Perspectives on healthcare providers’ role in health promotion among cancer survivors.

2020 ◽  
Vol 38 (15_suppl) ◽  
pp. e24037-e24037
Author(s):  
Karina I. Halilova ◽  
Nataliya V. Ivankova ◽  
Laura Q. Rogers ◽  
Maria Pisu ◽  
Fontaine R. Kevin ◽  
...  
Keyword(s):  
Health Promotion ◽  
Cancer Survivors ◽  
Health System ◽  
Health Systems ◽  
Cancer Survivorship ◽  
Cancer Care ◽  
Healthy Lifestyle ◽  
Healthcare Providers ◽  
Structured Interviews ◽  
Web Based

e24037 Background: To further integrate health promotion into cancer survivorship care, we explored multilevel perspectives on potential roles healthcare providers could have in promoting uptake of web-based healthy lifestyle programs among cancer survivors. Methods: In developing the Aim, Plan, and Act on Lifestyles (AMPLIFY) Survivor Health diet and exercise web-based program, we conducted 10 focus groups with 57 cancer survivors and 27 individual semi-structured interviews with stakeholders representing advocacy groups (e.g., cancer survivorship support foundations; n = 8), cancer organizations (e.g., industry, health system; n = 11), and survivors’ supportive partners (n = 8). Verbatim transcripts were analyzed by multiple coders using inductive thematic analysis with NVivo 12. Results: Survivors (49% female; 40% African-American, mean age 63.7 years) and stakeholders (60% female) stated that healthcare provider and health system recommendation and support are vital for ensuring acceptance and use of web-based healthy lifestyle programs by cancer survivors. Survivors expressed that physician’s (e.g., oncologist, other physician) recommendation and support would motivate them to join and participate. Supportive partners also endorsed the importance of provider recommendations and the key role of health system support (e.g., reminders in doctor’s office, hospitals, web-based portal, and endorsement from cancer centers). Advocacy group representatives underscored the importance of data-driven support for the effects of such programs as critical for promotion. Moreover, technology supported continuous cancer care (e.g., physician communication and feedback) were seen as critical for sustained participation. Stakeholders from cancer organizations suggested survivors in need could be identified and referred during assessments in various cancer care clinics. This group also emphasized the need to integrate evidence-based healthy lifestyle recommendations into continuing medical education, medical board certifications, support and referrals into existing standard of cancer care, and to involve other key stakeholders and larger scale health systems in promotion. Conclusions: Healthcare providers and health systems have important roles in promoting and sustaining participation in web-based healthy lifestyle programs among cancer survivors. Further work developing, testing, and refining strategies to enhance their role in promoting the acceptability and uptake of healthy lifestyle programs by cancer survivors are needed.

scholarly journals Exploring patient-provider interactions and the health system’s responsiveness to street-connected children and youth in Kenya: a qualitative study

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Embleton Lonnie ◽  
Shah Pooja ◽  
Gayapersad Allison ◽  
Kiptui Reuben ◽  
Ayuku David ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Health System ◽  
Health Systems ◽  
Cultural Context ◽  
Healthcare Providers ◽  
Children And Youth ◽  
Economic Factors ◽  
Health Coverage ◽  
Socially Constructed ◽  
Prompt Attention

Abstract Background In Kenya, street-connected children and youth (SCY) have poor health outcomes and die prematurely due to preventable causes. This suggests they are not accessing or receiving adequately responsive healthcare to prevent morbidity and mortality. We sought to gain insight into the health systems responsiveness to SCY in Kenya through an in-depth exploration of SCY’s and healthcare provider’s reflections on their interactions with each other. Methods This qualitative study was conducted across 5 counties in western Kenya between May 2017 and September 2018 using multiple methods to explore and describe the public perceptions of, and proposed and existing responses to, the phenomenon of SCY in Kenya. The present analysis focuses on a subset of data from focus group discussions and in-depth interviews concerning the delivery of healthcare to SCY, interactions between SCY and providers, and SCY’s experiences in the health system. We conducted a thematic analysis situated in a conceptual framework for health systems responsiveness. Results Through three themes, context, negative patient-provider interactions, and positive patient-provider interactions, we identified factors that shape health systems responsiveness to SCY in Kenya. Economic factors influenced and limited SCY’s interactions with the health system and shaped their experiences of dignity, quality of basic amenities, choice of provider, and prompt attention. The stigmatization and discrimination of SCY, a sociological process shaped by the social-cultural context in Kenya, resulted in experiences of indignity and a lack of prompt attention when interacting with the health system. Patient-provider interactions were highly influenced by healthcare providers’ adverse personal emotions and attitudes towards SCY, resulting in negative interactions and a lack of health systems responsiveness. Conclusions This study suggests that the health system in Kenya is inadequately responsive to SCY. Increasing public health expenditures and expanding universal health coverage may begin to address economic factors, such as the inability to pay for care, which influence SCY’s experiences of choice of provider, prompt attention, and dignity. The deeply embedded adverse emotional responses expressed by providers about SCY, associated with the socially constructed stigmatization of this population, need to be addressed to improve patient-provider interactions.

scholarly journals Organizing Psycho-Oncological Care for Cancer Patients: The Patient’s Perspective

2021 ◽  
Vol 12 ◽  
Author(s):  
Anouk S. Schuit ◽  
Karen Holtmaat ◽  
Valesca van Zwieten ◽  
Eline J. Aukema ◽  
Lotte Gransier ◽  
...  
Keyword(s):  
Cancer Patients ◽  
Cancer Care ◽  
Healthcare Providers ◽  
Structured Interviews ◽  
Oncological Treatment ◽  
Face To Face ◽  
Patient’S Perspective ◽  
Oncological Care ◽  
After Cancer ◽  
To Receive

BackgroundCancer patients often suffer from psychological distress during or after cancer treatment, but the use of psycho-oncological care among cancer patients is limited. One of the reasons might be that the way psycho-oncological care is organized, does not fit patients’ preferences. This study aimed to obtain detailed insight into cancer patients’ preferences regarding the organization of psycho-oncological care.Methods18 semi-structured interviews were conducted among cancer patients. Patients completed psycho-oncological treatment between 2015 and 2020 at the psychology department in a general hospital or a center specialized in psychological cancer care in the Netherlands. The interview comprised questions related to preferences regarding the institute where to receive treatment, the psychologist who provides treatment, and the type of treatment, as well as questions related to experienced barriers and facilitators to receive psycho-oncological care. Interviews were digitally recorded and transcribed verbatim. Data were analyzed individually by two coders into key issues and themes.ResultsRegarding the institute, easy accessibility and prompt availability of psychol-oncological care were considered important. Regarding the psychologist, most participants had a strong preference to be treated by a psychologist specialized in cancer or other somatic diseases. Individual face-to-face therapy was preferred above other types of treatment. Several barriers were mentioned to receive psycho-oncological treatment, among which poor accessibility to psycho-oncological care, lack of knowledge on the possibilities for psycho-oncological treatment, and stigma. Most frequently mentioned facilitators were being assertive to ask for help, having a good relationship with the healthcare professional, and the integration of psycho-oncological support within medical cancer care.ConclusionFrom the patient’s perspective, the organization of psycho-oncological care for cancer patients should focus on easy accessibility and availability, delivered by specialized psychologists, and integration in medical cancer care. Online and group therapy are acceptable, but individual face-to-face therapy is preferred. It is warranted to increase awareness on psycho-oncological care targeting both patients and healthcare providers.

scholarly journals Protocol for the avatar acceptability study: a multiperspective cross-sectional study evaluating the acceptability of using patient-derived xenografts to guide personalised cancer care in Australia and New Zealand

BMJ Open ◽  
2018 ◽  
Vol 8 (8) ◽  
pp. e024064 ◽  
Author(s):  
Claire E Wakefield ◽  
Emma L Doolan ◽  
Joanna E Fardell ◽  
Christina Signorelli ◽  
Veronica F Quinn ◽  
...  
Keyword(s):  
Cancer Survivors ◽  
Cancer Care ◽  
New Technologies ◽  
Cross Sectional Study ◽  
Decisional Balance ◽  
Local Health ◽  
Sectional Study ◽  
Structured Interviews ◽  
Cross Sectional ◽  
Advantages And Disadvantages

IntroductionPatient-derived xenografts (PDXs) have the potential to transform personalised cancer care, however, little is known about the acceptability of using PDXs to guide treatment decision-making. Given that patient and community preferences can influence satisfaction with care as well as the success of new technologies, we will evaluate the acceptability of PDXs in individuals affected by cancer and community comparisons.Methods and analysisThis comparative cross-sectional study will recruit 323 individuals affected by cancer (cancer survivors (of childhood or adult cancer) and parents of childhood cancer survivors) and 323 community comparisons (adults and parents). We will collect data via structured interviews and questionnaires. To determine the acceptability of PDXs, we will assess five domains: willingness to use PDXs when/if diagnosed with cancer, perceived advantages and disadvantages of PDXs, maximum acceptable out-of-pocket costs per patient, maximum acceptable turnaround time to receive results and maximum acceptable number of mice sacrificed per patient. The primary endpoint will be participants’ decisional balance ratio (calculated as participants’ advantages ratings divided by perceived disadvantages ratings).Ethics and disseminationThe study protocol has been approved by the South Eastern Sydney Local Health District Human Research Ethics Committee (HREC:12/173) and UNSW Sydney (HC15773). The results will be disseminated in peer-reviewed journals and at scientific conferences. A lay summary will be published on the Behavioural Sciences Unit website.

scholarly journals Healthy lifestyle discussions between healthcare providers and older cancer survivors: Data from 12 cancer centers in the Southeastern United States

2019 ◽  
Vol 8 (16) ◽  
pp. 7123-7132
Author(s):  
Karina I. Halilova ◽  
Maria Pisu ◽  
Andres Azuero ◽  
Courtney P. Williams ◽  
Kelly M. Kenzik ◽  
...  
Keyword(s):  
United States ◽  
Cancer Survivors ◽  
Healthy Lifestyle ◽  
Southeastern United States ◽  
Healthcare Providers ◽  
Cancer Centers

Perceptions of benefits and harms of alcohol consumption as predictors of alcohol cessation in adult cancer survivors.

2013 ◽  
Vol 31 (15_suppl) ◽  
pp. 9595-9595
Author(s):  
Geoffrey Liu ◽  
Dan Pringle ◽  
Osvaldo Espin-Garcia ◽  
Chongya Niu ◽  
Mary Mahler ◽  
...  
Keyword(s):  
Alcohol Consumption ◽  
Alcohol Use ◽  
Cancer Survivors ◽  
Healthy Lifestyle ◽  
Healthcare Providers ◽  
Comprehensive Cancer Center ◽  
Cancer Center ◽  
Logistic Regression Models ◽  
Adult Cancer Survivors ◽  
Alcohol Cessation

9595 Background: Survivorship programs are being developed at many cancer centers, addressing secondary prevention and healthy lifestyle issues. We evaluated whether perceptions regarding the harms and benefits of alcohol use influenced alcohol cessation or recidivism in adult cancer survivors. Methods: 531 cancer patients of all subtypes were surveyed at a comprehensive cancer center for their alcohol habits before and after cancer diagnosis and their perception of benefits/harms for continued drinking. Multivariate logistic regression models evaluated the association of each variable with change in alcohol consumption after diagnosis adjusted for significant socio-demographic and clinico-pathological covariates. Results: Among 325 current drinkers at diagnosis, 55% quit or cut down their alcohol consumption 1 year after diagnosis, while 16% of 95 ex-drinkers at diagnosis restarted drinking at 1 year. Negative perceptions of the effects of alcohol on the individual patient were strongly associated with cessation: the adjusted odds ratio (aOR) of quitting were significant for a perceived negative effect on quality of life (aOR=2.2, p=0.006), survival (aOR=3.8, p=1.3E-5), fatigue (aOR=3.1, p=4.6E-5) or an increased chance in self-harm (aOR=2.6, p=0.01). Perceptions of how alcohol affected the average cancer patient had similar associations. While perceptions did not influence alcohol recidivism rates, receiving chemotherapy was the only variable associated with continued abstinence (aOR=5.5, p=0.007). Although only 8% of patients received alcohol cessation information from an oncologist, it had the greatest impact on cessation (aOR=6.6, p=0.006), an association not seen with other information sources or other healthcare providers. Conclusions: Perception to the negative effects of alcohol use on their health in cancer survivors strongly predicted for alcohol cessation. The oncologist had a most significant counselling role for alcohol cessation.

Survivorship care plans: Processes, effective strategies, and challenges in a rural state.

2017 ◽  
Vol 35 (5_suppl) ◽  
pp. 47-47 ◽  
Author(s):  
Mary Isaacson ◽  
Polly Hulme ◽  
Jenna Cowan ◽  
Jennifer Kerkvliet ◽  
Mary Minton ◽  
...  
Keyword(s):  
Health System ◽  
Health Systems ◽  
Cancer Survivorship ◽  
Survivorship Care Plans ◽  
Survivorship Care ◽  
Open Communication ◽  
Effective Strategies ◽  
Care Plans ◽  
Process Framework ◽  
Rural State

47 Background: Annually, South Dakota (SD) averages nearly 4,000 new cancer cases with over 40,000 cancer survivors residing in the state. While the cancer incidence and survivorship rates in SD may be similar to the rest of the nation, SD’s unique geographic and demographic landscape offers challenges in cancer survivorship care. The purpose of this presentation is to illustrate the development and implementation of cancer survivorship care plans (SCP) at three health systems in the rural state of SD. Each of these health systems is unique in its history, culture, and infrastructure. Collectively, they serve most cancer patients living in SD. Methods: An observational qualitative design was used. Key players at each health system were interviewed using a structured interview. The interviews were audio-recorded and transcribed. The authors synthesized the transcriptions with member-checking completed for each system. Results: Processes for development and implementation of SCPs similar across health systems were (a) gathering a leadership team or making a designated staff role for survivorship care, (b) developing a SCP template(s), (c) provider/staff in-put and endorsement, and (d) tracking and identifying patients for scheduling and receipt. On the other hand, the health systems approached SCP completion and delivery differently. For example, at one health system multiple individuals from the patient’s care team were responsible for SCP population and completion. Effective strategies across health systems comprised incorporating prior SCP work, open communication, and standardization of SCPs with flexibility in implementation. Challenges included incompatibilities of electronic health record platforms for automatic SCP template population and adequate staffing for the complexities of enacting SCPs. Key findings suggest a process framework is beneficial for the development and implementation of SCPs. Conclusions: As health systems consider developing and implementing SCPs, consideration of the following recommendations for a process framework may be helpful: building a foundation, gathering resources, reviewing the evidence, eliciting input, and implementing in stages.

scholarly journals Staying afloat: community perspectives on health system resilience in the management of pregnancy and childbirth care during floods in Cambodia

2020 ◽  
Vol 5 (4) ◽  
pp. e002272 ◽  
Author(s):  
Dell D Saulnier ◽  
Hom Hean ◽  
Dawin Thol ◽  
Por Ir ◽  
Claudia Hanson ◽  
...  
Keyword(s):  
Public Health ◽  
Decision Making ◽  
Health System ◽  
Health Systems ◽  
Public Health System ◽  
Health Needs ◽  
Structured Interviews ◽  
The Public ◽  
Pregnancy And Childbirth ◽  
Childbirth Care

IntroductionResilient health systems have the capacity to continue providing health services to meet the community’s diverse health needs following floods. This capacity is related to how the community manages its own health needs and the community and health system’s joined capacities for resilience. Yet little is known about how community participation influences health systems resilience. The purpose of this study was to understand how community management of pregnancy and childbirth care during floods is contributing to the system’s capacity to absorb, adapt or transform as viewed through a framework on health systems resilience.MethodsEight focus group discussions and 17 semi-structured interviews were conducted with community members and leaders who experienced pregnancy or childbirth during recent flooding in rural Cambodia. The data were analysed by thematic analysis and discussed in relation to the resilience framework.ResultsThe theme ‘Responsible for the status quo’ reflected the community’s responsibility to find ways to manage pregnancy and childbirth care, when neither the expectations of the health system nor the available benefits changed during floods. The theme was informed by notions on: i) developmental changes, the unpredictable nature of floods and limited support for managing care, ii) how information promoted by the public health system led to a limited decision-making space for pregnancy and childbirth care, iii) a desire for security during floods that outweighed mistrust in the public health system and iv) the limits to the coping strategies that the community prepared in case of flooding.ConclusionsThe community mainly employed absorptive strategies to manage their care during floods, relieving the burden on the health system, yet restricted support and decision-making may risk their capacity. Further involvement in decision-making for care could help improve the health system’s resilience by creating room for the community to adapt and transform when experiencing floods.

scholarly journals Qualitative exploration of sexual life among breast cancer survivors at reproductive age

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Maryam Maleki ◽  
Abbas Mardani ◽  
Mansour Ghafourifard ◽  
Mojtaba Vaismoradi
Keyword(s):  
Breast Cancer ◽  
Data Analysis ◽  
Cancer Survivors ◽  
Breast Cancer Survivors ◽  
Healthcare Providers ◽  
Reproductive Age ◽  
Sexual Life ◽  
Main Theme ◽  
Structured Interviews ◽  
Sexual Health Counseling

Abstract Background Our understanding of the experiences of women at reproductive age regarding sexual life and issues they may face after starting the treatment of breast cancer is limited. Therefore, this qualitative study aimed to explore sexual life and its related issues among breast cancer survivors at reproductive age in Iran. Methods A qualitative research was conducted. Participants were 21 breast cancer survivors who were under 51 years of age that were chosen using purposeful sampling. In-depth semi-structured interviews were carried out for data collection and the content analysis method was used for data analysis. Results The data analysis led to the development of main theme of ‘unfulfilled sexual life’. Also, four subthemes were: ‘undesirable sexual function’, ‘context-based beliefs’, ‘unmet information and supportive needs’, and ‘emotional crisis’. Conclusions Our research findings inform healthcare providers about the experiences of breast cancer survivors and related changes in their sexual and marriage life at reproductive age. Nurses and other healthcare providers in the multidisciplinary team should proactively identify health-related problems and design appropriate caring strategies to mitigate sexual and marriage issues among breast cancer survivors. Also, the establishment of sexual health counseling units for breast cancer survivors can help this vulnerable group of women with the improvement of their long-term sexual satisfaction.

scholarly journals The Role of Physical Activity in Cancer Survivors’ Quality of Life

2020 ◽  
Author(s):  
Tayah M. Liska ◽  
Angie Kolen
Keyword(s):  
Quality Of Life ◽  
Physical Activity ◽  
Cancer Survivors ◽  
Cancer Diagnosis ◽  
Social Engagement ◽  
Healthcare Providers ◽  
Structured Interviews ◽  
Emotional Symptoms

Abstract Purpose As a result of a cancer diagnosis and treatment, many cancer survivors experience persistent physical, mental, and emotional symptoms that affect their quality of life. Physical activity has been identified as an intervention that may help to manage the side effects of a cancer diagnosis and its treatment. The purpose of this study was to investigate the role of physical activity on overall quality of life in adult cancer survivors.Methods One-on-one semi structured interviews were conducted in person or via telephone with 13 adult (≥18 yrs) cancer survivors who had completed cancer treatment.Results These cancer survivors described their physical activity as improving their physical functioning and mental health, as a means of positive social engagement, and adding positivity to their daily life.Conclusion These results support the role of physical activity to enhance cancer survivors’ quality of life regardless of the treatment(s) type, duration, or time since the end of active cancer treatment. Further research is warranted to (a) expand this research with a larger sample, (b) examine healthcare providers’ knowledge and application of exercise guidelines to cancer survivors in cancer care, and (c) explore implementation strategies for greater advocacy for healthcare providers to share the exercise recommendations with cancer survivors.

Sign in / Sign up

Export Citation Format

Share Document