scholarly journals Codesigning a supportive online resource for Australian cancer carers: a thematic analysis of informal carers’ and healthcare professionals’ perspectives about carers’ responsibilities and content needs

BMJ Open ◽  
2021 ◽  
Vol 11 (10) ◽  
pp. e055026
Author(s):  
Sharnel Miriam Perera ◽  
Clare O’Callaghan ◽  
Anna Ugalde ◽  
Olinda Santin ◽  
Cassandra Beer ◽  
...  
Keyword(s):  
Thematic Analysis ◽  
Online Survey ◽  
Qualitative Data ◽  
Healthcare Professionals ◽  
Telephone Interview ◽  
Rural And Urban ◽  
Online Resource ◽  
Informal Carers ◽  
Informal Supports ◽  
User Friendly

ObjectiveTo gather preliminary qualitative data that will assist in the codesign and development of a new informational and supportive website to assist informal cancer carers in Australia.Design and settingUtilising a previously tested codesign process, informal carers’ experiences and perspectives, including those of healthcare professionals’, were examined via focus groups and/or interviews. Data were analysed via thematic analysis.ParticipantsRural (n=9) and urban (n=11) carers’, and healthcare professionals’ (n=8) perspectives were collected. Carers participated in a focus group (n=9) or telephone interview (n=11). Healthcare professionals completed an interview (n=6) or online survey (n=2).ResultsRural and urban carers typically felt ill prepared for their multitudinal caregiving responsibilities. Supporting patient-to-healthcare professional liaisons could especially challenge. Carers’ biopsychosocial and fiscal strains were affected by patients’ hardships and available informal supports. Rural carers described greater social support than urban carers. Both rural and urban carers also described discontentment related to a carer neglecting healthcare system. Both carers and healthcare professionals endorsed the need for a user-friendly, carer-specific website encompassing practical information and resources, peer-driven advice and evidence-based illness information, tailored to the Australian context.ConclusionsCarers and healthcare professionals recognise the pressing need for an Australian, cancer carer-specific online resource. Findings will inform the next phase, where a resource will be designed, developed and tested.

scholarly journals “The most lonely condition I can imagine”: Psychosocial impacts of endometriosis on women’s identity

2020 ◽  
pp. 095935352093060
Author(s):  
Jennifer M Cole ◽  
Sarah Grogan ◽  
Emma Turley
Keyword(s):  
Chronic Pain ◽  
Social Relationships ◽  
Thematic Analysis ◽  
Online Survey ◽  
Qualitative Data ◽  
Physical Symptoms ◽  
Role Expectations ◽  
Social Connections ◽  
Women's Identity ◽  
Psychosocial Impacts

Endometriosis is a condition which affects around 1–2% of women worldwide and has profound effects on their everyday lives. Previous research has tended to focus on physical symptoms (such as chronic pain); how women manage changes to their identity and relationships as a result of endometriosis has received less attention. This paper discusses qualitative data examining how women negotiate changes to identity while living with endometriosis, in a social context where women are expected to minimise their symptoms and conform to feminine role expectations. We conducted thematic analysis of 34 replies to an online survey seeking qualitative text responses. The women identified disruptions to personal identity as a result of living with endometriosis. They talked about not feeling like themselves (Theme 1) and about reactions from medical and social connections prompting feelings that they were going “mad” (Theme 2). Participants also expressed feeling as though they were a burden to loved ones (Theme 3), which often resulted in self-silencing (Theme 4). Findings are discussed in the context of Western expectations of women’s roles in social relationships and suggest that professionals who support women with endometriosis should be aware of strategies such as self-silencing which may reduce effective self-care.

scholarly journals Characterizing Pathways of Non-oral Prescription Stimulant Non-medical Use Among Adults Recruited From Reddit

2021 ◽  
Vol 11 ◽  
Author(s):  
Suzanne K. Vosburg ◽  
Rebekkah S. Robbins ◽  
Kevin M. Antshel ◽  
Stephen V. Faraone ◽  
Jody L. Green
Keyword(s):  
Substance Use ◽  
Drug Use ◽  
Online Survey ◽  
Qualitative Data ◽  
Telephone Interview ◽  
Route Of Administration ◽  
Prescription Stimulants ◽  
Illicit Substance Use ◽  
Banner Ads ◽  
Depth Interviews

Objective: Prescription stimulant non-medical use (NMU) is a national predicament. While the risks of prescription stimulant NMU have been considered, less is known about non-oral use. To focus on this gap, a sample of adults with non-oral prescription stimulant NMU within the last 5-years was recruited. The purpose of the present study was to characterize the pathways and substance transitions associated with prescription stimulant NMU and non-oral prescription stimulant NMU in this unique sample of adults.Methods: Adults (n = 225) reporting non-oral prescription stimulant NMU within the last 5 years were recruited to complete an online survey by banner ads placed on the Reddit website between February and September 2019. After completion of the survey, a second study consisting of an in-depth telephone interview was conducted with 23 participants: interviews took place between July and September 2019. Data reported here include substance, route of administration and class transitions, as well as qualitative data from the interviews.Results: Approximately 1 in 5 began their substance use trajectory with prescription stimulants (19.1%). Other than marijuana, most exposures to illicit substances occurred after both initial prescription stimulant NMU and initial non-oral prescription stimulant NMU. The most frequently reported route of administration transition was from oral use to snorting (n = 158, 70.2%), however, other route of administration transitions included oral use to injection drug use (n = 14, 6%). In-depth interviews elaborated upon these transitions and indicated that prescription stimulant NMU was consequential to substance use pathways.Conclusions: Oral prescription stimulant NMU was a precursor to non-oral prescription stimulant NMU. Non-oral prescription stimulant NMU was a precursor to illicit substance use, suggesting that prescription stimulant NMU impacts substance use pathways and revealing opportunities for intervention.

scholarly journals Patient Experiences with Ambulatory Telehealth in Neurology: Results of a Mixed Methods Study

2021 ◽  
pp. 10.1212/CPJ.0000000000001072
Author(s):  
Carly Olszewski ◽  
Sharon Thomson ◽  
Lauren Strauss ◽  
Rachel Graham ◽  
Mustapha Ezzeddine ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Thematic Analysis ◽  
Qualitative Data ◽  
Telephone Interview ◽  
Patient Experiences ◽  
Mixed Methods Study ◽  
Neurologic Examination ◽  
Commute Time ◽  
Physician Relationship ◽  
Patients Experience

ABSTRACTObjective:To assess patient experiences with rapid implementation of ambulatory telehealth during the COVID-19 pandemic.Methods:A mixed methods study was performed to characterize the patients’ experience with neurology telehealth visits during the first eight weeks of the COVID-19 response. Consecutive patients who completed a telehealth visit were contacted by telephone. Assenting patients completed a survey quantifying satisfaction with the visit followed by a semi-structured telephone interview. Qualitative data were analyzed using the principles of thematic analysis.Results:2,280 telehealth visits were performed, 753 patients (33%) were reached for post-visit feedback. Of these, 47% of visits were by video and 53% by telephone. Satisfaction was high with 77% of patients reporting that all needs were met though only 51% would consider telehealth in the future. Qualitative themes emerged suggesting that positive patient experiences were associated with elimination of commute time and associated costs as well as a positive physician interaction. Negative patient experiences were associated with the inability to complete the neurologic examination. Overall, patients tended to view telehealth as a tool that should augment, and not replace, in-person visits.Conclusion:In ambulatory telehealth, patients valued convenience, safety, and physician relationship. Barriers were observed but can be addressed.

scholarly journals Starting from the Same Spot: Exploring Mindfulness Meditation and Student Transitions in the Introductory Health Promotion Classroom

2021 ◽  
Vol 44 (1) ◽  
pp. 256-276
Author(s):  
Madison MacQuarrie ◽  
Nicole Blinn ◽  
Samantha MacLellan ◽  
Megan Flynn ◽  
Jessie Meisner ◽  
...  
Keyword(s):  
Mental Health ◽  
Health Promotion ◽  
Data Collection ◽  
Student Perceptions ◽  
Thematic Analysis ◽  
Classroom Environment ◽  
Online Survey ◽  
Qualitative Data ◽  
Mindfulness Meditation ◽  
Qualitative Data Collection

The purpose of this research was to explore student perceptions of mindfulness meditation (MM) in an introductory health promotion course, and how the use of MM during class might relate to the transitions experienced by students. Qualitative data collection took place through an online survey and in-person interviews. Data were analyzed using thematic analysis. Four key themes were identified from this research. First, that MM facilitates a sense of peace and calm; second, that MM encourages students to focus; third, MM helps promote student mental health; and finally, MM positively changes the classroom environment. Challenges and recommendations were also described. Keywords: mindfulness, meditation, university, transitions

scholarly journals Resilience of Medication Adherence Practices in Response to Life Changes: Learning from Qualitative Data Obtained during the COVID-19 Pandemic

Healthcare ◽  
2021 ◽  
Vol 9 (8) ◽  
pp. 1048
Author(s):  
Mushfique Ahmed ◽  
Carly Wheeler ◽  
Bryony Dean Franklin ◽  
Rabia Begum ◽  
Sara Garfield
Keyword(s):  
Medication Adherence ◽  
Health Outcomes ◽  
Thematic Analysis ◽  
Qualitative Data ◽  
Healthcare Professionals ◽  
Life Changes ◽  
Structured Interviews ◽  
The Uk ◽  
Over Time

Nonadherence to medicines is widespread and can adversely affect health outcomes. Previous research has identified that patients develop their own strategies to assist with adherence. However, such research has not focused on how the helpfulness of these strategies may change in response to changes in patients’ circumstances. This study aimed to explore resilience of medication adherence to life changes. It involved secondary thematic analysis of the verbatim transcripts of 50 semi-structured interviews that were conducted with adults who were advised to shield or were over the age of 70 during the first wave of the COVID-19 pandemic in the UK. Interview data suggested that resilience of medication adherence varied between participants. Participants either reported that they had not used any specific strategies to remind them to take their medicines prior to the pandemic, that the strategies that they had employed prior to the pandemic remained effective during the pandemic, that they had needed to make some adjustments to the strategies used, or that the strategies they had used were no longer effective. In addition, beliefs about medicines and motivation to take them were altered for some participants. These findings suggest that challenges associated with medication adherence do not always remain stable over time and that healthcare professionals need to continue to monitor and support medication adherence long-term.

Parent/Caregiver Narratives of Challenges Related to Raising Transgender and/or Nonbinary Youth

2021 ◽  
pp. 0192513X2110444
Author(s):  
Sabra L. Katz-Wise ◽  
Sally Campbell Galman ◽  
Lauren E. Friedman ◽  
Kacie M. Kidd
Keyword(s):  
Identity Development ◽  
Thematic Analysis ◽  
Online Survey ◽  
Qualitative Data ◽  
Well Being ◽  
Individual Characteristics ◽  
Caregiver Support ◽  
Factors Affecting ◽  
Qualitative And Quantitative ◽  
Parent Caregivers

Parents/caregivers of transgender and/or nonbinary (TNB) youth (those who identify with a different gender than the gender typically associated with their assigned sex) may experience secondary stigma related to their child’s TNB identity. However, parent/caregiver support is critical for TNB youth’s mental health. This study explored attitudes and challenges faced by parents/caregivers of TNB youth. Data were from 27 parents/caregivers of TNB youth who completed an anonymous online survey with qualitative and quantitative measures. Qualitative data were analyzed using immersion/crystallization and thematic analysis approaches. Six themes were developed from the data: TNB youth individual characteristics/experiences, societal and other external factors affecting parent/caregivers’ future outlook, TNB identity development and transition, TNB-related social and institutional interactions, parent/caregivers’ supportive cognitions and behaviors, and parent/caregivers’ challenging cognitions. Findings from this study can inform efforts to support parents/caregivers of TNB youth, which can ultimately support the well-being of TNB youth themselves.

scholarly journals Serious Impacts of Postponing Bariatric Surgery as a Result of the COVID-19 Pandemic: The Patient Perspective

2021 ◽  
Vol 8 ◽  
pp. 237437352110082
Author(s):  
Babur Ahmed ◽  
Mohammad Altarawni ◽  
Jodi Ellison ◽  
Bilal H Alkhaffaf
Keyword(s):  
Bariatric Surgery ◽  
Health Care ◽  
Weight Loss ◽  
Thematic Analysis ◽  
Patient Perspective ◽  
Online Survey ◽  
Qualitative Data ◽  
Elective Surgery ◽  
Physical Symptoms ◽  
Psychological Effects

Background: The global COVID-19 pandemic has resulted in the widespread suspension of bariatric surgical programs. Although this rapid adaption was initially necessary, the implications of delaying the most effective treatment for weight loss in a population at risk from this crisis are not well known. Moreover, as the health care trusts plan the reintroduction of elective services, it is vital to also consider the patient’s perspectives, to adequately weigh up the benefits and risks of this recommencement in the current climate. Objectives: We aimed to investigate the impacts that postponing bariatric surgery has had on patients, and their priorities when restarting elective surgery. Methods: An online survey of patients awaiting surgery was undertaken, examining the physical and psychological impacts of pandemic isolation policies and postponing surgery, and exploring patient preferences regarding surgery during the pandemic. Results: Of 71 patients, 67.6% gained a median of 4 kg (interquartile range: 2.6-6.4), and 74.6% had adverse psychological effects; 93.0% were keen to proceed with surgery. Thematic analysis of qualitative data revealed delays have worsened physical symptoms, increased anxiety, and delayed secondary life-altering treatments. Conclusion: From the patient’s perspective, postponing surgery has been deleterious and efforts to safely reintroduce bariatric programs should be promoted.

Extent of and Reasons for Vaccine Hesitancy in Adults at High-Risk for Pneumococcal Disease

2021 ◽  
pp. 089011712199814
Author(s):  
Justin Gatwood ◽  
Madison McKnight ◽  
Kelsey Frederick ◽  
Kenneth Hohmeier ◽  
Shiyar Kapan ◽  
...  
Keyword(s):  
High Risk ◽  
Thematic Analysis ◽  
Pneumococcal Disease ◽  
Online Survey ◽  
Qualitative Data ◽  
Response Rate ◽  
Vaccine Hesitancy ◽  
Provider Education ◽  
Free Response ◽  
Cross Sectional

Purpose: To determine the extent of and reasons for hesitancy toward vaccination among adults at high-risk for pneumococcal disease. Design: Cross-sectional. Setting: Online survey in March-April 2019 via QuestionPro. Subjects: Tennessee adults (18-64 years) at high-risk of pneumococcal disease (n = 1,002). Measures: Modified version of the validated Vaccine Hesitancy Scale assessed vaccine-related beliefs, reasons for hesitancy, external influences on vaccination, and prior vaccination Analysis: Descriptive and inferential statistics provided an overview of the responses and comparisons among subgroups. Logistic regression determined the odds of being hesitant using the listed beliefs and influencers as predictors. Thematic analysis was performed on the qualitative data gathered from free response questions throughout the survey. Results: Analysis included 1,002 complete responses (12% response rate [total viewed = 8,331]) with 34.3% indicating hesitancy toward one or more recommended vaccinations, with 53% of which indicating hesitancy to the pneumococcal vaccine despite it being recommended by the Advisory Committee on Immunization Practices (ACIP) for all respondents. The odds of vaccine hesitancy or resistance were higher in minorities (OR: 1.6; 95% CI: 1.19-2.11), those not believing others like them get vaccinated (OR: 1.82; 95% CI: 1.262-2.613), and respondents recalling negative media about vaccines (OR: 2.56; 95% CI: 1.797-3.643). Conclusions: Patients at high-risk of pneumococcal disease lack awareness of the need for the recommended vaccine, and provider education may need improving to increase vaccination in this population.

Evaluating the implementation potential of a transcultural tool for Tamil migrants with gestational diabetes mellitus living in Switzerland

2017 ◽  
Vol 2 (2) ◽  
Keyword(s):  
Diabetes Mellitus ◽  
Logistic Regression ◽  
Gestational Diabetes ◽  
Gestational Diabetes Mellitus ◽  
Online Survey ◽  
Healthcare Professionals ◽  
Binary Logistic Regression ◽  
Private Practices ◽  
Populations At Risk ◽  
Management Procedures

Background: Gestational diabetes mellitus is a condition that affects many pregnancies and ethnicity appears to be a risk factor. Data indicate that approximately 18% of Tamil women are diagnosed with gestational diabetes mellitus. Today, approximately 50,000 of Tamils live in Switzerland. To date, there is no official tool available in Switzerland that considers the eating and physical activity habits of this migrant Tamil population living in Switzerland, while offering a quick overview of gestational diabetes mellitus and standard dietetics management procedures. The NutriGeD project led by Bern University of Applied Sciences in Switzerland aimed at closing this gap. The aim of this present study was to evaluate the implementation potential of the tools developed in the project NutriGeD for dietetic counseling before their wide scale launch in Swiss hospitals, clinics and private practices. Method: An online survey was developed and distributed to 50 recruited healthcare professionals working in the German speaking region of Switzerland from October – December 2016 (31% response rate). The transcultural tools were sent to participants together with the link to the online survey. The evaluation outcome was analysed using binary logistic regression and cross tabulation analysis with IBM SPSS version 24.0, 2016. Results: 94% (N=47) respondents believed that the transcultural tools had good potential for implementation in hospitals and private practices in Switzerland. A binary logistic regression analysis revealed that the age of participants had a good correlation (42.1%) on recommending the implementation potential of the transcultural tool. The participants with age group 34- 54 years old where the highest group to recommend the implementation potential of the transcultural tool and this was found to be statistically significant (p=0.05). 74% (34 out of 50) of the respondents clearly acknowledged the need for transcultural competence knowledge in healthcare practices. 80% (N =40) of the respondents agreed that the information presented in the counseling display folder was important and helpful while 60% (N= 30) agreed to the contents being clinically applicable. 90% (N=45) participants recommended the availability of the evaluated transcultural tools in healthcare settings in Switzerland. Conclusion: The availability in healthcare practice of the evaluated transcultural tools was greatly encouraged by the Swiss healthcare practitioners participating in the survey. While they confirmed the need for these transcultural tools, feed-backs for minor adjustments were given to finalize the tools before their official launch in practice. The developed materials will be made available for clinical visits, in both hospitals and private practices in Switzerland. The Migmapp© transcultural tool can serve as a good approach in assisting healthcare professionals in all fields, especially professionals who practice in areas associated with diet - related diseases or disorders associated with populations at risk.

GPs’ experience of safeguarding in care homes: what do they see and what do they do?

2020 ◽  
Vol 70 (suppl 1) ◽  
pp. bjgp20X711269
Author(s):  
Elisabeth Alton ◽  
Caroline White
Keyword(s):  
Online Survey ◽  
Qualitative Data ◽  
Care Home ◽  
Health Needs ◽  
Care Homes ◽  
Electronic Records ◽  
Multiple Relationships ◽  
Home Context ◽  
Emerging Themes ◽  
Multiple Health

BackgroundAbuse of older people in care homes is an on-going problem. GPs, as the most frequent practitioner group visiting care homes, have an important role in detecting and reporting abuse. However, there is little research about GPs’ experiences of working in care homes and how they work to safeguard residents.AimTo explore the challenges experienced by GPs working in this unique environment and how these impact on safeguarding.MethodAn online survey collected qualitative data about GPs’ experiences as visiting professionals to care homes, with an emphasis on safeguarding. A thematic analysis identified key themes.ResultsIn total, 58 completed surveys were returned, with a range of practitioner experience represented (1–30 years). Approximately 70% were GP partners, with the remainder salaried and locum doctors. Over one third reported they had witnessed signs of definite or possible abuse within care homes. Emerging themes related to the complex care home context, in which residents had multiple health needs and GPs had to build multiple relationships with managers, carers, families, and residents. Difficulties in accessing information were reported; residents could not always provide information, GPs had to rely on others for information, and rarely had access to electronic records.ConclusionGP work in care homes is a complex and skilled role, in which GPs encounter evidence of poor care and abuse. Key themes in respect of barriers and facilitators of good care were highlighted. The reliance on others for information and the need to build relationships with staff/managers may raise tensions in respect of safeguarding practice.

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