Use of an online forum for relatives of people with psychosis and bipolar disorder: a multi-method study (Preprint)

2021 ◽  
Author(s):  
Steven Jones ◽  
Dimitrinka Atanasova ◽  
Susanna Dodd ◽  
Susan Flowers ◽  
Anna Rosala-Harris ◽  
...  

BACKGROUND Relatives of people with psychosis or bipolar disorder experience high levels of distress but typically are not offered the support they need. Peer online forums may offer a solution, but knowledge about who uses them, how and why is limited. The current study reported on online forum usage during the REACT trial [21]. OBJECTIVE We aimed to report: (1) who used the forum and why; (2) how sociodemographic factors are associated with participation; (3) the relationships between frequency, type of use, and outcomes; and (4) how the forum was used. METHODS Relationships between key socio-demographic characteristics, levels of forum use, and distress were statistically analysed. We used thematic and semantic analysis to understand the reasons relatives joined the forum and the key topics initiated by them. We also used the UCREL Semantic Analysis System (USAS) to compare how relatives and REACT Supporters (moderators) used the forum. RESULTS 348 participants from REACT had complete web-usage data and were included in this study. The forum was accessed by 59% of relatives across the whole age range with no significant associations between sociodemographic factors and forum participation, or between level/type of use and relatives’ distress levels. Relatives joined the forum primarily to find people in similar circumstances, express concerns and talk about stressful events. Relatives were concerned most about recent events, negative emotions linked to caring, experiences of conflict/threat, and concerns about suicide. These posts underscored both the challenges relatives were facing and that they felt safe to share these in this context. CONCLUSIONS Whilst only a proportion of REACT participants engaged actively with its forum they are widely distributed across age and other sociodemographic groupings. Relatives used the forum for information, support and guidance and to offer detailed information about their experiences. The topics raised highlight the burden carried by relatives and the potential value of easy access, moderated, peer supported forums in helping relatives manage the challenges they face.

Corpora ◽  
2009 ◽  
Vol 4 (2) ◽  
pp. 189-208 ◽  
Author(s):  
Yufang Qian ◽  
Scott Piao

In this paper, we propose a corpus annotation scheme and lexicon for Chinese kinship terms. We modify existing traditional Chinese kinship schemes into a comprehensive semantic field framework that covers kinship semantic categories in contemporary Chinese. The scheme is inspired by the Lancaster USAS (UCREL Semantic Analysis System) taxonomy, which contains categories for English kinship terms. We show how our scheme works with a Chinese kinship semantic lexicon which covers parents, siblings, marital relations, off-spring and same-sex partnerships. The kinship lexicon was created through a pilot study involving the Lancaster University Mandarin Corpus. We foresee that our annotation scheme and lexicon will provide a framework and resource for the kinship annotation of Chinese corpora and corpus-based kinship studies.


2020 ◽  
Author(s):  
Asritha Raj ◽  
Seena M. Mathai

Disasters like flood can result in creating phobia, depression, anxiety etc. in victims, the psychological distress may also affect their optimism, stress tolerance, resilience etc. and thereby their overall psychological wellbeing. Optimism enables an individual to set goals, make commitments, tolerate with adversity and pain and recover from trauma and stress (Schneider &Leitenberg, 1989).Stress tolerance refers to a person's ability to withstand stress without becoming seriously impaired (Carson, Butcher &Mineka, 1996). Objectives of the study: to find out whether there is any difference among flood victims on the basis of age on optimism and stress tolerance, whether there is any gender difference on optimism and stress tolerance among three groups (primary, secondary and both) of flood victims, whether there is any difference between the three groups of victims on optimism and stress tolerance, and also to explore the relationship between optimism and stress tolerance among flood victims. Method: (a).participants- the study was conducted on 115 flood victims, from Ernakulam district in Kerala; in the age range 18-50 years. (b).materials-Life Orientation Test – Revised (Scheier&Carver ,1994), Stress Tolerance Scale (Reshmy&Sanandaraj,1999). Results and conclusion: the results reveal that there is any difference among flood victims on the basis of age on optimism, gender difference among primary victims on optimism among primary victims who engaged in volunteering and/recue activities on stress tolerance and a significant positive correlation between optimism and stress tolerance among flood victims. It is implied that inculcating optimistic view at home and at school, providing optimism based training sessions at school from very early years of age can result in generations that will be able to tolerate stressful events in life, whether it is personal issues, manmade or natural disasters.


Revista CEFAC ◽  
2019 ◽  
Vol 21 (6) ◽  
Author(s):  
Letícia Arruda Nóro ◽  
Helena Bolli Mota

ABSTRACT Purpose: to investigate the existence of a relationship between vocabulary and measures of mean length of utterance in children in their language development phase. Methods: the sample consisted of 72 children aged 2 to 4 years, 11 months and 29 days, 36 boys and 36 girls, with typical language development, evenly distributed into age groups, enrolled in kindergartens with the public school system, in Santa Maria, RS, Brazil. Videos of the spontaneous speech of each subject were made, and then, the analysis of the vocabulary and Mean Length of Utterance took place. Statistical analysis was performed using the Statistical Analysis System program, version 9.2 and Spearman correlation coefficient, with a significance level of p <0.05. Results: the influence of gender in the Mean Length of Utterance correlation and vocabulary was observed. There was a difference between the ages of 2 and 4 years. Conclusion: vocabulary development promotes mean length utterance, indicating positive correlation between gender and age range.


2018 ◽  
Vol 39 (3) ◽  
pp. 326-338
Author(s):  
Meng Ji

This study investigates the instrumental role of translated environmental news in informing public opinions on environmental issues among Chinese-speaking communities. Its contribution to methodology is exploring the automatic corpus annotation tools, that is, semantic analysis system. Its contribution to theory is identifying and distinguishing among three recurrent sub-news-types of translated environmental news published on BBC China, that is, governance; international relations and environmental science. Discourse features attributed to these subtypes of environmental news underscore BBC China’s reporting styles and strategies and largely explain its wide appeal and credibility among the target audiences.


2019 ◽  
Vol 65 (4) ◽  
pp. 300-304 ◽  
Author(s):  
Sara Martínez-Camarillo ◽  
María Yoldi-Negrete ◽  
Ana Fresán-Orellana ◽  
Hiram Ortega-Ortiz ◽  
Claudia Becerra-Palars

Background: Occupational functioning is severely impaired in patients with bipolar disorder (BD). Work motivation (WM), defined as the psychological processes that determine the direction, intensity, and persistence of action within the work, is an essential component of work-related functioning. Aim: To assess whether WM is affected in patients with BD and which clinical and sociodemographic factors are related to low WM. Methods: In all, 95 euthymic BD patients were invited to answer the Motivation for Work Questionnaire and the Rating Scale on Subjective Cognitive Deficits in Bipolar Disorder (COBRA). Results: A total of 49.5% ( n = 47) of the patients were classified in the Low Motivated (LM) group. Unemployment and the report of more subjective cognitive complaints were predictors of poor WM in this sample ((OR) = 3.01 and 7.10, respectively). Conclusions: Perceived cognitive deficits related to the disorder and current unemployment negatively impact WM in patients with BD. In addition to symptomatic recovery, the need of the inclusion of personal and occupational areas in the comprehensive treatment of patients with BD is necessary.


2011 ◽  
Vol 126 (1) ◽  
pp. 43-46 ◽  
Author(s):  
E Hoskison ◽  
M Daniel ◽  
J E Rowson ◽  
N S Jones

AbstractBackground:Dental disease is a recognised cause of sinusitis. We perceived an increased incidence of sinusitis secondary to dental disease in recent years. This study reviews the incidence of odontogenic sinusitis, its clinical features and treatment.Methods:Medical records of patients with odontogenic sinusitis were identified using the senior author's clinical database and Hospital Information Support System data (January 2004 to December 2009).Results:Twenty-six patients were identified, nine females and 17 males (age range, 17–73 years). Rhinorrhoea and cacosmia were the commonest symptoms (81 and 73 per cent, respectively), with presence of pus the commonest examination finding (73 per cent). Causative dental pathology included periapical infection (73 per cent), oroantral fistula (23 per cent) and a retained root (4 per cent). In all 26 cases, treatment resulted in complete resolution of symptoms; 21 (81 per cent) required sinus surgery. The number of patients with odontogenic sinusitis undergoing surgery has steadily increased, from no cases in 2004 to 10 in 2009 (accounting for 8 per cent of all patients requiring sinus surgery). Reduced access to dental care may be responsible.Conclusion:The incidence of odontogenic sinusitis appears to be increasing. The importance of assessing the oral cavity and dentition in patients with rhinosinusitis is therefore emphasised.


2015 ◽  
Vol 58 (2) ◽  
pp. 445-452 ◽  
Author(s):  
Jill Gilkerson ◽  
Yiwen Zhang ◽  
Dongxin Xu ◽  
Jeffrey A. Richards ◽  
Xiaojuan Xu ◽  
...  

Purpose The purpose of this study was to evaluate performance of the Language Environment Analysis (LENA) automated language-analysis system for the Chinese Shanghai dialect and Mandarin (SDM) languages. Method Volunteer parents of 22 children aged 3–23 months were recruited in Shanghai. Families provided daylong in-home audio recordings using LENA. A native speaker listened to 15 min of randomly selected audio samples per family to label speaker regions and provide Chinese character and SDM word counts for adult speakers. LENA segment labeling and counts were compared with rater-based values. Results LENA demonstrated good sensitivity in identifying adult and child; this sensitivity was comparable to that of American English validation samples. Precision was strong for adults but less so for children. LENA adult word count correlated strongly with both Chinese characters and SDM word counts. LENA conversational turn counts correlated similarly with rater-based counts after the exclusion of three unusual samples. Performance related to some degree to child age. Conclusions LENA adult word count and conversational turn provided reasonably accurate estimates for SDM over the age range tested. Theoretical and practical considerations regarding LENA performance in non-English languages are discussed. Despite the pilot nature and other limitations of the study, results are promising for broader cross-linguistic applications.


2012 ◽  
Vol 43 (3) ◽  
pp. 655-666 ◽  
Author(s):  
Y. Leng ◽  
N. W. J. Wainwright ◽  
S. Hayat ◽  
B. C. M. Stephan ◽  
F. E. Matthews ◽  
...  

BackgroundStress is thought to exert both positive and negative effects on cognition, but the precise cognitive effects of social stress and individuals' response to stress remain unclear. We aimed to investigate the association between different measures of social stress and cognitive function in a middle- to older-aged population using data from the European Prospective Investigation into Cancer (EPIC)-Norfolk study.MethodParticipants completed a comprehensive assessment of lifetime social adversity between 1993 and 1997 and the short form of the Mini Mental State Examination (SF-MMSE), an assessment of global cognitive function, during the third health check between 2004 and 2011 (a median of 10.5 years later). A low MMSE score was defined as a score in the bottom quartile (20–26).ResultsCompleted MMSE scores and stress measures were available for 5129 participants aged 48–90 years. Participants who reported that their lives had been more stressful over the previous 10 years were significantly more likely to have low MMSE scores [odds ratio (OR) 1.14, 95% confidence interval (CI) 1.04–1.24 per unit increase in perceived stress], independently of sociodemographic factors, physical and emotional health. The effects were restricted to the highest level of stress and the association was stronger among participants with a lower educational level. Adaptation following life event experiences also seemed to be associated with MMSE scores after adjusting for sociodemographic factors, but the association was attenuated with further adjustment.ConclusionsIn this generally high-functioning population, individuals' interpretations and responses to stressful events, rather than the events themselves, were associated with cognitive function.


2019 ◽  
Vol 6 (6) ◽  
pp. 1826
Author(s):  
Abhinav Pandey ◽  
Haseeb Khan ◽  
Dinesh M. S. Rathore

Background: Bipolar disorder appears to be related to anatomic abnormalities in medial temporal lobe, in particular amygdale, prefrontal cortex and cerebellum. Two recent MRI findings have supported a neuro developmental etiology of bipolar disorders.Methods: It was a cross-sectional comparative hospital based study. The subjects were recruited for the study by the purposive sampling technique. The study was conducted at the Institute of Mental Health and Hospital Mathura Road Agra. The study sample consisted of 20 bipolar disorder patients diagnosed as per ICD-10 DCR (WHO, 1992) criteria, 20 first degree relatives, one for each patient. Total sample size is 40.Results: It was observed that in bipolar patients’ maximum anomalies were seen in Mouth (0.35±0.48) head (0.30±0.57) followed by anomalies of eyes (0.25±0.55) hand (0.20±0.41) and ear (0.05±0.22). It was observed that in Bipolar FDRs maximum anomalies were seen in mouth (0.20±0.04) ear (0.15±0.45) head (0.1±0.3) and then anomalies of eye and hand in equal propensity (0.05±0.22) and least anomalies in feet (0.00±0.00).Conclusions: The rate of MPAs in bipolar patients was more than their FDRs but not statically significant. Both sibling groups had fewer MPAs than the patients. When viewed within a vulnerability-stress model, the results are consistent with the theory that MPAs may reflect early, largely extra-genetic, stressful events.


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