scholarly journals STRATEGIES OF FAMILIES IN THE CARE OF CHILDREN WITH CHRONIC DISEASES

2015 ◽  
Vol 24 (3) ◽  
pp. 662-669 ◽  
Author(s):  
Marli dos Santos Salvador ◽  
Giovana Calcagno Gomes ◽  
Pâmela Kath de Oliveira ◽  
Vera Lúcia de Oliveira Gomes ◽  
Josefine Busanello ◽  
...  
Keyword(s):  
Chronic Diseases ◽  
Qualitative Approach ◽  
University Hospital ◽  
Support Network ◽  
Exploratory Research ◽  
Work Study ◽  
Positive Coping ◽  
Care Seek ◽  
The Family ◽  
South Of Brazil

ABSTRACTthis study aimed to know the strategies of families in the care of children with chronic diseases. A descriptive and exploratory research was carried out using a qualitative approach, in a Pediatric Unit of a university hospital in the south of Brazil, during the first and second halves of 2013. The study involved 15 participating families. Data were collected by means of interviews subjected to thematic analysis. It was identified as strategies: balance work, study and care, share tasks throughout the day, adapt the physical area of the house, engage the child in their own care, seek resources in the network of social support and faith, seek assistance in another city; and engage in physical activity to reduce stress. It was concluded that it is necessary that the nurses participate of the family support network, as a support source for the strengthening of the family to the care, acquiring skills and expertise to a positive coping of the child's chronic disease.

scholarly journals Social support network of nurses for the care of their own children

2014 ◽  
Vol 23 (2) ◽  
pp. 460-468 ◽  
Author(s):  
Bruna Caroline Rodrigues ◽  
Verônica de Azevedo Mazza ◽  
Ieda Harumi Higarashi
Keyword(s):  
Social Support ◽  
Descriptive Study ◽  
Qualitative Approach ◽  
Support Network ◽  
Social Support Network ◽  
Structured Interviews ◽  
The Social ◽  
Need Support ◽  
The Family ◽  
Returning To Work

This exploratory descriptive study, using a qualitative approach, aimed to characterize the social support of nurses in the care of their own children. The participants were ten nurses who were mothers, selected through a snowball method. Data collection occurred from November 2011 to January 2012 through semi-structured interviews and construction of families' genograms and ecomaps. Data were analyzed through Bardin content analysis, leading to the establishment of two categories: (1) Returning to work: the importance of family support and (2) The family and their interactive contexts: types of bonds. The social support network of the family is essential to the lives of these women, who need support, assistance and guidance in directing their activities in everyday overload.

A internação de um recém-nascido na unidade de terapia intensiva neonatal: desvelando sentimentos e expectativas dos pais

2011 ◽  
Vol 5 (6) ◽  
pp. 1492
Author(s):  
Andreia Almeida Santos ◽  
Ivanilda Lacerda Pedrosa ◽  
Josilene De Melo Buriti Vasconcelos ◽  
Aurilene Cartaxo Arruda
Keyword(s):  
Intensive Care ◽  
Neonatal Intensive Care ◽  
Health Care Team ◽  
University Hospital ◽  
Strong Impact ◽  
Exploratory Research ◽  
Team Care ◽  
The Family ◽  
Neonatal Icu ◽  
Terapia Intensiva

ABSTRACTObjective: investigating the feelings and expectations of parents of newborns staying in Neonatal Intensive Care Unit (NICU). Methodology: this is an exploratory research, with a quanti-qualitative approach, carried out in a Neonatal ICU of a Teaching Hospital in João Pessoa - PB. The sample consisted of eight participants who were in the hospital for a visit, or accompanying their children. Data collection was preceded by the approval by the Research Ethics Committee of the Lauro Wanderley University Hospital, under protocol No. 036/08, and took place through the interview technique, with a semi-structured script. Results: in relation to participants, 87% were mothers, and 13% were fathers.  The collective subject discourse expressed, in most cases, uncertainties about the survival of the newborn, and the fear of death, which causes a daily suffering to the parents. Conclusion: The hospitalization of a newborn in a Neonatal ICU, besides representing a strong impact on the newborn, signifies a special moment to the family, requiring, from the health care team, care strategies that favor the family’s bond with the child and the team, and the understanding of the process experienced by occasion of the newborn’s hospitalization. Descriptors: family; newborn; neonatal intensive care unit.RESUMOObjetivo: investigar os sentimentos e expectativas de pais de recém-nascidos internos em Unidade de Terapia Intensiva (UTI) Neonatal. Metodologia: trata-se de uma pesquisa exploratória, com abordagem quanti-qualitativa, realizada em UTI Neonatal de Hospital de Ensino, em João Pessoa-PB. A amostra foi constituída por oito participantes, que se encontravam no local em visita, ou internados, acompanhando seus filhos. A coleta de dados foi precedida de aprovação pelo Comitê de Ética e Pesquisa do Hospital Universitário Lauro Wanderley, sob protocolo nº 036/08, e se deu mediante a técnica de entrevista, com roteiro semi-estruturado. Resultados: em relação aos participantes, 87% eram mães e 13% pais. O discurso do sujeito coletivo expressou, em sua maioria, incertezas quanto à sobrevivência do recém-nascido e o medo da morte, que causa um sofrimento diário aos pais. Conclusão: a internação de um recém-nascido na UTI neonatal, além de representar um forte impacto para o recém-nascido, significa um momento especial para a família, exigindo da equipe de saúde, estratégias de assistência que favoreçam o vínculo da família com a criança e equipe, e a compreensão do processo vivenciado por ocasião da internação do neonato. Descritores: família; recém-nascido; unidade de terapia intensiva neonatal.RESUMENObjetivo: investigar los sentimientos y expectativas de los padres de recién-nacidos internados en Unidad de Terapia Intensiva (UTI) Neonatal. Metodología: se trata de una pesquisa exploratoria, con abordaje cuantitativa-cualitativa, realizada en UTI Neonatal de Hospital de Enseñanza en João Pessoa-PB. La muestra fue constituída por ocho participantes que se encontraban en el local en visita o acompañando sus hijos. La colecta de datos fue antecedida de aprobación por la Comisión de Ética y Pesquisa del Hospital Lauro Wanderley de la universidad, bajo protocolo n® 036/08, a través de técnica de entrevista, con orientación semi-estructurada. Resultados: en relación a los participantes, 87% eran madres y 13% padres. El discurso del sujeto colectivo expresó, en su mayoría, las incertidumbres en cuanto a la sobrevivencia del recién-nacido y el miedo de la muerte, que produce un sufrimiento diario en los padres. Conclusión: además de representar un fuerte impacto en el recién nacido,  su internación en la UTI neonatal quiere decir un momento especial para la familia, exigiendo, del equipo de salud, estrategias de asistencia que favorezcan el vinculo de la familia con la cría y equipo , y la comprensión del proceso vivido por ocasión de la internación  del neonato. Descriptores: familia; recién-nacido; unidad de terapia intensiva neonatal. 

scholarly journals Family network of children with special health needs: implications for Nursing

2013 ◽  
Vol 21 (2) ◽  
pp. 562-570 ◽  
Author(s):  
Eliane Tatsch Neves ◽  
Ivone Evangelista Cabral ◽  
Andressa da Silveira
Keyword(s):  
Social Network ◽  
Health Needs ◽  
University Hospital ◽  
Family Network ◽  
Cultural Conditions ◽  
New Information ◽  
The Family ◽  
Social Invisibility ◽  
South Of Brazil ◽  
Special Health

OBJECTIVE: to describe appropriate sources and resources for caregivers of children with special health needs in the community. METHOD: A qualitative study that used the creativity and sensitivity dynamics speaking map, part of the sensitive creative method, involving 11 caregivers of children with special health needs who are assisted in a university hospital located in the South of Brazil. RESULTS: the maps graphically represented through the genogram and ecomap showed that the caregiving women consistently and regularly use the resources of the internal and external family network; they eventually and irregularly access the community social network for physical and psychological support. CONCLUSION: the reclusive nature of care for these children inside the family circle contributes to their social invisibility. Based on this new information, it is recommended that Nursing participate in the care that is focused on these children's families, with particular attention to their socio-cultural conditions.

scholarly journals THE SUPPORT NETWORK IN PREGNANCY AND CHILDBIRTH: THE CONCEPTIONS OF WOMEN WITH PHYSICAL DISABILITY

2016 ◽  
Vol 25 (2) ◽  
Author(s):  
Camila Fernandes da Silva Carvalho ◽  
Rosineide Santana de Brito
Keyword(s):  
Reproductive Health ◽  
Thematic Analysis ◽  
Health Professionals ◽  
Physical Disability ◽  
Qualitative Approach ◽  
Support Network ◽  
Exploratory Research ◽  
Pregnancy And Childbirth ◽  
Semistructured Interviews ◽  
In Pregnancy

This study aimed to investigate the conception of women with physical disability regarding the support network for the exercising of motherhood. It is descriptive-exploratory research, with qualitative approach, whose data were collected through semistructured interviews with 12 women with physical disability, undertaken between April and June 2014. The technique of thematic analysis was used for the treatment of the information, and Symbolic Interactionism was used as the theoretical framework. The interviewees reported the importance of the support of the partner, of family members, and of health professionals, during pregnancy and the postpartum, for them to be able to exercise the maternal role. The absence of this support influenced their conceptions regarding their capacity in this function. One can observe the need to promote the reproductive health of the person with a disability, so as to mitigate the stigmas and thus provide them with appropriate support. In addition to this, the health professionals must be trained to understand holistically their needs and rights.

scholarly journals Breastfeeding under the umbrella of support networks: a facilitative strategy

2020 ◽  
Vol 24 (1) ◽  
Author(s):  
Yamê Regina Alves ◽  
Leila Leontina do Couto ◽  
Ana Claudia Mateus Barreto ◽  
Jane Baptista Quitete
Keyword(s):  
Focus Groups ◽  
Family Support ◽  
Structured Interview ◽  
Support Networks ◽  
Support Network ◽  
Exploratory Research ◽  
Full Data ◽  
The Social ◽  
The Family ◽  
Qualitative Descriptive

Abstract Objectives: To know the aspects related to breastfeeding from the perspective of women in a city in the inland of Rio de Janeiro and to discuss the family support network created as a facilitation strategy for women to breastfeed their children. Methods: A qualitative, descriptive and exploratory research. For data collection, a semi-structured interview script instrument was developed. The focus groups were filmed, and the speeches transcribed in full. Data was divided and grouped into thematic categories. A total of ten volunteer women participated. The reference used was the National Breastfeeding Policy. Results: The following categories emerged from the focus groups: Breastfeeding: facilities and difficulties faced; Prenatal specificities and identification of the support network during breastfeeding. Conclusion and implications for practice: Breastfeeding is an action based on subjectivity, women's experience and among members of the social network. The results point to the need for effective participation of prenatal nurses who promote breastfeeding and the inclusion of the father for better participation in the entire breastfeeding process and family members, where both play a key role in promoting breastfeeding, and continued breastfeeding. Maternal exclusive.

scholarly journals The Social Networks of Adolescent Victims of Domestic Violence and Bullying

2020 ◽  
Vol 30 ◽  
Author(s):  
Grazielli Fernandes ◽  
Maria Angela Mattar Yunes ◽  
Lirene Finkler
Keyword(s):  
Public Health ◽  
Social Networks ◽  
Domestic Violence ◽  
Support Network ◽  
School Contexts ◽  
Significant Relationships ◽  
The Social ◽  
The Family ◽  
South Of Brazil ◽  
Adolescent Victims

Abstract Domestic violence and bullying are public health problems with serious and lasting physical and emotional consequences. This study investigated the perception of the social and affective support network (characterized by the links between the family and school contexts) of adolescents victimized by domestic violence and involved in bullying. Fifteen student participants from a school in the south of Brazil answered to the Five Field Map. Participants were selected using a questionnaire on bullying and a question from the Questionário Juventude Brasileira [Brazilian Youth Questionnaire]. After analyzing the network’s structure and adolescents’ perceptions regarding significant people, results indicated a greater number of positive contacts in the Relatives, Family, and School fields. The most cited support figures were family, friends, and teacher. Adolescents indicated their perpetrators of domestic violence as positive contacts. Understanding significant relationships that predispose adolescents to involvement in bullying contributes to the implementation of appropriate interventions to prevent different expressions of violence.

scholarly journals Nursing care in terminality: compliance with principles of bioethics

2014 ◽  
Vol 35 (3) ◽  
pp. 97-102 ◽  
Author(s):  
Zirleide Carlos Felix ◽  
Patrícia Serpa de Souza Batista ◽  
Solange Fátima Geraldo da Costa ◽  
Maria Emília Limeira Lopes ◽  
Regina Célia de Oliveira ◽  
...  
Keyword(s):  
Intensive Care Unit ◽  
Nursing Care ◽  
Terminally Ill ◽  
Qualitative Approach ◽  
University Hospital ◽  
Northeastern Brazil ◽  
Exploratory Research ◽  
Human Beings ◽  
Terminally Ill Patients ◽  
Ethical Commitment

The aim of the study was to investigate the principles of bioethics reported by nurses when caring for terminally ill patients. Exploratory research with qualitative approach, developed with fifteen nurses from an intensive care unit of a university hospital, in northeastern Brazil. Data collection was conducted between March and July 2013, through a form. Data were analyzed using the technique of content analysis, emerging the following thematic category: respect to the principles of autonomy, beneficence, non-maleficence and justice to take care of the terminally ill patients. The participating nurses valued these principles when caring for terminally ill patients, which reflect the ethical commitment of these professionals in the practice of nursing care. It is noteworthy that bioethical principles should guide the nursing care of human beings throughout their life cycle.

scholarly journals CONSIDERAÇÕES ACERCA DA ATUAÇÃO DO ENFERMEIRO NA APLICABILIDADE DAS DIRETIVAS ANTECIPADAS DE VONTADE

2017 ◽  
Vol 8 (2) ◽  
Author(s):  
Silvana Bastos Cogo ◽  
Valéria Lerch Lunardi ◽  
Elisabeta Albertina Nietsche
Keyword(s):  
Patient Care ◽  
Personal Autonomy ◽  
University Hospital ◽  
Nursing Ethics ◽  
Exploratory Research ◽  
Final Phase ◽  
Structured Interviews ◽  
Qualitative Descriptive ◽  
Investigación Cualitativa ◽  
South Of Brazil

Objetivo: compreender como os enfermeiros entendem a aplicabilidade das diretivas antecipadas de vontade no cuidado em final de vida. Metodologia: pesquisa qualitativa, descritiva e exploratória, realizada com oito enfermeiros de um hospital universitário do Sul do Brasil, em dezembro de 2014, a partir de entrevistas semiestruturadas, submetidas à análise textual discursiva. Resultados: emergiram três categorias: conflitos na assistência ao doente em fase final; vantagens e dificuldades à aplicabilidade das diretivas antecipadas de vontade; benefícios na aplicabilidade das diretivas antecipadas de vontade pela enfermagem. Conclusão: as diretivas antecipadas estão relacionadas ao respeito da autonomia pessoal, entretanto uma prática cercada por medos e receios ao seu cumprimento.Descritores: Ética em Enfermagem, Diretivas Antecipadas, Autonomia Pessoal.CONSIDERATIONS REGARDING THE NURSE’S ACTIVITIES IN THE APPLICABILITY OF THE ANTECIPATED INTENTION DIRECTIVEObjective: to understand how nurses understand the applicability of early intension directives in the care of the last phases of life. Methodology: qualitative, descriptive and exploratory research, carried out with eight nurses from a university hospital in the south of Brazil, in December 2014, based on semi-structured interviews, submitted to discursive textual analysis. Results: three categories emerged: conflicts in patient care in the final phase; Advantages and difficulties in the applicability of antecipated directives of intention; Benefits in the applicability of the antecipated intension directives by the nursing. Conclusion: The antecipated directives are related to the respect of personal autonomy, however a practice surrounded by fears and concern of its fulfillment.Descriptors: Nursing Ethics, Antecipated Directives, Personal Autonomy.CONSIDERACIONES ACERCA DE LA ATUACIÓN DEL ENFERMERO EN LA APLICABILIDAD DE LAS DIRECTIVAS ANTICIPADAS DE VOLUNTADObjetivo: comprender cómo las enfermeras entienden la aplicabilidad de las directrices anticipadas de voluntad en la atención al final de la vida. Metodología: investigación cualitativa, descriptiva y exploratoria, realizada con ocho enfermeras de un hospital universitario en el sur de Brasil, en diciembre de 2014, a partir de entrevistas semiestructuradas sometidos a análisis textual discursiva. Resultados: Tres categorías: surgieron conflictos en la atención prestada a los pacientes en la etapa final; ventajas y dificultades de la aplicación de las directivas anticipadas de voluntad; Beneficia a la aplicabilidad de las directrices anticipadas de voluntad por parte de enfermería. Conclusión: Las instrucciones previas están relacionados con el respeto de la autonomía personal, sin embargo un lugar cercado por los temores y preocupaciones a su cumplimiento.Descriptores: Ética en Enfermería, Directivas Anticipadas, Autonomía Personal.

scholarly journals REPERCUSSIONS IN THE LIVING PROCESS OF PEOPLE WITH STOMAS

2016 ◽  
Vol 25 (1) ◽  
Author(s):  
Marina Soares Mota ◽  
Giovana Calcagno Gomes ◽  
Vilma Madalosso Petuco
Keyword(s):  
Self Care ◽  
Descriptive Study ◽  
Qualitative Approach ◽  
University Hospital ◽  
Support Network ◽  
Southern Brazil ◽  
Structured Interviews ◽  
First Semester ◽  
Living Process

A descriptive study with a qualitative approach that aimed to identify the repercussions of ostomy construction on the living process of people with an ostomy. The study was performed at a Stomatherapy Service from a university hospital in southern Brazil, in the first semester of 2011, with eight patients. Data were collected through semi-structured interviews, and they were analyzed by thematic analysis. We found that the surgery happened to prevent patient deaths. Patients presented themselves as disheartened, angry, sad, having doubts, and they sought to keep the ostomy a secret. They were concerned with the acquisition of resources for self-care. They may present complications and experience embarrassing situations because of the stoma. However, they perceived that they could live with a stoma and regain joy. We concluded that they were able to reframe their lives. We highlight the role of nurses, enabling them for self-care, constituting part of their social support network, helping them to become able to live independently.

scholarly journals Barriers Present in the Process of Construction of the Cultural Family Care to the Child in the Hospital: Transcultural Approach

Aquichan ◽  
2019 ◽  
Vol 19 (1) ◽  
pp. 1-11
Author(s):  
Doris Helena Ribeiro Farias ◽  
Giovana Calcagno Gomes ◽  
Mauro Francisco Ferreira de Almeida ◽  
Valéria Lerch Lunardi ◽  
Daiani Modernel Xavier ◽  
...  
Keyword(s):  
Participant Observation ◽  
Family Care ◽  
Cross Cultural ◽  
University Hospital ◽  
Ethical Aspects ◽  
New Paradigm ◽  
Team Members ◽  
The Family ◽  
Cultural Care ◽  
South Of Brazil

Objective: To know the barriers in the process of building family cultural care for the child in the hospital. Methodology: This is a qualitative study with a cross-cultural theoretical reference of Madeleine Leininger, called Theory of Diversity and Cultural Universality of Care, and with a methodological reference of the ethno-inference. It was developed in 2017 at the pediatric unit of a university hospital in the south of Brazil, through non-participant observation, participant observation and interview with 15 family caregivers of hospitalized children. The data was coded, classified and scrutinized to identify the saturation of ideas and similar or different patterns; also, it was re-coded and the theoretical formulations and recommendations were performed. Ethical aspects were followed, according to the Resolution of the National Research Ethics Council 466/2012. Results: The data showed as a barrier the need for hospitalization as a factor of family vulnerability, control of the unit’s health team members, hospital norms and routines, and the need to transgress as a manifestation of family care. Conclusion: Cultural care is a process that aggregates knowledge and can be considered a new paradigm for the accomplishment of nursing care by providing the mutual growth and construction of new knowledge, an affective, reflexive, human and empathic relationship between the nurse, the child and the family.

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