ALS longitudinal studies with frequent data collection at home: study design and baseline data

Abstract Background Unsafe practices such as cutting umbilical cord with unsterilized instruments and application of harmful substances, are in practice in many rural areas of Pakistan, and associated with high risk of neonatal sepsis and mortality. Methods We conducted an implementation research in 2015 in Tharparkar district, in Sindh province of Pakistan to understand the feasibility and acceptability of community-based distribution of chlorhexidine (CHX) in rural Pakistan. For this cohort group-only study, 225 lady health workers (LHWs) enrolled 495 pregnant women. Enrolled women received 4% CHX gel and user’s instructions for newborn cord care. The LHWs also counseled women on the benefits and correct use of CHX. Study enumerators collected data from CHX receiving women 3 times: at around 2 weeks before delivery, within 24 hours after delivery, and on the 8th day after delivery. We implemented this study jointly in collaboration with Ministry of Health in Sindh province, Pakistan. Results Among enrolled participants, 399 women (81%) received only the first visit, 295 women (60%) received first two visits and 261 women (53%) received all three visits by enumerators. Among 399 women, who received CHX gel, counseling on its use and were respondent to the first round data collection, 78% remembered that the CHX gel to be applied to cord stump and surrounding areas immediately after birth; but less than a third (29%) forgot the need to keep the cord clean and dry. Among 295 respondents in the first two rounds of data collection, who delivered at home, 97% applied CHX to cord stump on the first day. Conclusions Community-based CHX distribution by LHWs, along with counseling to recipient women, resulted in a high rate of cord care with CHX among newborn delivered at home. Results from this study may help program implementers to consider expanding this intervention for improving newborn cord care on the first day of life in Pakistan. Key messages Community-based distribution of chlorhexidine for newborn cord care appears as highly acceptable and feasible in rural communities in Pakistan. Relevant program policy supporting community-based CHX distribution along with counseling by LHW may help expanding coverage of newborn cord care in rural communities in Pakistan.

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The Savvy Academic

10.1093/oso/9780190095918.001.0001 ◽

2021 ◽

Author(s):

Seth J. Schwartz

Keyword(s):

Data Collection ◽

Longitudinal Studies ◽

Conflicts Of Interest ◽

Scholarly Publishing ◽

Early Career ◽

Journal Articles ◽

Writing For Publication ◽

Review Articles ◽

Publishing Career ◽

Data Analytic

This book covers the process of writing for publication from start to finish—from selecting a topic and reviewing literature to working with coauthors, writing theoretical and review articles, and responding to editor and reviewer comments when revising manuscripts. Dr. Schwartz uses examples from his own scholarly publishing career and provides concrete advice for both early-career and more experienced writers. The book also covers important topics such as planning studies, managing and supervising data collection, retaining participants in longitudinal studies, data analytic ethics and conflicts of interest, and dealing with writer’s block. Dr. Schwartz provides guidance for writing journal articles, books, and book chapters, as well as for dealing with manuscripts that have been repeatedly rejected. He offers guidance for writing first drafts, editing drafts, incorporating coauthor feedback, and working with difficult or resistant coauthors. This book is a “how-to” in terms of writing for publication.

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Massive Open Online Course Evaluation Methods: Systematic Review (Preprint)

10.2196/preprints.13851 ◽

2019 ◽

Cited By ~ 3

Author(s):

Abrar Alturkistani ◽

Ching Lam ◽

Kimberley Foley ◽

Terese Stenfors ◽

Elizabeth R Blum ◽

...

Keyword(s):

Data Analysis ◽

Data Collection ◽

Quality Assessment ◽

Study Design ◽

Evaluation Methods ◽

Course Evaluation ◽

Data Sources ◽

Massive Open Online ◽

Analysis Methods ◽

Data Analysis Methods

BACKGROUND Massive open online courses (MOOCs) have the potential to make a broader educational impact because many learners undertake these courses. Despite their reach, there is a lack of knowledge about which methods are used for evaluating these courses. OBJECTIVE The aim of this review was to identify current MOOC evaluation methods to inform future study designs. METHODS We systematically searched the following databases for studies published from January 2008 to October 2018: (1) Scopus, (2) Education Resources Information Center, (3) IEEE (Institute of Electrical and Electronic Engineers) Xplore, (4) PubMed, (5) Web of Science, (6) British Education Index, and (7) Google Scholar search engine. Two reviewers independently screened the abstracts and titles of the studies. Published studies in the English language that evaluated MOOCs were included. The study design of the evaluations, the underlying motivation for the evaluation studies, data collection, and data analysis methods were quantitatively and qualitatively analyzed. The quality of the included studies was appraised using the Cochrane Collaboration Risk of Bias Tool for randomized controlled trials (RCTs) and the National Institutes of Health—National Heart, Lung, and Blood Institute quality assessment tool for cohort observational studies and for before-after (pre-post) studies with no control group. RESULTS The initial search resulted in 3275 studies, and 33 eligible studies were included in this review. In total, 16 studies used a quantitative study design, 11 used a qualitative design, and 6 used a mixed methods study design. In all, 16 studies evaluated learner characteristics and behavior, and 20 studies evaluated learning outcomes and experiences. A total of 12 studies used 1 data source, 11 used 2 data sources, 7 used 3 data sources, 4 used 2 data sources, and 1 used 5 data sources. Overall, 3 studies used more than 3 data sources in their evaluation. In terms of the data analysis methods, quantitative methods were most prominent with descriptive and inferential statistics, which were the top 2 preferred methods. In all, 26 studies with a cross-sectional design had a low-quality assessment, whereas RCTs and quasi-experimental studies received a high-quality assessment. CONCLUSIONS The MOOC evaluation data collection and data analysis methods should be determined carefully on the basis of the aim of the evaluation. The MOOC evaluations are subject to bias, which could be reduced using pre-MOOC measures for comparison or by controlling for confounding variables. Future MOOC evaluations should consider using more diverse data sources and data analysis methods. INTERNATIONAL REGISTERED REPORT RR2-10.2196/12087

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The Dignity of Middle Adult Palliative Patients at Home in Bantul

Open Access Macedonian Journal of Medical Sciences ◽

10.3889/oamjms.2021.5751 ◽

2021 ◽

Vol 9 (T4) ◽

pp. 347-353

Author(s):

Bertha Tesma Wulandari ◽

Arianti Arianti

Keyword(s):

Quality Of Life ◽

Decision Making ◽

Data Collection ◽

Phenomenological Approach ◽

Self Esteem ◽

Care Needs ◽

Thick Description ◽

Collection Data ◽

At Home

BACKGROUND: The condition of middle adult patients with palliative disease is prone to experiencing physical weakness and psychological suffering, disrupting dignity. As a caregiver at home, the family plays an essential role in providing support to maintain patient dignity. AIM: This study aims to determine the image of the dignity of the middle adult patient with palliative care needs by family at home. METHODS: This research is a qualitative study with a phenomenological approach. Participants were seven people with the purposive sampling method. Data collection methods were conducted using in-depth interviews and semi-structured observation. Research instruments included interview guidelines, field notes, and an observation form. Data validity used reference material, rich and thick description, and peer debriefing. Data analysis included data collection, data reduction, data presentation, and conclusion. RESULTS: The results showed that the dignity of patients was considered by six themes; self-esteem went up and down, the meaning of illness and death, family response to the patient, sources of decision-making, an image of the quality of life, and future wishes. CONCLUSION: This study had six themes depicting the dignity of patients that consisted of subthemes. The themes included self-esteem went up and down, the meaning of illness and death, family response to the patient, sources of decision-making, an image of the quality of life, and future wishes.

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Design of a field trial to develop a tabletop platform for rapid detection of XDR-TB in clinical samples (Preprint)

10.2196/preprints.26748 ◽

2020 ◽

Author(s):

Naomi Hillery ◽

Marva Seifert ◽

Donald G Catanzaro ◽

Symone McKinnon ◽

Rebecca E Colman ◽

...

Keyword(s):

Clinical Study ◽

Data Collection ◽

Study Design ◽

Human Subjects ◽

Bacterial Load ◽

Objective Evaluation ◽

Clinical Samples ◽

Prospective Clinical Study ◽

Global Public Health ◽

Drug Concentrations

BACKGROUND Extensively drug-resistant tuberculosis (XDR-TB) continues to be a serious threat to global public health, due in part to the lack of accurate and efficient diagnostic devices for XDR-TB. A prospective clinical study in an intended-use cohort was designed to evaluate the Akonni Biosystems XDR-TB TruArray® and Lateral Flow Cell (XDR-LFC), which has the potential to address this gap in TB diagnostics. OBJECTIVE The objective of this publication is to share documentation of the study conceptualization and design that is replicable and of use to the scientific community. METHODS This clinical study was conducted in three phases, the first to observe changes in bacterial load and culture positivity in patient sputa over time and better understand the diversity of prospective clinical samples, the second to prospectively collect clinical samples for sensitivity and specificity testing of the Akonni Biosystems XDR-LFC device, and the third to explore anti-TB drug concentrations in serum over the course of DR-TB treatment. RESULTS The methodology described includes the study design, laboratory sample handling, data collection, and human subjects protection elements of the clinical study to evaluate a potential new XDR-TB diagnostic device. The complex systems implemented facilitated thorough clinical data collection for objective evaluation of the device. This trial is closed to recruitment. Follow-up data collection and analysis are in progress. CONCLUSIONS This publication outlined the methods used in a prospective cohort study to evaluate a device to rapidly detect XDR-TB. The documentation of this clinical study design may be of use to other researchers with similar goals.

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HUBUNGAN PERSEPSI IBU BALITA TENTANG POSYANDU DENGAN PEMANFAATAN POSYANDU MAWAR 2 RW 06 KEBAGUSAN JAKARTA SELATAN TAHUN 2015

Jurnal Keperawatan Widya Gantari Indonesia ◽

10.52020/jkwgi.v2i2.858 ◽

2019 ◽

Vol 2 (2) ◽

Author(s):

Alifa Dinda Septifani ◽

Apriningsih Apriningsih

Keyword(s):

Data Collection ◽

Study Design ◽

Significant Relationship ◽

Health Workers ◽

Cross Sectional Study ◽

Sectional Study ◽

Community Based ◽

Chi Square ◽

Cross Sectional

Posyandu was one manifestation of Health Efforts on Community Based (UKBM). Based on data Posyandu Mawar 2 in February 2015 there were a decreased number of mothers’s visit from 81.25% to 62.5%, so the researchers wanted to know about association of the mother’s perception with the utilization of The Posyandu. This research used cross sectional study design using total sampling (80 mothers). Data collection was done by direct interviews based on the questionnaire and analyzed using Chi Square. The result there’s a significant association between mother’ss perception of the distance to the utilization of Posyandu RW 06 Posyandu Mawar 2 Kebagusan South Jakarta and there’s no significant relationship between education, employment and the knowledge and mothers’perceptions about the completeness of facilities, the attitude of cadres and the presence of health workers. Suggestions for Posyandu is to increase of mother’confident to visit Posyandu

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The Level of knowledge regarding pap smear examination among the childbearing age women’s in RW 04 RT 05, Rangkapan Jaya Baru, Pancoran Mas Depok

International Journal of Nursing and Health Services (IJNHS) ◽

10.35654/ijnhs.v2i2.104 ◽

2019 ◽

Vol 2 (2) ◽

pp. 82-89

Author(s):

Hendrawati Hendrawati

Keyword(s):

Data Collection ◽

Study Design ◽

Pap Smear ◽

Descriptive Study ◽

Check List ◽

Childbearing Age ◽

Smear Examination ◽

Childbearing Age Women ◽

Level Of Knowledge

Level of knowledge of women in childbearing age regarding papsmear consider low. An analytic descriptive study design was used to describe the level of knowledge regarding pap smear examination amonng the childbearing age women. Data collection tools was questionnaire in form of check list. The result confirmed that 39 from 75 participant have an excellent level of knowledge,

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Study Design and Measurement Methods for Data Collection

10.1007/978-3-030-81949-1_6 ◽

2021 ◽

pp. 55-68

Author(s):

Dana P. Turner

Keyword(s):

Data Collection ◽

Study Design ◽

Measurement Methods

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Subjective Well-Being in Early Adolescence: Observations from a Five-Year Longitudinal Study

International Journal of Environmental Research and Public Health ◽

10.3390/ijerph17218249 ◽

2020 ◽

Vol 17 (21) ◽

pp. 8249

Author(s):

Mònica González-Carrasco ◽

Marc Sáez ◽

Ferran Casas

Keyword(s):

Data Collection ◽

Longitudinal Studies ◽

Early Adolescence ◽

Mixed Model ◽

Linear Mixed Model ◽

Well Being ◽

Subjective Well Being ◽

Cross Sectional ◽

Additional Information ◽

Stage Of Development

This article aims to redress the lack of longitudinal studies on adolescents’ subjective well-being (SWB) and highlight the relevance of knowledge deriving from such research in designing public policies for improving their health and wellbeing in accordance with the stage of development they are in. To achieve this, the evolution of SWB during early adolescence (in adolescents aged between 10 and 14 in the first data collection) was explored over a five year period, considering boys and girls together and separately. This involved comparing different SWB scales and contrasting results when considering the year of data collection versus the cohort (year of birth) participants belonged to. The methodology comprised a generalized linear mixed model using the INLA (Integrated Nested Laplace Approximation) estimation within a Bayesian framework. Results support the existence of a decreasing-with-age trend, which has been previously intuited in cross-sectional studies and observed in only a few longitudinal studies and contrasts with the increasing-with-age tendency observed in late adolescence. This decrease is also found to be more pronounced for girls, with relevant differences found between instruments. The decreasing-with-age trend observed when the year of data collection is taken into account is also observed when considering the cohort, but the latter provides additional information. The results obtained suggest that there is a need to continue studying the evolution of SWB in early adolescence with samples from other cultures; this, in turn, will make it possible to establish the extent to which the observed decreasing-with-age trend among early adolescents is influenced by cultural factors.

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