Living with congenital or acquired cardiac disease in childhood: maternal perceptions of the impact on the child and family

2005 ◽  
Vol 15 (2) ◽  
pp. 133-140 ◽  
Author(s):  
Jo Wray ◽  
Linda Maynard
Keyword(s):  
Family Relationships ◽  
Family Life ◽  
Cardiac Disease ◽  
Negative Impact ◽  
Postal Survey ◽  
Cardiac Malformation ◽  
Children And Families ◽  
Maternal Perceptions ◽  
Number Of Children ◽  
The Impact

Aims: Firstly to assess maternal perceptions of the impact of congenital or acquired cardiac disease on the child, parents, and siblings, and secondly to determine whether there were differences between different diagnostic groups, or between those with and without other health problems, with a view to informing the development of a cardiac liaison nursing service for children. Methods: A postal survey of 447 families of children with congenital or acquired cardiac disease. Results: Completed questionnaires were received from 209 (46.8 percent) families. The cardiac lesion was perceived to have a negative impact on many areas of family life for about one fifth of the sample, particularly in those families where the child was perceived to be more ill. Family relationships, however, were affected in a very different way, with 43 percent reporting that family members had become closer, and only 8 percent that they had been “pulled apart” by the condition of their child. There were a number of differences in the perceived impact of the cardiac malformation on school and family life between children with different diagnoses, with this being particularly evident for families of the patients who had undergone transplantation. When the sample was divided according to the presence or absence of other problems with health, however, many of these differences between the diagnostic groups disappeared. Conclusions: Irrespective of the severity of the disease, the presence of a cardiac malformation has an impact on everyday life for a significant number of children and families, particularly if associated with other problems with health. Implications for targeting resources to reduce morbidity in these children and families are discussed.

scholarly journals Understanding and modifying the impact of parents' substance misuse on children

2007 ◽  
Vol 13 (2) ◽  
pp. 79-89 ◽  
Author(s):  
Richard Velleman ◽  
Lorna Templeton
Keyword(s):  
Risk Factors ◽  
Protective Factors ◽  
Substance Misuse ◽  
Negative Impact ◽  
Growing Up ◽  
Children And Families ◽  
Drug Problem ◽  
Reduce Risk ◽  
The Impact

We outline the huge literature on the potentially negative impact on children of growing up with a parent who has an alcohol or drug problem, the risk factors that can exacerbate this effect, and resilience and the protective factors that can reduce it. Clear ways that practitioners can intervene to reduce risk and to increase resilience are discussed. All practitioners have a responsibility to work in holistic ways if damage to children and families is to be avoided, and we summarise the key common skills needed to work with individuals (children as well as adults) and families. The differences between a resilience and a deficit approach are outlined.

scholarly journals The Impact of Mobile Phone on Family Life: A Case Study of Lahore, Pakistan

2020 ◽  
Vol Volume 4 (Issue 3) ◽  
pp. 192-207
Author(s):  
Dr. Muhammad Shabbir Sarwar ◽  
Humara Gulzar ◽  
Muhammad Ahsan Bhatti
Keyword(s):  
Mobile Phone ◽  
Family Life ◽  
Negative Impact ◽  
Family Members ◽  
Negative Relationship ◽  
Structured Interviews ◽  
Family Time ◽  
The Family ◽  
Mobile Phone Usage ◽  
The Impact

The purpose of this research paper is to explore the negative relationship between mobile phone and family life as well as negative impact of mobile phone usage on family life norms and traditions. The study is based on data collected through mixed method i.e. survey of a random sample of 1300 people and structured interviews conducted with a sub-sample of 13 people in Lahore, Pakistan. The study found that mobile phone is negatively affecting the family life due to its massive usage during family socialization time. The quantitative analysis found that over 85% of respondents use mobile phone for communication with the people other than their family members when they are with their family; over 50% make calls to others during their family time; 83% make SMS; 75 feel that they ignore their family due to cell phone; 86% thinks that mobile has influenced their family time face-to-face socialization negatively and 91% said that they exchanged harsh words with their family members for at least once or more due to using mobile phone during family time. The study reveals that male members of the traditional families are more responsible for using mobile phone during family time and damaging family traditions as compared to the female members. However, parents remain very concerned about the possibilities of misuse of mobile phone by female teenagers of the family. In most cases family elders were annoyed with the youth for adopting this change in their behaviors damaging the family traditions.

scholarly journals Inflammatory bowel disease negatively impacts household and family life

2021 ◽  
pp. flgastro-2021-102027
Author(s):  
Emma Paulides ◽  
Demi Cornelissen ◽  
Annemarie C de Vries ◽  
C Janneke van der Woude
Keyword(s):  
Inflammatory Bowel Disease ◽  
Family Life ◽  
Bowel Disease ◽  
Negative Impact ◽  
Activity Impairment ◽  
Holistic Treatment ◽  
Domestic Activities ◽  
Desire To Have Children ◽  
Inflammatory Bowel ◽  
The Impact

BackgroundInflammatory bowel disease (IBD) has a major impact on different aspects of life of patients with IBD, but functioning in the home environment is under-reported in literature. The aim of this study was to assess the impact of IBD on household and/or family life.MethodAdult patients with IBD from the outpatient clinic of the Erasmus MC (Rotterdam, the Netherlands) were invited to participate in this cross-sectional study between September and December 2020. A questionnaire was composed to measure the impact of IBD on functioning in the household and family life. In addition, the IBD Disability Index and Work Productivity and Activity Impairment Questionnaire were used. Data were analysed using descriptive statistics and multiple logistic regression modelling.ResultsOf 308 invited patients, 229 patients were included (response rate 74%). Sixty-eight per cent of patients were diagnosed with Crohn’s disease, 69% were female and median age was 38.0 years. Many patients reported difficulties with domestic activities (55.0%), leisure (53.9%), parenting (50.6%), sexual activities (48.4%) and interpersonal relationships (39.1%). Fatigue was associated with the experience of more severe difficulties in domestic activities (OR 16.160, 95% CI 6.053 to 43.141). Furthermore, 32.7% of patients felt that IBD influenced their desire to have children.ConclusionIBD has a markedly negative impact on household and/or family life in many patients. To optimise patient care, household and family related difficulties need to be considered in a holistic treatment approach.

scholarly journals THE IMPACT OF CHILDHOOD FAMILY EXPERIENCE ON PARTNERSHIP PROBLEMS AND BIRTH-RATE IN ADULTHOOD

2016 ◽  
Vol 1 ◽  
pp. 531
Author(s):  
Indra Tretjakova ◽  
Anita Pipere
Keyword(s):  
Alcohol Abuse ◽  
Family Relationships ◽  
Birth Rate ◽  
Significant Negative Correlation ◽  
Future Research ◽  
Childhood Experience ◽  
Family Experience ◽  
Number Of Children ◽  
Partnership Quality ◽  
The Impact

The causes for the partnership problems and low birth-rate can be looked upon not only through an economical discourse, but also via the thorough exploration of psychological determinants of sustainable family relationships. The skills and abilities for the development of such relationships significantly depend on the characteristics of childhood family experience. Exploring the factors that influence partnership quality and birth-rate in Latvia 221 respondents were surveyed (185 women and 36 men) aged from 20 to 40. Majority of the sample indicated to their negative childhood experience (mostly parents’ conflicts, divorce, neglect, alcohol abuse) and admitted an impact of this experience on their partnership in adulthood. The respondents with negative childhood family experience reported conflicts in their current relationships more often than their counterparts with supportive childhood experience. The most frequent partnership problems appeared to be emotional violence and computer addiction, at much less rate – alcohol abuse. Though, the statistically significant correlations between the childhood family experience and the partnership problems as well as between the childhood family experience and nymber of childen in family were not found in the given sample. The problem of drug addiction had a statistically significant negative correlation with the number of children in family. Future research could focus on the ways in which positive and adverse childhood experiences interact to influence partnership quality and birth-rate.  

scholarly journals From ‘It has stopped our lives’ to ‘Spending more time together has strengthened bonds': The varied experiences of Australian families during COVID-19

2020 ◽  
Author(s):  
Subhadra Evans ◽  
Antonina Mikocka-Walus ◽  
Anna Klas ◽  
Lisa Olive ◽  
Emma Sciberras ◽  
...  
Keyword(s):  
Mental Health ◽  
Social Media ◽  
Thematic Analysis ◽  
Family Relationships ◽  
Family Life ◽  
Qualitative Approach ◽  
Diverse Range ◽  
Mental Health Difficulties ◽  
The Impact ◽  
First Time

The present study uses a qualitative approach to understand the impact of COVID-19 on family life. Australian parents of children aged 0-18 years were recruited via social media between April 8th and April 28th, 2020, when Australians were experiencing social distancing/isolation measures for the first time. As part of a larger survey, participants were asked to respond via an open-ended question about how COVID-19 had impacted their family. A total of 2,130 parents were included and represented a diverse range of family backgrounds. Inductive template thematic analysis was used to understand patterns of meaning across the texts. Six themes were derived from the data, including: 'Boredom, depression and suicide: A spectrum of emotion'; 'Families are missing the things that keep them healthy'; 'Changing family relationships: The push pull of intimacy'; 'The unprecedented demands of parenthood'; 'The unequal burden of COVID-19'; and 'Holding on to positivity'. Overall, the findings demonstrated a breadth of responses. Messages around loss and challenge were predominant, with many families reporting mental health difficulties and strained family relationships. However, not all families were negatively impacted by the restrictions, with some families reporting positive benefits and meaning, including opportunities for strengthening relationships, finding new hobbies, and developing positive characteristics such as appreciation, gratitude and tolerance.

scholarly journals Genetic thinking and everyday living: On family practices and family imaginaries

2017 ◽  
Vol 65 (4) ◽  
pp. 865-881 ◽  
Author(s):  
Petra Nordqvist
Keyword(s):  
Family Relationships ◽  
Family Life ◽  
Genetic Relationships ◽  
Original Data ◽  
Five Dimensions ◽  
Family Practices ◽  
Family Living ◽  
The Impact ◽  
The Relationship ◽  
Working Out

This article is concerned with exploring how ideas about genes and genetic relationships are rendered meaningful in everyday life. David Morgan’s concept family practices has significantly shaped sociological enquiries into family lives in recent decades. It represents an important step away from a sociological focus on family as something you ‘are’ to family as something you ‘do’. With a focus on family as a set of activities, it however functions less well to capture more discursive dimensions of family life. Combining a focus on family as practice with an attention to discourse, the article concentrates specifically on ‘genetic thinking’ – the process through which genetic relationships are rendered meaningful in everyday family living. The study draws on original data from a study about families formed through donor conception, and the impact of such conception on family relationships, to show that genetic thinking is a salient part of contemporary family living. The article explores the everyday, normative assumptions, nuances and understandings about genetic relationships by exploring five dimensions: having a child; everyday family living; family resemblances; traits being ‘passed on’; and family members working out accountability and responsibility within the family. Showing the significance of genetic thinking in family life, the article argues for a more sustained sociological debate about the impact of such thinking within contemporary family life. The article also argues for the need to develop a sociological gaze more sensitive to the relationship between family as a set of activities and the feelings, imaginations, dreams or claims with which they are entwined.

scholarly journals 2191

2017 ◽  
Vol 1 (S1) ◽  
pp. 71-71
Author(s):  
Sarah Ronis ◽  
Kurt Stange ◽  
Lawrence Kleinman
Keyword(s):  
Decision Making ◽  
Family Relationships ◽  
Negative Impact ◽  
Clinical Care ◽  
Care Plan ◽  
Care Planning ◽  
Loop Model ◽  
The Impact ◽  
The Relationship ◽  
Parent Child

OBJECTIVES/SPECIFIC AIMS: (1) To propose an iterative decision-making model of care planning for CSHCN. (2) To identify targets warranting measurement in future studies of SDM in care planning for CSHCN. METHODS/STUDY POPULATION: Conceptual model developed by a multidisciplinary team iteratively considering the complex relationships among diverse factors affecting care planning for CSHCN, informed by clinical and implementation science experience and a scoping literature review of medical and cognitive sciences literature addressing interpersonal decision-making, communication, negotiation, and trust among children, their parents, and their clinicians. RESULTS/ANTICIPATED RESULTS: Decision-making interventions in pediatrics tend to focus narrowly on single acute decisions, providing minimal guidance for decisions related to chronic disease management over time. Few models account for the role of the child in the decision-making process, despite their ongoing development. Therefore, we propose a model of shared decision-making in the context of managing chronic illness in children that recognizes all actors and can support both the design of clinical care and research. This model—The SDM Learning Loop Model—highlights the dynamic iterative nature of exchanges between and among the clinical team and the parent-child dyad and recognizes the child as the center of each decision-making cycle. The model accounts for key practice, family, experiential, and emotional contexts influencing the decision-making encounter. In this model, change in child health status and developmental capacity resulting from a given cycle’s care plan will directly influence the relationship between clinician and parent-child dyad (eg, mutual trust, attunement) and impact each party’s engagement in the next round of decision-making. The relationship between experience and outcome stimulates learning. DISCUSSION/SIGNIFICANCE OF IMPACT: Our proposed SDM Learning Loop Model suggests that increasing the shared nature of decision making is not only likely to optimize care planning, but creates “buy-in” that can both reinforce the impact of positive outcomes, and moderate the negative impact on relationships when the outcome is other than desired. We hypothesize that this model can guide care planning and shape research to the benefit of both clinical outcomes and clinician-family relationships. Future work should focus on the development and validation of measures to account for the experiential and emotional contexts in which such decisions are made, and the outcomes of care in this population.

scholarly journals Kvinnors och mäns hjälp till sina gamla föräldrar – innehåll, omfattning och konsekvenser

2016 ◽  
Vol 22 (2) ◽  
Author(s):  
Petra Ulmanen
Keyword(s):  
Negative Impact ◽  
Working Hours ◽  
Well Being ◽  
Postal Survey ◽  
Welfare States ◽  
Negative Consequences ◽  
Work Situation ◽  
Physical Strain ◽  
Men And Women ◽  
The Impact

Women’s and men’s lial care: extent, content and consequencesThis paper analyses the extent, content and consequences of caregiving for elderly parents from a gender and welfare state perspective using a nationally representative postal survey conducted in Sweden in 2013 (response rate 60.5 per cent, 3630 individuals, age 45–66 years). Negative consequences of filial care on well-being, work situation and employment were examined. The analysis confirms earlier research showing that filial care is common in Sweden but is less intense and has fewer negative consequences than in less generous welfare states. A quarter of both women and men gave filial care at least once a month, on average around 3.4 hours a week. Although men and women gave the same extent of filial care, it was more common among women to give the more demanding personal care as well as to experience mental and physical strain, difficulties in finding time for leisure activities and reduced ability to focus on their job. Although women retired earlier than planned due to filial care more often than men, this was very rare. Men and women, however, suffered to the same extent from difficulties in managing to accomplish their tasks, to take part in meetings, courses and travels, as well as having to reduce their working hours and quit their jobs. The content of care was crucial for the occurrence of negative consequences of caregiving, even when the analysis controlled for hours of care given. The more demanding the care tasks performed, the more common it was among both men and women that their well-being and work situation were affected. The correlation between care tasks and negative impact, however, differed between genders. The impact of managerial care was much higher for women than for men, which is discussed in relation to the decline of eldercare services and the lack of coordination of health and eldercare services.

scholarly journals The impact of injury: The experiences of children and families after a child’s traumatic injury

2020 ◽  
pp. 026921552097512
Author(s):  
Samantha Jones ◽  
Sarah Tyson ◽  
Janelle Yorke ◽  
Naomi Davis
Keyword(s):  
Physical Activity ◽  
Hospital Discharge ◽  
Family Relationships ◽  
Traumatic Injury ◽  
Physical Symptoms ◽  
Activity Levels ◽  
Children And Families ◽  
Qualitative Interview Study ◽  
The Impact ◽  
Activity Restrictions

Objective: To explore the experiences of children and families after a child’s traumatic injury (Injury Severity Score >8). Design: Qualitative interview study. Setting: Two children’s major trauma centres in England. Participants: 32 participants: 13 children with traumatic injuries, their parents/guardians ( n = 14) and five parents whose injured child did not participate. Methods: Semi-structured interviews exploring the emotional, social, practical and physical impacts of children’s injuries, analysed by thematic analysis. Results: Interviews were conducted a median of 8.5 months (IQR 9.3) post-injury. Injuries affected the head, chest, abdomen, spine, limbs or multiple body parts. Injured children struggled with changes to their appearance, physical activity restrictions and late onset physical symptoms, which developed after hospital discharge when activity levels increased. Social participation was affected by activity restrictions, concerns about their appearance and interruptions to friendships. Psychological impacts, particularly post-traumatic stress type symptoms often affected both children and parents. Parents’ responsibilities suddenly increased, which affected family relationships and roles, their ability to work and carry out daily tasks. Rapid hospital discharge was wanted, but participants often felt vulnerable on return home. They valued continued contact with a healthcare professional and practical supports from family and friends, which enabled resumption of their usual lives. Conclusions: Injured children experience changes to their appearance, friendships, physical activity levels and develop new physical and mental health symptoms after hospital discharge. Such challenges can be addressed by the provision of advice about potential symptoms, alternative activities during recovery, strategies to build resilience and how to access services after hospital discharge.

scholarly journals Staff's psychological health in the context of the COVID-19 pandemic: a review of foreign studies

2021 ◽  
Vol 1 (22) ◽  
pp. 69-78
Author(s):  
Liudmyla Karamushka ◽  
Keyword(s):  
Psychological Health ◽  
Family Life ◽  
Negative Impact ◽  
Well Being ◽  
Work And Family ◽  
Management Styles ◽  
Social Tension ◽  
Innovative Management ◽  
Social Tensions ◽  
The Impact

Introduction. The COVID-19-pandemic social tensions have caused a number of problems in staffʼs psychological health. The study of foreign experience and analysis of relevant foreign publications will allow generalizing diagnostic and developmental approaches to the study of organization staff's psychological health and its promotion. Aim. On the basis of the analysis of foreign sources, to define the basic directions of research into staff's psychological health in the conditions of social tension caused by the COVID-19 pandemic. Results. As a result of the analysis of works of foreign authors, the author has determined the following main directions of research on staff's psychological health in the conditions of social tension caused by the COVID-19 pandemic: 1) managers' use of innovative management styles and their role in reducing social tension in organizations; 2) activities of remote teams during the COVID-19 pandemic and their role in maintaining staff's psychological health; 3) the impact of the COVID-19 pandemic on the level of stress among staff and the development of staff resilience; 4) the development of social resilience thinking in times of crisis as a prerequisite of organizations' resilience; 5) ensuring staff's well-being and satisfaction with work and family life during the COVID-19 pandemic; 6) the impact of work tensions caused by the pandemic COVID-19 on staff's conflict-coping creative efforts. Conclusions. Based on the analysis of foreign studies, the author has found a certain negative impact of social tensions caused by the COVID-19 pandemic on staff's psychological health in organizations. This problem can be solved using new approaches in the activities of organizations (use of innovative management styles; organization of effective work of remote teams using digital technologies; development of staff and organization's resilience; remote-work-and-family-life balance; intensification of creative efforts to overcome tension in work and reduce conflict interaction, etc.).

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