scholarly journals A multicenter survey on the aspects of everyday life in adult patients with primary antibody deficiencies treated with immunoglobulin G replacement during the COVID-19 pandemic

2021 ◽  
Vol 35 ◽  
pp. 205873842110443
Author(s):  
Katarzyna Napiórkowska-Baran ◽  
Tomasz Rosada ◽  
Ewa Więsik-Szewczyk ◽  
Marcin Ziętkiewicz ◽  
Aleksandra Matyja-Bednarczyk ◽  
...  

Introduction The COVID-19 pandemic has changed many aspects of everyday life. Patients with primary immunodeficiency (PID) are in a particularly difficult situation. The purpose of the present study was to contribute to the very limited research on the everyday aspects of functioning in PID patients during the COVID-19 pandemic. Methods The survey included 85 adult PID patients treated with immunoglobulin replacement therapy in four reference centers for immunology. Everyday functioning of the patients as well as their opinion concerning new solutions in medical care were analyzed. Results During the pandemic, the percentage of patients experiencing fear/anxiety has increased from 47% to 70%. The wide dissemination of information about the SARS-CoV-2 in the media has increased anxiety in 40% of the patients. Patients diagnosed with PID were most afraid of the exposure to contact with strangers, especially in public places. As many as 67 respondents (79%) considered the introduction of restrictions concerning social functioning as good. Only every fifth person learned about the pandemic from reliable sources. Eighty three percent of the patients receiving immunoglobulin substitution experienced less fear of SARS-CoV-2 infection. The patients positively evaluated the solutions related to the direct delivery of drugs to the place of residence in order to continue home IgRT therapy. Fifty three respondents (62.5%) believed that the possibility of a remote consultation was a very good solution. Conclusion It is necessary to increase educational activities concerning the pandemic provided by health care professionals, as patients obtain information mainly from the media and the Internet, which adversely affects the feeling of anxiety. The pandemic, in addition to the very negative impact on patients and the deterioration of their daily functioning, has made patients appreciate their life more, devote more time to family and friends, and do things they like.

2021 ◽  
Vol 3 (1) ◽  
pp. 78-92
Author(s):  
José Edilson Amorim

ResumoA partir de uma crônica de Bráulio Tavares, este artigo reflete sobre cenas da precariedade de ontem e de hoje. A primeira cena está em Lima Barreto, em Recordações do escrivão Isaías Caminha, ao referir a Revolta da Vacina no Rio de Janeiro do século XX, comparada às manifestações de 2013 e 2014 no país; a segunda é a espetacularização da mídia sobre as manifestações de rua em 2013 e 2014, e sobre o processo de impedimento do mandato presidencial de Dilma Rousseff em 2015; a terceira é uma cena da vida cotidiana de uma moça de Brasília em outubro de 2014. As três situações revelam o mundo da classe trabalhadora e seu desamparo em meio ao espetáculo midiático.Palavras-chave: Trabalho. Mídia. Política. Espetáculo. AbstractFrom a chronicle by Bráulio Tavares, this paper reflects about scenes of the precariousness of yesterday and today. The first scene is in Lima Barreto’s novel Recordações do escrivão Isaías Caminha (Memories of the scrivener Isaías Caminha), when referring to the Vaccine Revolt in the Rio de Janeiro of the 20th century, compared to the manifestations of 2013 and 2014 in Brazil; the second is about the media spectacularization of the street manifestations between 2013 e 2014 in Brazil, and also on Dilma Rousseff's impeachment process in 2015; the third one is from the everyday life of a girl from Brasília in October of 2014. All those three situations reveal the world of the working class and its helplessness in the face of the media spectacularization.Keywords: Work. Media. Politics. Spectacle.


Author(s):  
Simon Stjernholm

This chapter explores a willingness on behalf of certain Muslim preachers to move beyond traditional preaching styles and create material that fits well within current social media practices. Focusing on the media productions of two Muslim preachers in Sweden, the chapter analyses how they experiment with oratory genres and modes. Using self-imposed brevity and multimodal communication in a type of media production defined here as a ‘reminder’, these preachers try to exhort their audiences to consider matters felt to be of pressing religious nature. The examples illustrate attempts to expand the reach of Islamic religious discourses beyond mosque environments and into the everyday life of an audience, with the potential of achieving a different kind of rhetorical work than a regular lecture or sermon.


2019 ◽  
pp. 113-123
Author(s):  
Alina Ivanenko

Hitler occupation of Ukraine became the most difficult challenge for the Ukrainian people as the "new order" leaders’ aim was to eliminate the population of captured territories, to prepare a living space for the "Aryan people" whom Hitler and his ascendants considered the Germans to be. The policy of the Nazi regime on the occupied territories, which were regarded as an object of exploitation, oppression and robbery, led to significant changes in the practice of everyday life of the civilian population. History becomes more anthropological and it encourages the study of everyday life in order to understand holistic picture of historical events. This picture had its own peculiarities in different regions of Ukraine. In the Soviet period the issues of everyday life in occupied areas were considered fragmentarily, with the main focus on the other images - the nationwide struggle against the invaders, the moral and political unity of the Ukrainian people, the leading role of the party in fighting back the occupiers, etc. In fact, modern national scientists had to study the problem of anthropological measurements of occupation from scratch. However, in recent decades in Ukraine there has appeared a lot of historical research, the subject of which is the anthropological defining of occupation. These studies are being considered in the given article. A particular subject of research and this publication as well is certain categories of population: women, minors and intelligentsia. The existence of these categories of people in occupation has certain features that researchers disclose from different, often opposite, points of view. At the present stage various aspects of the Ukrainian peasantry life during the years of Nazi occupation are investigated by O. Potylchak, O. Perekhrest, V. Revehuk, T. Nagayko and others. The works of T. Vronska, K. Kurylyshyn, L. Kovpak, O. Isaikin, M. Herasimov, V. Kononenko, A. Yankovska and others were dedicated to the everyday life issues in the years of the Second World War and in the first post-war decade. The material, household and social spheres in the post-occupation period in different regions of Ukraine were studied by S. Galchenko, M. Dedkov, I. Spudka. However, in most of these works, the strategies of town people’s survival in the liberated territories in 1943-1945 are briefly outlined. Some researchers (T. Zabolotna, T. Nahayko, O. Savitska, V. Yakovenko) emphasize the everyday life of individual cities. I. Vetrov researched the economic robbery of the national economy and the population of Ukraine by invaders. Some aspects of the social policy of occupiers are highlighted in the study of O. Potylchak. M. Shevchenko, V. Hedz conducted a study of "female" narrative sources. Nowadays there are two directions of coverage of children lives during the occupation. The first direction is represented by D. Slobodynsky, who assumes that the state of children during the Nazi occupation of Ukraine was unbearable. H. Holysh and L. Holysh consider that children and teens played a very active role in the struggle against the Nazis. The state of the intelligentsia during the occupation was studied by L. Bidocha, V. Hinda, O. Salata, T. Zabolotna. The researchers point to the reasons of cooperation of this segment of the population with the occupants, which in fact did not differ from the motives of other groups of society. The author comes to the conclusion that the Nazi occupation had a negative impact on the various spheres of life of the society at that time, which led to significant changes in the everyday life of the local population of Central Ukraine. At that period the majority of people tried to fulfill their existential needs, for example to preserve their own lives and protect their loved ones in particular. The author comes to the conclusion that the aspects of people’s life during the Nazi occupation, disclosed by the authors in modern historiography, constitute a far-incomplete picture of Ukrainians’ life during this period. There are issues that require a detailed study and analysis of researchers in order to imagine life and daily realities on the occupied territory and what problems they had to deal with in order to survive in those conditions. There is a considerable spectrum of problems associated with the occupational routine, which requires a detailed study and analysis of researchers and it allows to make a coherent picture of living conditions on the occupied territories of Ukraine.


1997 ◽  
Vol 21 (4) ◽  
pp. 729-746 ◽  
Author(s):  
Frieder R. Lang ◽  
Margret M. Baltes

Being alone and being with people are both important determinants for adaptation in the everyday life of elderly people. We examined the relationship between social contact (engagement in activities alone or in the presence of others), difficulties experienced with daily activities when with people or when alone, everyday satisfaction, and self-reported autonomy. Greater levels of social contact are associated with greater everyday satisfaction as long as participants report no difficulty in daily activities. However, greater levels of social contact are associated with lower self-reported autonomy among very old participants (85-104 years) and social contact is unrelated to self-reported autonomy among old participants (70-84 years). The findings suggest that the compensatory use of social resources and the selective narrowing of social contact in daily activities contribute to adaptive everyday functioning in later life.


2018 ◽  
Vol 66 (2) ◽  
pp. 243-257
Author(s):  
Nicola Glaubitz

Abstract Tom McCarthy’s novels are informed by media theory, and this essay reads his novel Remainder not only with theory in order to highlight parallels to reflections on cultural techniques and sociotechnical networks but also tries to assess its relevance as theory. My essay will, first of all, introduce the media theoretical framework of cultural techniques and show how cultural techniques are described in Remainder. The parallel agendas of the novel and cultural techniques research, I argue, converge in a shared interest in materiality, practices, and the seemingly banal details of everyday life but put them into different perspectives. I will then read Remainder as a contribution to the theoretical debate on cultural techniques and suggest that the novel draws our attention to a politics of detail in theories of practices, the everyday, and cultural techniques.


Author(s):  
Isabella Cosse

The 1960s in Argentina was a time convulsed by profound social, cultural, and political changes. Reflecting on the effect these processes had on the everyday, conceived as the spaces and routines involved in the reproduction of life that vary according to social class, generation, and gender, provides a valuable perspective for studying historical phenomena. It gives substance to and evidences the social nature of personal experience. Through that prism, the study of everyday life will be the gateway to understanding the turbulence produced by cultural effervescence, growing consumerism, the expansion of the media, the problems triggered by economic instability and escalating inflation, and the ruptures caused by political and social radicalization and the rise of repressive violence.


Author(s):  
Khaled Hassan

To identify changes in the everyday life of hepatitis subjects, we conducted a descriptive, exploratory, and qualitative analysis. Data from 12 hepatitis B and/or C patients were collected in October 2011 through a semi-structured interview and subjected to thematic content review. Most subjects have been diagnosed with hepatitis B. The diagnosis period ranged from less than 6 months to 12 years, and the diagnosis was made predominantly through the donation of blood. Interferon was used in only two patients. The findings were divided into two groups that define the interviewees' feelings and responses, as well as some lifestyle changes. It was concluded that the magnitude of phenomena about the disease process and life with hepatitis must be understood to health professionals. Keywords: Hepatitis; Nursing; Communicable diseases; Diagnosis; Life change events; Nursing care.


2021 ◽  
pp. 104-109
Author(s):  
Chernysh O.O.

The urgency of the researched problem is connected with the growing role of mass media in modern conditions leads to change of values and transformation of identity of the person. The active growth of the role of the media, their influence on the formation and development of personality leads to the concept of “media socialization” and immutation in the media. The aim of the study is to outline the possibilities of the process of media socialization in the context of immutation in the media. The methods of our research are: analysis of pedagogical, psychological, literature, synthesis, comparison, generalization. The article analyzes the views of domestic and foreign scientists on the problem of immutation in the media and the transformation of the information space. In the context of the mass nature of the immutation of society, the concept of “media socialization” becomes relevant, which is the basis for reducing the negative impact of the media on the individual.The author identifies the lack of a thorough study of the concept of “media socialization” in modern scientific thought. Thus, media socialization is associated with the transformation of traditional means of socialization, and is to assimilate and reproduce the social experience of mankind with the help of new media.The article analyzes the essence of the concepts “media space”, “mass media” and “immutation”. The influence of mass media on the formation and development of the modern personality is described in detail.The study concluded that it is necessary to form a media culture of the individual, to establish safe and effective interaction of young people with the modern media system, the formation of media awareness, media literacy and media competence in accordance with age and individual characteristics for successful media socialization. The role of state bodies in solving the problem of media socialization of the individual was also determined. It is determined that the process of formation of media culture in youth should take place at the level of traditional institutions of socialization of the individual.The author sees the prospect of further research in a detailed analysis and study of the potential of educational institutions as an institution and a means of counteracting the mass nature of the immutation of society.Key words: immutation, media socialization, mass media, media space, information.


2006 ◽  
Vol 2 (1) ◽  
pp. 70-79 ◽  
Author(s):  
Ben Highmore

From a remarkably innovative point of departure, Ben Highmore (University of Sussex) suggests that modernist literature and art were not the only cultural practices concerned with reclaiming the everyday and imbuing it with significance. At the same time, Roger Caillois was studying the spontaneous interactions involved in games such as hopscotch, while other small scale institutions such as the Pioneer Health Centre in Peckham, London attempted to reconcile systematic study and knowledge with the non-systematic exchanges in games and play. Highmore suggests that such experiments comprise a less-often recognised ‘modernist heritage’, and argues powerfully for their importance within early-twentieth century anthropology and the newly-emerged field of cultural studies.


2019 ◽  
Vol 146 (2) ◽  
pp. 472-480
Author(s):  
Oksana Hodovanska
Keyword(s):  

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