scholarly journals Kebutuhan Orang Tua dengan Anak Disabilitas

2018 ◽  
Vol 1 (1) ◽  
pp. 50
Author(s):  
Sari Lestari ◽  
Desy Indra Yani ◽  
Ikeu Nurhidayah
Keyword(s):  
Child Care ◽  
Children With Disabilities ◽  
Information Access ◽  
Sampling Technique ◽  
Community Services ◽  
Child Growth ◽  
Family Needs ◽  
Disabled Children ◽  
Question Item ◽  
Families With Children

Hasil studi pendahuluan yang dilakukan menunjukkan masih banyak orang tua yang minder dan malu dengan keadaan anak mereka. Selain itu, masih banyak orang tua yang tidak menyekolahkan dan tidak mengetahui informasi terkait terapi untuk anak dengan disabilitas. Jika hal tersebut dibiarkan, maka dapat menyebabkan masalah yang serius, seperti terganggunya tumbuh kembang anak dan kebutuhan keluarga dengan anak disabilitas. Penelitian ini bertujuan mengetahui gambaran kebutuhan keluarga dengan anak disabilitas di Komunitas Ikatan Keluarga dengan Anak Disabilitas Desa Cimekar Kecamatan Cileunyi Kabupaten Bandung. Penelitian menggunakan deskriptif kuantitatif dengan teknik pengambilan sampel total sampling dari 31 keluarga (ayah dan ibu). Kebutuhan keluarga dengan anak disabilitas diukur menggunakan kuesioner Assessment of Family Needs-FNS versi Jepang yang diadopsi dari Bailey dan Simerson (1988). Analisis data menggunakan persentase nilai setiap domain dan rerata skor yang dihitung dengan menggunakan nilai minimal dan maksimal (1-3) dari setiap item pertanyaan dari setiap sub-kebutuhan. Hasil menunjukkan kebutuhan ibu jika diurutkan dari tertinggi ke terendah adalah kebutuhan informasi dan dukungan profesional 71,0%, pelayanan komunitas 64,5%, menjelaskan kepada orang lain 38,7%, kebutuhan finansial 22,6%, perawatan anak 16,1%, dan dukungan keluarga/sosial 12,9%. Kebutuhan ayah dari tertinggi ke terendah yaitu kebutuhan informasi 71,0%, pelayanan komunitas 64,5%, dukungan profesional 61,0%, menjelaskan kepada orang lain 45,2%, kebutuhan finansial 29,0%, perawatan anak 22,6%, dan dukungan keluarga/sosial 19,4%. Kebutuhan informasi merupakan kebutuhan paling dibutuhkan. Sehingga perlu adanya akses informasi yang dibutuhkan untuk mememuhi kebutuhan informasi tersebut. Dengan terpenuhinya kebutuhan informasi orang tua, maka orang tua akan lebih mengetahui cara merawat dan mengembangkan potensi yang dimiliki anak mereka.Kata kunci: Anak disabilitas, kebutuhan keluarga, orang tua. Parents’ Need of Children with DisabilityAbstractThe result of the preliminary study showed that there were parents who felt embarassed with their children’s condition.In addition, there were parents who did not send their children to schools and education and did not know the information related to therapy for children with disabilities. If it was left it could cause serious problems, such as disruption of child growth and the needs of families with children with disabilities. The purpose of this study was to determine the needs of families with disable children in The Association of Families with Disabled Children at Cimekar Village District of Cileunyi Bandung Regency. The research method used was descriptive quantitative with total sampling technique which consisted of 31 families (31 mother and 31 father). The data analysis used was the percentages of the scores of each domain and the average scores calculated by using the minimum and maximum scores (1-3) of each question item of each subneed. The research findings showed that the needs of families with disabled children sorted from the highest to the lowest rate were the needs for information and professional supports had the same percentage 71.0%, the community services were 64.5%, explaining to others was 38.7%, financial needs were 22.6%, child care was 16.1%, and family and social supports were 12.9%. The needs on father from the highest to the lowest rate were that the information was 71.0%, community services were 64.5%, professional support had the same scores 61.0%, explaining to other was 45.2%, finansial needs were 29.0%, child care was 22.6%, and family and social support needs 19.4%. Thus, the needs for information were the most needed in families with disabilities. It is necessary to provide easy information access for the parents in order to fulfill the needs for information. When they are fulfilled, the parents will know more about how to care for their children and develop their children’s potentials.Keywords: Disable children, family needs, parents.

scholarly journals ASSESSING NEEDS OF PARENTS WITH CHILDREN WITH DISABILITIES IN TURKEY

2021 ◽  
Author(s):  
LAtife Özaydın ◽  
Fikriye Eda Karaçul ◽  
Nilay Kayhan ◽  
Şener Büyüköztürk ◽  
Sevim Karahan ◽  
...  
Keyword(s):  
Social Support ◽  
Factor Analysis ◽  
Children With Disabilities ◽  
Factor Model ◽  
Community Services ◽  
Family Needs ◽  
Data Set ◽  
Mothers And Fathers ◽  
The Family ◽  
Turkish Culture

The universal experience of parents with a child with disabilities are added responsibilities and needs in supporting the child’s development. This study assessed the nature and extent of needs identified by parents of children with disabilities in Turkey using a Turkish translation of the Family Needs Survey (Bailey, Blasco & Simeonsson, 1992). The survey of 35 items and two open-ended questions was translated to reflect Turkish culture and linguistic equivalency. The psychometric properties of the Family Needs Survey were examined by administering it to 377 mothers and 297 fathers of children with disabilities, served in special education schools or rehabilitation centres. Factor analysis of data for mothers and fathers yielded a six-factor model explaining 56% and 61% of the variance, respectively. Alpha values for the factors of the survey ranged from .63 to .90 for the mother data set, and .80 to .91 for the father data set. Analyses of endorsed needs in the Family Needs Survey revealed an overall similar profile for both parents, with greater needs expressed for the factors of obtaining information, family and social support and community services than for factors pertaining to financial topics, explaining to others and child care. Mothers and fathers identified 35 additional needs reflecting themes of personal and societal concern related to parenting a child with disabilities in Turkey.

scholarly journals Overview of Coping Mechanism Mother of Children With Disabilities in SDLB Negeri Tompokersan Lumajang

2021 ◽  
Vol 1 (2) ◽  
pp. 88-96
Author(s):  
Resita Ovina Intiyaskanti ◽  
Erti Ikhtiarini Dewi ◽  
Enggal Hadi Kurniyawan
Keyword(s):  
Children With Disabilities ◽  
Sampling Technique ◽  
Coping Mechanisms ◽  
Coping Mechanism ◽  
Disabled Children ◽  
Brief Cope ◽  
First Child ◽  
The Family ◽  
Behavioral Disengagement ◽  
Mother’S Age

Mothers who have children with disabilities have many problems and barriers. The research aims to describe mother’s coping mechanisms for children with disabilities in SDLB Negeri Tompokersan Lumajang. Respondents in this study were 54 mothers that were taken with purposive sampling technique with brief cope instrument. The result showed mother’s age have a median value of 39.50 years and the child's age have a median value of 11 years. Mothers who have children with disabilities have 1 child with disabilities in the family (96.3%) in order of disabled children  in the main family of the first child (55.4%). The majority of mothers' last education is elementary school (35.2%) and The majority of the marital status is married (96.3%). Types of disabilities that are mostly experienced are intellectual disabilities (61.1%). The description of a mother’s coping mechanism in children with disabilities has a mean of 86.46. It is shown that the dominant indicators for respondents include religion (mothers believe there is wisdom in the problem), behavioral disengagement (mothers fulfill their education rights and provide therapy or medication), and substance use (mothers do not use drugs to protect themselves). Further researchers can identify mother’s motivation in caring for children with disabilities

scholarly journals Issues of children with disabilities registered as disabled

2020 ◽  
Vol 101 (1) ◽  
pp. 97-101
Author(s):  
D I Sadykova ◽  
N A Solov’ev ◽  
G A Kulakova ◽  
E A Kurmayeva
Keyword(s):  
Children With Disabilities ◽  
Case Reports ◽  
Functional Limitations ◽  
Disabled Persons ◽  
Social Characteristics ◽  
Disabled Children ◽  
Financial Investments ◽  
The Family ◽  
The Status ◽  
Families With Children

Aim. To analyze the medical and social characteristics of children's disability at the stage of primary medical and social care in the polyclinics of Kazan. Methods. 185 case reports of development of children with disabilities aged 0 to 17 years were analyzed as well as the questionnaires for their parents and 96 case reports of healthy peers of the same age group based on the data from children polyclinics N. 9 and 7 of Kazan. Relative values were calculated to process the results. Results. The conducted analysis revealed that children with the status of disabled persons were more often born in aged and young mothers, with pathological pregnancy and first birth. In the structure of disability causes, psychiatric disorders and nervous system diseases are prevailing. Disabled children acquire acute diseases more often than their healthy peers that causes additional expanses for the family, including those due to the care for acutely ill child, and requires additional provision with medications. Individual lessons in the rehabilitation of a child with disabilities require additional financial investments from the family budget. We revealed the need for implementation of educational courses for the parents of disabled children due to that every second family did not have specific knowledge and skills of care and rehabilitation, when a child had functional limitations found. Conclusion. Families with children with disabilities in the status of a disabled child need additional assistance in solving medical and social problems.

scholarly journals Social Support Resources for Families with Disabled Children in the Leningrad Region

2021 ◽  
pp. 110-118
Author(s):  
G. M. Tsinchenko ◽  
I. S. Orlova
Keyword(s):  
Social Support ◽  
Children With Disabilities ◽  
Practical Significance ◽  
Leningrad Region ◽  
Disabled Children ◽  
State Support ◽  
Comparison System ◽  
Complex Approach ◽  
Support Resources ◽  
Families With Children

Goals and objectives. The article analyzes the resources of support for families with disabled children living in the Leningrad region. There is substantial state support for this category of families, developing the potential of non-state support resources. The results of the government’s efforts to support families with children with disabilities, as well as the tasks set to be solved in the near and long term, are considered.Methods. The study uses a set of general scientific methods, such as analysis, synthesis, generalization, comparison, system-functional and complex approach. Within the framework of the stated theme, theoretical provisions and modern approaches have been organized by studying the works of various authors, regulatory documents and official statistics.The theoretical and practical significance of the study is that it can be the basis for further study of social resources and life strategies of families with children with disabilities, their transformation. The analysis provides an opportunity to identify the problems of families with children with disabilities in Leningrad, actualizes the importance of state policy regarding these categories of families, both in the process of formation and in its implementation. The materials provide us with positive results achieved by the authorities of the Leningrad region and identify ways to further develop both state and non-state social support for families with children with disabilities in the region.Results and conclusions. The article presents the results of the research of the resources of state and non-state social support for families with children with disabilities in The Leningrad region. Conclusions have been drawn on the need to unite the efforts of state and non-state resources in this direction

scholarly journals Feeding difficulties in disabled children leads to malnutrition: experience in an Indian slum

2003 ◽  
Vol 90 (6) ◽  
pp. 1097-1106 ◽  
Author(s):  
Aisha K. Yousafzai ◽  
Suzanne Filteau ◽  
Sheila Wirz
Keyword(s):  
Nutritional Status ◽  
Children With Disabilities ◽  
Cross Sectional Study ◽  
Nutritional Deficiencies ◽  
Disabled Children ◽  
Cross Sectional ◽  
Feeding Difficulties ◽  
The Disabled ◽  
Feeding Difficulty ◽  
Weight For Age

The aim of the present study was to explore the nature, extent and probable causes of nutritional deficiencies among children with disabilities living in Dharavi, a slum in Mumbai, India. A cross-sectional study was conducted to investigate whether the nutritional status of children with disabilities, aged 2–6 years (n141), was worse than that of non-disabled sibling controls (n122) and neighbour controls (n162). Data on food patterns, anthropometry, micronutrient status and feeding difficulties reported by parents were collected. The mean weight for age of the children with disabilities (−2·44 (sd 1·39)Zscores;n120) was significantly lower (P<0·05) compared with the sibling (−1·70 (sd 1·20)Zscores;n109) and neighbour (−1·83 (sd 1·290)Zscores;n162) control groups. The children with disabilities had significantly lower (P<0·05) mean haemoglobin levels (92 (sd 23) g/l;n134) compared with siblings (102 (sd 18) g/l;n103) and neighbours (99 (sd 18) g/l;n153). Relative risk (RR) analysis indicated that the disabled children with feeding difficulties were significantly more likely (P<0·05) to be malnourished, by the indicator of weight for age (RR 1·1; 95 % CI 1·08, 1·20) compared with the disabled children without a feeding difficulty. They were also significantly more likely to be malnourished using the indicators of height for age (RR 1·3; 95 % CI 1·19, 1·43) and weight for height (RR 2·4; 95 % CI 1·78, 3·23) compared with the disabled children without a feeding difficulty. Feeding difficulties were identified as a risk factor for vulnerability to inadequate nutritional status among children with disabilities.

scholarly journals Pengaruh Pijat Bayi terhadap Peningkatan Berat Badan

2020 ◽  
Vol 1 (3) ◽  
pp. 144-150
Author(s):  
Yuyuk Eva Fitriyanti ◽  
Gusman Arsyard ◽  
Sumiaty Sumiaty
Keyword(s):  
Weight Gain ◽  
Health Workers ◽  
Sampling Technique ◽  
Child Growth ◽  
Control Group ◽  
P Value ◽  
Infant Massage ◽  
Chi Square ◽  
Control Group Design ◽  
Quasi Experimental

Indicator of child growth is weight. At the age of 1-3 months is a period of rapid growth, so it is necessary to maintain a baby's weight according to age. Touch therapy or massage is one of technique that combines the physical benefits of human touch with emotional benefits such as bounding and increasing weight. The purpose of this study was to determine the effect of infant massage on weight gain in infants aged 1-3 months in the work area of the Sangurara Health Center in Palu. This type of research was a Quasi-experimental design with pretest and Posttest control group design. The sample in this study was 30 months old infants as many as 30 infants with sampling technique consecutive sampling. Data analysis used test Chi-square with a confidence level of 95% (α = 0.05). The results show that babies who were massaged had more weight gain, which was 24.07%, while babies who were not massaged had a weight gain of 18.28%. This is evidenced by the value of p value: 0.03 (p.value≤0.05). In conclusion, there was the effect of Baby Massage on Increased Body Weight. Suggestions for researchers for health workers to socialize and suggest baby massage to reduce the case of BGM weight (Under the Red Line) in infants.

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