scholarly journals Becoming a Family Caregiver to a Person With Dementia: A Literature Review on the Needs of Family Caregivers

2021 ◽  
Vol 7 ◽  
pp. 237796082110290
Author(s):  
Vibeke Østergaard Steenfeldt ◽  
Lars Christian Aagerup ◽  
Anna Holm Jacobsen ◽  
Ulla Skjødt
Keyword(s):  
Literature Review ◽  
Family Caregivers ◽  
Social Contact ◽  
Well Being ◽  
Reciprocal Relationship ◽  
The Family ◽  
The Matrix ◽  
Caregiver Burdens ◽  
High Level ◽  
Person With Dementia

Introduction The dementia disease affects both the family caregivers’ health and social and psychological well-being. The aim of this review was to identify and describe the needs of family caregivers living with a person with dementia at home. Method The literature review, conducted using the matrix method, was also inspired by Thomas and Harden’s thematic synthesis. Results Three themes were identified: (1) the family caregiver’s new roles and relationships; (2) caregiver burdens; and (3) the caregiver’s need for information and support. Conclusion When family caregivers gradually lose their reciprocal relationship with the person with dementia, and sometimes also with family and friends, the need for other kinds of social contact arises e.g. with others in a similar situation. They also need to have some respite to provide room to pursue their own interests and take care of their own health. Also, a high level of individually tailored information is needed.

scholarly journals 407 - The Baycrest Quick-Response Caregiver Tool: The Role for a New Tool for Caregivers of Persons with Dementia

2020 ◽  
Vol 32 (S1) ◽  
pp. 123-123
Author(s):  
Ken Schwartz ◽  
Robert Madan ◽  
Anna Berall ◽  
Marsha Natadira ◽  
Anna Santiago
Keyword(s):  
Family Caregivers ◽  
Health Care Providers ◽  
Healthcare Providers ◽  
Well Being ◽  
Moderate Degree ◽  
Quick Response ◽  
Care Providers ◽  
High Level ◽  
Person With Dementia ◽  
The Impact

Background:Responsive behaviours in dementia are associated with poor outcomes for the person with dementia (PWD) and caregiver burnout. Family caregivers need a variety of tools to manage responsive behaviours. The Baycrest Quick-Response Caregiver Tool was developed to provide caregivers with a tool that can be used in real time. In this study, the feasibility, impact, and effectiveness of this new tool were studied in family caregivers and health care providers (HCP) using quantitative and qualitative measures.Methods:Family caregivers were recruited and were asked to complete a pre-survey before being sent the link to the educational tool. One month after the telephone survey, caregivers were sent an online post-survey to gather their feedback on the tool and the impact of the tool on caregiver well -being. Healthcare providers were also recruited and reviewed the tool through an online feedback survey. The feasibility, impact, and effectiveness of the tool were assessed using quantitative and qualitative measures.Results:Caregivers had a moderate degree of and reported a high level of competence - these scores were maintained throughout the study. Caregivers reported that tool positively impacted their compassion towards the person with dementia (PWD), and that their interactions with improved. 100% of HCP who completed the feedback survey would recommend the tool to other HCP and to caregivers of PWD. The caregivers and HCP provided specific suggestions for improvement.Conclusions:The Baycrest Quick-Response Caregiver Tool was found to be feasible and helpful. It provides caregivers and HCP with an additional approach for responsive behaviours.

scholarly journals Caregiving for Persons Living With Dementia in the New Normal: Family Caregiver’s Perspective

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 1036-1036
Author(s):  
Priyanka Shrestha ◽  
Donna Fick ◽  
Marie Boltz ◽  
Susan Loeb ◽  
Andrew High
Keyword(s):  
Family Caregivers ◽  
Family Caregiving ◽  
Qualitative Methodology ◽  
Well Being ◽  
Intensive Care Admission ◽  
Increased Risk ◽  
The Family ◽  
Poor Outcomes ◽  
Person With Dementia ◽  
The Impact

Abstract Persons living with dementia (PLWD) are at increased risk for COVID-19 and associated poor outcomes, including: incident delirium, hospitalization, severe symptoms, intensive care admission, and even death. PLWD are likely to rely on family caregivers to maintain their health and well-being in the community. Under normal circumstances, caregiving can be stressful and complex, and the COVID-19 pandemic has the potential to change and exacerbate the stresses of family caregiving. As a part of a larger study using descriptive qualitative methodology to explore the family caregiver understanding and experiences related to delirium in caring for a person with dementia, 14 participants (age x̄ =67, SD= 13.8) were asked about the impact of COVID-19 on their caregiving for PLWD. Thematic analysis of the transcribed interviews using Dedoose generated four overarching themes associated with the family caregiver’s perspective of changes in caregiving during the COVID-19 pandemic: 1) Cautious of COVID-19 exposure, 2) We can’t go in, 3) Feeling of isolation for both the PLWD and caregiver, and 4) Six-feet distance. The current study highlights the importance of understanding the needs of PLWD during a pandemic based upon the perspective of their family caregivers and will inform the development of ways to safely incorporate family caregivers in the interdisciplinary care team. Caregivers are integral to the care of PLWD across settings of care and should be partners even during a pandemic. Solutions for care include integrating technology for individualized approaches. Finally, future areas for research will be discussed.

scholarly journals REGULARITIES AND FORMING FACTORS OF THE CHILDREN’S MORBIDITY RATE AT THE BEGINNING OF THE XXI CENTURY (THE LITERATURE REVIEW)

2019 ◽  
Vol 20 (4) ◽  
pp. 232-237 ◽  
Author(s):  
Darya B. Mirolyubova
Keyword(s):  
Risk Factors ◽  
Literature Review ◽  
The Body ◽  
Preventive Health ◽  
Morbidity Rate ◽  
Standards Of Living ◽  
Learning Conditions ◽  
The Family ◽  
Medical Effectiveness ◽  
High Level

There was shown the significance of leading risk factors for the development of adverse changes in the body, forming the high level of the morbidity rate in children: biological (the character of the course of pregnancy and parturition), social and environmental (diet, living and learning conditions, standards of living of the family, a culture of the healthcare), medical (effectiveness of preventive, health and therapeutic work in children’s groups). There was determined the necessity of a differentiated approach to the evaluation of the role and contribution of factors for groups of the various age.

Experiences of Family Caregivers of People with Dementia during the COVID-19 Pandemic

2021 ◽  
pp. 019394592110557
Author(s):  
Melissa L. Harris ◽  
Marita G. Titler
Keyword(s):  
Family Caregivers ◽  
Psychological Symptoms ◽  
Behavioral Responses ◽  
Well Being ◽  
Comparative Methods ◽  
People With Dementia ◽  
Effective Care ◽  
Exploratory Approach ◽  
Person With Dementia ◽  
Behavioral And Psychological Symptoms

Although behavioral and psychological symptoms are burdensome for people with dementia and their caregivers, perceptions of family caregivers regarding management of these symptoms are unclear. This study explored the experiences of family caregivers regarding behavioral and psychological symptoms experienced by relatives with dementia, management of these symptoms, and changes in their experiences during the COVID-19 pandemic. A qualitative, exploratory approach using constant comparative methods was used; 21 family caregivers were interviewed virtually. The following 10 major themes emerged: (1) Emotional and psychological experiences of caregiver, (2) emotional, psychological, and behavioral responses of person with dementia, (3) cognition of person with dementia, (4) loss, (5) concerns for the future, (6) reliance, (7) learning to caregive, (8) rewarding aspects of caregiving, (9) caregiver perspectives, and (10) care strategies. Caregivers described many challenges to care before and during the pandemic. Acceptable and effective care strategies are needed to promote the well-being of families living with dementia.

Cognitive Decline and the Changing Self in Relationship

2015 ◽  
pp. 61-75
Author(s):  
Darby Morhardt ◽  
Marcia Spira
Keyword(s):  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Cognitive Decline ◽  
Family Member ◽  
Family Members ◽  
Well Being ◽  
Family Roles ◽  
The Family ◽  
Person With Dementia ◽  
The Impact

When a member of a family is diagnosed with Alzheimer's disease, the impact of the disease reverberates throughout the relationships within the family. This paper explores the challenges and strengths within one family as members manage and cope with Alzheimer's disease. The person with dementia and his family members are individually interviewed and each person explores the consequences of the disease on personal well-being as well as the relationships within the family. The family demonstrates how dementia in one family member demands flexibility in family roles as they navigate life through the challenges of living with dementia.

scholarly journals Description of Process and Content of Online Dementia Coaching for Family Caregivers of Persons with Dementia

Healthcare ◽  
2019 ◽  
Vol 7 (1) ◽  
pp. 13
Author(s):  
Rita Jablonski ◽  
Vicki Winstead ◽  
David Geldmacher
Keyword(s):  
Family Caregivers ◽  
Goal Setting ◽  
Premorbid Personality ◽  
Work History ◽  
Coaching Relationship ◽  
Coaching Process ◽  
The Family ◽  
Centered Care ◽  
Sixth Session ◽  
Person With Dementia

Family caregivers of persons with dementia encounter resistance to care behaviors (RCBs). The purpose of this methods paper was to describe the process and content of six weekly 60-min caregiver coaching sessions delivered synchronously through an online platform to 26 family caregivers of persons with dementia. All session notes were analyzed for process; two coaching sessions from five purposely-selected participants were transcribed and analyzed thematically for content. The six sessions followed an overall pattern. The first session included the most teaching and goal-setting; the coaches also queried the family caregiver about the premorbid personality, work history, and interpersonal attributes of the person with dementia. Sessions two through five were the most active coaching sessions; previously suggested strategies were evaluated and tailored; caregivers also role-played with the coaches and developed scripts designed to curtail RCB. The sixth session served as a review of successful caregiver strategies and concluded the coaching relationship. Four primary content themes emerged in the coaching process: (1) education; (2) caregiver communication; (3) affirmation of the caregiver; and (4) individualized strategies. These four content categories were used throughout the coaching process and were interwoven with each other so that the participant knew why the behavior was occurring, how to verbally address it, how to use a strategy effectively, and affirmation of the result. The coaching process and content demonstrated alignment with person-centered practices and relationship-centered care.

scholarly journals Compliance of the expert with the self-isolation in the situation of the COVID-19 pandemic as a factor of the psychological well-being

2020 ◽  
Vol 64 (6) ◽  
pp. 358-363
Author(s):  
Elena A. Sorokoumova ◽  
Elena I. Cherdymova ◽  
Elena B. Puchkova ◽  
Larisa V. Temnova ◽  
Tatiana I. Bonkalo ◽  
...  
Keyword(s):  
Well Being ◽  
Information Support ◽  
Psychological Well Being ◽  
The Family ◽  
Occupational Activities ◽  
Mode Of Life ◽  
Psychological Assistance ◽  
Level Of Understanding ◽  
The Individual ◽  
High Level

Introduction. Experts in many occupations are to carry out their occupational activities in unusual conditions. And in particular, in a remote mode, which can be a factor that reduces the level of psychological well-being of the individual if there is no compliance with the situation of self-isolation. The purpose of the study is to study the teachers’ compliance with the situation of self-isolation during the COVID-19 pandemic. The tasks of the study include the detection of the grade of the compliance with the situation of self-isolation during the pandemic, the analysis of the level of compliance with the situation of self-isolation during the pandemic as a factor of psychological well-being of teachers. Material and methods. We surveyed 124 teachers (between 23 to 67 years). The respondents’ answers are represented on three scales: Understanding the situation of self-isolation’, ‘Understanding of oneself in the situation of isolation, ‘Understanding the characteristics of the interactions and communication in the situation of isolation’. Results. Most respondents agree with the need for self-isolation and consider it to be a practical approach to prevent the incidence of COVID-19. The most pronounced responses are the ones on improving occupational and cultural levels. Most of the respondents note a high level of understanding of the value of relationships. Discussion. In particular, the problem of insufficiently high level of self-understanding in the situation of self-isolation, along with the acknowledgement of the need to comply with it, to be revealed. In this regard, it is advisable to provide psychological assistance in the form of information support for the population. Conclusion. That the better the respondents understand the need for self-isolation, the more effective the process of communication and interaction with others is, and, consequently, the less damage is caused to the level of psychological well-being of the individual. Due to the established lack of understanding of oneself in the situation of self-isolation, the following can be considered practical areas of informational psychological support: critical attitude to information that appears in various sources; building positive relationships within the family; managing work at home to ensure good performance; preserving the ability to return to the usual mode of life after the period of self-isolation.

scholarly journals A Review of the Complex Role of Family Caregivers as Health Team Members and Second-Order Patients

Healthcare ◽  
2019 ◽  
Vol 7 (2) ◽  
pp. 63 ◽  
Author(s):  
Sherman
Keyword(s):  
Family Caregivers ◽  
Family Caregiving ◽  
Well Being ◽  
Health Care Team ◽  
Second Order ◽  
Team Members ◽  
Physical Decline ◽  
Health Team ◽  
The Family

In Palliative Care, the unit of care is the patient and their family. Although members of the health care team often address the family caregiver’s opinions and concerns, the focus of care remains on the needs of the patient. The readiness and willingness of the family caregiver is often overlooked as they are expected to assume a complex caregiving role. When family caregivers are not intellectually or emotionally prepared or physically capable, the caregiver is at high risk for serious health issues and cognitive, emotional, and physical decline particularly as caregiving extends over time. Family caregivers are often a neglected and at-risk population. Illustrated through the use of a case study, this article addresses the complex role of family caregivers, as both health team members and second-order patients. It emphasizes the importance of family assessment and interventions to balance the burdens and benefits of family caregiving and protect caregivers’ health and well-being.

Dukungan Sosial Untuk Meningkatkan Kesejahteraan Psikologis Caregiver Pada Pasien Skizofrenia : Literature Review

2021 ◽  
Vol 1 ◽  
pp. 1323-1331
Author(s):  
Azkiyah Fitriana ◽  
Eka Budiarto
Keyword(s):  
Social Support ◽  
Literature Review ◽  
Family Caregiver ◽  
Well Being ◽  
Psychotic Symptoms ◽  
Exclusion Criteria ◽  
Psychological Well Being ◽  
Instrumental Social Support ◽  
The Family ◽  
Schizophrenic Patients

AbstractSchizophrenia is a condition of inability to think logically. There is a disturbance in motor activity. Caregivers are vulnerable to burdens and stress that can interfere with their role as companions and fuctions in the family. Therefore, social support are needed so that caregivers cab face the stress and burden of caring for schizophrenic patient. The study aimed to determined social supports to Improve The Psychological Well-Being of caregivers of schizophrenia patients based on available evidence. The study used a literature review method. The databased used to search article were PubMed,Science Direct, and GARUDA.there were five article selected based on the suitability of the specified keywords, topic, and inclusion dan exclusion criteria. The articles were published in the 2012-2021 period. The instrument used was the Hawker instrument. There were 5 types of social support found in the articles. Those were social support as a coping streategy, instrumental social support in increasing patient interaction with other, maladaptive coping strategies used by family caregivers, instrumental social support which was positively related to social interaction andshowed lower levels of psychotic symptoms, social support perceived by family caregiver which played and important role as it improved their psychological-well being. These five social support to improve caregiver psychological well-being in schizophrenic patients are obtained from valid scientific avidence. Therefore, they can be used as scientific references to be applied as nursing care intervention.Keywords :Caregiver;schizophrenia;social support;psychological well-being AbstrakSkizofrenia merupakan keadaan dimanapemikiran tidak saling berhubungan secara logis dan adanya gangguan aktivitas motorik. Caregiver rentan mengalami beban dan stress yang dapat menganggu perannya sebagai pendamping dan fungsi dalam keluarga. Sehingga diperlukan dukungan sosial agar caregiver dapat menghadapi stress dan beban dalam merawat pasien skizofrenia.Penelitian bertujuan untuk mengetahui dukungan sosial untuk meningkatkan kesejahteraan psikologis caregiver pasien skizofrenia berdasarkan evidence yang tersedia. Penelitian menggunakan metode literature review. Database yang digunakan untuk pencarian artikel adalah PubMed, Science Direct, GARUDA. Artikel diseleksi berdasarkan kesesuaian dengan kata kunci, topik serta kriteria inklusi dan eksklusi yang ditentukan. Artikel digunakan dalam penelitian berjumlah 5 artikel yang terbit pada rentang waktu 2012-2021. Instrumen yang digunakan adalah instrumen Hawker. Terdapat temuan berupa 5 macam dukungan sosial untuk meningkatkan kesejahteraan psikologis caregiver pada pasien skizofrenia; dukungan sosial sebagai strategi koping, dukungan sosial instrumental meningkatkan interaksi pasien dengan orang lain, pengasuh keluarga menggunakan strategi koping maladaptif, dukungan sosial instrumental berhubungan positif dengan interaksi sosial dan menunjukan tingkat gejala psikotik lebih rendah, dukungan sosial yang dipersepsikan oleh family caregiver berperan penting karena dapat meningkatkan kesejahteraan psikologisnya. Kelimadukungan sosial untuk meningkatkan psikologis caregiver pada pasien skizofrenia ini didapatkan dari bukti ilmiah yang valid sehingga dapat dijadikan referensi ilmiah untuk diaplikasikan sebagai intervensi asuhan keperawatan.Kata kunci: caregiver;dukungan sosial;kesejahteraan psikologis;skizofrenia

scholarly journals The Impact of Major Events on the Lives of Family Caregivers of Children with Disabilities

1996 ◽  
Vol 77 (8) ◽  
pp. 502-514 ◽  
Author(s):  
Thomas P. McDonald ◽  
Graciela Couchonnal ◽  
Theresa Early
Keyword(s):  
Family Caregivers ◽  
Emotional Disorders ◽  
Family Caregiving ◽  
Well Being ◽  
Stressful Events ◽  
School Activities ◽  
Children's Behavior ◽  
The Family ◽  
Families With Children ◽  
The Impact

The authors examine the family caregiving experience among families with children with severe emotional disabilities from a perspective that recognizes the importance of the family's views and feelings. This viewpoint anticipates the occurrence of both positive and negative experiences and seeks to illuminate the caregiving process from the perspective of outcomes achieved. Family caregivers of 164 children with serious emotional disorders were asked to identify major pleasant and stressful events that had occurred in the past 12 months. The most frequently described pleasant events related to children's behavior, school activities, and interactions with professionals and friends. Frequently described problem areas included children's behavior, professionals/services, and difficulty with school. The impact of these pleasant and stressful events was examined with respect to caregivers' perceived well-being: (1) overall stress, (2) the ability to fulfill responsibilities, and (3) pleasure experienced in various life domains. Implications of the study findings for supporting family caregivers in their roles are discussed.

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