scholarly journals Psychological Distress, Family Adjustment and Quality of Life of Mothers of Differentially Disabled Children

2015 ◽  
Vol 3 (1) ◽  
Author(s):  
Anusha Bhandari ◽  
Smriti. R. Sethi
Keyword(s):  
Quality Of Life ◽  
Psychological Distress ◽  
Working Mothers ◽  
Age Group ◽  
Family Adjustment ◽  
Disabled Children ◽  
Care Givers ◽  
Family Issues ◽  
Significant Difference

Every individual faces lot of hurdles in there day to day life, whether working, non-working or even those who are studying. The only factor that sets apart a winner from the others is how they respond to the situation that presents itself in front of them. Disability is considered to be a major problem in today’s scenario and is also one major responsibility for those who have or are the care givers for those who have any kind of disability. Quality of life is the Individuals satisfaction (or dissatisfaction) with the cultural or intellectual conditions under which they live. Quality of life not only consists of self satisfaction but also consists of two other factors as well, parenting and Family Adjustment and Psychological Distress. It is very important and a study also proves that involvement of a parent with their child is considered important when it comes to relationship between them and other family members. It helps in understanding the child well and also the similarities and dissimilarities between each other which helps in resolving various parenting and family issues. The study was done on 80 mothers, 40 working and 40 non-working mothers of differentially disabled children. The age group of mothers varied from 30 – 50 years. And for Children it was 5 – 10 years, which was studied using 3 different questionnaires. The study conducted shows that there is significant different between quality of life of Working and non-working mothers of differentially abled children, there is a significant Difference in psychological distress of working and non-working mothers of differentially abled children and it also reveals that there is no significant difference between parenting and Family adjustment of working and non-working mothers of differentially abled children.

Family burden and quality of life of mothers of children and adolescents with mental retardation or borderline mental capacity

2016 ◽  
Vol 33 (S1) ◽  
pp. S192-S192
Author(s):  
L. Utas Akhan
Keyword(s):  
Quality Of Life ◽  
Children And Adolescents ◽  
Mental Capacity ◽  
World Health ◽  
Family Burden ◽  
Disabled Children ◽  
World Health Organization Quality ◽  
Significant Difference ◽  
The Family

IntroductionStudies have found that the cognitive function levels of intellectually challenged children add a burden to the family and affect quality of life.ObjectivesThe purpose of this study was to determine the family burden felt by mothers of children, ages 6–16, whose mental capacity evaluation indicates an IQ of 35–79 to explore the mother's quality of life and discover the factors that yield an impact in this context.AimsThe main objective of this study therefore was to ascertain the family burden and quality of life experienced by the parents of children with mentally retarded or borderline mental capacity.MethodsThe WISC-R test was used in the research to determine the intellectual capacity of children, 6–16 years of age. The sample comprised 131 children and adolescents between the ages 6–16 with IQs in the interval of 35–79 and their mothers. The parents accompanying their children were assessed using the Family Burden Assessment Scale, the World Health Organization Quality of Life instrument and a sociodemographic questionnaire that was filled out during face-to-face interviews.ResultsThe quality of life of the mothers was found to be average. At the same time, as the IQ level of the children went up, the less the mothers felt they were under a family burden. It was seen that the mothers experienced the most difficulty in the domains of “perception of inadequacy” and “emotional burden.”ConclusionMothers with intellectually disabled children need psychosocial support. Providing all members of the family with counseling services to help them cope with the issues and responsibilities involved in the care of disabled children may make a significant difference in quality of life.Disclosure of interestThe author has not supplied his/her declaration of competing interest.

scholarly journals The Effects of Patients' and Care-Givers' Knowledge, Attitude, & Practice (KAP) on Quality of Life Among Thalassemia Major Patients' in Damascus-Syrian Arab Republic

2018 ◽  
Vol 14 (12) ◽  
pp. 308
Author(s):  
Yaser Adnan Abo Jeesh ◽  
Magda El-hadi Ahmad Yousif ◽  
Moauya Al-Balal Al-Haboub
Keyword(s):  
Quality Of Life ◽  
Statistical Significance ◽  
Thalassemia Major ◽  
Cross Sectional ◽  
Attitudes And Practices ◽  
Teaching Guide ◽  
Care Givers ◽  
Significant Difference ◽  
Before And After

Background: Thalassemia is the most common autosomal abnormality in Syria. Its complications have an important effect on education; time off school; sport; difference from friends/ siblings; social interactions; and stigmatization. Knowledge of factors associated with quality of life in thalassemia patients is necessary for forming appropriate clinical programs, social support, and improving treatment outcomes. Purpose: The study was to assess the effects of Patients' and Care-givers' Knowledge, Attitude, & Practice (KAP) with Quality of Life among Thalassemia Major Patients' in Syria. Methods: Cross-sectional descriptive analytical design was conducted at the national thalassemia center in Damascus. WHOQOL-BREF and a questionnaire developed by the researcher were used to measure the participants’ knowledge, attitudes and practices of thalassemia. Results: Total of 238 thalassemia patients participated in the study. A statistical significance was found regarding improvement of skill and knowledge scores among caregivers and thalassemia patients before and after receiving the teaching guide from 12.52±1.77 to 14.07±1.01, t=11.447, p=0.000 and from 34.12±4.50 to 37.43±4.61, t=-8.58, p= .000 respectively. Stigmatization was significantly noticed among families caring for thalassemic patients. There were a significant differences in the mean score regarding nutritional status before and after teaching guide paired t test= 12.11, p= 0.000. A statistical significance was found in females regarding social domain p=0.04. However, mean scores for overall quality of life were better in females rather than males, but these mean scores were statistically insignificant p>0.05. A statistical significant difference in ferritin levels and patient’s age was found. Results also revealed that no statistical significant differences was observed between overall quality of life of the four domains in relation to the two treatment groups (subcutaneous vs oral) and age groups. Conclusion: Thalassemia is a socio-economic problem. The most efficient way to reduce risks of having affected patients is by increasing the knowledge through training of parents regarding the disease. Our findings highlighted that there was lack in patients’ knowledge and skills regarding the disease, but a remarkable improvement in both knowledge and performance was found after patients received the teaching guide, which lead to an increase in overall patient's quality of life.

scholarly journals COMPARISON BETWEEN THERAPEUTIC ULTRASOUND AND SCAR MOBILIZATION OVER PERSISTENT POSTNATAL DYSPAREUNIA

2017 ◽  
Vol 10 (9) ◽  
pp. 48
Author(s):  
Mariyam Farzana Sf ◽  
Ponmathi P ◽  
Sivakumar Pvr
Keyword(s):  
Quality Of Life ◽  
Analogue Scale ◽  
Therapeutic Ultrasound ◽  
Ultrasound Therapy ◽  
Age Group ◽  
Functional Index ◽  
Significant Difference ◽  
Group A ◽  
Group B

  Objective: Dyspareunia is known as the painful sexual intercourse. This study was conducted to compare the effectiveness between therapeutic ultrasound and scar mobilization in persistent postnatal dyspareunia.Methods: This is an experimental study. 30 subjects with superficial dyspareunia, age group between 25 and 35 years are taken in this study and 15 subjects in Group A were treated with ultrasound therapy, 15 subjects in Group B were treated with scar mobilization. Female sexual functional index questionnaire (FSFI) and visual analogue scale (VAS) were used as the outcome measure.Results: Results showed a significant difference in FSFI and VAS measurements in both the groups, but clinically Group A showed better improvement in pain and quality of life than Group B.Conclusion: There is no significant difference between ultrasound therapy and scar mobilization over the pain and quality of life in patients with persistent postnatal dyspareunia.

scholarly journals Association of Dietary Diversity with Health-related Quality of Life and Osteosarcopenic Obesity in Korean Female Adults (P18-059-19)

2019 ◽  
Vol 3 (Supplement_1) ◽  
Author(s):  
Yun-Jung Bae
Keyword(s):  
Quality Of Life ◽  
Dietary Diversity ◽  
Age Group ◽  
Health Related Quality ◽  
Dietary Diversity Score ◽  
Significant Difference ◽  
Related Quality ◽  
Health Related ◽  
Osteosarcopenic Obesity

Abstract Objectives This study was conducted to evaluate the association of dietary diversity score with health-related quality of life and osteosarcopenic obesity in female aged 50 or older using data from the 2008∼2010 National Health and Nutrition Examination Survey (KNHANES). Methods In this cross-sectional study, a total of 4276 subjects (50∼64y: n = 2279, ≥65y: n = 1997) were classified according to dietary diversity score (DDS) (≥3 DDS, <3 DDS) using 24 h dietary recalls method. Body composition was evaluated using dual-energy X-ray absorptiometry (DXA) and health-related quality of life was assessed using EQ-5D (EuroQol five-dimension) index. Analysis was conducted by age-stratified groups: 50∼64 (≥3 DDS = 2070, <3 DDS = 209) and 65 (≥3 DDS = 1534, <3 DDS = 463) yrs or older. Results The ≥3 DDS group had a larger proportion of subjects who were highly educated compared to <3 DDS group (P < 0.001). In the 65 yrs or older age group, age-adjusted means of EQ-5D index of ≥3 DDS group and <3 DDS group were 0.84 and 0.74, respectively and there was significant difference (P < 0.0001). However, in the 50∼64 yrs age group, no difference was observed in EQ-5D index according to the dietary diversity. The ≥3 DDS group had a larger proportion of subjects who had no osteosarcopenic obesity compared to <3 DDS group (P < 0.05). Conclusions These results suggest that the dietary diversity may be associated with a lower health-related quality of life and osteosarcopenic obesity in Korean female aged 50 years or older. Funding Sources This work was supported by the National Research Foundation of Korea (NRF) grant funded by the Korea government (MSIP; Ministry of Science, ICT & Future Planning) (No. 2017R1C1B5017636).

scholarly journals Correlation between Psychosocial Distress and Quality of Life in Patients with Nasopharyngeal Carcinoma following Radiotherapy

2018 ◽  
Vol 2018 ◽  
pp. 1-4 ◽  
Author(s):  
Xiaolan Wang ◽  
Yue Lv ◽  
Wen Li ◽  
Chen Gan ◽  
Haijun Chen ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Psychological Distress ◽  
Nasopharyngeal Carcinoma ◽  
Significant Negative Correlation ◽  
Psychosocial Distress ◽  
Time Points ◽  
Significant Difference ◽  
Before And After ◽  
The Relationship

The aim of this study was to investigate the relationship between psychosocial distress and quality of life (QOL) in patients with nasopharyngeal carcinoma (NPC) after radiotherapy. Fifty-three patients with an initial diagnosis of NPC were enrolled in this study. The psychological Distress Thermometer (DT) and Functional Assessment of Cancer Therapy-Head & Neck (FACT-H&N) were conducted before and after radiotherapy in NPC patients. We compared the differences in psychological distress and QOL before and after radiotherapy and analyzed the correlation between psychological distress and QOL after radiotherapy. The performance on the DT was 6.60 ± 1.42 and 2.81 ± 1.43 before and after chemotherapy, respectively, with a significant difference between the time points (t = -13.73,P< 0.01). The performance on the FACT-H&N was 68.30 ± 6.14 and 39.84 ± 6.14 before and after chemotherapy, respectively, with a significant difference between the time points (t = -19.9,P< 0.01). There was a significant negative correlation between the DT score and the FACT-H&N score (r = -3.64,P< 0.01). Patients with NPC experience different degrees of psychological distress, an important factor that affects quality of life, after radiotherapy.

scholarly journals RELATIONSHIP OF POST TRAUMATIC GROWTH PSYCHOLOGICAL DISTRESS AND QUALITY OF LIFE AMONG RENAL FALIURE PATIENTS

2021 ◽  
Vol 71 (1) ◽  
pp. 18-23
Author(s):  
Neelam Ehsan ◽  
Nayab . ◽  
Adam Khan ◽  
Amna Khan Shahid
Keyword(s):  
Quality Of Life ◽  
Renal Failure ◽  
Psychological Distress ◽  
Middle Age ◽  
Strong Positive Correlation ◽  
Age Group ◽  
Post Traumatic Growth ◽  
Post Traumatic ◽  
Relationship Of

Objective: To study the relationship and impact of post traumatic growth and psychological distress on qualityof life among renal failure patients seeking dialysis, and to see differences in these variables among different age group patients. Study Design: Cross sectional study. Place and Duration of Study: Lady Reading Hospital, Peshawar, Government Hospital Mardan Pakistan, fromJan to Jun 2019. Methodology: A sample of 300 renal failure Patients 18 years or older who had a diagnosis of end-stage renal disease receiving treatment within different dialysis units were approached through purposive sampling technique. Post traumatic growth inventory Quality of life scale and the Psychological distress scale were used to measure the study variables. Results: Results reveal that psychological distress has a negative correlation with post traumatic growth (r=-0.77**, p<0.01) and Quality of Life (r= -0.73**, p<.01). Whereas, Post Traumatic Growth has a strong positive correlation with Quality of Life (r=0.68*, p<0.01). Similarly, Psychological distress (β= -0.89, p<.000) and post traumatic growth (β=0.25, p<.000) significantly predict quality of life and explained 57% variance (F (2,297) = 198.4, p<0.000, R2=0.57) among the sample. Moreover, the results also show significant differences in the study variables between the two age groups (i.e., 16 to 32 years and 33 to 48 years) and it further suggest that middle age patients had higher levels of PTG as compared to younger and older patients. Conclusion: This study reveals a significant negative relationship of post traumatic growth with psychologicaldistress and a significant effect of post traumatic growth and psychological distress on the quality of life in thesample. This study also concludes that middle-age group patients had higher levels of post traumatic growth ascompared to young and old patients.

scholarly journals PREVALENCE OF OBSTRUCTIVE SLEEP APNEA IN AN INDIAN POPULATION: USING STOPBANG QUESTIONNAIRE

2018 ◽  
Vol 11 (11) ◽  
pp. 100 ◽  
Author(s):  
Snigdha Pattanaik ◽  
Rajagopal R ◽  
Neeta Mohanty ◽  
Swati Pattanaik
Keyword(s):  
Quality Of Life ◽  
Obstructive Sleep Apnea ◽  
Sleep Apnea ◽  
Clinical Symptoms ◽  
Age Groups ◽  
Age Group ◽  
Prime Concern ◽  
Obstructive Sleep ◽  
Significant Difference

Objective: Obstructive sleep apnea (OSA) is a condition characterized by complete/partial obstruction of the upper airway that disrupts normal sleep pattern. It has become highly prevalent and negatively affects the quality of life. Reports show ≥4% of men and ≥2% of women, and mostly, the obese individuals are affected by OSA. OSA is independently associated with an increased likelihood of hypertension, cardiovascular disease, and diminished quality of life. Hence, it becomes a prime concern for health-care personnel to diagnose it at earliest. A screening tool is necessary to stratify patients based on their clinical symptoms, their physical examinations, and their risk factors. Thus, this study was taken up to assess the prevalence of OSA using the STOP-Bang questionnaire.Methods: A total number of 1012 participants were selected using random sampling technique from various community health camps for the study. The participants were asked to fill in the STOP-Bang questionnaire. All questionnaire respondents were precisely briefed about this study in a face-to-face interview. Data obtained from the survey were subjected to statistics, and descriptive analysis was done.Results: The prevalence of OSA was found to be 13.7% by using the Stop Bang questionnaire. It was found that the prevalence of OSA was highest in the age group of 50–59 (21.7%) and least in the age group of 18–29 (12.0%). Gender-wise distribution of OSA based on the scoring was seen to be more, among males (14.8%) and females showed a prevalence of 12.9%.Conclusion: This study concludes that the STOP-Bang method of screening showed a prevalence of 13.7%. However, the prevalence of OSA did not show any significant difference in various age groups; it was found that males had a higher prevalence of OSA compared to females.

scholarly journals Effect of Abstinence on Psychological Distress Scores, Social Dysfunction Scores, Total General Health Questionnaire Scores-12, and Total Quality of Life Scores in Men with Methamphetamine Dependence in Therapeutic Community

2021 ◽  
Vol 9 (T3) ◽  
pp. 116-119
Author(s):  
Thomas Hendriko ◽  
Elmeida Effendy ◽  
Vita Camellia
Keyword(s):  
Quality Of Life ◽  
Psychological Distress ◽  
General Health ◽  
General Health Questionnaire ◽  
Health Questionnaire ◽  
Total Quality ◽  
Social Dysfunction ◽  
Methamphetamine Dependence ◽  
Significant Difference

AIM: We looked for differences in abstinence influence on Psychological Distress Scores, Social Dysfunction Scores, Total General Health Questionnaire – 12 (GHQ-12), and Total Quality of Life Scores on men with Methamphetamine dependence in the Therapeutic Community. METHODS: This study was conducted a numerical comparative analytical analysis paired with twice measurements with subject retrieval done using consecutive sampling. The participant of this study was 47 subjects who selected by inclusion and exclusion criteria. RESULTS: Found psychological distress score of the abuser was p ˂ 0.001, different with social dysfunction score there was no significant difference where the score was p = 0.062, the total GHQ-12 score was a significant difference where the score was p = 0.025 while in the total quality of life score (SF-36) there was a significant difference with the score of p ˂ 0.001. CONCLUSIONS: After abstinence, quarantine was found to improve attitude, behavior, cognitive, and social function such as appropriate communication and active social relationship with others compared with before abstinence quarantine.

scholarly journals The comparison of individuals over 50 who have played football and the sedentary ones at the same age in terms of quality of life

2020 ◽  
Vol 17 (4) ◽  
pp. 1312-1322
Author(s):  
İhsan Gönen ◽  
İsmail Türkmenoğlu
Keyword(s):  
Quality Of Life ◽  
Personal Information ◽  
English Summary ◽  
Physical Activities ◽  
Age Group ◽  
High Quality ◽  
Scheffe Test ◽  
Significant Difference ◽  
Activity Survey

In this study, it was aimed that the comparison of indiviuals over 50 who have played football and the same age group of sedentary individuals‟ quality of life Totally, 100 individuals have participated in the study who live in Afyonkarahisar some of whom have played football over 50 and individuals who do not do regular physical activities that we accept sedentary ones at the same age. Personal Information Form, International Physical Activity Survey and in order to assess the quality of life of study group The Scale of Quality of Life which was developed by WHO have been fulfilled by the participants As a result of the research the collected data have been analysed on the SPSS 25 programme, in order to determine the range of participants of research ,Kolmogorv-Smirnova analyzes have been applied and identifying the ranges are normal, independent sample t-test have been applied for pairs and for groups of individuals more than two , anova variance analysis has been put into practice. Scheffe test has been carried out in order to determine which groups have the significant difference among them. Consequently; It is estimated that married participants in comparison with singles, the ones who do exercises regularly in comparison with those who do not do, the ones who do exercises 5 days or more in a week in comparison with the ones who does less frequently,the ones who are so healthy in general in comparison with the ones who are not, the individuals who do physical activities intensively in comparison with the ones who do not do have a high quality of life.In this sense, individuals over 50 who have played football befor and after 50 and sedentary indiviudals differentiate in terms of quality of life and somehow it is concluded that individuals who do physical activities have a high quality of life in comparison with the other individuals. ​Extended English summary is in the end of Full Text PDF (TURKISH) file. Özet   Bu çalışmada 50 yaş üstü futbol oynamış bireyler ile aynı yaş grubu sedanter bireylerin yaşam kalitesinin karşılaştırılması amaçlanmıştır. Bu araştırmaya Afyonkarahisar ilinde yaşayan 50 yaş üstü futbol oynamış bireyler ile 50 yaş üstü sedanter olarak kabul ettiğimiz düzenli fiziksel aktivite yapmayan toplam 100 birey katılmıştır. Katılımcılara kişisel bilgi formu, uluslar arası fiziksel aktivite anketi ve araştırma grubunun yaşam kalitesini değerlendirmek için WHO ‘nun (1998) geliştirdiği Yaşam Kalitesi Ölçeği kullanılmıştır. Araştırma sonucunda elde edilen veriler SPSS25 programında analiz edilmiş, araştırmaya katılanların dağılımını belirlemek için frekans ve yüzde analizi, Kolmogorv- Smirnova analizleri yapılmış olup verilerin dağılımın normal olduğu belirlendikten sonra, 2’li grupların karşılaştırılmasında bağımsız örneklşem t-testi, 2’den fazla gruplar için tek yönlü Anova Varyans analizi yapılmıştır. Anlamlı farklılığın hangi gruplar arasında olduğunu belirlemek için Scheffe testi yapılmıştır. Sonuç olarak; evil olan katılımcıların bekar olanlara gore, düzenli bir şekilde spor yapanların yapmayanlara göre, haftada 5 gün ve üzerinde spor yapanların daha az sıklıkta yapanlara göre, 41 yıl ve üzerinde aktif spor yaşamı olanların daha az yıl spor yapanlara göre, genel sağlık durumu çok iyi olanların olmayanlara ve yoğun fiziksel aktivite yapan kişilerin yapmayanlara göre yaşam kalitesinin yüksek olduğu görülmüştür. Bu da 50 yaş üstü kişilerin 50 yaş öncesinde ve sonrasında futbol oynamış bireylerle sedanter bireylerin yaşam kalitesi açısından farklılıştığı ve bir şekilde fizksel aktivite yapmış kişilerin diğer bireylere göre yaşam kalitesinin yüksek olduğu sonucuna varılmıştır.

scholarly journals The Impact of Cataract Surgery on Vision-Related Quality of Life and Psychological Distress in Monocular Patients

2021 ◽  
Vol 2021 ◽  
pp. 1-7
Author(s):  
Xuepei Li ◽  
Jianqiang Lin ◽  
Zidong Chen ◽  
Guangming Jin ◽  
Danying Zheng
Keyword(s):  
Quality Of Life ◽  
Psychological Distress ◽  
Cataract Surgery ◽  
Control Group ◽  
Self Rating ◽  
Significant Difference ◽  
Before And After ◽  
Related Quality ◽  
The Impact

Purpose. To determine the changes in vision-related quality of life and psychological distress after cataract surgery in monocular patients and to compared these with a control group of age- and gender-matched binocular patients. Methods. We enrolled 40 monocular patients and 40 binocular patients who underwent cataract surgery from August 2017 to December 2018. All participants undertook eye examinations and answered questionnaires (the National Eye Institute Visual Function Questionnaire, Self-rating Anxiety Scale, and Self-rating Depression Scale) before and after cataract surgery. Result. The monocular patients had significantly worse mean CDVA than the binocular patients before and after surgery. However, there was no significant difference between the increases gained by the two groups. Mean composite VFQ-25 scores of the monocular group were significantly lower than those of the binocular group before and after surgery, but the improvement experienced by the monocular group was statistically larger than the binocular group (37.20 ± 12.84 vs. 19.11 ± 5.13, P < 0.001 ). Mean standard SAS scores of monocular patients were significantly higher than those of binocular controls before and after surgery, while monocular patients experienced a significant greater decline of SAS scores (−9.41 ± 5.39 VS −3.84 ± 1.61, P < 0.001 ). Mean standard SDS scores of the monocular group were significantly higher than those of the control group before and after surgery, but the monocular group experienced a significantly greater decline of SDS scores following cataract surgery (−11.91 ± 6.38 VS −4.78 ± 1.79, P < 0.001 ). There was a significant correlation between the preoperative logMAR CDVA and both the postoperative logMAR CDVA (r = 0.63, P < 0.001 ) and the changes in the logMAR CDVA (r = −0.881, P < 0.001 ) for monocular patients. Linear regression analyses suggested that higher postoperative VFQ-25 scores had significant associations with better preoperative CDVA and the absence of systemic comorbidity (both P < 0.05 ). Age and ocular comorbidity were significantly associated with postoperative SAS scores (both P < 0.05 ). Age and systemic comorbidity remained significant impact factors for SDS scores (both P < 0.05 ). Conclusion. Monocular patients reported greater improvement in vision-related quality of life and greater decline in the level of anxiety and depression than binocular control subjects, despite having similar CDVA gains after cataract surgery. We argue that it is not a better choice for monocular patients to delay cataract surgery until the cataract is very advanced. A clear understanding of the impact of cataract surgery on vision-related quality of life and psychological distress in monocular patients is needed by ophthalmologists when making surgery decision.

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