Understanding Hospice Life

Author(s):  
Alan Baron ◽  
John Hassard ◽  
Fiona Cheetham ◽  
Sudi Sharifi

This chapter presents a reflexive account of life in a hospice—one that will reveal how the members see, feel, and think about the culture of their organization. During the period of data collection the authors had extended conversations with staff from all disciplines and with a number of people who regularly volunteer at the Hospice. They also attended many meetings and observed working practices to give a greater insight into what the Hospice means to those who work there. The chapter examines how dealing with issues of death and dying as part of everyday work can impact on the members and stakeholders of the Hospice. Wider discussion of some of the major ideas in the literature, and their application to the Hospice setting, provides evidence to support some of the main theories reviewed.

2019 ◽  
Author(s):  
Joseph John Pyne Simons ◽  
Ilya Farber

Not all transit users have the same preferences when making route decisions. Understanding the factors driving this heterogeneity enables better tailoring of policies, interventions, and messaging. However, existing methods for assessing these factors require extensive data collection. Here we present an alternative approach - an easily-administered single item measure of overall preference for speed versus comfort. Scores on the self-report item predict decisions in a choice task and account for a proportion of the differences in model parameters between people (n=298). This single item can easily be included on existing travel surveys, and provides an efficient method to both anticipate the choices of users and gain more general insight into their preferences.


2018 ◽  
Vol 17 (1) ◽  
pp. 160940691879160 ◽  
Author(s):  
Andrew Stuart Lane ◽  
Chris Roberts

The interview is an important data-gathering tool in qualitative research, since it allows researchers to gain insight into a person’s knowledge, understandings, perceptions, interpretations, and experiences. There are many definitions of reflexivity in qualitative research, one such definition being “Reflexivity is an attitude of attending systematically to the context of knowledge construction, especially to the effect of the researcher, at every step of the research processes.” The learning pathways grid (LPG) is a visual template used to assist analysis and interpretation of conversations, allowing educators, learners, and researchers, to discover links from cognition to action, usually in a retrospective manner. It is often used in simulation educational research, with a focus on understanding how learners access their cognitive frames and underlying beliefs. In this article, we describe the use of the LPG as a prospective adjunct to data collection for interviews and focus groups. We contextualize it within a study among medical interns and medical students who were engaged in high-fidelity simulation exploring open disclosure after a medication error. The LPG allowed future optimization of data collection and interpretation by ensuring reflexivity within the researchers, a vital part of research conduct. We conclude by suggesting the use of the LPG has a reasonable fit when taking a social constructivist approach and using qualitative analysis methods that make reflexivity explicit and visible, therefore ensuring it is truly considered, understood, and demonstrated by researchers.


2018 ◽  
Vol 10 (11) ◽  
pp. 1744 ◽  
Author(s):  
Kristen Splinter ◽  
Mitchell Harley ◽  
Ian Turner

Narrabeen-Collaroy Beach, located on the Northern Beaches of Sydney along the Pacific coast of southeast Australia, is one of the longest continuously monitored beaches in the world. This paper provides an overview of the evolution and international scientific impact of this long-term beach monitoring program, from its humble beginnings over 40 years ago using the rod and tape measure Emery field survey method; to today, where the application of remote sensing data collection including drones, satellites and crowd-sourced smartphone images, are now core aspects of this continuing and much expanded monitoring effort. Commenced in 1976, surveying at this beach for the first 30 years focused on in-situ methods, whereby the growing database of monthly beach profile surveys informed the coastal science community about fundamental processes such as beach state evolution and the role of cross-shore and alongshore sediment transport in embayment morphodynamics. In the mid-2000s, continuous (hourly) video-based monitoring was the first application of routine remote sensing at the site, providing much greater spatial and temporal resolution over the traditional monthly surveys. This implementation of video as the first of a now rapidly expanding range of remote sensing tools and techniques also facilitated much wider access by the international research community to the continuing data collection program at Narrabeen-Collaroy. In the past decade the video-based data streams have formed the basis of deeper understanding into storm to multi-year response of the shoreline to changing wave conditions and also contributed to progress in the understanding of estuary entrance dynamics. More recently, ‘opportunistic’ remote sensing platforms such as surf cameras and smartphones have also been used for image-based shoreline data collection. Commencing in 2011, a significant new focus for the Narrabeen-Collaroy monitoring program shifted to include airborne lidar (and later Unmanned Aerial Vehicles (UAVs)), in an enhanced effort to quantify the morphological impacts of individual storm events, understand key drivers of erosion, and the placing of these observations within their broader regional context. A fixed continuous scanning lidar installed in 2014 again improved the spatial and temporal resolution of the remote-sensed data collection, providing new insight into swash dynamics and the often-overlooked processes of post-storm beach recovery. The use of satellite data that is now readily available to all coastal researchers via Google Earth Engine continues to expand the routine data collection program and provide key insight into multi-decadal shoreline variability. As new and expanding remote sensing technologies continue to emerge, a key lesson from the long-term monitoring at Narrabeen-Collaroy is the importance of a regular re-evaluation of what data is most needed to progress the science.


2020 ◽  
Vol 8 (2) ◽  
pp. 154-165
Author(s):  
Dwi Utari ◽  
Nur Aini Puspitasari

This research aims to describe sentence production errors especially pause and tongue slips in the 2018 Student Constitutional Debate Competition. The benefits of research for the researcher are to deepen knowledge about language, especially errors in the production of sentences, and for the reader to give knowledge to the public about the study of psycholinguistics in producing a sentence and broaden the insight into language about sentence production. Descriptive qualitative method was used in this study. This research used source data of 2018 Student Constitutional Debate Competition semifinal one and final one video. In this study the tapping technique was used for the data collection technique. Based on the results of data management and analysis, the sentence production errors contained in the 2018 Student Constitution Debate Contest video are (1) Breathing pause, (2) Doubt pause, (3) Malaproprism, (4) Transposition tongue slip, (5) Anticipation tongue slip, (6) Perseveration tongue slip. Abstrak Tujuan penelitian ini adalah untuk mendeskripsikan kesalahan produksi kalimat terutama senyapan dan kilir lidah pada Lomba Debat Konstitusi Mahasiswa Tahun 2018. Manfaat penelitian bagi peneliti adalah untuk memperdalam pengetahuan mengenai bahasa khususnya kesalahan produksi kalimat dan bagi pembaca yaitu untuk memberi pengetahuan kepada masyarakat tentang kajian Psikolinguistik dalam memproduksi suatu kalimat serta memperluas wawasan kebahasaan mengenai produksi kalimat. Dalam penelitian digunakan metode berupa desktiptif kualitatif. Penelitian menggunakan sumber data berupa video Lomba Debat Konstitusi Mahasiswa tahun 2018 babak semifinal satu dan final satu. Penelitian menggunakan teknik pengumpulan data berupa teknik sadap catat. Berdasarkan hasil pengelolaan dan analisis data, kesalahan produksi kalimat yang terdapat dalam video Lomba Debat Konstitusi Mahasiswa Tahun 2018 yaitu (1) Senyapan pernapasan, (2) Senyapan keraguan, (3) Kilir lidah malaproprisme, (4) Kilir lidah transposisi, (5) Kilir lidah antisipasi, (6) Kilir lidah perseverasi. Kata Kunci:  Kesalahan Produksi Kalimat, Debat, Kilir Lidah, Senyapan


2018 ◽  
Vol 7 (3) ◽  
pp. 214-227
Author(s):  
Andrew Kirk ◽  
Kevin Armstrong ◽  
Niina Nurkka ◽  
Annette Jinks

Purpose The purpose of this paper is to explore English and Finnish paramedic perceptions of the healthcare blame culture, its relationship to complaints, the use of defensive practice and if this impacts on paramedic practice and clinical care. Design/methodology/approach Participants were recruited from English and Finnish ambulance services that have similar organisational and professional scopes of practice. The aim was to gain insight into the similarities and differences between the countries regarding the existence of a blame culture in paramedic practice. Semi-structured focus groups and interviews involving 20 English and Finnish paramedics were undertaken. Qualitative perceptions concerning the reality of a blame culture in paramedic practice and its impact on professional roles were sought. Findings Three major themes that were identified in the thematic analysis included: blame culture and its influences; the impact of complaints against paramedics; and the use of defensive practice within their roles. These data themes were similar for both groups of participants. The majority of participants thought the healthcare blame culture to be widespread and believed that this was likely to directly influence paramedics’ working practices. Originality/value Whilst the impact of blame culture and complaints on the medical profession has previously been examined, this study makes an important contribution by exploring the factors that impact on paramedics’ lives and their practice, within two European countries. The inappropriate use of social media by some members of the public in both countries was a disturbing issue for many participants and was identified as an area for further research.


2016 ◽  
Vol 7 (2) ◽  
pp. 106-122 ◽  
Author(s):  
Lynn McAlpine ◽  
Gill Turner ◽  
Sharon Saunders ◽  
Natacha Wilson

Purpose This paper aims to examine the experience of gaining research independence by becoming a principal investigator (PI) – an aspiration for many post-PhD researchers about whom little is known. It provides insight into this experience by using a qualitative narrative approach to document how 60 PIs from a range of disciplines in one European and two UK universities experienced working towards and achieving this significant goal. Design/methodology/approach Within the context of a semi-structured interview, individuals drew and elaborated a map representing the emotional high and low experiences of the journey from PhD graduation to first PI grant, and completed a biographic questionnaire. Findings Regardless of the length of the journey from PhD graduation to first PI grant, more than a third noted the role that luck played in getting the grant. Luck was also perceived to have an influence in other aspects of academic work. This influence made it even more important for these individuals to sustain a belief in themselves and be agentive and persistent in managing the challenges of the journey. Originality/value The study, unusual in its cross-national perspective, and its mixed mode data collection, offers a nuanced perspective on the interaction between agency and an environment where the “randomness factor” plays a role in success. The function of luck as a support for sustained agency and resilience is explored.


2014 ◽  
Vol 1 (2) ◽  
pp. 47-66
Author(s):  
Meghan Kathleen Eliason

In this paper, I explain the design and implementation of an e-newsletter created to engage grandparents with public schools.  A brief literature review, the process for creating the e-newsletter, and my data collection methods are explained.  The conclusions and implementations offered provided insight into how public schools can engage grandparents as important members of their school communities.


Author(s):  
Nicole Brown

Over the last two decades qualitative research has seen significant shifts towards the narrative, reflexive and creative. And yet, analytical frameworks do not seem to have stayed abreast of these developments. Using research into the construction of identity under the influence of fibromyalgia as an example, this paper seeks to exemplify a reflexive approach to data analysis that accounts for the researcher’s positionality as well as the increasingly untraditional, unconventional data stemming from creative data collection methods. The paper provides insight into data analysis and reflexivity and offers two practical examples of reflexive data analysis—an illustrated poem and an installation. After an outline of the processes and practical steps involved in the creation of these analytical outcomes, the paper concludes with thoughts relating to challenges, potential areas of application and a look to the future of this innovative approach to data analysis. In this approach, data analysis is in itself a form of knowledge generation through the process of assemblage and “listening to gut feelings.” This approach may be seen as unscientific, but given its advantages in relation to new insights, dissemination and communication of ideas, this approach is more fruitful than detrimental to developing qualitative research further.


2020 ◽  
Vol 11 (1) ◽  
pp. 1
Author(s):  
Cintami Farmawati

<p>This study aims to find out how to be a good multicultural counselor for persons with disabilities. This study uses qualitative methods and educational psychology approaches. The subjects of the study were three counselors at the state extraordinary school in Pemalang. This research lasted for three months. Based on extensive interviews and observations at the research location as the main tool for data collection, this study produced several findings. First, a multicultural counselor who is good for person with disabilities has several characteristics, they are empathy, familiarizing "greetings" and "say hello", listening wholeheartedly, having insight into cultural values of manners and the ethics of patience when interacting at person with disabilities, and mastering techniques in counseling. Second, these characteristics are able to increase and develop the career potential of person with disabilities and very helpful for person with disabilities through difficult times when facing life’s problems.</p>


2021 ◽  
Vol 3 (1) ◽  
pp. 54
Author(s):  
Merlyn Novarindiawati

Perancangan ini dibuat untuk menyampaikan keindahan wisata budaya di kabupaten Sidoarjo, khususnya Candi Pari yang terletak di Porong, Kabupaten Sidoarjo, Jawa Timur. Media Fotografi dipilih sebagai sarana mengiklankan karena simpel, dan lebih nyata serta mudah dipahami hingga menarik pengelihatan bahkan menyentuh hati. Keunggulan dari media ini pun dirasa lebih menggugah emosi pembaca untuk berperan langsung serta melihat rinci isi yang ada di media tersebut. Metode yang digunakan adalah metode kualitatif. Berawal dari pengumpulan data dengan cara observasi, wawancara, dan dokumentas dengan menggunakan teknik analisis data view. Hasil dari pengumpulan data tersebut diperoleh informasi tentang kurangnya kepedulian pemerintah dan badan pengelola wisata yang mengakibatkan minimnya akses jalan dan petunjuk arah ke lokasi, banyak masyarakat yang kurang mengetahui lokasi wisata candi pari sebagai cagar budaya bangsa. Setelah itu, menentukan konsep desain dan ide perancangan, adapun konsep yang digunakan dalam perancangan ini adalah konsep “Delight” pada warna yang digunakan pada dalam buku. Hasil akhir dari perancangan ini adalah Buku Essay Fotografi yang didukung dengan media pendukung seperti kaos, mug, tempat pensil dan lain lain. Melalui perancangan ini diharap dapat menambah wawasan masyarakat akan adanya destinasi Wisata Cagar Budaya Candi Pari.This design was made to convey the beauty of cultural tourism in the Sidoarjo district, especially the Pari Temple located in Porong, Sidoarjo Regency, East Java. Media Photography was chosen as a means of advertising because it is simple, and more real and easy to understand to attract vision and even touch the heart. The advantages of this media are also felt to be more arousing to the reader’s emotions to play a direct role and see detailed contents in the media. The method used is a qualitative method. Starting with data collection by observation, interview, and documentation follow by using view analysis. The results of the data collection obtained information about the lack of compensation of the government and the tourism management agency that resulted in the lack of access to the nationalities, many people were not aware of the tourism locations. After that, to determine the design concept and design idea, while the concept used in this design is the concept of “Delight” on the colors used in the book. The final result of this design is a Photography Essay Book which is supported by supporting media such as t-shirts, mugs, pencil cases, others. Through this design it is hoped that can broaden the public insight into the existence of the Pari Temple Cultural Heritage Tourism destination.


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