scholarly journals PROBLEMS AND IMPROVEMENT WAYS OF MEDICO-SOCIAL ASSISTANCE TO THE DISABLED CHILDREN AT THE OUTPATIENT STAGE

Author(s):  
L. A. Zhdanova ◽  
Irina E. Boboshko ◽  
L. K. Molkova ◽  
N. K. Rogacheva

The article highlights the persistent problems of rehabilitation of children with health disorders and the necessity of improving assistance to the disabled children. The improvement of the efficiency of rehabilitation measures is possible by means of the optimization of both the inner and interagency integration in the organization of assistance to children with disabilities, a clear algorithm of collaboration and document circulation between specialists of the departments of children’s polyclinic and the Bureau of Medical Social Expertise, creation of individual integrated programs and raising the awareness of patients with the quality of assistance.

2021 ◽  
Vol 44 (2) ◽  
pp. 34-48
Author(s):  
Agota Giedrė Raišienė ◽  
Laura Gardziulevičienė

The phenomenon of the welfare state is characterized by complexity of indicators. To determine in which areas the country is closer to the welfare state, various areas of social policy are analysed. In this article, we set out to investigate one of them, i.e., the accessibility of social services for children with disabilities. The European Union ensures the basic preconditions for the well-being of children with disabilities and emphasizes the compatibility of health, social and educational services (European Commission, 2021). In addition, Member States are free to introduce specific measures for social inclusion (COM, 2021). The well-being of children with disabilities is inseparable from that of adults, usually the family in which the children live. Depending on the child’s disability, the family has to devote time to the child’s special needs, so opportunities to function in society, such as working and earning an income, become dependent on the social assistance received for the disabled child. Research shows that participation in labour market processes reduces the social exclusion of families with children with disabilities and improves quality of life indicators in general (Stefanidis & Strogilos 2020). However, analysis of good practice is more common, while information about the lack of services that parents face difficulties remains overboard. Thus, our research contributes to a better understanding of how families raising children with disabilities use state-provided social services and what solutions and measures are needed to improve the quality of life of children with disabilities and their relatives. The practical implications of our article are revealed through the possibility of more confidently shaping the decisions and measures of the welfare state.The article presents results of a survey of 68 families with disabled children. Our research was conducted in Druskininkai municipality which has typical infrastructure of social services for the disabled and their families in Lithuania.Our study has shown that social services in Lithuania poorly meet needs of families with disabled children. Though social inclusion is one of the most important features of the welfare state, the provision of social services to disabled and their families goes beyond the concept in Druskininkai municipality at least. Families have little information about social guarantees and support provided by the state and municipality. The families are limited to services reported by health care and education institutions. Moreover, the most significant problem hindering social integration of disabled and their families is a small portion of disabled children using services of day care centre. As a result, children suffer at risk of social exclusion while disabled children’s parents lack of opportunities to fully participate in the labour market.Based on the results of the study we state that increasing the availability of social services that meet the needs of families with disabled children is a necessary social policy solution, without which the development of a welfare state in Lithuania is hardly possible.


2003 ◽  
Vol 90 (6) ◽  
pp. 1097-1106 ◽  
Author(s):  
Aisha K. Yousafzai ◽  
Suzanne Filteau ◽  
Sheila Wirz

The aim of the present study was to explore the nature, extent and probable causes of nutritional deficiencies among children with disabilities living in Dharavi, a slum in Mumbai, India. A cross-sectional study was conducted to investigate whether the nutritional status of children with disabilities, aged 2–6 years (n141), was worse than that of non-disabled sibling controls (n122) and neighbour controls (n162). Data on food patterns, anthropometry, micronutrient status and feeding difficulties reported by parents were collected. The mean weight for age of the children with disabilities (−2·44 (sd 1·39)Zscores;n120) was significantly lower (P<0·05) compared with the sibling (−1·70 (sd 1·20)Zscores;n109) and neighbour (−1·83 (sd 1·290)Zscores;n162) control groups. The children with disabilities had significantly lower (P<0·05) mean haemoglobin levels (92 (sd 23) g/l;n134) compared with siblings (102 (sd 18) g/l;n103) and neighbours (99 (sd 18) g/l;n153). Relative risk (RR) analysis indicated that the disabled children with feeding difficulties were significantly more likely (P<0·05) to be malnourished, by the indicator of weight for age (RR 1·1; 95 % CI 1·08, 1·20) compared with the disabled children without a feeding difficulty. They were also significantly more likely to be malnourished using the indicators of height for age (RR 1·3; 95 % CI 1·19, 1·43) and weight for height (RR 2·4; 95 % CI 1·78, 3·23) compared with the disabled children without a feeding difficulty. Feeding difficulties were identified as a risk factor for vulnerability to inadequate nutritional status among children with disabilities.


2022 ◽  
Vol 2 (3) ◽  
pp. 14-25
Author(s):  
Marek Kawa

The last decades in Polish society have been seen not only an increase in empathy and outlining needs for families and children with disabilities or deficits, but also economic improvement of families, which enables tourist or rehabilitation trips at least once a year. The growing needs and good practices for disabled children and adults also contributed to the greater awareness of the people managing of tourist centers in Poland, who are increasingly trying to propose within their offer to such groups, not traveling so far. This brief study tries to provide in a condensed way to propose good practices and experiences to meet the problems of families traveling with disabled children or adults in Poland.


Author(s):  
I.V. Pestova ◽  
N.A. Guryanova ◽  
M.S. Sergeeva ◽  
S.V. Kuzevanova

The article considers practical and organizational aspects that must be observed when examining the conditions of education for children with disabilities. These conditions should have their own specifics and comply with the recommendations of the Psychological, Medical and Pedagogical Commission (PMPC). The presented materials are practical and applied developments of specialists of the Center of Psychological, Pedagogical, Medical and Social Assistance “Lado”. They are used by the experts of the Commission when monitoring the activities of psychological and pedagogical councils of educational organizations on the territory of Polevskoy city. The purpose of the monitoring is to assess the extent to which the PMPC recommendations are taken into account in the work of the councils. The article also reveals the potential of the examination procedure as a systemic analysis aimed at assessing — in a particular institution — the quality of special conditions necessary for the education of children with disabilities and increasing the effectiveness of their psychological and pedagogical support.


2020 ◽  
Vol 71 (8) ◽  
pp. 271-283
Author(s):  
Bianca Larisa Holhos ◽  
Simona Bungau ◽  
Delia Mirela Tit ◽  
Cosmin Mihai Vesa ◽  
Tapan Behl ◽  
...  

Refractive errors are the most prevalent ocular disorders in paediatric ophthalmology having a higher occurrence in children with disabilities. This paper evaluated the refractive status of the disabled children and identified the influence of Vitamin D on this status. The study group was represented by 160 children (80 clinically healthy � group 0, 80 having different physical and/or mental disabilities � group 1) with ages between 5-16 years old, ophthalmologically examined between January 2019-January 2020. The prevalence of refractive errors was analysed according to the blood level of Vitamin D; the prevalence of the identified refractive errors was 35% in the group of children with disabilities (16% myopia, 14% astigmatism, 5% hyperopia) and 36% in the group of clinically healthy children (16% astigmatism, 10% myopia, 10% hyperopia). In group 1, an acceptable level (20-30 ng/mL) of Vitamin D was found in 61.54% of children with myopia, 25% in those with hyperopia, and 18.18% in those with astigmatism, the rest showing insufficiency of Vitamin D. Both children with disabilities/clinically healthy shown ocular refractive errors, the difference between the two groups being statistically insignificant (1%). The presence of Vitamin D in the blood in normal or insufficient levels suggests a strong correlation of its levels with the appearance of ocular refraction disorders.


2020 ◽  
Vol 19 (3) ◽  
pp. 58-66
Author(s):  
G.V. Zayarskaya ◽  
◽  
A.Yu. Fodorya ◽  
A.O. Revutskaya ◽  
◽  
...  

the article analyzes and summarizes the experience of GAUK “MOSGORTUR” in the preparation and organization of inclusive shifts in children’s health camps. To assess the quality of organization of inclusive shifts and develop practical recommendations aimed at further development of inclusive children’s recreation, the study used monitoring of preparation and conduct of inclusive shifts, a sample survey of parents and legal representatives of children with disabilities and children with disabilities, analysis of diaries of counselors and reports of administrative and teaching staff of children’s camps, an expert survey of representatives of the professional community. The educational environment of the inclusive change of the children’s camp becomes one of the means of socialization of disabled children and children with disabilities, their socio-cultural adaptation, career guidance, and overcoming social isolation.


Retos ◽  
2015 ◽  
pp. 193-196
Author(s):  
Emmanouil K Skordilis

The study examined the quality of life (QoL) of parents with disabled children in Greece. Further, the relationship between QoL with depressive symptoms and involvement in physical activity were reported as well. The total sample constituted from 73 parents (Mean age = 42.87 years, SD = 7.58), classified to 42 parents of children with disabilities and 31 parents of children without disabilities (control group). The participants responded to the Beck Depression Inventory II (BDI-II) (Beck, Steer & Garbin, 1996), the QoL SF36v2 scale (Ware et al., 2007), and the Self Administered Physical Activity Checklist (SAPAC) (Sallis, Strikmiller, Harsha, & Feldman, 1996). The multivariate (lambda = .99, F = .35, p = .70, eta2 = .01) and univariate comparisons between the two parental groups did not reveal significant differences in the physical (PCS) and mental components (MCS) of the SF36v2. The QoL was significantly related to the depressive symptoms, while the involvement in physical activity was not related to QoL. On the other hand, parents of children with disabilities had less sedentary behaviors compared to the control group. The overall findings are discussed in line with relevant studies examining the QoL of families with disabled children.Keywords. Quality of Life, depression, physical activity, parents, disability.Resumen. Este estudio examinó la calidad de vida (QoL) de los padres de niños discapacitados en Grecia. Además, se reporta la relación entre la calidad de vida y los síntomas depresivos y de la participación en actividades físicas. El total de la muestra estuvo constituida por 73 padres (edad promedio = 42.87 años, DE = 7.58), clasificadas en 42 padres de niños con discapacidad y 31 padres de niños sin discapacidad (grupo control). Los participantes respondieron el Inventario de Depresión de Beck II (BDI-II) (Beck, Steer & Garbin, 1996), la escala QoL SF-36 v2 (Ware et al., 2007), y el Self Administered Physical Activity Checklist (SAPAC) (Sallis, Strikmiller, Harsha, & Feldman, 1996). Las comparaciones multivariadas (lambda = .99, F = .35, p = .70, eta2 = .01) y univariadas entre los dos grupos de padres no mostró diferencias significativas en los componentes físicos (PCS) y mentales (MCS) de la escala SF-36. La QoL se relacionó significativamente con síntomas depresivos, mientras que la participación en actividades físicas no estuvo relacionada con la QoL. Por otra parte, los padres de los niños con discapacidad tuvieron menos comportamientos sedentarios comparados con los padres del grupo control. Los resultados generales se discuten en línea con los estudios pertinentes que examinan la calidad de vida de las familias con niños discapacitados.Palabras claves. Calidad de vida, depresión, actividad Física, padres, discapacidad


2020 ◽  
Vol 18 (4) ◽  
pp. 72-84
Author(s):  
I. E. Kupriyanova ◽  
B. A. Dashieva ◽  
I. S. Karaush

The aim is to identify the priority directions for preventing mental disorders in disabled children following a comprehensive analysis of clinical, social, psychological, ethnic and cultural characteristics over 2009– 2017. Materials and methods. 2,204 people were included in the study: disabled children, students of remedial schools aged 7–18 years old (n = 834); parents of disabled children (n = 772); teachers working in various educational facilities (n = 217); respondents of the survey identifying people’s attitude towards children with disabilities (schoolchildren, students, adults, n = 381). Clinical, psychological and statistical methods were used in the study. To identify depression and anxiety in children, Children’s Depression Inventory (CDI), Childhood Myositis Assessment Scale (CMAS), PedsQL inventory, survey on coping strategies (E. Heim) and adapted questionnaires for suicidal risk and alexithymia were used. For adult participants, the Quality of Life Scale, Hamilton Anxiety Rating Scale, Hospital Anxiety and Depression Scale (HADS), and a questionnaire identifying the attitude towards children with disabilities were applied.Results. A high prevalence of mental disorders in children with disabilities (62.7–95.2%) was identified, and the levels of anxiety, suicidal risk, alexithymia were determined. Children’s families were characterized by impaired structure (50%), parenting styles resulting in pathologies (71.5%), low income level (60%), low qualifications of parents and unemployment (13%), alcohol abuse (17.6%), victimized attitudes and low satisfaction with the psychological criteria of quality of life, combined with low level of anxiety. For teachers, the levels of anxiety and depression and signs of burnout were revealed, and the features of their interaction with disabled children in the educational process were described. The attitude of different social groups to children with disabilities was studied. The methodological conditions for carrying out research and organizing medical and psychological care were formulated.Conclusion. Prevention of mental disorders in disabled children includes identification of early signs of anxiety, depression, suicidal risk and assessment of the quality of life and work. This is ensured by a reasonable choice of research methods, psychosocial rehabilitation with involvement of beloved people, and increase in the tolerance level towards children with disabilities in the society. 


2021 ◽  
Vol 8 (1) ◽  
pp. 573-583
Author(s):  
R. Adatuu ◽  
G. Gyader

This study explored the role NGOs’ play in educating children with disabilities in the Builsa North District of Ghana. A cross-sectional survey approach was applied in the study. The sample size was 150 respondents (75 male and 75 female) for the questionnaire. A mixed method approach involving questionnaires, key informant interviews and focus group discussions were the main instruments used for data collection. The data was analyzed quantitatively and qualitatively. The questionnaire was answered by 150 respondents, 72 respondents answered the focus group questions while eight (8) respondents answered the key informant interview questions. The schools, parents/guardians of children with disabilities, foster homes and NGOs that support the education of children with disabilities were visited for the questionnaire administration. The study realized children with disabilities face discrimination and marginalization in accessing education in the district. Thus, some NGOs support the education of children with disabilities by recruiting and sending them to school as well as providing teaching and learning materials, feeding the disabled children, capacity building as well as caring and showing love for the disabled children. The challenges militating against children with disabilities in their bid to access education were: lack of special educational infrastructure; stigmatization by school mates, teachers and parents; and their inability to move from home to school and back. The study concludes that children with disabilities have the desire to be educated. The study recommends the provision of a disabled children school in the district. Government should formulate legislations against stigmatization and discrimination of disabled children.


Sign in / Sign up

Export Citation Format

Share Document