scholarly journals “Sometimes It’s Difficult to Have a Normal Life”: Results from a Qualitative Study Exploring Caregiver Burden in Schizophrenia

2014 ◽  
Vol 2014 ◽  
pp. 1-13 ◽  
Author(s):  
Adam Gater ◽  
Diana Rofail ◽  
Chloe Tolley ◽  
Chris Marshall ◽  
Linda Abetz-Webb ◽  
...  
Keyword(s):  
Caregiver Burden ◽  
Qualitative Interviews ◽  
Well Being ◽  
Future Research ◽  
Subjective Experiences ◽  
Societal Costs ◽  
Face To Face ◽  
English Speaking ◽  
Persons With Schizophrenia ◽  
Provision Of Care

Objectives. As a disease typified by early onset and chronic disease course, caring for a person with schizophrenia may have a significant impact on caregivers’ lives. This study aimed to investigate the subjective experiences of caregivers of people with schizophrenia as a means of understanding “caregiver burden” in this population.Methods. Face-to-face qualitative interviews were conducted with a diverse sample of 19 US-English speaking caregivers of people with schizophrenia (who were at least moderately ill). Interview transcripts were analyzed using grounded theory methods and findings used to inform the development of a preliminary conceptual model outlining caregivers’ experiences.Results. Findings support assertions that people with schizophrenia were largely dependent upon caregivers for the provision of care and caregivers subsequently reported lacking time for themselves and their other responsibilities (e.g., family and work). Caregiver burden frequently manifested as detriments in physical (e.g., fatigue, sickness) and emotional well-being (e.g., depression and anxiety).Conclusions. Caring for a person with schizophrenia has a significant impact on the lives of informal (unpaid) caregivers and alleviating caregiver burden is critical for managing individual and societal costs. Future research should concentrate on establishing reliable and valid means of assessing burden among caregivers of persons with schizophrenia to inform the development and evaluation of interventions for reducing this burden.

Development and Validation of the Short Version of the Sense of Humor Scale (SHS-S)

2021 ◽  
Author(s):  
Sonja Heintz ◽  
Willibald Ruch ◽  
Chloe Lau ◽  
Donald H. Saklofske ◽  
Paul McGhee
Keyword(s):  
Internal Consistency ◽  
Training Programs ◽  
Well Being ◽  
English Speakers ◽  
Future Research ◽  
Short Version ◽  
Sense Of Humor ◽  
Three Samples ◽  
English Speaking ◽  
Development And Validation

Abstract. Humor training has become increasingly popular to enhance the “sense of humor” and well-being and to decrease depressive symptoms. Despite the wide applications of these training programs, the assessment of training efficacy has attracted less attention. The Sense of Humor Scale (SHS; McGhee, 1996 , 1999 ) recently was expanded to a long version (SHS-L) to enhance its internal consistency ( Ruch & Heintz, 2018 ). At the same time, there is also the need for a brief version of this scale. The purpose of the present study is to develop a short version (SHS-S) in both German- and English-speaking countries, test its psychometric properties (internal consistency, factorial, construct, and criterion validity), and assess measurement invariance across gender and the two languages. Using three samples (Sample 1: 570 English-speakers, Sample 2: 353 German-speakers, Sample 3: 94 other-reports), the 29-item SHS-S was developed and yielded promising internal consistency and validity scores for the six humor skill factors of enjoyment of humor, laughter, verbal humor, finding humor in everyday life, laughing at yourself, and humor under stress. Overall, the SHS-S is an internally consistent, valid, and economic tool for future research and group-based applications, while the SHS-L seems especially useful in individual applications.

An investigation of perceived family phubbing expectancy violations and well-being among U.S. older adults

2019 ◽  
Vol 8 (2) ◽  
pp. 247-267 ◽  
Author(s):  
Travis Kadylak
Keyword(s):  
Older Adults ◽  
Mobile Phone ◽  
Older Adult ◽  
Interpersonal Relationships ◽  
Well Being ◽  
Future Research ◽  
Expectancy Violations ◽  
Face To Face ◽  
Internet Users ◽  
Checking Behavior

Phubbing refers to the nonverbal behavior of glancing at, or using, one’s mobile phone during a face-to-face (FtF) interaction, whereby the mobile-phone-checking behavior is perceived to breach expectations of attention or etiquette. In general, phubbing can negatively affect interpersonal relationships and well-being. When younger family members’ phubbing behavior is perceived by older adult relatives as a violation of their conversational expectations, these older adults may feel ignored and disrespected. This study may be the first to investigate the associations between intergenerational family phubbing expectancy violations and indicators of well-being among older adults. Survey data were derived from a sample of U.S. Internet users aged 65 or above ( n = 679). The results suggested that both perceived frequency of family phubbing and family phubbing expectancy violations were inversely associated with mattering and indicators of well-being. Study limitations and potential directions for future research are discussed.

scholarly journals A Casual Video Game with Psychological Well-Being Concepts for Young Adolescents: Protocol for an Acceptability and Feasibility Study (Preprint)

2021 ◽  
Author(s):  
Russell Pine ◽  
James Mbinta ◽  
Lisa Te Morenga ◽  
Theresa Fleming
Keyword(s):  
New Zealand ◽  
Video Game ◽  
Therapeutic Potential ◽  
Well Being ◽  
Research Process ◽  
Future Research ◽  
Post Intervention ◽  
Psychological Well Being ◽  
Face To Face ◽  
Zealand Secondary School

BACKGROUND Many face-to-face and digital therapeutic supports are designed for adolescents experiencing high levels of psychological distress. However, promoting psychological well-being among adolescents is often neglected despite significant short-term and long-term benefits. OBJECTIVE This research has 3 main objectives: (1) to assess the acceptability of Match Emoji, a casual video game with psychological well-being concepts among 13-15-year-olds in a New Zealand secondary school (2) to identify the feasibility of the research process (3) to explore the preliminary well-being and therapeutic potential of Match Emoji. METHODS Approximately 40 participants aged 13–15-years from a local secondary college in Wellington, New Zealand will be invited to download and play Match Emoji 3-4 times a week for 5-15 minutes over a 2-week period. Participants will complete 4 assessments at baseline, post intervention and 3 weeks later to assess psychological well-being and therapeutic changes. Statistical analysis will be used to synthesize data from interviews and triangulated with assessment changes and game analytics. This synthesis will help to assess the acceptability and feasibility of the Match Emoji. RESULTS The key outputs from the project will include the acceptability, feasibility, and therapeutic potential of Match Emoji. CONCLUSIONS Data from the study is expected to inform future research on Match Emoji including a randomized control trial and further adjustments to the design and development of the game. CLINICALTRIAL This study received ethics approval from the New Zealand Health and Disability Ethics Committee (21/NTA/34) on the 28th of May 2021

scholarly journals Development of a core outcome set for evaluative research into paediatric cerebral visual impairment (CVI), in the UK and Eire

BMJ Open ◽  
2021 ◽  
Vol 11 (9) ◽  
pp. e051014
Author(s):  
Anna Pease ◽  
Trudy Goodenough ◽  
Cath Borwick ◽  
Rose Watanabe ◽  
Christopher Morris ◽  
...  
Keyword(s):  
Literature Review ◽  
Visual Impairment ◽  
Qualitative Interviews ◽  
Core Outcome Set ◽  
Well Being ◽  
Consensus Meeting ◽  
Future Research ◽  
Core Outcome ◽  
Outcome Set ◽  
Cerebral Visual Impairment

ObjectivesCerebral visual impairment (CVI) comprises a heterogeneous group of brain-related vision problems. A core outcome set (COS) represents the most important condition-specific outcomes according to patients, carers, professionals and researchers. We aimed to produce a COS for studies evaluating interventions for children with CVI, to increase the relevance of research for families and professionals and thereby to improve outcomes for affected children.DesignWe used methods recommended by the Core Outcome Measures in Effectiveness Trials Initiative. These included a proportionate literature review of outcomes used in previous studies; qualitative interviews with children and families; a two-round Delphi survey involving parents, children and professionals and a consensus meeting to ratify the most important outcomes.SettingTelephone interviews and online Delphi surveys of participants who all lived in UK or Eire.ParticipantsEighteen parents and six young people were interviewed. Delphi participants (n=80 did both rounds) included professionals working with children who have CVI (teachers, orthoptists, ophthalmologists, optometrists, qualified teachers for visually impaired, family members (parents and siblings) and affected children.ResultsThe literature review included 13 studies yielding 37 outcomes. Qualitative interviews provided 22 outcomes. After combining and refining similar items, the first round contained 23 outcomes and the second 46. At the consensus meeting, 5 attendees recommended 27 outcomes for inclusion in the CVI COS, of which 15 were ratified as most important, including 4 related to vision; 1 to family well-being; 1 to adults around the child being informed about CVI and the rest to the child’s abilities to engage with people and surroundings.ConclusionsGood engagement from participants led to the development of a COS. Future research will be useful to identify the best ways to measure COS items and potentially to update this COS as more interventions for CVI are developed.Trial registration numberISRCTN13762177.

scholarly journals Hospice Caregiver Burden and Work Productivity: An Exploratory Analysis

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 1044-1045
Author(s):  
Megan Thomas Hebdon ◽  
Jiayun Xu ◽  
Djin Tay ◽  
Maija Reblin ◽  
Kristin Cloyes ◽  
...  
Keyword(s):  
Caregiver Burden ◽  
Work Productivity ◽  
Secondary Data ◽  
Well Being ◽  
Study Data ◽  
Work Environments ◽  
Future Research ◽  
Full Time ◽  
Activity Impairment ◽  
Dependent Variables

Abstract Hospice caregivers experience burden that impacts their physical, emotional, and social well-being. Little is known about how caregiver burden impacts occupational well-being through employment and work productivity. Thus, our purpose was to explore the relationships between caregiver burden and dimensions of work productivity/impairment (absenteeism, presenteeism, activity impairment, and overall impairment) among working hospice cancer caregivers. This is a secondary data analysis of baseline data from a larger study of caregiver communication and bereavement. Study data including demographics, preparedness for caregiving, caregiver burden, and work productivity/impairment were analyzed using descriptive statistics, correlation analysis, and stepwise multiple linear regression. Dimensions of work productivity/impairment were dependent variables, and age and preparedness for caregiving were covariates. Working caregivers (N=54) had an average age of 52 (SD: 12.65), and were primarily White (83%), female (70%), married (69%), employed full-time (70%) and had a household income of $50,000 or more (65%). Greater caregiver burden was significantly associated with lower preparedness for caregiving (r=-.41, p<.01), and greater activity impairment (r=.50, p<.01), presenteeism (r=.44, p<.01), and overall impairment (r=.36, p<.05), but not absenteeism. Caregiver burden predicted activity impairment (b=1.72 [.72, 2.71], p<.01), presenteeism (b=1.44 [.33, 2.55], p<.01), and overall impairment (b=1.42 [.09, 2.74], p<.05), even after controlling for age and preparation for caregiving. More burdened caregivers may be having more challenges with work productivity. Additional research is needed to examine these relationships in a larger, more diverse sample. Future research should also investigate how supportive work environments and leave policies reduce caregiver burden and promote work productivity.

scholarly journals Care Partners and Multiple Sclerosis

2015 ◽  
Vol 17 (6) ◽  
pp. 253-260 ◽  
Author(s):  
Tamara McKenzie ◽  
Mary Elizabeth Quig ◽  
Tuula Tyry ◽  
Ruth Ann Marrie ◽  
Gary Cutter ◽  
...  
Keyword(s):  
Multiple Sclerosis ◽  
Caregiver Burden ◽  
Psychological Health ◽  
Well Being ◽  
Future Research ◽  
Online Questionnaire ◽  
Research Committee ◽  
Care Partners ◽  
Male Care ◽  
The Impact

Background: Caring for someone with multiple sclerosis (MS) can be a stressful experience that requires clinical attention. We investigated the impact of caregiver stress on the emotional well-being and physical health of the MS care partner using the North American Research Committee on Multiple Sclerosis (NARCOMS) Registry. Methods: Care partners of NARCOMS participants were invited to complete an online questionnaire that captured demographic characteristics, health status, caregiver burden as measured by the Zarit Caregiver Burden Interview, and impact of caregiving on employment. Results: Of 1446 care partners who agreed to participate, 1333 had complete data. Most were men (n = 825, 61.9%), with a mean (SD) age of 51.1 (11.2) years. The mean (SD) Zarit total score was 24.6 (15.1), placing the overall group in the mild caregiver burden range. Compared with male care partners, female care partners reported higher levels of burden and stress and more medication use for stress/anxiety and mood disorders. Male care partners were more likely to report physical concerns. Care partners of people with primary progressive MS reported greater perceived burden than did partners of people with secondary progressive MS and relapsing-remitting MS. More than 40% of care partners (559 of 1288) had missed work during the past year owing to caregiving responsibilities. Conclusions: Care partners of people with MS have substantial physical and psychological health concerns and experience an adverse impact on employment. Future research should evaluate how to mitigate the adverse effects of caregiving and evaluate positive aspects of the role.

Physicians’ Perceptions Toward Use of Telemedicine During COVID-19 Pandemic in Riyadh, Saudi Arabia (Preprint)

2021 ◽  
Author(s):  
sarah idriss ◽  
walaa alasaadi ◽  
abdullah Aldhuhayyan ◽  
Ahmed alenzi ◽  
Reem alharbi ◽  
...  
Keyword(s):  
Health Care ◽  
Quality Of Care ◽  
Health Care Delivery ◽  
Care Delivery ◽  
Well Being ◽  
Future Research ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Face To Face

BACKGROUND The use of communication technologies to deliver health care remotely is known as telemedicine. The coronavirus disease 2019 (COVID-19) pandemic had a variety of consequences for health-care delivery in 2020. As a result, it was necessary to adapt and deliver high-quality care to patients while limiting possible viral exposure for both patients and health-care workers. During the pandemic, physicians employed video visits, phone visits, and electronic written visits (e-consultations), all of which have the ability to provide a comparable quality of care while removing social barriers. OBJECTIVE The study’s aim is to assess physicians’ perspectives and attitudes concerning the usage of telemedicine in Riyadh hospitals during the COVID-19 pandemic. The main domains of the assessment are physicians’ overall experience with telemedicine use before and during COVID-19, future adaptability to using telemedicine, perceptions about patients’ experience, and the influence of telemedicine on burnout. METHODS Methods: An anonymous 28-question cross-sectional survey was developed using SurveyMonkey and distributed to all physicians from all specialty disciplines across Riyadh city hospitals. RESULTS A total of 362 doctors were included in the study. Among them, 28.7% were consultants, 30.4% were specialists, and 40.9% were residents. Male doctors formed the majority (56.1%). When asked about the frequency of using telemedicine, 41.4% answered “frequently,” 26% responded “occasionally,” and 32.6% said “never.” Thirty one percent of doctors agreed and somewhat agreed that the “quality of care during telemedicine is comparable with face-to-face visits.” About 55% doctors believed that telemedicine consultation is a cost-effective way, compared to face-to-face visits. Most of the doctors were skilled (70%) at telemedicine, and they were also able to solve technology issues during telemedicine visits (54%). Overall, the physicians felt that their patients liked telemedicine: 68% said they felt comfortable using telemedicine and 76% said theyfound that it saved time. As per the burnout question, 4.1% of doctors felt burnout every day, 7.5% felt burnout a few times a week, and 27.3% felt burnout a few times per month. CONCLUSIONS Physicians had a generally favorable attitude toward telemedicine, believing that the quality of health-care delivery using it was comparable to that of in-person care. Future research is needed to investigate how physicians’ attitudes toward telemedicine have changed since the pandemic, as well as how this virtual technology might be used to improve their professional and personal well-being.

‘We deal with human beings’

2017 ◽  
Vol 19 (3) ◽  
pp. 140-147 ◽  
Author(s):  
Laura Huey ◽  
Hina Kalyal
Keyword(s):  
Emotional Labor ◽  
Qualitative Interviews ◽  
Well Being ◽  
Criminal Investigation ◽  
Future Research ◽  
Central Feature ◽  
Human Beings ◽  
Police Services ◽  
Work Related ◽  
Related Stress

Dealing with emotions is a central feature of everyday police work. This is especially the case in relation to criminal investigation work, in which police investigators must grapple with both their own emotions and those of the victims and families with whom they deal. Despite the importance of emotional labor in understanding criminal investigation work, this aspect of their work remains understudied. This study is based on data from 13 in-depth qualitative interviews with members of the Canadian police services. Within it, we explore how officers engage in emotional labor, as well as its impact on these individuals. Although our results are preliminary in nature, they do reveal how managing emotions according to organizationally sanctioned display rules can affect officers’ well-being, and highlight the need for future research to enable police organizations to deal more effectively with this form of work-related stress.

Predictors and Outcomes of U.S. Quality Maternity Leave: A Review and Conceptual Framework

2021 ◽  
pp. 089484532110373
Author(s):  
Haley M. Sterling ◽  
Blake A. Allan
Keyword(s):  
United States ◽  
Conceptual Framework ◽  
Maternity Leave ◽  
Well Being ◽  
The United States ◽  
Poor Quality ◽  
Future Research ◽  
Subjective Experiences ◽  
Individual Level ◽  
Work Related

Maternity leave includes the time that mothers take off from work to care for their baby and heal after childbirth. The United States’ maternity leave provisions lag behind other industrialized countries, resulting in poor quality maternity leave (QML) for many mothers. Accordingly, scholars have begun examining QML, a new construct that captures mothers’ subjective experiences of their leave, including dimensions like time off and flexibility. However, researchers know little about predictors and outcomes of QML. Therefore, in this literature review, we will integrate societal-, work-, and individual-level predictors as well as well-being and work-related outcomes of maternity leave into a testable conceptual framework for QML. This review has important implications for U.S. policy makers and organizations regarding their support of mothers. Future research should continue to build this framework to ensure that mothers and parents in the United States and internationally are provided the QML they need to thrive.

scholarly journals Psychological Aspects of Students With Learning Disabilities in E-Environments: A Mini Review and Future Research Directions

2021 ◽  
Vol 11 ◽  
Author(s):  
Stefania Cataudella ◽  
Stefano Carta ◽  
Maria Lidia Mascia ◽  
Carmelo Masala ◽  
Donatella Rita Petretto ◽  
...  
Keyword(s):  
Learning Disabilities ◽  
Emotional Distress ◽  
Self Regulation ◽  
Well Being ◽  
Emotional Awareness ◽  
Future Research ◽  
Students With Learning Disabilities ◽  
Face To Face ◽  
E Learning ◽  
Learning Platforms

What are the main learning difficulties or advantages encountered by students with learning disabilities (LDs) within e-environments? As a result of the Covid-19 emergency, e-learning is being increasingly used to support students’ learning processes. A number of countries closed their schools altogether, so face-to-face lessons were and have been replaced by distance lessons. A search of current literature via Scopus, Eric and Google Scholar electronic databases was conducted according to Prisma Guidelines. Other sources of literature were also considered, starting from the references in the full text of the articles consulted. We used the following search keywords: “LDs” combined with the “AND/OR” Boolean operator and “e-learning platforms,” “well-being,” “psychological factors,” “emotional distress,” and “self-regulation.” One body of literature highlights the lack of inclusive accessibility standards and a lack of attention to specific tools for addressing LDs, which causes students to develop high levels of stress/anxiety and emotional distress, in addition to low levels of well-being, self-esteem and self-efficacy. Another area of literature looks at how students can develop high levels of self-regulation and emotional awareness, as well as high levels of inclusion. Results are discussed in terms of the promotion of e-learning that focuses on the psychological well-being of students and teachers use of technological tools.

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