ◽  
Raising Children ◽  
Positive Adaptation ◽  
The Family ◽  
The Media

The presence of a child with disabilities is a powerful stressor for his parents, leading to a serious adjustment disorder. Based on a theoretical analysis of the main approaches to the phenomenon of psychological personality resilience, the resilience of parents raising children with disabilities is considered as a subject resource that provides positive adaptation and full-fledged life activity in spite of adverse living conditions. Resilience is characterized by a combination of social and intrapsychic processes that allow a person to be healthy and live a full life in an unfavorable environment. The ability of parents raising children with disabilities to cope with an adverse life situation is influenced by many factors: state policy in relation to this category of people, the media, public moods, school, social institutions, and interactions with people, family dynamics and resilience resources, stress factors, socio-economic characteristics of the family. The main characteristics of the resilience of parents raising children with disabilities are: the possibility of self-expression, general involvement, openness, awareness, a harmonious relationship between caring for the child and the need for attention of other family members. Despite difficult life circumstances, parents raising children with disabilities can find resources to adapt positively to the stress they experience. There are recommendations for certain actions, psychological intervention programs for the development of resilience in such families. In psychological practice, in a situation where a family has a child with disabilities, all attention and care is given to him.

scholarly journals Parent club as a rehabilitation structure for the family of a child with disabilities

2021 ◽  
Author(s):  
Tatiana Makeeva ◽  
◽  
Polina Kokoshnikova ◽  
Keyword(s):  
Children With Disabilities ◽  
Practical Experience ◽  
Psychological Characteristics ◽  
Raising Children ◽  
Effective Functioning ◽  
The Social ◽  
The Family ◽  
Social Potential

The article is devoted to the peculiarities of organizing a parent club for families raising children with disabilities. Based on practical experience, the authors identify the conditions necessary for the effective functioning of the parent club. Based on the results of the study of the social potential, psychological characteristics and relevance of this form of work for parents, a program of classes was compiled and the main directions of the club's work were determined.

A System for Modifying the Family System

1991 ◽  
Vol 36 (6) ◽  
pp. 522-523
Author(s):  
Michael J. Goldstein
Keyword(s):  
Family System ◽  
The Family
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