Native Voices Exhibition: Stories of health, wellness, and illness from American Indians, Alaska Natives, and Native Hawaiians

The U.S. National Library of Medicine (NLM) exhibition known as Native Voices reflected Donald A.B. Lindberg M.D.’s keen and long-held desire to help improve public understanding of Native American health challenges and honor the culture, tradition, and healing ways of Native Peoples. A centerpiece of the exhibition was a large set of video interviews that Dr. Lindberg conducted with Native health and community leaders. Dr. Lindberg and his team engaged Native advisors in the exhibition development; sought Native input through Listening Circles, Tribal Consultations; and site visits, and made the video interviews accessible via interactive kiosks and iPads. For its time, this was state-of-the-art exhibition technology. The exhibition also included Native artifacts and art works to complement the videos, including a scale model of the iconic Hokule’a Native Hawaiian voyaging canoe, and a full-size Lummi Indian healing totem pole. The totem journeyed across the U.S. prior to its installation next to the NLM herbal garden in Bethesda, MD. A traveling version of the exhibition visited more than 130 venues in 40 States across the U.S. The interview clips and other content are accessible on the exhibition website, and the full-length interviews are retained in the NLM permanent video collection.

When spider webs unite, they can tie up a lion1: NLM’s work in Information Technology and Health in Africa, 1997–2011

In 1997, Donald A.B. Lindberg M.D., Director, U.S. National Library of Medicine (NLM) agreed to address the request of African malaria researchers for access to the Internet and medical journals as part of the U.S. National Institutes of Health’s (NIH) contribution to the Multilateral Initiative on Malaria (MIM). This challenge matched my interests and previous experience in Africa. I joined NLM in 1997 to help establish the MIM Communications Network (MIMCom) in partnership with several NIH components and more than 30 other partners in Africa, the U.S., the United Kingdom (U.K.), and Europe. After a successful launch of MIMCom, NLM worked with African partners to create a series of innovative programs to build capacity in Africa and enhance global access to indigenous African research.

Are we making a difference? Outreach evaluation in practice

Donald A.B. Lindberg, M.D., brought with him when he joined NLM an inquisitive mind, tech savvy, and new ideas. He was an early advocate of both outreach and evaluation innovation at NLM. Dr. Lindberg initiated and supported multiple pilot test and implementation projects to strengthen NLM’s health information outreach to healthcare providers, research scientists, health science and hospital librarians, and the general public, including minority and underserved populations. He helped steer NLM’s transition to the Internet, and NLM’s development of a robust framework for evaluating Internet and Web-based health information dissemination and outreach to its many audiences. Dr. Lindberg’s leadership led to numerous landmark accomplishments, including the capacity-building “Measuring the Difference” outreach evaluation Guide, and a multi-dimensional approach to Internet and website evaluation that placed NLM at the forefront of federal agencies using these new and emerging technologies to support their missions.

Mentoring in Medicine (MIM): Motivating and enabling disadvantaged youth to become the next generation of minority health professionals

Mentoring in Medicine, Inc (MIM) is a nonprofit health and science youth development organization based in the Bronx, NY. Founded in 2006 by three physicians and an engineer- trained entrepreneur, MIM’s organizational goal is to expose socioeconomically disadvantaged students to the wide variety of health and science careers and to increase the health literacy of their communities. It is aligned with the outreach mission of the U.S. National Library of Medicine (NLM) whose former Director, Donald A.B. Lindberg M.D., fostered an enduring relationship. Technical assistance, evaluation, and financial support provided under his leadership helped MIM to become a nationally recognized organization leading the field to diversify health careers and to increase health literacy in often hard to reach populations. Through live and virtual programming, MIM has impacted nearly 58,000 students, parents, and educators in urban epicenters in the U.S. The MIM Team has helped 503 students who were discouraged to build a competitive application and matriculate in health professional school. MIM has 88 press features highlighting its work in the community.

NLM’s revolution in consumer health information to improve patient outcomes

Under the leadership of NLM Director Donald A.B. Lindberg M.D., the National Library of Medicine (NLM) continued to promote its services to the nation’s health care professionals and scientists. With support of the U.S. Congress, it initiated new communications and outreach programs and services directed at the general public that revolutionized their access to information as well. Because effective health communication must be tailored for the audience and the situation, Lindberg supported the development of online health information tools designed to help consumers find free, comprehensive, timely, and trustworthy sources of health information that, ultimately, can improve patient outcomes. New and popular consumer-friendly websites were championed by Lindberg, including MedlinePlus, and ClincialTrials.gov, and he formed unique partnerships with national physician organizations to educate their patients about reliable sources of health information from the NLM. A new era of timely and trusted online health information for the general public began in 2006 under Lindberg’s tenure culminating in the development, publication and distribution of NIH’s first consumer magazine, NIH MedlinePlus, featuring the research and findings of the NIH. In his effort to improve patient outcomes, Dr. Lindberg revolutionized the Library’s outreach capabilities and successfully expanded its mission to serve not only health professionals and scientists, but also consumers nationwide.

Environmental Health Information Partnership (EnHIP): Strengthening the capacity of minority serving institutions

The U.S. National Library of Medicine’s (NLM) Environmental Health Information Partnership (EnHIP) collaborates with Historically Black Colleges and Universities (HBCUs) and other minority-serving academic institutions to enhance their capacity to reduce health disparities through the access, use, and delivery of environmental health information on their campuses and in their communities. The partnership began in 1991 as the Toxicology Information Outreach Panel (TIOP) pilot project, and through successive iterations it is NLM’s longest running outreach activity. EnHIP’s continued relevance today as an information outreach and training program testifies to the prescience of NLM director, Donald A.B. Lindberg M.D’s initial support for the program. Dr. Lindberg’s seeing to its continued success to benefit participating institutions and help achieve the societal goals of environmental justice serve as well to benefit NLM by increasing its visibility, and use of its resources in the classroom, for research, and in community outreach. NLM envisions an expanding role for EnHIP in advancing health equity as the impact of environmental exposure, climate change, and increasing zoonotic diseases disproportionately impact their communities.

Reflections on Dr. Donald A.B. Lindberg and Native Voices

Personal reflections on Donald A.B. Lindberg M.D. are offered by four Native American leaders who were instrumental in the successful development of the National Library of Medicine’s (NLM) Native Voices Exhibition: Stories of Health and Wellness from American Indians, Alaska Natives and Native Hawaiians. A uniquely collaborative effort, the exhibition features nearly 100 videographed interviews conducted by Dr. Lindberg with Native elders, healers, leaders, and people. He is credited with the incorporation of indigenous peoples’ healing knowledge in a personal and relational way, making for a wonderful journey together that was a very large chapter in his life and that of the authors.

Software citation

Nearly all research today has a digital component, and typically, scholarly results are strongly dependent on software. For the research results to be fully understood, the software that is used must be uniquely identified. Research software is frequently developed by researchers themselves, often initially to solve a single problem, and then later generalized to solve additional problems. Ideally, the software is shared so that other researchers can also benefit and avoid the duplicate work required for development and maintenance. The researchers must expect and receive value for their contribution and sharing. Because publishing is a key element of our existing scholarly structures, the research that was done must be clearly explained in papers. This can be used to create incentives for researchers not only to share their software, but also to contribute to community software, in both cases through software citation. Contributors to software that is used in papers and is cited by those papers can become authors of the software as it is tracked by indexes, which also track how often the software is cited.

BITNIS — Bridging the information gap before the web

Before the modern internet and World Wide Web drastically simplified our access to scientific information, accessing the authoritative information of the National Library of Medicine (NLM) from outside the U.S. was for many very difficult. Compared to the totality of people with access to computers globally at the time, only a privileged group of biomedical researchers and practitioners could afford this access. The NLM was making great contributions developing products and collaborations to reduce the information gap for many underserved communities. This article describes a remarkable initiative started from the other end, underserved information users creating a solution to help the international community reach the NLM resources. Donald A.B. Lindberg M.D., the NLM Director and health informatics pioneer, believed in letting users guide the NLM down its path of service. The BITNIS project is a successful example of his leadership philosophy at a turning point in health informatics history.

NLM’s library network: A force for outreach

This chapter considers the transformation of U.S. National Library of Medicine’s (NLM) national network of libraries into an effective force for spreading awareness of NLM’s resources, services, and tools and increasing their use. Several examples of network programs and projects are recounted to illustrate the influence of NLM’s longest serving Director, Donald A.B. Lindberg M.D. on the development and evolution of NLM’s library network.