Children With Cystic Fibrosis: I. Psychological Test Findings of Patients, Siblings, and Parents

PEDIATRICS ◽  
1977 ◽  
Vol 59 (6) ◽  
pp. 888-894
Author(s):  
William F. Gayton ◽  
Stanford B. Friedman ◽  
Joseph F. Tavormina ◽  
Ford Tucker
Keyword(s):  
Cystic Fibrosis ◽  
Chronic Illness ◽  
Emotional Disturbance ◽  
Psychological Impact ◽  
Family Satisfaction ◽  
Psychological Test ◽  
Personality Testing ◽  
Future Research ◽  
The Family ◽  
Q Sort

Psychological evaluation of 43 families, each with a child with cystic fibrosis, is reported. Personality testing of the parents showed that 32% of the fathers and 22% of the mothers obtained scores in the range suggestive of emotional disturbance. The Family-Concept Q Sort assessment of family interaction indicated that the primary effect of having a child with cystic fibrosis was in terms of decreased family satisfaction and family adjustment. The results do not support previous estimates of an increased incidence of emotional disturbance in children with cystic fibrosis. Evidence for negative psychological impact of chronic illness on sibling development was also lacking. Future research would benefit from a focus on the strengths and resilience of children with cystic fibrosis and their families.

scholarly journals The daily physiotherapy regimen in cystic fibrosis?

1986 ◽  
Vol 42 (3) ◽  
pp. 73-76
Author(s):  
L. M. Davids
Keyword(s):  
Cystic Fibrosis ◽  
Personal Experience ◽  
Recent Literature ◽  
Psychological Impact ◽  
Fibrocystic Disease ◽  
Breathing Exercises ◽  
Postural Drainage ◽  
The Family ◽  
Acute Exacerbations ◽  
Life Threatening

The aim of this paper is to question the accepted physiotherapy regimen for children with Fibrocystic Disease. Is it the most effective way of keeping the lungs clear of secretions? How much are we imposing added stress on an already stressed family? Is it not possible to design a programme which reduces stress and is socially acceptable?The traditional physiotherapy regimen of breathing exercises, postural drainage and percussion is described. Forced expiratory technique is described as well as various forms of nebulisation.The psychological impact on the family of a chronic, life-threatening disease, is discussed. Compliance with set physiotherapy regimens and the family's (especially the mother's) reaction to them is discussed.The most recent literature on the effectiveness of traditional physiotherapy techniques is reviewed.From this review as well as from personal experience, it is concluded that a rigid physiotherapy regimen is stressful and compliance is frequently poor. Suggestions are made on how to overcome this. It is stressed that this paper deals with the home programme, not with the hospital programme for acute exacerbations of the disease.

scholarly journals Parents’ Creative Self-Concept and Creative Activity as Predictors of Family Lifestyle

2020 ◽  
Vol 17 (24) ◽  
pp. 9558
Author(s):  
Izabela Lebuda ◽  
Dorota M. Jankowska ◽  
Maciej Karwowski
Keyword(s):  
Family Relationships ◽  
Family Satisfaction ◽  
Self Concept ◽  
Future Research ◽  
Creative Activity ◽  
Domain Specific ◽  
The Family ◽  
Family Rules ◽  
Specific Factors ◽  
Creative Self

Family rules, routines, and resources shape children’s creativity. However, little is known about how parents’ creative self-concepts and creative activity are related to the lifestyle adults create in their families. Family lifestyle might be operationalized as referring to domain-general dimensions of family social functioning (cohesion, flexibility, communication, and family satisfaction) and domain-specific factors related to creativity, namely, family climate for creativity (encouragement to experience novelty and varieties, encouragement to nonconformism, support of perseverance in creative efforts, encouragement to fantasize). To explore the link between parents’ creativity-related characteristics and family lifestyle, 303 Polish parents (57% mothers) of children aged between 6 and 10 (M = 7.99; SD = 1.38) reported on their creative self-concept (creative self-efficacy and creative personal identity), creative activity, overall family lifestyle, and climate for creativity in their families. We found that parents’ creative self-concept and their creative activity predict support for creativity in the family and more general balanced and satisfying family relationships. We discuss these findings, point new paths for future research, and suggest possible interventions to strengthen families as creativity-fostering environments.

The Effects of Childhood Chronic Illness on the Family: Implications for Health Care Professionals

1986 ◽  
Vol 5 (1) ◽  
pp. 111-127 ◽  
Author(s):  
Sharon Goszer Tritt ◽  
Lillian M. Esses
Keyword(s):  
Health Care ◽  
Clinical Practice ◽  
Chronic Illness ◽  
Health Care Professionals ◽  
Chronically Ill ◽  
Future Research ◽  
Entire System ◽  
Childhood Chronic Illness ◽  
Clinical Literature ◽  
The Family

This article traces and assesses the progress that has been made to date in understanding how childhood chronic illness impacts on subsystems of the family as well as on the family as a unit. Review of both the theoretical and the clinical literature raises several questions, including the utility of adopting a psychopathological model to ascertain the functioning of subsystems and the entire system in families wherein there exists a chronically ill child. The implications of these questions for future research endeavors and for clinical practice are discussed.

Growing Up With Chronic Illness: Psychosocial Adjustment of Children and Adolescents With Cystic Fibrosis

2003 ◽  
Vol 21 (1) ◽  
pp. 151-172 ◽  
Author(s):  
BECKY CHRISTIAN
Keyword(s):  
Cystic Fibrosis ◽  
Chronic Illness ◽  
Children And Adolescents ◽  
Psychosocial Adjustment ◽  
Psychiatric Symptoms ◽  
Developmental Change ◽  
Social Consequences ◽  
Future Research ◽  
Nursing Research ◽  
Inclusion Criteria

This chapter reviews the published research from 1980 through 2001 on the psychosocial adjustment of children and adolescents with cystic fibrosis. The inclusion criteria were that research was conducted by nurses and researchers from related disciplines that focused on the psychosocial adjustment of children (6 to 12 years) and/or adolescents (13 to 22 years) with cystic fibrosis (CF). Three computerized databases were used for retrieval: Cumulative Index of Nursing and Allied Health Literature (CINAHL), Medline, and PsycINFO. Of the 74 citations published from 1980 through 2001, only 20 studies met the inclusion criteria, including 7 nursing research studies and 13 studies published by nonnurses in related disciplines. Key findings from this review were that the focus of nursing research was on the social consequences of chronic illness, while the non-nursing research focused on self-concept, self-worth, and psychiatric symptoms of anxiety, worry, and behavior problems. Only two programs of research were identified. Developmental science was used as a guiding framework for the critique of the research. Recommendations for future research include developmentally sensitive longitudinal studies to track developmental change and stability over time, as well as research that captures individual developmental differences.

scholarly journals Parents’ Creative Self-Beliefs and Creative Activity as Predictors of Family Lifestyle

2020 ◽  
Author(s):  
Izabela Lebuda ◽  
Dorota Maria Jankowska ◽  
Maciej Karwowski
Keyword(s):  
Family Relationships ◽  
Family Satisfaction ◽  
Family Characteristics ◽  
Future Research ◽  
Creative Activity ◽  
Domain Specific ◽  
The Family ◽  
Specific Factors ◽  
Related Characteristic ◽  
Creative Self

Family rules, routines, and resources shape children’s creativity. However, little is known about how parents’ creative self-beliefs and creative activity are related to the lifestyle adults create in their families. Family lifestyle might be operationalized as referring to domain-general dimensions of family functioning (cohesion, flexibility, communication, and family satisfaction) and domain-specific factors related to creativity (encouragement to experience novelty and varieties; encouragement to nonconformism; support of perseverance in creative efforts; encouragement to fantasize). To explore the link between parents’ creativity-related characteristic and family lifestyle, 303 Polish parents (57% mothers) of children aged between 6 and 10 (M = 7.99; SD = 1.38) reported on their creative self-beliefs, creative activity, overall family characteristics, and climate for creativity in their families. We found that both parents’ creative self-beliefs (creative self-efficacy and creative personal identity) and their creative activity predict support for creativity in the family and more general balanced and satisfying family relationships. We discuss these findings, point new paths for future research, and suggest interventions in regards to the family creativity-fostering environment.

Parenting, Religion, and Moral Development

2019 ◽  
pp. 178-196
Author(s):  
Sam A. Hardy ◽  
David C. Dollahite ◽  
Chayce R. Baldwin
Keyword(s):  
Moral Development ◽  
Parenting Styles ◽  
Family Relationships ◽  
Future Research ◽  
Adolescent Religiosity ◽  
Faith Traditions ◽  
The Family ◽  
Role Of Religion

The purpose of this chapter is to review research on the role of religion in moral development within the family. We first present a model of the processes involved. Parent or family religiosity is the most distal predictor and affects moral development through its influence on parenting as well as child or adolescent religiosity. Additionally, parenting affects moral development directly, but also through its influence on child or adolescent religiosity. In other words, parent or family religiosity dynamically interconnects with parenting styles and practices, and with family relationships, and these in turn influence moral development directly as well as through child or adolescent religiosity. We also discuss how these processes might vary across faith traditions and cultures, and point to directions for future research.

Marital Satisfaction of Portuguese Families in Times of Social Lockdown

2021 ◽  
pp. 106648072110098
Author(s):  
Carla Sílvia Fernandes ◽  
Bruno Magalhães ◽  
Sílvia Silva ◽  
Beatriz Edra
Keyword(s):  
Marital Satisfaction ◽  
Exploratory Study ◽  
Social Economic ◽  
Future Research ◽  
Marital Relations ◽  
The Social ◽  
The Family ◽  
Convenience Sampling ◽  
Global Threat ◽  
The Impact

The COVID-19 pandemic represents a global threat and crisis situation, and its wide-reaching impact has also affected marital satisfaction. Dysfunction of the marital system puts the survival of the family unit at risk. This research aimed to determine the level of marital satisfaction of Portuguese families during the social lockdown and the association between the variables under study. A descriptive, exploratory study was conducted. During the social lockdown, 276 people of Portuguese nationality and residing in Portugal were recruited using nonprobabilistic convenience sampling. Marital satisfaction in the pandemic phase showed low values that may be associated with the social, economic, and political context experienced by the pandemic situation. Future research must be carried out in order to identify, prevent, and intervene in situations of violence. In addition, future research should explore not only marital satisfaction during the current pandemic but a more systemic assessment of marital relations during crises, expanding the impact of marital satisfaction in family functioning.

The psychological impact of active surveillance in men with prostate cancer: implications for nursing care

2021 ◽  
Vol 30 (10) ◽  
pp. S30-S37
Author(s):  
Sophie Biddle
Keyword(s):  
Prostate Cancer ◽  
Active Surveillance ◽  
Negative Impact ◽  
Psychological Impact ◽  
Future Research ◽  
Management Approach ◽  
Close Monitoring ◽  
Illness Uncertainty ◽  
Quantitative Studies ◽  
Positive Treatment

Introduction: Active surveillance is a conservative management approach to treating prostate cancer involving regular testing and close monitoring by the health professional. The aim of this literature review is to establish whether men experience a psychological impact of active surveillance and what the prevalent effects might be. Method: The search was carried out in three databases: CINAHL, Medline and PsycINFO. Articles published in English, from October 2015 to March 2018, which focused on the psychological impact of active surveillance, were included. Findings: A total of eight quantitative studies were included in this report. The review identified key psychological impacts of active surveillance, including anxiety, sub-clinical depression, illness uncertainty and hopelessness. Active surveillance was seen by some patients as a positive treatment approach that limited the side effects associated with active treatment. Conclusion: The evidence found a negative impact of active surveillance might be felt by men at any stage during treatment and at differing levels of severity. The article highlights key demographic areas, including ethnicity and age, for future research and recommends more qualitative studies are conducted.

scholarly journals Perception of Threat and Psychological Impact of COVID-19 among Expatriates in Makkah Region, Saudi Arabia

2021 ◽  
Vol 18 (12) ◽  
pp. 6650
Author(s):  
Majed A. Algarni ◽  
Mohammad S. Alzahrani ◽  
Yasser Alatawi ◽  
Raghad A. Alasmari ◽  
Hashem O. Alsaab ◽  
...  
Keyword(s):  
Saudi Arabia ◽  
Psychological Symptoms ◽  
Psychological Impact ◽  
Self Report ◽  
Future Research ◽  
Perceived Threat ◽  
Cross Sectional ◽  
Psychological Burden ◽  
Arabic Speakers ◽  
Perception Of Threat

In the first few months of the pandemic, Makkah region reported the highest number of COVID-19 cases among all regions in Saudi Arabia. More than 80% of these reported cases were non-Saudi residents. In this study, we evaluated the perceived threat from and psychological impact of COVID-19 among non-Saudi residents of Makkah region. This was a cross-sectional analysis of data collected using a standardized self-report questionnaire. A total of 292 expatriates were included in the study, the majority of whom were non-Arabic speakers. The prevalence of self-reported depression was nearly 40%, anxiety was 32%, and stress was 43%. The findings indicated variability in the prevalence of psychological symptoms among expatriates from different ethnic backgrounds. Additionally, work environment and perceived threat were strong predictors of psychological disorders. This suggested that the perceived threat from and psychological burden of COVID-19 among non-Saudis in Makkah region is substantial. Future research should investigate the reasons behind these variations in the psychological impact of the pandemic among different ethnic groups.

scholarly journals Antitrypanosomal and Antileishmanial Activity of Chalcones and Flavanones from Polygonum salicifolium

Pathogens ◽  
2021 ◽  
Vol 10 (2) ◽  
pp. 175
Author(s):  
Ahmed M. Zheoat ◽  
Samya Alenezi ◽  
Ehab Kotb Elmahallawy ◽  
Marzuq A. Ungogo ◽  
Ali H. Alghamdi ◽  
...  
Keyword(s):  
Human Cell Line ◽  
Antileishmanial Activity ◽  
Cross Resistance ◽  
Future Research ◽  
Parasitic Diseases ◽  
Leishmania Mexicana ◽  
First Line ◽  
Trypanosoma Brucei Brucei ◽  
The Family

Trypanosomiasis and leishmaniasis are a group of neglected parasitic diseases caused by several species of parasites belonging to the family Trypansomatida. The present study investigated the antitrypanosomal and antileishmanial activity of chalcones and flavanones from Polygonum salicifolium, which grows in the wetlands of Iraq. The phytochemical evaluation of the plant yielded two chalcones, 2′,4′-dimethoxy-6′-hydroxychalcone and 2′,5′-dimethoxy-4′,6′-dihydroxychalcone, and two flavanones, 5,7-dimethoxyflavanone and 5,8-dimethoxy-7-hydroxyflavanone. The chalcones showed a good antitrypanosomal and antileishmanial activity while the flavanones were inactive. The EC50 values for 2′,4′-dimethoxy-6′-hydroxychalcone against Trypanosoma brucei brucei (0.5 μg/mL), T. congolense (2.5 μg/mL), and Leishmania mexicana (5.2 μg/mL) indicated it was the most active of the compounds. None of the compounds displayed any toxicity against a human cell line, even at 100 µg/mL, or cross-resistance with first line clinical trypanocides, such as diamidines and melaminophenyl arsenicals. Taken together, our study provides significant data in relation to the activity of chalcones and flavanones from P. salicifolium against both parasites in vitro. Further future research is suggested in order to investigate the mode of action of the extracted chalcones against the parasites.

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