Community exchange: Social software to support group discussion

2013 ◽  
Author(s):  
Romiza Md Nor ◽  
Stephen Viller
Keyword(s):  
Support Group ◽  
Group Discussion ◽  
Social Software

scholarly journals PERBEDAAN PENERIMAAN DIRI ORANG TUA YANG MEMILIKI ABK BERDASARKAN KEIKUTSERTAAN DALAM KEGIATAN SUPPORT GROUP

2011 ◽  
Vol 23 (XIV) ◽  
pp. 52-57
Author(s):  
Iriani Indri Hapsari ◽  
Herdiyan Maulana
Keyword(s):  
Support Group ◽  
Economic Status ◽  
Group Discussion ◽  
The Self ◽  
Analysis Method ◽  
Handicapped Children ◽  
Religious View ◽  
Factors Influencing ◽  
Statistical Analysis Method ◽  
Acceptance Scale

The aim of this research was to analyse the differences between the self acceptence of parents with handicapped children based on their involvment in the support group compared to those without any involvement. In this research, 64 parents with handicapped children were selected using nonprobability sampling with incidental sampling type. The samples comprised of 32 parents with involvement in support group and the remaining were without any involvement. Adapted Berger Self Acceptance Scale was used for the measurement of the research. Independent sample T-Test was the statistical analysis method used for the research. The result showed that t = 0, 267 with df = 62 ; t < t able (2) and p = 0,79 ; p > 0,05, meaning Ho was accepted and H1 was rejected. The result showed that there is no significance different between self acceptence of parents with handicaped children who join the support group with those who have not joined the group. Discussion of this research concluded there are several factors influencing this finding, such as family, cultural problems, and religious view, beside social and economic status.

scholarly journals PEMBERDAYAAN SOCIAL SUPPORT GROUP DALAM ADAPTASI NORMALISASI PADA ORANGTUA DENGAN ANAK KANKER DI KOTA BANDUNG BANDUNG

Dharmakarya ◽  
2018 ◽  
Vol 7 (2) ◽  
Author(s):  
Ikeu Nurhidayah
Keyword(s):  
Social Support ◽  
Small Group ◽  
Support Group ◽  
Peer Group ◽  
Group Discussion ◽  
Small Group Discussion

Kanker merupakan salah satu masalah kesehatan kronis pada anak yang semakin meningkat, termasuk di Jawa Barat. Kota Bandung merupaka kota tempat dimana terdapat rumah sakit rujukan pelayanan kanker anak di Jawa Barat, sehingga jumlah orangtua dengan anak kanker yang bermukim di Kota Bandung semakin meningkat terutama di area sekitar fasilitas rujukan. bupaten Bandung. Kanker anak memerlukan proses pengobatan yang panjang, yang akan berdampak bukan hanya pada anak, namun juga pada orangtua dan keluarga. Keluarga dengan anggota keluarga yang mengalami sakit kanker akan mengalami berbagai perubahan yang dipandang sebagai situasi krisis yang dapat mengganggu keseimbangan kehidupan keluarga. Fokus grup diskusi dengan orangtua  anak dengan kanker menunjukkan bahwa stres yang sangat luar biasa dirasakan semua orangtua pada saat mendapati kabar bahwa anaknya mengalami penyakit yang membutuhkan pengobatan sepanjang waktu, dan mengganggu keseimbangan keluarga, baik dari segi fisik, psikologis, sosial, spiritual, dan ekonomi. Orangtua harus dapat melakukan berbagai penyesuaian serta membantu anak untuk beradaptasi dengan penyakitnya. Normalisasi merupakan suatu proses dimana keluarga mencoba untuk menormalkan kehidupan sehari-hari walaupun memiliki anak dengan penyakit kronis, melalui proses adaptasi. Proses normalisasi keluarga dipengaruhi oleh berbagai faktor, salah satunya adalah dukungan melalui social support group yang bisa didapatkan oleh keluarga dari peer group, tenaga profesional dan kader kesehatan. Kegiatan ini berupa pemberdayaan social support group dalam adaptasi dan normalisasi keluarga dengan kanker di rumah singgah Yayasan Kasih Anak Kanker Indonesia cabang Bandung. Khalayak sasaran pada kegiatan ini adalah peer group (sesama orangta dengan anak penyandang kanker), volunteer yayasa dan kader kesehatan sejumlah 38 orang. Luaran kegiatan ini adalah peningkatan kemampuan kognitif dan psikomotor orangtua, kader kesehatan dan volunteer dalam memberikan dukungan keluarga dengan kanker untuk melakukan adaptasi dan proses normalisasi. Metode kegiatan ini dilakukan dengan ceramah, simulasi, small group discussion dan praktikum. Hasil kegiatan menunjukkan bahwa rata-rata skor pengetahuan partisipan sebelum dilakukan kegiatan pemberdayaan adalah 65,20 (SD: 0,2), dan rata-rata skor pengetahuan setelah dilakukan kegiatan adalah 87,4 (SD: 0,2), dengan rata-rata peningkatan skor 22,2 (SD: 0,12), dan kemampuan psikomotor peserta 100% dalam kategori baik. Hasil kegiatan ini merekomendasikan yayasan YKAKI untuk membentuk social support group untuk mendukung orantua dan keluarga dengan anak kanker. 

The First Meeting

The Group ◽  
2018 ◽  
Author(s):  
Donald L. Rosenstein ◽  
Justin M. Yopp
Keyword(s):  
High School ◽  
Support Group ◽  
Group Discussion ◽  
Eye Contact ◽  
The Other ◽  
Deep Breath ◽  
Student Council ◽  
Parking Lot ◽  
Opening Up ◽  
Over Time

Dan had been terrified of speaking in front of people for as long as he could remember. As a child, he avoided eye contact with teachers so they wouldn’t call on him in class and he insisted on non-speaking parts when he had to participate in school plays. In high school, he feigned stomachaches to avoid giving class presentations and never dared to run for student council. Over time, Dan’s fear of embarrassment shaped his personality. He was shy and introverted, and he stayed away from situations that invited scrutiny. Naturally, when Dan first heard about a new support group for recently widowed fathers, he thought there was no way he could join. Opening up to a room full of strangers about his wife’s illness and recent death was nightmare material. It was precisely the kind of situation he had spent a lifetime avoiding. Still, Dan knew that he needed some kind of help. He had been in bad shape in the months since his wife had died. He felt isolated in his grief and overwhelmed by the prospect of raising two children by himself. As Dan saw it, his kids not only lost their mother but were now stuck with a father whose ineptitude as a parent was only making things worse: a cruel “double-whammy.” Despite his fears, he decided to join the support group because he felt he owed it to his children to be a better parent. Dan set the bar low for that first night: show up, sit quietly, listen to the other fathers, and avoid drawing attention to himself. If asked to share his story, he would offer only the barest of details. If called on to participate in group discussion, he would keep his input to a minimum. As he pulled into the parking lot for the first meeting, Dan felt a familiar wave of anxiety. His stomach churned and his heart began to pound. He thought about turning back. Instead, Dan closed his eyes and tried to calm down. After ten minutes, he took a deep breath and stepped out of the car.

Mutual Support Groups With Parents of Leukemic Children

PEDIATRICS ◽  
1974 ◽  
Vol 54 (1) ◽  
pp. 117-118
Author(s):  
Jacqueline Lambi
Keyword(s):  
Los Angeles ◽  
Support Groups ◽  
Support Group ◽  
Group Discussion ◽  
University Hospital ◽  
Similar Group ◽  
Mutual Support ◽  
Pediatric Department ◽  
Mutual Support Groups ◽  
Excellent Article

Having read the article, "Group Discussion With the Parents of Leukemic Children," by Heffron et al. (Pediatrics, 52:831, 1973) with great interest, I would like to suggest that similar group meetings are being held at other centers. I draw to your attention the excellent article, "Helping the Parents of Children With Leukemia," by Knapp and Hansen, Children's Hospital of Los Angeles (Social Work, Vol. 18, No. 4, July 1973). Dr. Brian McSheffrey and I, through our contact with leukemic children in the Pediatric Department of University Hospital, Saskatoon, Saskatchewan, Canada, have been experimenting with mutual support group for parents of leukemic children since November 1971.

A mobile education and social support group intervention for improving postpartum health in northern India: Development and Usability Study (Preprint)

2021 ◽  
Author(s):  
Alison M. El Ayadi ◽  
Nadia G. Diamond-Smith ◽  
Alka Ahuja ◽  
Darshan Hosapatna Basavarajappa ◽  
Pushpendra Singh ◽  
...  
Keyword(s):  
Social Support ◽  
Support Group ◽  
Service Provider ◽  
Group Discussion ◽  
Postpartum Women ◽  
Pilot Phase ◽  
New Mothers ◽  
Cultural Challenges ◽  
Text Chat ◽  
Mhealth Intervention

BACKGROUND Structural and cultural barriers limit Indian women’s access to adequate postnatal care and support despite its importance for maternal and neonatal health. Targeted postnatal education and support through an mHealth intervention may improve postnatal recovery, neonatal care practices, nutritional status, knowledge and care seeking, and mental health. OBJECTIVE We sought to understand feasibility and acceptability of our first pilot phase, a flexible six-week postnatal mHealth intervention delivered to three groups of women in Punjab, India, and integrate these findings into the intervention for our next pilot phase which will formally assess intervention feasibility, acceptability, and preliminary effectiveness. METHODS Our intervention prototype was designed to deliver culturally tailored educational programming via a provider-moderated, voice and text-based, group approach to connect new mothers with a virtual social support group of other new mothers, increase their health-related communication with providers, and refer them as needed. We targeted deployment for feature phones to include diverse socioeconomic participants. We held moderated group calls weekly, disseminated educational audios, and created mobile text groups. We varied content delivery, group discussion participation, and text chat moderation. Three groups of postpartum women from Punjab, India were recruited for the 6-week pilot through community health workers. Sociodemographic data were collected at baseline. Intervention feasibility and acceptability were assessed through weekly participant check-ins (n=29), weekly moderator reports, structured endline in-depth interviews (IDIs) among some participants (n=15), and backend data from the technologies used. RESULTS Our 29 participants were 24-28 years and 1-3 months postpartum with parity 0-1. Half had their own phone. Half of participants attended 3 or more of the 6 calls; main barriers were childcare and household responsibilities, and network or phone issues. Most participants were very satisfied with the intervention and found the educational content and group discussion beneficial. Participants utilized the text chat, particularly where facilitator-moderated. Sustaining participation and fostering group interactions was limited by technological and socio-cultural challenges. CONCLUSIONS The intervention was considered generally feasible and acceptable, and protocol adjustments were identified to improve intervention delivery and engagement. To address technological issues, we engaged a cloud-based service provider for group calls and an interactive voice response service provider for educational recordings, and developed a smartphone application for participants. We seek to overcome socio-cultural challenges through new strategies for increasing group engagement, including targeting mid-level female Community health Officers as moderators. Our second pilot will assess intervention feasibility, acceptability, and preliminary effectiveness at six months. Ultimately, we seek to support the health and wellbeing of postpartum women and their infants in South Asia and beyond through the development of efficient, acceptable, and effective intervention strategies. CLINICALTRIAL NCT04636398

Analyzing Knowledge Construction in Online Health Group Discussion

2017 ◽  
Vol 16 (01) ◽  
pp. 1750009
Author(s):  
Achmad Ghazali ◽  
Alexei Tretiakov ◽  
Dematria Pringgabayu ◽  
Dany Muhammad Athory Ramdlany
Keyword(s):  
Support Groups ◽  
Support Group ◽  
Knowledge Construction ◽  
Information Quality ◽  
Group Discussion ◽  
Active Role ◽  
Online Discussions ◽  
Health Related ◽  
Health Support ◽  
Information Integrity

The ongoing transition to the patient-centred healthcare paradigm suggests that patients adopt an active role in managing their health conditions. As a result, the Internet is becoming an important source of health-related information. Internet-based health support groups allow patients to access diverse information relevant to their particular situation by participating in online discussions. The quality of such information may have effects on the patients’ health outcomes. The purpose of the present study was to investigate the effects of knowledge construction in health support group online discussions on perceived information quality, information quality from the perspective of information consumers, and on information integrity, that is, validity from the point of view of the current state of scientific knowledge. It was hypothesised that knowledge construction results in better perceived information quality and in higher information integrity. A health support group online discussion site devoted to weight management was used as a source of data. Quantitative content analysis was used with a discussion thread as a unit of analysis. Based on the findings, the study suggested that moderators of health support group online discussions should promote explicitation or lower level knowledge construction by encouraging clarifications and refinements of health-related recommendations. Moreover, participation of qualified health practitioners is desirable to promote health-related behaviours based on evidence-based knowledge and to expose recommendations that have uncertain or even dangerous effects.

A Research Derived Bereavement Support Group Technique for the Hiv-1 Infected

1996 ◽  
Vol 34 (4) ◽  
pp. 279-300 ◽  
Author(s):  
Karl Goodkin ◽  
Jack E. Burkhalter ◽  
Raymond S. Tuttle ◽  
Nancy T. Blaney ◽  
Daniel J. Feaster ◽  
...  
Keyword(s):  
Social Support ◽  
Support Group ◽  
Clinical Care ◽  
Group Discussion ◽  
Support Network ◽  
Bereavement Support ◽  
Active Monitoring ◽  
Life Stressor ◽  
Bereavement Support Group ◽  
Selection Of

A brief, semi-structured, bereavement support group for HIV seropositive and at risk homosexual men suffering a recent loss of a close friend or lover is described. The intervention employed a set of topics to stimulate group discussion. These topics were organized into three phases: making contact, venting of emotion, and “moving on.” Our predictive theoretical model integrating life stressor appraisal, social support availability, and active coping was incorporated. Therapeutic foci are active monitoring of stressor load; accurate stressor appraisal; extending, using and evaluating one's social support network; and selection of adaptive coping strategies. Three vignettes illustrate the integration of the research protocol with clinical issues. Implications for clinical care are discussed.

scholarly journals Psychosocial outcomes of peer support for patients with an inherited cardiac condition

2021 ◽  
Vol 20 (Supplement_1) ◽  
Author(s):  
K Frampton ◽  
S Sharma ◽  
ER Behr ◽  
K Webb ◽  
G Parry-Williams ◽  
...  
Keyword(s):  
Sudden Death ◽  
Peer Support ◽  
Support Group ◽  
Social Engagement ◽  
Peer Group ◽  
Group Discussion ◽  
Psychological Outcomes ◽  
Group Support ◽  
Specialist Nurse ◽  
Online Social Media

Abstract Funding Acknowledgements Type of funding sources: None. Introduction Inherited cardiac conditions (ICCs) are feared for their risk of sudden death. Individuals are often young and diagnosed after the sudden death of an apparently healthy family member. A diagnosis can have a profound psychological impact and negative effect on quality of life. Uncertainty surrounding the natural history of some diseases causes anxiety and concern about existing children or starting a family. Necessary lifestyle adjustments are often associated with a sense of isolation during social engagement with peers. Psychological support for such patients is scarce. However, a specialist nurse led peer group support within the ICC service may improve psychological outcomes and empower patients to support others.  Purpose To determine the effect of a nurse led peer support group on subjective psychological symptoms for patients with ICCs. Methods A pilot specialist nurse support group was established in February 2020 including 30 patients with ICCs. This consisted of a meeting in person followed by 6 subsequent 2 monthly online video meetings. Each session lasted 2 hours and included a talk by a healthcare professional on an ICC related topic, followed by an open forum for group discussion facilitated by the specialist nurse. An online social media chat forum was also developed. After 1 year, a bespoke questionnaire was distributed to all participants enquiring about the effect of group support on anxiety level, sense of isolation, knowledge about their condition and empowerment to support themselves and others.  Results 21 (70%) patients aged between 20 and 65 years old (mean age 49) responded. Diagnoses included Brugada syndrome, arrhythmogenic cardiomyopathy, dilated cardiomyopathy, hypertrophic cardiomyopathy and long QT syndrome. All participants agreed that the group provided a comfortable platform to ask questions about their condition. 95% of participants were keen to know more about their condition after diagnosis of which 86% agreed that knowledge about their condition had improved since joining the group. 90% of participants experienced anxiety related to their condition before joining the group of which 76% reported reduced levels since joining. 76% felt isolated after their diagnosis of which 86% reported that these feelings had lessened since joining the group. 86% of the group agreed that group discussion empowered them and helped them support other affected individuals.  Conclusion A pilot study support group for patients with ICCs reduced anxiety and sense of isolation, improved knowledge, and sense of empowerment and willingness to support other patients in ≥ 80% of attendees. There is potential that patient support groups can be kick started by specialist nurses and subsequently allowed to run by patients themselves. Apart from improving psychological outcomes, such practice may reduce the workload for the ICC multidisciplinary team.

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