scholarly journals Beban Keluarga sebagai Caregiver Orang dengan HIV/AIDS

2020 ◽  
Vol 11 (3) ◽  
pp. 442
Author(s):  
Darwita Juniwati Barus ◽  
Marthalena Simamora ◽  
Jek Amidos Pardede ◽  
Galvani Volta Simanjuntak

<p>The role of the family as a caregiver of people living with HIV/AIDS can cause a lot of stress. The purpose of this study was to explore the family burden as a caregiver of people living with HIV/AIDS. This research is qualitative research with a descriptive phenomenology approach. This research was conducted at RSUP H. Adam Malik in Medan City. Participants in this study were 4 family members who care for family members infected with HIV who were taken by purposive sampling technique. Participants' inclusion criteria were ≥17 years of age who were able to speak Indonesian and were able to tell about the burdens experienced while caring for people living with HIV/AIDS. The themes found included psychological burdens, social burdens, family problems, and role conflicts. The research conclusions illustrate that families who are caregivers in carrying out their roles are not easy because they cause psychological burdens, social burdens, economic burdens, family problems, and role conflicts. Nurses can provide nursing interventions to increase caregiver coping to reduce the burden they experience.</p>

SAGE Open ◽  
2017 ◽  
Vol 7 (1) ◽  
pp. 215824401769201 ◽  
Author(s):  
Ekaete Francis Asuquo ◽  
Josephine B. Etowa ◽  
Margaret I. Akpan

HIV/AIDS scourge remains high in most countries of sub-Saharan Africa such as Nigeria, which is home to about 3.3 million HIV positive individuals and represents the second largest burden of HIV/AIDS care, treatment and demand worldwide after South Africa. Anti-retroviral treatment options though a welcome development, has increased the number of people living with this chronic illness, and most of them depend on family members for physical and emotional support. Traditional gender norms in Nigeria ensure that legitimately, women and girls are the first options for caregiving roles. This mandatory role has in turn imposed psychosocial disruption in the lives of female family members in Calabar, Nigeria. This descriptive study utilized convenient sampling technique, Zarit Burden Interview scale and semistructured questionnaires for data collection (260 respondents), and data analyses were achieved using SPSS16.0. The study showed that a significant ( p < .05) proportion of women (91%) were involved in providing care, including children from 10 years and above. Caregivers had minimal social support which increased the burden they experienced. The need for policy that recognizes and supports female caregivers (“silent cornerstone”) to reduce burden and ensure high quality care of people living with HIV/AIDS (PLWHA) in Nigeria is advocated.


2017 ◽  
Vol 11 (1) ◽  
pp. 67-75 ◽  
Author(s):  
Idongesit Godwin Utuk ◽  
Kayode Omoniyi Osungbade ◽  
Taiwo Akinyode Obembe ◽  
David Ayobami Adewole ◽  
Victoria Oluwabunmi Oladoyin

Background:Despite demonstrating global concerns about infection in the workplace, very little research has explored how co-workers react to those living with HIV in the workplace in sub-Saharan Africa. This study aimed to assess the level of stigmatising attitude towards co-workers living with HIV in the workplace.Methods:The study was a descriptive cross-sectional survey involving 403 respondents. They were recruited from selected companies through a multistage sampling technique. Survey was carried out using pre-tested semi-structured questionnaires. Data were analyzed using the Statistical Package for the Social Sciences to generate frequencies, cross tabulations of variables at 5% level of significance. Logistic regression model was used to determine the predictors at 95% confidence intervals.Results:Mean age of respondents was 32.9 ± 9.4 years with 86.1% being females. Overall, slightly below two-third (63.0%) had good knowledge on transmission of HIV/AIDS while 218 (54.1%) respondents had a high stigmatising attitude towards co-workers with HIV in the workplace. More female respondents (69.6%) demonstrated high stigmatising attitudes towards co-workers with HIV in the workplace (p = 0.012). Female workers were twice more likely to have high stigmatising attitudes towards co-worker with HIV [OR 2.1 (95% CI: 1.13 – 3.83)].Conclusion:Stigma towards people living with HIV/AIDs is still very persistent in different settings. Good knowledge amongst our participants about HIV/AIDs did not translate to low stigmatising attitudes among workers. Concerted efforts and trainings on the transmission of HIV/AIDs are essential to reduce stigma that is still very prevalent in workplace settings.


2021 ◽  
Vol 4 (1) ◽  
pp. 50-56
Author(s):  
Ahmad Ikhlasul Amal ◽  
Retno Setyawati

Background: Infectious diseases that are still of concern to many circles, namely HIV / AIDS. This is confirmed by the reason that there is still an increase in the number of cases. In addition, this disease makes sufferers or people who are often known as people living with HIV / AIDS (PLWHA) experience both physical and psychological problems. The physical problems experienced by PLWHA, of course, depend on the stage of the patient's disease. PLWHA who experience physical problems may experience stress due to their illness. The purpose of this study was to determine the relationship between HIV stage and stress levels. Method: This type of research is a quantitative observational study with a correlation analytic design with consecutive sampling technique. Data collection was carried out by using a questionnaire with the number of respondents as many as 38 people. The data obtained were processed statistically using the Spearmen Rho statistical test. Results: based on the data, it was found that from 38 research respondents, most of them were 20-60 years old (76.3%). The majority of people with HIV / AIDS were male, namely 23 people (60.5%) with most of the occupations of HIV / AIDS sufferers being private (63.2%). Respondents' HIV was at stage II (50%) and III (50%). The level of stress experienced by HIV / AIDS sufferers is quite good, namely: at level I (31.57) and II (68.43). r = -174, p-value = 0.283. Conclusion: there is no correlation between HIV stage and stress level.


2020 ◽  
Vol 9 (2) ◽  
pp. 1128-1133
Author(s):  
Dian Permatasari ◽  
Eva Nurhidayati ◽  
Dian Ika Puspitasari

Human Immunodeficiency Virus and Acquired Immuno Deficiency Syndrome  have become epidemics that seriously  of the world community. East Java is one of the provinces with the highest number of HIV / AIDS sufferers in Indonesia. As of September 2018, the number of people living with HIV / AIDS was 47,396 people.  This research is a quantitative research design with explanatory research which aims at research conducted to explain the influence between independent and dependent variables through testing. Cross sectional design because the independent and dependent variables were measured at the same time. The sampling technique used total sampling. The instrument in this study was a questionnaire. Data were analyzed using regression test. One of the solutions to overcome this problem is the role of peer support groups in providing support and services to ODHA by providing access to information and referrals about treatment. 


2017 ◽  
Vol 3 (2) ◽  
pp. 46
Author(s):  
Dewi Mayang Sari

Latar Belakang: Jumlah penderita HIV/AIDS di Indonesia setiap tahunnya terus bertambah. Menurut laporan tahunan terbaru dari Badan Dunia untuk penanggulangan HIV/AIDS atau UNAIDS, Indonesia kini berada diurutan nomor satu. Terkait laju peningkatan kasus HIV di Indonesia pada tahun 1998 jumlah kasus HIV baru 591 orang, tetapi pada bulan September 2007 jumlahnya telah mencapai 5.904 orang. Tujuan Penelitian: Mengetahui persepsi terapi ARV (Anti Retroviral Virus) pada orang yang terinfeksi HIV/AIDS di Kota Salatiga. Metode Penelitian: Jenis penelitian menggunakan pendekatan fenomenologi. Rancangan fenomenologi ini dilaksanakan dengan berpedoman pada tahapan deskriptif yaitu tahapan intuitif analisis dan deskriptif. Jumlah partisipan dalam penelitian ini sebanyak 3 orang penderita HIV/AIDS di Kota Salatiga atau sampai saturasi data. Teknik pengambilan sampel yang digunakan adalah purposive sampling. Hasil penelitian: Persepsi  dalam menjalani terapi ARV (Anti Retroviral Virus) di Kota Salatiga sudah baik, mereka mengetahui tentang ARV dan mengetahui tentang  efek samping yang ditimbulkan dari terapi ARV. Upaya orang yang terinfeksi HIV/AIDS dalam menjalani terapi ARV (Anti Retroviral Virus) di Kota Salatiga. ODHA mengatasi efek samping dengan konsultasi ke dokter dan minum obat yang diberikan dokter. Dukungan petugas manajemen kasus dalam menjalani  terapi ARV (Anti Retroviral Virus) di Kota Salatiga sudah baik. Dukungan  kelompok sebaya terhadap orang yang terinfeksi HIV dalam menjalani terapi ARV (Anti Retroviral Virus) di Kota Salatiga baik. Dukungan suami terhadap istri yang dalam menjalani terapi ARV (Anti Retroviral Virus) di Kota Salatiga baik. Kata kunci            :   Persepsi; ARV; sikap; HIV/AIDS; kelompok sebaya  PERCEPTION THERAPY ARV (ANTI-RETROVIRAL VIRUS) IN PEOPLE INFECTED WITH HIV / AIDS IN THE CITY SALATIGA ABSTRACT Background: The number of people living with HIV / AIDS in Indonesia each year continues to grow. According to the latest annual report of the World Agency for HIV / AIDS or UNAIDS, Indonesia now comes out number one. Related to the rate of increase in HIV cases in Indonesia in 1998, the number of new HIV cases 591 people, but in September 2007 the number had reached 5,904 people. Objective Research: Knowing perception of antiretroviral therapy (Anti Retroviral Virus) in people infected with the H IV / AIDS in Salatiga. Methods: Type research using a phenomenological approach. draft of this phenomenology is guided by the descriptive stage stages intuitive and descriptive analysis. The number of participants in this study were 3 people with HIV / AIDS in Salatiga or until saturation of data. The sampling technique used was purposive sampling. Results of the study: Perception in therapy ARV (Anti-Retroviral Virus) in Salatiga has been good, they know about the drugs and find out about the side effects of antiretroviral therapy. Efforts of people infected with HIV / AIDS in antiretroviral therapy (Anti Retroviral Virus) in Salatiga. PLWHA cope with the side effects consult a doctor and take medicine that doctors prescribe. Support case management officer in antiretroviral therapy (Anti Retroviral Virus) in Salatiga has been good. peers Support against people infected with HIV in antiretroviral therapy (Anti Retroviral Virus) in Salatiga well. Support husbands against wives in antiretroviral therapy (Anti Retroviral Virus) in Salatiga well. Keywords    : Perception; antiretroviral therapy; attitude; HIV / AIDS; officers peer  


2021 ◽  
Vol 4 (1) ◽  
pp. 23
Author(s):  
Novianti Lailiah ◽  
Nursalam Nursalam ◽  
Ninuk Dian Kurniawati

Introduction: Adherence in ARV therapy is an important mechanism in preventing drug resistance. The level of adherence is influenced by several factors, one of which is the information skills factor. This study aims to analyze the relationship between information skills and ARV adherence in People Living With HIV/AIDS (PLWHA).Method: This was a cross-sectional approach with a sample size of 100 respondents who were selected through simple random sampling technique. The inclusion criteria for respondents were PLWHA who were undergoing ARV therapy, cooperative, aged 20-60 years. The instrument used was information skills questionnaire and Medical Adherence Rating Scale (MARS). The data were analyzed using descriptive analysis and logistic regression test with p value ≤ 0.05.Results: Information skills were  associated with ARV adherence (p = 0.01). Information skills consisting of knowledge about HIV/AIDS and ARV therapy can increase ARV adherence in PLWHA with indicators taking drugs regularly and have medical control on schedule.Conclusions: The information skills factor has an effect on ARV adherence. Increasing information skills can be done through educational activities or peer-group support aimed at gaining insight into disease and treatment, especially for newly diagnosed PLWHA.


2021 ◽  
Vol 8 ◽  
pp. 2333794X2110036
Author(s):  
Gideon Awenabisa Atanuriba ◽  
Felix Apiribu ◽  
Adwoa Bemah Boamah Mensah ◽  
Veronica Millicent Dzomeku ◽  
Richard Adongo Afaya ◽  
...  

With the advent of Anti-Retroviral Therapy, Human Immune Virus, and Acquire Immuno-Deficiency Syndrome is increasingly becoming a chronic disease as life expectancy among People Living With HIV/AIDS has increased. For Children Living With HIV/AIDS the role of the caregivers becomes essential as caregivers’ decisions affect CLWH health. However, the experiences of these caregivers are often unnoticed while all interventions are directed at PLWH. This study aimed at exploring the experiences of caregivers of CLWH in some selected hospitals in northern Ghana. This study employed a qualitative descriptive phenomenological approach. Purposive sampling technique was used to recruit 9 participants from 3 public hospitals in the Tamale Metropolis of Ghana. Data was manually analyzed using the approach of Collaizi and the findings were presented in themes and sub-themes. We conducted individual face to face interviews in English and Dagbani from September to November 2019. These interviews were conducted at the convenience of the participants in hospitals and at their homes. They were introduced to the study while awaiting to take antivirals for their CLWH. Five themes emerged: changed family dynamics, discovery of diagnosis, reaction to diagnosis, disclosure, stigma and discrimination, and burden and challenges of care. Caregivers were severely impacted by caring for CLWH and traumatized by changed family dynamics which exposed them to many difficulties. Stigma was widely perpetrated by immediate family members and majority reacted badly to their children HIV-positive status with fear, shame, guilt and even suicidal ideation.


2017 ◽  
Vol 7 (13) ◽  
pp. 3-26
Author(s):  
Marinilda Rivera-Díaz ◽  
Nelson Varas-Díaz ◽  
Mark Padilla ◽  
María de los Angeles Vargas-Cancel ◽  
Neisha Serrano

This article aims to describe the manifestation of HIV stigma in the family context and how this could impact the life of people living with HIV (PLWH). The data derive from a larger phenomenological study addressing manifestations of stigma in the lives of PLWH when interacting with the health sector. Nine focus groups were carried out in 2011 with PLWH  (N=67). Eight themes emerged from the qualitative analysis. For the purpose of this article, we focus on the categories related to family dynamics: the negotiation of disclosure and non-disclosure, fear of the HIV virus and family dynamics, and life as a couple.  Socio demographic information showed that 53% were between 44 to 54 years old, 80% were single, 51% were male, 42% did not complete a high school diploma, 82% were unemployed. Also, 82% described themselves as religious persons and 41% had lived with HIV for 10 years or less. Qualitative results show stigma is still present in the family context. PLWH experience fear of disclosure, discrimination, avoid initiating families or couple relationships, experience physical and verbal abuse from relatives, and even separation from other family members. After more than 30 years of the ongoing HIV epidemic, stigma is still manifested by family members with detrimental social and medical implications for PLWH. Research and educational efforts should continue addressing manifestations of stigma among family members of PLWH. 


2017 ◽  
Vol 3 (2) ◽  
pp. 29
Author(s):  
Siti Asiyah ◽  
Susanti Pratamaningtyas ◽  
Suwoyo Suwoyo

Sixth goal in the MDGs are handle a variety of the most dangerous infectious diseases. At the top is intended to handle HIV, the virus that causes AIDS. The disease is a devastating impact not only on public health but also to the overall state. This study aims to look at the effect of social entrepreneurship program for public stigma about HIV / AIDS. Analytical research design using cross sectional correlational techniques. The study population is the ODHA, which had already independently of 50 people. Samples were taken by simple random sampling technique, a number of 44 people. Statistical analysis was entrepreneurship programs that are run by people living with HIV have not succeeded run and people living with HIV is almost entirely feel the stigma which is given by the society. Chi Square Results obtained Alpha 0:00 less than Alpha 0.05. This means that, the Social Entrepreneurship Program affect the public stigma about HIV / AIDS. The results of the study can be used to support the Government's program to empower of ODHA.; Keywords: Social entrepreneurship, Stigma, ODHA


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