Everyday Life Experiences of Independence in Women with Rheumatoid Arthritis

Background. Rheumatoid arthritis (RA) is an incurable disease which affects the human body and day to day activities. Diffcultly completing daily tasks is the main problem associated with rheumatoid arthritis. This chronic disease causes a large number of restrictions when dealing with daily life. Restrictions can be simple as having diffculty with basic activities such as looking after themselves and their homes, and too diffcult in more advanced tasks which require greater effort. These restrictions not only affect the ability of the individual to complete daily tasks but can also have a negative impact on the individual’s emotional and social relationships and their overall quality of life. The aim – describe everyday life experiences of women with rheumatoid arthritis. Methods. A qualitative study was carried out where 3 women who suffered with rheumatoid arthritis were interviewed. The average duration of the disease was 15 years and the average age of women interviewed was 56 years. The interview consisted of 7 questions, including how independent women were in conducting daily activities when they had the disease. The study was carried out in February– April, 2017. Each woman was interviewed individually and the conversation was recorded with a Dictaphone and the conversation was then transcribed. Data were analysed applying the method of content analysis. All the data was then analysed and later sorted in subcategories, which were then grouped into larger categories. The interview period lasted from 30 minutes up to 1 hour. Results. The results revealed that women had problems with the symptoms of illness in their daily lives such as dealing with self-care, clothing, food and work. Conclusions. 1) Women with rheumatoid arthritis had changes in daily activities in the following areas: personal hygiene, dressing and undressing, preparing food, having problems showering, the pain they had in the shoulder did not allow them to complete daily activities as desired. 2) As the conditions of the joints worsen, everyday activities become more painful, performed slower and require greater effort, it becomes diffcult to grab and hold small objects. 3) Activities performed by individuals with rheumatoid arthritis are decreased due to the presence of symptoms, but women took measures to complete these activities easier.Keywords: rheumatoid arthritis, independence, life experiences, daily activities, occupational therapy.

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Factors Associated with Financial Security, Food Security and Quality of Daily Lives of Residents in Nigeria during the First Wave of the COVID-19 Pandemic

International Journal of Environmental Research and Public Health ◽

10.3390/ijerph18157925 ◽

2021 ◽

Vol 18 (15) ◽

pp. 7925

Author(s):

Morenike Oluwatoyin Folayan ◽

Olanrewaju Ibigbami ◽

Maha El Tantawi ◽

Brandon Brown ◽

Nourhan M. Aly ◽

...

Keyword(s):

Food Intake ◽

Food Insecurity ◽

Sex Education ◽

Negative Impact ◽

Poor Quality ◽

People Living With Hiv ◽

Daily Lives ◽

Lower Odds ◽

Factors Associated

An online survey was conducted to identify factors associated with financial insecurity, food insecurity and poor quality of daily lives of adults in Nigeria during the first wave of the COVID-19 pandemic. The associations between the outcome (experience of financial loss, changes in food intake and impact of the pandemic on daily lives) and the explanatory (age, sex, education level, anxiety, depression, HIV status) variables were determined using logistic regression analysis. Of the 4439 respondents, 2487 (56.0%) were financially insecure, 907 (20.4%) decreased food intake and 4029 (90.8%) had their daily life negatively impacted. Males (AOR:0.84), people who felt depressed (AOR:0.62) and people living with HIV -PLHIV- (AOR:0.70) had significantly lower odds of financial insecurity. Older respondents (AOR:1.01) had significantly higher odds of financial insecurity. Those depressed (AOR:0.62) and PLHIV (AOR:0.55) had significantly lower odds of reporting decreased food intake. Respondents who felt anxious (AOR:0.07), depressed (AOR: 0.48) and who were PLHIV (AOR:0.68) had significantly lower odds of reporting a negative impact of the pandemic on their daily lives. We concluded the study findings may reflect a complex relationship between financial insecurity, food insecurity, poor quality of life, mental health, and socioeconomic status of adults living in Nigeria during the COVID-19 pandemic.

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Effectiveness and Efficacy of Therapeutic Interventions Performed by Nurses for Anxiety Disorders: A Systematic Review

Journal of the American Psychiatric Nurses Association ◽

10.1177/10783903211068105 ◽

2022 ◽

pp. 107839032110681

Author(s):

Roslaine Ifran Amaral ◽

Fernanda Cirne Lima Weston ◽

Vânia Naomi Hirakata ◽

Adriana Aparecida Paz ◽

Ana Cristina Wesner

Keyword(s):

Systematic Review ◽

Anxiety Disorders ◽

Negative Impact ◽

Self Control ◽

Therapeutic Interventions ◽

Quality Of Evidence ◽

Assessment Development ◽

Anxiety Levels ◽

The Individual

BACKGROUND: Anxiety disorders are characterized by excessive anxiety, fear, and behavioral disorders that can lead the individual to have losses in daily, social, and work activities, generating a negative impact on their quality of life. AIM: To evaluate the quality of evidence of the therapeutic interventions performed by nurses for anxiety disorders. METHOD: An analysis of the quality of evidence was performed using the Grading of Recommendations Assessment, Development and Evaluation (GRADE) system. The systematic review protocol was registered in the Prospective Register of Systematic Reviews (Prospero), CRD420202939. RESULTS: The interventions performed by nurses were effective ( d = 0.44), with significant improvement in reducing anxiety levels, reducing drug use, and improving self-control. CONCLUSIONS: The study indicates that therapeutic interventions performed by nurses are beneficial for individuals who suffer from anxiety disorders, with significant improvement in reducing anxiety levels, reducing medication use, improving self-control, and remission of anxiety symptoms.

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Adolescent’s descriptions of fatigue, fluctuation and payback in chronic fatigue syndrome/myalgic encephalopathy (CFS/ME): interviews with adolescents and parents

BMJ Paediatrics Open ◽

10.1136/bmjpo-2018-000281 ◽

2018 ◽

Vol 2 (1) ◽

pp. e000281 ◽

Cited By ~ 3

Author(s):

Roxanne M Parslow ◽

Nina Anderson ◽

Danielle Byrne ◽

Alison Shaw ◽

Kirstie L Haywood ◽

...

Keyword(s):

Chronic Fatigue Syndrome ◽

Qualitative Interviews ◽

Leisure Activities ◽

Chronic Fatigue ◽

Daily Activities ◽

Daily Lives ◽

Fatigue Syndrome ◽

Constant Versus ◽

The Individual ◽

The Impact

ObjectiveAs part of a larger qualitative study to explore outcomes important in paediatric chronic fatigue syndrome/myalgic encephalopathy (CFS/ME) and what improvements in fatigue and disability are key, interviews were undertaken with adolescents and their parents. This paper focuses on their descriptions of fatigue, fluctuation of symptoms and payback.Design and settingSemistructured qualitative interviews were undertaken between December 2014 and February 2015. Adolescents and parents were interviewed separately. Participants were recruited from a single specialist paediatric chronic fatigue service. Interviews were audio recorded, transcribed verbatim and analysed using thematic analysis.ParticipantsWe interviewed 21 adolescents and their parents (20 mothers and 2 fathers). The adolescents were aged between 12 and 17 years of age (mean age 14.4 years), mild to moderately affected by CFS/ME (not housebound) and the majority were female (16/21).ResultsAll adolescents with CFS/ME reported fatigue, a natural fluctuation of the condition, with good days and bad days as well as an increase in symptoms after activity (payback). However, adolescent’s descriptions of fatigue, symptoms and the associated impact on their daily lives differed. The variations included: fatigue versus a collection of symptoms, constant versus variable symptoms and variable symptom severity. There were differences between participants in the amount of activity taken to cause payback. The impact of fatigue and symptoms on function ranged from: limiting the duration and amount of leisure activities, struggling with daily activities (eg, self-care) to no activity (sedentary).ConclusionsFatigue, fluctuation of the condition and payback after activity are described by all adolescents with CFS/ME in this study. However, the individual experience in terms of how they describe it and the degree and impact varies.

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The Impact of COVID-19 on the Dietary Habits of Middle-Class Population in Mulund, Mumbai, India

10.21467/preprints.82 ◽

2020 ◽

Author(s):

Vidhi Mehta

Keyword(s):

Dietary Habits ◽

Preventive Measures ◽

Negative Impact ◽

Health Sector ◽

Eating Patterns ◽

Early Implementation ◽

The Usa ◽

The Individual ◽

The Impact

In India, the SARS-CoV-2 COVID-19 pandemic has grown to 112,359 cases and 3,435 deaths as per 21st May, 2020. The severe acute respiratory syndrome (SARS) affected the world with 4,893,186 cases and 323,256 deaths as of 21st May, 2020. The WHO declared the outbreak as a public health emergency of international concern on 30th January, 2020 and it was declared as a pandemic in March 2020. Clinical studies conducted on hospitalized cases show that the onset of COVID-19 is associated with symptoms commonly associated with viral pneumonia, most commonly fever, cough/sore throat and myalgia/fatigue. COVID-19 world pandemic imposed a new set of challenges for the individual to maintain a healthy diet. When compared to the USA, India is currently facing lesser cases of the pandemic because of early implementation of the preventive measures such as a lockdown. Because of the lockdown imposed, India has and is facing a downfall in every aspect, such as the economy, the agriculture, the health sector, the IT and management sectors and also tourism. This in turn, will have a negative impact on the quality of life and economy in India. The present paper aims to find out the impact of COVID-19 pandemic on the health sector and is based on the results obtained from a survey about the eating patterns of participants from Mulund, Mumbai, India. It was seen that the mental stress caused due to the pandemic had an effect on the dietary behaviors of the participants.

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LA FOBIA SOCIAL EN LAS RELACIONES INTERPERSONALES DE LOS SERES HUMANOS.

PSICOLOGÍA UNEMI ◽

10.29076/issn.2602-8379vol1iss1.2017pp25-32p ◽

2017 ◽

Vol 1 (1) ◽

pp. 25-32

Author(s):

Ana Macias Fernandez ◽

Jefferson Mendoza Carrera ◽

Dennis Jiménez Bonilla

Keyword(s):

Interpersonal Relationships ◽

Self Esteem ◽

Daily Activities ◽

Scientific Article ◽

Calidad De Vida ◽

To Come ◽

The Individual ◽

The University ◽

Estudiantes Universitarios

La fobia social nace del miedo que una persona tiene por llegar a ser juzgado por los demás e incluso este miedo puede impedir que el individuo realice sus actividades diarias. Es así como muchas de las personas que padecen esta fobia sienten temor constante a tener nuevas relaciones interpersonales, al hablar en público y esto muchas veces antes que ocurra el acontecimiento de conocer a alguien nuevo. Aunque estas personas saben que no deberían tener miedo ante aquellos hechos simplemente es algo que no pueden evitar en sus relaciones interpersonales ya que enfrentan un grave problema, puesto que la comunicación y la interacción entre los individuos son de vital importancia. Por lo expuesto, en este artículo científico se determinaron las causas que dieron origen a este trastorno con la finalidad de establecer pautas claras para mejorar calidad de vida del individuo y su relación con el entorno. Se realizó el estudio en 100 estudiantes universitarios. Los resultados permitieron establecer, que los índices de los indicadores de autoestima y ansiedad fueron relevantes al momento de diagnosticar esta problemática en la comunidad universitaria. ABSTRACT Social phobia is born of the fear that a person has to come to be judged by others and even this fear can prevent the individual to perform their daily activities. This is how many people who suffer from this phobia feel constant fear of having new interpersonal relationships, speaking in public and this many times before the event of meeting someone new. Although these people know that they should not be afraid of those facts, it is simply something they cannot avoid in their interpersonal relationships since they face a serious problem, since communication and interaction between individuals are of vital importance. Therefore, in this scientific article the causes that gave rise to this disorder were determined in order to establish clear guidelines to improve the quality of life of the individual and its relationship with the environment. The study was conducted on 100 university students. The results allowed to establish that the indices of self-esteem and anxiety indicators were relevant at the time of diagnosing this problem in the university community.

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Auswirkungen der Pflege eines Partners auf Partnerschaft und Sexualität

Journal of Family Research ◽

10.20377/jfr-236 ◽

2011 ◽

Vol 23 (1) ◽

pp. 102-116

Author(s):

Ralph-Michael Karrasch ◽

Monika Reichert

Keyword(s):

Chronic Disease ◽

Sexual Dysfunction ◽

Marital Satisfaction ◽

Everyday Life ◽

Communication Skills ◽

Negative Impact ◽

Male Partner ◽

Sexual Problems ◽

The Relationship

This study shows that caregiving for a spouse with a chronic disease or disability can be a difficult task in many ways and can have a negative impact (e.g. lack of intimacity, sexual problems) on the quality of the relationship between the couple. With regard to sexual problems, for example, insufficient ways to handle sexual dysfunction of the (male) partner, the avoidance of talking about sexuality, a misleading perception of each other’s sexual needs and jealousy can be experienced as especially burdensome. As a consequence, very often caregivers and care receivers report a lower marital satisfaction compared to the time before the caregiving situation set in. In order to reduce the negative impact caregiving may have on the partnership, changes in everyday life and in the relationship have to be accepted and, adequate coping strategies have to be used or learned, respectively (e.g. improvement of verbal communication skills). Zusammenfassung: Diese Studie zeigt, dass die Pflege eines Partners mit chronischer Erkrankung oder Einschränkung in vielerlei Hinsicht eine schwierige Aufgabe darstellt und negative Auswirkungen – wie einen Mangel an Zärtlichkeit oder sexuelle Probleme – auf die Partnerschaftsqualität haben kann. In Hinblick auf sexuelle Probleme können unzureichende Wege mit sexueller Dysfunktion des (männlichen) Partners umzugehen, das Vermeiden von Gesprächen über Sexualität, eine irreführende Wahrnehmung der gegenseitigen sexuellen Bedürfnisse und Eifersucht als besonders belastend erlebt werden. Als Folge berichten Pflegende und Gepflegte über eine geringere Zufriedenheit mit der Partnerschaft als in der Zeit, bevor die Pflegesituation auftrat. Um die möglichen negativen Auswirkungen einer Pflegesituation auf die Partnerschaft zu verringern, müssen Veränderungen im alltäglichen Leben und in der Partnerschaft besser angenommen und adäquate Bewältigungsstrategien wie z.B. eine Verbesserung der verbalen Kommunikation genutzt bzw. erlernt werden.

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The Rheumatoid Arthritis Quality of Life (RAQoL) for Indonesia: Translation and Pilot Test

INSIST ◽

10.23960/ins.v2i1.25 ◽

2017 ◽

Vol 2 (1) ◽

pp. 10

Author(s):

Khoirunnisa S.M. ◽

Perwitasari D.A

Keyword(s):

Quality Of Life ◽

Rheumatoid Arthritis ◽

Healthy Subjects ◽

Primary Objective ◽

Pilot Test ◽

Validity And Reliability ◽

Language Version ◽

The Individual ◽

The Uk

Abstract— The primary objective of this research were to produce and evaluate the official Indonesian language version of the Rheumatoid Arthritis Quality of Life instrument (RAQoL). The UK RAQoL was translated into Indonesian by a forward-backward translation. A separate lay panel was conducted to consider the appropriateness and comprehensibility of the items in Indonesian. The translated version of the RAQoL was pilot tested to determine whether the questionnaire RAQoL could be well understood and well accepted. Pilot test was conducted by interviews with 20 subjects, which 10 healthy Indonesia people and 10 rheumatoid arthritis patients who were recruited from X hospital in Yogyakarta, Indonesia. Items on the two response format questionnaire used in pilot study were scored one for a ‘yes’ response and zero for a ‘no’ response. The individual total item scores with a high score indicating poor QoL. Few difficulties arose in the translation process and the new language version was well received by the lay panel and field-test participants. Statistical analysis was conducted to determine the difference of completion time between healthy subjects and RA patients, and the total score of the questionnaire answers between healthy subjects and patients. The average total score of responses to questionnaire on the healthy subject and patients by T test was significantly different (p < 0.05). The official Indonesian RAQoL was well received by RA patients. The psychometric quality of the translated questionnaire means that it is suitable for validity and reliability of the questionnaire towards patients with RA.Keywords—Rheumatoid Arthritis, questionnaire, RAQoL, translation, pilot test

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Protocol for an observational cohort study identifying factors predicting accurately end of life in dementia with Lewy bodies and promoting quality end-of-life experiences: the PACE-DLB study

BMJ Open ◽

10.1136/bmjopen-2020-047554 ◽

2021 ◽

Vol 11 (5) ◽

pp. e047554

Author(s):

Melissa J Armstrong ◽

Henry L Paulson ◽

Susan M Maixner ◽

Julie A Fields ◽

Angela M Lunde ◽

...

Keyword(s):

Cohort Study ◽

End Of Life ◽

Lewy Body ◽

Dementia With Lewy Bodies ◽

Life Experience ◽

Life Experiences ◽

Lewy Bodies ◽

Lewy Body Dementia ◽

The Individual

IntroductionDementia with Lewy bodies (DLB) is one of the most common degenerative dementias. Despite the fact that most individuals with DLB die from complications of the disease, little is known regarding what factors predict impending end of life or are associated with a quality end of life.Methods and analysisThis is a multisite longitudinal cohort study. Participants are being recruited from five academic centres providing subspecialty DLB care and volunteers through the Lewy Body Dementia Association (not receiving specialty care). Dyads must be US residents, include individuals with a clinical diagnosis of DLB and at least moderate-to-severe dementia and include the primary caregiver, who must pass a brief cognitive screen. The first dyad was enrolled 25 February 2021; recruitment is ongoing. Dyads will attend study visits every 6 months through the end of life or 3 years. Study visits will occur in-person or virtually. Measures include demographics, DLB characteristics, caregiver considerations, quality of life and satisfaction with end-of-life experiences. For dyads where the individual with DLB dies, the caregiver will complete a final study visit 3 months after the death to assess grief, recovery and quality of the end-of-life experience. Terminal trend models will be employed to identify significant predictors of approaching end of life (death in the next 6 months). Similar models will assess caregiver factors (eg, grief, satisfaction with end-of-life experience) after the death of the individual with DLB. A qualitative descriptive analysis approach will evaluate interview transcripts regarding end-of-life experiences.Ethics and disseminationThis study was approved by the University of Florida institutional review board (IRB202001438) and is listed on clinicaltrials.gov (NCT04829656). Data sharing follows National Institutes of Health policies. Study results will be disseminated via traditional scientific strategies (conferences, publications) and through collaborating with the Lewy Body Dementia Association, National Institute on Aging and other partnerships.

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Impact of the COVID-19 Quarantine on Young Children’s Family-Based Daily Activities in Greece

Journal of Educational and Developmental Psychology ◽

10.5539/jedp.v11n2p56 ◽

2021 ◽

Vol 11 (2) ◽

pp. 56

Author(s):

Dimitra Panagiotopoulou ◽

Kalliroi Papadopoulou

Keyword(s):

Negative Impact ◽

Well Being ◽

Daily Activities ◽

Learning And Development ◽

Family Routines ◽

Convenience Sample ◽

Daily Lives ◽

Home Based ◽

Research Findings ◽

Family Based

This study reports on parental perceptions of changes and continuities in young children’s home-based daily activities during the initial COVID-19 quarantine in Greece. Daily activities present significant contexts for children’s learning and development and their continuity in periods of crisis is important for children’s psychological well-being. Existing research worldwide, underscores the changes occurring in families’ daily lives because of the pandemic- imposed restrictions, mostly focusing on their negative impact on family routines and functioning. On the other hand, continuities in children’s everyday activities during the quarantine have been less studied. 116 mothers and fathers, forming a convenience sample, reported on their children’s as well as their own engagement in daily activities with them, before and during the quarantine, using the CDA-PB scale. Results revealed changes in accordance with other research findings on this topic but also continuities in Greek families’ daily activities, which relate to parental values and already established family routines.

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KOMPETENSI GURU DALAM PEMBELAJARAN

Jurnal Literasiologi ◽

10.47783/literasiologi.v3i1.61 ◽

2020 ◽

Vol 3 (1) ◽

Author(s):

Muhammad Rifai Harahap

Keyword(s):

Common Good ◽

Teaching And Learning ◽

Human Life ◽

Daily Lives ◽

Process Learning ◽

Learning As A Process ◽

The Individual ◽

A Charge ◽

Teaching Learning

Nowadays education is growing more rapidly and more complex, education problems faced is not a challenge that is left alone, but it requires constructive thinking in order to achieve the quality of the goal of good education. The problems in question include the competence of teaching teachers because teachers as people who deal directly with learners should have good competence in the implementation of teaching and learning process. Learning takes place in human life because of the interaction between two or more people, the interaction between two or more people, the interaction between two or more people, the interaction that involves the exchange of information that is unknowingly done in our daily lives. So that learning reinforces through experience. Learning has a charge that involves two or more people. Learning takes place as long as each individual builds mutually agreeable and satisfying cooperation. Learning is strived to provide interaction and communication that ensures the common good so that in the learning can be a mutually ripe process. Learning as a process is done by the individual to gain a whole new behavioral change, as a result of the individual's own practice in his interaction and environment. Learning is different from Teaching, learning does not have English roots. Learning is different from learning. Therefore learning if translated into English learningization is the efforts of educators to make learners learn (to makes people or student learn). In every lesson effective conditions must be planned and cultivated by the teacher deliberately in order to avoid adverse conditions (prevention efforts), and restore optimal conditions in case of damaging things caused by the behavior of learners in the classroom.

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