Needs and Self-Care Efficacy for Cancer Patients Suffering from Side Effects of Chemotherapy

Background and Aim. Cancer is the leading cause of death in economically developed countries and is a threat to human lives. Cancer and chemotherapy side effects may affect the daily activity of cancer patients and their families on many levels confronted by changes in health status and lifestyles, leading to impaired self-care efficacy. Objective. To assess the needs and self-care efficacy for cancer patients suffering from side effects of chemotherapy. A descriptive cross-sectional design was conducted. A purposive sample of 150 adult cancer patients undergoing chemotherapy during the period from January to June 2020 was studied at the Oncology Outpatients Clinic at Al Rantisi Hospital in Gaza Strip. Tools. Tools of the study involved the following: structure interviewing questionnaire, patient assessment needs’ tool, and self-care activity for side effects of chemotherapy; Part I: assessment of self-care efficacy and Part II: assessment of physical, psychological, social, and spiritual needs of patients and activity of daily living. The findings of this study indicated that, concerning the duration of illness, 44.5% of studied patients started complaining of symptoms of cancer for about two years, and more than one-third of them, 69.3%, started chemotherapy more than one year ago. More than half of the studied patients, 55.3%, had poor knowledge about cancer, side effects of chemotherapy, how to manage these side effects, and level of self-care efficacy. The majority of studied subjects, 87.3%, had a financial burden, and nearly two-thirds of patients, 61.3%, need reassurance to cope with illness. There was high statistical significance between self-care efficacy and daily living activity. Regarding physical problem, the most affected systems were the gastrointestinal and the dermatological system. Also, the majority of patients were independent in walking, dressing, toileting, and feeding, but more than two-thirds of them needed assistance toward the ability to handle finance, shopping, housekeeping, food preparation, and travelling.

Download Full-text

Out-of-Pocket Costs and Perceived Financial Burden Associated with Prostate Cancer Treatment in a Quebec Remote Area: A Cross-Sectional Study

Current Oncology ◽

10.3390/curroncol28010005 ◽

2020 ◽

Vol 28 (1) ◽

pp. 26-39

Author(s):

Abir El-Haouly ◽

Anais Lacasse ◽

Hares El-Rami ◽

Frederic Liandier ◽

Alice Dragomir

Keyword(s):

Prostate Cancer ◽

Cancer Patients ◽

Financial Burden ◽

Cross Sectional Study ◽

University Education ◽

School Level ◽

Sectional Study ◽

Cross Sectional ◽

Perceived Burden ◽

Out Of Pocket Costs

Background: In publicly funded healthcare systems, patients do not pay for medical visits but can experience costs stemming from travel or over-the-counter drugs. We lack information about the extent of this burden in Canadian remote regions. This study aimed to: (1) describe prostate cancer-related out-of-pocket costs and perceived financial burden, and (2) identify factors associated with such a perceived burden among prostate cancer patients living in a remote region of the province of Quebec (Canada). Methods: A cross-sectional study was conducted among 171 prostate cancer patients who consulted at the outpatient clinic of the Centre Hospitalier de Rouyn-Noranda. Results: The majority of patients (83%) had incurred out-of-pocket costs for their cancer care. The mean total cost incurred in the last three months was $517 and 22.3% reported a moderate, considerable or unsustainable burden. Multivariable analysis revealed that having incurred higher cancer-related out-of-pocket costs (OR: 1.001; 95%CI: 1.001–1.002) private drug insurance (vs. public, OR: 5.23; 95%CI: 1.13–24.17) was associated with a greater perceived financial burden. Having better physical health-related quality of life (OR: 0.95; 95%CI: 0.913–0.997), a university education (vs. elementary/high school level, OR: 0.03; 95%CI: 0.00–0.79), and an income between $40,000 and $79,999 (vs. ≤ $39,999, OR: 0.15; 95%CI: 0.03–0.69) were associated with a lower perceived burden. Conclusion: Prostate cancer patients incur out-of-pocket costs even if they were diagnosed many years ago and the perceived burden is significant. Greater attention should be paid to the development of services to help patients manage this burden.

Download Full-text

Perawatan Diri Pada Pasien Gagal Jantung

JURNAL PENDIDIKAN KEPERAWATAN INDONESIA ◽

10.17509/jpki.v4i2.13443 ◽

2018 ◽

Vol 4 (2) ◽

Author(s):

Dwi Prihatiningsih ◽

Tiwi Sudyasih

Keyword(s):

Heart Failure ◽

Care Management ◽

Financial Burden ◽

Self Care ◽

Chi Square ◽

Cross Sectional ◽

Low Frequencies ◽

Heart Failure Patients ◽

Failure Index ◽

Care Behavior

ABSTRAKGagal jantung merupakan salah satu penyakit kardiovaskuler yang paling sering terjadi di seluruh dunia yang mengakibatkan tingginya angka mortalitas, morbiditas dan juga berdampak secara finansial terutama bagi lanjut usia. Rehospitalisasi merupakan masalah umum yang sering terjadi pada pasien gagal jantung yang sebagain besar disebabkan oleh keterlambatan dalam pengenalan gejala, pengobatan dan ketidakpatuhan diet serta kurangnya pengetahuan dan keterampilan dalam melakukan perawatan diri. Panduan penanganan gagal jantung menekankan pentingnya perilaku perawatan diri untuk menurunkan kekambuhan dan rehospitalisasi pada pasien gagal jantung. Penelitian ini bertujuan untuk menggambarkan perilaku perawatan diri pada pasien gagal jantung yang mengunjungi poliklinik jantung di RSUD Panembahan Senopati Bantul. Penelitian ini merupakan penelitian deskriptif quantitatif dengan menggunakan pendekatan cross sectional. Sampel berjumlah 74 responden yang merupakan pasien rawat jalan di poliklinik jantung pada bulan Juni hingga Juli 2018. Alat ukur yang digunakan adalah Self-Care of Heart Failure Index (SCHFI), (skor ≥70 poin=adekuat). Uji statistik chi-square digunakan untuk mengetahui hubungan antara factor sosiodemografi dengan perilaku perawatan diri pada pasien gagal jantung. Hasil penelitian ini menunjukkan bahwa perilaku perawatan diri pada sebagian besar responden masih belum adekuat dengan frekuensi perilaku perawatan diri adekuat yang masih rendah (pemeliharaan: 45±13.1 (7.7%), pengelolaan: 46±20.4 (13.0%) dan kepercayaan: 69±16.5 (38.5%)). Hanya satu faktor yaitu penyakit penyerta yang berhubungan dengan perilaku perawatan diri pada pasien gagal jantung pada dimensi kepercayaan diri. Hasil penelitian ini menunjukkan bahwa sebagian besar responden memiliki perilaku perawatan diri yang tidak adekuat seperti juga pada negara-negara lainnya sehingga diperlukan upaya untuk meningkatkan perilaku perawatan diri pada pasien gagal jantung. ABSTRACTHeart failure (HF) is one of the most prevalent cardiovascular diseases in the world which associated with significant mortality, morbidity, and huge financial burden, particularly among aging population. Rehospitalization remain a concern in the care of the heart failure patient which largerly associated with delay in symptoms recognition, treatment, diet non-compliance and also lack of knowledge and skills in heart failure self-care. Guideline on HF emphasize the important of self care in preventing symptoms and hospital readmission. This study aims to describe self-care behavior in a sample of heart failure patients. This is a descriptive cross-sectional study with non-probabilistic sample of 74 in an out-patient heart clinic from June-July 2018. Self-care was measured using the Self-Care of Heart Failure Index (SCHFI), (scores ≥70 points=adequate self-care). Chi-square test was conducted to test whether participant’s characteristics associated with self-care behavior among heart failure patients in three scales. The result shows that self-care was inadequate in most scales (self-care maintenance: 43.4±11.8, self-care management: 49.4±18.5 and self-care confidence: 68,6±14.5. Low frequencies of participants with adequate self-care also observed in the study (self-care maintenance: 5.4%, self-care management: 15.4%) and self-care confidence: 36.5%)). In self-care confidence subscale, higher scores of the SCHFI were associated with no comorbid conditions (p=0.01). None of the sociodemographic and clinical characteristics of the sample were associated with increased self-care in other 2 sub-scales. In conclusion, study shows that self-care in HF is inadequate, interventions aimed at improving self-care espescially in self-care maintenance sub-scale are greatly needed. Additional studies are needed to determine the best approach for this.

Download Full-text

Burden of Visits for Treating Side Effects of Chemotherapy or Radiotherapy in Cancer Patients.

Blood ◽

10.1182/blood.v108.11.5518.5518 ◽

2006 ◽

Vol 108 (11) ◽

pp. 5518-5518

Author(s):

David H. Henry ◽

Shawn M. Wade ◽

Mariana Servin ◽

William Hershfield

Keyword(s):

Side Effects ◽

Healthcare Professional ◽

Cancer Patients ◽

Full Time ◽

Cross Sectional Survey ◽

Cross Sectional ◽

Part Time ◽

Receive Treatment ◽

Doctor's Office ◽

To Receive

Abstract INTRODUCTION: The time incurred in seeking care for the treatment of side effects of chemotherapy (CT) or radiotherapy (RT) can result in lost productivity and resulting lost wages for cancer patients (pts) and their caregivers. The purpose of this study was to assess the amount of time spent by pts and caregivers to seek treatment for side effects of CT/RT and to examine productivity losses associated with such visits. METHODS: A cross-sectional survey was conducted from April to May 2006 using a random sample of pts from a chronic illness panel of 550,233 pts. Inclusion criteria were being at least 18 years of age, diagnosed with cancer, and receiving CT and/or RT either currently or during the 12 months prior to participating in the study. Percentages and means were used to calculate descriptive statistics. RESULTS: A total of 1,569 cancer pts were surveyed: 1,302 pts online and 267 pts by telephone. No significant differences were found between phone and online respondents. Of the pts currently receiving CT and/or RT (N=814), a total of 249 pts received treatment for side effects of CT/RT. The total time spent per visit to receive treatment for side-effects of CT/RT was approximately 5 hrs/visit including preparation time, travel time, and time spent at the clinic. Approximately one-half (54%) of the 249 patients currently receiving treatment for side effects of CT/RT were employed full-time (44%) or part-time (10%). Among employed patients currently receiving treatment for side effects of CT/RT, the mean number of work days missed as a result of visits for the treatment of CT/RT related side effects was 20 days per year. The primary reason for continuing to work during cancer treatment was financial need, reported by 59% of patients. Approximately 83% of all patients indicated that a caregiver generally accompanied them on their visits to the doctor’s office, clinic, or hospital to receive treatment for side effects of CT/RT. Seven out of ten caregivers (68%) were reported as being employed either full-time (62%) or part-time (6%). CONCLUSIONS: Time related burden for patients receiving treatment for side effects of CT/RT and their caregivers is significant. Reduction in frequency of such visits is important from the standpoint of patients’ economic livelihood and can stand to benefit employers and society. Table 1. Time Spent on Healthcare Provider Visits for Treatment of Side Effects Related to Chemotherapy and/or Radiation (N=249) Activity (per visit) Minutes Spent (mean) Standard Deviation Minutes Spent (median) Preparing to go to the doctor’s office, clinic or hospital 81 127 55 Travel to and from the doctor’s office, clinic, or hospital 102 188 58 Waiting at the doctor’s office, clinic, or hospital to see the doctor or another healthcare professional 64 72 39 Seeing the doctor or another healthcare professional 64 75 43 Total 311 380 210

Download Full-text

Fatigue dan status nutrisi pada pasien dengan kanker payudara yang menjalani kemoterapi

HOLISTIK JURNAL KESEHATAN ◽

10.33024/hjk.v13i4.1885 ◽

2020 ◽

Vol 13 (4) ◽

pp. 278-283

Author(s):

Sapti Ayubbana ◽

Sari Narulita

Keyword(s):

Breast Cancer ◽

Side Effects ◽

Nutritional Status ◽

Cancer Patients ◽

Nursing Intervention ◽

P Value ◽

Breast Cancer Patients ◽

Chemotherapy Treatment ◽

Cross Sectional ◽

Breast Cancer Chemotherapy

Fatigue and nutritional status in patients with breast cancer undergoing chemotherapyBackground: Breast cancer is one type of cancer and is one of the leading causes of death in the world. Cancer patients who receive chemotherapy are at risk of impaired nutritional status due to the disease and its treatment. Chemotherapy treatment can have side effects on the gastrointestinal system such as nausea, vomiting, stomatitis, anorexia, changes in taste. These side effects can cause the patient's nutritional intake to decrease. Cancer and its treatment can cause fatigue complaints.Purpose: to identify the relationship between fatigue and nutritional status in patients with breast cancer patients undergoing chemotherapyMethods: The design of this study was quantitative using a cross sectional approach. The population in this study were patients with breast cancer undergoing chemotherapy. This research was conducted at Dr.H. Abdul Moeloek Hospital of Lampung Province with 42 respondents.Results: Spearman correlation test results found that nutritional status variables have a significant relationship with fatigue (p value = 0.031) with moderate correlation strength (r = 0.471).Conclusion: The nursing intervention on the side effects of chemotherapy treatment which has a positive effect on nutritional conditions in an effort to overcome nutritional disorders and complaints of fatigue in cancer patients.Keywords: Breast Cancer; Chemotherapy; Fatigue; Nutritional StatusPendahuluan: Kanker payudara merupakan salah satu jenis kanker dan menjadi salah satu penyebab kematian di dunia. Pasien kanker yang menerima kemoterapi memiliki resiko gangguan status nutrisi akibat penyakit dan pengobatannya. Pengobatan kemoterapi dapat memberikan efek samping terhadap sistem ganstrointestinal seperti mual, muntah, stomatitis, anoreksia, perubahan rasa. Efek samping tersebut dapat menyebabkan asupan nutrisi pasien dapat mengalami penurunan. Kanker dan pengobatannya dapat menyebabkan keluhan fatigue.Tujuan: Mengetahui adanya hubungan antara status nutrisi terhadap fatigue pada pasien kanker payudara yang menjalani kemoterapi.Metode: Desain penelitian ini adalah kuantitatif dengan menggunakan pendekatan cross sectional . Populasi pada penelitian ini adalah pasien dengan kanker payudara yang menjalani kemoterapi. Penelitian ini dilakukan di RSUD Dr.H. Abdul Moeloek Provinsi Lampung dengan 42 responden.Hasil: Pada uji korelasi spearman didapatkan bahwa variabel status nutrisi mempunyai hubungan yang bermakna dengan fatigue ( p value = 0,031) dengan kekuatan korelasi sedang (r = 0,471).Simpulan: Kesimpulan diperlukan intervensi keperawatan terhadap efek samping pengobatan kemoterapi yang berdapak terhadap kondisi nutrisi dalam upaya mengatasigangguan nutrisi dan keluhan fatigue pada pasien kanker

Download Full-text

Early implanon discontinuation and associated factors among women ever used implanon in Mettu district, Oromia regional state, southwest Ethiopia, 2021

Reproductive Health ◽

10.1186/s12978-021-01222-8 ◽

2021 ◽

Vol 18 (1) ◽

Author(s):

Hana Tesfaye ◽

Ebissa Negara ◽

Kenbon Bayisa

Keyword(s):

Side Effects ◽

Associated Factors ◽

Statistical Significance ◽

Descriptive Analysis ◽

Sampling Technique ◽

Cross Sectional Study ◽

Relative Effect ◽

Outcome Variable ◽

P Value ◽

Cross Sectional

Abstract Background Implanon is an effective form of long-acting reversible contraceptive used to prevent conception with a clinical failure rate of less than one per 100 users. However, in sub-Saharan countries the utilization of implanon was very low. Regardless of low utilization; its early discontinuation is very common in most developing countries including Ethiopia. Objectives To assess the prevalence of early implanon discontinuation and associated factors among women ever used implanon in Mettu district. Methods A community based cross-sectional study design was conducted from October 11 to December 4, 2020 G C. A total of 430 women were included in the study by systematic random sampling technique. Data were entered into epi data version 3.1 and analyzed by SPSS version 25.0. Descriptive analysis was computed to describe descriptive results. Logistics regression was computed to see the relative effect of factors on the outcome variable. Adjusted odds ratio was calculated with 95% confidence intervals to show strength of association and p-value < 0.05 was used to declare statistical significance. The finding of the study was presented using narrations, tables and chart. Result The total proportion of early implanon discontinuation among 430 mothers was 19.3%. Women who did not counseled about the presence of alternatives methods [AOR = 2.28: 95% CI (1.22–4.26)], women who experienced dizziness after insertion of implanon [AOR = 1.90: 95% CI (1.06–3.43)] and being having menstrual disturbance after insertion of implanon [AOR = 2.17: 95% CI (1.16–4.08)] were significantly associated with early implanon discontinuation. Women who were counseled about the advantage of implanon [AOR: 0.49: 95% CI (0.28–0.87)] were protective from early implanon discontinuation. Conclusion and recommendation Early implanon discontinuation among mothers was found to be high. Hence, effective counseling on advantages and side effects of implanon and proper management of the side effects should be made to increase implanon retention.

Download Full-text

The Relationship of Father's Involvement in Parenting with The Independent Level of Children Daily Living Activity in Children with Mental Retardation in SLB-C TPA Jember Regency

Nursing and Health Sciences Journal (NHSJ) ◽

10.53713/nhs.v1i1.12 ◽

2021 ◽

Vol 1 (1) ◽

pp. 31-37

Author(s):

Elsiana Dwi Cahya ◽

Latifa Aini Susumaningrum ◽

Kholid Rosyidi Muhammad Nur

Keyword(s):

Mental Retardation ◽

Father Involvement ◽

Daily Living ◽

Daily Activities ◽

P Value ◽

Cross Sectional ◽

Daily Living Activity ◽

Work Health ◽

Living Children ◽

Spearman Test

The mental retardation is one of the psychological limitations which have a characteristic level of intelligence (IQ) of approximately 70 or lower and experience difficulties in carrying out daily activities, communication, the ability to make self-decisions, recreation, work, health, and security. The method used in this research is a correlational study with a cross sectional approach with a total of 67 respondents using total sampling. The questionnaire given to analyze the involvement of fathers in parenting is the involvement of fathers in parenting by the NOC and to analyze the level of independence of daily living activities in children with mental retardation is Waissman-Activity daily living (W-ADL). The Spearman test was carried out to analyze objectively in this study. The results obtained in this study were as many as 58 (86.6%) fathers admitted that they were involved in caring for their children, and as many as 47 children (70.1%) based on their father's recognition that they had a high degree of independence in carrying out daily activities (r; -0.258; p- value = 0.035). This study recommends father and mother to train, guide, and educate children with mental retardation to improve children's abilities, especially in carrying out daily activities. Keywords: Father Involvement, Independence Activity daily living, Children With Mental Retardation

Download Full-text

Relationship Between Fundamental Daily Living Habits and Health Literacy Exhibited by Self-Care Behavior in Sixth-Grade Students of Japanese Elementary Schools

10.21203/rs.3.rs-506307/v1 ◽

2021 ◽

Author(s):

Naoko Tsukamoto ◽

Aya Watanabe ◽

Yukiko Katagiri ◽

Mikiko Kudo ◽

Yuka Funaki ◽

...

Keyword(s):

Elementary Schools ◽

Health Literacy ◽

Daily Living ◽

Self Care ◽

Sixth Grade ◽

Cross Sectional Survey ◽

Cross Sectional ◽

Sixth Grade Students ◽

The Relationship ◽

Care Behavior

Abstract Background: The purpose of this study is to elucidate the relationship between fundamental daily living habits and health literacy exhibited by self-care behaviour in sixth-grade students in Japanese elementary schools by verifying the association of actual status of fundamental daily living habits with awareness of behavioural and health contingencies and healthy behavioural choices.Methods: In this study, a cross-sectional survey was undertaken with 287 sixth-grade students in Japanese elementary school. The questionnaire consisted of three elements of status of basic lifestyle habits, behavioural and health contingencies, and healthy behavioural choices.Results: These results indicate that while fundamental daily living habits are formed by including behavioural and health contingencies, the association of awareness of contingencies and behavioural choices with their actual status is not clear. It is found that during childhood, there is a risk of interruption in the awareness about the acquired behaviours and health contingencies, and it is evident that sustaining such awareness is necessary.Conclusions: This study makes a significant contribution to the literature because there are very few studies on children’s fundamental daily living habits from a health literacy viewpoint and it is not clear whether the fundamental daily living habits are associated with self-care ability as health literacy.

Download Full-text

RESILIENCE AND SELF-CARE IN PEOPLE WITH DIABETES MELLITUS

Texto & Contexto - Enfermagem ◽

10.1590/1980-265x-tce-2018-0105 ◽

2020 ◽

Vol 29 ◽

Author(s):

Julia Estela Willrich Boell ◽

Denise Maria Guerreiro Vieira da Silva ◽

Maria Elena Echevarria Guanilo ◽

Kathleen Hegadoren ◽

Betina Hörner Schlindwein Meirelles ◽

...

Keyword(s):

Diabetes Mellitus ◽

Statistical Significance ◽

Glucose Monitoring ◽

Self Care ◽

Cross Sectional Study ◽

Blood Glucose Monitoring ◽

Foot Care ◽

Cross Sectional ◽

Resilience Scale ◽

One Year

ABSTRACT Objective: to investigate the association between resilience and self-care in people with diabetes mellitus treated in Primary Health Care. Method: Cross-sectional study, sample consisting of 362 people, aged 18 years or older, diagnosed with diabetes for at least one year. Descriptive analyzes and comparison of means were performed, assuming statistical significance with a value of p <0.05. The Resilience Scale and Questionnaire on Diabetes Self-Care Activities were applied, containing six dimensions: general food, specific food, physical activity, blood glucose monitoring, foot care, medication use, plus three items on smoking. Data collection took place between December and May 2016, in ten Health Centers in a city in the south of the country. Results: among the 15 self-care activities, four showed a statistically significant association when compared to the average resilience, highlighting: healthy eating and professional guidance, desirable sweet consumption, blood sugar assessment as recommended. Conclusion: the results obtained highlight the relationship between high averages of resilience and adequate performance in the care of diabetes mellitus.

Download Full-text

Perception of Side Effects of Chemotherapy among Cancer Patients in B.P. Koirala Memorial Cancer Hospital Bharatpur, Nepal

Journal of College of Medical Sciences-Nepal ◽

10.3126/jcmsn.v11i4.14319 ◽

2016 ◽

Vol 11 (4) ◽

pp. 14-19 ◽

Cited By ~ 2

Author(s):

Sharmila Gurung ◽

Radha Acharya Pandey

Keyword(s):

Side Effects ◽

Cancer Patients ◽

Sampling Technique ◽

Cross Sectional Study ◽

Cross Sectional ◽

Significant Difference ◽

Demand Information ◽

And Gender ◽

Loss Of Appetite ◽

Patient’S Perception

jdjBackground & Objectives: These side effects of chemotherapy affect the patients’ daily life and quality of life adversely. It affects the different body system resulting in physical and non physical (psychosocial) side effects. Cancer patients demand information to understand chemotherapy-related adverse effects and actions to be taken. The aim of the study is to find out the perception of side effects of chemotherapy among cancer patients.Materials and methods: A descriptive cross-sectional study was conducted among 200 cancer patients, using purposive sampling technique and data was collected via face to face interview. Descriptive as well as inferential statistics (T-test) was used to see the significant difference between dependent and independent variables.Results: The overall perceived side effects of chemotherapy include: affects work and home duties (non physical side effect), followed by anxiety, loss of appetite, affects family, affect partner, feel constantly tired (fatigue), affects social activities, feel irritable, nausea and constipation respectively. There is significant difference between perception of side effects of chemotherapy and gender of respondents.Conclusion: The perceptions of side effects of chemotherapy are different from individual to individual. Patient’s perception of side effects of chemotherapy is concerned with non physical side effects rather than physical side effects.Journal of College of Medical Sciences-Nepal, Vol.11(4) 2015: 14-19

Download Full-text

Expanding patient-reported outcomes to oral health complications from systemic cancer therapy.

Journal of Clinical Oncology ◽

10.1200/jco.2012.30.34_suppl.60 ◽

2012 ◽

Vol 30 (34_suppl) ◽

pp. 60-60

Author(s):

Rebecca A. Miksad ◽

Rohit Goyal ◽

G. Scott Gazelle ◽

J. Shannon Swan

Keyword(s):

Oral Health ◽

Side Effects ◽

Cancer Therapy ◽

Performance Measurement ◽

Cancer Patients ◽

Patient Reported Outcomes ◽

Full Range ◽

Cross Sectional ◽

Patient Reported ◽

Health Complications

60 Background: Cross-disciplinary patient reported outcomes (PROs) assess the full range of side effects from systemic cancer therapy. For oral health complications, however, the validity of oral-health specific and generic health-related quality-of-life (QoL) instruments is unknown for cancer patients. This study evaluates the performance, measurement, and prediction characteristics of the Oral Health Impact Profile (OHIP–14) and EQ–5D in cancer patients with bisphosphonate-associated Osteonecrosis of the Jaw (ONJ). Methods: 34 cancer patients assessed the QoL of their own ONJ with the OHIP–14 and evaluated the QoL of 4 standardized ONJ Health States with the EQ–5D, as previously published. For each instrument, the standard response mean (SRM), effect size (ES), and ability to distinguish minimally important differences (MID) were evaluated for ONJ compared to baseline (longitudinal responsiveness). Instrument MIDs (cross-sectional responsiveness) were also calculated. Performance of a published general dentistry algorithm to predict EQ–5D values from OHIP–14 results was tested. Results: The OHIP–14 and EQ-5D instruments demonstrated moderate to large longitudinal and cross-sectional responsiveness. Pain was one of the most responsive domains for both instruments. Ceiling/floor effects were most prominent for OHIP–14. A general dentistry algorithm did not adequately predict EQ–5D values for cancer patients. Conclusions: This study provides the first empirical evidence for the performance, measurement, and prediction characteristics of oral-health specific and generic QoL instruments for the oral health side effects of systemic cancer treatment. Instrument validity is supported for oral health complications in cancer patients. These results provide benchmarks for PROs at the intersection of oral medicine and surgery, dentistry, and oncology. [Table: see text]

Download Full-text