Abstract NS8: Male Caregivers Report Problems and Successes Caring for Wives/Partners

Stroke ◽  
2017 ◽  
Vol 48 (suppl_1) ◽  
Author(s):  
Linda L Pierce ◽  
Victoria Steiner

Background: Stroke is sudden/often traumatic; its results affect both the person with stroke and family members providing care. Transitioning from the non-caregiver role to caregiver for a spouse who recently had a stroke may be unsettling, particular for men. Purpose: Guided by Friedemann’s framework of systemic organization, t his secondary data analysis examined problems and successes reported by males caring for partners (wife or long-time friend) in the first year after stroke. According to this framework, these men are driven by the desire for success, resulting in health/ well-being or congruence in caring. Whereas incongruence or poor health can result from problems experienced in caring. Method: Using a descriptive design with IRB approval, caregivers (n=73) participated in bimonthly telephone interviews for one year. These caregivers were asked open-ended questions about problems and successes experienced in caring in the past two weeks. For this analysis, only the males caring for a partner (n=12 wives; n=1 friend) were examined. These data were analyzed using Colaizzi’s rigorous method of content analysis. Results: The caregivers were white men with an average age of 62 years. Most were high school graduates, employed full-time, rated their health as very good/excellent, and spent 2-16 hours caring each day. There were 275 problems and 393 successes in caring reported. Five problem themes emerged: 1) adjusting to multi-tasking in everyday living, 2) recognizing physical and mental disabilities, 3) dealing with outside forces and limited resources, 4) struggling to return to normal, and 5) feeling physically, mentally and emotionally exhausted. These problem themes demonstrated incongruence as the men sought to maintain their prior lives. Three success themes appeared: 1) gaining confidence through functional improvement, 2) fostering success through mutually positive attitudes, and 3) resuming normal roles. The success themes demonstrated how these men were able to find a level of well-being/congruence in caring. Conclusions: Theory-based themes of male stroke caregivers’ problems and successes were uncovered that can be used to target interventions to help them achieve balance between incongruence and congruence in their lives.

Author(s):  
Alessio Gori ◽  
Eleonora Topino

This study aimed at investigating the psychological effect of the COVID-19 pandemic in Italy by analysing the trends of perceived stress, post-traumatic symptoms, state anxiety, worry, and civic moral disengagement in four different moments from March 2020 to March 2021. The study involved a total of 1827 Italian participants (30% men and 70% women; Mage = 34.72; SD = 12.40) divided into four groups to which an online survey was administered. The first group completed the survey in March 2020, the second one in August 2020, the third one in November 2020, and the fourth one in March 2021. Results highlighted significant decreases in post-traumatic symptoms and a significant increase in civic moral disengagement over the first year of the COVID-19 pandemic. The levels of perceived stress, worry, and state anxiety remained constant. The correlations between the variables at different times were also explored, as well as gender differences over the year. The COVID-19 emergency has had significant effects on the mental state of the population, with important repercussions for individual and collective well-being during but probably also after the pandemic. This study offers a clear snapshot of the psychological outcomes over one COVID-19 pandemic year, providing important information that may contribute to tailor more effective interventions for mental health.


2018 ◽  
Vol 32 (4) ◽  
pp. 400-412
Author(s):  
Tingting Liu

Background and Purpose: Although lifestyle interventions have been shown to be effective in losing weight and increasing physical activity in community settings, little is known whether these programs may also ameliorate negative mood states in healthy overweight/obese adults when such programs are delivered in workplace settings. The aim of the study was to determine whether a health partner program may alleviate depressive symptoms among healthy overweight/obese individuals at 1 year. Methods: A secondary data analysis was performed using the Center for Health Discovery and Well Being database at Emory University in the United States. A total of 297 healthy overweight/obese university employees were recruited from the health partner program. Participants worked with health partners to establish an individualized health action plan, which might include changes in diet or exercise, modification of risk-related behaviors (e.g., tobacco use, alcohol use), and stress reduction strategies such as yoga. Depressive symptoms were measured by the Beck Depression Inventory-II at baseline and one-year follow-up. Results: At baseline, 9.7% of participants had depressive symptoms. At one-year follow-up, these participants had a small-to-moderate improvement in depressive symptoms (Cohen’s d = 0.423), and the changes in depressive symptoms were statistically significant (p < 0.001). Implications for Practice: Since overweight/obese individuals are more likely to experience depressive symptoms than normal-weight individuals, early interventions to steer these individuals to better mental health are therefore essential. This study has demonstrated the potential benefits of a health partner program on alleviating depressive symptoms among overweight/obese individuals and this should be integrated into clinical practice.


2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 1044-1045
Author(s):  
Megan Thomas Hebdon ◽  
Jiayun Xu ◽  
Djin Tay ◽  
Maija Reblin ◽  
Kristin Cloyes ◽  
...  

Abstract Hospice caregivers experience burden that impacts their physical, emotional, and social well-being. Little is known about how caregiver burden impacts occupational well-being through employment and work productivity. Thus, our purpose was to explore the relationships between caregiver burden and dimensions of work productivity/impairment (absenteeism, presenteeism, activity impairment, and overall impairment) among working hospice cancer caregivers. This is a secondary data analysis of baseline data from a larger study of caregiver communication and bereavement. Study data including demographics, preparedness for caregiving, caregiver burden, and work productivity/impairment were analyzed using descriptive statistics, correlation analysis, and stepwise multiple linear regression. Dimensions of work productivity/impairment were dependent variables, and age and preparedness for caregiving were covariates. Working caregivers (N=54) had an average age of 52 (SD: 12.65), and were primarily White (83%), female (70%), married (69%), employed full-time (70%) and had a household income of $50,000 or more (65%). Greater caregiver burden was significantly associated with lower preparedness for caregiving (r=-.41, p&lt;.01), and greater activity impairment (r=.50, p&lt;.01), presenteeism (r=.44, p&lt;.01), and overall impairment (r=.36, p&lt;.05), but not absenteeism. Caregiver burden predicted activity impairment (b=1.72 [.72, 2.71], p&lt;.01), presenteeism (b=1.44 [.33, 2.55], p&lt;.01), and overall impairment (b=1.42 [.09, 2.74], p&lt;.05), even after controlling for age and preparation for caregiving. More burdened caregivers may be having more challenges with work productivity. Additional research is needed to examine these relationships in a larger, more diverse sample. Future research should also investigate how supportive work environments and leave policies reduce caregiver burden and promote work productivity.


1984 ◽  
Vol 1 (1) ◽  
pp. 53-62 ◽  
Author(s):  
Clare Morris

Probation– a word I had always associated with the prison service rather than teaching. In my early naïvety I thought it rather derogatory to use this word to describe my first year as a teacher. A four-year university course was surely enough, I felt, to allow me to remove the learner label and to be fully qualified. But, as I gradually came to realise, the first year in full-time teaching was as much a learning process for me as it was for my pupils.My training had consisted of a three-year Music and Education degree followed by a one-year PGCE course. I am not entirely certain that PGCE courses are the most effective means of training teachers, because their brevity limits the amount of time spent in schools. However, the system does allow the opportunity of more specialised study first, and I am grateful to have been able to do a teacher training course as well. The breadth of the PGCE studies confused me. At times I wondered whether the study of educational psychology and sociology would be better replaced by more down-to-earth advice on lesson preparation and the control of difficult classes. In retrospect I realise that virtually all the work was useful and, anyway, the music tutorials covered practical matters.


2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S488-S488
Author(s):  
Bert Hayslip

Abstract Previous work reflecting a shift in views about custodial grandparents has emphasized such persons’ strengths. Such research has specifically indicated that resilience cross sectionally mediates the relationship between the stressfulness of the demands of raising a grandchild and both adjustment-related and parentally relevant outcomes. To explore the dynamics of such relationships in a one-year longitudinal framework, 86 grandparent caregivers completed a variety of measures targeting personal and parental functioning as well as resilience at initial and one-year follow-up occasions. Findings indicated that resilience at T1 predicated (p &lt; .05) the following at T2: parental stress, parental efficacy, health, well-being, depression, grandparent role satisfaction, self-rated life disruption, and grandchild and grandchild behavioral/emotional difficulties. T1 resilience also predicted a T2 index of overall personal resources (better health/social support, less life disruption). At the same time, the following at T1 emerged as antecedents (p &lt; .05) of T2 resilience: parental stress, parental efficacy, grandparent role satisfaction, depression, health, grandchild attachment, and well-being. In addition, overall personal adjustment (higher grandparent role satisfaction, more positive caregiver role appraisal, greater well-being, higher grandchild attachment, less depression) as well as greater overall personal resources each predicted (p &lt; .05) greater T2 resilience. These findings not only extend previous cross-sectional research reinforcing the value of resilience in understanding grandparent caregivers, but also indicate that numerous parental and personal variables may lay the groundwork for the development of resilience, wherein these data also suggest that the relationship between resilience and grandparent caregiver functioning may be bidirectional in nature.


2015 ◽  
Vol 41 (4) ◽  
pp. 299-304 ◽  
Author(s):  
Adalberto Sperb Rubin ◽  
Douglas Zaione Nascimento ◽  
Letícia Sanchez ◽  
Guilherme Watte ◽  
Arthur Rodrigo Ronconi Holand ◽  
...  

AbstractObjective: To evaluate the changes in lung function in the first year after single lung transplantation in patients with idiopathic pulmonary fibrosis (IPF).Methods: We retrospectively evaluated patients with IPF who underwent single lung transplantation between January of 2006 and December of 2012, reviewing the changes in the lung function occurring during the first year after the procedure.Results: Of the 218 patients undergoing lung transplantation during the study period, 79 (36.2%) had IPF. Of those 79 patients, 24 (30%) died, and 11 (14%) did not undergo spirometry at the end of the first year. Of the 44 patients included in the study, 29 (66%) were men. The mean age of the patients was 57 years. Before transplantation, mean FVC, FEV1, and FEV1/FVC ratio were 1.78 L (50% of predicted), 1.48 L (52% of predicted), and 83%, respectively. In the first month after transplantation, there was a mean increase of 12% in FVC (400 mL) and FEV1 (350 mL). In the third month after transplantation, there were additional increases, of 5% (170 mL) in FVC and 1% (50 mL) in FEV1. At the end of the first year, the functional improvement persisted, with a mean gain of 19% (620 mL) in FVC and 16% (430 mL) in FEV1.Conclusions: Single lung transplantation in IPF patients who survive for at least one year provides significant and progressive benefits in lung function during the first year. This procedure is an important therapeutic alternative in the management of IPF.


2021 ◽  
pp. 189-193
Author(s):  
Ivana M. Krsmanović ◽  
Vesna M. Petrović

With the outbreak of COVID-19, universities worldwide were forced to quickly transition to online emergency teaching in order to secure the well-being of students and teachers. The paper analyses students’ attitudes towards the use of the Microsoft Teams platform in the instruction of English for Specific Purposes (ESP) at the Faculty of Technical Sciences Čačak during the winter semester 2020. The study focuses on students’ engagement with e-learning, their motivation, and overall satisfaction with ESP instruction during pandemic conditions. The study was conducted with first-year students of engineering (N=79) using an online survey as an exploratory, qualitative research instrument. The findings of the research revealed that students have positive attitudes towards the use of Microsoft Teams in ESP instruction as the e-learning environment. The results suggest that all the available features of the tool are perceived as beneficial and easy to adapt to, with the recorded sessions of online lectures and online testing rated the most useful segments of the online ESP instruction.


Blood ◽  
2020 ◽  
Vol 136 (Supplement 1) ◽  
pp. 30-31
Author(s):  
Hira S Mian ◽  
Gregory R Pond ◽  
Branavan Sivapathasundaram ◽  
Tanya M. Wildes ◽  
Jonathan Sussman ◽  
...  

Introduction Multiple myeloma (MM) is an incurable malignant plasma cell disease with a median age at diagnosis of 70 years, making it a disease of older patients. Although there has been much progress made in the therapeutics of MM, there is a paucity of data with regards to the symptoms experienced by these patients. Patient reported outcomes (PROS) represent an opportunity to both understand the magnitude as well as the temporal trend of this symptom burden. In 2007, routine prospective collection of patient-reported Edmonton Symptoms Assessment System (ESAS) scores during all outpatient cancer clinic visits was initiated in Ontario, Canada. The ESAS is a validated and reliable tool that assesses the severity of nine common symptoms: well-being, pain, tiredness, anxiety, depression, drowsiness, lack of appetite, nausea and shortness of breath. The study of longitudinal data from an administrative data base provides a unique opportunity to understand the symptom burden experienced by MM patients in the 'real-world' at a population level. Methods We conducted a retrospective population-based study using administrative data from the Institute of Clinical Evaluative Sciences (ICES), which maintains a central database of health records for all patients in the publicly funded health care system for the province of Ontario, Canada. All patients with newly diagnosed multiple identified using the ICD-O-3 code 9732 (Multiple Myeloma), who received treatment, but no transplant in the first year, between the years Jan 2007-Dec 2018, were identified. The main outcome of interest was an ESAS score of ≥4 which has been shown to represent clinically significant moderate to severe symptom burden, within the first 12 months following MM diagnosis. Logistic regression was used to assess the association between baseline factors identified a priori and moderate to severe symptoms for each domain. Results A total of 4611 transplant ineligible patients with newly diagnosed myeloma were identified between the years 2007-2018. Of these, 2876 (62.3%) with at least one ESAS score following diagnosis were included in this analysis. This represented 27,701 unique ESAS assessments recorded during the first year, which were used to form the cohort. Baseline characteristics for transplant ineligible patients with one or more ESAS are shown in Table I. Trajectory for moderate to severe symptoms in each month following diagnosis is shown in Figure 1. A high proportion of the cohort reported moderate to severe symptoms at diagnosis, with tiredness (64%) and impaired well-being (60%) being among the most prevalent and nausea being the least prevalent (13%). Most symptoms decreased over the first year, with the largest decline happening in the first 3 months. One year following diagnosis, there continued to be a substantial burden of symptoms, with over 25% of the cohort reporting at least one or more of the following moderate-severe symptoms: tiredness, pain, impaired well-being, drowsiness or loss of appetite. Self-reported depression rates marginally decreased over time; however, at the end of one year, 18% of cohort still reported moderate to severe depression. On multivariable analysis, younger age, female sex, urban geographic location, poor socioeconomic status, an earlier diagnosis year, myeloma defining end-organ damage and non-teaching hospital were associated with a higher odds of reporting moderate to severe symptoms. Conclusion Our results demonstrate that there is considerable symptom burden during the first year following MM diagnosis, with tiredness, impaired well-being and pain being the most common. Although symptoms improve over time, a significant proportion of patients continue to experience moderate to severe symptoms one-year post diagnosis. This study represents the largest population-based cohort study done to date in symptom burden among patients with MM. Future studies aimed at targeted intervention are needed early in the disease course in order to alleviate symptoms burden for at-risk patient groups. Disclosures Mian: Takeda: Consultancy, Honoraria; Celgene: Consultancy; Janssen: Consultancy, Honoraria; Amgen: Consultancy, Honoraria; Sanofi: Consultancy. Pond:Roche Canada: Other; Astra Zeneca: Consultancy; Takeda: Honoraria. Wildes:Janssen: Research Funding; Seattle Genetics: Consultancy; Carevive Systems: Consultancy.


2013 ◽  
Vol 29 (1_suppl) ◽  
pp. 479-499 ◽  
Author(s):  
Kanako Iuchi ◽  
Laurie A. Johnson ◽  
Robert B. Olshansky

One year after the Tohoku-oki earthquake and tsunami of 11 March 2011, many coastal communities in Japan's Tohoku region show little progress in rebuilding. Yet as this paper explains, localities, along with affected prefectures and the national government, have been embroiled in a complex, iterative planning process that has involved scientific modeling of future tsunami risk scenarios, difficult decisions about future land uses and funding for reconstruction, and the creation of new polices, programs, and institutions. Taking time to plan conflicts with the urgency to rebuild, but it also provides an opportunity to reflect local needs and to coalesce on a shared vision for rebuilding. While Tohoku's future still remains uncertain, these planning efforts may ultimately lay the foundation for a successful and efficient recovery. Conversely, they may cause unnecessary delays that only exacerbated the region's already fragile economy and community well-being.


2021 ◽  
Author(s):  
Syandrez Prima Putra ◽  
Mutia Lailani ◽  
Liganda Endo Mahata ◽  
SM Rezvi ◽  
Andani Eka Putra

Abstract Background: COVID-19 test positivity rate (TPR) is essential to estimate and control SARS-CoV-2 transmission in a population at a specific time, yet the TPR trends at a provincial level in Indonesia are unclear. This study aimed to determine the COVID-19 TPR dynamics of the Indonesian West Sumatra province in the first year of documented cases.Methods: We conducted a retrospective study using secondary data of the COVID-19 quantitative reverse transcription-polymerase chain reaction (q-RT-PCR) test in West Sumatra Province from April 2020 to March 2021. To examine trends, we estimated TPR(s) on an annual, quarterly, and monthly basis in the province, its regions (cities/ regencies), and districts.Results: From a total of 410,424 individuals taking the COVID-19 q-RT-PCR examination during one year, the provincial TPR was 8.11%. The third quarter (October 2020 – December 2020, 12.18%) and October 2020 (15.62%) had the highest TPR quarterly and monthly, respectively. The TPR of cities was almost certainly twice that of regencies. Annual TPR varied significantly (p<0.001) across regions, districts, and periods.Conclusion: The COVID-19 TPR trends in West Sumatra at the first year of the pandemic were generally higher than the global recommendation. Further study on population density, public mobility, and implementation of health protocol in the province should be valuable to understand TPR dynamics.


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