scholarly journals CUIDADOS PALIATIVOS E UMA ANÁLISE FENOMENOLÓGICA DAS VIVÊNCIAS DOS CUIDADORES DE PACIENTES ONCOLÓGICOS

2019 ◽  
Vol 17 (1) ◽  
pp. 371
Author(s):  
Maria Inês Amaro Assunção De Melo ◽  
Waldir Souza ◽  
Clélia Peretti

O estudo apresenta levantamento de experiências vivenciadas por cuidadores de pacientes oncológicos em cuidados paliativos e realiza análise fenomenológica das mesmas. A pesquisa de campo, transversal, descritiva e qualitativa foi realizada em uma instituição hospitalar do Oeste do Paraná com sete cuidadores nos setores ambulatoriais, internamento e UTI. A análise dos dados teve como fundamento teórico a obra de Edith Stein A estrutura da pessoa humana (1933/2013). A pesquisa mostra que os cuidadores elegem mediante os cuidados paliativos apenas a corporeidade e a exterioridade como forma de reconhecimento do outro necessitando, assim, de uma formação para a interioridade e espiritualidade. PHENOMENOLOGICAL ANALYSIS OF THE EXPERIENCE OF PALLIATIVE CARE FOR FAMILY CAREGIVERS OF ONCOLOGICAL PATIENTS The study raises the experiences of the informal caregivers of cancer patients in palliative care and performs phenomenological analysis of them. Field, cross-sectional, descriptive and qualitative research was performed at a hospital in the west of Paraná with seven caregivers in the outpatient, inpatient and ICU sectors. Data analysis was based on the work of Edith Stein La strutura della persona umana (1933/2013). The research shows the fragility of the caregivers in front of the understanding of the structures that make up the human being, choose the corporeity as a way of recognizing the other, they need a formation for interiority and spirituality.

2014 ◽  
Vol 13 (3) ◽  
pp. 505-512 ◽  
Author(s):  
Anette Henriksson ◽  
Ida Carlander ◽  
Kristofer Årestedt

AbstractObjective:Of the few studies that have paid attention to feelings of reward in family palliative caregiving, most are retrospective and examine the experiences of bereaved family caregivers. Although feeling rewarded has been described as an influence that may facilitate the way family caregivers handle the caregiving situation, no study has sought to identify the factors associated with feelings of reward while providing ongoing family palliative care. The aim of this study, therefore, was to identify influential factors in feelings of reward experienced by family palliative caregivers.Method:Our study had a correlational cross-sectional design. Family caregivers (n = 125) of patients receiving specialized palliative care were consecutively recruited from four settings. These caregivers answered a questionnaire that included the Rewards of Caregiving Scale (RCS). This questionnaire included questions about demographic background and scales to measure preparedness for caregiving, feelings of hope, perceived health, and symptoms of anxiety and depression. Correlation and regression analyses were conducted to identify factors associated with rewards.Results:The results demonstrated that the more prepared caregivers with higher levels of hope felt more rewarded, while caregivers with higher levels of anxiety and those in a spousal relationship with the patient felt less rewarded by caregiving.Significance of results:It seems reasonable that feeling rewarded can be a significant contributor to the overall experience of providing ongoing palliative care. The situation of family caregivers has been shown to be multifaceted and complex, and such covariant factors as preparedness, anxiety, hope, and being in a spousal relationship with the patient to influence this experience.


2015 ◽  
Vol 3 (3) ◽  
pp. 352
Author(s):  
Macarena Quesada ◽  
Manuel Madrigal ◽  
Aurelio Luna ◽  
Maria D Perez-Carceles

Purpose: The aim was to investigate the factors associated with the quality of life (QoL) of family caregivers to palliative care patients. Methods: A cross-sectional survey was conducted of 125 family caregivers of patients in the terminal phase of their illness and included in palliative care programs. Data were collected using WHOQOL-BREF, the socio-demographic characteristics of both caregiver and patient, clinical questions and information about caregiving. Results: The QoL of caregivers was lower than that of the national average for healthy people. Significantly lower QoL scores were obtained in the case of caregivers if they were women, over 55 years, uneducated, unemployed or the patient’s spouse. Cancer diagnosis and patients who were dependent for their Activities of Daily Living also lower caregiver QoL. The factors associated with higher caregiver QoL in each domain differed: being employed in the physical domain (OR:3.3; 95% CI:1.47-7.4), the patient receiving palliative care in hospital in the psychological domain (OR:3.05; 95% CI:1.19-7.7), a higher level of caregiver´s education in the social domain (OR:3.3; 95% CI:1.4-9.8) and caregivers between 45-55 years in the environmental domain (OR:5.4; 95% CI:1.6-9.2).Conclusion: Family caregivers of palliative care patients are highly burdened during caregiving. Characteristics of the patient and caregiver and the conditions under which care is performed, significantly affect QoL. We consider it essential to increase health professionals’ awareness of the importance of the role of the caregiver in providing services to the terminally ill, given the impact of the caregiver’s QoL on the QoL of the palliative care patient and its importance for the delivery of person-centered care at the end of life.    


PERSPEKTIF ◽  
2021 ◽  
Vol 10 (2) ◽  
pp. 313-320
Author(s):  
Rika Kusdinar ◽  
Dewi Inggit Pergiwa

The purpose of the research that researchers do is to find out the extent of the Implementation of the Family Hope Program in Cisitu District of Sumedang Regency. The method used in this study is a qualitative research method which is used in research based on the philosophy of postpositivism, used to examine the natural conditions of objects, where researchers act as key instruments, data collection techniques are carried out by triangulation (combined), data analysis is inductive, and qualitative research results emphasize more meaning than generalization. The technique used in taking samples is to use purposive sampling, which is sampling based on needs, so the samples in this study were 4 people. As for what is determined to be the informant in this study are the executors who are considered to have authority, information, and are involved in implementation of the Family Hope Program in Cisitu District of Sumedang Regency. Based on the results of the study, the researchers can describe that the Implementation of the Family Hope Program in Cisitu District of Sumedang Regency can be side to be quite well run according to the success factor of the implementation. But on the other hand there are problems related to facilities, both facilities and infrastructure provided are not yet fully adequate, there are still many shortcomings, this is because the government and the organizers only provide basic facilities.


BMJ Open ◽  
2021 ◽  
Vol 11 (11) ◽  
pp. e051717
Author(s):  
Shuqin Zhu ◽  
Hanfei Zhu ◽  
Xintong Zhang ◽  
Kouying Liu ◽  
Zumei Chen ◽  
...  

ObjectiveTo investigate the care needs of dying patients and their family caregivers in hospice and palliative care in mainland China.MethodsA search for English and Chinese quantitative and qualitative studies was performed using the following English databases: PubMed (Medline), CINAHL and PsycINFO, as well as Chinese databases: SinoMed and CNKI. The records were independently screened by two reviewers and critiqued using Joanna Briggs Institute Critical Appraisal tools. All quantitative data were transformed into qualitative data, which were converted into textual descriptions. Due to the diversity of included studies, a three-step analysis was performed: narrative summary, thematic analysis and presentation of integrated results in a narrative form. The qualitative findings were pooled using the meta-aggregation approach.ResultsThe literature search identified 2964 papers after removing duplicates, from which 18 were included (9 quantitative and 9 qualitative studies). All studies were conducted in mainland China. Quantitative studies involved cross-sectional surveys, and qualitative studies involved interviews for data collection. Two synthesised results of patients’ needs were identified, including needs to be comfortable and experience a good death. Another two synthesised results of family caregivers’ needs included needs to care for and improve the quality of life of patients, and to care for themselves well.ConclusionThis study identified that patients and family caregivers have an increasing demand for professional care at the end of life. Professionals, especially nurses, should enact a patients’ demand-centred practice to overcome the challenges of organisation, education, emotion and communication to provide high-quality end-of-life care.


2020 ◽  
Vol 16 (1) ◽  
Author(s):  
Sindhy Mariam Magdalena Pello ◽  
Christiana Hari Soetjiningsih

Happiness is a concept that relate to the emotion and positive activities felt by each individual except for the single people. The purpose of this research is to know the illustration of happiness to the adult females who decided to remain single and the influenced factors of happiness. Qualitative research method is used with phenomenological approach. The participants of this research are two adults’ females 40-65 years old who decided to remain single. Interpretative phenomenological analysis (IPA) is used for the data analysis technique. The results of this research showed that adults females who decided to remain single still felt happiness through the positive relationship with others by doing things or activities that they liked, finding the meaning of their days, and having optimism and resilience attitude. The most influenced factor of happiness is religiosity. Keywords: Happiness; Adult Female; Single; Religiousity; Success.   


2020 ◽  
Vol 2 (1) ◽  
pp. 64
Author(s):  
Suryadi Suryadi ◽  
Sukamto Sukamto

Thinking and looking for the proposition to ma'rifat to Allah SWT is the first obligation for a Mukallaf (one who has received the burden of taklif). Knowing God means that someone also knows himself. Regarding knowing human self, there have actually been many theories that point to this, the proof is that there are many theories about good personality that were sparked by thinkers from the west or by Islamic scholars. In this study, researchers are interested in discussing one personality theory that is very rarely discussed, namely personality theory according to Taqiyuddin An Nabhani specifically his Islamic personality theory. The purpose of this study is as an additional reference and add Khazanah knowledge about human personality. Taqiyuddin An Nabhani is a contemporary cleric from the Palestinian area who has given birth to many works both in fiqh and politics. This research is a qualitative research with a type of library research. Data analysis technique used in this research is content analysis, namely by analyzing various reference sources both primary and secondary. After researchers examine several sources, it can be concluded that according to Taqiyuddin An Nabhani, humans have two elements of personality, namely thought patterns (‘aqliyah) and attitude patterns (nafsiyah). Mindset is a method used in understanding or thinking about something. In other words, mindset is a method used to associate facts with information, or vice versa, based on a certain basis or several methods. While the attitude pattern is a method used by humans by linking the impulse of distribution (fulfillment) with mafahim (understanding) or the way used by humans to meet gharizah (instincts) and physical needs. a person can be said to have an Islamic personality if he has ‘aqliyah Islamiyah (Islamic mindset) and nafsiyah Islamiyah (Islamic attitude pattern). If one of the two does not exist in a person then in fact he does not have an Islamic personality.


2021 ◽  
Vol 11 (2) ◽  
Author(s):  
Rizki Nurhana Friantini ◽  
Rahmat Winata ◽  
Pradipta Annurwanda

This study aims to describe procedural fluency in solving problems for students of the Mathematics Education Department at the STKIP Pamane Talino who obtain high and low mathematical dispositions through learning assisted by Google Classroom. This research is a qualitative research. The research subjects were two students in the third semester. Subjects were selected by purposive sampling. The research data was obtained by tests and interviews, and the validity of the data was obtained by using the triangulation method. The techniques of data analysis were trough: 1) classifying data into three indicators of the smoothness of the procedure; namely: a) implementing procedures appropriately, b) selecting and utilizing procedures, c) modifying procedures, then reducing data that are not included in the 3 indicators; 2) presenting data in a narrative; 3) concluding the procedural fluency obtained from the indicators of procedural fluency in problem-solving steps. The results of the high mathematical disposition analysis showed that students had excellent procedural skills because they could apply procedures appropriately. They were able to select and utilize procedures accurately, and were able to apply procedures properly and flexibly. In the other side, the students with low mathematical disposition, they had poor procedural skills because even though they were able to apply the procedure, choose, and use the procedure appropriately, they still could not comply with the procedure appropriately and accurately for they answered all the questions incorrectly.


2016 ◽  
Vol 3 (2) ◽  
Author(s):  
Narendra nath Samantaray ◽  
Preeti Singh ◽  
Dr Jashobanta Mohapatra ◽  
Dr (Prof) Amool Ranjan Singh

This qualitative research is intended to bring a observational and phenomenological analysis of the applicability of psychodrama in the management of conflict, manifestation of assertive behaviour in alcohol dependent patients, also to observe and elucidate the process of a certain skill that is being learned or a certain conflict being managed and to see what other therapeutic progress psychodrama can bring in participants. This study was conducted in RINPAS, Ranchi and consisted of 5 samples; each went through 16-17 sessions of treatment of various psychodramatic techniques. Data analysis in the current study involves integration of Narrative participant observer report and Phenomenological approach. Post therapy and follow up report indicated improvement.


Circulation ◽  
2020 ◽  
Vol 141 (Suppl_1) ◽  
Author(s):  
Curtis Tilves ◽  
Allison Kuipers ◽  
Joseph Zmuda ◽  
J. J Carr ◽  
James G Terry ◽  
...  

Background: Adipose tissue (AT) distribution, which differs by race/ethnicity, can differentially impact risk for cardiometabolic disease. Traditional analyses using AT volumes tend to place all ATs in a regression model, estimating an increase in one AT volume while “holding other volumes constant”; however, the compositional nature of the data suggests the other ATs cannot remain constant. Compositional data analysis (CODA) methods eliminate this concern by comparing logratios of components. CODA was designed for analyses of data like those of body composition , but has yet to be used in this field. We demonstrate the use of CODA for the comparison of visceral AT (VAT) and subcutaneous AT of the abdomen (ASAT) and thigh (TSAT) with prevalence of cardiometabolic diseases. Methods: This cross-sectional analysis used 615 African Caribbean men from Tobago aged 50-91 years (mean age 63.6 years, mean BMI 27.7 kg/m 2 ). AT volumes were obtained from CT scans of the abdomen (VAT and ASAT) and of the mid-thigh (TSAT). An additive log2 ratio transformation was applied to the ATs to generate the VAT, ASAT, and TSAT component effects relative to the other tissues captured in the respective CT scan. Ordinal logistic regression analyses were performed for increasing hypertension or glucose impairment categories (defined in Table) after adjustment for age, disease status, and lifestyle factors. Results: After full adjustment (Table), a 2-fold higher ASAT volume (relative to other abdominal tissues) was associated with higher odds, and a 2-fold higher TSAT volume (relative to other thigh tissues) was associated with lower odds, of being in a higher hypertension category. After BMI adjustment, no AT was associated with glucose impairment category. VAT was not a significant predictor for either outcome in African Ancestry men. Conclusion: CODA methods, which avoid problematic assumptions made in traditional analyses, found significant and opposing associations of TSAT and ASAT with hypertension categories in African Ancestry men.


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