scholarly journals Living with intestinal stoma: the construction of autonomy for care

2013 ◽  
Vol 21 (2) ◽  
pp. 531-538 ◽  
Author(s):  
Débora Poletto ◽  
Denise Maria Guerreiro Vieira da Silva

OBJECTIVE: to investigate the care undertaken in the health services for people with intestinal stoma, from the perspective of articulating the actions proposed in the Amplified and Shared Clinic, with a view to promoting autonomy. METHOD: qualitative study. Participants: 10 people who received a stoma, and their family members. Data was collected between 10th January and 30th June 2011, through two semi-structured interviews. Analysis was through the stages: anxiety, synthesis, theorization and recontextualization. RESULTS: presented in the categories: (1) the need to carry out stoma care; (2) receiving health support and care after discharge from hospital; (3) returning to daily activities and social reinsertion. CONCLUSION: the study identified common factors which influence the process of development of autonomy and the relationship which health professionals have with this achievement.

2019 ◽  
Vol 16 (2) ◽  
pp. 238-268 ◽  
Author(s):  
Beatrice Venturin

The present study analyzes four adult Russian-Australian 1.5ers, heritage bilinguals whose first language is Russian, and who immigrated to Australia or New Zealand during their primary school years. Semi-structured interviews conducted with the case-study participants examined their attitudes toward their Russian, their L1, and English, their L2. The interviews explored the participants’ schooling history, language use, perceived language proficiency, dominance and use, perceived L1 attrition, and feelings about their identity. The aim of the study was to understand the connections between language, particularly L1 attrition, and identity for this cohort of 1.5 generation speakers, as well as factors that may influence their identity perception. The results emerging from the study’s data reconfirm the role played by language in identity construction. At the same time, they suggest that for 1.5ers the relationship between language and identity also needs to be considered in relation to L1 attrition. This factor, in fact, might contribute to identity conflicts and trigger the desire to return to one’s roots.


2020 ◽  
Author(s):  
Pamela Charlotte Jacobsen ◽  
Twinkle Choksi ◽  
Katherine Sawyer ◽  
Cassia Maximen ◽  
Emma Harding ◽  
...  

Objectives: Regular home practice is considered a core component of mindfulness groups and may be associated with better treatment outcomes. This study aimed to 1) review the existing evidence on how much home practice people do in Mindfulness for Psychosis groups, and 2) explore participants’ experiences of the barriers and facilitators to completing home practice in a Mindfulness for Psychosis group using a qualitative study.Methods: In study 1, we conducted a systematic review of Mindfulness for Psychosis studies and extracted data on home practice rates. In study 2, we conducted semi-structured interviews with people who had completed a Mindfulness for Psychosis group (N=5) as part of their routine community care, specifically focusing on experiences of home practice.Results: Out of twenty-two studies included in the systematic review, only 4 reported any data on amount of home practice, and none examined the relationship between completion of home practice and treatment outcomes. In the qualitative study, participants described home practice as being difficult but important. Arising themes were similar to findings from previous (non-psychosis) studies suggesting that generic challenges are common, rather than being specific to psychosis.Conclusions: We recommend that future Mindfulness for Psychosis studies record data on home practice rates, in order to investigate any association between home practice and treatment outcome. Our qualitative findings suggest home practice can be a valued part of a Mindfulness for Psychosis group, and a normalising approach could be taken when and if participants encounter common challenges.


Author(s):  
Joy Wee ◽  
Margo Paterson

This paper explores a conceptualization of how factors impact activities of daily living (ADL) and participation from the perspective of persons with disability. This study identified what, and how, factors perceived by participants affect their daily activities, to better inform reporting of scores obtained on measures of ADLs and participation such as the Barthel Index and the Participation Scale. Grounded theory methodology was used to conceptualize a model, employing semi-structured interviews guided by categories of the above measures. Eight themes emerged from 24 participants, resulting in conceptualization of the successful adaptation model, which demonstrates relationships amongst factors, activities, and participation. Health professionals can use this model to assist persons with disability achieve desired goals.


2020 ◽  
Vol 85 ◽  
pp. 03003
Author(s):  
Vida Gudzinskiene ◽  
Neringa Kurapkaitiene

The phenomenon of volunteering reveals itself through the time a person spends for volunteering, through the duration of the volunteering, the area in which volunteering occurs, and the age group of the volunteers. Object of the study – volunteering experiences of young adults. The issue of the research is how young adults experience volunteering in the social help field. The research is phenomenological and not focusing on any foreseen objectives, oriented to the experience of the volunteers. According to phenomenological approach, research methodology was Interpretative Phenomenological Analysis. In this article, part of the research is presented, giving deeper view on one of the super-ordinates theme, with the aim: to present change of control relation into the trust relationship with the Other in long term and full-time volunteering. In the study participated 6 research participants, 3 young men and 3 young women, 20 to 30 years old. To collect data of the research we used semi-structured interviews. Conclusions of the study, presented in this article, reveal: 1) The volunteers' experience of volunteering shows that the relationship of control in trying to fit the lives of met people into a personal imagination – what life should be like – changes through confrontation, surprise and even shock to discover authentic relationship of trust based no longer on appreciation but on intimacy and communion; 2) Hidden abilities of volunteers, new opportunities and self-disclosure are possible when a close relationship of trust is created; 3) Abandoning preconceptions about the Other and volunteering, the study participants changed the relationship of control to a relationship of trust. On that base, they began to volunteer in their environment without waiting for permission, instructions or other actions to legalize volunteering. As the relationship changed, as control shifted to a trust-based relationship with those around them, volunteers, realizing the experience, discovered the significance of volunteering, empowered by trust, and personal freedom and creativity; 4) The relativity of the study participants in volunteering was experienced dialogically, seeing the person and associating themselves with the person, and thus experiencing a constant interplay as ignorance, uncertainty, but at the same time as devotion and trust.


2018 ◽  
Vol 71 (suppl 1) ◽  
pp. 660-667 ◽  
Author(s):  
Marcela Gonçalves ◽  
Michely Aline Rodrigues do Prado ◽  
Simone Santana da Silva ◽  
Karen da Silva Santos ◽  
Priscila Norié de Araujo ◽  
...  

ABSTRACT Objective: To analyze the interference of leprosy in women’s life regarding work and daily life activities. Method: Exploratory qualitative study developed from semi-structured interviews and with the use of field diaries. The strategy of the organization of data was a thematic analysis of content and referential of the work process in health and gender. Results: The themes presented are: “The leprosy pains”, “Changes with the disease and adaptation at work and activities” and “Being a woman with leprosy”. On them, we present the aspects that changed in women’s life from the leprosy, especially regarding work and daily activities. Beyond physical limitation, there are impacts on social relations and above all on formal work, there may even be dismission. Final considerations: In women affected by leprosy, work and daily activities are directly affected; this deepens the social difficulties and requires attention of health professionals.


Author(s):  
Carla Janaina Figueredo

This article discusses the results of a four-year investigation on the neoliberal challenges faced by socioeconomically underprivileged students in Brazil who were majoring in English teaching. It is a qualitative study that employs the concept of language as a sociocultural and dialogical practice as well as the concepts of responsibility and agency; it also examines the relationship between these students’ experiences and neoliberalism as seen in language education. The data generated by questionnaires, students’ essays, and semi-structured interviews reveal that the participants’ initiatives to engage themselves in outside classroom interactions acted as counter-centralizing forces. By exercising their responsible situated agency towards their English language appropriation process, these participants react against neoliberal challenges viewed here as hierarchical centripetal forces that constrain their access to different kinds of capital. The study participants are also guided by the agency of spaces promoted by discourses marked by decolonial thinking; however, though these students find different ways to negotiate neoliberal challenges, it is still crucial that the faculty in charge of the investigated context build on existing decolonial practices in the classroom. In doing so, more students can become part of “discursive actions” that foster their responsible situated agency towards a more egalitarian society. 


2021 ◽  
Vol 57 ◽  
pp. 275-304
Author(s):  
Pedro E. Nahuat Cervera ◽  
◽  
Indira Angélica Estrada Riaño ◽  
Flor Peraza Romero ◽  
Michael Oswaldo Uitzil Collí ◽  
...  

The relationship between Mexican ethnic groups and wildlife is known by its use for nutritional and medicinal purposes. Particularly, in the Maya culture ornamental and ceremonial uses have been attributed to the fauna. Similarly, different beliefs, stories and legends have been developed around it. The studies conducted to document these relationships in the state of Yucatan are scarce; therefore this work was raised to determine the uses and beliefs of the wildlife in the Maya town of Zavala. 174 semi-structured interviews were conducted among men and women of different ages. The significant species were then divided into seven categories of use: food, medicine, pets, ornamental, ceremonial, mythical, and ominous. 54 species related with the worldview of the residents were identified, and divided into three classes, 20 orders, 38 families, and 54 genera. The birds were the most represented with 30 species, followed by Mammalia class with 19, and Reptilia with 5. Mammals were the group with the highest general use index. With this work, it was concluded that the inhabitants of Zavala preserve in their daily activities the ancestral uses and knowledge of the wildlife. Likewise, the information collected contributes to the knowledge of ethnozoology in Yucatán.


Author(s):  
Fernando Lefevre ◽  
Jorge Teixeira ◽  
Ana Lefevre ◽  
Lia Cardozo de Castro ◽  
Aracy Spínola

Aiming at identifying the relationship between the elderly patient facing drug prescription and health professionals, an exploratory and descriptive study of a qualitative cut was carried out using semi-structured interviews. To this end, the Collective Subject Discourse analysis technique was employed. Thirty elderly patients living in the urban area of Maring (Paran State, Brazil) were sampled. They were interviewed from February 25 to March 22, 1998 and selected from the Co-participatory pharmacy database of the Department of Pharmacy and Pharmacology, Universidade Estadual de Maring . The finding supplied eleven central Collective Subject ideas, with different discourses. The rich material provided by the study allows better understanding of the factual reality of the elderly facing drug prescription and their relationship with health professionals.


Author(s):  
S. V. Petrov

This article is devoted to the study of the relationship, mutual influence of team building and team leadership established by the author of the article, the competencies of leaders in the field of team building, leadership styles, including with regard to the process of forming and maintaining teams, are established that the process of creating an effective team is an integral part of the leader’s daily activities.


2020 ◽  

Background: The relationship between oral health and general health is gaining interest in geriatric research; however, a lack of studies dealing with this issue from a general perspective makes it somewhat inaccessible to non-clinical public health professionals. Purpose: The purpose of this review is to describe the relationship between oral health and general health of the elderly on the basis of literature review, and to give non-clinical medical professionals and public health professionals an overview of this discipline. Methods: This study was based on an in-depth review of the literature pertaining to the relationship between oral health and general health among the older people. The tools commonly used to evaluate dental health and the academic researches of male elderly people were also reviewed. And future research directions were summarized. Results: Dental caries, periodontal disease, edentulism, and xerostomia are common oral diseases among the older people. Dental caries and periodontal diseases are the leading causes of missing teeth and edentulism. Xerostomia, similar to dry mouth, is another common oral health disease in the older people. No clear correlation exists between the subjective feeling of dryness and an objective decrease of saliva. Rather, both conditions can be explained by changes in saliva. The General Oral Health Assessment Index (GOHAI) and the Oral Health Impact Profile (OHIP) are the main assessment tools used to examine oral health and quality of life in the older people. The GOHAI tends to be more sensitive to objective values pertaining to oral function. In addition, oral health studies in male elderly people are population-based cohort or cross-sectional studies, involving masticatory function, oral prevention, frailty problems, cardiovascular disease risk, and cognitive status. Conclusion: It is possible to reduce the incidence of certain oral diseases, even among individuals who take oral health care seriously. Oral health care should be based on the viewpoint of comprehensive treatment, including adequate nutrition, good life and psychology, and correct oral health care methods. In the future, researchers could combine the results of meta-analysis with the clinical experience of doctors to provide a more in-depth and broader discussion on oral health research topics concerning the older people.


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