scholarly journals Parents’ Perspectives on Counseling for Fetal Heart Disease: What Matters Most?

2022 ◽  
Vol 11 (1) ◽  
pp. 278
Author(s):  
Alexander Kovacevic ◽  
Annette Wacker-Gussmann ◽  
Stefan Bär ◽  
Michael Elsässer ◽  
Aida Mohammadi Motlagh ◽  
...  
Keyword(s):  
Heart Disease ◽  
Skills Training ◽  
Parental Perception ◽  
Social Variables ◽  
Counseling Outcome ◽  
Interpersonal Support ◽  
Validated Questionnaire ◽  
Short Period ◽  
Effective Counseling ◽  
Parental Counseling

After diagnosis of congenital heart disease (CHD) in the fetus, effective counseling is considered mandatory. We sought to investigate which factors, including parental social variables, significantly affect counseling outcome. A total of n = 226 parents were recruited prospectively from four national tertiary medical care centers. A validated questionnaire was used to measure counseling success and the effects of modifiers. Multiple linear regression was used to assess the data. Parental perception of interpersonal support by the physician (β = 0.616 ***, p = 0.000), counseling in easy-to-understand terms (β = 0.249 ***, p = 0.000), and a short period of time between suspicion of fetal CHD, seeing a specialist and subsequent counseling (β = 0.135 **, p = 0.006) significantly improve “overall counseling success”. Additional modifiers (e.g., parental native language and age) influence certain subdimensions of counseling such as “trust in medical staff” (language effect: β = 0.131 *, p = 0.011) or “perceived situational control” (age effect: β = 0.166 *, p = 0.010). This study identifies independent factors that significantly affect counseling outcome overall and its subdimensions. In combination with existing recommendations our findings may contribute to more effective parental counseling. We further conclude that implementing communication skills training for specialists should be considered essential.

scholarly journals Fetal Cardiac Services during the COVID-19 Pandemic: How Does It Affect Parental Counseling?

2021 ◽  
Vol 10 (15) ◽  
pp. 3423
Author(s):  
Alexander Kovacevic ◽  
Stefan Bär ◽  
Sebastian Starystach ◽  
Michael Elsässer ◽  
Thomas van der Locht ◽  
...  
Keyword(s):  
Heart Disease ◽  
Health Care Providers ◽  
Congenital Heart ◽  
Fetal Heart ◽  
Online Information ◽  
Care Providers ◽  
High Quality ◽  
Validated Questionnaire ◽  
Parental Counseling ◽  
Diagnosis Therapy

The COVID-19 pandemic impacts health care providers in multiple ways, even specialties that do not seem to be affected primarily, such as fetal cardiac services. We aimed to assess the effects on parental counseling for fetal congenital heart disease (CHD). In this multicenter study, we used a validated questionnaire. Parents were recruited from four national tertiary medical care centers (n = 226); n = 169 had been counseled before and n = 57 during the pandemic. Overall counseling success including its dimensions did not differ between the two groups (p = n.s.). However, by applying the sorrow scale, we could demonstrate that parents counseled during the pandemic were significantly more concerned (p = 0.025) and unsure (p = 0.044) about their child’s diagnosis, therapy and outcome. Furthermore, parents expressed a significantly increased need for written and/or online information on fetal heart disease (p = 0.034). Other modifiers did not affect counseling success (p = n.s.). We demonstrate that the COVID-19 pandemic impacts effectiveness of parental counseling for fetal CHD, possibly by altering parental perceptions. This needs to be taken into consideration when counseling. Implementing alternative and innovative approaches (e.g., online conference or virtual reality tools) may aid in facilitating high-quality services in critical times such as in the present pandemic.

Assessment of Needs for Counseling After Prenatal Diagnosis of Congenital Heart Disease – A Multidisciplinary Approach

2018 ◽  
Vol 230 (05) ◽  
pp. 251-256 ◽  
Author(s):  
Alexander Kovacevic ◽  
Andreas Simmelbauer ◽  
Sebastian Starystach ◽  
Michael Elsässer ◽  
Christof Sohn ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Prenatal Diagnosis ◽  
Medical Staff ◽  
Congenital Heart ◽  
Multidisciplinary Approach ◽  
Medical Information ◽  
Coping Resources ◽  
Effective Counseling ◽  
Demographical Data

Abstract Background Congenital heart disease is the most common cause of major congenital anomalies. After prenatal diagnosis effective counseling is crucial. However, little research has been undertaken in determining the most effective techniques. Objectives To develop a questionnaire suitable to assess parental needs for counseling. Material and Methods A questionnaire was developed by pediatric cardiologists, maternal-fetal-medicine specialists and sociologists. Likert scaled and open-ended questions are combined with socio-demographical data. The questionnaire was prospectively pilot-tested on 17 parents. We present first analyses of n=41 parents. Results Response rate was 89.5%. The dependent variable “effective counseling” was measured in 5 dimensions (transfer of medical information, trust in medical staff, transparency of treatment process, coping resources and perceived situational control). The questionnaire’s internal consistency is high (Cronbach’s alpha>0.7). First analyses show that 44.7% perceived counseling as successful. Transfer of medical information seems difficult (36.6% success rate). Trust in medical staff was high with 75%. Conclusions This newly developed tool measures counseling success in five dimensions. A multidisciplinary approach is recommended as methodological expertise is essential for constructing adequate tests. Preliminary data indicate that transfer of medical information is not easily achieved. Further analyses are needed to identify factors that determine counseling success.

Communication skills training for nurses working with patients with heart disease

2008 ◽  
Vol 3 (10) ◽  
pp. 475-481 ◽  
Author(s):  
Susie Wilkinson ◽  
Louise Linsell ◽  
Rachel Perry ◽  
Karen Blanchard
Keyword(s):  
Heart Disease ◽  
Communication Skills ◽  
Skills Training ◽  
Communication Skills Training

Effect of Spiritual Skills Training on Public Health of Cardiac Patients

2015 ◽  
Vol 16 (SE) ◽  
pp. 367-370
Author(s):  
Nasrin Kazemi Miraki ◽  
Eghbal Zarei
Keyword(s):  
Public Health ◽  
Heart Disease ◽  
General Health ◽  
General Health Questionnaire ◽  
Skills Training ◽  
Physical Symptoms ◽  
Analysis Of Covariance ◽  
Control Group ◽  
Intellectual Skills ◽  
Experimental Group

 Aim of this study was the effectiveness of spiritual education in improving the general health of patients with heart disease. Study method was semi-experimental that performed as pretest - posttest design with control group. The study population included all patients with heart disease in the city of Fasa, which in 2014 referred to medical centers and doctors will cardiologist. With considering the effect size and power test, 20 patients were selected on the basis of the table Cohen for each sample group. A data collection tool was Goldberg General Health Questionnaire (GHQ). The pre-test was conducted on two groups. The experimental group participated in training sessions. After completing the training course, the tests were conducted on the groups. The results of analysis of covariance showed that training can improve mental health in general intellectual skills are tested. The results showed that the general intellectual skills training to improve general health in the experimental group (F=42.9; P<0.01).The results showed the effectiveness of the public health dimensions of anxiety (F=9.74, P<0.01), depression (F=12.84, P<0.01) and impaired social functioning (F=5.66 ; P<0.01) was significant, but the physical symptoms was not significant.  

scholarly journals Barriers to and Facilitators of the Use of Mobile Health Apps From a Security Perspective: Mixed-Methods Study (Preprint)

2018 ◽  
Author(s):  
Leming Zhou ◽  
Jie Bao ◽  
Valerie Watzlaf ◽  
Bambang Parmanto
Keyword(s):  
Mobile Health ◽  
Health Management ◽  
Mobile App ◽  
Security And Privacy ◽  
Semistructured Interview ◽  
Privacy Concerns ◽  
Validated Questionnaire ◽  
Short Period ◽  
Study Participants ◽  
Mhealth Apps

BACKGROUND A large number of mobile health (mHealth) apps have been created to help users to manage their health or receive health care services. Many of these mHealth apps have proven to be helpful for maintaining or improving their users’ health. However, many people still choose not to use mHealth apps or only use them for a short period. One of the reasons behind this lack of use is the concern for their health information security and privacy. OBJECTIVE The goal of this study was to determine the relationship between users’ characteristics and their security and privacy concerns and to identify desired security features in mHealth apps, which could reduce these concerns. METHODS A questionnaire was designed and validated by the research team. This questionnaire was then used to determine mobile app users’ security and privacy concerns regarding personal health data in mHealth apps as well as the security features most users’ desire. A semistructured interview was used to identify barriers to and facilitators of adopting mHealth apps. RESULTS In total, 117 randomly selected study participants from a large pool took part in this study and provided responses to the validated questionnaire and the semistructured interview questions. The results indicate that most study participants did have concerns about their privacy when using mHealth apps. They also expressed their preferences regarding several security features in mHealth apps, such as regular password updates, remote wipe, user consent, and access control. An association between their demographic characteristics and their concerns and preferences in security and privacy was identified; however, in most cases, the differences among the different demographic groups were not statistically significant, except for a few very specific aspects. These study participants also indicated that the cost of apps and lack of security features in mHealth apps were barriers for adoption, whereas having free apps, strong but easy-to-use security features, and clear user protection privacy policies might encourage them to use mHealth apps in their health management. CONCLUSIONS This questionnaire and interview study verified the security and privacy concerns of mHealth app users, identified the desired security and privacy features, and determined specific barriers to and facilitators of users adopting mHealth apps. The results can be used to guide mHealth app developers to create apps that would be welcomed by users.

Electrical storm

ESC CardioMed ◽  
2018 ◽  
pp. 2275-2278
Author(s):  
Leonard Ganz
Keyword(s):  
Heart Disease ◽  
Ventricular Tachycardia ◽  
Ventricular Fibrillation ◽  
Adverse Outcomes ◽  
Electrical Storm ◽  
Sympathetic Activation ◽  
Cardiac Disorder ◽  
Electrolyte Disturbances ◽  
Short Period ◽  
Life Threatening

Electrical storm is a condition in which there are recurrent episodes of ventricular fibrillation or sustained and/or poorly tolerated ventricular tachycardia that occurs within a short period and requires aggressive intervention to prevent imminent mortality and other adverse outcomes. The condition may be related to precipitating factors, such as ischaemia or electrolyte disturbances, or may be part of an underlying cardiac disorder (e.g. cardiomyopathy, ischaemic heart disease, and channelopathies) that, often for uncertain reasons, culminates in recurrent episodes of life-threatening ventricular arrhythmias. Frequently, sympathetic activation plays a role in precipitating episodes. Here, electrical storm is characterized and an approach to management is discussed.

scholarly journals Do Undergraduate Students Change Their Attitudes to People with Obesity After Following a Healthy Lifestyle Challenge?

2020 ◽  
Vol 4 (Supplement_2) ◽  
pp. 1312-1312
Author(s):  
Jin Yannan
Keyword(s):  
Undergraduate Students ◽  
Student Attitudes ◽  
Healthy Lifestyle ◽  
Medical Science ◽  
Drop Out ◽  
Activity Levels ◽  
Paired Samples ◽  
Validated Questionnaire ◽  
Short Period ◽  
Before And After

Abstract Objectives To test whether following a healthy lifestyle challenge for 21 days led to a change in student attitudes to people with obesity. Methods Students on an undergraduate BMedSci (Hons) Medical Science program were invited to take part in a healthy lifestyle challenge, and each of the participants selected one positive change to either their diet or physical activity levels, which they had to follow for 21 days. All challenges were approved by nutritionists to ensure their challenges were risk-free. During this period participants joined a social media group to support each other and discuss their progress. Before and after the 21 days participants were asked to complete a validated questionnaire ‘Attitudes to obese persons’ (Allison et al. 1991) which consists of 20 Likert scale questions, where they indicated how much they agreed or disagreed with each statement. Data were anonymised and analysed using Paired Samples T-Test, with the level of significance set at P &lt; 0.05. Results Thirty-seven students completed the first questionnaire however only 29 of them (78%) completed the second one. The drop-out rate was due to the second questionnaires being collected after a teaching session which was less well-attended than the first. Despite students reporting that they felt following their challenge made them more empathetic to the struggles that people with obesity may face when trying to lose weight and improve activity levels, their underlying attitudes did not change, and there were no significant differences in their questionnaire answers between before and after their challenge. Conclusions Taking part in a 21-day healthy lifestyles challenge did not change student attitudes to people with obesity. Developing more empathy did not seem to change underlying attitudes in this cohort, and it may be that such a short period of time is not enough to lead to significant changes. Funding Sources This work was supported by a Frontrunner Internship from De Montfort University, UK.

scholarly journals THE EFFECTIVENESS OF PSYCHOLOGICAL SKILLS TRAINING PROGRAM ON NETBALL SHOOTING PERFORMANCE

2019 ◽  
Vol 38 (1) ◽  
pp. 174-187
Author(s):  
Jamatul Shahidah Shaari ◽  
Lim Boon Hooi ◽  
Siswantoyo Siswantoyo
Keyword(s):  
Training Program ◽  
Skills Training ◽  
Control Group ◽  
Psychological Skills ◽  
Physical Practice ◽  
Psychological Skills Training ◽  
Practical Applications ◽  
Short Period ◽  
And Control ◽  
The Impact

The study was aimed to investigate the effect of Psychological Skills Training Program on netball shooting performance. The experimental method was used on three groups of an 8-week intervention: combination of diaphragmatic breathing and imagery, plus physical practice (G1); combination of DB and self-talk, plus physical practice (G2); and control group which have physical practice only (G3). A SPANOVA was conducted to assess the impact of all groups on shooting performance across the two time periods. The main effect comparing the two treatments and a control group was significant, p < .001. Post hoc Tukey test differ significantly at p < .05. However, the G2 was not significantly different from the G3. The results indicated that netballers of different skill used of PST, either G1 or G2 were found to improve the netball shooting performance. It was also showed that G1 has better netball shooting performance rather than G2 and G3. As to highlighting, that the principles and practical applications of these most basic psychological skills can be taught in easier ways and probably in a relative short period of time among youth athletes.

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