scholarly journals “Could you give us an idea on what we are all doing here?” the Patient Voice in Cancer Research (PVCR) starting the journey of involvement in Ireland

2021 ◽  
Vol 7 (1) ◽  
Author(s):  
Éidín Ní Shé ◽  
Aoife Gordan ◽  
Barbara Hughes ◽  
Tom Hope ◽  
Teresa McNally ◽  
...  
Keyword(s):  
Cancer Research ◽  
Cancer Diagnosis ◽  
Good Sense ◽  
The Core ◽  
Patient Voice ◽  
University College ◽  
The Future ◽  
Over Time

Abstract Background Involving patients and their carers in research has become more common, as funders demand evidence of involvement. The ‘Patient Voice in Cancer Research’ (PVCR) is an initiative led by University College Dublin (UCD) in Ireland. It encourages and enables people affected by cancer, and their families to become involved in shaping and informing the future of cancer research across the island of Ireland. Its aim is to identify the questions and needs that matter most to (i) people living with a cancer diagnosis, and (ii) those most likely to improve the relevance of cancer research. The initiative commenced in April 2016. Methods This paper presents a reflective case study of our journey thus far. We outline three key stages of the initiative and share what we have learnt. At the core of PVCR, is a focus on building long-term relationships. Results We have developed over time an inclusive initiative that is built on trust and respect for everyone’s contributions. This work is grounded on collegiality, mixed with a good sense of humour and friendship. Conclusion The development of PVCR has taken time and investment. The benefits and impact of undertaking this work have been immensely rewarding and now require significant focus as we enhance cancer research across the island of Ireland.

scholarly journals Agritourism—A Business Reality of the Moment for Romanian Rural Area’s Sustainability

2021 ◽  
Vol 13 (11) ◽  
pp. 6313
Author(s):  
Ramona Ciolac ◽  
Tiberiu Iancu ◽  
Ioan Brad ◽  
Tabita Adamov ◽  
Nicoleta Mateoc-Sîrb
Keyword(s):  
Rural Communities ◽  
Distribution Channels ◽  
Scientific Paper ◽  
Business Owners ◽  
The Future ◽  
Tourism Potential ◽  
The Moment ◽  
Managerial Experience ◽  
Over Time

The agritourism activity can be a characteristic reality of the present, considering rural area’s sustainability, being at the same time a business reality for rural entrepreneurs and a “must have” for rural communities that have tourism potential. It is a form of tourism, through which the tourist can receive a qualitative product at a reasonable price, but also a field that can ensure sustainable development over time, being at the same time environmentally friendly. The purpose of this scientific paper is to identify the aspects that make agritourism “a possible business reality of the moment”, for Romanian rural area’s sustainability. We take into account the following areas: Bran-Moieciu area—considered “the oldest” in terms of agritourism experience, and Apuseni Mountains area, with a great inclination and potential for this activity. The study conducted for these two areas is focused on several aspects: the degree of involvement in agritourism activities, considering the number of years and managerial experience, the analysis of the types of activities/experiences offered by agritourism structures, the identification of the main reasons/motivations for the orientation towards agritourism and the manner in which this field is perceived. Aspects related to the marketing-finance part of the agritourism business are also taken into account: customers, distribution channels, financial sources, shortcomings observed by agritourism business owners and possible action directions so as to improve the activity/agritourism product. Agritourism may be “a possible business reality of the moment” for the studied areas and not only, but in the future, the entrepreneur/farmer must be constantly updated because of the changing situations that appear on the market, be able to make sustainable decisions for his/her own business, which in the future will ensure its viability and obviously its long-term profitability and development, and in the same time rural area’s sustainability.

scholarly journals A Holistic Framework for Evaluating Adaptation Approaches to Coastal Hazards and Sea Level Rise: A Case Study from Imperial Beach, California

Water ◽  
2021 ◽  
Vol 13 (9) ◽  
pp. 1324
Author(s):  
David Revell ◽  
Phil King ◽  
Jeff Giliam ◽  
Juliano Calil ◽  
Sarah Jenkins ◽  
...  
Keyword(s):  
Sea Level Rise ◽  
Sea Level ◽  
Public Trust ◽  
Adaptation Strategy ◽  
Public Benefits ◽  
Study Results ◽  
Local Risk ◽  
Over Time

Sea level rise increases community risks from erosion, wave flooding, and tides. Current management typically protects existing development and infrastructure with coastal armoring. These practices ignore long-term impacts to public trust coastal recreation and natural ecosystems. This adaptation framework models physical responses to the public beach and private upland for each adaptation strategy over time, linking physical changes in widths to damages, economic costs, and benefits from beach recreation and nature using low-lying Imperial Beach, California, as a case study. Available coastal hazard models identified community vulnerabilities, and local risk communication engagement prioritized five adaptation approaches—armoring, nourishment, living shorelines, groins, and managed retreat. This framework innovates using replacement cost as a proxy for ecosystem services normally not valued and examines a managed retreat policy approach using a public buyout and rent-back option. Specific methods and economic values used in the analysis need more research and innovation, but the framework provides a scalable methodology to guide coastal adaptation planning everywhere. Case study results suggest that coastal armoring provides the least public benefits over time. Living shoreline approaches show greater public benefits, while managed retreat, implemented sooner, provides the best long-term adaptation strategy to protect community identity and public trust resources.

scholarly journals Assessing the Capacity of Adaptive Policy Pathways to Adapt on Time by Mapping Trigger Values to Their Outcomes

2019 ◽  
Vol 11 (6) ◽  
pp. 1716 ◽  
Author(s):  
Luciano Raso ◽  
Jan Kwakkel ◽  
Jos Timmermans
Keyword(s):  
Monitoring System ◽  
Decision Makers ◽  
Level Of Confidence ◽  
Adaptive Policy ◽  
Misclassification Errors ◽  
The Future ◽  
Adaptive Action ◽  
The Face

Climate change raises serious concerns for policymakers that want to ensure the success of long-term policies. To guarantee satisfactory decisions in the face of deep uncertainties, adaptive policy pathways might be used. Adaptive policy pathways are designed to take actions according to how the future will actually unfold. In adaptive pathways, a monitoring system collects the evidence required for activating the next adaptive action. This monitoring system is made of signposts and triggers. Signposts are indicators that track the performance of the pathway. When signposts reach pre-specified trigger values, the next action on the pathway is implemented. The effectiveness of the monitoring system is pivotal to the success of adaptive policy pathways, therefore the decision-makers would like to have sufficient confidence about the future capacity to adapt on time. “On time” means activating the next action on a pathway neither so early that it incurs unnecessary costs, nor so late that it incurs avoidable damages. In this paper, we show how mapping the relations between triggers and the probability of misclassification errors inform the level of confidence that a monitoring system for adaptive policy pathways can provide. Specifically, we present the “trigger-probability” mapping and the “trigger-consequences” mappings. The former mapping displays the interplay between trigger values for a given signpost and the level of confidence regarding whether change occurs and adaptation is needed. The latter mapping displays the interplay between trigger values for a given signpost and the consequences of misclassification errors for both adapting the policy or not. In a case study, we illustrate how these mappings can be used to test the effectiveness of a monitoring system, and how they can be integrated into the process of designing an adaptive policy.

Creating continuous areas of old forest in long-term forest planning

2000 ◽  
Vol 30 (11) ◽  
pp. 1817-1823 ◽  
Author(s):  
Karin Öhman
Keyword(s):  
Net Present Value ◽  
Problem Formulation ◽  
Core Area ◽  
Northern Sweden ◽  
Present Value ◽  
The Core ◽  
Long Range Planning ◽  
The Cost

Harvest activities tend often to create landscapes where the old forest is fragmented into isolated patches that provide marginal conditions for species that inhabit forest interiors. This paper presents a long-range planning model designed to maximize the net present value and to create continuous patches of old forest. In this model, the spatial structure of old forest is controlled by core area and edge habitats. Core area is defined as the area of old forest that is free of edge effects from surrounding habitats. The core area requirement is set to a fixed value for each of a number of time periods, whereas the area of edge habitats, which should be as small as possible, is weighted against the net present value. The model is applied in a case study to an actual landscape consisting of 755 stands of forest in northern Sweden and solved using simulated annealing. The results show that distinct continuous patches of old forest are created when both a core area requirement and consideration of the amount of edge habitats are included in the problem formulation. The cost of creating continuous areas of old forest was found to be significant.

The Future of Christian Marriage

2020 ◽  
pp. 191-216
Author(s):  
Mark Regnerus
Keyword(s):  
Christian Faith ◽  
Marriage Rates ◽  
The Core ◽  
Moral Communities ◽  
Public Nature ◽  
The Future ◽  
The Government ◽  
Bearing Structure ◽  
Marital Behavior ◽  
Over Time

The foundational vision of marriage as a load-bearing structure has receded, but the core and key expectations of marriage have not changed. As a result, marriage rates have declined. Fewer Christians will marry in the future, but given their elevated commitment to matrimony, they will comprise an increasing share of the world’s marriages over time. The recession in marriage highlights the collapse of familism and the rise of atomism. The data supports one particular theory about how religion influences marital behavior—the moral communities thesis, which concludes that Christian marriage is tightly linked to wider trends, suggesting marriage is a public matter. Religious efforts to “get the government out of the marriage business” are shortsighted. How central is marriage to Christian faith and practice? Very. Given its public nature, cohabitation threatens Christianity more than does premarital sex. The book concludes with five predictions for what to expect next.

Knowledge, meaning, and the world's great challenges

2004 ◽  
Vol 57 (2) ◽  
pp. 182-202 ◽  
Author(s):  
David F. Ford
Keyword(s):  
Future Generations ◽  
Teaching And Research ◽  
Cambridge University ◽  
The Core ◽  
Wide Range ◽  
The Future ◽  
Value Ethics ◽  
The University ◽  
Critical Questioning

The future of Cambridge University is discussed in the context of the current British and global situation of universities, the main focus being on what the core concerns of a major university should be at this time. After raising issues related to core intellectual values (truth-seeking, rationality in argument, balanced judgement, integrity, linguistic precision and critical questioning) and the sustaining of a long-term social and intellectual ecology, four main challenges are identified: uniting teaching and research fruitfully; interrelating fields of knowledge appropriately across a wide range of disciplines; contributing to society in ways that are responsible towards the long-term flourishing of our world; and sustaining and reinventing collegiality so that the university can be a place where intensive, disciplined conversations within and across generations can flourish. The latter leads into questions of polity, governance and management. Finally, the inseparability of teaching, research and knowledge from questions of meaning, value, ethics, collegiality and transgenerational responsibility leads to proposing ‘wisdom’ as an integrating concept. The relevant sources of wisdom available are both religious and secular, and in a world that is complexly both religious and secular we need universities that can be places where both are done justice. Given the seriousness and long-term nature of the conflicts associated with religious and secular forces in our world, it is especially desirable that universities in their education of future generations contribute to the healing of such divisions.

Long-Term Evolution of a Conceptual Schema

2011 ◽  
pp. 280-296 ◽  
Author(s):  
Lex Wedemeijer
Keyword(s):  
Error Correction ◽  
Business Environment ◽  
Information Need ◽  
Conceptual Schema ◽  
Doing Business ◽  
Schema Design ◽  
Derived Data ◽  
Over Time

Enterprises need data resources that are stable and at the same time flexible to support current and new ways of doing business. However, there is a lack of understanding how flexibility of a Conceptual Schema design is demonstrated in its evolution over time. This case study outlines the evolution of a highly integrated Conceptual Schema in its business environment. A gradual decline in schema quality is observed: size and complexity of the schema increase, understandability and consistency decrease. Contrary to popular belief, it is found that changes arent driven only by accepted causes like new legislation or product innovation. Other change drivers are identified like error correction, changing perceptions of what the information need of the business is and elimination of derived data. The case shows that a real Conceptual Schema is the result of objective design practices as well as the product of negotiation and compromise with the user community.

The Problem of Chronic Refugee Communities: Applying Complexity Theory to the Situation Along the Thai–Myanmar Border

2019 ◽  
Author(s):  
Ora-Orn Poocharoen ◽  
Jeffrey D. Straussman ◽  
David E. Guinn
Keyword(s):  
Complex System ◽  
Complexity Theory ◽  
Management Strategies ◽  
Policy Options ◽  
Time Dynamic ◽  
Adaptive Techniques ◽  
Dynamic Development ◽  
Over Time

Abstract Intractable long-term or chronic refugee communities present serious challenges to common refugee-management strategies. We argue that they are best understood and managed by using adaptive techniques drawn from complexity theory. To illustrate this strategy, we use the refugee communities situated along the Thai–Myanmar border as a case study. The article outlines the key elements of complexity theory, the complexity lens, for use in analysis of the problem. It then applies the complexity lens to the case study: identifying and describing the actors and networks that compose the complex system of the Thai–My refugees (the complex system) and the dynamic developments within that community over time (dynamic development). Based on this analysis, the article utilizes the complexity lens to evaluate the policy options commonly offered for the management of this ongoing refugee situation.

scholarly journals Helping Yourself or Others? Motivation Dynamics for High-Performing Volunteers in GLAM Crowdsourcing

2020 ◽  
Vol 24 ◽  
Author(s):  
Sultana Lubna Alam ◽  
Ruonan Sun ◽  
John Campbell
Keyword(s):  
Financial Incentives ◽  
Incentive Structure ◽  
Open Communication ◽  
Non Profit ◽  
High Performing ◽  
For Profit ◽  
Not For Profit ◽  
Over Time

While most crowdsourcing (CS) cases in the literature focus on commercial organisations, little is known about volunteers’ motivation of initial and continued participation in not-for-profit CS projects and importantly, about how the motivations may change over time. It is vital to understand motivation and motivational dynamics in a not-for-profit context because a fundamental challenge for not-for-profit CS initiations is to recruit and keep volunteers motivated without any formal contract or financial incentives. To tackle this challenge, we explore high performing volunteers’ initial motivation for joining and sustaining with a GLAM (galleries, libraries, archives and museums) CS project. We situated our interpretive exploration in a case study of the Australian Newspapers CS project initiated by the National Library of Australia. Based on the case study, we found that high-performing volunteers were motivated by a combination of personal, collective, and external factors classified into intrinsic, extrinsic, and internalised extrinsic motivations. Further, we found that these motivations changed over time. Specifically, many volunteers presented substantial personal (i.e., personal interest and fun) and community-centric motivations (i.e. altruism and non-profit cause) when they initially joined the project, whereas external motivations (i.e., recognition and rewards) had a greater impact on long-term participation. Our findings offer implications for CS system design (e.g., user profiles, tagging and commenting), incentive structure (e.g., reputation-based ranking, leader boards), and relational mechanisms (e.g., open communication channels) to stimulate sustainable contributions for not-for-profit CS initiatives.

Thawing the ice: a contemporary solution to Antarctic sovereignty

Polar Record ◽  
2017 ◽  
Vol 53 (4) ◽  
pp. 436-447
Author(s):  
Wygene Chong
Keyword(s):  
Primary Reason ◽  
Global Commons ◽  
Governance Framework ◽  
Effective Implementation ◽  
The Future ◽  
Antarctic Treaty ◽  
Territorial Claims ◽  
The Antarctic ◽  
Over Time

ABSTRACTThe Antarctic Treaty System (ATS) has provided a peaceful framework for governing the continent over many decades, in spite of seven extant territorial claims. However, its method of freezing these claims has been criticised for being short-sighted and ineffective in providing a long-term solution. This paper argues to the contrary. It undertakes a brisk analysis of different categories of alternatives: global commons, absolute sovereignty, restricted sovereignty and shared sovereignty. After dismissing each category for various reasons, it promotes the reform of the existing ATS, in which a long-term vision and modified chairmanship structure provide stronger leadership and more effective implementation. Essentially, it holds that the primary reason there is criticism of the system is because it is not functioning as well as it might be. The paper not only contends that a developed ATS is an achievable aim, but that it could eventually develop into a restricted, shared sovereignty governance framework. That form of governance, which would emerge over time, could be a more durable solution that resolves the competing territorial claims. In this way, the paper charts a potential pathway for the future of Antarctic governance. This path begins, however, with a reformed ATS.

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