scholarly journals Unmet Needs of People With Parkinson's Disease and Their Caregivers During COVID-19-Related Confinement: An Explorative Secondary Data Analysis

2021 ◽  
Vol 11 ◽  
Author(s):  
Anne-Marie Hanff ◽  
Claire Pauly ◽  
Laure Pauly ◽  
Valerie E. Schröder ◽  
Maxime Hansen ◽  
...  

Self-perceived unmet needs in people with typical and atypical parkinsonism (PwP) and their caregivers, support network, personalized ways to address self-perceived unmet needs during confinement, as well as the prevalence of self-reported COVID-19 related symptoms, confirmed SARS-CoV-2 infection, and self-reported COVID-19 related hospitalization in Luxembourg and the Greater Region were assessed. From 18th March to 10th April 2020, 679 PwP were contacted by phone. Data was collected in the form of a semi-structured interview. The thematic synthesis identified 25 themes where PwP need to be supported in order to cope with consequences of the pandemic, and to adapt their daily and health-related activities. The present work highlights that in the context of personalized medicine, depending on the individual needs of support of the patient the identified self-perceived unmet needs were addressed in various ways ranging from one-directed information over interaction up to proactive counseling and monitoring. Family and health professionals, but also other support systems were taking care of the unmet needs of PwP (e.g., shopping, picking-up medication, etc.) during the pandemic. 7/606 PwP (1.15%) reported COVID-19 related symptoms, 4/606 (0.66%) underwent a rRT-PCR-based diagnostic test and 2/606 (0.33%) were confirmed as SARS-CoV-2 positive. None of these PwP reported being hospitalized due to COVID-19. Our results will allow health professionals to expand their services in a meaningful way i.e., personalize their support in the identified themes and thus improve the healthcare of PwP in times of crisis.

2021 ◽  
Author(s):  
Sushanta Kumar Barik ◽  
Avi Kumar Bansal ◽  
Ashwini Yadav ◽  
Srikanth Prasad Tripathy ◽  
Tej Pal Singh ◽  
...  

Abstract The follow-up of fifty-seven patients were conducted after a confirmation genotyping test. The secondary data analysis was done on the data available to observe the correlation between the CD4 counts and viral loads (One of the markers of clinical outcome) of the individual North Indian patients infected with HIV-1 Subtype C. The drug resistance mutations in individual patient were analysed through the drug resistance database, Stanford University, USA. The data of resistance associated with drugs, CD4 counts, viral loads of the individual patient was compiled and statistically analysed for drug resistance pattern profiles using Microsoft Excel 2016 and SPSS Version 22. The normality of data was checked by Shapiro-Wilk test (p<0.05). The study starting and endpoint data on CD4 counts, viral loads and drug resistance patterns associated with multiple first-line ART was available for 24 north Indian patients. The starting and study endpoint data on CD4 counts and drug resistance patterns associated with multiple first- line ART was available for 33 North Indian patients. The study indicative that the recommendation of policy to provide a tailor-made individualized regimen to each patient under AIDS control program.


Author(s):  
Gabriela Pizelli Mocco Grillo ◽  
Aline Miranda Da Fonseca Marins ◽  
Rosâne Mello

ResumoObjetivo: Conhecer a percepção do cuidador sobre a hospitalização do idoso com Doença de Alzheimer. Método: Trata-se de um estudo descritivo, exploratório, de natureza qualitativa, realizado com onze cuidadores familiares de idosos com doença de Alzheimer. Os dados foram coletados no período de Abril a Junho de 2013 por meio de entrevista semiestruturada. A análise dos dados foi pautada no Discurso do Sujeito Coletivo. Resultados: Emergiram duas ideias centrais síntese: piora da função cognitiva do idoso com doença de Alzheimer durante o processo de hospitalização e o despreparo da equipe de saúde para cuidar de um idoso com demência.Conclusão: De acordo com os resultados obtidos, urge a necessidade de capacitação e/ou especialização dos profissionais de saúde para atender o idoso com demência e sua família. A família é parte integrante do cuidado a esse idoso, sendo fundamental compreendê-la e assisti-la como uma unidade social complexa.Descritores: Cuidadores, Doença de Alzheimer, Idoso, Hospitalização. AbstractObjective: To investigate the perception of the caregiver about the hospitalization of the elderly with Alzheimer disease. Method: This is a descriptive study, exploratory and qualitative in nature, performed with 11 family caregivers of elderly with Alzheimer disease. The data were collected during the period from April to June 2013 through semi-structured interview. The data analysis was based on the Collective Discourse of the Subjects. Results: Two summary central ideas emerged: worsening of cognitive function in the elderly with Alzheimer disease during the process of hospitalization and the lack of health staff to take care of an elderly with dementia. Conclusion: According to the results obtained, there is urgent need for training and/or specialization of health professionals to meet the elderly with dementia and their families. The family is an integral part of the care that elderly, being critical to understand it and watched it as a social unit complex.Descriptors: Caregivers, Alzheimer Disease, Elderly, Hospitalization. ResumenObjetivo: Investigar la percepción del cuidador acerca de la hospitalización de las personas mayores con la enfermedad de Alzheimer. Método: Este es un estudio descriptivo, exploratorio y de naturaleza cualitativa, realizado con 11 cuidadores familiares de ancianos con enfermedad de Alzheimer. Los datos fueron recolectados durante el periodo de abril a junio de 2013 a través de la entrevista semi-estructurada. El análisis de los datos se basa en el discurso de los sujetos colectivos. Resultados: Surgieron dos ideas centrales resumen: empeoramiento de la función cognoscitiva en los ancianos con enfermedad de Alzheimer durante el proceso de hospitalización y la Falta de personal sanitario a cuidar de un anciano con demencia. Conclusión: De acuerdo a los resultados obtenidos, existe la urgente necesidad de formación y/o especialización de los profesionales de la salud para atender a los ancianos con demencia y sus familias. La familia es una parte integral de la atención que los ancianos, siendo fundamental para entenderla y verla como una unidad social compleja.Descriptores: Cuidadores, Enfermedad de Alzheimer, Ancianos, Hospitalización.


2020 ◽  
Author(s):  
Dwi Handayani

The research is proposed to test the influence of individual characteristics and employee competencies on community service satisfaction. The population in this study was the Sungai Penuh City community who had received the last 1 year service at the Kantor Urusan Agama Kecamatan Sungai Penuh, amounting to 150 people. Furthermore, by using the Slovin formula, a sample size of 110 people was chosen with a sampling technique based on Simple Random Sampling. This study uses primary data and secondary data. Data analysis techniques used are path analysis and hypothesis testing using t test with data analysis using SPSS version 20. The results of the study based on showing that partially the individual characteristics and competence of employees have a positive and significant effect on community service satisfaction. The results also show that employee competency variables act as intervening variables between individual characteristics and community service satisfaction.


2010 ◽  
Vol 18 (4) ◽  
pp. 732-739 ◽  
Author(s):  
Natália Rejane Salim ◽  
Natalúcia Matos Araújo ◽  
Dulce Maria Rosa Gualda

The aim of this study was to determine how women deal with sexuality and bodily changes during the puerperium. A qualitative methodology was used and a semi-structured interview with a leading question script was chosen as the research tool. Six puerperas from the west area of São Paulo (Brazil) took part in this study. The interviews were accomplished at their homes. In analysis, the responses were grouped into three main categories: "Changes", Sexuality" and "Social Support". The study results revealed that during this period there are important changes. Sexuality has been shown to evolve many difficulties, fears and worries. The relationships with the person's partner and support network have revealed themselves as being of great importance. It can be concluded that the puerperal period evolves in terms of many transformations in the emotional and psychosocial areas. Thus it is necessary for health professionals who deal with women's care to value this period.


Geriatrics ◽  
2018 ◽  
Vol 3 (1) ◽  
pp. 5 ◽  
Author(s):  
Heike Schmidt ◽  
Thomas Nordhausen ◽  
Stephanie Boese ◽  
Dirk Vordermark ◽  
Sally Wheelwright ◽  
...  

2021 ◽  
Vol 31 ◽  
Author(s):  
Julia Sursis Nobre Ferro Bucher-Maluschke ◽  
Rosilda Alves de Oliveira ◽  
Jonas Carvalho e Silva ◽  
Carlos Manoel Lopes Rodrigues

Abstract The arrival of a child with disability causes changes in the family structure and dynamics. The objective of this study was to identify the parents’ reactions after the transmission of the diagnosis of disability of their child and its repercussions on the family. A semi-structured interview was carried out with three couples with a child, which identified the profile and the transformations in the family system. The data analysis, with the aid of the IRaMuTeQ program (lexographic analysis and Descending Hierarchical Classification), resulted in the classs/categories: birth and mourning, pregnancy and care, routine and overload, spirituality and intrafamily relationships. The transformations in the family dynamics provoked feelings of mourning, overload of the couples, the need for a support network and, in some cases, the connection with spirituality. In conclusion, there is a need for interprofessional and intersectoral research in view of the communication of the diagnosis and the changes throughout the life of the family.


Horizon ◽  
2021 ◽  
Vol 1 (3) ◽  
pp. 543-553
Author(s):  
Lifia - Fitriana ◽  
Rinel Fitlayeni ◽  
Waza Karia Akbar

This research is motivated by the existence of an online market. Which makes the conventional market to be left behind and the income of traders to decline. The same is true for conventional traders in the Nagari Air Bangis market, Sungai Beremas District, West Pasaman Regency. The formulation of the research problem is how to survive conventional traders in the midst of the development of the online market. The theory used in this study is the theory of rational choice proposed by Coleman. This research approach is a qualitative approach with a descriptive type of research. The types of research data are primary and secondary data. There were 14 informants. Data collection methods are observation, in-depth interviews and document studies. To achieve the validity of the data using triangulation techniques. Meanwhile, the unit of data analysis is the individual with data analysis by Miles and Huberman, namely data reduction, data presentation, data presentation and conclusion drawing. From the results of the study, it can be concluded that there are conventional traders' survival strategies in the Nagari Air Bangis market, namely following the trend of goods being sold, displaying new goods on the front, giving discounts (discounts), and increasing social networks with buyers..


2019 ◽  
Vol 3 (2) ◽  
pp. 67
Author(s):  
Made Rismawan ◽  
IGNM Kusuma Negara ◽  
Ni Komang Tri Agustini

ABSTRAK.Latar Belakang. Pengalaman orang tua penting diteliti agar manfaat bawang merah khususnya untuk menurunkan demam anak menjadi lebih jelas sehingga dapat mencegah terjadinya komplikasi lebih lanjut pada anak yang mengalami demam. Metode Penelitian. Penelitian ini merupakan penelitian kualitatif dengan pendekatan fenomenologi yang dilaksanakan di Puskesmas I Denpasar Selatan. Penelitian ini menggali pengalaman orang tua khususnya tentang cara pemberian bawang merah pada anaknya. Jenis data pada penelitian ini adalah data primer dan sekunder dengan menggunakan pedoman wawancara semi terstruktur dengan teknik in-deepth interview. Hasil pengumpulan data dianalisa menggunakan analisa data kualitatif. Hasil Penelitian. Semua informan pada penelitian ini menyatakan bahwa pemberian bawang merah bermanfaat menurunkan demam yang dirasakan oleh anak mereka. Pembahasan. Pemberian bawang merah pada anak yang mengalami demam dapat dilakukan oleh orang tua. Melalui pemberian bawang merah ini, maka akan mampu menurunkan komplikasi akibat demam. Orang tua juga harus mampu mengidentifikasi derajat demam anak sehingga dapat memutuskan dengan tepat kapan waktunya anak harus dibawa ke pelayanan kesehatan. Simpulan. Pemberian bawang merah mampu menurunkan demam yang dirasakan oleh anakKata kunci : pengalaman orang tua, pemberian bawang merah, anak demam. ABSTRACT. Background. Parents' experience is important to be investigated to identify the benefits of shallot in particular to reduce a child's fever become clearer. So that it can prevent further complications in children who have a fever. Research methods. This research is a qualitative research with a phenomenological approach carried out at the Health Center I of South Denpasar. This research explores the experiences of parents especially about how to give shallot to their children. The type of data in this study are primary and secondary data using semi-structured interview guidelines with in-depth interview techniques. The results of data collection were analyzed using qualitative data analysis. Research result. All informants in this study stated that giving shallot was useful in reducing the fever felt by their children. Discussion. Giving shallot to children who have a fever can be done by parents. By giving shallot, it will be able to reduce complications due to fever. Parents also need to be able to identify the degree of a child's fever so that they can decide exactly when the child should be taken to health services. Conclusions. Giving shallot can reduce the fever felt by children.Keywords: parental experience, giving shallots, fever children.


2019 ◽  
Vol 76 ◽  
pp. 05004
Author(s):  
Djaka Marwasta ◽  
Muhamad Nurhidayat

The aims of this research are to know the settlement quality and thermal comfort and to study the prospect of eco-settlement based settlement planning and management in Yogyakarta City. The research method is quantitative method by combines structured interview, field survey, and secondary data analysis. The settlement quality was obtained through satellite imagery processing and structured interview with purposive sampling technique. The thermal comfort of the settlement was obtained through temperature humidity index (THI) analysis, where the data was taken at the temperature and relative humidity on systematic random sampling (grid). Data analysis was done descriptively by looking at spatial aspect. The results of this research showed that the distribution pattern of settlement quality is spreading. The result of thermal comfort analysis showed that THI value was 27 to 29. It also showed that the whole area was included in the uncomfortable category. The direction of settlement arrangement based on eco-settlement in the study area was divided into ecological, socio-economic, and institutional aspects. The ecological aspect emphasis on the direction of green open space planning, environmental sanitation management, and waste management. The settlement arrangement of eco-settlement concept should be supported by a compatible institutional system and program.


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