scholarly journals Profil Dehabilitasi Pasien Kusta di Rumah Sakit Kusta Alverno Singkawang: Studi Pendahuluan

2021 ◽  
Vol 9 (1) ◽  
pp. 30
Author(s):  
Sri Linuwih Susetyo Wardhani Menaldi ◽  
Valensia Vivian The ◽  
Inosensia Diajeng Kusumo ◽  
Melani Marissa

Abstrak Kusta dapat menyebabkan disabilitas permanen yang memengaruhi fisik dan psikis pasien. Stigmadiri dan stigma sosial menyebabkan pasien mengalami dehabilitasi yang dapat menurunkan kualitashidup penyandangnya. Penelitian ini merupakan studi pendahuluan yang bertujuan untuk mendapatkanprofil dehabilitasi pasien kusta termasuk orang yang pernah mengalami kusta (OYPMK). Penelitian inimenggunakan metode potong lintang untuk menilai profil dehabilitasi pasien kusta dan OYPMK menggunakanskala dehabilitasi Anandaraj di RS Kusta Alverno Singkawang, bulan Juli 2019. Delapan puluh delapan subjekdiikutkan dalam penelitian ini. Analisis data dilakukan menggunakan uji Mann Whitney untuk menilai hubungantipe kusta dan derajat dehabilitasi, serta uji Kruskal Wallis untuk melihat hubungan antara reaksi kusta danderajat disabilitas terhadap skala dehabilitasi. Analisis dilakukan menggunakan perangkat lunak SPSS formac. Subjek terbanyak adalah laki-laki, usia produktif, bekerja sebagai petani, berpenghasilan kurang dari 1,5juta per bulan, tidak bersekolah, sudah menikah, etnis Tionghoa, tinggal di dalam rumah yang padat, memilikikeluarga serumah yang menderita kusta, terdiagnosis kusta tipe multibasiler, pernah mengalami reaksi dantelah menyelesaikan pengobatan. Dari penelitian ini didapatkan bahwa tipe kusta dan disabilitas derajat noldan dua berhubungan dengan skala dehabilitasi Anandaraj (p<0.05). Stigma terhadap kusta hingga kinimerupakan masalah yang belum dapat diatasi. Stigma dan disabilitas akibat kusta berperan penting terhadapkejadian dehabilitasi yang menyebabkan penurunan kualitas hidup pasien kusta dan OYPMK. Kata kunci: Anandaraj, dehabilitasi, kusta, Singkawang.   Dehabilitation Profile of Leprosy Patients in Alverno Singkawang Hospital: a Preliminary Study Abstract Leprosy causes permanent disability that affects both physical and psychological aspect of the patient.Self-stigma and social stigma cause dehabilitation; therefore, reducing the quality of life of the patients. Thisresearch is a preliminary study to assess the dehabilitation profile of leprosy patients, including people whohave had leprosy (OYPMK). A cross-sectional method was used to assess the dehabilitation scale of leprosypatients in Alverno Leprosy Hospital, Singkawang, using the Anandaraj dehabilitation scale. Eighty-eightsubjects were included in the analysis. Mann-Whitney test was done to analyze the association betweentype of leprosy and dehabilitation scale, and Kruskal Wallis test was done to analyze the association betweenleprosy reaction and grade of disability with dehabilitation scale. Most subjects are male, productive age,farmers, less than 1.5 million wages per month, uneducated, married, Chinese ethnicity, living in a crowdedhouse, had a family with leprosy, diagnosed with multibacillary leprosy, had an episode of leprosy reaction danreleased from treatment. Type of leprosy and WHO disability grade 0 and 2 are related to the dehabilitationscale. Leprosy stigmatization is still a worrisome problem. Together with the disability, stigmatization affectsthe dehabilitation scale of leprosy patients leading to reduced quality of life. Keywords: Anandaraj, dehabilitation, leprosy, Singkawang.

2016 ◽  
Vol 1 (2) ◽  
pp. 164
Author(s):  
Reny Nugraheni

ABSTRAK Penderita kusta yang tidak mengetahui penatalaksanaan dalam perawatan yang tepat dapat mengakibatkan kecacatan yang permanen, penderita kusta akan mengalami beberapa masalah diantaranya rendah diri, depresi, menyendiri, atau menolak diri, serta masyarakat akan mengucilkan pasien sehingga sulit mencari pekerjaan. Provinsi Jawa Timur merupakan daerah penyumbang penderita kusta tertinggi di Indonesia dengan 4.116 kasus. Tujuan penelitian ini adalah mengetahui analisis konsep diri terhadap kualitas hidup penderita kusta yang mengalami kecacatan di Rumah Sakit Kusta Kediri. Desain penelitian analitik observasional dengan pendekatan cross sectional. Dengan teknik purposive Sampling diperoleh sampel 97 responden. Variabel independen konsep diri, variabel dependen kualitas hidup. Uji hipotesis menggunakan Spearman rank < (0,05). Hasil penelitian konsep diri penderita kusta yang mengalami kecacatan diketahui sebagian besar gambaran diri kurang, yaitu 55 responden (56,7%), hampir setengah ideal diri cukup, yaitu 40 responden (41,2%), hampir setengah harga diri dalam kategori cukup, yaitu 55 responden (56,7%), sedangkan sebagian besar peran diri dalam kategori cukup, yaitu 55 responden (56,7%) dan hampir setengah identitas diri dalam kategori cukup, yaitu 42 responden (43,3Sebesar 47,4% kualitas hidup pada kategori kurang. Hasil analisis terbukti bahwa ada hubungan konsep diri terhadap kualitas hidup penderita kusta yang mengalami kecacatan. Pembentukan konsep diri melalui komunikasi antarpribadi merupakan cara seseorang memandang dirinya melalui interaksi dengan orang lain. Konsep diri yang akan mempengaruhi diri seseorang dalam melakukan kontak komunikasi atau interaksi dengan orang lain.Kata Kunci: Konsep Diri, Kualitas Hidup, Penderita Kusta.Abstract The Analysis Self-Concept Against Quality Of Life Leprosy Patient’s Who Have Defects In Kediri Special Leprosy HospitalLeprosy will lead to changes in self-concept among low self-esteem, depression, withdrawn, or self deny, and society will isolate the patient so he get difficulty to find a job. East Java is an area of highest contributor leprosy patients in Indonesia with 4,116 cases. The purpose of this study was to determine analysis self-concept against quality of life leprosy patient’s that have defects In Kediri Special Leprosy Hospital. The study design was observational analytic with cross sectional approach. With a purposive sampling techniques responden.Variabel sample obtained 97 independent self-concept, the dependent variable quality of life. Data were collected using a questionnaire was tested using Spearman rank < (0.05). The results of the study the concept of self-lepers who have defects are known as many self-image is less, as many as 55 respondents (56.7%), almost half the ideal self-sufficient, ie 40 respondents (41.2%), almost half the price in the category of pretty, ie 55 respondents (56.7%), while most of the roles in enough categories, as many as 55 respondents (56.7%) and almost half of identity in enough categories, as many as 42 respondents (43.3%). almost half the quality live in the poor category, as many as 46 respondents (47.4%). The result of the analysis proven that there is a relationship of self-concept to leprosy patient’s quality of life that have defects. The formation of self-concept through interpersonal communication is the way a person sees himself through interaction with others. The concept of self that will affect one's self in contact communication or interaction with others.Keywords: Self-Concept, Quality of Life, Leprosy Patient


KnE Medicine ◽  
2017 ◽  
Vol 1 (1) ◽  
pp. 202
Author(s):  
Muhammad D. Priangga ◽  
Gita Pratama ◽  
Mila Maidarti ◽  
Achmad K. Harzif ◽  
Budi Wiweko

<p><strong>Introduction</strong></p><p>Infertility in Indonesia has an estimated prevalence as high as 22.3%, with the nature of the problem and its treatment could be devastating, it could affect quality of life and vice versa influence successful of the treatment. The Fertility Quality of Life (FertiQol) Questionnaire was specifically designed for infertility couples and has been demonstrated to have good properties. Studies in several countries has showed consistency in validity and reliability of the questionnaire. Precedently there has been no published study about Fertiqol in Indonesia, this preliminary study is to measure validity and reliability of FertiQol questionnaire among Indonesian infertility women.</p><p><br /> <strong>Material &amp; Methods</strong></p><p>This is a cross-sectional study, a written Fertiqol Questionnaire Indonesian version (www.Fertiqol.org) were distribute to Infertility clinic in Cipto Mangunkusumo General Hospital, total of 129 women completed the questionnaire. Statistical analysis used SPSS version 23.0. The questionnaire were tested for validity with Pearson’s correlation with two tailed and Cronbach α coefficient for reliability.<br /> <strong></strong></p><p><strong>Results</strong></p><p>FertiQol were completed by 129 women with infertility problem. The mean of total FertiQol score was 70.49±11.44, score for emotional, mind/body, relational, environment and tolerability was respectively 63.79±18.86; 66.05±18.22; 75.19.±15.11; 68.99±18.63; 75.64±16.55; 66.23±19.17. Reliability of Fertiqol was high (Cronbach a &gt; 0.70) with every item of questionnaires was valid ( r&gt; 0.1729).<br /> <strong></strong></p><p><strong>Conclusion</strong></p><p>This study showed that FertiQol Indonesian version are valid and reliable in measured quality of life among infertility women in Indonesia.</p>


Author(s):  
Nadeeja R. Liyanage ◽  
Mahendra Arnold ◽  
Millawage Supun D. Wijesinghe

Background: Leprosy can affect the quality of life (QOL) of a person in many ways. Deformities and disabilities in leprosy leads to physical impairment. The stigma associated with leprosy leads to social isolation, which affects patient psychologically. By assessing the QOL would give an in-depth understanding of the effects on leprosy in different dimensions of health.Methods: A descriptive cross-sectional study was conducted to assess the QOL of 572 adult leprosy patients attending clinics in the western province using a locally validated Sinhala version of the WHOQOL-BREF questionnaire. Consecutive sampling method was used and data were collected using an interviewer-administered questionnaire (IAQ). The scores ranged from 1 to 5 for overall QOL and overall general health questions.Results: The overall QOL had a mean score of 3.4 (SD=0.8) and overall general health had a mean of 3.6 (SD=2.2). The mean scores of domains of WHOQOL-BREF included physical 69.8 (SD=17.1), psychological 68.2 (SD=16.6), social 55.1 (SD=25.0), environment 64 (SD=18.3) in the sample. With regards to socio-demographic factors, a higher QOL was observed in patients <60 years, male sex, passed O/L or above and currently employed with an income of rupees forty thousand (200$) or more and living in a permanent house. Higher QOL was also observed in patients without disability and who perform daily activities alone.Conclusions: QOL of leprosy patients was higher in physical, psychological, environment domains and was lower in the social domain. Continuous awareness programmes should be conducted for health workers and community to early identification, which reduces disabilities and improve QOL.


BMJ Open ◽  
2019 ◽  
Vol 9 (5) ◽  
pp. e027776 ◽  
Author(s):  
Karan K Shah ◽  
Fliss E M Murtagh ◽  
Kevin McGeechan ◽  
Su Crail ◽  
Aine Burns ◽  
...  

ObjectiveTo measure health-related quality of life (HRQoL) and well-being in older people with end-stage kidney disease (ESKD) and to determine the association between treatment type and sociodemographic characteristics on these outcome measures. In addition, to assess the convergent validity between the HRQoL and well-being measure and their feasibility and acceptability in this population.DesignProspective cross-sectional study.SettingThree renal units in the UK and Australia.Participants129 patients with ESKD managed with dialysis or with an estimated glomerular filtration ≤10 mL/min/1.73 m2and managed with comprehensive conservative, non-dialytic care.Outcome measuresHRQoL and well-being were assessed using Short-Form six dimensions (SF-6D, 0–1 scale); Kidney Disease Quality of Life (KDQOL-36) (0–100 scale) and Investigating Choice Experiments Capability Measure-Older people (ICECAP-O, 0–1 scale). Linear regression assessed associations between treatment, HRQoL and well-being. Pearson’s correlation coefficient assessed convergent validity between instruments.ResultsMedian age of 81 years (IQR 78–85), 65% males; 83 (64%) were managed with dialysis and 46 (36%) with conservative care. When adjusted for treatment type and sociodemographic variables, those managed on dialysis reported lower mean SF-6D utility (−0.05, 95% CI −0.12 to 0.01); lower KDQOL Physical Component Summary score (−3.17, 95% CI −7.61 to 1.27); lower Mental Component Summary score (−2.41, 95% CI −7.66 to 2.84); lower quality of life due to burden (−28.59, 95% CI −41.77 to −15.42); symptoms (−5.93, 95% CI −14.61 to 2.73) and effects of kidney disease (−16.49, 95% CI −25.98 to −6.99) and lower overall ICECAP-O well-being (−0.07, 95% CI −0.16 to 0.02) than those managed conservatively. Correlation between ICECAP-O well-being and SF-6D utility scores was strong overall, 0.65 (p<0.001), but weak to moderate at domain level.ConclusionsOlder people on dialysis report significantly higher burden and effects of kidney disease than those on conservative care. Lower HRQoL and well-being may be associated with dialysis treatment and should inform shared decision-making about treatment options.Trial registration numberUK (IRAS project ID: 134360andREC reference 14/LO/0291) and Australia (R20140203 HREC/14/RAH/36).


2021 ◽  
Vol 33 (1) ◽  
pp. 8
Author(s):  
Cindy Fransisca ◽  
Iskandar Zulkarnain ◽  
Evy Ervianti ◽  
Damayanti Damayanti ◽  
Maylita Sari ◽  
...  

Background: Erythema nodosum leprosum (ENL) has a chronic and recurrent nature which could reduce patient’s quality of life in addition to the onset of ENL that occurs before, during, or after multidrug treatment, further emphasizing the importance of regular control and education.Purpose:This study aimed to evaluate the epidemiology, onset, duration, and recurrence of ENL. Methods:Data from medical records were obtained for a 3-year retrospective study of multibacillary leprosy patients at the Leprosy Division of the Dermatology and Venereology Outpatient Department, Dr. Soetomo General Hospital Surabaya, with a minimum of 2–5 years follow-up period.Result:The prevalence of  ENL continued to increase almost every year especially in 2017 (32% in 2015; 32% in 2016; and 36% in 2017). ENL most often occurs during the first year of multi-drug therapy (MDT) administration followed by after the release from treatment (RFT) with the latest onset occurring 4 years after RFT. The majority of patients experienced chronic and recurrent reactions with the longest reactions lasting up to 4.5 years (55 months). Conclusion:Knowledge about the onset, duration, and recurrences of ENL are essential, and strict supervision for routine control shall be encouraged to increase the patients’ compliance so as to increase their quality of life.


2019 ◽  
Vol 13 (2) ◽  
pp. 258
Author(s):  
Denyk Eko Meiningtyas

Leprosy is a complex condition involving the physical health and quality of life of the patient. Measurement of quality of life aims to assess health and health care obtained by patients. Quality of life is closely related to the stigma. Stigma in leprosy patients can decrease the quality of life of leprosy patients. The purpose of this study is to analyze quality of life leprosy patients with post-Multy Drug Therapy at Sumberglagah leprosy hospital Mojokerto Regency. This research was an observational research, using cross sectional research design. A sample of 80 subjects, was taken by consecutive sampling. Secondary data in the form of list of leprosy patients and primary data was obtained by questionnaires. Data was analysed by Chi Square. The result showed that the distribution of leprosy patients was mostly in the productive age group of 49 people (61,3%), male gender 45 people (56,3%), low educated 58 people (72,5%), and had high social support 52 people (65%). Age factor (p=0,035), education (p=0,003) and social support (p=0,009) have positif correlation with quality of life of leprosy patients. The sex factor (p=0.623) has no relationship with quality of life of leprosy patients. The conclusions of this study were age, education, and social support factors has relationship with the quality of life of patients with post-Multy Drug Therapy mutlibacillary leprosy in Sumberglagah Mojokerto Hospital. Efforts to hold discussion groups for leprosy patients, increase the leprosy confidence of lepers to be active and productive, and conduct health promotion with socialization is expected to improve the quality of life of leprosy patients.


2017 ◽  
Vol 22 (2) ◽  
pp. 166-174 ◽  
Author(s):  
Afsaneh Alavi ◽  
Delaram Farzanfar ◽  
Rosa Kyuwon Lee ◽  
Dalal Almutairi

Background: Malodourous discharge in patients with hidradenitis suppurativa (HS) has a strong psychosocial impact and is often reported as a source of embarrassment, low self-esteem, social stigma, and barriers to interpersonal relationships. Malodour is a maker of bacterial colonization, and its role in HS is understudied. Objectives: The aim of this study is to assess the relationship between severity of malodourous discharge and quality-of-life impairment in patients with HS. Methods: This is a cross-sectional study of 51 patients recruited from the Women’s College Hospital and the York Dermatology Centre. Quality of life was assessed using both the Dermatology Life Quality Index (DLQI) and the Skindex-29 instruments. Results: Severity of odour significantly predicts the total Skindex score after controlling for disease severity as measured by the Hurley stage and Sartorius score ( R2 = 0.39, F = 8.11, P < .0001). However, odour severity is not a predictor of DLQI ( R2 = 0.17, F = 2.63, P = .064). There was no difference in mean DLQI scores for the low- vs high-odour groups, but patients with high odour had a greater quality of life impairment as measured by the Skindex tool ( t = −4.19, df = 43, P < .0001, mean difference = −18.87). Conclusion: Malodour is a common symptom that significantly impairs quality of life in patients with HS. The fact that this effect is captured in Skindex and not the DLQI may be attributed to the nonspecificity of the DLQI in terms of unique disease characteristics. It is important to address odour in the management of patients with HS.


Author(s):  
RK Sureka ◽  
Kuldeep S Yadav ◽  
Rishika Agrawal ◽  
Madhu Nijhawan

ABSTRACT Objectives Epilepsy is a significant public health problem in the world today. The social stigma and impact on quality of life (QOL) may pose a bigger challenge than the clinical severity. In India, there are not many studies using quality of life in epilepsy (QOLIE-31) questionnaire to study the QOL in epileptic patients. This study may be useful in planning the management of patients with epilepsy. So, our study was conducted to determine the level of health-related QOL (HRQOL) of patients with epilepsy in a teaching hospital. Materials and methods This was a cross-sectional, questionnaire-based study conducted in a teaching hospital from March to October 2015. The subjects included both male and female adults of at least 18 years of age with a diagnosis of epilepsy, which was present for minimum 1 year. The QOLIE-31 was used for collecting data on HRQOL. Results Totally, 70 patients with epilepsy were included in the study. The standard deviation (mean) total score of QOLIE-31 in our study was 60.46. There was a significant difference in the total score of QOLIE-31 within the monotherapy and polytherapy group as the total score of QOLIE-31 was better in monotherapy group as compared with polytherapy group. Conclusion The study revealed that patients who were on a single drug (monotherapy) had a much better QOL than the patients on more than one drug (polytherapy). How to cite this article Sureka RK, Yadav KS, Agrawal R, Nijhawan M. Quality of Life in Patients with Epilepsy: Study from a Northern Indian Teaching Hospital. J Mahatma Gandhi Univ Med Sci Tech 2017;2(1):10-13.


BMC Cancer ◽  
2019 ◽  
Vol 19 (1) ◽  
Author(s):  
David W. Donnelly ◽  
Linda C. Vis ◽  
Therese Kearney ◽  
Linda Sharp ◽  
Damien Bennett ◽  
...  

Abstract Background Quality of life among prostate cancer survivors varies by socio-demographic factors and treatment type received; however, less in known about differences in functional outcomes by method of presentation. We investigate differences in reported urinary, bowel, sexual and hormone-related problems between symptomatic and PSA-detected prostate cancer survivors. Methods A UK wide cross-sectional postal survey of prostate cancer survivors conducted 18-42 months post-diagnosis. Questions were included on presentation method and treatment. Functional outcome was determined using the EPIC-26 questionnaire. Reported outcomes were compared for symptomatic and PSA-detected survivors using ANOVA and multivariable log-linear regression. Results Thirty-five thousand eight hundred twenty-three men responded (response rate: 60.8%). Of these, 31.3% reported presenting via PSA test and 59.7% symptomatically. In multivariable analysis, symptomatic men reported more difficulty with urinary incontinence (Adjusted mean ratio (AMR): 0.96, 95% CI: 0.96-0.97), urinary irritation (AMR: 0.95, 95% CI: 0.95-0.96), bowel function (AMR: 0.97, 95% CI: 0.97-0.98), sexual function (AMR: 0.90, 95% CI: 0.88-0.92), and vitality/hormonal function (AMR: 0.96, 95% CI: 0.96-0.96) than PSA-detected men. Differences were consistent across respondents of differing age, stage, Gleason score and treatment type. Conclusion Prostate cancer survivors presenting symptomatically report poorer functional outcomes than PSA-detected survivors. Differences were not explained by socio-demographic or clinical factors. Clinicians should be aware that men presenting with symptoms are more likely to report functional difficulties after prostate cancer treatment and may need additional aftercare if these difficulties persist. Method of presentation should be considered as a covariate in patient-reported outcome studies of prostate cancer.


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