Syndromic Craniosynostosis: Objective and Parent-Reported Outcome Measurements after Cranio-Facial Remodelling Surgeries

2021 ◽  
pp. 1-11
Author(s):  
Alok Mohan Uppar ◽  
Dhaval Shukla ◽  
Nitish Nayak ◽  
Girish Rao ◽  
Srinivas Dwarakanath
Keyword(s):  
Outcome Measurement ◽  
Well Being ◽  
Subjective Data ◽  
Female Ratio ◽  
Regular School ◽  
Moderate Improvement ◽  
Syndromic Craniosynostosis ◽  
Class 1 ◽  
Using Data ◽  
Assess Quality

<b><i>Introduction:</i></b> Syndromic craniosynostosis (SC) is a rare entity compared to the non-syndromic variant. Treatment involves a multidisciplinary approach towards a multitude of problems. Early intervention is known to be better for optimum results. We reviewed outcomes of children with SC who underwent reconstructive cranio-facial surgery. <b><i>Materials and Methods:</i></b> A retrospective study was conducted using data from hospital case files and the picture archival communication system. Objective data like the cephalic index (CI), both preoperatively and post-operatively, were compared. Subjective data for the cosmesis outcome – “Sloan and Whitaker outcome class” – following surgery were assessed. Also, parent-reported outcome measurement (PROM) was performed with various parameters to assess quality of life (QOL). <b><i>Results:</i></b> We had 21 operated cases of SC, with 19 needing cranio-facial remodelling. The male to female ratio was 11:10. Crouzon’s syndrome was the most common syndromic association followed by Apert’s syndrome. Nineteen patients underwent cranio-facial remodelling surgeries and 2 underwent the ventriculo-peritoneal shunt only – for raised intracranial pressure (ICP). Nine patients underwent cranial remodelling with fronto-orbital advancements, and 3 of these patients also received le-fort’s type 3 osteotomy and advancement later. Ten patients underwent fronto-orbital advancement with parieto-occipital barrel-stave osteotomies. <b><i>Outcomes:</i></b> Improvement in the CI was maximum at the 6-month follow-up. Six (37.5%) cases had Sloan class 1 outcome, 9 (56.25%) had class 2 outcomes, and 1 patient had a class 6 outcome. Whitaker cosmesis outcomes – 14 out of 16 cases (87.5%) had Category 1 outcomes. PROM was assessed. All parents reported at least a moderate improvement in cosmesis following surgery. Out of 15 cases, 10 (66%) reported significant improvement, while 4 (26.6%) cases reported moderate improvement with respect to eye and visual problems. Four parents reported snoring as a significant problem even after surgery. Most parents felt that the children were doing well, attending regular school, and social well-being was normal and had an overall good QOL. <b><i>Conclusions:</i></b> SC cases may have a multitude of other problems like raised ICP, ophthalmological problems, poor intelligence, and cognition apart from cosmetic concerns. PROMs revealed good outcomes in terms of cosmesis, cognition, and ophthalmological and oral cavity-related problems. Significant improvement in overall QOL was seen in most patients following cranio-facial remodelling surgery.

Sexual harassment and psychological complaints: student- and class-level associations

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
S Brolin Låftman ◽  
Y Bjereld ◽  
B Modin ◽  
P Löfstedt
Keyword(s):  
School Climate ◽  
Sexual Harassment ◽  
Linear Regression Analysis ◽  
Well Being ◽  
Negative Effects ◽  
School Class ◽  
School Aged Children ◽  
The Past ◽  
Class Level ◽  
Using Data

Abstract Background Students who are subjected to sexual harassment at school report lower psychological well-being than those who are not exposed. Yet, it is possible that the occurrence of sexual harassment in the school class is stressful also for those who are not directly targeted, with potential negative effects on well-being for all students. The aim was to examine whether sexual harassment at the student- and at the class-level was associated with students' psychological complaints. Methods Data from the Swedish Health Behaviour in School-aged Children (HBSC) of 2017/18 was used, with information from students aged 11, 13 and 15 years (n = 3,720 distributed across 209 classes). Psychological complaints were constructed as a summative index of four items capturing how often the student had felt low, felt irritable or bad tempered, felt nervous, or had difficulties to fall asleep, during the past six months (Cronbach's alpha=0.78). Sexual harassment at the student-level was measured by one item concerning bullying at school: “Other students have exposed me to sexual jokes”. Students who reported that this had happened at least “2 or 3 times a month” were classified as exposed to sexual harassment at school. Sexual harassment at the class-level was defined as the school class proportion of students exposed to sexual harassment, reported in per cent. Two-level linear regression analysis was applied. Results Students who had been exposed to sexual harassment had higher levels of psychological complaints (b = 2.74, p &lt; 0.001). The proportion of students in the school class who had been exposed to sexual harassment was also associated with higher levels of psychological complaints, even when adjusting for sexual harassment at the student-level, gender and grade (b = 0.03, p = 0.015). Conclusions Sexual harassment is harmful for those who are exposed, but may also affect other students negatively. Thus, a school climate free from sexual harassment will profit all students. Key messages Using data collected among students aged 11, 13 and 15 years, this study showed that sexual harassment at the student- and class-level was associated with higher levels of psychological complaints. Sexual harassment is harmful for those who are exposed, but may also affect other students negatively. Thus, a school climate free from sexual harassment will profit all students.

scholarly journals The impact of poly-traumatization on treatment outcomes in young people with substance use disorders

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Sidsel Karsberg ◽  
Morten Hesse ◽  
Michael Mulbjerg Pedersen ◽  
Ruby Charak ◽  
Mads Uffe Pedersen
Keyword(s):  
Substance Use ◽  
Substance Use Disorders ◽  
Psychological Trauma ◽  
Well Being ◽  
Traumatic Experiences ◽  
Treatment Entry ◽  
Trauma Types ◽  
Using Data ◽  
The Impact ◽  
Drug Use Disorder

Abstract Background It is believed that clients with psychological trauma experiences have a poor prognosis with regard to treatment participation and outcomes for substance use disorders. However, knowledge on the effect of the number of trauma experiences is scarce. Methods Using data from drug use disorder (DUD) treatment in Denmark, we assessed the impact of having experienced multiple potentially traumatic experiences on DUD treatment efficacy. Baseline and follow-up data from 775 young participants (mean age = 20.2 years, standard deviation = 2.6) recruited at nine treatment centers were included in analyses. Results Analyses showed that participants who were exposed multiple trauma experiences also reported a significantly higher intake of cannabis at treatment entry, and a lower well-being score than participants who reported less types or no types of victimization experiences. During treatment, patients with multiple types of trauma experiences showed a slower rate of reduction of cannabis than patients with few or no trauma experiences. The number of trauma types was not associated with number of sessions attended or the development of well-being in treatment. Conclusion Overall, the results show that although traumatized youth in DUD treatment show up for treatment, helping them to reduce substance use during treatment is uniquely challenging. Trial registration ISRCTN88025085, date of registration: 29.08.2016, retrospectively registered.

Confinement risks and social inequality in Latin America: Evidence from Argentina

2021 ◽  
pp. 001139212199001
Author(s):  
Fiorella Mancini
Keyword(s):  
Latin America ◽  
Social Inequality ◽  
Social Inequalities ◽  
Well Being ◽  
Vulnerable Groups ◽  
Cultural Aspects ◽  
Sociological Approach ◽  
Using Data ◽  
The Relationship ◽  
Health And Well Being

Social distancing and isolation measures in response to COVID-19 have confined individuals to their homes and produced unexpected side-effects and secondary risks. In Latin America, the measures taken by individual governments to mitigate these new daily and experiential risks have varied significantly as have the responses to social isolation in each country. Given these new social circumstances, the purpose of this article is to investigate, from the sociological approach of risk-taking, the relationship between confinement, secondary risks and social inequality. The author argues that secondary risks, despite their broad scope, are deeply structured by social inequalities in contemporary societies, especially in developing countries. To corroborate this hypothesis, a quantitative comparative analysis is performed for the Argentine case. Using data from a web-survey and correspondence analysis (CA), there are three major findings: (1) there are some widespread experiences similarly distributed across all social strata, especially those related to emotional and subjective matters; (2) other risks follow socio-structural inequalities, especially those corresponding to material and cultural aspects of consumption; (3) for specific vulnerable groups, compulsory confinement causes great dilemmas of decision-making between health and well-being.

scholarly journals Depression and loneliness of older adults in Europe and Israel after the first wave of covid-19

2021 ◽  
Author(s):  
Josefine Atzendorf ◽  
Stefan Gruber
Keyword(s):  
Older Adults ◽  
Well Being ◽  
Individual Characteristics ◽  
Control Measures ◽  
Epidemic Control ◽  
Government Response ◽  
Country Level ◽  
Interaction Terms ◽  
Share Data ◽  
Using Data

AbstractEpidemic control measures that aim to introduce social distancing help to decelerate the spread of the COVID-19 pandemic. However, their consequences in terms of mental well-being might be negative, especially for older adults. While existing studies mainly focus on the time during the first lockdown, we look at the weeks afterward in order to measure the medium-term consequences of the first wave of the pandemic. Using data from the SHARE Corona Survey, we include retired respondents aged 60 and above from 25 European countries plus Israel. Combining SHARE data with macro-data from the Oxford COVID-19 Government Response Tracker allows us to include macro-indicators at the country level, namely the number of deaths per 100,000 and the number of days with stringent epidemic control measures, in addition to individual characteristics. The findings show that both macro-indicators are influential for increased feelings of sadness/depression, but that individual factors are crucial for explaining increased feelings of loneliness in the time after the first lockdown. Models with interaction terms reveal that the included macro-indicators have negative well-being consequences, particularly for the oldest survey participants. Additionally, the results reveal that especially those living alone had a higher risk for increased loneliness in the time after the first COVID-19 wave.

scholarly journals Identification and inclusion of gender factors in retrospective cohort studies: the GOING-FWD framework

2021 ◽  
Vol 6 (4) ◽  
pp. e005413
Author(s):  
Valeria Raparelli ◽  
Colleen M. Norris ◽  
Uri Bender ◽  
Maria Trinidad Herrero ◽  
Alexandra Kautzky-Willer ◽  
...  
Keyword(s):  
Outcome Measurement ◽  
Meta Analysis ◽  
Synthetic Data ◽  
Well Being ◽  
Pooled Analysis ◽  
Research Network ◽  
Local Analysis ◽  
Related Factors ◽  
Measurement Framework ◽  
Definition Of

Gender refers to the socially constructed roles, behaviours, expressions and identities of girls, women, boys, men and gender diverse people. Gender-related factors are seldom assessed as determinants of health outcomes, despite their powerful contribution. The Gender Outcomes INternational Group: to Further Well-being Development (GOING-FWD) project developed a standard five-step methodology applicable to retrospectively identify gender-related factors and assess their relationship to outcomes across selected cohorts of non-communicable chronic diseases from Austria, Canada, Spain, Sweden. Step 1 (identification of gender-related variables): Based on the gender framework of the Women Health Research Network (ie, identity, role, relations and institutionalised gender), and available literature for a certain disease, an optimal ‘wish-list’ of gender-related variables was created and discussed by experts. Step 2 (definition of outcomes): Data dictionaries were screened for clinical and patient-relevant outcomes, using the International Consortium for Health Outcome Measurement framework. Step 3 (building of feasible final list): a cross-validation between variables per database and the ‘wish-list’ was performed. Step 4 (retrospective data harmonisation): The harmonisation potential of variables was evaluated. Step 5 (definition of data structure and analysis): The following analytic strategies were identified: (1) local analysis of data not transferable followed by a meta-analysis combining study-level estimates; (2) centrally performed federated analysis of data, with the individual-level participant data remaining on local servers; (3) synthesising the data locally and performing a pooled analysis on the synthetic data and (4) central analysis of pooled transferable data. The application of the GOING-FWD multistep approach can help guide investigators to analyse gender and its impact on outcomes in previously collected data.

scholarly journals Please, Do Not Interrupt Me: Work–Family Balance and Segmentation Behavior as Mediators of Boundary Violations and Teleworkers’ Burnout and Flourishing

2021 ◽  
Vol 13 (13) ◽  
pp. 7339
Author(s):  
Vânia Sofia Carvalho ◽  
Alda Santos ◽  
Maria Teresa Ribeiro ◽  
Maria José Chambel
Keyword(s):  
Well Being ◽  
Work And Family ◽  
Future Research ◽  
Boundary Violations ◽  
Family Balance ◽  
Work Family Balance ◽  
Work Family ◽  
Using Data ◽  
The Relationship

The lockdown, in the COVID-19 pandemic, is considered an external crisis that evokes innumerous changes in individuals lives. One of the changes is the work and family dynamics. Based on boundary theory we examine the mediated role of work and family balance and boundary segmentation behavior in the relationship between boundary violations and teleworkers’ stress and well-being. However, because women and men live their work and family differently, gender may condition the way teleworkers lead with boundary violations and boundary segmentation. Hypotheses were tested through moderated mediation modeling using data collected of 456 teleworkers during lockdown. In line with our expectations, teleworkers who have suffered most boundary violations were those with least boundary segmentation behaviors and with least work-family balance which, in turn was related to higher burnout and lower flourishing. Furthermore, gender was found to moderate the relationship between boundary violations from work-to-family and segmentation behavior in the same direction and this relationship was stronger for females than for males. We discuss implications for future research and for managing teleworkers, creating sustainability, both during a crise and stable days.

scholarly journals Perceptions of Caregiving: Racial Examinations of Resiliency and Stress

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 352-352
Author(s):  
Athena Koumoutzis ◽  
Kelly Cichy
Keyword(s):  
Racial Differences ◽  
Daily Living ◽  
Process Model ◽  
Well Being ◽  
Stress Process Model ◽  
Parental Caregiving ◽  
The Family ◽  
Using Data ◽  
Midlife Adults ◽  
Emotional Strain

Abstract Adult children are at risk of emotional strain when parental caregiving needs emerge. Pearlin’s Stress Process Model (1990) and caregiver studies suggest minority caregivers report lower subjective caregiving burden, however, few studies simultaneously consider both the stresses and rewards of caregiving. Using data from Wave II of the Family Exchange Study (N = 243), we examine racial differences in midlife adults’ perceptions (i.e., stress and rewards) of assisting their parents with activities of daily living (ADLs) and the associations between perceptions of ADL assistance and emotional well-being among adults who help their parents with ADLs. Compared to non-minority caregivers (M = 4.18, SD = 0.91), minority caregivers (M = 4.45, SD = 0.84) found it more rewarding to help their mother (t(314) = -2.54, p &lt; .05), whereas non-minority caregivers (M = 2.25, SD = .1.27) found it more stressful to help their father than did minority caregivers (M = 1.64, SD = 0.99), t(162) = 3.01, p &lt; .01). After controlling for demographics and ADL needs, linear regression analyses revealed that the stress of helping parents predicted depression (F(6, 189) = 5.30, p &lt; .001) and race moderated the association (p &lt; .01); the association was only significant for minority caregivers (p &lt; .05). Implications will be discussed.

scholarly journals Perceived Social Integration Predicts Engagement and Responsiveness to Positive Events: Test of Age Moderation

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 397-397
Author(s):  
Patrick Klaiber ◽  
David Almeida ◽  
Nancy Sin
Keyword(s):  
Positive Affect ◽  
Social Integration ◽  
Positive Emotions ◽  
Well Being ◽  
Demographic Variables ◽  
National Study ◽  
Big Five Personality ◽  
Positive Events ◽  
Telephone Interviews ◽  
Using Data

Abstract Social Integration has important implications for health and well-being during adulthood. Being socially integrated might be an important resource that helps people to regularly engage in daily positive events. With older age, this resource might become increasingly important. However, being well socially integrated might also mean that people are certain that they experience more positive events in the future and thus, respond with less positive affect to any given positive event. We examined perceived social integration as a predictor of engagement and responsiveness to positive events using data from the National Study of Daily Experiences 2. 1904 adults (Mean age = 56.25, min = 33, max = 84) reported their daily positive affect and daily positive events during 8 consecutive days of telephone interviews. Perceived social integration was assessed at baseline. Adults higher in social integration experienced daily positive events more frequently (b = 0.01, SE = 0.003, p &lt; .001), but showed less of an increase in positive affect on days with more-than-usual positive events (b = -0.003, SE = 0.001, p = .030). These models controlled for the Big Five personality traits, purpose in life, demographic variables and same-day occurrence of stressors. Age did not moderate the present associations. The present findings imply that social integration might be an important contributor to experiencing more positive events across adulthood. Being better socially integrated might also lead to responding with less positive emotions to any given positive event.

Individualised Homoeopathy in the Treatment of Onycholysis: An Evidence-Based Clinical Case Report

2021 ◽  
Vol 34 (03) ◽  
pp. 227-234
Author(s):  
Dhiraj Debnath ◽  
Abhiram Banerjee ◽  
Md Mostafijur Rahaman ◽  
Gurudev Choubey
Keyword(s):  
Case Report ◽  
Clinical Case ◽  
Outcome Measurement ◽  
Nail Plate ◽  
Life Quality ◽  
Well Being ◽  
Middle Finger ◽  
Final Visit ◽  
Measurement Scales ◽  
Main Complaint

Abstract Introduction Onycholysis is a chronic nail disorder characterised by the progressive separation of the nail plate from the underlying nail bed. Apart from causing pain and discomfort, it affects the quality of life of an individual due to its visualised cosmetic appearance. Case Summary A 45-year-old female presented with complete loss of nail plate of the left middle finger for 1 month. At the first visit, homoeopathic medicine Tuberculinum bovinum was prescribed and the patient was followed up periodically for 4 months. A series of photographs captured at the first visit and in subsequent visits objectively document the gradual regrowth of her nail plate. Various aspects of her subjective improvement were documented by three validated outcome measurement scales. The patient herself assessed that, after 4 months of follow-up, she is ‘back to normal’ for her main complaint as well as for the overall well-being, which is documented as a +4 score in ‘Outcome in Relation to Impact on Daily Living’ (ORIDL) scale. The Dermatology Life Quality Index (DLQI) score was reduced from 20 at the first visit to 1 after 4 months of treatment. Modified Naranjo Criteria for Homeopathy (MONARCH) score recorded at the final visit (+8 in ‘-6 to +13’ scale) is suggestive of a high likelihood that the improvement in the patient can be attributed to the homoeopathic treatment provided. Conclusion This clinical case report is presented here to critically document the effect of individualised homoeopathic treatment in onycholysis within a plausible timeframe.

scholarly journals A Comparison of Full and Quasi Filters for Autobiographical Questions

Field Methods ◽  
2018 ◽  
Vol 30 (4) ◽  
pp. 371-385 ◽  
Author(s):  
Kristen Olson ◽  
Megumi Watanabe ◽  
Jolene D. Smyth
Keyword(s):  
National Health ◽  
Well Being ◽  
Item Nonresponse ◽  
Mail Surveys ◽  
Survey Questions ◽  
Using Data ◽  
Response Errors

Some survey questions do not apply to all respondents. How to design these questions for both eligible and ineligible respondents is unclear. This article compares full filter (FF) and quasi filter (QF) designs for autobiographical questions in mail surveys. Using data from National Health, Well-being, and Perspectives Study, we examine the effect of type of filter on item nonresponse rates, response errors, and response distributions. We find that QF questions are more confusing to respondents, resulting in higher rates of item nonresponse and response errors than FF questions. Additionally, FF questions more successfully identify ineligible respondents, bringing estimates closer to national benchmarks. We recommend that survey designers use FF designs rather than QF designs for autobiographical questions in mail surveys.

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