scholarly journals QUALITY OF LIFE OF FAMILY CAREGIVERS OF CHILDREN WITH LEUKEMIA: A DESCRIPTIVE QUANTITATIVE STUDY

2020 ◽  
Vol 6 (2) ◽  
pp. 52-58
Author(s):  
Ikeu Nurhidayah ◽  
Sri Hendrawati ◽  
Dewi Pratiwi Hasriyadhi
Keyword(s):  
Quality Of Life ◽  
Family Caregivers ◽  
Quantitative Study ◽  
Psychological Health ◽  
Social Life ◽  
Poor Quality ◽  
Health Conditions ◽  
Standard Questionnaire ◽  
Study Results

Background: Treatment of children with cancer can affect daily lives of family caregivers. This can disrupt roles in social life, limit daily activities, disrupt health and physical and emotional balance as well as causing economic problems and creating poor quality of life.Objective: To describe the quality of life of family caregivers of children with leukemia based on characteristics of parents and children.Methods: This was a descriptive quantitative study. The population was all parents as the primary caregivers who had children aged 0-15 years diagnosed with leukemia in pediatric wards of Provincial General Hospital of Dr. Hasan Sadikin Bandung, Indonesia. Thirty-four respondents participated in this study selected using a total sampling. The quality of life of family caregivers was measured using the quality of life family version standard questionnaire, and the children's severity of leukemia was identified by the severity of illness scale standard questionnaire. Data were analyzed using frequency distribution, mean, and standard deviation.Results: The study results showed that family caregivers had poor quality of life (58.8%), with the worst sub-dimension including physical and psychological health conditions (55.9%), followed by social conditions (52.9%), and spiritual health conditions (50.0%). The majority of family caregivers who had the poorer quality of life were at the older age, male, having a primary education level, caring for their children for less than 12 months with severe leukemia, and having an average monthly income of fewer than 1.5 million rupiahs.Conclusion: Poor quality of life was identified among family caregivers of children with leukemia. Therefore, it is suggested for nurses to provide nursing care holistically not only for the children but also the families to increase their quality of life.

scholarly journals ‘Quality of Life’ of Persons with Disability: An Assessment in Selected Flood Prone Areas of Bangladesh

2017 ◽  
Vol 1 (1) ◽  
pp. 1-21
Author(s):  
Mir Hasan Shakil Mahmud ◽  
Md. Abul Kalam Azad
Keyword(s):  
Quality Of Life ◽  
Psychological Health ◽  
Quantitative Research ◽  
Structured Interview ◽  
Poor Quality ◽  
Persons With Disabilities ◽  
Prone Area ◽  
Post Disaster ◽  
Flood Prone Areas

The present study is on “Quality of Life” of person with disabilities living in flood prone areas of Bangladesh. In this aspect the specific objectives have been designed to determine the effects of disaster on physical and psychological health and social relationship between disabilities and community. The study has also assessed the adaptive capacity of persons with disabilities during and post-disaster period and find out the challenges faced by the persons with disabilities during disaster and post disaster that undermining their quality of life. In the determination of quality of life of PWDs in the selected flood prone area in Bangladesh a mixed method incorporating both qualitative and quantitative research approaches was used to conduct this study by using the tools of observation, case study, and face to face semi structured interview, with PWDs in Northern district of Gaibandha. The study shows that out of 110 respondent, nearly 63 per cent required assistance, while over 38 per cent respondent are required partial assistance, and 20 percent are required supervision. The study reveals that more than 9 per cent of the respondents maintains very poor quality of life while 20 per cent are maintaining poor quality of life, nearly 34 per cent respondents are identified their life neither poor or nor good in selected area.

Relationship Between Quality of Life of Children With Cancer and Caregiving Competence of Main Family Caregivers

2020 ◽  
pp. 104345422097569
Author(s):  
Angie López León ◽  
Sonia Carreño Moreno ◽  
Mauricio Arias-Rojas
Keyword(s):  
Quality Of Life ◽  
Marital Status ◽  
Family Caregivers ◽  
Sociodemographic Characteristics ◽  
Children With Cancer ◽  
Cross Sectional ◽  
Proxy Report ◽  
Study Results ◽  
Main Family

Objective: The purpose of this study was to describe the caregiver’s proxy-report of the quality of life (QoL) of children with cancer and the main family caregiver’s competence, and to examine the role of said competence and other care-related variables in their proxy-reported QoL of children with cancer. Method: This was a cross sectional, correlation design study conducted with 97 main family caregivers of children between the ages of 8 and 12 years with cancer residing in Colombia. The following variables were collected: main family caregiver and child sociodemographic characteristics (Survey for Dyad Care; GCPC-UN-D), The Pediatric Quality of Life Inventory 4.0 Cancer Module, and the Competence Instrument (caregiver version). Results: The mean of the children’s QoL was 102.0 points, and the caregivers’ competence score was 211.24. Caregiver’s competence ( t = 5.814, p < .01), marital status ( t = 1.925, p < .05), time as a caregiver ( t = 2.087, p < .05), number of hours spent caring for the child ( t = 2.621, p < .05), and caregiver’s previous caring experiences ( t = 2.068, p < .05) were found to influence caregiver’s proxy-report of the QoL of children with cancer. Conclusions: High competence in main family caregivers positively influence caregiver’s proxy-report of the QoL of children with cancer. Study results also suggest that nurses should consider the caregivers’ sociodemographic characteristics such as marital status, time as a caregiver, number of hours spent caring for the child, and caregiver’s previous experiences because those aspects influence main family caregivers’ proxy-report about their children’s QoL.

scholarly journals Quality of Life and Migraine Disability among Female Migraine Patients in a Tertiary Hospital in Malaysia

2015 ◽  
Vol 2015 ◽  
pp. 1-9 ◽  
Author(s):  
Munvar Miya Shaik ◽  
Norul Badriah Hassan ◽  
Huay Lin Tan ◽  
Siew Hua Gan
Keyword(s):  
Quality Of Life ◽  
Psychological Health ◽  
Tertiary Hospital ◽  
Poor Quality ◽  
World Health ◽  
Control Group ◽  
Healthy Controls ◽  
Pain Scores ◽  
Health Organization

Background. Disability caused by migraine may be one of the main causes of burden contributing to poor quality of life (QOL) among migraine patients. Thus, this study aimed to measure QOL among migraine sufferers in comparison with healthy controls.Methods. Female diagnosed migraine patients (n= 100) and healthy controls (n=100) completed the Malay version of the World Health Organization QOL Brief (WHOQOL-BREF) questionnaire. Only migraine patients completed the Malay version of the Migraine Disability Assessment questionnaire.Results. Females with migraines had significantly lower total WHOQOL-BREF scores (84.3) than did healthy controls (91.9,P<0.001). Similarly, physical health (23.4 versus 27.7,P<0.001) and psychological health scores (21.7 versus 23.2,P< 0.001) were significantly lower than those for healthy controls. Seventy-three percent of patients experienced severe disability, with significantly higher number of days with headaches (13.8 days/3 months,P< 0.001) and pain scores (7.4,P< 0.013). Furthermore, migraine patients with lower total QOL scores had 1.2 times higher odds of having disability than patients with higher total QOL scores.Conclusions. The present study showed that migraine sufferers experienced significantly lower QOL than the control group from a similar population. Disability was severe and frequent and was associated with lower QOL among the migraine patients.

scholarly journals ACUTE MYOCARDIAL INFARCTION;

2019 ◽  
Vol 26 (01) ◽  
Author(s):  
Shakeel Ahmad ◽  
Muhammad Nazim ◽  
Rizwan Munir ◽  
Hafiz Muhammad Faiq Ilyas ◽  
Naeem Asghar ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Myocardial Infarction ◽  
Acute Myocardial Infarction ◽  
Sample Size ◽  
Social Life ◽  
Sleep Disturbances ◽  
Sampling Technique ◽  
Study Results ◽  
The Impact

Objectives: To assess the impact of myocardial infarction on quality of life in four year survivors and to determine factors associated with a poor quality of life. Design: Descriptive study. Settings: Faisalabad institute of cardiology Faisalabad. Duration of Study: 1st November 2017 to 30 April 2018. Sample Size: Sample size was 200 as calculated by WHO sample size calculator. Sampling Technique: Non probability consecutive sampling. Subjects: All patients diagnosed with acute myocardial infarction during 2013 and alive at a median of four years. Patients and Methods: 200 patients presenting in outdoor for routine follow up checkup who got MI approximately four years ago in year 2013 were included in the study. Results: 200 patients with an acute myocardial infarction in 2013 and alive and capable of responding to a questionnaire in 2018 were included in the study. Physical functioning was normal in 63%, fair in 25% and disturbed in 12% of patients. Social life functioning was normal in 66%, fair in 26% and disturbed in 8% of patients. No Angina episodes in 61.5%, 1 to 2 angina episodes per month in 25% and more than 3 episodes per month in 13.5% patients. 59% of patients were doing routine jobs, 21.5 % were doing off and on job and 19.5% were not doing any job after MI. Conclusions: this study provides valuable information for the practicing clinicians. Impaired quality of life was reported by patients, unfit for work, those with angina and dyspnea, patients with coexistent lung disease, those with anxiety and sleep disturbances and other co-morbid conditions. Improving quality of life after MI remains a challenge for practicing physicians.

scholarly journals Caregivers’ quality of life and psychological health in response to functional, cognitive, neuropsychiatric and social deficits of patients with brain tumour: protocol for a cross-sectional study

BMJ Open ◽  
2017 ◽  
Vol 7 (10) ◽  
pp. e016308 ◽  
Author(s):  
Carole Ramirez ◽  
Véronique Christophe ◽  
Charlotte Dassonneville ◽  
Delphine Grynberg
Keyword(s):  
Quality Of Life ◽  
Psychological Health ◽  
Social Impact ◽  
Cross Sectional Study ◽  
Poor Quality ◽  
Poor Mental Health ◽  
Healthy Controls ◽  
Sectional Study ◽  
Cross Sectional

IntroductionPatients with gliomas generally present cognitive, neuropsychiatric and functional deficits. Although previous research has shown that their caregivers present a poor quality of life and poor mental health, only a few studies have tested in a comprehensive way which deficits/preserved abilities of patients predominantly impact their caregivers. Furthermore, only a few studies have focused on the social impact of gliomas, which may also damage the caregivers’ quality of life. Therefore, this cross-sectional study aims to investigate which patients’ impairments are particularly deleterious for the caregivers and whether the histological characteristics of the gliomas also affect their quality of life.Methods and analysisIn order to examine these research questions, this study intends to include 180 patients (60 patients with grade II gliomas, 60 patients with grade III gliomas and 60 patients with grade IV gliomas), their caregivers and 60 healthy controls. While patients will complete a full battery of cognitive, neuropsychiatric, functional and social tests, caregivers will complete questionnaires about their quality of life, depression, anxiety and burden. Patients’ performances and caregivers’ reports of depression and anxiety will be compared with the scores of healthy controls. Eventually, our aim will be to provide specific care support both to reduce patients’ deficits and alleviate caregivers’ difficulties.Ethics and disseminationThe study has obtained the approval of the local faculty ethics committee (‘Comité d’éthique en sciences comportementales’; 2016–5 S41 and 2015–3 S37). On completion of the study, data will be kept by Lille University for 5 years before they are destroyed. Study findings will be disseminated through peer-reviewed journal publications and conference presentations with no reference to a specific individual.

scholarly journals Effects of divorce and widowhood on subsequent health behaviours and outcomes in a sample of middle-aged and older Australian adults

2021 ◽  
Vol 11 (1) ◽  
Author(s):  
Ding Ding ◽  
Joanne Gale ◽  
Adrian Bauman ◽  
Philayrath Phongsavan ◽  
Binh Nguyen
Keyword(s):  
Quality Of Life ◽  
Health Outcomes ◽  
Psychological Health ◽  
Public Awareness ◽  
Health Behaviours ◽  
Marital Disruption ◽  
Poor Quality ◽  
Anxiety And Depression ◽  
Potential Health

AbstractMarital disruption is a common life event with potential health implications. We examined the prospective association of divorce/widowhood with subsequent lifestyles, psychological, and overall health outcomes within short and longer terms using three waves of data from the 45 and Up Study in Australia (T1, 2006–09; T2, 2010; T3, 2012–16). Marital status and health-related outcomes were self-reported using validated questionnaires. Nine outcomes were examined including lifestyles (smoking, drinking, diet and physical activity), psychological outcomes (distress, anxiety and depression) and overall health/quality of life. Logistic regression was adjusted for sociodemographic characteristics and baseline health outcomes. Of the 33,184 participants who were married at T1 (mean age 59.5 ± 9.3 years), after 3.4 years, 2.9% became divorced and 2.4% widowed at T2. Recent divorce was positively associated with smoking, poor quality of life, high psychological distress, anxiety and depression at T2. Similar but weaker associations were observed for widowhood. However, these associations were much attenuated at T3 (5 years from T2). Marital disruption in midlife or at an older age can be detrimental to health, particularly psychological health in the short term. Public awareness of the health consequences of spousal loss should be raised. Resources, including professional support, should be allocated to help individuals navigate these difficult life transitions.

scholarly journals Relationship of the quality of life and depression in the elderly

2020 ◽  
Vol 1 (2) ◽  
pp. 25-27
Author(s):  
Eka Suastika ◽  
Cokorda Bagus Jaya Lesmana ◽  
Ni Ketut Putri Ariani ◽  
Ni Ketut Sri Diniari ◽  
Luh Nyoman Alit Aryani ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Social Life ◽  
The Elderly ◽  
Significant Negative Correlation ◽  
Poor Quality ◽  
Cross Sectional ◽  
Daily Lives ◽  
Relationship Of ◽  
The Relationship

Background: A good quality of life in the elderly must be maintained because good quality of life is an optimal condition for the elderly to live their daily lives. Depression in the elderly will have a severe impact on physical, social life where it will reduce the quality of life. This study was conducted to assess the relationship of quality of life with depression in the elderly. Method: This study uses a cross-sectional method, conducted in May-June 2019, using WHOQOL-BREf, GDS, AMT, ADL. Results: A total of 195 elderly participated, average age 67 years, married 94.4 percent, mostly 45.1 percent did not go to school, ADL was found to be normal, there was moderate cognitive impairment as much as 13.3 percent, and depression 80 percent. There was a significant relationship between quality of life and depression (OR: 1.22; 95% IK 1.02-3.97), which means that elderly people with poor quality of life have a higher risk of depression. Conclusion: There is a significant negative correlation between the quality of life with depression, where the elderly with poor quality of life have a 1.22 times greater risk of depression.

scholarly journals Relationship between activities of daily living and depression among older adults and the quality of life of family caregivers

2018 ◽  
Vol 5 (2) ◽  
pp. 97-104 ◽  
Author(s):  
Hui Xie ◽  
Pei-Wen Chen ◽  
Long Zhao ◽  
Xuan Sun ◽  
Xian-Jie Jia
Keyword(s):  
Quality Of Life ◽  
Older Adults ◽  
Activities Of Daily Living ◽  
Family Caregivers ◽  
Psychological Health ◽  
Daily Living ◽  
Short Form ◽  
Summary Score ◽  
Sf 36

Abstract Objective The purposes of this study were to explore the associations of activities of daily living (ADL) and depression among older adults with family caregivers’ quality of life and provide evidence for improving family caregivers’ quality of life. Methods Older adults (n=395) and their family caregivers (n=395) were selected as participants. The ADL scale and Geriatric Depression Scale were used to assess ADL and depression among older adults, and the 36-Item Short Form Health Questionnaire (SF-36) was used to assess family caregivers’ quality of life. Descriptive statistics and multiple linear regression were used to analyze the data. Results The older adults’ ADL and depression scores were 21±7 and 11±6, respectively. Approximately 69.9% of older adults had declining or severely impaired ADL, and 47.1% had mild or moderate-to-severe depression. Family caregivers’ mean quality of life score was 529±100. There was a negative correlation of older adults’ ADL and depression with caregivers’ quality of life. The correlation coefficient between ADL and the SF-36 mental component summary score was stronger than it was with the SF-36 physical component summary score. Conclusions The ADL and depression of older adults influenced family caregivers’ quality of life. Psychological health deserves closer attention, especially that of caregivers of disabled older adults.

scholarly journals Quality of Life and Psychological Health Indicators in the National Social Life, Health, and Aging Project

2009 ◽  
Vol 64B (Supplement 1) ◽  
pp. i30-i37 ◽  
Author(s):  
S. Shiovitz-Ezra ◽  
S. Leitsch ◽  
J. Graber ◽  
A. Karraker
Keyword(s):  
Quality Of Life ◽  
Psychological Health ◽  
Social Life ◽  
Health Indicators

THE INFLUENCES OF PERSONALITY AND MOTIVATION ON EXERCISE PARTICIPATION AND QUALITY OF LIFE

2007 ◽  
Vol 35 (9) ◽  
pp. 1189-1210 ◽  
Author(s):  
Chu-Hsin Huang ◽  
Li-Yueh Lee ◽  
Man-Ling Chang
Keyword(s):  
Quality Of Life ◽  
Psychological Health ◽  
The United States ◽  
Health Improvement ◽  
Extensive Literature ◽  
Exercise Motivation ◽  
Fitness Centers ◽  
Exercise Participation ◽  
Study Results

The major purpose of this study was to identify the effects of personality on individual exercise motivation and exercise participation, which then influences quality of life. A comprehensive model was developed, based on an extensive literature review, and empirically tested using members of fitness centers from Taiwan, Europe and the United States as respondents. The results indicate that individuals with a positive personality tend to have higher levels of exercise motivation and exercise participation. Personality and exercise participation then impacted on individuals' quality of life, in terms of physical health improvement, psychological health improvement, and sexual satisfaction. The study results offer valuable suggestions not only to marketing managers of fitness centers but also to government officers to promote health and quality of life through stimulating exercise motivation and exercise participation.

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