scholarly journals ASSESSING NEEDS OF PARENTS WITH CHILDREN WITH DISABILITIES IN TURKEY

Author(s):  
LAtife Özaydın ◽  
Fikriye Eda Karaçul ◽  
Nilay Kayhan ◽  
Şener Büyüköztürk ◽  
Sevim Karahan ◽  
...  

The universal experience of parents with a child with disabilities are added responsibilities and needs in supporting the child’s development. This study assessed the nature and extent of needs identified by parents of children with disabilities in Turkey using a Turkish translation of the Family Needs Survey (Bailey, Blasco & Simeonsson, 1992). The survey of 35 items and two open-ended questions was translated to reflect Turkish culture and linguistic equivalency. The psychometric properties of the Family Needs Survey were examined by administering it to 377 mothers and 297 fathers of children with disabilities, served in special education schools or rehabilitation centres. Factor analysis of data for mothers and fathers yielded a six-factor model explaining 56% and 61% of the variance, respectively. Alpha values for the factors of the survey ranged from .63 to .90 for the mother data set, and .80 to .91 for the father data set. Analyses of endorsed needs in the Family Needs Survey revealed an overall similar profile for both parents, with greater needs expressed for the factors of obtaining information, family and social support and community services than for factors pertaining to financial topics, explaining to others and child care. Mothers and fathers identified 35 additional needs reflecting themes of personal and societal concern related to parenting a child with disabilities in Turkey.

2019 ◽  
Vol 4 (3) ◽  
pp. 173-186 ◽  
Author(s):  
Mia Pépin ◽  
Linda Kwakkenbos ◽  
Marie-Eve Carrier ◽  
Sandra Peláez ◽  
Ghassan El-Baalbaki ◽  
...  

Peer-facilitated support groups are an important source for receiving disease-related information and support for people with systemic sclerosis (or scleroderma). A recent survey explored reasons for attending systemic sclerosis support groups in Europe and Australia and used exploratory factor analysis to group reasons for attendance into three main themes: (1) interpersonal and social support, (2) disease treatment and symptom management strategies, and (3) other aspects of living with systemic sclerosis. The objective of the present study was to replicate this study in a sample of patients from North America using confirmatory factor analysis. A 30-item survey was used to assess reasons for attendance and organizational preferences among systemic sclerosis patients in Canada and the United States. In total, 171 members completed the survey. In the confirmatory factor analysis, the three-factor model showed good fit to the data (χ2(399) = 646.0, p < 0.001, Tucker–Lewis index = 0.97, comparative fit index = 0.97, root mean square error approximation = 0.06). On average, respondents rated 22 (73%) of 30 items as “important” or “very important” reasons for attending support groups. Among organizational preferences, respondents emphasized the importance of the ability to share feelings and concerns, as well as educational aspects. Findings of our study suggest that reasons for attending support groups are similar for patients from Europe, Australia, and North America and that support groups should facilitate social support as well as disease education. These results inform the development of training programs for current and future systemic sclerosis support group leaders across the globe.


Author(s):  
Janusz Kirenko ◽  
Piotr Alfred Gindrich

In order to address the main research problem, the authors determined the correlation between personal predictors, i.e. the level of self-esteem measured by Fitts’ Tennessee Self-Concept Scale, the styles of coping with stress examined by Endler & Parkers’ Coping Inventory for Stressful Situations, the intensity of social support measured by Norbeck Social Support Questionnaire, and the level of educational aspirations of parents of children with disabilities, assessed by K. Parental Aspirations Questionnaire. The research involved 247 mothers and fathers of children with visual, auditory, motor and intellectual disabilities. Only full families were investigated. The research relied on multiple step-wise regression analysis, factor analysis, and path analysis for mothers and fathers separately. The high level of aspirations for the education of children with disabilities was dependent on the positive self-esteem of both mothers and fathers. The article presents a discussion of the results, study limitations, practical implications and future research areas.


2003 ◽  
Vol 92 (1) ◽  
pp. 119-127 ◽  
Author(s):  
Stephen M. Gavazzi ◽  
Patrick C. McKenry ◽  
Jill A. Jacobson ◽  
Teresa W. Julian ◽  
Brenda Lohman

Using a convenience sample of 152 married couples, the present study tested models that alternately considered family members' perceptions of Expressed Emotion to be a one-, two-, three-, or four-factor construct as measured by the Family Emotional Involvement and Criticism Scale. Results of confirmatory factor analysis procedures indicated that perceptions of Expressed Emotion were best represented by a four-factor model that consisted of involvement, criticism, upset feelings, and approval. The methodological implications of these findings are discussed.


2011 ◽  
Vol 16 (3) ◽  
pp. 66-81 ◽  
Author(s):  
Katharine Venter

There is a wealth of literature exploring the impact of parenthood on employment. However, this literature largely overlooks the experiences of parents of children with disabilities, for whom combining the care of their child with employment poses considerable challenges. Within the limited literature on these parents, the focus is on primary carers who are predominantly women. Consequently, the implications for fathers' employment experiences of parenting children with disabilities are largely invisible. Based on research with mothers and fathers this paper argues that being the parent of a child with disabilities impacts significantly on the characteristics of both parents' employment and on their experience of employment. This depends on the nature of parents' roles in care and is reflective of broader patterns of gender relationships within the family. Employment decisions take place within an ongoing parental dialogue that reflects broader conceptualisations of gender relations within the family and in the workplace.


2019 ◽  
Vol 7 (2) ◽  
pp. 62-70
Author(s):  
Malini Ulfah

Dukungan sosial adalah pemberian bantuan dari seseorang kepada orang lain berupa perhatian emosional, bantuan materil, pemberian informasi, penghargaan, pujian, pemecahan masalah dan bantuan nyata, sehingga orang yang mendapatkan dukungan tersebut merasa dihargai dan dicintai. Salah satu bagian dari dukungan sosial adalah dukungan teman sebaya. Hal tersebut bisa berupa penerimaan dari teman terhadap individu, yang menimbulkan persepsi dalam dirinya bahwa ia disayangi, diperhatikan, dihargai, dan ditolong, sehingga menimbulkan perasaan bahwa kita memiliki arti bagi orang lain atau menjadi bagian dari jaringannya. Menurut Weiss (dalam Cutrona dan Russell, 1987) komponen dukungan sosial meliputi pemenuhan 6 hal kebutuhan, yaitu emotional attachment, social integration, reassurance of worth, reliable alliance, guidance, dan opportunity for nurturance. Penelitian ini bertujuan untuk menguji validitas kostruk instrumen tersebut. Data dalam penelitian ini diperoleh dari santri kelas 1 extention Pondok Pesantren Daar El- Qolam yang berjumlah 204 orang. Metode yang digunakan untuk mengujinya adalah confirmatory factor analysis (CFA) menggunakan software LISREL 8.70. Hasil dari penelitian ini menunjukkan bawa seluruh item yang berjumlah 23 item bersifat unidimensional. Artinya seluruh item hanya mengukur satu faktor saja, sehingga model satu faktor yang diteorikan oleh The Social Provisions Scale dapat diterima. Social support is the provision of assistance from someone to others in the form emotional attention, material assistance, information giving, appreciation, praise, problem solving and real help so that people who get that support feel valued and loved. One of the parts of social support is peer support. This can be in the form of acceptance from friends to individuals, which gives rise to a perception in him/her that he/she is loved, cared for, appreciated, and helped, giving rise to feelings that we matter to others. According to Weiss (in Cutrona and Russel, 1987) the component of social support includes the fulfillment of six things: emotional attachment, social integration, reassurance of worth, reliable alliance, guidance, and opportunity for nurturance. This study aims to examine the validity of the boarding instrument. The data in this research were obtained from students in class 1 extention of Daar El-Qolam Islamic Boarding School with 204 people. The method that used to test them is confirmatory factor analysis (CFA) using LISREL 8.70 as the software. The results of this research show that all items, totaling 23 items, are unidimensional. This means that all items only measure one factor so that a one-factor model theorized by The Social Provisions Scale is acceptable.


Author(s):  
Chin Wen Cong ◽  
Chee-Seng Tan ◽  
Hooi San Noew ◽  
Shin Ling Wu

The Family Adaptability and Cohesion Scale III (FACES-III) has been widely used to measure an individual’s family functioning in terms of cohesion and adaptability. In Malaysia, the FACES-III has been translated into the Malay language for the community, but its psychometric properties in this context remain unknown. Thus, the purpose of this research is to examine the psychometric properties of the Malay version of the FACES-III in 852 adolescents attending secondary schools in Kuala Lumpur, Malaysia. Data were randomly split into two halves: the exploration sample and the validation sample. Exploratory factor analysis was conducted on the exploration sample and a two-factor model was discovered after removing nine items that showed low factor loading. Then, confirmatory factor analysis was conducted on the validation sample to compare the one-factor models, two-factor models, and three-factor models. Results showed that the 11-item two-factor model (FACES-III-M-SF) was superior to the other competing models. Both the exploratory and confirmatory factor analyses replicated the two-factor structure of the original version of FACES-III. The reliability of the overall scale was consistently good, but the subscale results were mixed. This suggests that researchers should use the overall score, but not the subscale scores, in analyses.


2003 ◽  
Vol 92 (3) ◽  
pp. 757-762 ◽  
Author(s):  
Sean Valentine

The factor structure of the Multidimensional Aversion to Women Who Work Scale was assessed using data collected from 418 predominantly young male and female college students attending one of four colleges or universities located in the south or southwest USA. An exploratory factor analysis using half the data set initially yielded a two-factor solution with unparsimonious loadings. After incompatible items were deleted, another exploratory factor analysis indicated an acceptable two-factor explanation. A confirmatory factor analysis using the second set of observations supported this solution, and the analysis of a second-order factor model suggested that both Employment Skepticism and Traditional Roles Preference were components of Aversion to Women Who Work. The results show that the 5-item scale might be used instead of the 10-item format.


Author(s):  
Rini Hartini

Social support from family and the environment is one of the important variables that can support the development of children with disabilities. The purposes of the research are to know, understand and analyze; (1) social support received by children with disabilities from the family and the child's environment before the implamentation of the model; (2) design and implementation of the family and environmental social support development model; (3) social support received by child with disabity from the family and the environment of the child after the implementation of the model. This action research has involved 21 informants, consists of eight mothers, three fathers, eight children, one aunt and one grandmother. Data collection techniques are through in-depth interviews, focus group discussions, participatory observation and documentation study. The research results show that social support before the implementation of model from family and the environment already exists but is still very minimum. After implementation of the model, social support from the family increased in all aspects of social support, they are: in the aspects of instrumental support, informational support, emotional support, self-esteem support, and support from the surrounding environment. The process of action research involved the active participation of informants to engage in social support development models through social work activities at micro, mezzo and macro scope. Indonesia which has a social capital in the form of a strong sense of kinship, it becomes the basis of model development. Involving the family and the environment directly in developed model, it is result more optimal social support system that can be provided to their children with disabilities.


2019 ◽  
Vol 35 (3) ◽  
pp. 335-345 ◽  
Author(s):  
Davide Margola ◽  
Valentina Fenaroli ◽  
Angela Sorgente ◽  
Margherita Lanz ◽  
Giulio Costa

Abstract. Factor analysis of nested data is a challenge for researchers when they need to accurately identify the most appropriate latent configuration of self-report instruments. The present study used a multilevel framework to evaluate the factor structure underlying the 12-item three-factor Family Relationships Index (FRI), while adapting this instrument to the Italian context. By way of separating the two sources of variance (within and between families), results from 231 family members nested in 77 family triads supported a three-factor model (i.e., family cohesion, communication, and conflict resolution). Multilevel confirmatory factor analysis (MCFA) corroborated this model at the family level in particular. A one-factor model was also tested but resulted in being less suitable at both the individual (within) and family (between) level of analysis. Finally, we consider challenges in using such statistical techniques, while taking into account the FRI’s briefness and easiness to complete and score it in a practice-oriented assessment perspective.


2018 ◽  
Vol 1 (1) ◽  
pp. 50
Author(s):  
Sari Lestari ◽  
Desy Indra Yani ◽  
Ikeu Nurhidayah

Hasil studi pendahuluan yang dilakukan menunjukkan masih banyak orang tua yang minder dan malu dengan keadaan anak mereka. Selain itu, masih banyak orang tua yang tidak menyekolahkan dan tidak mengetahui informasi terkait terapi untuk anak dengan disabilitas. Jika hal tersebut dibiarkan, maka dapat menyebabkan masalah yang serius, seperti terganggunya tumbuh kembang anak dan kebutuhan keluarga dengan anak disabilitas. Penelitian ini bertujuan mengetahui gambaran kebutuhan keluarga dengan anak disabilitas di Komunitas Ikatan Keluarga dengan Anak Disabilitas Desa Cimekar Kecamatan Cileunyi Kabupaten Bandung. Penelitian menggunakan deskriptif kuantitatif dengan teknik pengambilan sampel total sampling dari 31 keluarga (ayah dan ibu). Kebutuhan keluarga dengan anak disabilitas diukur menggunakan kuesioner Assessment of Family Needs-FNS versi Jepang yang diadopsi dari Bailey dan Simerson (1988). Analisis data menggunakan persentase nilai setiap domain dan rerata skor yang dihitung dengan menggunakan nilai minimal dan maksimal (1-3) dari setiap item pertanyaan dari setiap sub-kebutuhan. Hasil menunjukkan kebutuhan ibu jika diurutkan dari tertinggi ke terendah adalah kebutuhan informasi dan dukungan profesional 71,0%, pelayanan komunitas 64,5%, menjelaskan kepada orang lain 38,7%, kebutuhan finansial 22,6%, perawatan anak 16,1%, dan dukungan keluarga/sosial 12,9%. Kebutuhan ayah dari tertinggi ke terendah yaitu kebutuhan informasi 71,0%, pelayanan komunitas 64,5%, dukungan profesional 61,0%, menjelaskan kepada orang lain 45,2%, kebutuhan finansial 29,0%, perawatan anak 22,6%, dan dukungan keluarga/sosial 19,4%. Kebutuhan informasi merupakan kebutuhan paling dibutuhkan. Sehingga perlu adanya akses informasi yang dibutuhkan untuk mememuhi kebutuhan informasi tersebut. Dengan terpenuhinya kebutuhan informasi orang tua, maka orang tua akan lebih mengetahui cara merawat dan mengembangkan potensi yang dimiliki anak mereka.Kata kunci: Anak disabilitas, kebutuhan keluarga, orang tua. Parents’ Need of Children with DisabilityAbstractThe result of the preliminary study showed that there were parents who felt embarassed with their children’s condition.In addition, there were parents who did not send their children to schools and education and did not know the information related to therapy for children with disabilities. If it was left it could cause serious problems, such as disruption of child growth and the needs of families with children with disabilities. The purpose of this study was to determine the needs of families with disable children in The Association of Families with Disabled Children at Cimekar Village District of Cileunyi Bandung Regency. The research method used was descriptive quantitative with total sampling technique which consisted of 31 families (31 mother and 31 father). The data analysis used was the percentages of the scores of each domain and the average scores calculated by using the minimum and maximum scores (1-3) of each question item of each subneed. The research findings showed that the needs of families with disabled children sorted from the highest to the lowest rate were the needs for information and professional supports had the same percentage 71.0%, the community services were 64.5%, explaining to others was 38.7%, financial needs were 22.6%, child care was 16.1%, and family and social supports were 12.9%. The needs on father from the highest to the lowest rate were that the information was 71.0%, community services were 64.5%, professional support had the same scores 61.0%, explaining to other was 45.2%, finansial needs were 29.0%, child care was 22.6%, and family and social support needs 19.4%. Thus, the needs for information were the most needed in families with disabilities. It is necessary to provide easy information access for the parents in order to fulfill the needs for information. When they are fulfilled, the parents will know more about how to care for their children and develop their children’s potentials.Keywords: Disable children, family needs, parents.


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