scholarly journals FENOMENOLOGI KOMUNIKASI TERAPEUTIK FAMILY CAREGIVER KOMUNITAS PEDULI SKIZOFRENIA INDONESIA (KPSI)

2021 ◽  
Vol 4 (2) ◽  
pp. 187-197
Author(s):  
Shofia Nur Rahma ◽  
Rini Riyantini ◽  
Dian Tri Hapsari
Keyword(s):  
Family Caregivers ◽  
Interpersonal Communication ◽  
Family Caregiver ◽  
Emotional Regulation ◽  
Therapeutic Process ◽  
Recovery Process ◽  
Therapeutic Communication ◽  
Appropriate Treatment ◽  
The Social ◽  
Voice Calls

Therapeutic communication has an important role to help the recovery process of People With Schizophrenia (ODS) who have symptoms of hallucinations and delusions that can lead to a tendency to have difficulty communicating to withdraw from the social environment. Therapeutic communication is a form of communication aimed at the therapeutic process and patient healing. Phenomenology is used as a method and therapeutic communication as a theory in this study. The data collection method was carried out through online interviews using WhatsApp voice calls to 6 ODS family caregiver informants. The results of this study indicate that the experience of therapeutic communication carried out by family caregivers in the form of interpersonal communication can help the ODS awareness process regarding schizophrenia as indicated by ODS' willingness to take medication regularly, as well as communication in the form of showing acceptance, listening carefully, and emotional regulation when communicating with ODS can provide appropriate treatment when ODS has relapse symptoms so that it can help the process of developing ODS.

The Medical Interpreter Mediation Role

2020 ◽  
pp. 99-135
Author(s):  
Izabel E. T. de V. Souza
Keyword(s):  
Data Analysis ◽  
Interpersonal Communication ◽  
Qualitative Data ◽  
Therapeutic Process ◽  
Therapeutic Communication ◽  
Therapeutic Interaction ◽  
Medical Interpreters ◽  
Medical Interpreter ◽  
Initial Exploration

While it is claimed that the role of medical interpreters is constantly changing, perhaps it is the understanding of their role that is evolving. The aim of this chapter is to provide an initial exploration of the contextualized issues and challenges related to interpreting therapeutic communication. The qualitative data analysis of nine specialist certified medical interpreters showcase some of the therapeutic factors that influenced their approach and practice. In addition to the interlinguistic and intercultural communicative goals, interpreters utilized their interpersonal, communication, and mediation skills to meet several therapeutic objectives. Interpreters described mediating therapeutic interaction and intervention, playing a therapeutic mediation role in addition to well-known linguistic and cultural mediation roles. Interpreters described their preoccupation and engagement in the therapeutic process, suggesting specialist medical interpreters play an important role in the therapeutic process.

scholarly journals RELATIONSHIP SOCIAL SUPPORT AND RESILIENCE WITH STRESS LEVELS OF FAMILY CAREGIVERS HEMODIALYSIS PATIENTS SURABAYA

2020 ◽  
Vol 9 (2) ◽  
pp. 56
Author(s):  
A Fahmil Haq Aplizuddin ◽  
Harmayetty Harmayetty ◽  
Elida Ulfiana
Keyword(s):  
Social Support ◽  
Family Caregivers ◽  
Family Caregiver ◽  
Negative Relationship ◽  
Cross Sectional Study ◽  
Hemodialysis Patients ◽  
Cross Sectional ◽  
The Social ◽  
The Family ◽  
Stress Levels

Introduction: Hemodialysis is a life-long treatment for end-stage renal disease (ESRD). ESRD has physical and psychosocial challenges to experience stress which not only affects but patients but also family members who care for them or also called family caregivers. Analyzing the relationship of social support and resilience to the level of stress in the family caregiver of hemodialysis patients at Haji Hospital Surabaya.Methods: A cross-sectional study with a population of family caregiver members of hemodialysis patients at RSU Haji Surabaya. The sample size was 92 respondents with criteria, namely families who treat hemodialysis patients at RSU Haji Surabaya, live in one house with patients, aged > 18 years, and can read and write. The variables of this study are social support, resilience, and stress levels. Data collection was performed using a questionnaire and analyzed using Spearman’s Rho test. Results : There was a significant negative relationship between social support and stress levels (p = 0.004 and r = -0.296) and resiliency with stress levels (p = 0.003 and r = -0.311).Discussion: The level of stress in a family caregiver hemodialysis patient can be influenced by the social support received and the level of resilience they have. The social support has an important role for family caregivers obtained from the family and significant other.

Family caregiver participation in caregiving for hospitalized elderly patients with a tracheostomy: a literature review

2020 ◽  
Vol 24 (2) ◽  
pp. 105-111 ◽  
Author(s):  
Watchara Tabootwong ◽  
Frank Kiwannuka
Keyword(s):  
Health Care ◽  
Literature Review ◽  
Elderly Patients ◽  
Family Caregivers ◽  
Family Caregiver ◽  
Health Care Professionals ◽  
Therapeutic Process ◽  
Content Type ◽  
Hospitalized Elderly ◽  
Hospitalized Elderly Patients

Purpose Elderly patients requiring prolonged mechanical ventilation are treated with a tracheostomy. Oftentimes, the family caregivers need to participate in the care for elderly patients with a tracheostomy during hospitalization. Therefore, this paper was conducted to acknowledge what family caregivers experience while caregiving for hospitalized elderly patients with a tracheostomy. Design/methodology/approach This literature review identifies family caregiver participation in caregiving for the elderly patient, the impact of caregiving, and the needs of family caregivers. Findings Family caregivers participate in the planning and provision of care to elderly patients. Furthermore, they also collaborate in the therapeutic process for elderly patients as well. Albeit the former sentiments, they experience physical, psychological, social and financial consequences of caregiving. It has been revealed that during the process of caring for their loved ones, family caregivers often experience poor sleep quality, strain, reduction in social interaction and insufficient income. Thus, health-care professionals should support and provide care for the needs of family caregivers. This can be achieved through providing information on prognosis, the care plan, emotional support and collaboration during the therapeutic process to provide better care for elderly patients with a tracheostomy. In addition, family caregivers’ relatives can also provide financial support and rotation of caregiving schedules to avoid burnout. Originality/value The paper indicates that family caregivers experience the impacts of caregiving. They should be supported by health-care professionals and their relatives.

INFLUENCE OF PERSONAL COMMUNICATION NETWORKS ON INNOVATION ADOPTION — USING MULTI-AGENT SIMULATIONS TO PROJECT THE LAUNCH OF AN INNOVATIVE MEDICAL DEVICE

2013 ◽  
Vol 10 (05) ◽  
pp. 1340021 ◽  
Author(s):  
CHRISTIAN BARROT ◽  
JAN KUHLMANN ◽  
ANDREA POPA
Keyword(s):  
Medical Device ◽  
Interpersonal Communication ◽  
Communication Networks ◽  
Personal Communication ◽  
Market Penetration ◽  
Modeling Framework ◽  
Communication Processes ◽  
The Social ◽  
The Us ◽  
Multi Agent

Adoption processes are often heavily influenced by interpersonal communication. Marketing managers are increasingly trying to use these relationships to foster the market penetration of their products. In an empirical study of the US market for an innovative medical device, we survey the social network of (mostly chief) anesthetists from 151 hospitals. We confirm the influences from personal communication on individual adoption decisions through hazard regressions. We then use a multi-agent modeling framework trying to identify what seeding strategies would have been optimal to achieve a fast market penetration, i.e. which and how many anesthetists should be selected to initiate personal communication processes.

scholarly journals Family caregiver emotional distress in advanced cancer: the DME-C scale psychometric properties

2020 ◽  
pp. bmjspcare-2020-002608
Author(s):  
Joaquín T Limonero ◽  
Jorge Maté-Méndez ◽  
María José Gómez-Romero ◽  
Dolors Mateo-Ortega ◽  
Jesús González-Barboteo ◽  
...  
Keyword(s):  
Psychometric Properties ◽  
End Of Life ◽  
Family Caregivers ◽  
Advanced Cancer ◽  
Emotional Distress ◽  
Family Caregiver ◽  
Screening Tools ◽  
Anxiety And Depression ◽  
The Family ◽  
End Stage

BackgroundFamily caregivers of patients with advanced illness at end of life often report high levels of emotional distress. To address this emotional distress is necessary to have adequate and reliable screening tools.AimThis study analyses the psychometric properties and clinical utility of the Family Caregiver Emotional Detection Scale for caregivers of patients with end-stage cancer (DME-C, Spanish acronym) who are receiving palliative care (PC).DesignMulticentre, cross-sectional study.Settings/participantsFamily caregivers of patients with advanced cancer at end of life receiving palliative treatment were interviewed to explore their emotional distress through the DME-C scale and other instruments measuring anxiety and depression (Hospital Anxiety and Depression Scale (HADS)), distress thermometer (DT) and overload (B), as well as a clinical psychological assessment (CPA).Results138 family caregivers, 85 (61.6%) female and 53 (38.4%) male, with an average age of 59.69±13.3 participated in the study. The reliability of the scale, as measured by Cronbach’s alpha, was 0.76, and its stability over time was 0.734. Positive, significant correlations were found between the DME-C and the scores for anxiety and depression registered on the HADS scale, as well as with the total result of this latter scale and the results for B, the DT and the CPA. A statistical analysis of the receiver-operating characteristic curves showed that the scale has a sensitivity and specificity of 75%, and that the cut-off point for the detection of emotional distress was a score ≥11. Fifty-four per cent of the caregivers displayed emotional distress according to this scale.ConclusionsThe DME-C displays good psychometric properties. It is simple, short, reliable and easy to administer. We believe that the instrument is useful for the detection of emotional distress in the family caregivers of hospitalised patients suffering from end-stage illnesses and receiving PC.

scholarly journals Understanding the Link between Family Caregiver Quality of Life and the Care Provided to Older People With Dementia

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 153-154
Author(s):  
Afeez Hazzan
Keyword(s):  
Quality Of Life ◽  
Quality Of Care ◽  
Older People ◽  
Family Caregivers ◽  
Family Caregiver ◽  
Well Being ◽  
The United States ◽  
People With Dementia ◽  
The Impact

Abstract Dementia is one of the most rapidly growing diseases in the United States. In 2018, the direct costs to American society of caring for older people with dementia was approximately $277 billion. Primary informal caregivers are mainly responsible for the care of older people with dementia including Alzheimer’s disease. Caregivers perform a myriad of duties ranging from shopping for their loved ones’ groceries, helping with medications, and managing finances. The caregiving role becomes more demanding as the disease progresses over time, and studies have shown that the quality-of-life (QoL) experienced by caregivers of older adults who have dementia is lower than the QoL of caregivers for older people who do not have dementia. To the best of our knowledge, there has been no research conducted to investigate whether lower caregiver QoL affects the level or quality of care that caregivers provide to persons with dementia. In the current study, we interviewed family caregivers living in Rochester, New York to inquire about their quality of life and the care provided to older people living with dementia. Further, caregivers completed the 36-item Short Form Health Survey (SF-36) as well as a draft questionnaire for measuring the quality of care provided to older people living with dementia. Both quantitative and qualitative findings from this study reveals important relationships between family caregiver QoL and the care provided, including the impact of social support and financial well-being. The study findings could have significant impact, particularly for the provision of much needed support for family caregivers.

scholarly journals Age-dependency in mortality of Finnish family caregivers: a nationwide register-based study

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
T M Mikkola ◽  
H Kautiainen ◽  
M Mänty ◽  
M B von Bonsdorff ◽  
T Kröger ◽  
...  
Keyword(s):  
General Population ◽  
Family Caregivers ◽  
Family Caregiver ◽  
Causes Of Death ◽  
Lower Mortality ◽  
All Cause Mortality ◽  
The Difference ◽  
Caregiver Role ◽  
Selection Of

Abstract Purpose Mortality appears to be lower in family caregivers than in the general population. However, there is lack of knowledge whether the difference in mortality between family caregivers and the general population is dependent on age. The purpose of this study was to analyze all-cause mortality in relation to age in family caregivers and to study their cause-specific mortality using data from multiple Finnish national registers. Methods The data included all individuals, who received family caregiver's allowance in Finland in 2012 (n = 42 256, mean age 67 years, 71% women) and a control population matched for age, sex, and municipality of residence (n = 83 618). Information on dates and causes of death between 2012 and 2017 were obtained from the Finnish Causes of Death Register. Flexible parametric survival modeling and competing risk regression adjusted for socioeconomic status were used. Results The total follow-up time was 717 877 person-years. Family caregivers had lower all-cause mortality than the controls over the follow-up (8.1% vs. 11.6%) both among women (hazard ratio [HR]: 0.64, 95% CI: 0.61-0.68) and men (HR: 0.73, 95% CI: 0.70-0.77). Younger adult caregivers had equal or only slightly lower mortality than their controls, but after age 60, the difference increased markedly resulting in over 10% lower mortality in favor of the caregivers in the oldest age groups. Caregivers had lower mortality for all the causes of death studied, namely cardiovascular, cancer, neurological, external, respiratory, gastrointestinal and dementia than the controls. Of these, the lowest was the risk for dementia (subhazard ratio=0.29, 95%CI: 0.25-0.34). Conclusions Older family caregivers have lower mortality than the age-matched controls from the general population while younger caregivers have similar mortality to their peers. This age-dependent advantage in mortality is likely to reflect selection of healthier individuals into the family caregiver role. Key messages The difference in mortality between family caregivers and the age-matched general population varies considerably with age. Advantage in mortality observed in family caregiver studies is likely to reflect the selection of healthier individuals into the caregiver role, which underestimates the adverse effects of caregiving.

scholarly journals Narratives of Change: Identity and Recognition Dynamics in the Process of Moving Away From a Life Dominated by Drug Use

2021 ◽  
pp. 009145092110270
Author(s):  
Inger Eide Robertson ◽  
Hildegunn Sagvaag ◽  
Lillian Bruland Selseng ◽  
Sverre Nesvaag
Keyword(s):  
Drug Use ◽  
Identity Formation ◽  
Recovery Process ◽  
Way Of Life ◽  
Positive Identity ◽  
The Social ◽  
Changing Practices ◽  
Struggle For Recognition ◽  
Depth Interviews

The concepts of identity and recovery capital are recognized as being an embedded part of moving away from a life dominated by drug use. However, the link between these two concepts and the effect of broader social structures, and the normative assumptions underpinning the condition of recovery, is less explored. This article focuses on the social practices of everyday life in the foreground of identity formation, meaning that “who I am” is an inseparable part of “what I do.” A narrative approach was employed to analyze qualitative follow-up data extracted from 48 in-depth interviews with 17 males and females with drug-using experience that were conducted posttreatment on three separate occasions over a period of 2.5 years. Theories of identity formation were employed to analyze the interdependent dynamic between social structure, persona and social resources, and way of life and identity. The analyses identified four narratives related to how people present themselves through the process of changing practices. Following the work of Honneth, we argue that the positive identity formation revealed in these narratives is best understood as a struggle for recognition via the principle of achievement. However, the participants’ self-narratives reflected cultural stories—specified as formula stories—of “normality,” “addiction,” and the “addict,” which work into the concepts of self and confine options of storying experiences during the recovery process. This study demonstrate that the process of recovery is culturally embedded and constitutes a process of adaption to conventional social positions and roles. We suggest challenging dominant discourses related to “addiction as a disease” and “normality” in order to prevent stigma related to drug use and recovery. In so doing, it may contribute to broaden conditions for identity (trans)formation for people in recovery.

scholarly journals Quality of Care Provided by Family Caregivers of Older People With Dementia: Measurement and Interpretations

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 152-152
Author(s):  
Afeez Hazzan
Keyword(s):  
Quality Of Care ◽  
Older People ◽  
Family Caregivers ◽  
Family Caregiver ◽  
Primary Reason ◽  
People With Dementia ◽  
High Level ◽  
The Impact ◽  
The Relationship

Abstract Family caregivers of older people living with dementia are relatives, friends, or neighbors who provide assistance related to this condition, but who are unpaid for the services they provide. Although caregiving could be personally rewarding, many caregivers report a high level of strain. Compared to caregivers of older adults who do not have dementia, family caregivers of older people living with dementia report lower quality-of-life (QoL). In a published systematic review examining the relationship between family caregiver QoL and the quality of care provided, only one study was found to be somewhat relevant. The study suggested that the primary reason for an absence of research into the link between family caregiver QoL and quality of care was the absence of a questionnaire for measuring quality of care in dementia. Therefore, any attempt to investigate the impact of caregiver QoL on the care provided to older people with dementia must first address the lack of an instrument to measure quality of care. To address this issue, we interviewed approximately 20 family caregivers in order to elicit feedback on measurements and interpretation of the quality of care provided by family caregivers of older people living with dementia. Content analysis of the interview transcripts revealed that the quality of relationships with family, caregiver availability to provide or supervise care, and availability of paid or volunteer help are important for the quality of care provided. These results have important implications, particularly for the development of an instrument to measure quality of care in dementia.

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