scholarly journals Well-being of families of people with psychosocial disabilites in context of deinstitutionalization

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
D Austys ◽  
S Bendikaitė ◽  
R Arlauskas ◽  
M Jakubauskienė ◽  
R Stukas

Abstract Background A large part of disabled people have psychosocial disabilities. Importance of their inclusion is stated in many strategic documents. However, this group of people still faces many barriers in societies. Currently, deinstitutionalization is carried out in Lithuania. Well-being of people with psychosocial disabilities and their family members is affected by this process. Thus, we aimed to assess changes in well-being of family members of people with psychosocial disabilities during deinstitutionalization in Lithuania. Methods Data was collected during two stages of deinstitutionalization, in 2016 and 2019. Family members living with people with psychosocial disabilities answered anonymously to questions of Lithuanian psychological well-being scale. Respectively, 334 and 391 adults participated (13.8% of males and 86.2% of females each time). T scores and levels of well-being were calculated and compared according to socio-demographics of respondents and stage of deinstitutionalization. Results Generally, distribution of the participants did not differ by level of overall well-being between the stages of deinstitutionalization (p-value more than 0.05). Differently, place of residence, younger age, higher income and employment were associated with higher well-being. In the second phase, rural, younger, employed and full-time employed respondents had higher estimates of overall well-being (p-value less than 0.05). Also, younger and employed population had higher satisfaction with physical health, income, employment and life in Lithuania (p-value less than 0.05). In most counties of Lithuania, overall well-being of family members of people with psychosocial disabilities was in line with the average level. Conclusions Although distribution of family members of people with psychosocial disabilities by level of overall well-being had not changed from 2016 to 2019, an increase in well-being among rural, younger, employed and those with higher income was observed. Key messages Generally, overal well-being of family members of people with psychosocial disabilities had not changed during the process of deinstitutionalization in Lithuania from 2016 to 2019. Living in rural areas, younger age, higher income and employment were associated with an increase in well-being of family members of people with psychosocial disabilities.

Author(s):  
Ben Y. F. Fong ◽  
Martin C. S. Wong ◽  
Vincent T. S. Law ◽  
Man Fung Lo ◽  
Tommy K. C. Ng ◽  
...  

In Hong Kong, social distancing has been adopted in order to minimise the spread of COVID-19. This study aims to examine the changes in physical health, mental health, and social well-being experienced by local residents who were homebound during the pandemic. An online questionnaire in both Chinese and English versions was completed by 590 eligible participants from 24 April to 13 May 2020. The questionnaire found that individuals aged 18 to 25 years spent more time resting and relaxing but experienced more physical strain. Working status was associated with social contact, with participants working full-time jobs scoring higher in “maintaining social communication via electronic means” and “avoiding social activities outside the home”. Additionally, approximately one third of the participants (29.7%) had moderate to severe depression, and participants aged 18 to 25 were found to have higher scores in PHQ-9. Changes in physical health and social contact were significantly associated with developing depressive symptoms. From the results, it is clear that the COVID-19 pandemic has the potential to exert a negative impact on the mental health status of individuals.


2021 ◽  
pp. 106907272199427
Author(s):  
Yan Xu ◽  
Chaoping Li

The aim of this study was to translate the Multidimensional Workaholism Scale (MWS) into Chinese and then test its reliability and validity among full-time Chinese employees in two stages. In Study 1 ( N = 220), the MWS was translated and exploratory factor analysis was conducted resulting in a four-factor solution consistent with the original MWS: motivational, cognitive, emotional, and behavioral. In Study 2 ( N = 425), confirmatory factor analysis showed that a four-factor, bifactor model was the best fit for the data. Configural, metric, and scalar invariance models were tested which demonstrated that the Chinese version of the MWS did not differ across gender, age, and job position groups. Finally, workaholism and engagement were related and distinct from one another, and they correlated with emotional exhaustion, work-family conflict and life well-being uniquely. This study indicated that the Chinese version of the MWS is a valid and reliable tool for Chinese employees, and this has important practical implications for the individual health and career development of Chinese working adults.


2019 ◽  
Vol 29 (Supplement_4) ◽  
Author(s):  

Abstract According to the Global Burden of Disease Study, schizophrenia causes a high degree of disability, which accounts for 1.1% of the total DALYs (disability-adjusted life years) and 2.8% of YLDs (years lived with disability). In the World Health Report [The WHO World Health Report: new understanding, new hope, 2001. Geneva]. In addition to the direct burden, there is considerable burden on the relatives who care for the sufferers. The workshop aimed to present and discuss different facets of what could be done for these persons and their families’ members in the light of what has been done in some European countries, which have conducted reforms. The round table will be introduced by presentations from two countries very much involved in psychiatric reforms which will present their attempts and results: first Italy with its emblematic radical deinstitutionalization model setting up a law to close down the psychiatric hospitals. The to-day situation will be presented underlying the huge diversity across Italian provinces and the dramatic lack of resources in some of them. Second the Portuguese reform will be described with a shift of psychiatric care toward general hospitals and its complete integration into health care catchment areas resulting in a increase of out patient acts among them home visits and a decrease of full time hospital admissions. Then a French three-year research program that focused on themes that aims to improve the every day well-being of people living with schizophrenia will be presented. This program aimed to provid new insights on their integration from different angles: information about the disease by doctors at diagnostic annoucement, on internet and actions to take on health administrator training against stigmatisation that could be extended to a larger public. Lastly the program allowed to interviewed face to face up to 67 people: 20 persons with schizophrenia, 20 person with bipolar disorders and 27 close ones to schizophrenic patients. A semi-structured interview collected information on the different aspects of care experiences plus “The Brief Illness Perception Questionnaire” allowed to measure and compare perceptions of the disease. This will allow to present the very positive effects of a program toward family members and patients themselves: “psychoeducation” that is a structured educationnal intervention which provides information and guidelines on how to react with their family member and influences positively the patient’s outcome as the well being of both patient and family members. Each presentation will extensively be discussed with the attendance and followed by some recommandations Key messages Although schizophrenia is a severe disorder much could be done to alleviate the burden on the patients and their family members. Reorganising the care systems trough adequate policies, setting up policies against stigmatisation and providing educational intervention should promote patients and families empowerment.


CNS Spectrums ◽  
2019 ◽  
Vol 24 (1) ◽  
pp. 198-199 ◽  
Author(s):  
Lidia Firulescu ◽  
Ross W. May ◽  
Frank D. Fincham ◽  
Emelina A. Arocha ◽  
Marcos A. Sanchez-Gonzalez

AbstractStudy ObjectivePsychological risk factors that lead to impaired work performance, negatively impacting mental and physical health, have emerged as a concern across clinical settings. Although depression and anxiety are linked to poor physician mental health, physician burnout characterized by work related stress due to chronic exhaustion from clinical work, cynicism toward meaning of the medical profession, and feelings of inadequacy toward work related accomplishments, may be an even stronger indicator of well-being. Literature suggests that work satisfaction among physicians is rapidly deteriorating owing to high rates of burn out and poor mental health. Although the relationship between work burnout (WB) and negative affectivity has been well documented, the association with positive affect, such as trait forgiveness (TF) has been overlooked. On that note, research shows that lifetime stress severity and lower levels of forgiveness predict worse mental and physical health. Since TF has been linked strongly with healthy workplace relationships, positive occupational outcomes and general well-being, its association with WB remains to be investigated. Therefore, the aim of the present study was to explore the link between TF and WB among physicians. We hypothesized that TF would be associated with reduced levels of burnout.MethodA total of 62 (F=23) medical residents at a Teaching Hospital consented for the study. Residents were administered surveys on WB (Maslach BurnoutInventory), workplace bullying, personal bullying (PB), interpersonal rejection sensitivity (IRS), perceived stress scale (PSS), TF, anxiety, and depression, all of which were anonymously submitted via electronically. Hierarchical multiple regression (HMR) models were used to determine the associations between WB, work environment social factors and TF. A p-value of <0.05 was considered significant.ResultsThe mean age 33.1±SD 4.2 years. HMR analysis using WB as main outcome contained 6 predictors: Model 1 contained depression and anxiety, Model 2 added PB, Model 3 added IRS and PSS, Model 4 added TF. Anxiety and TF were the only significant predictors (p= >0.05) accounting for 10.4% and 17.5% of the variance in WB scores, respectively.ConclusionsThe novel finding of the present study is that TF was associated with low levels of burnout. Additionally, WB was found to be linked to anxiety and depression which is in line with previous research. These data suggest that TF could be a potential resolution to the deleterious influence of burnout. Further exploration is needed in order to understand the psychology of forgiveness as a potential adjuvant and/or therapeutic intervention for physicians’ burnout. These results suggest that strategies including forgiveness training aimed at decreasing WB while increasing job satisfaction among physicians warrant further exploration.Funding Acknowledgements: no funding


2017 ◽  
Vol 35 (15_suppl) ◽  
pp. e21614-e21614
Author(s):  
Jennifer L. Lycette ◽  
Paulina Cockrum ◽  
Venus Fromwiller ◽  
Kerri M. Winters-Stone

e21614 Background: We provide the only fully staffed cancer center in the rural Columbia Pacific, serving multiple counties in OR and WA. Rural areas can lack resources to provide comprehensive survivorship care. Higher rates of medical comorbidities and socioeconomic barriers add challenges to rural survivorship. We conducted a pilot study to 1) develop a program for lifestyle and behavior modifications to fit the needs of our patients in our rural community and 2) determine feasibility and preliminary efficacy of a survivorship program for breast cancer patients. Methods: 9 women with stage I-III breast cancer completed a 12-week program consisting of 1:1 meetings every 2 weeks with a physical therapist and registered dietician; health coach support; and access to a social worker. The following pre-post measures of physical health were taken: fasting lipids and glucose, HbA1C, waist circumference, blood pressure, BMI, 3-day physical activity log and food journal, joint range of motion, and muscle strength. Pre-post well-being was assessed by EORTC QLQC30 and focus groups. Results: Decreases in systolic BP, weight, waist circumference, fasting glucose, and HbA1c were seen in a majority of participants; however, only decreases in waist circumference reached statistical significance (p = .043). On post-program survey using a 0-10 rating scale, program acceptability was rated at an average of 7, and likelihood to continue at an average of 9.4; however, overall QOL rating had no change. Focus group feedback indicated participants valued dietician visits, but requested more social work support, exercise customization, and group support to foster mentoring, education, and sense of community. Conclusions: Developing a rural comprehensive survivorship care program locally is feasible. More work is needed to translate physical health goals into enhancement of well-being and improved QOL of rural cancer survivors.


2020 ◽  
Author(s):  
Anabela Marisa Azul ◽  
Ricardo Almendra ◽  
Marta Quatorze ◽  
Adriana Loureiro ◽  
Flávio Reis ◽  
...  

Abstract Background: Non-communicable diseases (NCDs) are a leading cause of health loss worldwide, in part due to unhealthy lifestyles. Metabolic-based diseases are rising with an unhealthy body-mass index (BMI) in rural areas as the main risk factor in adults. Health loss risks in rural areas may be amplified by wider determinants such as socio-demography and surrounding environments. We assessed weather (un)healthy lifestyles and environment in rural neighbourhoods are reflected into metabolic risks and health capability, and how community circumstances may impact the self-ability for making balanced decisions.Methods: We conducted a community-based cross-sectional study in fifteen Portuguese rural neighbourhoods (with high ageing index and high illiteracy) to describe individuals’ health functioning condition and to characterize the community environment. We followed a qualitatively driven mixed-method design, using a healthy lifestyle assessment toolkit, to gather evidence-based data and lifestyles (incorporated in eVida technology), within a random sample of 270 individuals; and 107 in-depth interviews to determine whether environment influence the capability for improving or pursuing heath and well-being.Results: Men showed to have a 75% higher probability of being overweight than women (p-value=0.0954); and the reporting of health loss risks was higher in women (RR: 1.48; p-value=0.122), individuals with larger waist circumference (RR: 2.21; IC: 1.19; 4.27), overweight and obesity (RR: 1.38; p-value=0.293) and participants aged over 75 years (RR: 1.78; p-value= 0.235; when compared with participants under 40 years old). Metabolic risks were more associated to BMI and physical activity than diet (or sleeping habits); participants strongly evidenced the adherence to a Mediterranean dietary pattern. From the interviews, we identified seven environmental circumstances reflecting health needs, health expectations and health capability: economic development, built environment, social network, health care, demography, active lifestyles, and mobility. And, while the starting point of the interview addressed community needs, participants expressed the value of natural environment in their neighbourhood as the main positive effect to pursuing health and well-being, with particular emphasis to lower exposure to air / noise pollution, daily routines linked to nature or land use, and diversity of nature experiences.Conclusions: Our qualitatively driven mixed-method design, involving the community, uncovers environment contextual-dependent circumstances influencing the ability of individuals to pursue healthy habits. The active participation of local representatives, with its degrees of negotiation and flexibility, contributed to adapt the health-related messages. The co-benefits from this co-designing community program advance the evidence to support academy-community driven interventions for pushing health and well-being at a broader social, health care and (natural) environment agenda in rural neighbourhoods.


2014 ◽  
Vol 2 ◽  
pp. 283-287
Author(s):  
Marina Sadovski

The article discusses the idea that children with movement disorders have great potential for motor and mental development. The experiment consists of two stages. In the first stage of the experiment, the characteristics of disability in children and adolescents (between age 12 and 16) with Infantile Cerebral Palsy are determined. During this stage, two diagnostic methods, bodily “Me” and “The Color-A-Person Body Dissatisfaction Test,” are used.In the second phase of the research program, social pedagogical aids for people with disabilities have been developed. On the basis of the experimental work, the obtained social pedagogical insights have been successfully implemented in the social adaption of disabled children.It is determined that this method is promising to help adults and children with mobility impairment to enhance their mental well-being, attain a positive body image, express their feelings freely, interact socially using a motor component, and above all—enjoy the movements. This method can ensure the effectiveness of social adaptation of persons with disabilities.


2013 ◽  
Vol 31 (15_suppl) ◽  
pp. e20722-e20722
Author(s):  
Harpreet Sidhu ◽  
Mir Asif Alikhan ◽  
Michael Glasser

e20722 Background: Due to the nature of the disease, caregivers of patients with cancer encounter high levels of burden and distress. Very little research has examined the needs of cancer caregivers and ways to address these needs. Health providers might overlook the emotional aspects of a disease and diagnosis, being occupied and busy with other aspects of patient care. Methods: Questionnaires with a focus on personal physical health, emotional health, care received, and medical care in general were handed out to patients and family members. Health providers were given similar questionnaires. Results: There were 45 participants in total: 18 health providers, 10 patients, and 17 family members. Similarities or differences between the attitudes of family members, health providers, and patients were found. Providers more negatively assessed the effect of a patient’s cancer on the well-being of family members than did patients/family members. Family member physical health was more negatively rated [P < 0.001] by providers, as was family member emotional health [P< 0.001]. Providers were also more likely to check distresses on the NCCN distress thermometer than were patients/family members. Responses were similar between urban and rural participants. Conclusions: Family members did not feel that the cancer diagnosis had affected their overall well-being in an overtly negative way. Health care providers believed that the cancer diagnosis had more of a negative effect on family member well-being. Future studies should look at attitudes of doctors/physicians versus other health providers to family member well-being after a patient’s cancer diagnosis.


Author(s):  
Alessandro Rovetta ◽  
Lucia Castaldo

Background: Between the end of February and the beginning of June 2020, Italy was certainly one of the worst affected countries in the world by the COVID-19 pandemic. During this period, web interest in the novel coronavirus has undergone a drastic surge. Objective: The aim of this study was to quantitatively analyze the impact of COVID-19 on Web searches related to hygiene-preventive measures and emotional-psychological aspects as well as to estimate the effectiveness and limits of online information during an epidemic. We looked for significant correlations between COVID-19 relative search volumes and cases per region to understand the interest of the average Italian Web user during international, national, and regional COVID-19 situations. By doing so, from the analysis of Web searches, it will be possible to deduce the mental and physical health of the population. Methods: To conduct this research, we used the "Google Trends" tool, which returns normalized values, called "relative search volumes" (RSVs), ranging from 0 to 100 according to the Web popularity of a group of queries. By comparing the RSVs in periods before and after the outbreak of the novel coronavirus in Italy, we derived the impact of COVID-19 on the activity of Italian netizens towards novel coronavirus itself, specifically regarding hygiene, prevention, and psychological well-being. Furthermore, we calculated Pearson's correlations ρ ; between all these queries and COVID-19 cases for each region. We chose a p-value (p) threshold α=.1. Results: After the two initial spikes that occurred on February 23 and March 9, 2020, the general web interest in COVID-19 in Italy waned, as did the correlation with the official number of cases per region (p< .1 only until March 14, 2020). However, web interest was similarly distributed across the regions (ASV=92,SD=6). We also found that all trends depend significantly on the number of COVID-19 cases at national but not international or regional levels. Between February 20 and June 10, 2020, web interest relating to hygiene and prevention increased by 116% and 901%, respectively, compared to those from January 1 to February 19, 2020 (95% CIs: [115.3,116.3],[850.3,952,2]). Significant correlations between regional cumulative web searches and COVID-19 cases were found only between February 26 and March 7, 2020 (ρ-best= .43, 95% CI:[.42,.44],p= .07). During the COVID-19 pandemic until June 10, 2020, national web searches of the generic terms "fear" and "anxiety" grew by 8% and 21%, respectively (95% CIs: [8.0,8.2],[20.4,20.6]) compared to those of the period January 1, 2018 - December 29, 2019. We found cyclically significant correlations between negative emotions related to the novel coronavirus and COVID-19 official data. Conclusions: Italian netizens showed a marked interest in the COVID-19 pandemic only when this became a direct national problem. In general, web searches have rarely been correlated with the number of cases per region; we conclude that the danger, once it arrived in the country, was perceived similarly in all regions. We can state that the period of maximum effectiveness of online information, in relation to this type of situation, is limited to 3-4 days from a specific key event. If such a scenario were to occur again, we suggest that all government agencies focus their web disclosure efforts over that time. Despite this, we found cyclical correlations with web searches related to negative feelings such as anxiety, depression, fear, and stress. Therefore, to identify mental and physical health problems among the population, it suffices to observe slight variations in the trend of related web queries. Keywords: COVID-19, Google Trends, web interests, Italy, novel coronavirus.


2013 ◽  
Vol 7 (1) ◽  
pp. 8-11
Author(s):  
Z Singh ◽  
Senthilvel LNU

ABSTRACT Background Very few data are available on the oral health condition among fisherfolk in rural areas of India. The external factors like diet, quality of dental hygiene and environmental factors have an effect on caries occurrence. The aim of the study was to assess the dental morbidity among fishermen community. Materials and methods A community based observational study was done among the fishermen community. Descriptive statistics, percentages and Chi square methods were used for analysis. p value <0.05 has been taken as statistically significant. Results and conclusion Majority of patients had sought treatment for symptomatic caries and younger age group patients sought treatment more than older age group. Education level and social class also reflected the morbidity status of the community. Findings have implications to develop strategies to increase the public awareness of oral hygiene in rural community.


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