scholarly journals Impacto emocional y en calidad de vida de individuos afectados por amelogénesis imperfecta

2015 ◽  
Vol 17 (3) ◽  
pp. 73
Author(s):  
Gina Murillo DDS, MSc ◽  
Fabián Morales DDS ◽  
Luis Gamboa DDS ◽  
Ana Maria Meza DDS ◽  
Ana Cristina López DDS

“Amelogenesis imperfecta” (AI) (prevalence up to 1 in 700) describes largely Mendelian enamel defects arising from gene mutations that present as structural  abnormalities of the temporary and permanent teeth as a result of defective enamel formation. AI has a wide range of clinical presentations and phenotypes and affects both sexes.  Despite increasing knowledge of the genetic mutations underlying AI there has been little research focussing on the effect of AI on the quality of life of AI patients. This study aimed to investigate the effects of AI on patient quality of life in a Costa Rican AI cohort. Affected family members were interviewed and their experiences used to develop an instrument (questionnaire) that was subsequently used to evaluate the impact of AI on their quality of life. 18 AI patients from 17 families were included in the study. Our findings showed that 100% had been teased and had suffered social rejection; 77.8% were concerned about their children´s inheritance and 66.7 % were concerned by the cost of treatment; 89% placed a high importance on their teeth. Results were not statistically significant when sorted by sex (p = 0.732).  The results of this study indicate that dental professionals need to understand AI not only as defective tooth enamel structure demanding specialist clinical management but also the negative impacts of the condition on the lives of their patients. This should be taken in to account when communicating with those affected.

2020 ◽  
Vol 20 (2) ◽  
pp. 174-188
Author(s):  
Rómulo Jacobo González-garcía ◽  
Paloma Escamilla-Fajardo ◽  
Samuel López-Carril ◽  
Juan Nuñez-Pomar

El sector del turismo deportivo recibe cada vez una mayor atención por parte de los distintos agentes sociales, teniendo un alto impacto en distintas esferas de la sociedad. El turismo no sólo afecta a las actitudes de los residentes hacia su desarrollo, sino también a su calidad de vida en general. Una vez que una comunidad o población se convierte en un destino turístico, la calidad de vida de los residentes locales se ve afectada por el desarrollo del mismo. Por consiguiente, es relevante conocer cuáles son las percepciones de los residentes respecto al impacto que causa el turismo deportivo. Por ello, el objetivo del presente estudio es analizar las percepciones de los residentes de Gran Canaria hacia los efectos del turismo deportivo, en ámbitos como su impacto, la calidad de vida y el apoyo al sector. Los resultados del estudio indican que, a mayores niveles de percepción positivos de los residentes sobre los impactos sociales, culturales, ambientales y económicos, hay un mayor apoyo hacia el desarrollo del turismo. Por otra parte, también se produce un efecto mediador significativo de la variable calidad de vida de los residentes, entre la relación de impactos percibidos y el apoyo al desarrollo del turismo activo y deportivo en Gran Canaria. Estos resultados posibilitan un mejor entendimiento de la perspectiva que los residentes tienen hacía el sector turístico deportivo, algo que puede ayudar a orientar futuras decisiones sobre la práctica, desarrollo y planificación del turismo deportivo. The sports tourism sector is receiving increasing attention from different social actors, having a high impact on different spheres of society. Tourism not only affects residents' attitudes towards their development, but also their quality of life in general. Once a community or population becomes a tourist destination, the quality of life of local residents is affected by its development. It is therefore important to know what residents' perceptions are of the impact of sports tourism. Therefore, the aim of this study is to analyse the perceptions of the residents of Gran Canaria towards the effects of sports tourism, in areas such as its impact, quality of life and support for the sector. The results of the study indicate that, at higher levels of positive perception by residents of the social, cultural, environmental and economic impacts, there is greater support for the development of tourism. On the other hand, there is also a significant mediating effect of the variable quality of life of the residents, between the relationship of perceived impacts and the support for the development of active and sports tourism in Gran Canaria. These results make it possible to better understand the perspective that residents have towards the sports tourism sector, something that can help guide future decisions on the practice, development and planning of sports tourism. O sector do turismo desportivo está a receber cada vez mais atenção por parte de diferentes actores sociais, tendo um elevado impacto em diferentes esferas da sociedade. O turismo não afecta apenas as atitudes dos residentes em relação ao seu desenvolvimento, mas também a sua qualidade de vida em geral. Uma vez que uma comunidade ou população se torna um destino turístico, a qualidade de vida dos residentes locais é afectada pelo seu desenvolvimento. Por conseguinte, é importante conhecer a percepção que os residentes têm do impacto do turismo desportivo. Portanto, o objectivo deste estudo é analisar as percepções dos residentes da Gran Canária sobre os efeitos do turismo desportivo, em áreas como o seu impacto, qualidade de vida e apoio ao sector. Os resultados do estudo indicam que, em níveis mais elevados de percepção positiva dos residentes sobre os impactos sociais, culturais, ambientais e econômicos, há maior apoio para o desenvolvimento do turismo. Por outro lado, existe também um efeito mediador significativo da variável qualidade de vida dos residentes, entre a relação de impactos percebidos e o apoio ao desenvolvimento do turismo ativo e desportivo na Gran Canária. Estes resultados permitem compreender melhor a perspectiva que os residentes têm em relação ao sector do turismo desportivo, algo que pode ajudar a orientar futuras decisões sobre a prática, desenvolvimento e planeamento do turismo desportivo. Il settore del turismo sportivo sta ricevendo un'attenzione crescente da parte di diversi attori sociali, con un forte impatto sulle diverse sfere della società. Il turismo influenza non solo l'atteggiamento dei residenti nei confronti del loro sviluppo, ma anche la loro qualità di vita in generale. Una volta che una comunità o una popolazione diventa una destinazione turistica, la qualità della vita dei residenti locali è influenzata dal suo sviluppo. È quindi importante sapere quali sono le percezioni dei residenti sull'impatto del turismo sportivo. Pertanto, l'obiettivo di questo studio è quello di analizzare le percezioni degli abitanti di Gran Canaria nei confronti degli effetti del turismo sportivo, in settori quali l'impatto, la qualità della vita e il sostegno al settore. I risultati dello studio indicano che, a livelli più elevati di percezione positiva da parte dei residenti degli impatti sociali, culturali, ambientali ed economici, vi è un maggiore sostegno allo sviluppo del turismo. D'altra parte, c'è anche un significativo effetto mediatore della variabile qualità della vita dei residenti, tra la relazione degli impatti percepiti e il sostegno allo sviluppo del turismo attivo e sportivo a Gran Canaria. Questi risultati permettono di comprendere meglio la prospettiva che i residenti hanno nei confronti del settore del turismo sportivo, cosa che può aiutare a guidare le future decisioni sulla pratica, lo sviluppo e la pianificazione del turismo sportivo.


Author(s):  
Raditya Wratsangka ◽  
Rully Ayu Nirmalasari Haryadi Putri

Anemia is a global health problem with an extremely high prevalence and occurring in nearly 25% of the world population, particularly in the elderly group. Currently Indonesia is facing a rapid growth of the elderly population, with around 21 million elderly (8.2% of the total population), that is projected to increase to 33.7 million (11.8%) in the year 2025. Anemia in the elderly is frequently neglected, although the facts show that low hemoglobin concentration is an important marker of physiological decline and functional limitations. Although the factor of intrinsic aging may cause low hemoglobin concentration, anemia in the elderly is known to have a wide range w88ith regard to etiology, underlying disorders, and  possible mechanisms, such that it should be clinically followed up. Whatever its causes or underlying pathophysiological, anemia in the elderly has been proven to play a role in their morbidity and mortality, and may decrease their quality of life, that comprises all aspects of physical, mental, and social health, known as health-related quality of life (HRQoL). The impact of anemia on HRQoL has been studied in various populations, and most studies report the presence of an association between HRQoL and anemia in elderly individuals, which on the subscale level is particularly associated with physical health. Early diagnosis of anemia is important to prevent aggravation of the condition, to retard the progress of the disease, and to improve the health-related quality of life (HRQoL) of the patient. Prior to determining the treatment plan, the primary diagnosis and the comorbidities, especially treatable disorders, had better be identified first. The available data show that the overall prognosis will improve for anemia in patients with well-managed and corrected chronic disorders.


2015 ◽  
Vol 14 (2) ◽  
pp. 723
Author(s):  
Alfonso Urzúa ◽  
Alejandra Caqueo-Urízar ◽  
María Fernanda Bravo ◽  
Karen Carvajal ◽  
Claudio Vera

While self-report of overall quality of life has been widely examined, there are no studies that explore the impact of the relative importance people give to the various categories of their quality of life. Therefore, with a quantitative methodology and a co-relational transverse design, we analyze differences in the assessment when the importance given to each category is evaluated. Participants were 530 students from the city of Antofagasta in the North of Chile, aged between 15 and 18 years. They were from subsidized, public secondary schools and private and state universities in the city who were assessed using the KIDSCREEN-27 questionnaire. Results: Differences were found in the assessment of categories when results were analyzed based on gender and age and when incorporating an assessment of importance. Even when the results were not conclusive, there was evidence of a need to incorporate an importance variable when assessing quality of life.


2017 ◽  
Vol 11 (2) ◽  
pp. 159
Author(s):  
Paola Gnerre ◽  
Domenico Montemurro ◽  
Andrea P. Rossi ◽  
Costantino Troise ◽  
Carlo Palermo ◽  
...  

The Italian Parliament has excluded hospital physicians from the application of the European Work Time Directive (EWTD), which imposes a maximum workweek of 48 h and compulsory resting periods. This resulted in extended and excessive work time for the category. This paper is aimed at evaluating the impact of this legislation gap, by assessing the presence of excessive work-related stress and risk for burnout syndrome among Italian physicians working in public hospitals. This observational study is based on an on-line survey conducted on a sample of 1925 Italian doctors (covering a wide range of age, work experience and contractual positions) from October 2014 to February 2015. The questionnaire included 30 questions concerning their personal and professional life (<em>e.g</em>., assessment of workloads, number of uncomfortable or extra shifts, unused days-off, <em>etc</em>.). On the basis of the results, it can be inferred that the average Italian doctor working in public hospitals is under considerable stress at work with negative consequences on his health. He is exposed to high risk of suffering from sleep disorders and cardiovascular diseases (due to the lack of time for private practice and eating regular meals). Overall, his perception is that his job worsens his quality of life. This study shows the relevance of the risk of burnout among Italian physicians employed in public hospitals due to severe workload and work conditions. The resulting impact on the quality of care and the significant cost involved - both in human and economic terms - calls for significant emergency measures by the Italian health work organization. An important increase and prolonged working time is associated with a worsening of the objective cognitive performance and an increase of clinical risk, but also to an increased risk of diseases for operators and of the burnout syndrome. Our survey shows that lack of application of the EWTD has adverse effects on the quality of life and performance of Italian doctors. Failure to respond by all Italian doctors is the greatest limitation of our survey.


2011 ◽  
Vol 5 (2) ◽  
pp. 514
Author(s):  
Isabelle Katherinne Fernandes Costa ◽  
Gabriela De Sousa Martins Melo ◽  
Thalyne Yuri de Araújo Farias Dias ◽  
Francis Solange Vieira Tourinho ◽  
Bertha Cruz Enders ◽  
...  

ABSTRACT Objective: to evaluate the available evidence on the impact of pain on daily life of people with venous ulcers. Method: this is a study of integrative review followed the following steps: establishing the hypothesis and objectives, establishing criteria for inclusion or exclusion of articles, defining the information to be extracted from the selected items, results analysis, discussion and presentation of results. To select the articles we used three databases, Medline, Cinahl and ISI Web of Knowledge and the sample consisted of 18 articles. Results: in the works that were analyzed showed evidence that the pain of venous ulcers influences the patient's daily life. Among people with venous ulcers, we found that the pain is a major aggravating to decreased quality of life, especially as regards the loss of mood, sleep disturbance, social isolation and loss of physical mobility. Conclusion: The pain of the wound can lead to a huge impact on the daily life of a person and, as such, the need of each patient must be acknowledged and considered in a holistic manner. Descriptors: venous ulcers; quality of life; pain; nursing.      RESUMOObjetivo: avaliar as evidências disponíveis sobre a influência da dor na vida diária da pessoa com úlcera venosa. Método: trata-se de um estudo de revisão integrativa obedeceu às seguintes etapas: estabelecimento da hipótese e objetivos; estabelecimento de critérios de inclusão e exclusão de artigos; definição das informações a serem extraídas dos artigos selecionados; análise dos resultados; discussão e apresentação dos resultados. Para a seleção dos artigos utilizou-se três bases de dados, Medline, Cinahl e Isi Web Of Knowledge e a amostra constituiu-se de 18 artigos. Resultados: nos trabalhos que foram analisados evidenciamos que a dor da úlcera venosa influencia na vida diária do paciente. Dentre as pessoas com úlcera venosa, verificamos que a dor é um dos grandes agravantes para a diminuição da qualidade de vida, principalmente no que diz respeito a perda do humor, distúrbios do sono, isolamento social e perda da mobilidade física. Conclusão: a dor da ferida pode levar a um enorme impacto na vida de uma pessoa diariamente e, como tal, a necessidade de cada paciente deve ser reconhecida e considerada de maneira holística. Descritores: úlcera venosa; qualidade de vida; dor; enfermagem.RESUMENObjetivo: evaluar la evidencia disponible sobre el impacto del dolor en la vida cotidiana de las personas con úlceras venosas. Método: se trata de un estudio de revisión integradora seguido los siguientes pasos: el establecimiento de la hipótesis y objetivos, el establecimiento de los criterios para su inclusión o exclusión de los artículos, la definición de la información que se extrae de los elementos seleccionados, la análisis de resultados, discusión y presentación de resultados. Para seleccionar los artículos que utilizaron tres bases de datos, Medline, CINAHL y el ISI Web of Knowledge y la muestra estuvo constituida por 18 artículos. Resultados: en las obras que fueron analizados mostraron evidencia de que el dolor de las úlceras venosas influye en la vida diaria del paciente. Entre las personas con úlceras venosas, se encontró que el dolor es una de las principales agravantes de disminución de la calidad de vida, especialmente en lo que respecta a la pérdida del estado de ánimo, trastornos del sueño, aislamiento social y pérdida de movilidad física. Conclusión: el dolor de la herida puede causar un gran impacto en la vida cotidiana de una persona y, como tal, la necesidad de cada paciente debe ser reconocida y considerada en forma integral. Descriptores: úlceras venosas; calidad de vida; dolor; enfermería.


2017 ◽  
Vol 35 (15_suppl) ◽  
pp. e18083-e18083 ◽  
Author(s):  
Sarah M. Belcher ◽  
Susan M. Sereika ◽  
Zan M. Dodson ◽  
Meghan K. Mattos ◽  
Teresa Hagan ◽  
...  

e18083 Background: Women with recurrent ovarian cancer (OC) experience a wide range of cancer- and treatment-related symptoms that negatively impact quality of life (QOL). Studies have reported healthcare disparities by geographic residence related to distance, time, and financial barriers to accessing high quality care. However, no studies have evaluated the impact of residence on symptoms and QOL in women with OC. Therefore, our objectives were to evaluate whether geographic residence (urban versus rural) is associated with symptoms and QOL in a sample of women with recurrent OC. Methods: The Center for Health Equity Research and Promotion conceptual framework guided analyses of baseline GOG-0259 data. We mapped zip codes to RUCA commuter codes and compared sociodemographic and clinical variables between rural and urban groups using two-sample t and chi-square tests. We used MANCOVA, adjusted for age and marital status, to test for associations between residence and symptoms (Symptom Representation Questionnaire) and QOL (Functional Assessment of Cancer Therapy-Ovarian). Results: Rural (n = 122, 25%) and urban (n = 374, 75%) women were similar in all sociodemographic and clinical comparisons except for marital status (83% vs. 70% married, p = .003). Women reported moderate symptom severity (M = 5.5, SD = 2.3) and QOL scores similar to other OC studies (M = 108.4, SD = 19.5). In multi-variate analyses, age and marital status were both associated with symptoms; marital status was associated with QOL. Geographical residence was not associated with either symptoms or QOL. Conclusions: Counter to previous research, there were no symptom or QOL disparities based on geographic residence in this sample. Possible explanations to be explored in future research include a) cooperative group selection bias for women with good access to care regardless of geographic residence and b) protective effects of marital status on symptoms and QOL.


Author(s):  
Д.А. Китова ◽  
А.А. Китов

Понятие «менталитет» становится предметом широкого научного дискурса и тяготеет и в отечественной, и в зарубежной литературе к междисциплинарному пониманию. Это сопряжено с широким составом понятий, которые входят в его структуру, и прикладными особенностями его развития - историчностью, устойчивостью/изменчивостью, идеологической лояльностью культур и т.д. Дальнейшая его разработка требует выработки схем описания его структурной композиции, уточнения базовых теоретических концепций, операциональных схем эмпирического анализа и структурирования различных его видов. Проблемы изучения экономического менталитета связаны с содержанием базового понятия и его спецификой - он представляется структурным компонентом российской полиментальности и требует психологического анализа различных его аспектов: сущности и характера его влияния на экономическое поведение личности, корпоративное взаимодействие и экономическое развитие страны в целом. Изучения требуют взаимное проникновение психологических и экономических факторов, прогнозирование их влияния на экономические показатели государства, выделение его функциональных характеристик, а также интенсивность и выраженность психологических свойств и условий культурного развития различных обществ. Выявлен ряд связанных с ним феноменов: взаимовлияния качества жизни и чувства экзистенциальной безопасности; влияния общественного сознания на темпы роста экономики; взаимозависимости качества жизни и субъективной удовлетворенности жизнью; различий в представлениях о причинах бедности преимущественно обеспеченных и нуждающихся слоев населения. Показано, что системно-структурный анализ информационных процессов в интернете (анализ запросов в Google) отражают психологические закономерности возникновения и развития интереса к экономическим явлениям. Предлагаемые подходы позволяют обоснованно считать, что возможно выявление новых знаний об экономическом менталитете. The concept of «mentality» is becoming the subject of a broad scientific discourse and tends, both in domestic and foreign literature, to interdisciplinary integration in the study of the psychology of peoples. It was revealed that the broad interpretation of mentality is associated with a wide range of categories that are included in its structure, and applied features of development - historicity, variability, ideological loyalty of cultures, etc. It seems that further development of the concept requires the development of schemes for describing the structural composition of the mentality, clarification of basic theoretical concepts, operational schemes of empirical analysis and structuring of its various types. The paper describes the problems of studying the economic mentality, which naturally has both problems associated with the study of the basic concept itself, and its own specificity. The economic mentality appears to be a structural component of Russian polymentality and requires an in-depth psychological study of its various aspects: the essence, the nature of the impact on the economic behavior of the individual, corporate interaction and the country's economic development. It was shown that the study requires the mutual penetration of psychological and economic factors, predicting their impact on economic results, highlighting its functional characteristics, identifying the intensity and severity of specific psychological characteristics and conditions of cultural development of societies. It was presented that within the framework of various theoretical approaches and studies, many facts were revealed: the mutual influence of the quality of life and the feeling of existential security; the influence of public consciousness on the rate of economic growth; codependency of the quality of life and subjective life satisfaction; found differences in the perceptions of the wealthy and needy strata of the population about the causes of poverty. It was shown that the systemic and structural analysis of information processes in Google, in particular, the analysis of queries, will make it possible to clearly see that in economies of various types there are certain psychological patterns of interest in economic phenomena that have yet to be substantiated. The proposed approaches make it possible to hope for the identification of new knowledge in the study of economic mentality.


2020 ◽  
Author(s):  
DEISE SILVA DE MOURA ◽  
LUCIANA DAPIEVE PATIAS ◽  
NATHALY MARIN HERNANDEZ ◽  
RAQUEL PIPPI ANTONIAZZI ◽  
GLAUCO DA COSTA ALVAREZ ◽  
...  

Abstract Background Bariatric surgery is currently considered an effective way to lose weight after failure in the clinical treatment over a 2-year period. Severe obesity is associated with a wide range of serious health complications and reduced health-related quality of life and throughout its context has a significant impact on the health, longevity and quality of life of individuals. The objective of this study was to monitor the impact of weight reduction, induced by bariatric gastric bypass surgery, on the quality of life of pre and post-operative patients at 1, 2 and 6 months. Methods Longitudinal observational study conducted from December 2016 to October 2017 in southern Brazil. The convenience sample consisted of 104 obese individuals eligible to undergo bariatric gastric bypass surgery. The quality of life evaluation was performed using the SF-36 self-administered questionnaire (The Medical Outcomes Study Short Form Health Survey). Results Obese patients presented significant weight loss after surgery and in the evaluation of quality of life the mean scores of the 8 domains of the SF-36 obtained a significant improvement (p <0.001) between time 0 and 6, as well as the components of mental health (vitality, social aspects, emotional aspects and mental health) and physical health component (functional capacity, physical aspects, pain and general state of health). Conclusions Patients who underwent gastric bypass bariatric surgery had significant improvements in quality of life during the 6 postoperative months.


Author(s):  
Carla Del Olmo Climent ◽  
María Cuerda Ballester ◽  
David Sancho Cantus

Abstract Objective: To describe the impact of fibromyalgia on the state of health and quality of life of people affected by fibromyalgia (FM). Method: Literature review of studies on the quality of life related to health in people with FM, evaluated with validated instruments. Results: Thirty-one studies were analyzed, which were mainly of transversal observational design. The most affected dimensions were physical function, pain and mental state. The factors like sedentary lifestyle and physical activity were significant in this population. The prevalence of Fibromyalgia was significantly higher in women, married, with low level of education and housewives. The most used instrument to measure quality of life related to health was the Fibromyalgia Impact Questionnaire (FIQ). Conclusions: the parameters studied have allowed to assess the needs of patients and achieve a more comprehensive knowledge of the process of this disease. Keywords: fibromyalgia, quality of life, pain, rheumatic diseases.


2021 ◽  
Vol 11 (1) ◽  
pp. 14-17
Author(s):  
Qurrat-Ul-Ain Fatima ◽  
Muhammed Mujtaba ◽  
Wali Dad ◽  
WaqasLatif

Background: The congenital absence of one or more deciduous or permanent teeth is called hypodontia. It is the most prevalentcongenital dental abnormality. Hypodontia could be caused by a number of genetic and environmental factors.Objectives: The aim of the current study was to find out the impact of hypodontia on oral health and quality of life of children.Material and Methods: A cross sectional comparative study was carried out on 40 patients suffering from hypodontia and 40healthy controls in the outpatient department of Nishtar institute of dentistry, Multan. Patients and healthy controls were selected bynon-probability convenient sampling technique without any gender discrimination. Age of the selected patients and controls was11-14 years. Oral health was checked by using dental examination instruments. Urdu Proformas were used for betterunderstanding of children.Results: Mean age of the study subjects was 11.9 (± 0.94) years with range of 11 to 14 years. There was 36 (45%) male and 44(55%) female. In our study, maxillary lateral incisor was the most commonly missing tooth. Out of 40 patients suffering fromhypodontia, about 37 (92.5%) patients presented with poor oral health, 38 (95%) patients were affected by their condition and31(77.5%) patients were dissatisfied from their appearance.Conclusion: Hypodontia had great impact on the quality of life of the children. Patients presented with poor oral health and werehighly dissatisfied from their condition.Keywords: Hypodontia, oral health, quality of life


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