An Adapted Model of Cost-Related Nonadherence to Medications Among People With Disabilities

2019 ◽  
Vol 31 (1) ◽  
pp. 35-45 ◽  
Author(s):  
Shikha Gupta ◽  
Mary Ann McColl ◽  
Sara J. T. Guilcher ◽  
Karen Smith

Despite emerging evidence on cost-related nonadherence (CRNA) to prescription medications, there is little conceptualization and exploration of this phenomenon with respect to disability. Specifically, there is a gap in the literature that explores factors influencing medication cost–adherence relationship among individuals living with a disability. To advance research on and policy for CRNA to medications among people with disabilities, we need a framework that can contribute towards guiding solutions to this problem. We examined the applicability of Piette and colleagues’ existing model for CRNA to the context of people with disabilities and suggested an adapted model (CRNA to medications for persons with disability [CRNA-d]) that can provide a more specific conceptualization of CRNA with respect to disability. The adapted CRNA-d model depicts that CRNA to prescription medications with respect to disability is a dynamic and multifaceted phenomenon, determined by various socioeconomic, disability-related, medication-related, prescriber-related, and system-related factors. We discuss how higher susceptibility to health complications, barriers to income and employment, additional health care costs, the complexity of medical regimens, limited access to physician services, and other policy-related factors increase the risk of persons with disabilities to face cost-related barriers to fulfill their necessary medications.

Author(s):  
Shikha Gupta ◽  
Mary Ann McColl ◽  
Sara J.T. Guilcher ◽  
Karen Smith

Despite the abundant literature on the burden of rising costs of prescription medications, there is limited research to explore how these costs affect people and the decisions they are forced to make within the context of disability. In this qualitative study we explored strategies adopted, factors influencing, and the impact of some of these strategies to manage the burden of medication cost among persons with disabilities. We interviewed 12 adults with spinal cord injuries living in Canada, using a general inductive approach to analyze the data. We found that before cutting back on medications due to costs, participants generally tried and sought help from the government, employers, and/or their prescribers to improve their drug coverage. The key factors that participants considered while making decisions on the strategies included the cost and perceived importance of medications, their financial status, other competing needs, and their relationship with the prescribers. While some of their efforts were successful, many participants were still not able to obtain their medications as prescribed. In those cases, patients resorted to rationing strategies such as cutting back on medications, other essential needs, or selling assets. These strategies had serious implications on their health, healthcare utilization, and quality of life.


2021 ◽  
pp. 104420732110231
Author(s):  
Carli Friedman ◽  
Laura VanPuymbrouck

The Americans with Disabilities Act (ADA) opened the doors to access and enhanced the civil rights of people with disabilities. However, a lack of accessibility to all segments of society continues throughout the United States and is frequently described by people with disabilities as a leading cause for limited participation. Beliefs and attitudes regarding disability can affect critical decisions regarding inclusion and people with disabilities’ civil rights. Therefore, the purpose of this study was to explore support and opposition to the ADA among nondisabled people. We had the following research questions: (a) What is the relationship between disability prejudice and support for the ADA? and (b) When controlling for disability prejudice, what other factors lead people to support the ADA? To do so, we examined secondary data from approximately 13,000 participants from all 50 states and the District of Columbia. Findings from this study revealed that people who oppose the ADA are significantly more prejudiced toward people with disabilities than people who support the ADA. Understanding and becoming aware of attitudes and prejudice toward persons with disabilities can be a first step toward dispelling such beliefs and possibly a priori step to achieving the intent and spirit of the ADA.


2021 ◽  
Vol 67 (06) ◽  
pp. 54-57
Author(s):  
Zülfiyyə Asim qızı Yolçiyeva ◽  

As we know, there are many fields of pedagogical science. One of the most important areas is special pedagogy. Special pedagogy studies the issues of education and upbringing of children with physical and mental disabilities. People with disabilities are those who are relatively disabled in terms of any part of the body or the brain. In our country, special attention is paid to the education of people with disabilities. Inclusive education creates conditions for the protection of social equality, education and other special needs of children with disabilities. According to the teaching methodology, inclusive education prevents discrimination against children, allows people with various diseases to get a perfect education and succeed. Its main task is to create an environment for vocational training of people with disabilities. In modern times, people with disabilities should not be seen as sick, but as people with disabilities. This shapes the social approach to disability. The social model allows these children to exercise their rights to develop their skills. The purpose of inclusive physical education is to teach students to move together, which promotes the improvement and development of human psychophysical abilities. Different exercises should be chosen for each lesson and combined in such a way as to have a comprehensive effect on the body and ensure that each student can perform. It is necessary to ensure the general requirements and their specificity when arranging lessons. Sports have a great impact on the development of the personality of children with disabilities as normal children. Sport is one of the most important conditions for everyone and is acceptable for any age group. All these procedures are more effective when performed in unison. Let's protect our child's life together for a healthy life and step into a healthy future Key words: Inclusion, inclusive education, inclusive physical education, a person with disabilities, special education


Horizons ◽  
2018 ◽  
Vol 45 (1) ◽  
pp. 46-73
Author(s):  
Mary Carlson

Christianity espouses the dignity of all humanity and professes welcome for all to the communion of saints. Yet people with disabilities, especially those with more severe or profound physical or psychological disabilities, are largely invisible inside our houses of worship. This article examines the meaning of dignity and inclusion through the lenses of Christian anthropology, disabilities liberation theology, and the lived experience of persons with disabilities. It concludes with some suggestions on how to begin inclusion.


2013 ◽  
Vol 18 (12) ◽  
pp. 3705-3714
Author(s):  
Shamyr Sulyvan de Castro ◽  
Alarcos Cieza ◽  
Chester Luiz Galvão Cesar

The scope of this article is to describe persons with disabilities (PwD) being subjected to cancer screening and the relationship between some social variables and inequalities in performing these tests. A cross-sectional study of cancer screening among PwD was conducted in 2007 with 333 participants interviewed in residence in 4 cities of São Paulo. Variables in the practice of cancer screening, disabilities, gender, age, income of main family breadwinner, ethnicity, use of health services, assistance required, private health insurance, and coverage by the family health program were studied. Frequencies, χ²-test, trend χ² percentages and the Odds Ratios (OR) were used for data analysis. 44% of PwD attended at least one cancer screening at the appropriate time. Persons with visual disabilities and with hearing disabilities were subjected to more screening examinations than those with mobility disabilities and women were attended in screening exams more than men. Persons between the ages of 21 and 60 reported cancer screening more frequently than those between 80 and 97 years of age. The outcomes indicate that PwD have different attitudes toward cancer screening according to the type of disability, gender, and age, which were the variables that directly influenced cancer screening exams.


Temida ◽  
2015 ◽  
Vol 18 (1) ◽  
pp. 111-126
Author(s):  
Filip Miric

The incorrect labeling of people with disabilities as people with special needs constitutes not only a violation of equality but also a special criminological and criminal justice phenomenon. There are no special needs, but just different ways of satisfying them. The subject of this paper is an analyses of the impact of labeling people with disabilities and language disability on a discriminatory process and considers whether the victimization of persons with disabilities engenders inequality. The labeling of people with disabilities throughout history will also be considered. A questionnaire was distributed via Facebook in order to explore the opinions of users of social networks on language disability and its impact on discrimination. The aim of the paper is to highlight the effect labeling has on the overall social situation of people with disabilities. It is argued that the accurate usage of appropriate linguistic terminology would help prevent the victimization of persons with disabilities and accentuate the realization of their full participation in contemporary society.


2019 ◽  
Vol 2 (2) ◽  
pp. 35
Author(s):  
Juli Astutik

People with disabilities have physical limitations and mental disorders. According to Law No. 8 of 2016 concerning persons with disabilities, people with disabilities are those who experience physical, intellectual, mental and sensory limitations for a long time in interacting with the environments who may experience obstacles and difficulties in participating fully and effectively with other citizens based on equal rights. In relates to that, women with disabilities still experience some social discrimination such as social exclusion, marginalization, stereotypes and violence which may results poverty, unemployment, and life deprivation experienced by women with disabilities as heads of households. With the discrimination they experienced, women with disabilities as human beings always tries to carry out survival strategies to meet their life and family needs. Economic problems experienced by women with disabilities makes them have to carry out a survival strategy. As an analytical tool in this study, researchers used the Subsistence Ethics Theory by Scott (1989). In the Ethical Theory of Subsistence, there are three ways of survival mechanisms, among others are to tighten spending, to have a side job, and to get help from networks outside the family. Using descriptive qualitative research, data was collected through observation, interview and documentation techniques. The data was then analyzed through the process of data reduction, data presentation and verification. The data validation uses source triangulation techniques, technical triangulation and time triangulation. From the results of the study, it can be concluded that most of the research subjects used survival mechanisms by tightening expenditures in order to increase daily expenses. In addition, they have side jobs as farm laborers, odd jobs, and also tailors; as well as utilize the local government aid to meet their daily needs.


2021 ◽  
Vol 3 (1) ◽  
pp. 445-456
Author(s):  
Selin Dama Priyanti ◽  
Amin Pujiati

This study aims to determine the application of the Regulation of the Minister of Public Works of the Republic of Indonesia Number 30 / PRT / M / 2006 concerning Facilities and Accessibility in Buildings and Environment (construction of pedestrian paths) for persons with disabilities in Temanggung Regency. The number of respondents used was 98 people. The analytical tool used in this research is Gap Analysis. The results of the gap analysis research show that the percentage of the provision of pedestrian paths for people with disabilities in Temanggung Regency is 33.33%, which means that the implementation of the provision of pedestrian paths for people with disabilities in Temanggung district has been poor.


Author(s):  
Lúcia Souza d'Aquino ◽  
Guilherme Mucelin

This work analyzes the evolution of private law, centered on individualism and totalizing codification, towards private law of solidarity, centered on solidarism, which valorizes the person before his particularities and his laws of protection. Thus, with the strengthening of constitutional principles and human rights, the disabled person is described, as a consumer, as hypervulnerable, worthy of specific protection, which will only be effective with the dialogue between the Consumer Protection Code and the Status of the Disabled Person. The research problem centers on how to protect the disabled person as a consumer from the plurality of standards that affect this relationship, in particular the Consumer Protection Code and the Status of Persons with Disabilities. Using a hypothetical methodology, it is assumed that the dialogue of sources method is the appropriate means to effectively protect people with disabilities in the consumer market


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