scholarly journals P626 Patients with IBD seek extra supportive care: insights from Israeli social media networks

2020 ◽  
Vol 14 (Supplement_1) ◽  
pp. S518-S518
Author(s):  
G SHARVIT ◽  
I Goren ◽  
L Godny ◽  
K Yadgar ◽  
S Elial Fatal ◽  
...  

Abstract Background Social Media (SM) networks are a major communication tool for patients with inflammatory bowel diseases (IBD) and healthcare professionals (HCPs). In Israel there are several SM platforms, some guided by HCPs while others are patients closed members groups. The largest HCP- patients network is called ‘Camoni’ (‘like me’). We aimed to assess topics of patients’ interest by exploration through SM. Methods This study had two phases: I –a qualitative study to assess topics of patients’ interest- screening. Posts of patients with IBD on ‘Camoni’ were evaluated by thematic analysis: identifying patterned meaning, coding based on topic, and categorising major groups. II - an anonymized survey was distributed online through SM networks. The survey was based on the identified topics in the screening, asking the participants to elect and delve only on the five most relevant topics. Satisfaction was assessed by visual analogue scales (VAS) of 0–100 points. Results Screening included 2,123 posts published on Camoni between 2014–2019. The analysis revealed 18 different topics (Figure 1). The online survey was launched on November 2019 and had 329 responders: male 47.9%, age 38 years (IQR 29–51), disease duration 10 years (IQR 4–20), active disease 43%, using medications 80.9%: steroids 8.9%, anti-TNFs 31.6%, anti-integrins 9.1%, ustekinumab 4.6%, tofacitinib 2.1%. Crohn’s disease 63.4%, perianal disease 40.8%, extraintestinal manifestations 27%, history of surgery 36.4%, care in hospital outpatient clinics 67.8%. The distribution of satisfaction VAS scores was asymmetric with skewness to the right (Figure 3). Median (IQR) for general satisfaction of the treating physician - 87.5 (73–99), accessibility to HCPs - 77.5 (48.5–92), HCP professionalism 90 (75–99), degree of understanding patients’ concerns 81 (51–96), effectiveness of communication with HCPs 81 (59.7–96). The first five elected-topics of interest were: diet, lifestyle, complementary and alternative medicine, interpretation of medical results, and referral of patients to specialists and reviews (Figure 2). Most responders (85.1%) prefer to be active on an SM network that is guided by HCPs; however,, only 22% of online survey responders were active on Camoni. Conclusion Patients with IBD with a significant disease burden are highly satisfied from conventional care. However, patients are still in need for further support and information, perceived as not being addressed in the conventional setting. An operative multidisciplinary setting in routine care, incorporating dietitians, IBD-nurses and HCP’s focusing on alternative and complementary medicine is advised.

2021 ◽  
Vol Publish Ahead of Print ◽  
Author(s):  
Idan Goren ◽  
Gal Sharvit ◽  
Lihi Godny ◽  
Sarine E. Fatal ◽  
Revital Barkan ◽  
...  

PLoS ONE ◽  
2021 ◽  
Vol 16 (9) ◽  
pp. e0257193
Author(s):  
William Peraud ◽  
Bruno Quintard ◽  
Aymery Constant

Background The aim of this research was to investigate the impact of the first COVID-19 lockdown (March 17th—May 11th 2020) on violence against women in France. Methods A prospective survey was conducted online between April 2th 2020 and July 5th 2020. Female respondents were recruited from social media networks using the snowball sampling method. Data were collected three times: during (2–19 April) and at the end (11–25 May) of the first lockdown, and following the first lockdown (20 June– 05 July). Sociodemographic variables, lockdown living conditions, financial impact of COVID, and history of psychiatric disorder were evaluated, together with changes in psychological distress over the lockdown period, and the risk of being assaulted post lockdown. Results Psychological distress was elevated and remained stable for most of the 1538 female respondents during lockdown. More than 7% of women were affected by physical or sexual violence post lockdown. Unwanted sexual contact accounted for the majority of abuse, but physical and sexual assault were also prevalent. The risk of being abused was higher for participants who had changed anxiety/insomnia symptoms over the lockdown period, and a history of abuse. Discussion Women who experienced changes in anxiety/insomnia symptoms during the COVID-19 lockdown were at higher risk than others of being assaulted post lockdown, especially when they were already socially vulnerable. While social and psychological factors accounting for these changes warrant further investigation, communication and preventive measures during pandemics should include initiatives tailored to women more vulnerable to violence.


Society ◽  
2020 ◽  
Vol 8 (1) ◽  
pp. 83-93
Author(s):  
Muhammad Saud ◽  
Rachmah Ida ◽  
Ansar Abbas ◽  
Asia Ashfaq ◽  
Araz Ramazan Ahmad

Digitalization in the modern era has provided opportunities for the youths to participate in this information and social spheres. The concentrated use of social media has contributed to the astonishing factor among the voters where social media has changed the preferences of youths toward the right to vote. The research aims to investigate the contributions and preferences of youths toward political participation in the contemporary discussion in Indonesia. This research was quantitative research using a purposive random sampling technique to give equal opportunity to each respondent. The mode of data collection was an online survey. The majority of the respondents in this research were the student of the universities. Data were collected in April 2019 to examine the interest of youths in general elections in Indonesia. This research found that social media and Social Networking Sites (SNSs) have provided a unique platform to discuss political matters and ‘take apart’ in political discussions. Existing in-depth researches on this phenomenon show that political awareness among youths in Indonesia is an essential part and social media is the leading indicator. This research suggested some recommendations for to usage of social media for the socialization of youths.


2021 ◽  
Vol 156 (Supplement_1) ◽  
pp. S60-S60
Author(s):  
R Ramanarasimhaiah ◽  
B Chae ◽  
M Toprak ◽  
L M Opitz ◽  
H Wu

Abstract Introduction/Objective Filiform polyposis (FP), also referred as inflammatory polyposis or pseudopolyposis, is an uncommon benign entity usually diagnosed in patients with history of Crohn’s disease, ulcerative colitis, interstitial tuberculosis or histiocytosis X. It is characterized by multiple finger-like mucosal projections/pseudopolyps seen more commonly in transverse and descending colon. Pathogenesis of FP is uncertain but it is hypothesized to be reactive process to chronic inflammation leading to formation of fingerlike projections. The term filiform polyposis was coined in 1974 by Appleman HD and his collegues to describe numerous long slender worm-like (filiform) colonic lesions seen in radiographs. Herein, we are going to present a case of FP diagnosed in a 20-year-old male with history of medically refractive ulcerative colitis. Methods/Case Report The patient is a 20-year-old male, with a history of medically refractive ulcerative colitis on systemic steroids and vedolizumab. He underwent sigmoidoscopy and colonoscopy which reveals multiple pedunculated, polypoid lesions, ranging from 0.5 to 3 cm in length with white tips (cap of purulent mucous). Patient underwent total abdominal colectomy with end ileostomy. The specimen received by our deparment consist of a segment of right colon (63 cm in length, 3.5 cm in diameter) with attached ileum (3 cm in length, 2 cm in diameter) and appendix (6 cm in length, 0.8 cm in diameter). The part of the right colon is constricted/strictured measuring 24 cm in length, 2 cm in diameter. Opening reveals numerous (>100) pedunculated, finger-like polypoid lesions measuring from 0.3 cm to 2 cm in length. The lesions involve the entire right colon including distal colonic surgical margin. Appendix and ileum are not involved by the lesion and grossly unremarkable. Microscopic evaluation of the lesions reveal acute and chronic inflammatory cells, granulation tissue, areas of necrosis and reactive changes with focal mucosal atrophy consistent with chronic ulcerative colitis. Results (if a Case Study enter NA) NA Conclusion Filiform polyposis (FP) is an uncommon benign entity commonly seen in association with Inflammatory Bowel Diseases. Diagnosing FP requires comprehensive gross and microscopic examination as well as review of clinical history and imaginig studies. Because of its uncommon nature, we recommend to report this entity to raise awareness and to educate the pathologists who have not diagnosed it before.


2014 ◽  
Vol 26 (2) ◽  
pp. 80-96 ◽  
Author(s):  
Gergely Szolnoki ◽  
Dimitri Taits ◽  
Moritz Nagel ◽  
Alessio Fortunato

Purpose – This paper aims to conduct two studies to investigate the use of social media tools by wineries in Germany and assess the impact of Facebook membership on customers by comparing them with customers who were not members. Today, a vast number of books and studies are being published about social media in general, but less is known about their usage and effectiveness in the wine industry. Design/methodology/approach – The first study was conducted among 321 German wineries. It focused on the attitudes and preferences of the winemakers regarding social media, and it analysed the daily use of this new communication tool. The second study took place in August 2012, and it set out to define the value that accrued to a winery from having Facebook fans. This analysis was based on an online survey with customers of the winery as well as on a comparative analysis of the buying patterns of customers who were Facebook fans and those who were not. The analysis compared the turnover from the purchases of both groups over a period of three years. Findings – It was determined that 60 per cent of German wineries did communicate with their customers using social media. Facebook was the most important social media channel, followed by Twitter and YouTube. Of the winemakers interviewed, 40 per cent planned, in the near future, to implement additional activities involving social media. The consumer study proved that Facebook fans had a higher turnover compared to the non-Facebook fans of the winery studied. This finding emphasises the loyalty of Facebook fans. In addition, the study revealed that Facebook fans are open to receiving sales offers from the company which they support. Practical implications – Winery owners should be aware of the effectiveness of this modern communication tool. This is not only because Facebook fans generate a much higher turnover but also because of the possibility that they are interested in additional special offers on Facebook, which could mean an expansion of the available sales channels. Originality/value – To our knowledge, this kind of overview about the Germany wine sector as well as about the value of a Facebook-fan of a winery has not yet been undertaken.


2018 ◽  
Vol 19 (4) ◽  
pp. 396-414 ◽  
Author(s):  
Sunil Hazari

Purpose Using the context of Rio Olympic games, the purpose of this paper is to investigate attitude toward sponsorship outcome as it relates to purchase behavior, gender, sponsor patronage, sports enthusiasm, and social media consumption. Design/methodology/approach Data were collected using an online survey of 265 participants. Questions regarding demographics, viewing habits, sports participation, enthusiasm, attitude toward Olympic events were included in the survey. The four sub-scales were sponsorship attitude, sponsor patronage, social media consumption, and sports enthusiasm. Findings The findings of the study showed that social media consumption is positively related to attitude toward event and sports patronage. There was a significant gender difference on attitude toward event, social media consumption, and sports enthusiasm. Predictors for making a purchase as a result of seeing a social media advertisement were gender, playing competitive sport, and social media consumption. Practical implications This study will add to the body of academic and practitioner research on sponsorship outcomes, and provides an opportunity for marketers to leverage social media networks for sponsorship communication. Originality/value As the use of social media networks has increased over the past few years, no previous study has investigated association of sports enthusiasm, gender, or social media consumption toward sponsor patronage which relates to consumers seeking out sponsors and being influenced to make a purchase as a result of marketing communication of sponsors.


2021 ◽  
Vol 18 (1B) ◽  
pp. 53-86
Author(s):  
Abderrahmane Azzi ◽  
Suhad Samman

Abstract: The study examines how Saudi young women express their aspirations through social media networks such as Snapchat, Instagram and Twitter. It focuses on four areas of interests: 1- Gender equality which includes Saudi young women’s views on equality in job opportunities and employment in government and private sectors; 2- Freedom which includes freedom of lifestyle, traveling and education; 3- Independence which includes identity and the sense of individualism; and 4- Discussion of public issues which includes the right to vote and discuss public issues in society. The survey involves high school and university young women selected randomly and purposively in four cities in Saudi Arabia. The survey results show that that young Saudi women favor social media as a means of expressing their concerns on the four issues under study. Keywords: Women Studies, Gender Equality, Freedom, Independence, Discussion of Public Issues, Saudi Young Women, Social Media use.


2021 ◽  
Vol 75 (3) ◽  
pp. 386-406
Author(s):  
Pishtiwan Jalal ◽  
Ariel I. Ahram

This article examines the history of Salafism within the Kurdistan Region of Iraq using interviews, archives, social media, and an online survey. Despite Salafism and nationalism generally being seen as rival political ideologies, Kurdish Salafis have over the last decade increasingly linked their sectarian struggle to the Kurdish ethno-nationalist cause. Such efforts provide new understandings both of Salafism and of Kurdish nationalism while also potentially destabilizing the alliance between Kurdish nationalist and Shi'i sectarian parties that has governed Iraq since 2003.


2015 ◽  
Vol 85 (6) ◽  
pp. 1035-1041 ◽  
Author(s):  
Kristin L. Nelson ◽  
Bhavna Shroff ◽  
Al M. Best ◽  
Steven J. Lindauer

ABSTRACT Objective:  To (1) assess orthodontic patient and practitioner use of and preferences for social media and (2) investigate the potential benefit of social media in marketing and communication strategies in orthodontic practices. Materials and Methods:  A survey was developed and randomly distributed to orthodontists via the American Association of Orthodontists and to patients/parents via private practices throughout the United States. Participants were asked to answer questions related to their use of social media and their perceptions of the use of social media in the orthodontic practice. Results:  Of the participants, 76% of orthodontists and 89% of patients/parents use social media. Furthermore, Facebook was the social media platform that was most preferred. Social media use was more common in female and younger adult participants. Orthodontists posted information more often in the morning (40%) and afternoon (56%), and patients/parents used social media mainly in the evening (76%). The most commonly used marketing strategies in the orthodontic practices were social media (76%) and a practice website (59%). Social media and practice websites were positively related with new patient starts (P  =  .0376, P  =  .0035, respectively). Conclusions:  Most orthodontists and patients/parents used social media. Social media may be an effective marketing and communication tool in an orthodontic practice.


Author(s):  
Pablo Lara-Navarra ◽  
Hervé Falciani ◽  
Enrique A. Sánchez-Pérez ◽  
Antonia Ferrer-Sapena

Comments and information appearing on the internet and on different social media sway opinion concerning potential remedies for diagnosing and curing diseases. In many cases, this has an impact on citizens’ health and affects medical professionals, who find themselves having to defend their diagnoses as well as the treatments they propose against ill-informed patients. The propagation of these opinions follows the same pattern as the dissemination of fake news about other important topics, such as the environment, via social media networks, which we use as a testing ground for checking our procedure. In this article, we present an algorithm to analyse the behaviour of users of Twitter, the most important social network with respect to this issue, as well as a dynamic knowledge graph construction method based on information gathered from Twitter and other open data sources such as web pages. To show our methodology, we present a concrete example of how the associated graph structure of the tweets related to World Environment Day 2019 is used to develop a heuristic analysis of the validity of the information. The proposed analytical scheme is based on the interaction between the computer tool—a database implemented with Neo4j—and the analyst, who must ask the right questions to the tool, allowing to follow the line of any doubtful data. We also show how this method can be used. We also present some methodological guidelines on how our system could allow, in the future, an automation of the procedures for the construction of an autonomous algorithm for the detection of false news on the internet related to health.


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